My Thyroid Cancer Story - What a Month - 02/05/2023
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- Опубликовано: 2 окт 2024
- Well sh*t, here we are a video series I didn't think I would have to make, on 03/10/2016 I was diagnosed with thyroid cancer.
I will be vlogging my treatment, thoughts and recovery when I can. If you are watching this and have any questions please ask.
I hope someone finds these useful.
If you like you can subscribe to follow my story.
Find me on Twitter @asksenseiplater
Guys got a broken freakin' neck, broken arm has been through hell and he is worried about getting us a video to keep us updated. Absolute legend, thinking of you Joe.
Thought are with you bro absolute Warrior bro you're an inspiration
Lamp
My spine broke but I refused surgery. It's tough i can sort of understand all my joints dislocate too
Lamp ❤
Legend, keep it up and be yourself and what you want!
"If I knew dying would be such a drag then I would have given it a hard pass." - My grandmother, days before her passing.
She sounds like a legend! I’m sorry for your loss nevertheless.
@@HCB-lb5og She had a sense of humour that sort of reminds me of Joe. But she got to live until she was 95, life was fair to her.
"At least I don't have to go to that damn family reunion..." -My mother, upon discovering she had stage 4 pancreatic cancer.
You are one incredible individual. You have been through hell, and you still have such candid eloquence. I admire your stoic nature, and I have been entirely moved by you. Bless you, sir. Thank you for all of your posts. You matter Joe. You always will.
I’ll second that he’s amazing he has so much resolve and to me will always be one of life’s heroes for many reasons ♥️
Beautifully said. I have so much respect for you, Joe. ❤️
We all love you Joe.
Lamp!! You are incredible, the courage and determination you show is humbling. I hope you are as comfortable as you can be. Thank you for sharing your journey and the pragmatic outlook you share. You matter and are loved and respected
Thank God you have your mind and your voice. I use you as a consumer I am a nurse. You cant learn what you teach. You have privileged us with A LIVED EXPERIENCE OF CANCER - we all must learn the difference between managing,
1 well being
- SYMPTOMS
and
2 disease
- DIAGNOSTICS TREATMENT ASSESSMENT AGGRESSIVE MONITORING and acute care.
Symptom relief - physical and emotional is PALLIATIVE CARE - it’s humour ,opioids,cake,scotch,caviar, lollies!old cheeses,music,tears,oxygen,fluids,love,love,hugs,kisses,pets,albums,friends, family, long hand holding .
When will we get this !
So much gratitude and strength love music and laughter.
You are living you legacy.
Share this everyone.
At the end of your days
what would you want for those you love the most ?
what would you want for you.
Think about it !
Thankyou. You beautiful beautiful human.
Laugh, cry, do whatever YOU want.
Xxxxxx❤
Norm MacDonald on battles with cancer: “I’m pretty sure, I’m not a doctor, but I’m pretty sure if you die, the cancer dies at the same time. That’s not a loss. That’s a draw.”
Exactly, cancer never wins
What a wonderful way to see it .
So, you think he should die to defeat the cancer. That is a shitty view no offense.
Happily surprised to see a norm quote here.
I loved this sentiment from Norm so much that I shamelessly stole it for a eulogy at my uncle's funeral.
Because, as norm also said: "stealing things is the highest form of flattery". RIP Norm and RIP Uncle Donny
Many of the bodies cells survive for a little while after death.
As a fellow stage 4 who just had a curve ball and lying in specialist unit trying to fight multiple issues. Thank you for this and wishing you as many pain free and joyful hours & days that you can have x
I wish you all the best and hope you'll be okay
I am wishing the same for you Angel, many joyful days, months...years. I
God bless
I'll say a prayer for you - I hope for your health to return strong 💪
I've been having some symptoms for months now been to hospital loads of times been told every time it's not cancer but my throat been at me they been say its in my head and I'm worried all the time don't mean to prye but did being really gasy at night and in the morning mostly come up in ur thoughts and not being able to sleep would be a great help if any 1 thinks or experienced I'm very sorry to hear wat ur going through ur very brave and a inspired thing u are doing try to help and inform people wish u the best from Ireland 🇮🇪
I hope you know that your strength, personality, and sense of humour will be remembered by many watching you across the globe. I've never met you, but through these videos, I've come to really appreciate everything you represent as a human being. Sorry life was so tough to you - you didn't deserve this at all. But you have, and will continue to inspire many people with your videos.
So very true…
💕🙏🏻💕🙏🏻💕
You seem to be handling it with composure and dignity. As a fellow cancer sufferer around the same age, I find it inspiring.
No words. You're incredible. Wish more people in this world would be as straightforward and real as you are.
“As long as I have breathe I won’t stop fighting” Joe Plater. He kept his word. Love and light Joe. ❤️💙❤️💙❤️💙✨✨✨
You’ll lose. Everyone is dying as each day passes.
Never forget you Joe, Your courage and intelligence shined through all the pain you suffered. You put others first to tell your story in order to help others. A real hero. You are missed. Hope someone writes your story, it should be read.
Be at peace wherever you are. Your fans and friends loved you.
You are allowed to cry. You are allowed to feel tired. You are allowed to feel what you are feeling due to what you are going through. You are an amazing person Joe. Anyone that says anything harsh such as you're faking crying for views, has NO idea what it's like to live with what you're dealing with and they'd cry too. I know you've got limited time, but I'm always glad to see videos of yours and knowing you're still here. Keep fighting for your comfort because you deserve to be comfortable with whatever time you have left with the world.
Thank you, for sharing your story with us. Despite it not being easy to share your story to a lot of random people on the internet, it's a story that will for sure inform and help a lot of people in the future.
Tragic that even when in hospice dying of cancer that someone might be afraid to show emotion. Shame on everyone in Joe's life, including RUclips commenters, that created that toxic of an environment.
@@rgemail no one in my life created that, I show emotion when I think its appropriate, I've always tried to focus on facts during my videos and not get too emotional thats been my choice.
@@JoePlater fair enough my man. In that case let's just say you have a very British sense of when posessing emotions may be appropriate. In some sense we're all products of our environment. But I hear you nobody really wants to be the sobbing wreck in the face of adversity - just saying it would be very understandable.. maybe outside the Queens territories. lamp.
I can actually see the high charged emotions in joe.
All his micro expressions give alot away ....
...even the silent smiles whilst staring at the camera
after hes said something utterly awful....
I see his invisible tears, frustration and anger .
Its heart breaking to watch...
Joe can do what he likes , but he reminds me of " stiff upper lips " of the british .
...but im not sure he realises how much we already see ..
Just hope he also understands people give suggestions of new treatments
..not just for him, but for everyone else who has thyroid cancer
..who may be seeking help and still fighting...
It might be a god send to someone ..
You never know .
Joes channel helps many others who are dying ...
I hope to god he leaves this channel open forever
..to help everyone ..patients , doctors ,, medical staff alike...
After all , we are always learning.
The channel is a great documentary and will be comforting and informative to current and future victims of Thyroid cancer facing awful life expectancy estimates. He was given what, months to live and is still out here kicking 4 years later.
It's a net positive that he isn't entertaining every novel treatment idea the internet can imagine outside the ones with lots of real medical research supporting them. There are too many folks who can be convinced there is no need for painful chemotherapy and radiation when you can just rub mint on your temples or whatever, and those people would be actively harmed by reading yet another anecdote on 'new' treatments that will bolster their insistence on avoiding real medicine. Early and aggressive treatment is pivotal for long term survival in cancer paients, so those people who avoid hospitals will almost certainly die sooner for having put their lives in the hands of anecdotes. There are endless other places on the internet to find a bounty of herbs and techniques and guesses on how to 'treat cancer "naturally"' for them to find.
The light you still have in your eyes is something amazing. There is something really powerful in how you “watch us” through your camera and you are trusting us with your honest message.
You are a magnificent human being…
Lamp 💡
You have more courage in your little finger than most people have in their entire body xx
Hey Joe, we are still here with you and send you much love and hugs and comfort. You are such a wonderful inspiration to so many, more than you know.
Keep fighting Joe, you are an absolute warrior 💜
2nd watch through of this video…I learn new insights every time. I love when you said,”People criticize me for crying to get clicks…I have cancer you idiots. It hurts.” I butchered the quote…but I have cried so many times because of the intense pain. Keep being real Joe. I love ya man!!!! Keep fighting. So inspiring to another Stage 4 thyroid guy.
This video is so heart-wrenching but you still manage to make me laugh -- you listing all the fake "cures" and telling "big pharma" loons to shut the fu*k up was my personal favourite moment. Your complete intolerance for bullshit is a beautiful aspect of your character, and has probably steered some vulnerable people away from that nonsense. Your videos are life-saving and I'll forever be grateful I found your channel. I look forward to the next upload. Lots of love. Lamp.
Hey Joe, great to see you, we’re all thinking about you and wishing well to your family. Hope you can find meaning in the time that you have
Lamp
I have been following you for such a long time I lost track. I think you are a fascinating man that is going through an incredibly hard time. I wish I had pearls of wisdom to share but unfortunately I do not. I will continue to look forward to hearing from you.😘
Thanks for the update, you still make laugh when you start about obscure treatments and big Pharma haha , I love it, hope all goes well and glad you are out of the hell hole , take care, I look forward to your next video…. Lamp …..
Amazing isn’t strong enough a word to describe you. I wish peace for you so you can feel better ❤ during the time you are here no matter what that looks like. Give yourself grace for being up and down in your emotions lesser people who are well aren’t doing as well as you are. How could you not expect to be down, in pain, losing options and wanting against all that to continue to live. It’s not too much to ask for. It’s the least you deserve. I only wish someone could help you my friend.
Just don’t see the light
Lamp. I'm just a random internet nobody but I want you to know you and your story have touched me deeply. Thank you for the update and thank you for always being your amazing self.
I agree - well said
Watching you has changed my entire look on life and I’m not scared to say I’ve cried watching every single one of your videos. I’ve taken my life for granted and at 45 I’m healthy and everything works. I make such a huge deal about ageing and it’s made me mentally unwell as the years progress, I’ve no idea why I suffer so much over something so trivial but I do. After watching your videos I’ve started to change my mindset as well as way of living. I’ve stopped smoking after 30 years, will never touch one again. I’ve gone to the gym and feel more settled in cherishing my years on this earth instead of dreading them. You have the axes to grind even though u don’t ever complain, what you’re going through is crueler than cruel and incredibly difficult for me to watch. I do it out of sheer respect and admiration for you but also to help me try and enjoy my existence since none of us know when that’s gonna change, you are proof of that. I’m terribly sorry for what’s happening to you but I’m incredibly proud of you for keeping such positivity through these toughest of times. My father passed away at only 62 with prostate cancer and I watched him go from the dad I knew to a thin skeleton laying in a bed not able to hold his bodily functions, talk or walk, it’s a loss I will never be able to move on from but listening to you gives me a little more strength, I’ve no idea why but you single handedly have changed my entire view on how I feel and how I see things. You’re absolutely incredible and I salute you and want to say thank you.
You did not know that we all die ?
@@fatoumata7624 I cant answer a stupid question like that which has no bearing on the post I've written. If you want an answer then ask a question which warrants one
@@leemcarthy4550 what you shared was a beautiful thing.
Don't let anyone tarnish it.
Wish more people were willing to change their outlook, and recognize that as Joe has said, "life is equal parts joy and misery. And if it wasn't, it would be effin boring."
The reality is, we train ourselves to see the joy or the pain.
Very few of us choose to actively train ourselves to see both.
Good journey to you!
@@leemcarthy4550 Good answer not rude but to the point respect
I love your comment. Your honesty is refreshing. Be well, my friend💞
I’m in a similar situation. My Cancer treatment has side effects that totally wipe me out. I’m thinking of quitting. Your journey has helped me immensely. You do you young man. Your courage is inspiring. We will both pass soon. I salute you young Man. I wish you the best. I’ve learned how to cope with Cancer thru you.
Sometimes, you just have to let go, Lester. The earth and humanity has existed before and will exist still after you, so there are times when you realize you can't stop Fate.
I'm so very sorry ❤
I wouldn't call it quitting Lester. You are only doing what you think is best for you and your situation. Your quality of life is far more important than quantity. I wish you all the best. I am just starting out on my cancer journey and have no idea where it will end up, but if I die, the cancer dies too. It will not beat me.
Whatever you need to hear right now, pretend I just whispered it in your ear. ❤
Good luck!
Look up bravery and courage in the dictionary (yeah I’m that old…pre-Google) and you’ll find this man’s name and picture. Still keeping you in my thoughts and prayers. Lamp! You’re a beacon of light!
Lamp! 100% Facts courageous and brave. #JoePlater
Lamp! The freaking courage you have Joe
Thinking of you Joe. Your unwavering strength, resolve and sense of humour in the face of overwhelming challenges, are a sobering source of inspiration and focus.
I'm sending you so much love, so much love from Canada. Please feel it. You are so loved. My dearest friend passed from lung cancer, I was with her during all of it. All of it. Then I found my first born dead from an accidental overdose. All I know.....now....is love is all important. Please let yourself feel awash in our love. You have touched thousands and thousands of people. We love you. I'm whispering loving comfort in your ear everyday, all day.
So grateful for these videos. I was just diagnosed with stage 4 thyroid cancer. It’s been quite a ride so far. Thank you for inspiring posts.
Glad to see you!!
You've come a very, VERY long way, and it's okay for you to be tired, just like you said. It's okay to cry, too. You're at the highest peak of this mountain, you've been through so much, you've seen so much, you're been robbed of a lot- but I hope at the very least youve been surrounded by love the entire time.
You yourself as so strong for how hard you've fought, and you've done everything in your power- and that in itself is inspiring. I can't know what you've been through, I'm only 19, but you make me cherish the little things and inspire me to pursue medicine and cancer research in hopes of even bumping something a little further along for people. Because you deserve the world, you deserve a long, prosperous life and time with your wife and family. I wish I could give you my own time, as lame to think as that it.
Lamp!!
Farewell for now, Joe. Be well,
Hey joe, im sorry your situation is so shit. Please take some comfort in knowing you are incredibly brave and inspiring. Even though you are terrified, just making these videos show your strength in character. I hope your last days are beautiful. All of us that have followed you love you.
You are a brave man Joe! I take my hat of and make a deep bow for you. Lots of hugs! 😘❤️
Your courage is admirable. We are all thinking of you….Feel that from everyone!
So incredibly sad hearing of Joes passing. My heart sank when I read it. You touched the life of so many. Such a cool smart man Joe was. Total King. Rest in peace my friend. The world mourns you.
You are a complete champion of a human being. Thankyou for sacrificing your time to give perspective on this gauntlet of difficulty you have endured.
It is nice to know that you have so many people that care about you! Don't give up! You are an amazing human being! We all love you Joe!
Been following you for a while now. I've learned a lot, especially how you tell it like it is, and do it will that amazing grin of yours. Hope they can get your pain under control! Even with that giant lump on your heard you are still simply adorable! Peace!
So sorry it has been another tough month of hell.
Although you look slightly different with more medical aids
..you seem relaxed , still strongly with us and eager to keep the fight going.
I cant get over your enthusiasm for life , despite your glimmers of sadness .
You have taught us all how to ride the storm with dignity and strength,
..even when you are at your weakest. Astounding.
Hope it all goes well with radiotherapy and whatever else.
Wishing you painfree times ahead if possible.
Goodluck joe.
Lamp it up. 💚
Really love this guy, a pure soul.
He's free of pain now. Bless.
How nicely put.
The entire health care INDUSTRY should adopt the Hospice care model. Joe, you will be in my thoughts here on in. By the way, the video and audio was perfect. Heartfelt gratitude.
So pissed off hearing about your NHS experience. It’s not acceptable. Much better where you are now and It looks peaceful. I do worry when you haven’t posted in a while, so I’m glad you are managing the pain and still having that quality time with family and cool movies!! It’s not over until it’s over Joe, so savour all the good things and don’t ever feel bad for crying about the bad, I’m amazed at how you DO cope. Speaks volumes about your personality and mind set.
Lamp. You are often in my thoughts and grateful to see this video of you even though it was hard to hear how tough it’s been. Your tears are warranted and I cried with you. Thinking of you all the way from Australia 🦋💙💚💗
Lamp. You are helping and going to help so many people by recording your journey through this awful disease. Wishing you peace, Joe.
How?
Lamp!!!!!!!!! You are absolutely an inspiration to listen to. Your courage, honesty, humor, kindness, determination is wonderful. I am sorry you are feeling poorly and there will be bettysays. I can’t thank you enough for all your video’s and life lessons along the way. I am just beginning my journey and not afraid to say how scared I am. Thank you , hang in there as long as you’re able. Sending love, gentle hugs until next video. I completely respect you.
That's a lovely lamp. Sending love to you and your family. I hope you remain relatively pain free. Hugs for your wife.
This just brakes my fuc**ng heart.sorry you are going threw this Joe,i followed the journey of a chap called peewee toms he hd the courage similar to yourself.its amazing to see people like you with next level courage.
Joe, your videos are such a wonderful thing for all of us to see, a reminder of our strengths and weaknesses as humans. You have captured the reality of many of us with cancer. It is a rough road, but you have managed to get through it with your sense of humor still intact. Thank you for pushing through it all to record these videos! What an amazing man you are, your life makes a difference, and it will continue to do so, long into the future. None of us know when our end will come, but we have no choice except to continue until our heart tires of beating, and our lungs refuse to inhale. I certainly hope that there is something wonderful after this life. We are such complex, loving, and amazing beings, and it just seems that part of us must continue somehow. And YOU are an exceptional human. I hope I can meet you someday on the other side. Feel your heart beating, your lungs breathing, you’re still here. ❤️
Superhero. You're an inspiration to many Joe. May your light (and lamp) continue to shine brightly.
Just discovered you, I'm genuinely sorry for your situation, you are a real warrior that is fighting a battle so hard that many cannot begin to understand what you're going through.
A doctor once said: " battle against cancer is impossible to lose, even if you die you bring it down with you".
Hope that you win against the bastard, you are an example for millions of people around the world.
Cheers from Italy and i'm impatiatently waiting for an update.
Lamp. Gosh, what a time you've had. Thank you for documenting everything. It's okay to not be okay and definitely not embarrassing - it's tough, and we have no real idea of how much mental energy it must take. Thinking of you and your family ❤
Thank you for updating Joe. It can’t have been easy. I don’t think anyone really cares about any technical shortfalls, we’re here because we care about you and are invested in you, not your tech. It sounds like a really rough week, I hope radiation gives you some relief, and I’m glad you’re in a place that can care for you more appropriately, the Hospital sounds horrendous. Sending you support and best wishes from Oz.
Couldnt have said it better myself xx
You do bring the light, even in a very hard time for you and your loved ones. My cancer journey is nowhere near as hard as yours and I have shitty days and crying days and like you get my fighting spirit back. Thank you for sharing your journey…you have a lot of people who have been helped by it and are sending love your way.
Stage 4 for going on 11 years. Starting new chemo this week and have gained strength from seeing you pushing on. May you find relief from physical pain and comfort with those you love for as long as you are able to.❤
Caroline you've been at stage 4 for 11 years? What type of Thyroid cancer do you have. Wishing you the best.
This gives me hope! I'm stage 4 nine months in with an outlook of 2 years lucky to get 5.
I hope I make it as far as you have ❤
Stage 4 Men2a thyroid cancer and now 15 years metastaic in spine,liver, lungs, now adrenals pheocytochroma sending love Caroline keep fighting this horrible fight u got this Joe is such an awesome guy isn't he sending you both love and my thoughts through everything thrown your way❤❤
Stage 3b metastatic thyroid cancer with BRAFV600E mutation and some tall cell variant. 10 yrs this Halloween. Cheers to 10 more, finger 🤞 crossed. 1 paralyzed vocal cord from 5 cm tumor in thyroid. i think it's worse for men. We need more help finding cures for this. I'm a women. First diagnosed at 38.
Joe, I've been watching your vid for 11mins trying to think of something to say that doesn't sound like a cliche. Please know that your attitude and bravery has really inspired so many of us who don't have a way with words. All the best xxxxx
Hey Joe you are such an inspiration and to manage a smile with everything you are going through is mind boggling, god bless you and your family ..
Lamp!! Joe you are an inspiration, always. My Dad passed of Anaplastic thyroid cancer, he was tough, he would never mentally give in during life, always find a way to push forward. He grew weak. At some point in the weeks before he passed, he quietly told me he was running out of fight. He was ashamed of that. I told him that there is no shame in honesty. It’s ok to have days where you just can’t, you have cancer for goodness sake. He would sometimes cry, and feel ashamed because he was not a crier in normal life. Again, there is zero shame in being wide open and honest. His pain was, as you were in, full pain, physical and spiritual and emotional and mental pain. He had days where he was more stable, we had great laughs on those days which I’ll always treasure. Dad wanted to die at home, and because Marie Curie, Hospice At Home, and other similar options were not in the catchment area, I moved back home to care for him, to let him die where he wanted to.
Joe, I only tell you this because I want you to know that you too are more than entitled to cry, to run out of steam on some days, all days, whatever the case may be for you. This is your time. If you need a softer pillow, it’s your right to have it. You are still the driver of your own train, and while the train may keep puffing along while you are taking some well deserved rest, it’s puffing along because of your prior instructions and wants and needs. You can take time off while still being in full control.
As a nurse myself, I would like to say that I agree entirely with everything you said about the hospital. While I have never visited nor worked in that specific hospital, it’s an awful epidemic nationwide. There are sadly, nurses and other staff members, who in the midst of overwork and underpay, forget that people are individuals with opinions and thoughts and family and entitlement. One of the things that I despise is how we treat our dementia patients, nurses often think that the louder they speak, the better a confused patient will hear, it makes no sense. While I was a ward sister, I really truly came down on that sort of treatment, and I would like to offer my sincerest apology on behalf of my profession.
Take this example if you will. A confused patient in pain who needs to be turned and cleaned for fear of bedsores forming or worsening. Example A: staff hold down the patient while talking louder and louder, despite the voicing of fear and pain. The reasoning is bevause it needs to be done, there are a million more patients and this patient is just holding up the process line, so we tell them that. “You realise you are just holding us up while there are people more poorly than you here that need us much more than you do”.
Example B: same patient as before, same reasoning for turning and cleaning. We lower ourselves to the patients level, we speak softly and calmly and explain the what, where, when and why of the process. Even if they don’t understand us, we treat them with the same respect and explanation as though they did. One nurse holds a hand and talks softly with eye contact, while the other nurse starts the washing, slowly and gently. Perhaps this patient says he will only tolerate this once his family arrives. That’s ok, he may have an odour, but we juggle our order of jobs to revisit him later. Perhaps he has too much pain for this, so we assess and treat pain to the best of our ability firstly, and return in an hour to see how his pain is…. Perhaps we can clean his top half now, lower half later. Something that I really dislike is when newer nurses assume every patient is unable to do anything. If the situation allows, I will always hand the patient a washcloth and suggest they get to work on their face and hands, while I do harder to reach areas…. Often times the patient will continue and wash most of their body themselves. If they need help, we give it. Distraction is key, we talk about pets, family, tv shows, we build a rapport with that patient regardless of if they are staying for an hour, or a month. Human to human contact and kindness is key. We still have a million jobs to do, but that patient will never know that we are in a rush, because when we are with him, our focus is on him. He didn’t ask to be here, he would rather not be here, and our workload is not his concern.
Sadly, I left bedside nursing for this very reason. There is a saying in nursing, the moment you stop feeling, it’s time to leave. I had to leave because so many staff members had stopped feeling due to huge demands, and I couldn’t bear to see it anymore. I tried my best to advocate for everyone, and make it a better place, but being just 1 nurse I failed. I moved into trauma and anaesthetics, then left my job to are for my dad for 3 months from diagnosis to his passing. Unfortunately, I have been left with quite severe CPTSD for various reasons, and am at present too unstable to return to work.
Hospice is an entirely different thing, and I’m so glad you found somewhere that looks at you holistically, is able to talk to you and sit with you, and allow you to sit back and take that well needed break while still being the boss of your own train. My auntie was a nurse, and in her day, the staff would have to whisper at night, and check patients quietly by torchlight, ensuring the best environment for sleeping, as sleeping is so important to the body, whether to get better, or to manage the dying process easier. Thesedays, it’s a shitshow … it doesn’t surprise me that people were cleaning around you at 5am. You are in a great environment now. Make it a home from home, be demanding if you want, you are entitled to the things you want and need. This is a time for you, your family and your loved ones now, and I hope you can settle in to the new normal for now. With lots of love and huge respect, from Jo (Cotswolds, UK 🇬🇧)
Wow! Your comment made me teary-eyed. I wish we had more nurses like you in this world 💜
I hear you. But. As a nurse you can't feel all the time. I gather you did... but you also left.
@@Lyndzi85 bless your heart, I think most nurses (and other similar related patient care roles) begin with full optimism. The workload is beyond what I could explain, but I do feel that that human connection is key. There are also times when we have to be a little harder with patients, it varies person to person and situation to situation. But on the whole, I do feel that kindness and care is so important. Sending blessings. X
@@monaebreak561 I agree so much. You can’t feel all the time. There are times when you have to switch off, if only for your own mental health protection. I faltered in that area, I was unable to switch it off. I felt deeply for all of my patients. I have left nursing for now while I get over some of the harrowing things I saw while caring for Dad (I won’t go into details as dear Joe may read and I’d hate for him to think the same may happen to him, unfortunately Dad just got dealt a really shit deck of cards and had a super rough time especially at the end). But I still retain my nursing pin, and will be returning to work someday. Until then, I think it would be irresponsible of me to put myself in a position of care for others while only just being able to care for myself and my children at present, but, with hard work and lots of therapy, it’s getting easier everyday.
I would like to thank you from the bottom of my heart for all that you do as a nurse. It’s not an easy profession, and goodness knows we don’t enter this profession for the non existent “perks”, the pay isn’t great. But without people like you, sticking with it, pushing through the pandemic and just putting one foot in front of the other, we would be in a really crappy situation as normal citizens, so thank you for all you do. You are wonderful xxx
I am so sorry you have to go through all this. Your hospital experience sounds like something from a nightmare. I hope you find some comfort in the hospice facility, and that they give you the level of care of you deserve. You are an incredible person, showing grace and perseverance in the worst of circumstances. Sending love and hoping you have many good days ahead.
I didn't know you, now you've let me in, and now that you've shared your spirit with the world, I will remember you Joe. And the world will be losing another star. Bless your wife and of course u. With peace, comfort, no pain.. u have said so many things that we've all said to attempt to share our feelings and well wishes, etc.. u know they are all doing their best to make you feel better and know we are out here caring about ur awful struggle. Is there ANYTHING that we CAN say to make u happy , or at ease? I've left several messages that just say *fukk cancer* .. u just want us to listen and not try to "fix it "? Is that it?
Much love from N Carolina ❤Daria~
I am glad I got here in time-because you have so much to say. Chronic pain from a humerus fracture in 2016 here and I thank you for sharing your journey…
You continue to articulate your shit show beautifully. Lamp
Hey joe, I watched this video when it came out and was heartbroken to see your situation has deteriorated so much. Just now i had a thought about you and was hoping you were still as okay as can be expected. Hope you've had a good few days. Lamp
Lamp. Sorry that things have taken a turn, Joe. I hope they can help keep you comfortable. I'm glad you've got this lovely accommodation now, too. No-one needs a stressful environment when they're trying to get well. Thanks for taking the time to film and edit and update us. Wishing you all the best from Hobart, Tasmania, in Australia.
Thinking of you Joe, i wish you a nice day.
I just came across this video. I admire your courage and humour. I hope wednesday went ok for you, and i truly wish you every bit of comfort.
It's hard to see a wonderful person like yourself go through all of this, You give us all perspective of our own lives and you're such a brave person, Sending you love and support and thinking of you and your family.
Hey Joe, you are a truly brave and inspiring human, and your light shines so bright despite all the hell you’ve been through. You’ve been on my mind for a while and I’m sending you my very best wishes from halfway around the world. Thank you for being you.
Lamp.
It’s good to see you, although this was a tough watch. Your candour, vulnerability, courage and strength are palpable. You’re an incredibly inspiring individual. Keep fighting the fight and I hope a suitable trial comes up for you.
From, a new subscriber.
I will never meet you in person but I have followed every single step of your journey. You are one of the funniest straight talking blokes I've ever seen and sending so much love to you and your beautiful wife.
Lamp! - appropriate because you are a light in this world. Thank you for continuing to share you story with courage and candor. Sending you strength and hope from the US.
LAMP. ❤️ Searing honesty is hard to hear, Joe, but you’re not sparing us any of your experiences. I have no wish to see you suffer any more, but I can see you want to relish what life you have while you can. Thank you Joe, that’s all I can say. May your final journey be as peaceful and pain free as possible. You have left a huge impression on me and so many others. Love and peace to you and yours. ❤
Lamp. You are strong, you are brave, you smile, you put forth the effort to update us…even tho you’re feeling so unwell. I.. and so so many others … admire you for your uniqueness…and for sharing your journey. We all have a journey in our lifetimes. You are consciously aware of all that is happening….and I wish you could stay here with us for many many more years. I’m a 75 yr old tiny woman living alone. Life, unfortunately, often brings with it, many many hardships, pain, illness, grief and heartache. Try to remind yourself of the positives..you’re still fighting..you’re still here. Life also brings with it joy, contentment, love, gratitude and what we all have to do is accept whatever is occurring right now. That’s enough. Right now is all we really do have. From a young child, I’ve lost so many loved ones…and this continued throughout my life. All heart related issues… my daughter suddenly passed almost 12 years ago..her medical tests all came back perfect. The first line of the medical paperwork I found in her room..stated “this patient is at low risk of coronary disease”. 5 weeks later she was gone. 36 yrs old. She was alone. That’s the hardest thing for me. Thankfully, her 4 kids were all in school….and her husband found her. My dad went the same way..when I was only 15 yrs old. I have several health issues and pain…yet I’m still here. If I could, I’d switch places with you. Life hasn’t been easy…but, somehow, I’m still here….emotionally and physically I feel exhausted. Absolutely not one thing in my life turned out the way I had thought it would. We may perceive that others have easier lives..but do we truly know? I was suicidal at one point..maybe 2/3 times…and no one knew. I was working and taking care of all my grandchildren. I’ve always been the caregiver. Only child..single parent. Animal rescuer. I think I was born caring way way way too much about everyone, except me. Until 7/8 yrs ago. I can’t do what is end to be able to do. I understand frustration…I pass out from glucose issues and I, too, am anemic and drs don’t know why..and at this old age I don’t care.
I only believe in vibrational energy. I meditate and envision my heart and every cell of my body overflowing with love and gratitude. And I believe, this causes positive, healing energy to arise throughout me. I envision radiating that healing positive energy out to other and this universe. It’s just a thing I do which I feel benefits my mind and body…and the minds and bodies of others…and this weary universe.
You are one hell of a guy. Amazing in so so so many ways. You need no one’s permission to feel any particular way…and you keep making decisions which you feel will benefit you. I’m hoping you get some comfort from the pain medication. Take it when you need it.
I never think ahead since I’ve gotten older. I am mindful of the present moment..fully.. and I don’t try to get through the days anymore. I try to make it through this moment in time. One moment at a time is all we really have.
Peace, light and love to you..and your family. 💥💫❤️✌🏻
Hey Joe, we never met but you feel like the friend i never had, but wanted. Huge respect to you, i have learnt much of myself through your journey.
Well said
I second that! also: LAMP!
🎉
Awh !
Hello Joe. I found your channel last month, I saw all videos and I am here, we all are here to show our support. You are an amazing brawe man, with epic sense of humour. You have the right to cry, to smile, to fell any way you feel now, for us you are a true hero.
You are amazing. I would never insult your intelligence by offering advice or suggestions. You are a true gent. Open, honest, eloquent, funny. A rare gem. Thinking of you as always Joe ❤
Thank you for sharing your story.
I lost my sister to stomach cancer on the 30th of January. She was 44.
She fought so hard and so long, and I always wondered what was going through her head, it sounds mad but we didn’t talk about it much, she didn’t want to and we respected that.
Towards the end she was totally shut down. Lost in “total pain” as they call it.
We all tried to second guess what she may be thinking or feeling and react the right way and do the right things - I know I worry I may have made mistakes. Some days I was just there, I hope that was enough.
Your videos have given me an insight into what she may have been thinking and feeling and I am comforted by that, tho you and she were different people, your stories and attitudes to it all are so eerily similar. She was given no hope but she was as tough as they come, just as you are.
LAMP fella, and thank you again.
Best wishes.
x
When I was first diagnosed with melanoma, I had some send me a message. At first, I was thinking how nice. And then I read it. Basically, I was told I had caused my cancer because I ate meat and if I changed my diet, I wouldn’t need surgery, chemo or radiation. I blocked her.
I am a nurse and my heart broke when I heard about your care. I hope hospice is good for you.
Much love to you.
I had that happen as well. Thyroid cancer with braf mutation, they don't know why I got cancer? But asked me if I had been in chernobyl or Fukushima. ❤
My grandmother told my mom, the day she was diagnoses terminal, which was on my f-ing high school graduation, that she didn't get to feel bad because she "didn't subconsciously NOT want cancer enough" so that's why she had cancer. I hate that woman with every fiber of my being. She and my grandfather were kicked out of my life.
@Michelle R.T. stay strong lovely lady. You did exactly the right thing cutting your toxic grandparents out of your life. They did exactly the wrong thing treating your mum like that. Hoping you have a great life and spend it happily on your own terms.
Your pupils are different sizes. Is that from the brain cancer ? Lamp 🪔
You're one brave guy, Joe. I admire your strength and honesty and hope things even out for you now you're settled in the hospice. Shining a light on this horrible disease is selfless and very important work. I wish you peace and happiness for the time that you have. Stay strong, Commander.
Lamp, sending love and strength❤️
I hate that he still thinks about what other people think of him. I'm the same way in such a big way. A people pleaser. I would hope I'd rid myself of that burden if in this situation. God knows I don't know due to not being in that situation. Thank you for sharing your story and life with us. It'll give all that listen knowledge we may one day use or need. Love those around you. No matter their situation.
Lamp.
Joe...thank you for sharing your life and experiences with us. You've gone above and beyond during this journey. I wish you nothing but peace.
I wish I could give you a big hug. You’re a great man and I wish you weren’t going through this. Because of you I talk to my family more than ever and I live everyday the fullest I can. One just never knows when they’re next. I hope you know how many people you’re helping by making these videos. We love you. Also, lampy lamp. LAMP! 😊
My heart is broken , what a wonderful and amazing man , RIP dear one and I’m SO relieved you are finally at peace now 🕊️
I’m so glad you managed to get a place in hospice Joe, where you can be far more comfortable ,and your family can rest assured that you are being very well cared for.
Thinking of you, and hoping that your pain is being managed
Joe, you are so brave, and so courageous for sharing updates with us. I'm sure you're in a shit ton of pain but still are pushing through! I know I don't personally know you but damn, I feel like I'm right there with you.
If you are done with all of the BS being done to you, let them know. Just because you're dying does not mean you have to suffer. Your doctors should give you every type of comfort measures you ask for.
Thinking of you and sending you long distant hugs from Minnesota, USA.
God bless you man. Your story helps me have genuine appreciation for my health while I have it. Thanks for sharing this experience and I'll say a prayer for you.
So lovely to see you again Joe but incredibly sad to hear what a tough time you are having. Thank goodness the hospice and hospice staff are kind and caring. Thinking of you and your family. You're so articulate. X
I admire you so much Joe. Your strength and fight are truly astonishing. It hurts me to see such a wonderful guy suffering this hateful disease . Best wishes Joe. Lamp !
Truly sad that he passed away a few days ago.. Condolences to his family and may his story help others..
Lamp 🤍
Dear Joe, i wish you no pain. You changed my life. I'll forever think of you, no matter where I am or what I do. See you in the next video
I am so sorry for what you are going through. I don't really know what else to say. People need to stop telling sick people what to do. I have had an auto-immune illness for 19 years. Probably lupus or arthritis. Some people tell me that working out will heal me. Or a pill made from a plant blablabla. I have been to plenty of doctors, and I see my GP all the time. You who don't have a medical degree don't have to try and be my doctor. When you have canser it must be 100 times more annoying and frustrating. I really wish you didn't have to go through all this pain 😢. Thank you for the update ❤
And lamp 😁
I have an autoimmune illness as well. I have no idea what it is because in Australia most of them are not recognised here. Now I have thyroid cancer that has already spread at diagnosis... all because of my old doctor ignoring my symptoms and family history of thyroid cancer. It is sooo frustrating. I have a few friends begging me to try ridiculous things. My new (amazing!) doctor and oncologist both say that they haven't heard of these things treating cancer and I trust them. Don't listen to these people that tell you things that they have absolutely no idea about. They mean well though.
@@iSheree OMG i am so sorry you are going trough all that. Frustrating and painful enough to have an auto-immune illness. But on top of that get canser!! You have goten enough for several lifetimes. How is the prognoses with the canser? My heart goes out too you. To the people who think there is an easy diet change, home remedy, exercise that can cure me my eyes just roll way back into my head. I mean Susan who deliver mail think she knows better then some of the smartest people in the world who work on finding out more about illnesses every day, and the people who work on making new and better medesine every day, like really? If there was a plant or a workout routine that would cure auti-immune illnesses or canser it would be Big news and all the doctors would jump on it. My issue is that all the tests for the different auto - immune illnesses are negative, so the doctors are not sure wich one I have. It's most simulare to lupus. But the test that show inflammation in the body is always hight. It's suppose to be under 10 and mine have been over 70 for some years now. There are talkes about me getting to try meds to calm down my immune system. Hope that happens. I wish you all well. I really hope you beat the canser. I will be thinking about you.
Thank you for this upload. I have been thinking of you everyday since your last upload. Seeing you now has given me both hope and sadness (for the previous weeks of challenges and pain). You are a teacher, whether you know that or not, as well as a friend to many people whom you've never met personally. Thank you, friend, for your generosity and humanity in these harsh times. And yes, you are a shining light in the world.
What a lovely comment. I agree completely with everything you said
So true.
Have been watching your videos for a while, you speak so honestly about what is happening to you. You are brave and its terrible to hear what the Watford hospital was like and how people are treated when they are so vulnerable. Good that you are now in the hospice where you will be treated with dignity. God bless you and your family.
I'm glad you're still with us! Lots of love buddy, I hope things stay manageable for you
Hi Joe, I have watched your journey from the beginning. I must say you have a to the point outlook, & that's what is keeping you going. I send love to you, your wife & family. I hope you are comfortable. Linda ❤
Much love to you. And I wish you whatever you wish yourself for the most right now. You are an absolutely brave fighter.
Sending love to you Joe.
Joe, how u doing bud?
Any updates?
Just been wondering about you.
From Canada, best wishes.
You're right about people telling you to try some alternative treatments. They don't work, it's nonsense.
But we can be grateful for the Facts and Science we have today! Please don't forget that.
O, and Lamp of course!
Your amazing Joe,I've watched you on and off for years,and you never change,your so impressive, and I'm sure you must inspire people ,good luck to you x
Lamp. 😊 In my experience, a patient refused to take his oxygen into the toilet with him. He collapsed and died. Urine and faeces burns the skin like acid and developing a category 4 wound is life threatening and can happen very quickly. Staff are leaving the NHS in droves, this is why waiting times etc are getting worse. End of life nurses are specially trained and hospice care is definitely the best for you. You've helped me through my cancer journey because I spend more time worrying about you rather than feeling sorry for myself. Take care ❤ .
Lamp 🙏 Thank you so much for the effort you have put in to this post Joe… the editing is spot on so don’t worry about that!
I used to live in Watford so know the General very well… it needs more than just help!!
I was going to write stay strong but no.. you don’t need to stay strong now Joe, you let others be strong for you. I love you man… x
Lamp 💫Thank you for sharing your story so openheartedly with us Joe! This disease is so unbearably unfair, I can't even put it into words. I hope you know, that you have made a profound impact on all of us and that your life, even though it has been cut short, has made a true difference in this world. Sending you the warmest of thoughts all the way from Scandinavia ❤
I love your sense of humor and the way you tell off big pharma and even your providers. I absolutely adore my oncologist who's been nothing but kind and honest with me and I can't see myself saying anything negative to him. It's not his fault I have stage 4 met breast cancer to ribs, spine, long bones, lung and lymph. I'm ok for right now but already going into my 3rd year after diagnosis and I don't have a lot of "good time" left. I eat what I want, sleep a lot and watch movies and tv and read books. I try to exercise and walk a lot but I'm more tired than ever. I'm not sad, not resentful, not negative. It's time to sort of "go with it because there's nothing I can do to stop it". All I can do is hope for painfree comfort on my way out when it happens. That's what I wish for you, Joe---peace and comfort. Still gonna pray for your atheist arse! HUGS from Alabama!
Lamp! You are an inspiration, no questioning that. I hope the next weeks treat you better!❤
I am so happy to see you, Joe! Your grace and courage and humor never ceases to amaze me. Hugs to you.
"Lamp Joe Plater bringing the light to RUclips", kidding :). I can`t explain why I love to see you so much and share your experience even tho is something so horrible you are living trough. You really change the way I see so many things, and I'm gratefull that you let us be a part of your existence. Thank you from Argentina (WHAT A REACH JOE🤣😚)