Stage IV lung cancer from symptoms to diagnosis | Jaymie shares the beginning of her cancer story.
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- Опубликовано: 30 авг 2021
- Jaymie generously shares her earliest symptoms and experiences leading up to her eventual diagnosis of and treatment for stage IV ALK-positive lung cancer.
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About Our Discussions: At Chronic Love, in collaboration with our generous featured guests, we share candid discussions about living with chronic illness with the intention of showing the humanity, the wholeness of life impacted by chronic disease and chronic conditions. We hope that these conversations can offer a needed counterpoint to the often sterile portrayals of illness and treatment in the service of helping those living with illness to feel less alone; to offer supportive others a lens through which they may more sensitively meet the needs of their fellow humans with illness; and to raise awareness, curiosity, critical thought, and contemplations of change as we lean into issues that impose further hardship on humans living with illness.
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This is my story! In 1980 at 27yrs I got uterus cancer and I was strip of all female parts. 1984 I got breast cancer and I had a complete mastectomy. I went through hell but I made it I got implants and so 2012 I got colon cancer and I was so done but nope and I’m 2015 I got stage three Melanoma and I’m still alive! So ladies don’t give up!🙏
Robin here. Sharon!!!! That’s too much cancer for one person. I’m so sorry that you’ve dealt with so much and for the past 43 years!! Holy moly, you are the ultimate inspiration!! Thank you so much for sharing!! Any pointers or life lessons you might offer up for those who need to read even more of your words? Sending you healing wishes and oodles of 💛
Well there were times when I just wanted to die because of the pain I had in so many ways. But I knew that I couldn’t give up because I had eight kids to raise and so God got me through everyday and I’m a fighter and I’m 69 years old and I’m still here fighting With Melanoma. But my advice to all of you going through this . Please Believe! Because even though you are so sick and so tired and trying to be a parent or etc.
Don’t give up and just remember Prayer 🙏
God is Good wow wow wow wow wow!!!❤❤❤❤❤❤❤❤❤❤❤
@@sharon9111 wooow you are such a brave and strong woman. I wish you all the best from the bottom of my heart.❤🙏
@@Milwaukeemonsterr Thank you for your kind words.
This helped me so much, my husband was diagnosed with that same cancer and it's been rough he was 33 and he is now 38 living his best life PRAISE GOD. ❤❤
We’re so happy this was helpful!! Thank goodness he is living his best life 💛 We hope he stays this way! We are sending you both a warm welcome and lots of love!!
Praise The Lord God! Thank You King Jesus!
❤🙏❤️
@@chroniclove
Ok 2:20
Yes and let’s thank the sister for actually sharing this with us. Especially as she wasn’t ok like your husband was at the time.
My partner had back pain and a cough. He thought it was CV19 related. He started losing weight. ER. Chest xray. Left lung encased in fluid and flattened. Liters of fluid pulled off. 2 weeks in hospital. Adeno carcinoma, Stage IV. Non-smoker. Now chemo. He is 57. He shares your story. Praying for you and him.
We’ll be holding your partner in our hearts as he fights this devastating disease. Sending you both so much 💛
I hope they do biomarker testing. It’s essential to having more treatment options. ❤
So sorry x sending love and hoping your partner gets well z
🙏🏾❤️
Praying for him Denise and you as well
This is my story. 38 years old perfect health. No prior symptoms. June 23rd, I was admitted to the ER due to migraines while at work. I blacked out in the parking lot while waiting on the ambulance. I woke up in the SCIU after undergoing emergency decompressive brain craniotomy surgery for a brain tumor. I stayed there for 9 days. I was diagnosed with stage 4 lung cancer and brain metastases. The cancer spreaded to my brain. I was told by the surgeon i stopped breathing for 35 minutes before having to be intubated. I completed 5 days of srs brain Radiation in hopes to remove the small amount of tumor the surgeon wasn't able to remove. It's been 74 days now and i started my first round of chemotherapy yesterday. My first two infusions went great. It was my 3rd infusion of Toxal medication where I started to experience shortness of breath, chest pain and throat locking up. 25 minutes in the infusion they has to stop it. I must say that over the 74 days, I've experienced no cancer symptoms, thankfully. I dont know what my future holds, but im trusting God, no matter what
Oh my, you have been through it! I want to jump through this screen and give you a big hug. This awful disease. You’re officially in our hearts and minds and we’re loving on you, hoping for this disease to stay at bay. Sending you a big Chronic Love welcome and oodles of love 💛
Wow, I’m so sorry, that sounds so shocking and stressful. You never had any shortness of breath or back pain or anything?
🙏🫂
Wishing you the very best. I hope you're still doing alright. Let us know. 🙏💫💖🌱🌎
Definitely want you to do a video. I too have cancer. Bilateral Breast cancer and I did my mastectomy in March 2021. I have no breasts. I was shocked when I learned this year that it was stage 3 all along I thought it was stage 2. Had symptoms in 2020 and got the results in January 2021. I was 47.
The young woman with ALK positive, stage IV lung cancer said she doesn't want to sound "privileged" in her walk. She needn't worry. She sounds blessed, despite her circumstances.
Toni, your words couldn’t be more true! TY for watching and for your comment!! Sending you 💛.
This kind of Peace, Comfort and JOY ONLY COMES FROM OUR LORD!!!!!!! AND SAVIOUR!!!!!!! JESUS!!!!!!! CHRIST!!!!!!! THANK YOU!!!!!!! JESUS!!!!!!! CHRIST!!!!!!! For BLESSING! this young woman and giving her that PEACE and JOY and COMFORT!!!!!!! THAT ONLY YOU!!!!!!!! LORD!!!!!!! JESUS!!!!!!! CHRIST!!!!!!! CAN!!!!!!!
GOD BLESS!!!!!!!
Thank you for sharing your story. Although I was diagnosed at 50 years old with Alk Positive lung positive, my diagnosis was similar - never- smoker, active, no drugs, alcohol, hardly any symptoms etc. Stay positive. You look great!
@@lauriehigashi5308hi I’m an ALKie too. Diagnosed at 44, in the same month and year as Jaymie. 🫶🏾🤞🏾some day a cure!
@@chroniclovehow is Jaymie now?
I also have lung cancer and have been fighting for nine years. I was diagnosed at stage four as well. Thank you for sharing this story.
Rhonda! Fighting stage four for nine years? Thank you for sharing. Your words, your fight will offer so much hope for others. May we ask how you’re doing now? Sending you so much love and wishes for continued healing 💛
Thank you! In my journey I have had a lot of success with the medications given to me as they have worked longer than expected. The most recent one just stopped and they are trying to figure out what to do but they first have to get the results of the most recent biopsy I had. I'm a firm believer in prayer and a good attitude. What is surprised me most is it sometimes people that you think will be there or not and those that you don't expect who will step up. Don't lose heart no matter what happens!
Your words are so true. We are hoping that your team is able to find a good next medication for you that carries you until the next and eventually a cure! A big warm welcoming virtual hug to you, Rhonda 💛
@@rhondabarger4927
You should give extended water fasting a thought!
@@rhondabarger4927May I know what medicine you are taking?
I also have stage four lung cancer Jaymie thanks for sharing your story. You are so strong and you inspire me. Blessings to you and I thank God for his grace and mercy. I was diagnosed June 14, 2021 and was told I had five years, but by the grace of God I went and had a second opinion, and was told that I was stage 3B and it was curable so I am holding on to God’s hand and fighting this fight and thanks again for sharing your story. God bless you and much love.❤
Robin here. Erika, thank YOU for sharing your story. Thank goodness you were able to find out some different news in that 2nd opinion. It sounds like you’ve got this fight!! YOU inspire US! Thank you for your sweet message. I know Jaymie deeply appreciates all of the love and support. We’re sending healing wishes and so much love right back your way 💛
@@chroniclove Thank you so much 🤍🙏🏾💪🏽🥊🙌🏾
Sending lots of love your way love!!
🙏🏻❤️
@@chroniclove
L.
I was diagnosed with nodule melanoma last year, it already spread to my lungs, stage 4 …..I had this what I thought was a blister, it stared to bleed, still I didn’t go to the dermatologist….when I went I finally went to shut my husband up…he nagged me to death to go to a doctor, then I got the call no one wants, she said it is a fast moving, aggressive….they did the deep and wide in a hospital, put me to sleep, then 2 days after pet scan, doctor said it sprain to the lungs, I had about 3 months, doctor put me on immunotherapy…..a year later I am in remission……don’t know how long I have, but they say how long I have….I am 75 yrs old…after the panic and crying all day….hey I already lived past anyone in my family….
Robin here. Thank you so much for sharing your story!! And thank goodness your husband nagged you to get checked out. When news like this drops and time in front of us instantly seems to shorten, it can just be so scary and awful and difficult to wrap our minds around. I don’t care how old we are at the time we’re diagnosed. We’re all too young for cancer. Sending you so much 💛
Hey its Jaymie. I am so sorry to hear that we have this terrible diagnosis in common. I am glad you are in remission though! Years ago, immunotherapy was not even a concept. So keep that positive mindset, who knows, we might be on the verge of something even better!
I have had cancer since i was 15. The spindle cell sarcoma was in my leg twice then moved to my lungs. I was stage 4. Plus i had cervical cancer when i was carrying my son at 19. Im 45 and last year i finally have no signs of tumors or growths anywhere. 30 years i have been fighting cancer and i am still kicking. Doctors said i should have been dead my 16. I also decided to follow my guts and not do what the doctors wanted me to do. That would have killed. To anyone out there dealing with cancer. You can heal yourself and keep going. You are here for a reason.
Teddie! It sounds like you’ve dealt with quite a bit of serious health issues and since you were so young!! Only you, in and after consultation with your team, can make the best decisions for yourself and it sounds like you’ve done that. Thank you for sharing. Sending you wishes for an easier time and better health from here on out 💛
Teddie you are awesome!!!! Wow! - Jaymie
That's wonderful to hear...my son has synovial cell sarcoma.....he's doing now.
What did you do, what was your diet and what were your treatments?
My Dad passed away 3 weeks ago..he was diagnosed in new year 2023 with stage 4 lung cancer..passed away less than 5 weeks later 😢 it was too late for treatment.Sending healing hugs to you and all suffering right now x
Erin, we’re so deeply sorry for your recent loss of your father to this terrible disease, and so soon after his diagnosis. How are you holding up, if it’s okay to ask? We’re sending healing hugs and so much love your way 💛
I am so sooo sorry for your loss Erin! i am praying for your strength
@Chronic Love It sure is. He was unfortunate as it was detected much to late. My aunty also had lung cancer last year..twice but now has the all clear and is very well. As a family we are getting through but of course I'm really missing him and the memories we had yet to make x
@@erin6238 So sorry for your loss. Do you know if your dad or aunt ever had Covid?
My dearest Erin
My condolences for your loss. I lost my husband to Stage lV small cell lung cancer. He lasted for 6 months from when he was diagnosed. He passed away 01/01/2022.
I know what you went thru and seeing your love one sick with no improvement.
I wish that with each passing day, your heart heals. It will be difficult , but please reach out to family and friends. You will need that support. Blessings to you.
Just to look at her, you never know what a person is going thru. Sending health and healing energy to her❤
Nurse here: I can't tell you how many times patients have told me that statement that people have said to them: "Just to look at her, you never know what a person is going thru". But if illnesses had a look, we'd catch diseases faster. I understand what you're saying though, still, it should tell us all to listen to our bodies, and not what we look like in the mirror. Stay safe.
Absolutely ☝️💯
When my 28 year old daughter was diagnosed with breast cancer I would go to the city with her for chemo. A couple days after we would be out sightseeing and having lunch. It was surreal. On the outside we looked like a carefree mother and daughter to anyone but on the inside we were going through so much trauma. I've learned not to judge so much or be envious of people because you don't know what their life is really like. And Jayme don't ever feel guilty that you are living an ok life. No 30 year olds should ever have to deal with cancer. None of us should but we are all entitled to our good days.
☝☝☝️💯 Thank you for sharing, your words couldn't be more true. Sending you and your family so much love.
Very true ey.
I stayed engaged her entire storytelling. She’s so easy to listen to
Ty for leaving this note, Jeri! Sending💛
Thank you Jeri!
The doctors let her fall through the cracks, but God is bigger. Praying for her!!!!
💛🙏💛
Amen to that God is King ❤️
@@Tondaloona03 While this isn't intended to be a religious space, we deeply respect all the ways people need to find hope and comfort, whether people give their focus to science, religion, both, neither, or more. When people share hope through their religion, we see this as a deeply kind gesture.
@@Tondaloona03 Fair. Only you can decide this. We only ask for mutual respect and kindness in this particular space.
@@Tondaloona03 it's a test from god, and if god is testing me then I want to be the most patient loyal subject. This life isn't forever, and it helps knowing this isn't our final resting place. This is my thought process as a religious person. I understand and respect, your, resentfulness? But I only ask for the same. We don't just believe in god when he gives us good things.
I was diagnosed with stage 4 lung cancer ALK mutation non smoker. Just like her, it takes months for the doctor actual diagnosis me with stage 4 lung cancer. I had to go to er for the second time and demanded additional testing. They were about to discharged me with the inhaler. The doctors were shocked to see my pet scan lighted up like a Christmas tree. Cancers were everywhere in my body, lung, abdomen and neck area. I probably dropped dead if I did advocate for myself.
Thank goodness you advocated for yourself and you’re here to talk about it!! Thank you for sharing. Unfortunately, stories like yours are all too common. Sending you healing wishes and tons of 💛
What were your symptoms?
It is SOOO important to fight for yourself. These doctors literally do not see you! its awful. i am glad you did that and that you are still here!
It is so sad when WE need to DEMAND what tests we should have. These doctors seem to just brush you off and send you on your way if you do not advocate for yourself. On February 1, 2023, I had a thoracentesis to remove fluid from around my right lung. One liter was collected. For about 2 months before the procedure, I had a cough that will not go away with wheezing. I am now going for a CT scan this month for a dry cough I am still having with wheezing. I hope it is NOT lung cancer, I do not smoke, do drugs, etc. I just turned 62 this month and am scared to death. I also have congestive heart failure that has taken 25 pounds off me without my even trying. Thank you for allowing me to rant.
The elephant in the room, no one addressing, what jabs have been taken?
She spoke so well and looks so healthy I wish her all the best
Sudden illness is hard, the worse part is not knowing. You are not feeling well and you go to see the doctor and they sometimes do not do what they are supposed to do. Good luck my dear.
Speaking as one with - unfortunately - no mutations or markers (stage 4 large cell neuroendocrine lung cancer - never smoked) - nothing but happy for you! Wishing you a cancer free future. And yes - it takes a long time to be diagnosed. I had xrays and still received antibiotics, inhalers, etc. Now I have no option except the old time poison chemo and some radiation with no realistic expectation of anything but slowing it down for a minute - meanwhile of course losing all my hair in 2 weeks flat and feeling horrible all the time.
Blessings to you and everyone on here fighting cancer. Still breathing!
Robin here, thank you so much for sharing, for joining the conversation. We are sending you a warm welcome as complicated as it is that you’re joining us here. I felt your post in my heart. These treatments absolutely do make us feel horrible and the hair loss isn’t fun. I do want to say that our worth, our humanity, our life is so much more than our hair, as much as it is a visual indicator of the treatments we are needing. If I may speak on behalf of some of us, we are receiving your blessings and sending blessings to you, friend. Here with you, sending you love 💛
@@chronicloveThanks.... still hanging in. So glad to hear that you are doing so well! God bless you.
Jaymie you're the sweetest human being I've ever seen. You got this girl. You're an inspiration
We couldn’t agree more! Ty for your sweet note!! Sending you 💛!
@@chroniclove thank you for replying sweetheart
Our Lord is holding you tight, and he won't let you go. You got this Jaymie !! I'm sending you Lots of prayers 🙏🏻 and ❤️ !!!
Her beginning symptoms sounds like Asthma.
P
Insist on an x-ray. I was given an x-ray as soon as my doctor heard I had coughed a spot of blood up. ( I had mentioned it to a friend even though I didn't think it was a problem, myself, and she insisted I go to the doctor asap.) The tumour was removed, I got chemo, and am in remission now.
Hindsight, my friend!! I know now to ask! hah.
x-ray does not always show fluid nor cancer
My mom died of breast cancer and i kept thinking about having bilateral mastectomies to prevent cancer. I knew in my heart i was going to get cancer. I worked for 36 yrs as a critical care RN, but i skipped a mammogram because i was caring for my elderly aunt. We i had a new schnauzer puppy that kept jumping on my left breast , always in the same spot. So i did an self examination and found my lump. I kept telling myself it was a bruise from my puppy even deep down i knew it was cancer. This was on a Thurs and by the following Wednesday i knew i had triple negative breast cancer. Luckily i had 3 close friends and a cousin who also had breast cancer years early. My surgeon was great, took time to explain everything, i took a fried who was also a RN. I swear i missed so much because i was in a fog. I knew i was following apart. I just could feel my cancer growing. Next wa a blur, surgery, barely healed and chemo started. Thankfully my lymph nodes were negative but because the type of cancer i had. I developed grade 4 neuropathy in my hands and feet. I never understood how painful it was,changed my life. I could not continue to work, take a ton of medication. I know manage my pain, unsteadiness and all the times i fall. So frustrating. I will be 10 yrs cancer free and i rejoice that .
Of course we enter a fog and it’s tough to accept the likelihood and then reality of cancer. We’re so sorry you lost your mom to this awful disease, for all you’ve been through. Thank goodness you’re still here to share your story 10 years out. Sending you love, light, and a great big welcome, Sandra 💛
When God heals you,his healing is permanent. All you need do is praise God.
I am blown away at Jaymie’s positive attitude, her bravery, her intelligence, and her generosity to help others under her circumstances. I’m SURE she’s helping many others and just is not aware of their individual stories. God bless her. I pray you are cured. Humanity needs people like her.
So true!! Thank you for your sweet note 💛
Absolutely!
She's definitely amazing.. Wow❤
@@chroniclovethis happen awhile back so what happened to Jayme did live?
Hi @Joy! Thank you for checking in on Jaymie. With Jaymie’s consent, we can share that she regards her status as “unremarkable,” meaning she is stable with no progression. If you’d like to follow Jaymie more closely, we encourage you to check out her channel @wjmsmedia. Sending 💛
I'm so grateful I found this channel. I was diagnosed over two years ago with ovarian cancer. Stage four. It had spread to my stomach, lungs n lymph nodes. Therefore I also have a chain link of tumors in my neck. I am 52 now, a mother ,a grand mother and I do not want to die already !!! I can't do this alone anymore...
Jeannie! I'm so sorry that you're dealing with this awful, scary disease. Of course you don't want to die!!! We welcome you here with wide open arms. Finding connection, especially with others who can have a bit of understanding, is so important. Sending you oodles of 💛 and a great big virtual hug.
So sorry to hear this. Praying for strength
🙏🙏🙏🙏
oh Jeannie, I am so sorry to hear of your diagnosis! You are not alone, ever! Jesus stands at the door of your life and knocks asking you to learn of Him by reading His Word for yourself! "Come unto me, all ye that labour and are heavy laden, and I will give you rest. Take my yoke upon you, *_AND LEARN OF ME_* for I am meek and lowly in heart: and ye shall find rest unto your souls. For my yoke is easy, and my burden is light." *_~Jesus_*
Jeannie, the Lord is standing by waiting to give you strength. Call on Him when you think you can't go on, and he will be your strength. May God bless and keep you, in Jesus name.
Jaymie, your cat knows what's going on and it loves you. Pets are great therapy to help you get through situations like this.
💛
So true...I am going through a difficult time in my life and my 8 year old cat is very clingy to me lately.....she is even looking at me a little different....concerned.
Lol Sam is so spoiled!
That is true my cat skittles she nows when I am sick I have been feeling sick lately going to doctor on August 1st. God bless you sweetie get well soon. I am a Thyroid stage 4 cancer servicer you will be a servicer my prayers are with you.
May God, the Divine Healer, deliver her from this cancer. My mother died from lung cancer and she never smoked. Second hand smoke killed her. I was diagnosed with Multiple Myeloma, went through treatment to transplant and maintain with small dosage chemo pills. Happy to say that I've been in remission for over three years and my oncologist has given me an excellent prognosis. God bless. .
We’re so sorry for your loss of your mother! Thank goodness for your remission. Sending you wishes for your continued healing 💛
😩why did this show up on my timeline, I have bad health anxiety and I’m trying to recover now I’m freaking out about every thing. I hate cancer, I wish it didn’t exist. God bless you all.
So sorry to give you more anxiety! This is just meant to help people who really need to see it. Sending you 💛
I think on some level we all have that anxiety. What is important is that you don't let it paralyze you from getting help when you need it TiaMarie! Stay strong and I am happy you stumbled on this video
I pray that Jaymie is continuing to do well. My dad had a chest cold in early winter 1996. After it hung on for a month, and got worse, he went to his doctor only to be told he had bronchitis. In early 1997, he went back again and was told he had walking pneumonia. No chest xray was ever ordered, and my dad was old school and never went to the doctor, so you know he had to be hurting. By June, he was having lower back pain and trouble walking. He went back again and was told he had a pinched nerve and needed PT. August 2nd, he couldn't get out of bed. His wife got help and took him to her doctor that did a chest xray and discovered lung tumor the size of his fist. Admitted to hospital on a Friday, on Monday afternoon he was told to get everything in order because he might live a month. His CA has mets to his bones from his skull to his lower leg, had taken out two lumbar vertebrae and part of his hip. He went home on August 9th and passed away on 8/17/97. It took me a couple of years to get accustomed to this, but I went back to college when I was 47 to become an xray tech. I worked 16 years in cardiac cath and helped numerous patients live after a heart attack. I held families when their loved ones died in the lab. I lived for my dad, and I never let a doctor I worked closely with keep information from a patient. I can't believe there are still doctors like Jaymie's and my dad's out there.
Robin here. Pat, I’m so sorry you lost your father to this terrible disease and after two docs had opportunities to order further testing, to possibly save his life. Or at least to give him more time. To give you more time. I feel your pain, your grief in your words. This world needs more healthcare providers like you who care on such a deep level for the families you serve. Thank you so much for sharing your story, for joining the conversation. It is really upsetting that these things still happen, that your father’s experience of docs not ordering chest X-rays was so similar to Jaymie’s experience so many years later. We need this to change. We’re sending you a warm welcome to this community. Sending you wishes for continued healing, so much warmth and love 💛
Pat i am so sorry to hear about your father! That is awful that it went on for so long. SMH! Doctors like mine are very common and that is the saddest part. :( People like you are the bright spots in the industry and I thank you for that!
Feel like there was no empathy for her diagnosis. I just pray for her complete recovery!! ❤
So do we 💛🙏💛
I had 2 uncles and an aunt on my mother’s side who were diagnosed with stage IV lung cancer,all were smokers.A weird coincidence happen my aunt on my mothers side and a cousin on my fathers side both were diagnosed with stage IV lung cancer both were 67 both died on the same day,I hate cancer.May they RIP🙏🏾.May God Bless and keep those with cancer❤🙏🏾
So much lung cancer and loss in your family! We’re so sorry. We’re sending you lots of 💛. Thank you for sharing, for joining the conversation.
Oh my goodness. I am so sorry, that is a tough family history. Please Please Please take care of your self and make sure you and your loved ones are checking in regularly with screenings etc! - Jaymie
did your aunt on your mothers side and your cousin on your fathers side smoke?
Smoking is one the worst things you can voluntarily do to your body :/ It's the cause for so many illnesses incl. Cancer; sorry for your family loss and please implore any family/friends to quit although it is their decision of course 💛
We lost our best friend to lung cancer. He was in Viet Nam and handled Agent Orange. Also he smoked, so that didn’t help either. He got a bad cold, had pain in his back and then was diagnosed with cancer. He tried everything, but was too far gone, when he found out. We miss him so. He always would answer “just peachy” when we asked him how he was, followed by a big smile. We will see him again. He was a Christian.
That’s so heartbreaking. We’re so sorry for your loss of your best friend, that he too was a casualty of the destruction and devastation caused by our use of Agent Orange. Sounds like he tried to keep a smile on, even when it was really tough for him. Thank you for sharing 💛
I love that, especially living in GA - Just Peachy! May he RIP and thank him for his service and sacrifice! - Jaymie
When I was in high school I had one neck lump left and saw diff docs they ignored it until I was 18 with two lumps 2008 sent for a biopsy two days later 22nd Feb found out it was thyroid cancer that had spread to surrounding lymph nodes and a chromosome defect 10,11, through genetic tests .well april 30 total thyroidectemy and 44 lymph nodes removed 24 affected. Its now been 15 years of it metastaic men2a now in my liver lungs ,spine and adrenal glands I've had numerous chemo drugs,radiations more surgery, clinical trials and a broken collarbone from radiation weakness.
I just want to see my 11 yr old hit high school next year so I'm gonna be stubborn and keep fighting currently on chemo break
Keep going chronic illness warriors ❤❤
Oh, dearest Kia!!!!!! Robin here. Each and every time I read that doctors ignored patients’ symptoms, I get more and more enraged. It should never happen once let alone the countless times we see here. I’m so sorry that this was was your healthcare, dear Kia. You’ve been through way too much in your young life. I so badly want you to see your 11 yr old hit high school and beyond so be please be the most stubborn human this world has ever seen. I am sending you a warm welcome here, wishes for healing for you and your child, and oodles of love. Thank you for sharing your story. 💛
I’m stage 4 breast cancer. I have been living with the disease for 11 years. I’m on falsodex injections, Herceptin, Ibrance, and femara. Yes it’s a lot but I’m still here. I’m
Working full time and living my life. Jesus has truly been merciful to me. Ladies don’t give up!!!!!
Vikki!! You’re a beacon of light and hope. Thank you for sharing here. Sending you love, a great big welcome, and wishes for continued healing 💛
Hello. Same as myself. I tripped and fell at work, ended up getting a ct scan and found out I had fractured ribs as well as lesions in my breast, spine, kidney, liver and pancreas. Took a PET scan and found out I have stage IV metastatic breast cancer. I am on Letrozole and Kysqali. Thank GOD for that fall. I pray for all individuals living with this disease. 🙏🏽🙏🏽🙏🏽
My mum was diagnosed with Lung Cancer April 2000. She died Jan 2002. She was 61. We were told she had months but lasted much longer. Stay strong. I’m sure that’s why she lasted longer. That and our fantastic health system and palliative care here in the UK. Sending positive 🙏
I’m so sorry for your loss of your mom but happy she had more time with you than they thought you’d have! Thank goodness for your wonderful healthcare system over there. Thank you for sharing and for your sweet note 💛
Your story reminded me of my sister story. She was diagnosed at 48 with stage four lung cancer. It was in her uterus, lymph nodes, liver, and blood. Probably symptom was a backache. Five days later, she passed away from a blood clot. We had no time to get a biopsy, prepare to help with you. Any medical procedures, or even palliative care. I hear the gratitude in your voice. And I’m so happy that you have all this time. And I hope that medical science will continue to give you another year, and another year, and another year, until you’re a little old lady, saying that long cancer finally had a cure. I wish you peace on your journey.
@Fourth Girl, Robin here. Thank you for joining the conversation and for sharing your family’s story, your sister’s story and your extremely kind words. I’m so terribly sorry that she was taken from you so abruptly. I only wish you had that same time with her that you’re generously wishing for others. A warm welcome and lots of love and continued healing to you 💛
Keep the faith. My Mom just passed from lung cancer she had stage 4 and lived almost 11 yrs. God bless 🙏🏻🕊️
Kelly, Robin here. I’m so sorry that you lost your mom to this terrible disease. Thank you so much for sharing. I’m certain that people will find hope in your note, in her story, knowing that she lived beyond a decade with stage 4 lung cancer. Sending you healing wishes and lots of love 💛
Your spirit is amazing 🤩 I know she's definitely in a better place. She lived those 11 yrs to the fullest too. I had a NDE when she was first diagnosed in 2009. I didnt know if there was a place we went to after death until I had the NDE. I saw my deceased grandma which is my mom's mom. I also saw Tons of shadows of souls but I could only recognize my grandma. I know now I will see her again. I have no fear of death. Best wishes to you.
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I feel like I mat a long lost sister. :) I have been battling cancer since 2011. I was 37 and although my type of cancer is rarely terminal, the after effects of the treatment keeps me in so much pain on a daily basis that sometimes I wish it had been terminal. I'm just so tired of the pain and the appointments and the judgements from people who have NO idea what I'm medically and personally going through. My heart goes out to you all. I would love to talk to any of you. :) BIG HUGS!!!!
It sounds like you have been going through it! And for a while now! We’re sorry that your treatment has left you in so much pain. We definitely get what it’s like to feel misunderstood when coping with the fallout of cancer. It’s tough. Thank you for sharing. Know that you’re not alone in any of these experiences. Connection with people who "get it" is so key, especially when you find yourself bumping into people who really don't. Whether it's in forums like this, in in-person groups, wherever you can find it. It's just so important to have people in your life who can validate how real and hard this is. It's just a world less hard when we reach to find compassionate company. We’re sending tons of 💛and great big hugs your way, Angela!
So sorry 😞 Prayers 🙏 A big hug to you🫂
Don’t worry about what others think about you, you know what you’re feeling is real and only you can give yourself compassion and comfort. Sending you love and light ❤
Sending love and prayer to you!!
🛐🙏🏾✝️🙏🏾🙏🏾🙏🏾 Prayers going up for you dear.. I pray that you will be healed.Amen.🙏🏾🙏🏾🙏🏾
You absolutely don’t sound privileged. You sound super intelligent and highly aware and just because you are privileged to have those attributes doesn’t mean your light should be diminished in any way!
All the best for your journey ❤ You definitely got this
Thank you so much for this sweet message. Jaymie really appreciates all of the care and kindness when she has a chance to check this space 💛
Hey - Jaymie here. thank you for those kind words Sarah! I am so glad that people resonated with that part. I wanted to be very careful how I worded it to be sensitive to others.
The world is privileged to have you here my love x
Very humbled ❤
My Uncle was recently diagnosed with stage 4.. Praying for Jaymie and all that are battling this. You are not alone..🤎🤍🧡🖤
Sending so much love and healing wishes to you and your uncle 💛
praying for your uncle and for you
Thanks for all the prayers.. 🤗He's choosing not to do the chemo.. but he's got the whole family around to keep his spirits up and make sure he's on track with meds and NOT having any pity parties.!! I chose to say he's living WITH cancer- not dying from it!🙌🏾
The incompetency of doctors is astounding!!! How did they fail this woman over and over?
It’s deeply upsetting and all too common 💛
I have to take partial responsibility for my ignoring the symptoms but yes agreed! - Jaymie
It doesn't shock me at all I'm home almost died last month on air at home and dismissed like a low down DOD I would say dog but animals today get better treatment than women of color it's true it's in our minds and we're ageable now everything but treatment we're supposed to have thank you My brave young lady for sharing your story!!
You’re so love lovely! Just had a total left lung removal after immunotherapy and chemotherapy! Am so grateful am now cancer free!
Jan! We are grateful you are cancer free too 💛 What amazing news. Thank you so much for joining the conversation and for sharing. We are sending you so much love and wishes for continued healing.
@@chroniclove thank you❤️❤️❤️❤️
Jayme seems like the friend we would all cherish, love and be grateful to have! ♥️
Robin here, your words are spot on!
So true....I so hope she'll have a long life.
Thank you everyone!!! ❤
Yes, she is positive and is humorous, you wouldn't believe she had any health problem. I wish and pray she lives a long and happy life.
I was diagnosed 30 years ago with Stage 2 breast cancer. What I learned is that we MUST be an active partner in our medical situation and not let the doctors make all the decisions. I found that my opinion about what was going on in my body was totally important to the treatment - like 50% me, 50% doctors. I remember I went to a leading dermatologist at the University of Michigan about a rough patch on my nose. I said I would like it biopsied because I thought it was cancer. He acted like I was being silly and overly cautious but agreed to biopsy it so I wouldn't worry, but he could tell it was not cancer. Turned out to be squamous cell carcinoma. With the breast cancer, I also switched doctors in the middle of treatment because the one I had scared me. I was very shy then and always worried about hurting people's feelings but I thought "This is cancer. I have one chance to do this right." The doctor called me at home to ask why I switched to his partner and I told him that he scared me because he was too serious and always was frowning when he read my chart. His partner was really good but also funny and I always left feeling better than when I came in. The first doctor said that he thought patients wanted him to be serious. It just made me sad.
So important to advocate for yourself!!! 30 years out!! Ty for sharing 💛
May God bless and heal you Terry! I'm in Michigan too! Thank God you don't back down from your intuition!
Terry, I can not tell you what a big difference switching my care team made for me!! Don't worry about hurting feelings when your life is on the line! You were 100% right to align yourself with a doctor who makes any part of this a little more tolerable. Praying for your health and well being my friend! :)
@@wjmsmedia Thanks so much!
I pray God grants you complete recovery and health.
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Thoughts and Prayers to everyone going through this kind of grief. I lost my Father Dec 2022 to lung cancer ( non-smoker) then my 1st cousin in January 2023. It's a reminder to me to start making memories and cherishing the life I have. 🙏
Robin here. I am so sorry that you lost your father and first cousin so recently. Grief is tough. I was recently watching the show Three Pines, in which the main character says, “Grief is just love with no place to go.” (It seems Jamie Anderson deserves due credit for these powerful words). I hope you can find a path to healing in your own time. Thank you for your sweet hopes and prayers for everyone, for sharing, and for joining the discussion. Make those memories. The present is what we have 💛 We warmly welcome you to this community. Sending you lots of love.
Oh wow!! Such loss in a short time, I am so sorry Nix! I am sending strength and love your way
This is such a shame to hear how neglectful our medical community can be to certain ppl! You really have to advocate for yourself and insist on getting the tests and treatments you need. Don't ever depend on the doctors to care enough about your health and don't trust they know what is best for you, only you can do that!
☝️💯 We couldn’t agree more, Caryn! We want to find the good docs and we always need to be on top of our healthcare so that we can be our own ultimate decision makers.
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That is so true, been there, I had surgery burning some fibroid they were so small that my uterus got burnt without the doctor's knowledge, day 3 I felt bloated and uncomfortable so I went to urgent care after my vitals the doctor said oh you don't have a fever so I doubt an infection, day 5 I collapsed 3 time and my blood pressure plummeted I went back and it was the same story and I should rest, 5 hours later I went back and dema ded a blood test before I knew it there was the ambulance my entire blood stream was poisoned, a big bag of pus was in my belly and the deadly sepsis, thank God I was my own advocate to ask for the blood test, emergency open belly surgery, I still cringe when I think of how close I was to death
Yes and they stay early detection is the best protect.Takes so.long until u can get an appointnent to see a dr.
The medical community in general is extremely neglectful. It’s controlled by insurance companies who aren’t medical professionals. I’ve been fighting for years to find out why I have systemic problems and they just keep wanting to pump me with more medications instead of finding the core problem.
Doctor's are just human beings, some are kind and considerate and some are callus jerks. I'm sorry this sweet lady wit lung cancer was treated so badly. My prayers are with you.
Absolutely! They're human and they vary in degrees of kindness and care, as we all do. Thank you so much for joining the discussion and for your prayers. Sending you 💛!
My name is Ms. Dee. I am 65 years old. I have stage three emphysema. My lungs are functioning at about 65%. On top of that, I have a history of pulmonary embolism and DVT's. I suffer with excruciating pain daily as a result of a work injury. In February 2023, I suffered a stroke. I would love to share my story. It is very difficult when your family members don't seem to get the seriousness of your condition.
Ms. Dee, it sounds like you’ve dealt with quite a few extremely serious, life threatening, and painful health issues! We’d be honored to chat about sharing your story and what it entails to do this in the form of a video discussion. Would you reach out to us via email at contact “at” chroniclove.org? Looking forward and sending you lots of 💛
Hi Ms Dee - Jaymie here. i am so sorry you are struggling with pain. Judging by your picture, you carry it well!! What Robin said, sending you lots of love
I walked into an ER and asked for a CT with contrast, because contrast lights up cancer like a Christmas tree inside your body and hard 3rd stage colon cancer
Oh gosh! Ty for sharing. How are you doing now?
Wow, I didn't know you could go in and request it (and they actually did it!) Amazing, good for you, so glad they listened and found it! Was this in the US?
This Young Lady is Strong and So Brave. My Best Friend since we were 13 now we are 50 She has Stage 4 Breast and Bone Cancer. She's a Fighter and I Pray for Her. And I Pray for this young lady and all of the others in this Group God Bless You All Your Tough as Nails Keep Fighting!!
Amen y amen gracias
Jaymie, It's not fair that you have to go through all this, but you're not going to be a cancer statistic - you'll beat it.
I'm sending you the best wishes possible from Australia, and praying for your complete recovery. ❤️
Robin here, just wanting to say thank you for your sweet message!! Jaymie is checking and appreciating the love as often as she can. Sending you 💛
Amen
Some people just inspire. Jaymie is one of those people. She’s carrying this burden with so much Grace - I believe her voice should be heard more. God bless you my dear sister. The Bible says by His stripes you ‘were’ healed. You will share the testimony of your healing and inspire many more. God bless you.
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Strange that I know of 80 or 90 year olds in rest homes that have a few smokes every day. Genetics is real but the cancer causing chemicals in our food that we are eating is scary. Love ya beautiful lady, hope you are well and thank you for making us more aware. You have so much courage and strength where many people would crumble.
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I don’t understand why so many young people develop lung cancer. I lost my daughter to the same kind of cancer. From diagnosis to her passing in 10 months she was in agony. There weren’t any symptoms prior her shortness of breath. But than was already stage four😢 I am so happy that this beautiful,young lady is better know. I hope and pray that one day she’ll be cancer free❤
Robin here. First, I am so, so sorry that you lost your daughter to this horrific cancer. Even more awful, that she was in agony. My heart hurts reading your words. Losing a child is a special kind of pain, of loss, of grief. I hope you can find a path to healing in your own time. Thank you for your sweet hopes for Jaymie, for sharing and for joining the discussion. We’re sending you big, warm, tight hugs and loads of love 💛
Jola - So sorry to hear about your daughter and her struggles with this illness! it can be truly cruel. I thank you for your love and support!
I have to say as a caregiver, I have been in rooms where a neonatologist has just delivered what he feels was devastating news, and I realize the way he delivered it, the parents had no idea. Medical education needs to incorporate this. What you think you said, versus what the patient heard. Love the strong glorious guest as a first time viewer . Bless all
Absolutely!! Thank you so much for watching and for joining in the dialogue!! Sending you 💛!
@@chroniclove I have cancer that began in my thyroid with no family history. It began as a swollen, painful lymph node on the side of my neck that I asked my PCP to look at. She sent me for a biopsy and referred me to a thyroid specialist. He told me it was cancer and sent me for an ultrasound and MRI with contrast. Upon receipt of the results, he referred me to an oncology surgeon who specializes in head and neck surgeries because he said the extent of surgery I would require was beyond his ability. I had the surgery which removed my thyroid and many lymph nodes. I was then sent back to the thyroid specialist who then referred me to a radiology oncology specialist that administered my radiology treatments. I now see him every 6 months for scans. All the cancer is gone except for two small spots on my left lung that were considered to be too small to biopsy yet so we're just keeping a check on them for the time being. I have now been referred to an endocrinologist which I see every few months.
I said all that to say THIS: Education on informing patients of their status and showing empathetic care for them is WOEFULLY lacking in the entire medical field, from PCP level to specialists. I still have never been told my stage. I have been bounced around and passed from one doctor to another with little to no explanation of the purpose. I have had statements made to me in med speak as if I should automatically know what they mean. For instance, my radiology oncologist told me I was "stable", which I understood to mean I was in remission and I happily reported that to all my huge family. Imagine my feelings when I had to walk that back and tell them that upon further questioning I learned it simply meant the spots on my lung had not grown since my last scan. Between all the doctor visits from one end of the state to another and the endless trips for testing not available in my area in between, at 72 this has been an ordeal that I feel could have been made easier by at least being treated as a human rather than a case. This doesn't even speak to the enormous expense involved with no end in sight and the fact that I have other serious health issues requiring attention. The physical wear and tear and the mental and emotional toll all this has taken on me is ridiculous. If we were some third world nation I might expect it but instead it is simply unjustifiable. I can definitely understand why some people just give up.
Hi Carole, you've clearly been through so much, compounded by quite a bit of unnecessary confusion caused by poor communication. While experiences like yours are exhausting and depleting, hopefully doctors coming across this page will read your words and learn from you. This page, in and of itself, would be a great short course on how doctors can be more empathic caregivers! Thank you for sharing your experience! Sending you love and healing wishes!
Doctors are sometimes scared to give bad news and want to aften the blow but that does a disservice to the patient. They need to be direct, say it in simple terms and ask the patient to say what they understand from what they've said
You are 100% right. I worked in Radiology. I was licensed in both Mammography and CAT Scan. I would be doing biopsies with the Radiologist. MANY times, even before, biopsies went to pathology, it was obvious the patient had Cancer. More so in Mammography. The Radiologists would, explain to the patient, what was going on. Even with the most sympathetic explanation what was found, it was not received. I would then sit with the patient and re explain, simpler what the Radiologist said. Patients need time and a hand to hold, to absorb the information..
You don't sound privileged, YOU SOUND BRAVE, STRONG, CLEAR ABOUT YOUR PATH! You're beautiful!!
Thank you for your kind, uplifting words 💛
Thank you so much! ❤ I'm so glad that message came across the way I wanted it to!
On 2/6/23 my dearest friend left this earth due to stage 4 lung cancer. She was admitted immediately to ICU. Stayed there for 10 days. She wanted to go home to be with her husband and family. She arrived home with hospice care on Saturday and left this earth on Monday. Her diagnosis was so Unexpected. Shocking and unbelievable. Thank you for sharing your story. I wish all the best and will pray for your health to continue to be stable. God bless you... May he continue to bless you in health of body, mind and spirit.
Oh, Wendy! We are so deeply sorry for your loss of your dearest friend. How sudden! 💔 Sending you warmth, love, and wishes for healing in time that makes sense for you.
@@chroniclove thank you so much. As I was watching another video....your site popped up. I believe God gives us information as we need/seek it. Jamie's story filled in a few informative gaps for me. I am subscribing to continue to educate myself....and to be able to share with others your site. God bless.
Oh, I’m so happy you found us!! Welcome to this community. We care about the content and information we put out. We’ve got more on the way. We hope it continues to feel helpful 💛
I don’t know why this came up on my feed but I’m glad it did. I got diagnosed 2 days ago with secondary lung cancer and I’m still in shock. Watching this at this point in my life has helped me. Thank you for sharing and I really wish you all the best ❤
We are sending you love and strength as you navigate your own treatment and journey. We’re happy we found you and you found us. Welcome.
What were your symptoms?
I just the same 😢
I was diagnosed with lung cancer in 2021..had half my lung removed and am currently in remission.
This week I was diagnosed with Oral cancer.
Still awaiting MRI And CT results to see if it has spread to my lymph nodes.
Still awaiting a few results to set up a game plan,so not sure yet.
Two different types of cancer in 2 years is a hard pill to swallow.
Excuse the pun.😢❤
Oh gosh! All puns welcome. You’ve been through it!! May we ask how you’re holding up? We’re sending you all the love, a great big welcome, and we’re rooting for you over here!
Is it metastasis?
I was hospitalized with multiple pulmonary embolism when we found my lung cancer. As hard of a diagnosis, I was stage 1a and be an avid runner all my life underwent surgery on August 29, 2022. As hard as it was too hear this type of diagnosis, positive thoughts and faith will get you through it.
Hi Deborah, Robin here. It sounds like you've been through quite a few serious health conditions! Only if you're comfortable to answer, may I ask how you're doing now? Thank you for sharing, for leaving the wisdom that has gotten you through all that you've been through. We welcome you here in this community with wide open arms. Sending you lots of love and wishes for continued healing 💛
I cannot even comprehend the horror Jaymie went through. Terrifying. She certainly must experience symptoms of PTSD even though she doesn’t express it. Her spirituality and gratitude inspires me.
I imagine a lot of people who deal with cancer experience it as trauma. Cancer is often experienced as a medical trauma! In Jaymie’s video on cancer and coping, she talks about coping with the tough feelings on the way to feeling better. It’s all a part of it 💛
How horrible is it that she was never told she had stage 4 cancer and given resources??!! We as patients need to be advocates for our health. Peace and love!
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Correct....she needs to know asap...
And on top of that, they told her to go on a plant based diet!!! The worst diet for cancer. Red meat with all it's amino acids, proteins, body, muscle bone tissue healing collagens and peptides is a MUST when trying to cure cancer. These drs are literally trying to just kill people quicker. Why not offer her the c Vaxine whilst she's at it to speed up the process 🙄😡
She’s articulated the whole thing better than anyone I’ve seen..
Prayers going up 🙏🏾🙏🏾. Sending Love 💕, I’m here crying , stay positive. 30 yrs in remission..
30 years!!! You are the embodiment of hope!!! Thank you for your sweet note. Sending you so much 💛
That is amazing!!! You just gave me sooooooooooo much hope!!! Thank you for that!!! - Jaymie
God bless you.
I was 31 when I was diagnosed with Acute Myeloid Leukemia. The worst part of it for me was the pain...and thats an understatement...of the medication Neupogen.
Praise God He saw fit to bring me thru it.
Gosh, when illness (or treatment) results in ongoing intense pain, it’s a different level of struggle. Thank goodness you’re through it 💛
Bless you Misty!! i am so sorry you are on this battlefield too :( - Jaymie
This sounds a bit like my story. I am a long cancer survivor and was diagnosed with a rare type of non smokers cancer “BAC”. It’s not easy when you find out it’s a hereditary cancer. Never smoked, was a bicker , runner, dancer, hiker, skier, “gym go 5 times a week, swimmer and runner. I have shared my story with many and will continue to do so. Thanks so much for sharing your story.
Thank you for joining the conversation, Gwendolyn. It’s so hard to receive a diagnosis like this when you make so many healthy choices but this was never about a choice. Sending you wishes for continued healing and so much 💛
Hey Twin! haha Im just kidding. But there is such a growing population of us who are non-smokers getting suspicious gene mutations. I pray you are doing well and that you are back to every single thing you listed up there! - Jaymie
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Weird how cancer is taking a liking for healthy hosts now
I'm non smoker,stage 4 lung cancer,any diet formulae,supplement during ur recovery
Only til u are sick or take care of a sick loved one, do u realize how fragile life is. My message to all who are lucky enough to be healthy is to appreciate the time u have with your loved ones & tell them regularly u love them. Alot in life is just noise that distracts us from really matters
What an extraordinary person Jaymie is, and Robin, you are wonderful. I work as a physician with a specialized practice in helping people with chronic illness to live the best lives possible - whatever that looks like to them. Most people don't want to hear this, yet we're still a long way from understanding many of the diseases that afflict us. Even so, there's much we can do to help, and letting people know that they don't have to walk their path alone alone can be huge.
I'm so sorry for the many gaps in the medical system, and for the insensitivities of its practitioners. We're all just people, of course, and people are famously fallible; still - we can do so much better, and that starts with seeing patients as people. Though I went to one of North America's more "progressive" medical schools, there was remarkably little training on talking - and listening - to patients; the focus was still mostly on learning to recognize and treat disease. Is it any wonder that the patient - the person - so often gets lost in the medicalized "fog of war," with our current emphasis on "battling the disease?"
This channel is such a refreshing gem; I'm so glad I found it! I wish the best for Robin and for Jaymie, as well as for the many beautiful souls watching who may be feeling alone today.
Robin, here! Jaymie is absolutely extraordinary! Thank you so, so much for your extremely thoughtful and sweet note. Our world needs more physicians like you. Your words are quite refreshing to read and they're so true! The expectation should never be that any understanding of anything--medicine, disease, science--is ever complete or perfect. It's ever evolving. We should all understand that doctors are human and certainly fallible as we all are. Knowing this, owning the imperfection, the humanity all around would help doctors to hear patients and take their reported symptoms seriously, to prescribe testing where indicated. When the public understands that medicine is imperfect and doctors will be human, will make mistakes, it helps patients to realize just how important it is to step into their own power and advocate for themselves. The more we can come together in our humanity, the more we can close these gaps! Anyway, thank you so much for your note, for watching. Welcome to this community!! Sending you so much 💛!
I'd be your rncm,🤍Ak
BLESSINGS AND HONOR ALL BELONGS TO YOU "GOD HAS YOU COVERED""
WE ARE WARRIORS FIGHTING THIS FIGHT TOGETHER 😘 🙏 HUGS AND KISSES 💋 I SEND TO YOU "OUR BODIES" ARE HEALED IN JESUS MIGHTY NAME
I PRAY ; AMEN 🙏
OUR LIVING IS NOT AND WILL NOT BE IN VAIN.... AMEN 🙏
NOW LET US PRAISE HIM 😘
GOD HAS US COVERED HE'S SHIELDING US PROTECTING US GOD HAS OUR BACKS AND WHEN WE KNEEL AND PRAY WE MUST NOT BE SELFISH
PRAYING FOR ONE BUT ; PRAYING 🙏 FOR ALL TO BE HEALED CANCER FREE AND WHATEVER ELSE WE MIGHT BE GOING THROUGH GOD HAS OUR BACKS FIGHTING FOR OUR SOULS TO BE SET FREE AS WE SURRENDER OURSELVES TO JESUS OUR LORD AND MIGHTY SAVIOR OUR REDEEMER OUR PERSONAL SAVIOR ; WHO IS JESUS
AMEN , GIVING GOD ALL THE GLORY
IN HIS HOLY NAME I PRAY ....AMEN 🙏
Thanks you for this. Much needed.
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I gotta say I’m definitely sending love to this lady with so much grace.
This video caught my eye, my husband had stage 4 lung cancer and I look back to see the symptoms he had before we knew. Thank you for posting this video
I’m so sorry that your husband had to go through this 🥺. Thank you for sharing. Sending you 💛
My 28 year old close friend just passed away from complications from terminal cancer. She was grossly mishandled by our health care system. By the time they did something to find the cancer in her breast, it had already started spreading to her lymphnodes. They put her off for 9 months after she intitially felt the lump. The doctor told her "she was too young" and it was "probably just a swollen lymphnode" so they gave her antibiotics. That didn't work so she went back and they waved her off again. Then lump got much larger and quite painful. I told her she should go back and insist on an ultrasound at least and stomp her feet a little to advocate for herself. Long story short, the removed her breast and lymphnodes hoping they got it all, but it had then spread to her lungs and liver. Then very quickly (even with treatment) spread to her spine. From the time they told her it had metastasized to when she passed away was nearly 4 months (August 5th-November 29th) and it was because she got Pneumonia as a complication from the lung cancer.
When are these doctors going to get out of their heads that someone is too young to have cancer? It makes me so angry.
☝️ This story is all too common and we’re heartbroken that it cost your friend her life and you a world of pain. We all deserve different and better. Sending you love, healing wishes 💛
May God be with everyone in these comments sending love ❤️
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Thanks for sharing this. I had similar symptoms since spring 2020 going back and forth to my dr as I couldn’t get rid of my cough and felt breathless at times. They put it down to allergies. I was eventually diagnosed with stage 4 lung cancer at the beginning of Jan 23 after having a COPD check and an xray where they found fluid on my lung. Then had that drained and had ct scans etc. I am just getting over a lung infection (possibly because I now have an IPC fitted) and have been on anti biotics for a couple of weeks. Hope to start my chemo/immuno therapy next week - all being well.
Robin here.Thank YOU for sharing!! Jaymie often talks about and advocates for the importance of just getting symptomatic people chest X-rays sooner than later. We’re sorry that you’re having to endure so much fallout and treatment. We’re hoping your chemo and immunotherapy give you the results you’re needing and we’re sending you oodles of 💛!
@@chroniclove thank you x ❤️🙏
If you’re willing, stay in touch. You’re officially in our hearts 💛
Sending positive vibes your way for a happy outcome!
Praying 🙏🏾 for you
I pray God grants this beautiful and articulate young lady a miraculous remission.
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This is a great story from a wonderful young woman who is going through a great deal. It is impossible not to like her and care about her.
She’s such a beautiful human.
Yes spot on, impossible not to like her. She is so engaging and articulate.
Your story reminds me of my mothers story. She never smoked a day in her life and she lived a straight and narrow life and was diagnosed with stage 4 lung cancer June of 2019. She remained positive until she took her last breath Oct. 16, 2022. I admire your positivity. Praying for your continued strength. GOD bless
As Jaymie says, you only have to have lungs to develop lung cancer. We’re so terribly sorry that you lost your mother to this awful disease. We’re sending you a warm welcome to this community along with love and healing wishes 💛
My Dad had cancer that spread all over his body. He died only a year after being diagnosed. I spent as much time as I could with him while he was here. God bless everyone going threw this 🙏
My mom didn't have cancer but she had asthma n chronic bronchitis n she never smoked a day in her life. On the other hand her 2 sisters were chain smokers with nothing wrong with them. She could never understand that. All I could say ro her is life isn't fair. In the end.she died.a horrible death fighting for every breath. I remembered thinking I wish my aunts could be there to see what she had to go through!
@Nancy Jones I was there with my Dad till his last gasp of air. It was kind of frightening a little. His last breath was literally like a deep breath like going under water in a pool. The hospital made sure he was comfortable with an open line of morphine. The bad part was they gave the family the button. It was very hard for me to push the button. The nurses ended up giving him his final dose as the family was surrounded him. The good die young is true. He was only 61.
Jaymie, my thoughts and good wishes are with you......sincerely hope that you overcome this monster called cancer. God be with you.
Thank you so much for your sweet note, Maureen! Sending you 💛!
I have pulmonary fibrosis…not diagnosed correctly the first time. My doctor seemed annoyed when I asked for the X-ray. It’s been 5 years since my open lung biopsy. We must all be proactive for our health. Bless you and thank you for sharing your story.
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Sending Prayers for healing for Jaime and Everyone going through any form of illness..🙏❤️🙏❤️
Thank you so much for your sweet note 💛
That is very nice of you & hope the same for you.God bless everyone.
You just inspired me. May you and your husband continue to live a long and happy life together. Sometimes we dont understand the WHY, but there will be an answer someday. Stay strong, and watch for your blessings.🙏
Thank you so much for leaving this sweet note. Sending you 💛!
I know there is a reason this happened to me. It must be to educate people or something! Thank you for the love
I found her to be absolutely courageous and brave. She chose to live her life with cancer and not just dwell on the negativity aspects of the terminallality of her diagnosis. I have seen people who have after they been diagnosed with a terminal illness, basically deny the diagnosis and give up. She's a fighter and chose to live. I commend her for her extraordinary courage.
Way I see it, we have 2 choices, curl up in a ball and stop living, or we keep moving forward whatever way we can..
Im praying for you 🙏🏾. My Mother was just diagnosed with stage 4 lung cancer.
We’re sending her strength and healing wishes 💛
God bless all those that are suffering from this terrible disease😢😢
Beginning of the video, fits my brother’s description. Such a healthy person, 0 alcohol, 0 cigarettes, 0 drugs, healthy and balanced eating and the list can go on , on a day he coughed blood he thought it was the result of a tear in his throat. No other symptoms, Saw a doctor and after some tests he was diagnosed with LC. He was so much in disbelief. He lasted nearly 4 years. That was 6 years ago. Meanwhile my other brother living on KFC, McDonalds ant every junk food you can think of. My deceased brother used to counsel him because of his eating habits, still until today no health problems no even the flu. On the other hand , I’m too leaving a clean balance life diagnosed with non Hodgkin Lymphoma. Such is life .
Oh Jessa, Robin here. I’m so sorry that you and your family have dealt with so much illness and loss. Cancer really doesn’t discriminate. May I ask how you’re doing, now that you’re dealing with NHL? Of course, no pressure to answer, only if your comfortable. We warmly welcome you to this space and we’re sending you lots of love 💛
I've dealt with several chronic (and one rare) conditions for 34 years. Many docs, some awful and a few wonderful. Many hospitalizations, invasive tests, etc...some helpful and some made things worse. The point about what the doc says and what the patient hears is sooo valid. I'm still here largely because I refuse to say die! But all the advice about advocating for yourself is impossible when you feel like crap and no one takes you seriously, especially male doctors. Sadly, Jaymie's story isn't that unusual. I hope she continues to feel well!
I have Stage 4 endometrial Cancer which has metastasized to my left lung. We must stay positive!!! Imperative!
Hi Jayne! We just want to extend the warmth of this community to you as you face this disease. Positivity, finding hope can certainly be great ways to cope through difficult times. Thank you for sharing, for joining the conversation. Sending you healing wishes and lots of 💛
I love how your cat was comforting u,she understood the feeling in the room
Man these cats are spoiled!! He just wanted attention hahah
Our furry friends really do sense a little something extra though, right? 💛
@@chroniclove ,yes🤗.Had an chocolate lab he went to Heaven in 2008,the same year as my mom.2008 was an horrible year but God has blessed and brought me far and blessed me with new friends in human and furry form❤️
Thanks Jaymie for sharing your story you are an amazingly strong and inspirational woman, wishing you every blessing and I hope you’re doing well with your treatments xx
Sheila! Thank you so much for watching and for your note! Sending you 💛!
I watch these types of videos once in a while because I am just amazed how brave people are. Yes I'm sure they have their moments but I picture myself never getting off the floor! Just a soppy mess. But I'm being a pessimist, there are miracles to be had! And they are more likely to happen (I think) if a person stays positive (as best they can).
Hi Crystal! Robin here! Ty so much for watching. These experiences often take us through all of the feels, from soppy mess through finding the good and everything in between. Jaymie is just an amazing human all around and we’re so grateful for her advocacy work, for her generous gift of her story, for her being a part of our community. While I hope you never have to face this sort of thing, I imagine that in your most difficult moments, you too would find your way. Ty so much for your note. Sending 💛!
My mum was having a racing or irregular heart beat while pregnant wth me.. Drs kept telling her she was fine is was because she was pregnant .. There the Drs right. 3 hours after my birth my mum was dead... Yes they payed me a lot of money for malpractice... I would give it all away if i could spend just 1 week with my mum.. Thankfully i was raised by my awesome Dad and 12 burly farm hands who worked on our farm.. All those men would die to save me thats no exaggeration... Love is judgement free channel.. You got yourself a new subscriber ✌️🙏💖
I’m so sorry that you never got to know your mom because of her doctors dismissing her symptoms 😢 It sounds like you had a lot of love on that farm though. I just want you to know that it’s an honor to have you as a new subscriber and part of our chronic love family 💛 We welcome you with wide open arms.
@@chroniclove thank you so much.. I will pray for each and everyone who is suffering.. God bless you all 🙏✌️💖
What an absolutely adorable young woman you are Jaymie! When you told your story it was so easy to follow and I hung on every word! I thank God for your continued good health!! ❤️🙏
Hi Sherry, Robin here. We couldn't agree with you more! Thank you for your sweet message. Sending you 💛
Sending Love Jaymie ❤
my baby died on her 23 birthday 🎂
from colon cancer , I miss her dearly
1 year later I was diagnosed
3 months after my diagnoses
my oldest daughter was diagnosed
with stage 2 colon cancer
I'm living in an unbelievable world
Of day dreams . UNREAL
Oh dear! That’s too much! I’m so sorry for your loss of your young baby, for your oldest daughter’s battle and for yours! Your whole family is in our hearts. Sending you so much 💛
@@chroniclove
Thanks and I'm praying for your healing aswell in my heart I feel you gonna be alright you body will be healed by God's grace and his mercy I send peace in the midst of your storm it's gonna be OK
ALLOW GOD TO FIGHT YOUR BATTLE
HE SAID HE WOULD WE JUST HAS TO MOVE OUTTA THE WAY SO HE CAN COME IN REMEMBER ; HE HAS ALREADY TOLD US THE (BATTLE IS NOT OURS ANYWAY) WE JUST GOTTA GET OUTTA GOD'S WAY AND THEN HE CAN WORK IN OUR FAVOR GIVING US FAVOR , MERCY , PEACE AND LIFE.....
I HAVE A DEAR FRIEND WHO'S FIGHTING LUNG CANCER AS I WRITE AND HER FAITH IS SOOOOOO STRONG
SHE WAS DOING GREAT AND LAST WEEK THE DOCTOR'S SAID SHE HAS A NEW MASK THAT'S GROWING AND SHE TOLD ME (GIRL I'M NOT THINKING ABOUT NOTHING NEGATIVE THEY ARE SAYING) YOU KNOW I'M A POSITIVE KINDA GIRL GOD HAVEN'T BOUGHT ME THIS FAR TO LEAVE ME HERE FIGHTING WITH THESE DOCTORS ABOUT I'M I ""LIVING ARE AM I EXISTENCE"" WAITING ON DEATH TO KNOCK AT MY DOOR 🚪
I SAID (GIRLFRIEND YOU BETTER SAY THAT TWICE) TRIPLE , SHE IS MY KINDA GIRL KNOW MATTER WHAT SHE GOES THROUGH OUTTA OVER 20 PLUS YEARS AND COUNTING I'VE NEVER HEARD HER SAY ONE NEGATIVE THING ABOUT HER LIFE
SHE FOUND OUT LAST YEAR AROUND
JULY AND HER SISTER IN KY ALSO HAD STAGE # 4 AT THE SAME TIME (SHE PAST AWAY BEFORE THANKSGIVING BUT ; SHE'S IN STAGE $ 4 ASWELL AND STILL GOING STRONG
IVE NEVER SAW HER TO HAVE A BAD DAY ""CONVERSATION WISE"" SHE'S SO UPLIFTING , STRONG SPIRITUAL WISE
I FEEL THAT GOD LIKE YOU HAS A MIGHTY WORKS FOR YALL TO DO AND HE HAS HIS ARM'S OF PROTECTION AROUND THE # 2 OF YOU AND I FEEL HE'S MOLDING , SHAPING Y'ALL INTO WHAT HE WANTS YALL TO BE
GOD IS SATISFIED WITH THE TWO OF YOU FOR BEING OBEDIENT FOLLOWING HIS RULES AND REGULATIONS AND HE HAS GIVEN YALL MORE FAITH AND FAVOR , ""GOD SAID YOUR OBEDIENCE IS BETTER THAN YOU KNOW " HE WILL MAKE YOUR ENEMIES YOUR FOOT STOLE
YOUR FAITH AND WORKS DIDN'T GO UNNOTICED AND FOR NOW YOU ARE COMING OUTTA THE LOINS DEN GOD HAS RECOGNIZED AND HEARD YOUR CRIES AND SEEN YOUR PAIN AND SUFFERING AND YOU ARE COMING OUT
SHINNING AS PURE GOLD GOD SHIELD YOU AND MOLDED YOU INTO WHAT HE DESIRE FOR WHAT HE WANTED YOU TO BE , GOD BLESS STAY STRONG YOU ARE A SURVIVER LIKE MY BEST FRIEND YALL ARE OVERCOMERS
STRONG WOMEN OF GOD AND BY YOUR FAITH YOU SHALL LIVE AND NOT DIE
YOU WILL REAP A GOOD HARVEST
BECAUSE OF THE GOOD SEED YOU PLANTED AND NOW IT CAN BE PLUCKED UP .... AMEN
I'M HERE FOR YOU AS SISTER'S IN CHRIST WE ARE A FAMILY 👪 AND A FAMILY THAT PRAYS TOGETHER STAYS TOGETHER AND IT MAKES A DIFFERENCE WHEN YOU AND YOUR SISTER'S ARE GOING THROUGH THE SAME "LIKEWISE AS YOU" BECAUSE ONLY THEN CAN THEY TRULY UNDERSTAND YOUR TRAILS AND TRUBELATIONS OF WHAT WE ARE FACING ....GOD BLESS STAY STRONG
🙏 02/16/2023 TIME 10 😘 50 PM 🙏
TODAY IS MY 12 YEAR🎈 🎂 OLD BIRTHDAY AND GOD ALLOWED ME TO BE HER TO CELEBRATE AND DANCE WITH MY BABY ONEMORE TIME 🎉 🎶 💃 🎈 😘 💋 🎶 💃 SHE WAS SO HAPPY
WITH MY 23 YEAR OLD MY HUSBAND AND HER DEATH WAS 10 MONTHS APART HE PAST AWAY JANUARY
SHE PAST AWAY NOVEMBER on her
23 BIRTHDAY ""GOD ALREADY PLANNED OUT BUT ; I'M GREATFUL FOR THE TIME I DID HAVE WITH EACH OF THEM
GOD'S BLESSING'S IS UPON YOU AND YOUR HUSBAND ....AMEN 🙏
LOVE EACH OTHER AND DON'T ALLOW ANYONE TO COME BETWEEN THE TWO OF YOU ESPECIALLY THOSE GOSSIPING NOSIY NAYSAYERS 😘
@@chroniclove
YOUR ENEMIE IS CANCER
BUT ; GOD HAS YOU COVERED
RECEIVE IT AND BELIEVE IT..AMEN
🙏🏾🙏🏾🙏🏾
@@mzznewyork5406 🙏🙏🙏
God, I love her attitude, I should be getting tested soon to see if I have lung cancer, I am a smoker and I have the same symptoms. Again, I love Jaymie’s attitude which is strength, Thanks Jaymie for your story❤
Hi Sheila! Definitely get yourself to a doctor if you have symptoms that concern you! Often when it comes to these things, the earlier we seek consultation, the better off we are. Jaymie is absolutely undeniably incredible all around. She tells her story so that the rest of us can learn to ask questions and get the answers that we need. Hold onto this, get your answers, and don't wait if you're having concerning symptoms 💛
Please do! My sister was diagnosed at Stage 4 Lung Cancer after it spread to her liver…she didn’t make it. It’s totally curable if you catch it early enough. Get checked!
Sheila, I am glad you are taking that first step!!! Proud of you for making that decision. Please keep us posted and I wish you the best!! - Jaymie
My friend Serena had lung cancer, she was only 39! She was a mother of 5. I always said to her ' I always know it's you walking past my house because of your cough '!!. The doctors weren't really on the ball with it either. It's funny how we make excuses. I told my friend insist on having a chest x-ray. I was the same, I couldn't breathe properly, I was having to stop walking every 5 minutes. It was during the pandemic I ended up in hospital having my left lung drained and I'd had breast cancer about 10 years before. And when I got the results of them draining my lung it came back as the cancer had spread to my left lung and top right rib. I take chemo tablets, to prolong my life. Scary shit
Thank you for sharing, Nicky! It is SO scary. I hope your treatment is giving you relief from your symptoms. Sending you so much 💛
@@chroniclove everyday is different. Or week should I say. One week I can be ok then bang I can't do much for days sometimes. But I do try and stay positive💪 but I have recently caught a cold and cough which isn't helping much. Thank you and I really hope the same for you ❤️❤️❤️
Nicky I pray you best this God bless
@@mariemiller8740 thank you ♥️
@@nickyjones2709 praying for you, it is hard and people really can't relate to the cancer journey unless theyre on it.
I have a family member going through lung cancer. Thank you for sharing your story! Also, I love how the host is so empathetic. 😊💗
We’re sorry that your family member is in this club. We hope that they’re able to get the treatment they need. Thank you so much for sharing and for leaving this sweet note. This is the host here, Robin. I deeply appreciate your kind words. Sending you and your family love and healing wishes 💛
She's the best, isn't she?!
Hi, thank you Jaymie for sharing your story: I too have stage IV lung cancer, 18 months since diagnosis. I’m currently on my 2nd line of treatment and take 8 tablets each morning. I couldn’t have described it better there are days I forget & feel totally normal. Long may that last for both of us ❤ xxx
Robin here. Cheryl, sounds like you and Jaymie share a lot in common! I'm hoping that both of you can continue to have more of those days when you feel totally normal and forget about your cancer until a cure is in sight and accessible to both of you. Ty so much for sharing. Sending you 💛
God Bless you!
Hi Cheryl! So Glad you can say the same thing as me. I think it goes a long way in helping us cope. Right? That little bit of reprieve helps.
What are you taking?
What medicine are you taking dear. Your chemotherapy is complete. Please answer when u r comfortable. My prayers 🙏
Hi Jaymie, I wish you all the best with your health.
Last year February '22 I was lying in a hospital. They made a CT-SCAN of my tummy and lung area. A day later a doctor came to my bed and told me they found a spot in my left lung. I couldn't believe it because I wasn't in the hospital because of problems with my lungs. In April '22 they did a biobsy and a week later I heard the result of this. It was a Neuro Endocrine Tumor (NET) and I needed an operation to removed the tumor. The 1st of June I had the operation. The surgeons removed the left under lung and 3 lymph nodes. Three weeks later I needed to go back to the hospital for the results. One of the surgeons told me the 3 lymph nodes were clean. So the cancer wasn't spread out. I was so happy to hear that. Now I need to be checked every year, for 10 years. I do well only, I can be sometimes out of breath. I was very lucky that the tumor was found by the CT-SCAN while, I didn't had problems with my lungs and in an early stage. The only problem what good have related to the lung cancer was, I had lost in a few weeks a lot of weight and I had regular hot flushes.
We’re so happy that they caught it before it spread!! Thank you for sharing!! Sending healing wishes your way and lots of 💛
Very lucky and blessed that that is your path Jantje! i am glad to hear you are doing well. Prayers that you continue to do so!
God bless you bless you bless you!
my brother in law lived over 20 yrs with small oak cell carcinoma lung cancer , his doctor said he was a walking miracle , God Bless you , keep you
That’s really incredible. Thank you for sharing your brother’s story here for others to find hope in his miracle. Sending you 💛
New York has the best doctors. I wish i still there.
Thanks for sharing the story. Three of our family friends who weren't smokers had lung cancer and passed, yet those who smoked for decades are still alive. Go figure that out. Despite seeing new treatment options out there, I really hope we will find an all-comprehensive way to beat cancer.
Robin here! As Jaymie says, you only have to have lungs to develop lung cancer! It’s so important for people to understand this. We’re totally with you. We need a cure. I’d love to see a day when we don’t lose one more life to this awful disease. Sending you so much love 💛
If you have radon leaking in your basement, that is 1000x worse than smoking.
I so wish you well. Your attitude is flawless. I lived with my mates spouse from his diagnosis untill his death at90! He almost never had an event, untill years and years after his stage 1V diagnosis. He passed away from age more than cancer.
I hope a treatment is found that can keep you going for many many years,the world needs you🥰.
This poor young lady! I'm in tears. 😢
💛
No tears Heidi! Im happy to report I had scans yesterday and came back Stable and still unremarkable! :)
@@wjmsmedia Oh my goodness I am so happy for you! 😊
God Bless You and keep up your good work. I am Cancer free for 11 years. This was Lung Cancer.
Sandi! 11 years!! Thank you for sharing, for offering hope, for your message. Sending you so much 💛
Love that!!! Congrats!!
Hi , how r u ? What were u diagnosed with ? Can u help me with some hopes