My Bladder Cancer Symptoms: "They Initially Thought it was a UTI" - Ebony | The Patient Story
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- Опубликовано: 22 ноя 2024
- Ebony was 45 when she first noticed blood in her urine. But after different scans and scopes, doctors couldn't find anything. They initially thought it was a UTI. After more than year, she was diagnosed with stage N2 bladder cancer.
She then underwent MVAC chemotherapy and an 8-hour surgery to remove her bladder. As part of this surgery, part of Ebony's small intestines were used to create a neobladder.
In this conversation she shares her cancer journey, including taking control of her hair loss, the importance of self-advocacy and support and using her story to be a light for others.
Full story & transcript → www.thepatient...
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You have a wonderful man for sure. I was diagnosed with breast cancer and within a month my husband said I can’t do this. So we decided to divorce and I had to except that not everyone can handle this diagnosis but I certainly will and have slayed cancer like a warrior ❤
Where that ninja at now?
@@streettalknews he is dust in the wind and boy my life is so much better without him in it. It was a gift from God that he flaked
@@deanawells4395 💯 stay blessed
Amen sister.. God bless you and keep you. God removed him, as the stress from the relationship probably would’ve killed you. Let this me a testimony and serve God. God made this possible
Your x was a complete coward
Glad your doing fine
I was misdiagnosed for two full years. My doc kept saying it was IBS and that stress was causing my symptoms (basically, he thought I was imagining them). When it got to the point where I was having nose bleeds, sick to my stomach, and passing out, he was still saying the same (talking about women and “emotions” and “female stress”). I said I have never heard of stress causing nose bleeds or losing consciousness - he said you would be surprised what symptoms stress can cause. I was having blood taken weekly for tests and he kept telling me that everything came back fine. I was getting these super dark marks under my eyes and I was barely making it through my days - I went to one of my (weekly at this point) appts one day. My normal doc forgot to cancel my appt before he went out of town so they said they had a new female doc that could see me if I was ok with that and I said that was fine. That doc saved my life!!! She found all through my med records where all those blood tests they had been running for literally two years showed my counts all over the place. The lab kept highlighting the results and saying that he needed to meet with the patient (me) - my doc would sign off that he saw the results but then never signed off as having contacted me regarding them. This was a Friday - so that female doc had a female oncologist friend from med school that was top in their class. She called her that day, faxed her my records, and had me set up with an appointment that following Monday. They had me rushed in for surgery 2 weeks later - they didn’t think I would survive the surgery, much less any chance of any years. My oncologist said it makes her so angry these male docs that don’t take women seriously and just assume that we are being “so emotional” when what she finds is that we tend to pay attention to our bodies. She made me promise that if I ever questioned a doctors diagnosis, that I seek a 2nd, 3rd, or however many opinions that I need to - because we know our bodies best. (Because it was in my med records a bunch of times that I had already had cancer before and I kept thinking the cancer was back - I thought surely my doc knew better than me since he had all the blood tests). Since all of this, I have trusted my instincts because you are right - they are “practicing”/learning as they go.
Like you, I also had a very aggressive cancer. I think anyone who has ever had a cancer diagnosis remembers the moment of being told. It’s like everything they say after that just falls away. I remember asking her if I was going to die and she said she just honestly didn’t know. One thing I unfortunately learned after my cancer diagnosis was who my friends truly were. I thought I had so many friends, but once I was diagnosed, they just disappeared from my life (including my guy, who I wouldn’t have thought would have just walked away). I had very few people left in my life when it was all said and done. I was in my late twenties at the time - it was the hardest time of my life… I will never forget putting together my will so my little boy would be taken care of. But I’m now a 3-time cancer survivor, and I have made it through!!!
💜💜💜💜💜
God bless you dear heart ! I'm so very sorry you didn't have the support that you needed and deserved...your perspective is highly encouraging and know that you are a BLESSING to many, even though they may not know it. 🎉❤
❤🙏🏽❤
A true warrior!! What happened to the jerk Dr? Did he apologize?
@@CelestialChef90yes 👏🏽👏🏽👏🏽exactly what I want to know…report him to AMA…😒😖😤
Had bladder cancer in 2000. That was 24 yrs ago. Keep positive.
I'll tell everyone about you *MR OBALAR* coming across your RUclips channel was a blessing, I'm free from hpv, victory at last..❤❤
Wish your family the best for the future .
Hope you are doing well today.
Best regards and love from turkey😍🙏👏🧿👋
I'm in the midst of battling bladder cancer....My partner decided to leave after my first surgery in 2021, so it's me and my mother. Thank you mom.
@@ronyasencio7161 praying for you! You can absolutely fight this!!!! Sending love and light to you! Please reach out for any additional encouragement that you need!! You’ve got this! 🫶🏽🫶🏽🫶🏽
It's a shame doctors are so dismissive with patients who seek help from them. When my bestfriend started complaining to me about symptoms he was having, I immediately made an appointment for him. I just knew he had bladder cancer, yet his doctor doubted it; but because I wouldn't allow her to be so dismissive, she referred him to a urologist. A week later we found out he had a tumor the size of a golf ball and other small ones...Cancer was starting to spread! Thankfully, they were able to remove all cancerous tumors, and chemo shrunk the rest. He's been cancer free 7 yrs now!
Thank you for saving your friend ❣️ blessings to you and your dear friend 🙏🏽💜❤️
Amen!!! Thank you for sharing your story.
Praise God almighty 🙌
Jesus. Praise the Lord, he had a friend like you, to advocate for his health w/ discernment, care/concern, wisdom and love. 💯🙏🏽❣️
Where do you get dismissive from, they were running test.
I was 29 years old when I was diagnosed
I am 31 now
I am so glad I came across this video 🙏❤️
Hope you got better
Did you have the same symptoms?
Please try gratitude. I've read one Jewish book about gratitude: people wrote about how they didn't have something, wanted it so much, and they started practicing gratitude for about half an hour/hour each day. And they got what they wanted! Heavens are very generous. Remember this please: Rejoice always, pray without ceasing, give thanks in all circumstances; for this is the will of God in Christ Jesus for you.
Please read the comment under Martina McBride's ' In My Daughter's Eyes' video: My mom recorded a cover of this song for me and it took years before I could listen to it. Then it took a long time for me to be able to listen without crying. She got H1N1 back in 2009 when there was a huge break out of it. She was hospitalized and pit in the ICU 6 weeks before my 6th birthday and my little sister was only 1 1/2 at the time. The doctors told my dad and my grandparents to start preparing for her funeral because they didn’t think she was going to make it. So we prayed. Then not long after that on my birthday (September 27) she slipped into a coma. So we continued to pray and a few days later our prayers were answered as she began to get better. About a week or two after that she was home and on the mend. It was a true miracle and I don’t have a doubt in my mind that God had heard our desperate cries and answered them. I don’t know what I would do if I didn’t have her today. Praise the Lord.
One lovely comment, not mine: My husband had a stage 4 lung cancer, and doctor said he would only have few months to live. We have changed our live style together by changing our diet (Whole food plan base diet), exercise, and be in the sun for about 1 hr/day. To our surprise, his tumor in the brain shrink then disappear in just 2 short months. His doctor had no words on how we could reverse cancer naturally.
I speak Jesus over you and your family Ebony. I'm going through treatment for Breast cancer, it's not easy but with God all things are possible.❤
Prayers going up for your recovery 🙏❤️🙏
Amen! The Lord is with you!
The lord is in the vessel
❤🙏
Amen
🇯🇲Bladder cancer is seldomly thought to be a possibility with:
1) women
2) young, women
3) young, black, women
4) young, black, women who neither drink, smoke or work with certain chemicals
I was quickly diagnosed in my very early 20s via an ultrasound that showed the tumor lodged inside the bladder.
Take courage. God is able. He still heals. I'll be 60 this year. No issues. No cancer.
By the way, not many wear a bald well. You did so gorgeously.😊
Few things if you don't mind:
1) Be mindful about your diet
2) Try as best to maintain a positive mind and deal with things in a pragmatic way
3) Deal with all hurts, regrets and disappointments of the past
4) Develop a healthy relationship with the Lord
5) Speak life, words are powerful. Do not personalize it. It's "the" cancer not "my" cancer
6) Be careful about what you say(your conversations), watch, read and to what you listen
7) Be very mindful about your conversations and the persons with whom you share the deep detail while on this leg of the journey.
All the very best.....blessings.
How did you fight it? Was it because you caught it early? What was your symptoms
Great life advice in general...heed the words
Love yourself, first.
Good luck, prayers for you sis
Amen 🙏🙌
🙏
@@l3gendaryz632 Symptoms: excruciating pain and bleeding. The lining was removed and treated and prayer. Thank God.
Ladies, please if you have any concerns about bladder problems make sure you make a lot of noise with the medical profession. My daughter had UTIs for 20 years and constantly fobbed off with antibiotics, long and very painful story later she died on April 10th 2021 aged 39 leaving 5 children behind. She would be 42 tomorrow. May God bless you all and keep you safe.
I'm so sorry, Karen. May your daughter rest in peace.🙏🕊❤
@@sunshine9122 thank you, that means so much to me. God bless.
@@karenwright2695 God bless you, your grandchildren, and daughter.🙏🕊❤
wow I have been having back to back bladder infection for about 20 years now always treated with antibiotics only for it to come back with in a month or less
@THEGREATANDMIGHTY!🌹 that was the scenario with my daughter, please shout louder to your doctor, probably nothing but they should be investigating further. They have the mindset that younger people cannot get bladder cancer but I have seen so many reports stating otherwise. For your peace of mind ask your doctor to investigate further. God bless and keep you safe and thank you for sharing that with me.
A clap 👏 for your husband who understood your situation.
This video popped up randomly and I immediately recognized her from our alma mater.💙💛 Grateful that she shared her story to help others be vigilant about their bodies/health.
@@Neenja7 Aggie pride sis! Aggie pride!!! 🫶🏽💙💛💙💛
Ebony, thank you for sharing your story. I’m going to make an appointment with a urologist next week. I’m 74, retired RN with systematic lupus. I’m having bladder infections several times a year now and I need to have another cystoscopy. I’ve had several colleagues die from bladder cancer. They were old white women, retired RNs like me. Again, Ebony, thank you for encouraging me. I needed it.
yep I am going to Dr on Monday , am 75 and have had 2 UTIs this year and have never had UTIs in the past ..thanks for this info .
I hope you got the care you need and deserve. If you want to share more, please reach out to me - stephanie@thepatientstory.com.
@@josiedickson6959in the ER
@@smc130 praying for you!!!
Doctors with dimissive atitudes who treat sick people like mere bussiness transactions are sickening.
that’s the majority. Yet in reality they are legalized drug dealers for pharmaceutical companies & have no idea what health is nor how to restore it
I had an ectopic pregnancy & my doctor did not even ask me to take my coat off!! I went two days later to another doctor who looked at my face & phoned the hospital there in front of me & made an emergency appointment for 0845 the next morning. I shudder at the treatment i initially got. I bled as if I was competing with Niagara Falls. I recovered & had two children a few years later., All good.
@@maudeboggins9834 Sorry for what you went through & very happy for you now, 2 kids later 😊🌻
@@jtv848 Thank you. Very kind of you.
Thank you for sharing your story . It was very helpful and informative.
Your husband is a gem! God bless you
He certainly is! Ty!!
I'll tell everyone about you *MR OBALAR* coming across your RUclips channel was a blessing, I'm free from hpv, victory at last..❤❤
I’m have been a healthcare professional for over 30 years. I had an abdominal surgery in 2008. I continued to have pain while recovering in the hospital. I was discharged after 3 days still in a lot of pain in a Sunday around 3pm only rushed back to the hospital at 10pm because I collapsed & couldn’t urinate & still in severe pain with every breath & movement I made. I was held in ER until 5am when the gynecologist came in & ask me why I didn’t call with my issues. I was very upset, I told him that I couldn’t pick up the phone to call 911, my 12 year old daughter called. I guess he was upset because that’s a bad for him & the hospital for a patient to return within 12 hrs. I was in the hospital for 14 days with a perforated bladder from a thermal burn. I had an ultrasound & CT scan every other day & the radiologist kept reporting negative for perforated bladder on every study. My diagnosis according to my gynecologist was UTI, even though the ER nurse catheterized me upon my arrival and got 500cc grossly bloody urine. I was in so much pain that I couldn’t advocate for myself & couldn’t communicate with my children because of the pain. The nurses said I was noncompliance because I didn’t want to walk or get out of bed because of the severity of the pain. Two nurses decided to force me out of bed to walk I was only 120 pound & 4’11”, being pulled out of bed & pleading to them that I’m in a lot of pain which they ignored. I blacked out from the pain. Finally on the 14th day a urologist was consulted & did a cystoscope and those results again was read by the radiologist with another negative results. Later that day the doctor came in and said that I had a perforated bladder and the films didn’t transfer to the PAC’s system which is radiology equipment. I was given only 1 Percocet for pain because the healthcare system always treat African Americans as though they are seeking pain medicine. Once the nurses found out I had a perforated bladder they apologized for getting me out of bed. A psychiatrist was consulted because they said I was depressed. He came in and asked me what type of work did I do at the hospital and before I could answer he said housekeeping, which was also an insult. I told him I wasn’t depressed but just in severe pain and couldn’t make any movements to eat or anything. My childhood friend came to visit me in the hospital & said I was groaning in so much pain that he went to the desk to tell the nurse to please give her something to knock her out. Everyone that knows me know that I’m a patients advocate but couldn’t advocate for me. This trauma that I went through still has affected me today in 2023 especially with my bladder. If I had passed away the doctors were going to lie to my kids. It happens all the time. When I left the hospital there was a nurse that said don’t let them getaway with this. She knew and others too the wrong that was done to me and the negligence. Thank God I’m better but still haunted by what happened to me, and I was an employee at one of the many hospitals this company has. Please be aggressive with your care. If you feel your body isn’t right follow up with your doctor. Do your research. I don’t have much trust in the healthcare system of today. Doctors are sometimes very dismissive. God bless everyone that going to through health issues. I put all of my trust in God🙏🏽
My mom also was told that maybe she was depressed. Symptoms: out of breath when going up stairs. Dismissive Dr but thankfully his staff was RUDE to her 1X and that’s all it took for my mom to go see another DR. She only had 9mo left. Stomach Cancer
You should sue these fools!!
I believe you should advocate for yourself now. Sadly, you went through all of that, and then biases were thrown upon you. The HIPPI laws still apply “treated with dignity and respect. “
I was Dx last year with LGLL. Went for a second opinion and felt unheard. I changed doctors this year and still felt unheard and lost. My last spot was this month and I told them my concerns and what I would do if I am not heard again. Things changed for the better! 😊
This story is maddening! I'm so glad you came out of it. I'm sorry you experienced that as I'm sure it has caused a lot of anger and grief. You deserved to be treated with kindness and humanity at such a vulnerable time!
I had the same issues as you, got a neobladder 10 years ago. Been cancer free ever since. But, I developed a fistula between my neo bladder and vagina and had excessive leaks. I lived with it first five years, then went to try to close us the fistula with surgery, it didn’t last a year. I just replaced my neobladder with a urostomy. It’s been four months, but I think it’s made my life
so much easier. Wish I would have gotten the urostomy much sooner.
I sure do love Ebony. She is gorgeous, smart, and resourceful. She sure did go through hell before she was finally listened to. Thank goodness she kept saying, “Something is NOT right here”. I hope you have fully recovered, and are doing well.
I feel this. I had stage 1 bladder cancer two years ago now. I spent 6 months trying to get someone to listen to me. They kept checking me for UTIs and, when I finally got an appointment with the urologist, they basically told me I was probably imaging things. Just as they said that they turned the camera and there was a huge tumor. I’ll never forget their, “That’s not supposed to be there.”
Thank you for sharing your story.
How were you treated?
I’m facing this same issue right now and I have suffered for nothing! A urologist told me I was imagining things, that I should go to a psychiatrist home
Please tell me did you do a surgery and how are you feeling now? And how was the tumor found? I have done several test but all of them keep coming that I’m okay and I can’t forget how the last urologist I went to shouted at me for trying to explain to him how I feel
I’ve been suffering with this for the past 8 months now
Please help me out with information!
I’m dying, I’ve lost control of my bladder , I pee like 19+ times a day
I have a pain inflamed in my back sometimes and most times
I have a biting pain inside the centre of my bladder most times like I’m pee filled when I’m not 🤦♂️
WOW ‼️
@@willythekid-js5mqhey how are you ?
@@willythekid-js5mqi hope you’re doing well now!
What a genuinely authentic, pragmatic and raw lady. I am so sorry you had to go through this.😪. We need more solid families like this who share the endurance, strength and extended and family support.
I got sick one day out the blue. The pain knocked me to my feet. I started vomiting and was taking to the hospital. They referred me to urologist because unspecified blood was found in urine. I had the ct scan done and the scope which both showed no sign of cancer. Still having a little pain but no blood this is an eye opener to not just let doctors dismiss what mconcerns you and your body. Thank you Ebony
My husband went to ER because he was having kidney stone pain. So they CAT scan and surprise, a tumor the size of a lemon! Went to urologist and surgery scheduled immediately. Surgery and at follow up, clear. 4 mos later, another check, cancer back. He said it was aggressive. Sent to cancer center and started clinical trial. He got Merck BCG treatment for the next 3 years. When he finished that it appears gone! So a couple more years of cystos and if he stays clear, he'll finally saybits gone. So good luck but it can be cured. Prayers for you.
Women please advocate for yourselves. We know our bodies better than the doctors.❤
My sister is battling stage 4 bladder cancer… my love and prayers are with her, you and everyone fighting this horrid disease. 🙏🏻❤️🙏🏻
I'm sorry to hear your sister is battling blatter cancer 💛
Praying for you and your family Jeana!
Hi, you are not alone. Unfortunately. 😢
@@kanikagupta2456 NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY???? They are brain washing you with each medicine they put out in market - So pharma co makes profit at cost of your health.
She’s absolutely stunning
Another bladder issue needs to be checked for and ruled in or out: Interstitial Cystitis. Orphan disease of the bladder. Mistaken for chronic UTI'S. It's an insidious little symptom presenter and a lot of urologists don't care to deal with it. Men can get it, too; but as with many other conditions, we girls/women tend to get it more so. We have to stand up for ourselves; we just have to. Ebony is one big inspiration.
Leticia, really appreciate you bringing this to the attention of our community! Couldn't agree more - Ebony is amazing :). -Stephanie
@@ThePatientStory thank you, Stephanie, glad I could offer a little insight into something that I've been diagnosed with since 1988...no, actually 1990--symptoms started in '88. Different folks with IC have their own individual outcomes. And there are no actual cures. It can affect daily life pretty unhappily. One of the biggest sacrifices in my case is sexually, because those organs down there are so close and connected. IC can cause flares of pain during and after sex--and the feeling of having to empty your bladder every five minutes for relief of discomfort. Uro-gynocologists are more prominent now, makes sense due to women's anatomies. Sorry to take up space about IC, but Ebony's story made me speak up!🙏👏🤗 And what she went through for the right diagnosis -- Time frame, I felt her frustration. It can take several specialists and tests to find the truth with urological symptoms.
Oh Ebony ❤ your story, strength, and courage are amazing testimony!🙏🏻
I cried and blessed the Lord that I came across your story today. I needed to hear this message! My doctors and specialists have put me aside due to age (67), pandemic grief (lost 5 loved ones), inconclusive diagnosis, and more. But now I take courage to speak up for myself and not give up. God bless your family❤️🙏🏻👏🏻👍🏻🌸 Thank you!
yes!! please advocate for yourself!! YOU are worth it and deserve attention if you know in your mind things aren't adding up with what medical professionals are telling you❤❤❤
You & your husband lucky to have each other during this difficult times.
As an Oncology nurse I applaud you for advocating for yourself and being persistent. Many times we accept what doctors say but Thank God you kept going back to report your symptoms. Blessings to you always as you continue on your journey ❤
Thank you so much and thank you for serving so many!!!
As a veteran nurse and a woman with various challenging health problems, a therapist who I had been working with told me something no doctor NP, PA, DC or DO ever said to me before. He said “you are the expert on you”. It was tremendously liberating to finally be emancipated after so many others had never understood nor accepted that construct.
What a story x what I've been through and going through today is nothing compared to what you have been through x I send my ❤ and prayers x
Doctors over the years forget preventive medicine is the best x so many of us end up doing DIY x my experience is a lottery x you win or lose x if only they would listen more and not always think they know best as we know our bodies x it used to be about healthy patients x nowcis more about money x we can go to the moon so why cant every hospital have a machine that shows everything x so as to prevent things getting worse over months and even years x
The reality is not as easy as we think..I’m dealing with 2 Dr. That only seems to care about collecting insurance payments for surgeries.
As time is passing , my bladder cancer is going from low risk , 0 grade to 3 more high risk tumors and there isn’t discussions for treatment. ..What do Drs. are waiting for ? For my cancer to worsen . ?
Now I’m going to see a new urologist on Oct. , I hope he cares and give a treatment to stop this disease from spreading 🙏🏻🙏🏻🙏🏻
@@mirthab.7576 sending prayers your way , please let us know how you are going?? My mom is going through this right now too.
My sister died from the same type of cancer, and she was misdiagnosed for 2 years. She died at 60, my sister was an angel.
God bless you.
RIP to your sister and my condolences
I'm so sorry for your loss.I'm Praying that The Heavenly Father strengthens you& your family in Jesus Name 🙏❤️.
I’m so sorry for the loss of your sister. 2 years of misdiagnosis. Such a shame … my sincere condolences to you and yours .
My sincere condolences 🙏🏿 ❤
Q7@@karendavidson6272
My mother was misdiagnosed with a UTI for one year . She was in her early 70's had no other health problems what so ever. She had blood in her urine and burning upon urination. Once diagnosed with bladder cancer they removed the bladder and gave her a urostomy bag. They didn't give her any chemo etc so the cancer came back a year later. Then they gave her chemo therapy and radiation because it had spread. She ended up dieing a year or so later and her journey with chemo was horrendous. You are so blessed to be here and I am so happy that you are sharing your story with others... ladies/gentlemen if a uti doesn't go away within a couple weeks insist that your doctor check you for bladder cancer and don't take no for a answer.
Glory Hallelujah ❤
God is an awesome God. Thank you for sharing. I've had blood in urine for 15 years. Seen urologist, had scans and scopes. I'm going to ask for a CT scan. Thank you a million times. I know 15 years is a long time, but things can change overnight. You are so strong. I pray that God continues to bless you and your family.
Anyone with bladder cancer, or undiagnosed bladder issues.. I have a story for you.. Ebony, I am so glad you were able to finally get a diagnosis and treatment!!! I am not trying to hijack your story, just want to add more info for anyone who may be in the same situation...
I have had bladder cancer twice! First time I was 33 years old. Mom with 2 little kids. Same thing, no tests showing anything. Non smoking, healthy, no other red flags! My only symptom was some blood in my urine. BUT I luckily had randomly chosen the BEST urologist! (I never went to the dr, was completely healthy so I didn't really even know where to go - picked a urologist from the phone book - this was back before the internet was as useful as it is now!) We also had no health insurance. Young, active, healthy and starting a new business - money needed elsewhere (boy did I learn a lesson!). It was a blessing, though. I did not have to wait for a referral or approval - I just went right to a specialist. And my urologist helped me find other doctors would take an uninsured patient. Because I was white and married, did not qualify for any govt assistance.. (another LONG story). Anyway, he never gave up. We had test after test. Over the course of 2 months I think I had a test/scan/scope/xray etc every week. My tumor was finally found with a strange xray where you have to take the xray 'as you pee'. Surgery scheduled and I credit that wonderful man (and God for sending me to that doctor!) to have saved my life! He never gave up. He was doing every single test in the book until he found out what was going on! I The tumor was of uracheal origin, but had broken into the bladder. So even though the source was not the bladder, its considered a bladder / urological cancer. The cancer I had was very rare, and I was lucky to have found it. However, my odds of survival were low.. Very LONG story short, tumor removed (I was able to keep my bladder even though the tumor had gone through all layers of the bladder wall)- radiation and chemo .. A few side effects have lingered from the chemo, but other than that I have been able to live a normal healthy life...
27 year cancer-free years later .. I was diagnosed with a different form of bladder cancer. Totally not related to the first. Still not a smoker, still healhty, but older now. In a way it was a blessing to have that instead of some other cancer, because I knew the signs to look for. Caught it early enough that the cancer had not even formed a tumor yet. After 2 weeks of blood in my urine, antibiotics did nothing.. I knew something was wrong! My Urologist is fantastic, Saw the suspicious cells during the cystoscopy. A week or so later (as soon as I could get all the pre op stuff done) I had surgery and he removed it and now I am doing BCG immunology treatments and outlook is good. Cancer is not a death sentence. Every person is different, and even if your odds of survival are low - dont give up! Keep fighting! If something feels weird, if you have unresolved medical issues, fight for yourself. You are the ONLY one who knows what is normal for you.. Go to as many doctors as need be. Find out what the issue is, so you can fight it!
I have a channel where I talk about other things, but plan on doing a series about my entire cancer journey soon.
I am so very happy I came across this video. I literally felt like you was telling my story. I am a young African American women diagnosed at 37 and went through 5 yrs of tx before I finally decided/ had to lose my bladder March 22nd 2023 neobladder, home for a week back witn Sepsis and kidney failure. I documented my journey as well to help educate others and bring awareness. You are blessed and so glad you are thriving!! Continued blessings to you.
Thank you for sharing your story here. We'd love to feature your voice on our platforms, as well, if you are interested.Please reach out: stephanie@thepatientstory.com
Praying for divine healing for you, Sister.🙏🏾🤗❣️
I was diagnosed with stage 1 aggressive bladder cancer in March. I had no symptoms but also had blood in my urine but like yours was not visable . I had kidney stones in the past so l thought l had another stone but my urologist sent me for a CT scan which showed a tumor. It was removed but still needed treatments. I had 6 BCG treatments. & next week will have cycsosopy to see if any cancer has come back. This is so scary. Im so glad your husband is there helping & supporting you. Im hoping my cancer hasn't spread. Bless you l hope you will continue to improve.
🙏❤️🙏
Def send you well wishes and keep you in my prayers🙏🏾
God Bless her...what an ordeal...I don't think I would have the strength. You exude grace and strength.
I'll tell everyone about you *MR OBALAR* coming across your RUclips channel was a blessing, I'm free from hpv, victory at last..❤❤
My cancer was also not diagnosed for almost a year and a half despite all the signs. All it took eventually was a CT scan that picked up my cancer. By that time it had gone to Stage 4. I was diagnosed with non hodgkins lymphoma. I was treated successfully but cancer returned after 18 months. I had more intensive treatment ending with stem cell transplant. Horrible side effects - I would not wish this on anyone. I never used to go to the doctor but when I started feeling unwell I was seeing him often. I was losing a lot of weight, having night sweats, losing hair, could not eat a lot and any mouthfuls I managed to eat did not stay in me for long as I was being sick. Doctors need to keep up to date with the symptoms of cancers so treatment can be given quickly.
This is my first RUclips comment and I feel like i need to let you know that you’re strong and courageous!
I’m sending you love and light . You’ve come so far and God will take you even further. I’m praying for you and anyone else going through something similar❤
All the best dearest!
@@sandramartha47 Thank you very much for your kind words. I am doing well - sure chemotherapy has left neuropathy in my feet which causes some issues and my hair did not grow back welll, but these are minor issues compared to what a lot of people are going through in their lives. I am alive and enjoying life. My prayers and kind wishes are with everyone who is going through lives trials
Love and light to you
I had bladder cancer to. I went into surgery for a hysterectomy. They found the bladder cancer stage 2. 6 months chemo . 5 days a week for 4 weeks radiation. I go for my 3 month check up in June. Hopefully everything is good. but I control my bladder
GOD'S BLESSINGS
🙏🏾
I have to say what a natural beauty you are inside and out. What a blessing to your boys and husband you must be❤
Wow…what an impressive lady she is. Everything! So articulate, smart, engaging, her courage….(and she’s absolutely gorgeous!)
As expected👌🏾
I’m so sorry you had to travel this long journey. In my 50’s I was lucky my bladder cancer was diagnosed very quickly thanks to a switched on doctor. Consequently my tumours were non invasive and contained in the bladder and could be removed fairly easily. My recovery was quick and I give thanks when I hear cases such as yours. I sincerely hope you go forward and thrive 😊
My God is the healer the great physician He can move mountains.
What is your age now
@@sadiarahim2640 72 😊. I’ve have had several reviews since the last bout out of chemo and still ok. 👏👏
Sorry went through so much . I was diagnosed with bladder cancer June 2022 , had surgery and was extremely lucky it was stage 1. I had a sonogram because I was very sick and a mass was found . It’s very scary- I’m cancer free the last 4 years. I had no symptoms, no blood in my urine. God bless you and thank you for sharing your story. You are a strong woman!
Praise God you’re doing well!!!! Ecstatic for you! Thank you for the encouragement! I appreciate you!
I was laying in my bed & came across your page.
I just went to urologist 1/22/24 due to microscopic blood in urine. I had a cystoscopy. He said I have a small tiny stone on left kidney that just sit there but sending me to have another scan 1/25/24. And said he look at me in 6 months. I will not wait 6 months I will listen to my body. I’m truly sorry u had to endure this & it’s really good to see u have such a wonderful husband that stands by u through it all. May God place his hands over all of us & strengthen & heal us through all of our challenges. We are healed in Jesus name❤️🙏🏽 Thank you for sharing your story ❤🙏🏽
Thank you Ebony for sharing your story. I am having a dull abdominal pain on my left side and I have women incontinence issues for years, so my primary doctor suggested that I do exercise to help strengthen my bladder - kegel exercises and I will but I am going to see a urologist to make sure that I don’t have an infection or something worse is wrong. I do believe the doctors are practicing physicians and I have been telling my family this for years. Nobody knows your body better than you when something is off and not right. Most doctors do just dismiss us and when they do if you don’t challenge them then it’s time to get a new doctor, thank you again for sharing
Rare and very helpful contribution for women with bladder problems, and a diagnosis of bladder cancer.
Many thanks.
You’re absolutely welcome!
"Don't be fearful of what the outcome can be." Yhew Ebony, you just said what I needed to hear.
Your story is amazing. God bless you and your family.
When I had my cystoscopy, I watched the t.v monitor & we instantly saw my 4 bladder tumors. You shouldn't have had to wait for any results!
Some urologists use the monitor, and some use a different type of scope that only has an eye scope. I've been checked both ways and much prefer being able to see what's in there. Best wishes for you, Ebony.
@@VSThibodeau Interesting- I didn't know that, thank you!
Wow! Her testimony is incredible! what an amazing woman!
Thank you tremendously. I’m so grateful!
This is a prime example why I always advocate to get a second opinion. Sometimes, you may have to get a third opinion. Things don't always show up on scans. It happens. I don't fault your doctor because nothing showed up on the scans. A doctor nor nurses are perfect. I am a nurse. We just try to do our best. A doctor usually looks at your tests and symptoms. If nothing is seen, what do we want them to do? I hate that it happened to you. However, I am glad that you are still here to talk about it!
I started not to click on your video... But i did and im going to make an appointment thank you thank you im glad i heard you❤❤❤❤
Same. I'm glad I decided to watch.
This is weird that this just showed up. I just had my first UTI ever. I’m 59. I have been having stomach problems. Thank you so much!!💜 I am going to the doctor and making them check me out very well!!
Thank u for sharing ur insightful journey. I was diagnosed with upper urothelial ca high grade- referred to surgeon for kidney & ureter removal-deceided go get 2nd opinion at a renoun cancer facility- cancer downgraded to low grade non- invasive - after cysto/ ureteral scoping -> structures are clean. No signs of tumor. CT abdomen in 4 months for surveillance. Removing a kidney/ ureter/ or bladder is not like an ingrown toenail, it’s life changing. Glad ur doing better but u give excellent advise, go w ur gut, & if ur not getting answers, get 2nd opinion.
This lady is a real treasure for sharing her story so candidly ❤ thank you so much for posting this video. I’m floored at how the doctors dismissed her issues for so long; I know that women get dismissed more by Drs, and it’s probably even worse for WOC. I couldn’t help but wonder if she could have saved her bladder, if it had been found earlier.
Wow.... you were literally speaking to me in this video! I've been dealing with the same things for the same amount of time... and I'm 45. I'll be 46 in Aug. They keep giving me antibiotics for uti. I got goose bumps listening to your story.
I'm making an appt to schedule a CT scan!!
Notably, bladder cancer took my father (an older white male who smoked most of his life) in 2008-- when I was 7 months pregnant with my last child, which coincidentally was also my last surgical procedure as it was c section delivery-- yet it never occurred to me that this could be what's going on until this video... wow.
Thanks for sharing your story. ❤
Double thank you ..
@lucyleftthebuilding99 are you feeling the same thing?
And is yours biting you like you are pee filled ?
Beautiful woman. Hope she remains well.
God has been so good to me! Thank you!!! All is well!
@@ebonygaiter4439 Thank you, Jesus!
I'll tell everyone about you *MR OBALAR* coming across your RUclips channel was a blessing, I'm free from hpv, victory at last..❤❤
What’s wonderful husband you have ❤. My brother has just been diagnosed with bladder cancer so he is just starting this journey.
Praying God speed and healing for your brother!!! I am his evidence!
Thank you for sharing your story, Ebony. It’s very timely.
My tests have shown microscopic haematuria for the past year and I’m due to have a cystoscopy soon. I actually postponed it because my doctor said “maybe you’re just one of those people who have blood- it’s probably benign”. After hearing your story, I will make sure I undergo the test.
It was unsettling to hear that you underwent these tests and your doctors didn’t find the cause initially. I pray the same doesn’t happen to me.
I hope this finds you recovering well. You are a brave & inspiring woman & I pray you have many more healthy years ahead of you to spend with your husband & sons.
I hope you're no longer seeing the doctor that brushed off the blood in your urine. omg
Ebony, thank you for telling your story! You are such a strong, brave woman! I had a cystoscopy last year and the dr removed a tumor that was malignant, but it had not spread. Thank God! I have cystoscopies every 6 months. Your husband is amazing and may you be blessed with a long life to spend with him and your sons. 🙏🏻
Has your doctor ordered urine cytology for malignancy?
Please go to a top hopsital/urologist and not someone that says it's some peoples normal.
@@joycemartinez4718 is your urine have blood that’s why the doctor decided to perform cystoscopy
You are blessed to have your husband there too support you what a God blessing.🙏🏽🌹
Truly a blessing!! grateful!!!
Thank you for sharing. My Grandmother (RIP) passed away in 2010 from bladder cancer. Unfortunately when she started developing symptoms and was diagnosed it was aggressive and at a higher stage so while treatment and surgery was done it was in essence too late. Sharing your journey has and will shed a light on not just bladder cancer but healthcare in general as you remind us on the importance of self advocacy. Continued Light, Blessings, and Prayers
I don’t know anyone with bladder cancer although I have far too many with other types. I’m not sure why I clicked this link, but so glad I did. YOU are such an incredible inspiration. I pray YOU have your best Life going forward.
I’m 75 and had breast cancer twenty-four years ago. I know four people who had bladder cancer (all older white men, one of whom was a long-time smoker and one who was an alcoholic in recovery). I know that a cancer can develop in every part of the body.
What an amazing, brave, kind and thoughtful young lady. She is an absolute inspiration.
You and your husband have created a beautiful family and life. I wish all the best for you and am having very positive thoughts going your way.. ❤
Good for you calling your doctor out on the results.
This lady was very informative. I enjoyed listening to her, she made such good sense.
Thank you so much!😊
I’m sure you have helped so many people with this video. You look so healthy now it will be extremely encouraging to so many! Thank you for your courage, your clear information and your desire to help others. You went through so much and I’m glad God gave you a loving husband to be at your side.
I see now why I clicked this video! I’ve had microscopic blood in my urine for the last 2 years. No symptoms aside from the pee test. Figured it was stress from my horrifically drama filled divorce. Got a kidney ultrasound, cystoscopy and more. They found nothing. But when you said CT scan I almost chipped a toof logging into my medical portal to request one. Dr seems pretty good. But she too said that I may be one of the small percentage of ppl that have microscopic blood in my urine. Even the urologist told me she has excess blood in her urine too and nothing was found. Thank you for sharing, I’m requesting a CT scan ASAP. ❤❤
Same here but for the last 15-16 years. It started after I got pregnant or after I had my 1st kid. I have had the same procedures done. But I have not progressed to visible blood or other symptoms. 1 of the 1st questions I try to ask is "how serious can this be? Is there a possibility of cancer?"
Sending love and light your way!!
I can completely relate to your situation. I had a pelvic tumor at 16 and 20. Due to radiation in 1990 it destroyed my bladder and I had inlander leakage and inflammation in the bladder. In 1995 I had the Indiana Pouche which sounds a lot like what you had done. They removed my bladder and made a new bladder out of bowel and connected by kidneys to the new bladder and I have a pencil size hole of my right side. I cath myself and have had a few complications over the years. It is still the best decision I made. You don’t realize how quick you used to release your bladder versus now. I was getting bladder infections symptoms and would have to be on sulfate meds every 2-3 weeks and it was miserable plus dealing with the leakages. The Indians pouche was the best decision I made and it’s been 28 years. When I had my surgery in 1995 there was only 1 doctor who did that kind of surgery and he had only been doing it for 10 years. I’m glad it’s becoming more available as an option. Thank you for sharing your journey.🙂
If you don't mind, what caused your radiation??
I love how vocal she is about her body !!!!!!
It feels like being misdiagnosed and given antibiotics is everyone's story 😢
@@JuneCarpenter35 it’s definitely more common than people realize
Thank you for sharing. I was misdiagnosed twice, once with skin cancer (dr said it was “dry skin” proscribed a lotion). I didn’t get the Rx filled but a second opinion instead. It was skin cancer. Second time was a dr told me I had a “virus”, it will run its course. Went to emergency room and ended up staying in hospital for two weeks with Meningitis, it was terrible. They gave me a spinal tap to detect it because of the symptoms I was experiencing. Point being, if you have a feeling about something, address it. I have seen that some Doctors are very kind and caring, they want to take time to get you well and keep you healthy. Unfortunately some “drs” are just going through the motions and only looking for a paycheck. I guess that’s all professions. 💔😢🙏
God bless you ebony. May you live a long and healthy life. I stumbled on this after just having a cystoscopy today. Went through breast cancer that had spread to lymphnodes and have had slight blood in urine for 5 years. Doc says things looked great and to be checked regularly. I will be bringing up this issue. Thank you!!❤
First and foremost you are beautiful!!! I admire your strength and determination to fight through the challenges you were faced. Thank you for sharing your story! You’re helping so many people and that’s a huge blessing
Hi Ebony, I came across your vlog & could relate to your story. I watch lots of vlogs of people sharing their cancer journey. Yours stuck out as you do not hear many about bladder cancer. Self cathertisation is not a nice thing to do, infact its evasive & can cause pain & frequent UTI's. I say this because I have been doing this for 22 years, 4 times daily every 6 hours & need to continue doing it for the rest of my life as my bladder does not empty & they have not been able to find a cause.
Anyway i just wanted to say 'Thank you' for sharing your story. I am happy you are now better & wish you all the best. Sending hugs 🥰💜❤️🩷
You are very likable!! In your videos, your attitude and reaction to losing your bladder were adorable!! Especially since you've actually been through, IT!!
My prayer was always, Lord, help me go through this with grace. I’m grateful to be alive. 🙌🏽🙌🏽🙌🏽
I’ve had bladder cancer three times. My only symptom was blood in my urine-a lot of blood! No pain, no discomfort or fever. I was at my doctor’s office the next day. When he saw my urine sample, he immediately called another doctor who agreed to wait for me after office hours. That was on a Tuesday; I had surgery on Thursday. Because my doctor listened to me and acted immediately, it was caught early before it had invaded the bladder wall. I watched the surgery and saw the tumor before it went to pathology. It was the size of a man’s thumb,
Two years later, it returned. Same symptom. Same procedure. This time it was the size of a man’s finger knuckle. Once again it came back. The size of a pencil eraser.
I had yearly checkups for twelve years. The last surgery was over 25 years old; I just celebrated my 80th birthday.
I’ve moved three times since then and every doctor I’ve seen asked me if I ever smoked. I had for ten years but had given it up 18 years before the cancer. I learned that smoking is the biggest cause of bladder cancer, even if you’ve given it up decades ago.
Yes I’ve been asked that same question. My dad was a smoker so I have never smoked a day in my life because I hated the scent. I’m glad to hear you’re doing well now!!! Continued blessings to you!
I was diagnosed with stage 2 Urine bladder cancer in late 2019. I was 67 years old. Underwent chemo & Radiation. Cancer was gone in Jan 2020,. It came back in June of 2020. My urologist wanted to remove my bladder. I said NO WAY. I opted for alternative medicine and change of life style. Did a lot of research and found some potential alternatives options.
(1). I am taking kyolic Aged Garlic Extract supplement.
(2) drink vegetable (celery + cucumber) juicing to protect my liver+ kidney.
(3) use frankincense essential oil, orally and topically.
(4). Get high dose IV vitamin C. As much as 50 grams per session, twice a week. Sometimes less.
By July 2022,. I had cystoscopy and had biopsy on my bladder and prostate. Negative in both bladder cancer and prostate. To prevent the tumor from coming back and spreading, I am still doing the above mentioned therapy. But my IV vit C infusion is just 30 grams per session, every 10 days. I am telling you this to open your eyes to other less expensive alternative cure and very effective with no bad side effects. Let me know if you need more info on this.
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During my search for alternative cure for my Bladder Cancer, I came upon multiple medical articles proving that Raw Aged Garlic Extract kills tumor cells in our stomach, colon and bladder (in vitro and Vivo). Even though her cancer is in remission, there is a high probability that the cancer ceiis will come back within the next five years. Hence, it is advisable that she take supplements to boost her immune system. She should take the Kyolic Aged Garlic Extract AGE capsule regularly and take lots of vitamin C (oral or IV). This AGE can prevent or reduce the incidence of polyp in our colons and tumor in bladder.
Be your own advocate - thank you for sharing your story. My husband just recovered from cancer at 48 diagnosed. He is monitored watch and wait every 3 months. Biggest thing I am is his advocate as a spouse or partner, that is one of the ways you can support the person going thru it.
Oh my goodness!! Your story is my story. 😢😢❤
Praying for you Yolanda!!!!
You are a gorgeous woman .. .. Stunning ! … Pray that things go well for you in the future … we are so much more than our physical you are very down to earth and real … that goes a long way .. best of health to you my dear and thank you for sharing this very emotional time in your life to help us all better understand what we too may face in our own future … You are courageous ! 🤗🇨🇦..
Thank you so much! I never knew I had it in me! I am beyond grateful to be on the mend!
I'm going thru stg4 cervical cancer that spread to lympnodes. Went thru my treatments. All looked good till this week. They believe it's spread to my liver and what toke me to hospital is what feels like the worse UTI and test don't show one and meds hvnt helped. That's how I found ur video. You are sooooo gorgeous and uplifting ❤
Praying for you
Praying for you Jennifer.
Your are a very strong young woman and your husband has your back. Stay positive and prayerful. 🙏❤️
OMG, you went through so much, bless your heart. I wish you all the best of health.
BRAVO - for sharing your story selflessly. To help the future - forever.
Forever and ever amen!
Thankyou for sharing your story Ebony. You are incredible! You are beautiful and your name is beautiful! Prayers going up for you! You and your Family are very beautiful and positive!
You got this. Having the constant and genuine support from your family and your husband is very important. I wish you all the best. 🙏🏽
Ebony, I never watch these types of videos but was drawn to your story, journey. Mis-diagnosis is so real. Secondly, I was so educated and will make certain if I hear of another sister being told maybe it's a UTI with persistent blood I will speak up. Firstly, I am so thankful you are here to tell your story. I pray that the road ahead is much easier and that your new normal will be filled with joy. Blessings
Thank you tremendously!!
We go through a lot in this world. I'm so grateful that she is such an intelligent women (an engineer!) that she was able to parse and filter information. Her spirit and a positive universal force, for lack of better terminology, helped to see her through the worst of it. May you live the rest of your life in peace and harmony.❤❤
Thanks so much for the well wishes and kind words!!! I appreciate you!
Now that's a blessing as a spouse, Good to see you well. Blessings to you and your family 🙏🏾
This touches my heart that you had to endure dismissive drs. and nurses in the early stages of this disease. Since Covid my distain for the medical and scientific communities has intensified. You are such a beautiful soul. Thank you for sharing your journey and may the lord bless and keep you in peace and good health .
Thank you for sharing your story. My husband had his bladder removed due to bladder cancer. Most people haven’t heard of it and need to know more.
I admire not just your beauty but your natural intelligence. Empowering yourself and be on top of your health was very impressive. It's true that we ourselves are the true doctor of ourselves. I'm inspired by your tenacity, stood your ground and even went in for a new doctor. I'm sure you saved people's lives by sharing your story and for that I am grateful. You're a beautiful human being❤
My mother had bladder cancer. Although she was over 60, the doctors originally overlooked things because she was Black, a non smoker, and non drinker. Unfortunately, she lost her battle with the disease. We also had never heard of bladder cancer.
I’m so sorry for your loss!!! Sending you love and light!!!! ❤
You are so knowledgeable about your problem with cancer. I wish I could have been like you, all I know is I was so bitter and angry that I ended up with cancer that I completely shut down. God bless you and I pray you continue to be healthy and long life. ❤ And you both will be ok as long as you stay positive. And I took the natural holistic way to heal my body after surgery and change my diet because just about everything we eat is toxic and manage my emotions.
Thank you for sharing your story. It's a shame that so many people have to show symptoms before receiving the help they need.
Any statement from 'well meaning friends' that starts with "at least..or "You only.." is the difference between sympathy and empathy. Not a lot of people truly understand the differences nor do they correct it. Im thankful you have gotten help finally and I'm sorry you have had such a hard and trying journey. 😢 i know nothing is truly "normal" againnafter cancer..but i wish you well on finding a new normal that works for you.
Ebony you are BEAUTIFUL inside and out! Thank you for sharing your story! Praise God for giving you strength to get through and to have a wonderful husband by your side!!! ❤❤
You are so authentic, smart, and powerful. You also chose an amazing spouse. Thank you for sharing your story.
Ebony, you’re incredible. So glad that you are on the road to full recovery. May God continue to heal and keep you. Aggie Pride!! 💙💛
You are a beautiful woman. You have been put through an illness you shouldn’t have had to go through. Don’t trust doctors when something is wrong. You know that now. I am glad you are back to pretty much normal. What a horrendous period to go through. My mother died of cancer.
Ebony😘🙏🏽,
You have a beautiful outlook on life. I just lost my eldest brother to cancer. He. Fought for 5 years but to no avail to esophageal cancer. My other brother, who was quite a bit younger at the time survived bladder cancer back in 2000. He was probably about in his late 40’s at the time. I think you will be fine. 🙏🏽😘❤️ Sounds like you have a wonderful husband too.
Thank you for sharing your story! You are amazing! Being our own advocate and staying vigilant regarding our health is paramount to living a longer and healthier life. You are indeed blessed to have such a loving and devoted husband. As you spoke of him, it described my husband as well. Praise Jah!