My son did die before us. And like you we believed we would see him again as a healthily boy not a boy suffering from severe epilepsy. Tragically my husband was killed a few years later in an accident. I’m all alone in this world but… I know they are together and very happy and I will be with them one day. You have to believe you will be with your loved ones or else you can’t make it through this life. Best wishes, I know your life is hard. Just keep your girl singing, she is so beautiful and happy when she’s singing. 💝
I'm so sorry to hear about this, darling. I'm sorry I'm fine months late, but just know there are also other people out there. Don't allow these tragedies to overtake you. You will meet with your son and husband when the time is right. If you ever get overwhelmed always be sure to reach out for help. Have a good day, or night.
Keep the faith and never stop believing and trusting in God. Sometimes the days will be hard those are the days when you trust and depend even more on God.
As a dementia nurse . This is sad . I hope the gorgeous mum is doing well also love to all their family and hope everyone in the comments is well love from Melbourne Australia xx
These videos make me appreciate every day, I'm aware, physically and mentally OK. That could ebb with age. For this young girl ... I hope the future finds a cure.
When I realise all I've lost I have to look to these people & think all they are dealing with & still continue with a positive outlook. It's inspiring how they do that considering everything ❤️
Reminds me of a friend from many years ago whose father died of lung cancer and immediately after his lengthy, lingering death, her mother was diagnosed with lung cancer as well.
@@Noella65 The daughter has a degenerative disease which will kill her, and the mother has cancer. Two health crises in one family at the same time. That is what my comment was about.
Imagine how hard this must be for the kids first being able to something and then you can’t I can’t imagine how hard this must be for kids who have to go through this God bless them 💜😭🥰
Bless you all. My daughter didnt have that but she did at 25 get diagnosed with metastatic breast cancer we had both breast removed an she was in remission for maybe 9 mos then on mothers day 2019 she was diagnosed with stage 4 bone cancer an 2 mos after that it went to her liver an she went toxic an we watched our beautiful 27 yr old daughter slowly die for 3mos. Gut wrenching an then her daddy was killed by a drunk driver 3 mos ago. An like you I wander why us. What did we do so wrong. They are with me guiding me everyday an this all literally turned me into the very best version of myself ever. Bless you all.
I'm confused, and legitimately curious. They noticed regression around 5, but didn't investigate until she graduated high school? Wouldn't her decline have been obvious enough to investigate earlier?
sanfilippo is INCREDIBLY rare so, if you don’t know about it, you aren’t gonna test for it. even the doctor who tested her said he’d never heard of it until she tested for it.
Her symptoms were (mis)diagnosed as autism when she was around 5. Which also explains why it took so long for them to investigate it further, as they most likely assumed the symptoms was due to autism. Due to the editing It's not completely clear when the "regressing" became noticable to them. Because the dad says there were "minor" issues when she was 5, and then it cuts to the mother talking about things regressing.
Why do Doctor's "guess" when diagnosing? If they don't understand something, just say so, and give the family recommendations for another specialist to look into it!
With the discovery of Alzheimer’s being possible transmissible from donor bone marrow, growth hormone, or treatments/injections that contain cells of an Alzheimer’s patient.
This is tragic and so unfair!!!!!! With the daughter with Alzheimer’s and the mom with no lung cancer? Like she said, what have they done to deserve this?!!! For all the messages saying God bless and all other references like that I read...........really?!!!! Thanks God love how you move in such mysterious ways!!!!!
i....im at a lose for words to desribe the sarrow that fills my heart at this moment.....i've lost many people i've cared about because of alzhemer's and i always brought comfort to myself by remembering that they lived a good life as long as they could....but this disease is takeing the minds and lives of children before they have a chance to live a good long life.
It used to be that only adult children or people around that age watched with horror as their loved ones died from dementia, now parents join the group of people who have to go through that torture. I have to wonder if we put as much money for research of any kind of dementia as we do for sports, politics and other unimportant things if the cure would come earlier? I guess the public really doesn't care unless it strikes their own family.
Your girl has to relearn everything. Your baby girl just disappeared and has become a shell of a person. I can't imagine the heartache that these parents feel everyday.
Seeing this kinda makes me fear that I may get dementia. My grandmother had it but I don’t know if my grandpa had it. My dad could have the disease since he’s the son of my grandpa and grandma. I fear it may pass onto me now including my sister.
Although a close family member suffering from dementia increases the risk in their relatives, dementia is usually not inherited by the next generation. This shows that Alzheimer’s disease is not a hereditary disease, but possessing certain genes may increase the risk of developing it. There are, however, a small number of cases (less than 5%) where Alzheimer’s disease is hereditary. This familial form of Alzheimer’s disease generally results in early-onset dementia that develops between the ages of 30 to 60 years. Mutations in three genes have been identified as being responsible for early-onset familial Alzheimer’s disease (eFAD). Possessing a single copy of any of those mutated genes is enough to develop this form of familial dementia.
@@christiaanprinsloo8951no she didn’t, stop spreading misinformation. I found out her family uploads videos of her on tiktok through her journey, she is now 28.
I've had a loved one with decreased mental state and awareness that didn't eat much & went into catatonia. (Almost like a comatose state, but not fully, you can still hear and move, just not very responsive). They came out of it with est (electric shock therapy), lots of prayers from many people, slowly eating more, & medicine. Drs also found this loved one had heavy metal toxicity, especially mercury. Through careful chelation, got mercury to safe levels. That was definitely related. Dr Mark Hyman's pegan diet helps SO much, including slowing dementia/Alzheimer's symptoms and partially reversing it. There is hope and answers!!
I am going to college for my doctors degree I don’t expect her to live long and get better because Alzheimer’s can start off with bipolar and this is a very sad disease I hope the best for her
Dear Mrs. Wallace, I am sorry to about Abby and your health problems. My father had Alhemeir. It is hard to watch beautiful minds go down to a shell of a person. Please hold on to the hope that soon God's Kingdom the one that Jesus, God's son taught his followers to pray for at Matthew 6: 9,10 will come, in that it will turn its attention to the earth and act. That action is the means to break up the works of the devil and give people the opportunity to live on earth forever in good health and paradise like conditions. One of the promises that the Kingdom will fulfill is at Isaiah 33:24 "No one will say I am sick the people dwelling in the land will be pardon for their error". No longer will anyone suffer the effects of Adam's inherited sin. What will that mean for your family? You will be cancer free and your daughter can go on with her life. She will not have the Alhemeir any more. No more sickness no more death. Rev. 21:4 Jehovah God showed us love first and sent his son to give us the opportunity to live forever as he originally purpose for Adam and Evie. Ps. 37:29,34Gensis 1:28; John 3:16.. God doesn't lie and doesnt die so he is the one that can do it. Jesus reinstated that promise at John 5:28,29. I am waiting for the resurrection that will occur on the earth for most of mankind. Anchor your hope and faith on that. Want to know more, go to jw.org. We dont come to you unless you fill out the request for a visit. Browse all you want its free. Pray about it, learn what to do, gain a bigger support system. Praying that your strength abounds in order to continue with you all care. Agape'
She was diagnosed with mild autism at 5..so their efforts went to therapies for autism..San Filippo Síndrome (Or any demencia in kids is a very rare condition )..hope they one they they find a cure...
If you have this diagnosis, please look into using methylene blue. I don’t know how it affects children but We reversed my mom’s Alzheimer’s symptoms using Methylene Blue! This brings hope! There is a show on it posted at The Natural Health Researcher RUclips channel.
this harmless great soul and this horrible thing happens its the saddest thing I've seen sorry I cannot believe in a god no way I'm sorry for this family and more than anything I wish I could cure it for all of you im so sorry
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
My son did die before us. And like you we believed we would see him again as a healthily boy not a boy suffering from severe epilepsy. Tragically my husband was killed a few years later in an accident. I’m all alone in this world but… I know they are together and very happy and I will be with them one day. You have to believe you will be with your loved ones or else you can’t make it through this life. Best wishes, I know your life is hard. Just keep your girl singing, she is so beautiful and happy when she’s singing. 💝
I'm so sorry to hear about this, darling. I'm sorry I'm fine months late, but just know there are also other people out there. Don't allow these tragedies to overtake you. You will meet with your son and husband when the time is right.
If you ever get overwhelmed always be sure to reach out for help. Have a good day, or night.
I’m very late, but I really hope you’ve been doing better. You are so strong ❤️
Keep the faith and never stop believing and trusting in God. Sometimes the days will be hard those are the days when you trust and depend even more on God.
no you wont . they are dead and there is nothing after death but the VOID . You will not exist after death and you wont see them anyway . Fairy tales.
11/30/2022
I'm so sorry for your loss
Losing love one's is hard but
I will pray for you because you
Are not alone.
God bless you! Amen
This is heartbreaking. I hate that diseases target children too.
I happen to have Alzheimer's... Its tough :( it get worse everyday.. Sometimes I can't even speak, think, or do anything..
Doggarious Draws how old are you? :(
@@jayani9695 recently turned 16.. ;(
Doggarious Draws what are the symptoms
@@doggariousdraws3104 Hey, how you doing, 8 months later?
That poor family going through so much and still finding things to smile about. They're so unlucky in health but so very lucky in love and each other
I feel terrible for this family.
Andrea Tuckman I know right.
Me not
@@abigailovessimonriley what?
@@ahhhhhh124 yh what
@@abigailovessimonriley uhhhhhh.....
As a dementia nurse . This is sad . I hope the gorgeous mum is doing well also love to all their family and hope everyone in the comments is well love from Melbourne Australia xx
I love this family and their strength
These videos make me appreciate every day, I'm aware, physically and mentally OK. That could ebb with age.
For this young girl ... I hope the future finds a cure.
Life is so cruel at times & your daughter so blessed to have you as her parents & family.I wish you all the strength God can give to you all.
I don't have the words to express my feelings ... blessings to you and your family...I am so sorry. Gods Speed
Any updates? How is she doing now ?
@@inukprasad2692 It’s likely she’s already passed. May her soul rest with god.
This is really sad... 😢 God bless you and your family.
But if you're a Christian you believe that "god" HAS ALREADY "blessed" her and her family--you know, the "god has a plan" thing....
When I realise all I've lost I have to look to these people & think all they are dealing with & still continue with a positive outlook. It's inspiring how they do that considering everything ❤️
I feel the pain my mom has Alzheimer too it is really heart broken.
@Rosemarie Plant is it
Roles reverse
@Rosemarie Plant they are both still awful so please don't compare this cuz both people are grieving
She doesn’t have physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
My father had Alzheimer’s and it is much harder on the family than the person suffering from it.
Reminds me of a friend from many years ago whose father died of lung cancer and immediately after his lengthy, lingering death, her mother was diagnosed with lung cancer as well.
Do not understand the comment. What does Alzheimer have to do with cancer?
@@Noella65 The daughter has a degenerative disease which will kill her, and the mother has cancer. Two health crises in one family at the same time. That is what my comment was about.
I’m really sorry for your friend :(
jeez this is a really strong group of people
Crying again. God bless this family.
Bless this beautiful woman and her very supportive family and friends ❤
This poor family. Such nice people and so brave. Life can be so unfair. I wish them all the best.
This is so so heartbreaking. I am so sorry to all the families who have to deal with this. May goodness surround all of you always.
Imagine how hard this must be for the kids first being able to something and then you can’t I can’t imagine how hard this must be for kids who have to go through this God bless them 💜😭🥰
Hello Sara
How are you doing today?
I’m so sorry for this family, may God bless them ❤️
My heart goes out to your family. Wishing you find strength to carry on. 💜
Bless this family, they are amazing people with all this going on.
Bless you all. My daughter didnt have that but she did at 25 get diagnosed with metastatic breast cancer we had both breast removed an she was in remission for maybe 9 mos then on mothers day 2019 she was diagnosed with stage 4 bone cancer an 2 mos after that it went to her liver an she went toxic an we watched our beautiful 27 yr old daughter slowly die for 3mos. Gut wrenching an then her daddy was killed by a drunk driver 3 mos ago. An like you I wander why us. What did we do so wrong. They are with me guiding me everyday an this all literally turned me into the very best version of myself ever. Bless you all.
I'm so sorry. My prayers are with you
❤ Inshallah all will be better
May God Bless this Entire Family 🙏🏻
Poor baby... bless you guys... may Yahweh bless you and comfort you...
Bless this family 😢
I'm so sorry for the family and for Abby. Life never says it's going to be perfect. I wish this never happened. 🙏💙
This is so heartbreaking 💔
Absolutely heartbreaking.
For all we think we know, we really don't know or understand much. Love to you xxxooo
no words, just love
So sad.
What a terrible decase .I feel so sorry for this family.
God shower love on this family 👪❤
wow. its so sad, especially because she grew to be so beautiful.
This is such a terrible disease. God bless her family. I hope she can still have a good life
I'm confused, and legitimately curious. They noticed regression around 5, but didn't investigate until she graduated high school? Wouldn't her decline have been obvious enough to investigate earlier?
I believe they said something about her being assumed to have autism.
sanfilippo is INCREDIBLY rare so, if you don’t know about it, you aren’t gonna test for it. even the doctor who tested her said he’d never heard of it until she tested for it.
Her symptoms were (mis)diagnosed as autism when she was around 5.
Which also explains why it took so long for them to investigate it further, as they most likely assumed the symptoms was due to autism.
Due to the editing It's not completely clear when the "regressing" became noticable to them. Because the dad says there were "minor" issues when she was 5, and then it cuts to the mother talking about things regressing.
People need to know that children need assistance for illnesses too. Not only elderly people!!!!
God bless you both ma’am. ❤
Heartbreaking. Poor girl. It's cruel forvthe elderly no mind a young person.
Why do Doctor's "guess" when diagnosing? If they don't understand something, just say so, and give the family recommendations for another specialist to look into it!
At least the doctor was willing to get the testing done despite him never knowing about it......
God is good and I applaud you and your family for trusting in God. God Bless your family! Sending you warm hugs ❤️🙏🏻
With the discovery of Alzheimer’s being possible transmissible from donor bone marrow, growth hormone, or treatments/injections that contain cells of an Alzheimer’s patient.
This is tragic and so unfair!!!!!! With the daughter with Alzheimer’s and the mom with no lung cancer? Like she said, what have they done to deserve this?!!! For all the messages saying God bless and all other references like that I read...........really?!!!! Thanks God love how you move in such mysterious ways!!!!!
I hate that you feel the need to bring religious debate. Let us all be humans for a second here regardless of our beliefs.
That’s a lot of exclamation marks.
@@myheartwillstopinjoy8142 Well, Abby’s family believes in Christianity.
@@BeachioSandschannel Yeah, but this comment is insulting religion. It's inappropriate and rude.
@@myheartwillstopinjoy8142 Ok.
God bless. Have you seen the film 'Lorenzo's oil' with Susan Sarandon?
i....im at a lose for words to desribe the sarrow that fills my heart at this moment.....i've lost many people i've cared about because of alzhemer's and i always brought comfort to myself by remembering that they lived a good life as long as they could....but this disease is takeing the minds and lives of children before they have a chance to live a good long life.
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
When you look at this video we ALL need to count our blessings
Are there any updates on Abby?
It used to be that only adult children or people around that age watched with horror as their loved ones died from dementia, now parents join the group of people who have to go through that torture. I have to wonder if we put as much money for research of any kind of dementia as we do for sports, politics and other unimportant things if the cure would come earlier? I guess the public really doesn't care unless it strikes their own family.
She’s 25 now, is she still here?
Yup. She’s still alive from what I’ve heard.
GOD BLESS YOU ALL ❤❤❤❤❤❤❤
Your girl has to relearn everything. Your baby girl just disappeared and has become a shell of a person. I can't imagine the heartache that these parents feel everyday.
Damn my eyes are sweating
Seeing this kinda makes me fear that I may get dementia. My grandmother had it but I don’t know if my grandpa had it. My dad could have the disease since he’s the son of my grandpa and grandma. I fear it may pass onto me now including my sister.
Although a close family member suffering from dementia increases the risk in their relatives, dementia is usually not inherited by the next generation. This shows that Alzheimer’s disease is not a hereditary disease, but possessing certain genes may increase the risk of developing it.
There are, however, a small number of cases (less than 5%) where Alzheimer’s disease is hereditary. This familial form of Alzheimer’s disease generally results in early-onset dementia that develops between the ages of 30 to 60 years. Mutations in three genes have been identified as being responsible for early-onset familial Alzheimer’s disease (eFAD). Possessing a single copy of any of those mutated genes is enough to develop this form of familial dementia.
@@kmsc326 I understand, well It’s safe to say I’m good for now. Thanks!
I didn't know that you can get alzheimers as a child
🙏🏻❤💪🏻
It’s not exactly Alzheimer’s, it’s just an affliction similar to it.
Good god, she is a warrior.
Sorry for your troubles it's terrible
Allah bless their souls❤
If this happened to me:
Mom: *its all from that damn phone*
I remember having a girl with this condition in my school. Primary school.
igrotum is like a breath of fresh air for Alzheimers patients, ushering in positive changes and improved cognitive function.
So beautiful
There was a movie about a boy with ALD-"Lorenzo's Oil". Why can't there be a movie about a girl with this or a similar disease?
Well, Battens disease usually effects both genders at an equal amount, with equal results unfortunately :(
@@yumikumi2 Or Rett's Syndrome? Doesn't that exclusively affect girls? I think Julia Roberts was in or made a movie about it.
Praying
Scarey. How are Abby and Kelly doing?
I never heard of this. 😔. Does pharmeceuticals have anything to do with it?
So even children get this disease.I am speechless.I rest case.
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
Gpd bless the family
Does anybody have an update on her?? Whatever happened, cant find anything on her anywhere
She died
@@christiaanprinsloo8951probably. childhood dementia patients live relatively short lives
@@christiaanprinsloo8951no she didn’t, stop spreading misinformation. I found out her family uploads videos of her on tiktok through her journey, she is now 28.
I've had a loved one with decreased mental state and awareness that didn't eat much & went into catatonia. (Almost like a comatose state, but not fully, you can still hear and move, just not very responsive). They came out of it with est (electric shock therapy), lots of prayers from many people, slowly eating more, & medicine. Drs also found this loved one had heavy metal toxicity, especially mercury. Through careful chelation, got mercury to safe levels. That was definitely related.
Dr Mark Hyman's pegan diet helps SO much, including slowing dementia/Alzheimer's symptoms and partially reversing it.
There is hope and answers!!
SF doesn't have treatment. Your loved one likely got mercury poisoning.
Both r different.
Lesson of the day: never be happy only sad and angry that's the only way to not get a horrific death
That seriously JACKED UP. Kids aren't supposed to get this.kinda thing only older adults..
Doctor said I never heard of it. Wow
they don't know everything
@@oliviersavard8676They just think they do.
The one thing I do not understand why this happening to anyone Alzheimer's adults and children.?
People think old people only have it but they never been into their shoes it doesn't matter how old you are you still going to have problems it's life
I wonder if anyone knows what happened to this family I hope they are doing ok
Poor Abby!
Had she been checked for a bacterial infection, or parasite, oxygen levels and so on???
Praying for you all🕊💖🕊🙏🕊💖🕊
Did they wait to long?
11/30/2022
HELPING AND UNDERSTANDING EACH OTHER WILL
HELP US REMAIN STRONGER,
I GUARANTEE THAT BECAUSE I
BELIEVE IN GOD'S GOOD DEEDS.
AMEN!!
I am going to college for my doctors degree I don’t expect her to live long and get better because Alzheimer’s can start off with bipolar and this is a very sad disease I hope the best for her
It’s not physical Alzheimer’s ♥️ but the disease she has, causes Alzheimer symptoms
lets pray that this illness will have a cure
My Lord,Why?
There is a heaven, and yes you will see each other there again
Dear Mrs. Wallace, I am sorry to about Abby and your health problems. My father had Alhemeir. It is hard to watch beautiful minds go down to a shell of a person. Please hold on to the hope that soon God's Kingdom the one that Jesus, God's son taught his followers to pray for at Matthew 6: 9,10 will come, in that it will turn its attention to the earth and act. That action is the means to break up the works of the devil and give people the opportunity to live on earth forever in good health and paradise like conditions. One of the promises that the Kingdom will fulfill is at Isaiah 33:24 "No one will say I am sick the people dwelling in the land will be pardon for their error". No longer will anyone suffer the effects of Adam's inherited sin. What will that mean for your family? You will be cancer free and your daughter can go on with her life. She will not have the Alhemeir any more. No more sickness no more death. Rev. 21:4 Jehovah God showed us love first and sent his son to give us the opportunity to live forever as he originally purpose for Adam and Evie. Ps. 37:29,34Gensis 1:28; John 3:16.. God doesn't lie and doesnt die so he is the one that can do it. Jesus reinstated that promise at John 5:28,29. I am waiting for the resurrection that will occur on the earth for most of mankind. Anchor your hope and faith on that. Want to know more, go to jw.org. We dont come to you unless you fill out the request for a visit. Browse all you want its free. Pray about it, learn what to do, gain a bigger support system. Praying that your strength abounds in order to continue with you all care. Agape'
Her last name is actually spelled Wallis.
Iv no doubt we all go to heaven and yes people do come back and tell us what its like 💕💕💕
Who cursed that family? They do not deserve this.
What?? They waited until she was 17 or 18 to take her to a neurologist???
Well I’m sure they just thought the Autism had a lot to do with it at the time.
She was diagnosed with mild autism at 5..so their efforts went to therapies for autism..San Filippo Síndrome (Or any demencia in kids is a very rare condition )..hope they one they they find a cure...
If you have this diagnosis, please look into using methylene blue. I don’t know how it affects children but We reversed my mom’s Alzheimer’s symptoms using Methylene Blue! This brings hope! There is a show on it posted at The Natural Health Researcher RUclips channel.
So very sad.
What is Alzheimer?
A version of dementia that takes a shorter time to kill you.
@@BeachioSandschannel .
*W o w*
*Well ok thanks for letting me know 👍🏻*
@@PI-TA-YA_DR-AG-ON_CO-OK-IE..12 You’re welcome!
Whats wrong with these comments? 😒
Yeah they all think that have the cure for Alzheimer’s 😒
This comment section is full of conspiracy idiots that think this is vaccines
this harmless great soul and this horrible thing happens its the saddest thing I've seen sorry I cannot believe in a god no way I'm sorry for this family and more than anything I wish I could cure it for all of you im so sorry
If there is a god he isn't a loving one, no one who loves their creations would allow something like this
Batten’s?
Noticing encouraging changes in cognitive abilities.
Childhood dementia is like all other dementias it just gets worse and nobody has ever been cured of it.
And she’s cute, im 18 that’s js sad man
I feel like this is happening to me 😭😭😭😭
They have found fewer cases of Alzheimer's in Native American populations. Maybe gene therapy is possible for these kids.
Oh my goodness what a horrible disease for children
How is the family doing now? I pray that GOD will heal them the whole family of all their illnesses in JESUS name we pray. AMEN
Alzheimer’s cannot be healed.