I wish the word “fatigue” was not used to describe ME! Exhaustion like you can’t move, if out in a store, (which rarely happens anymore) but in the beginning, before I knew what was going on, I was in the grocery store with my husband, almost ready to go check out, and I literally couldn’t go on, I felt like I needed to lay down, looking for a bench or place I could sit down, couldn’t of course find one, and felt like I couldn’t go anymore, even to go check out, feeling like I was going to have to lay down. right on the floor! My husband had to take me out to the car, in fact we apologized and had to leave. Then I couldn’t even walk from our bedroom to our family room, ( less than 15 feet)! This was when I went to the doctor. One of the many doctors, over the past 15 years! Thank you for having a channel that deals with this! I’ve learned to pace myself, but this unfortunately has changed my life in such an extreme way, I’ve not been able to work, drive, go places, ( except doctor appointments) which I’ve had to reschedule many times. I need to prepare the day before, and I am only able to make appointments and going out, in the afternoon, preferably 3:00 or after, and occasionally been able to make 2-2:30! I could go on, but you know the rest…. ❤
Hey there! Hope you are doing ok. Thank you so much for sharing this. My doctor started me on 1 250 magnesium daily (we are monitoring my magnesium regularly), and it has helped my sleep and leg pain SO MUCH! I also do vitamin d3, vitamin c and weekly b12 infections.
Magnesium can also help with muscle cramps and can reduce muscle pains after exercise. I get insane chocolate cravings when my magnesium levels get low.
Magnesium has been so helpful in helping me settle my legs at night as I get really bad pain in the knees/legs of an evening and I ended up with restless legs. Now I can actually get to sleep.
Thank you for sharing. I've been taking some of the supplements you mentioned, and there are a few that i will add to my regimen. I have also gotten relief from taking arcalion, kangen water, and doing prolozone therapy. I'm continually trying different things, anything really, because a dying man will clutch at a straw 🙃
Haven’t taken vitamins, been eating some sugar etc and bang I get so much quicker to my tipping points. Thanks for sharing! Your videos are very informative. I normally take D, C, B12, magnesium and zinc. But haven’t got help with this from my doctor. The dietist I was assigned just said “you eat healthy and regularly” and that’s all the feedback I got….
I take D-Ribose about one spoonful daily, helps with muscle fatigue; I have it in tea over two cups. I was taking B12 but my doctor informed me I had three times the recommended amount so to stop taking for now anyway because he didn't know if such a high amount maybe has a negative effect.
Do lots of research but just cant find how to oreder it on a daily basis cause the goes b12 then b vomplez, q10, calcium, glutathione, magnesium, cink and vitamin c. So there has to be an order. Also, most of them should go in liposomal form
Hello! Thank you for your videos. Ive been fighting cfs for probably 20 years now. In couple of your videos you mentioned low dose, slow release medication that has helped you. I tried my best finding where you mentioned it, but im unsuccessful. Could you please let me know what the medication might be? Im desperately trying anything that might work..
@@fight4me747 Thank you do much! I was waiting at the doctor's office when I saw your reply. You posted 3 hours before I read it! Such timing! While unfortunately, he gave me 50 MG, I will try splitting them into lower doses for the time being. I really hope it works. By the way, thank you so much for your videos! I have yet to find someone that talks about cfs in such depth and detail. Hearing mirrored experiences somehow helps and gives hope.
Hello I also suffer from cfs I would like to know if there was anything that you could recommend for sleep prescription or over the counter I would greatly appreciate your advice thank you and thank you so much for everything you do for the cfs community
I take over 15 supplements, a lot of what you take. In Boston am on my own.. Main complication...also substantial hypogammaglobulinemia for which get zero treatment 10 years. Don't know how to juggle this load
Hello. Have you ever done a gut cleansing diet? What type of gut issues exactly you have? I've had me for 13 years. I am pretty sure that my gut is the cause. Thought I came to this conclusion two years before and by accident I might say. I have very strong belief that I am going to heal. I don't know if you've ever done a comprehensive stool analysis, have you? And if so with what results?
i take almost identical stuff with you. Recently im trying higher dose B1 and B6... i also rotate just like you.. i take B1 for a week then may be 1 week break then i do B6... CoQ-10 is pretty good actually gave me a good boost. I wonder what dose are you taking daily for CoQ-10 if you can reply to me with that i will be happy. Its a messy situation best i do is listen to my body. I take B12 more often than any others probably and for D3 i use 300,000 units ampules orally or sometimes as injection... Thanks for sharing this now i know im on right track...
@@popokatapetl6995 I tried glutathion and then heard NAC is better replacement but this was when i initially got hit by shedding from the obvious which we can't name here. That was initially what triggered my condition. This is why they are trying to rebrand MECFS as long covid now
I wish the word “fatigue” was not used to describe ME! Exhaustion like you can’t move, if out in a store, (which rarely happens anymore) but in the beginning, before I knew what was going on, I was in the grocery store with my husband, almost ready to go check out, and I literally couldn’t go on, I felt like I needed to lay down, looking for a bench or place I could sit down, couldn’t of course find one, and felt like I couldn’t go anymore, even to go check out, feeling like I was going to have to lay down. right on the floor! My husband had to take me out to the car, in fact we apologized and had to leave.
Then I couldn’t even walk from our bedroom to our family room, ( less than 15 feet)! This was when I went to the doctor.
One of the many doctors, over the past 15 years! Thank you for having a channel that deals with this! I’ve learned to pace myself, but this unfortunately has changed my life in such an extreme way, I’ve not been able to work, drive, go places, ( except doctor appointments) which I’ve had to reschedule many times.
I need to prepare the day before, and I am only able to make appointments and going out, in the afternoon, preferably 3:00 or after, and occasionally been able to make 2-2:30!
I could go on, but you know the rest…. ❤
Hey there! Hope you are doing ok. Thank you so much for sharing this. My doctor started me on 1 250 magnesium daily (we are monitoring my magnesium regularly), and it has helped my sleep and leg pain SO MUCH! I also do vitamin d3, vitamin c and weekly b12 infections.
Magnesium can also help with muscle cramps and can reduce muscle pains after exercise. I get insane chocolate cravings when my magnesium levels get low.
InJEKTion 😅- nicht InFEktion oder …
Magnesium has been so helpful in helping me settle my legs at night as I get really bad pain in the knees/legs of an evening and I ended up with restless legs. Now I can actually get to sleep.
While it doesn't help with fatigue it sure does relieve brain fog:, a mushroom supplement with Reishi & Lion's Mane.
Always good to compare. Thanks for sharing!
Thank you for sharing. I've been taking some of the supplements you mentioned, and there are a few that i will add to my regimen.
I have also gotten relief from taking arcalion, kangen water, and doing prolozone therapy. I'm continually trying different things, anything really, because a dying man will clutch at a straw 🙃
Itchyness is the worst. I use Benadryl at night and helps me sleep too.
Great advice!
Haven’t taken vitamins, been eating some sugar etc and bang I get so much quicker to my tipping points. Thanks for sharing! Your videos are very informative. I normally take D, C, B12, magnesium and zinc. But haven’t got help with this from my doctor. The dietist I was assigned just said “you eat healthy and regularly” and that’s all the feedback I got….
Thanks 4 sharing❤
I take D-Ribose about one spoonful daily, helps with muscle fatigue; I have it in tea over two cups. I was taking B12 but my doctor informed me I had three times the recommended amount so to stop taking for now anyway because he didn't know if such a high amount maybe has a negative effect.
B12 no problem.just b6
There is no maximum amount for B12 specifically. There is a recommended adult dosage, but you cannot overdose on B12
What's weird is the GP didn't know I was taking B12 until bloods came back 😁
How do you arrange them daily all at once or you have a plan cause some vitamins and minerals do not go together
Amazing! I take pretty much the same stuff. I also take Bio-Curcumin Turmeric. Which helps with fibromyalgia type symptoms.
So how does one no if it's still me or fybromyalgia they part of one another
@@Truerealism747 Exactly!
Do lots of research but just cant find how to oreder it on a daily basis cause the goes b12 then b vomplez, q10, calcium, glutathione, magnesium, cink and vitamin c. So there has to be an order. Also, most of them should go in liposomal form
Hello! Thank you for your videos. Ive been fighting cfs for probably 20 years now. In couple of your videos you mentioned low dose, slow release medication that has helped you. I tried my best finding where you mentioned it, but im unsuccessful. Could you please let me know what the medication might be? Im desperately trying anything that might work..
LDN! Low dose Naltrexone
@@fight4me747 Thank you do much! I was waiting at the doctor's office when I saw your reply. You posted 3 hours before I read it! Such timing! While unfortunately, he gave me 50 MG, I will try splitting them into lower doses for the time being. I really hope it works.
By the way, thank you so much for your videos! I have yet to find someone that talks about cfs in such depth and detail. Hearing mirrored experiences somehow helps and gives hope.
Hello I also suffer from cfs I would like to know if there was anything that you could recommend for sleep prescription or over the counter I would greatly appreciate your advice thank you and thank you so much for everything you do for the cfs community
LDN helped with some symptoms and better sleep. Mirtazipine has helped many but it is hard to get off of. Slippery slope. Def talk to your Doc
@pamelawalton2417
Trazodone
Talk to your dr about it and research it please but i find serquel is a good one that can easily knock you to sleep even at a small dose
I take over 15 supplements, a lot of what you take. In Boston am on my own..
Main complication...also substantial hypogammaglobulinemia for which get zero treatment 10 years. Don't know how to juggle this load
What are the symptoms
3:55 slippery elm might help too. Can you please do a video on how you rotate?
My grandfather had this to n the 1920 s for weeekness may try it
How can i get contact with you? I have some questions and ideas to share ,thanks 😊
Hello. Have you ever done a gut cleansing diet? What type of gut issues exactly you have? I've had me for 13 years. I am pretty sure that my gut is the cause. Thought I came to this conclusion two years before and by accident I might say. I have very strong belief that I am going to heal. I don't know if you've ever done a comprehensive stool analysis, have you? And if so with what results?
I have IBS. I have done comprehensive stool samples a couple times.
What did you find
How are you now buddy?
As you are taking a multi B vitamin do you get your B6 levels checked?
Absolutely right! Be careful with that B50, the B6 in that is extremely high and can cause B6 toxicity.
i take almost identical stuff with you. Recently im trying higher dose B1 and B6... i also rotate just like you.. i take B1 for a week then may be 1 week break then i do B6... CoQ-10 is pretty good actually gave me a good boost. I wonder what dose are you taking daily for CoQ-10 if you can reply to me with that i will be happy.
Its a messy situation best i do is listen to my body. I take B12 more often than any others probably and for D3 i use 300,000 units ampules orally or sometimes as injection... Thanks for sharing this now i know im on right track...
I found somewhere q10 is 200 mg per day ideally dose some take glutathione as well with NADH and do not forget probiotics
@@popokatapetl6995 I tried glutathion and then heard NAC is better replacement but this was when i initially got hit by shedding from the obvious which we can't name here. That was initially what triggered my condition. This is why they are trying to rebrand MECFS as long covid now
Has anyone tried monolaurin? I am taking it and I love it! Warmly recommended
What does it do for you? How does it help?
And no answer after 5 month