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I am extremely sensitive to magnessium and Ashawanda. I had extreme jaw tightness, general muscle tightness, butterflies in my stomach (that was awful); shakiness, severe cold, excessive urination, so bad that I felt totally drained and exhausted after urinating, dizziness, lightheadeness, vertigo, light and sound sensitivity, POTS, off balance when walking, tunnel vission, braing fog, forgetfulness, general weakness, dry skin, extteme sensitivity to heat...I still have only a few of all these symptoms, but in a very mild form. But there were at least 15 years of my life that were a nightmare

Feeling very heavy, weak, feeling like your brain is short-circuiting when trying to think.

Wow no solutions... There are programs out there that can help without drugs. I am one who has recovered. Don't except this disease... it can be healed

Do you have TikTok? I need to share this❤

Thank you for this video. When it’s time I will share this with my family and support group who don’t understand and think I’m lazy and am just making everything about myself. May I point out: that it may pull on the heartstrings when it’s young ones who have CFS, there are us older ones who have lost high achieving educations and careers because we just can’t anymore. We are so lost and don’t have any identity anymore. That loss makes us feel absolutely worthless and kills any self-esteem we used to have. We take non-criticism and turn it into the worst stab in the heart from the people we love most. It’s unbearable. But now that I’ve found this gem of a video. I will find the right time to share it with them. Bless you richly x

The PA I saw at the pain clinic yesterday told me that she knows what I mean when I tried to tell her what my life is like! I told her she can't even imagine what my life is like, if you don't have ME/CFS you have no idea what you're talking about. I've had this since I had a really bad "flu" my freshman in high school, I ran a low grade fever for 5 years, until my first remission. I've been in and out of remission a couple of more times, once for about 20 years. That doesn't mean that it's gone! It means that I don't eat too much sugar, or get too tired, or emotionally upset. And if I do those things I can go to bed for 6 weeks and get back into remission. But then in "06 my cardiologist changed my heart med to Metoprolol and I took it for 4 years getting sicker all the time, evidently it was known by 1986 that people with Asthma SHOULD NOT take Metoprolol!!! It has side effects that may not kick in for years and evidently my cardio missed that lesson. It caused me to have Fibromyalgia in addition to ME/CFS. There is a reason people with Fibro have 10 times the suicide rate as the average population.

I hope this helps someone. I’ve suffered from CFS for as far as I can remember & it’s gotten worse over the years. I’ve recently discovered the root cause was genetic Classical EDS. That means the collagen in all my body is not normal thus the constant pain esp with age since collagen degrades with age. The best thing has been for me is taking Vitamin C & doing Keto with zero sugar (use substitutes like Splenda). This makes a huge difference for me & it makes sense since carbs break down collagen. It’s a struggle doing keto since carbs are in most foods. I try to always keep English Cucumbers on hand to avoid eating any carb which bring on the pain. If you’ve tried everything & nothing is working give this a try & please do not take narcotics or addictive drugs like Wellbutrin or Amphetamine, they will cause a whole new issue by themself. Free Palestine! 🇵🇸

Nice try but doesn't hit the worst effects. It doesn't take half marathon to disable me. A simple shower is enough. Think about doing laundry. Its been 10 y, and it still takes me 4 days.

Thank you - I have all of the above plus atherosclerosis, osteoporosis, vitiligo, lichen sclerosus, Hashimoto's, tinnitus. First episodes 20+ years ago and I discovered a 'window' of partial recovery which helped quite a lot up until Covid 19 struck and since then in 2021 it re-appeared with avengeance and additional symptoms. I have watched a lot of recovery stories on RUclips and most seem to be about brain re-training and not giving up hope plus diet, movement (exercise) and as Brian Johnson says becoming a 'professional' sleeper. Good luck to everyone

Thankyou for your video. I am in the UK and have been wondering what the hell was wrong with me. So many overlapping symptoms as well as losing my life and interests. My G.P. practice is now staffed by a shifting staff, I get the feeling nobody has picked up on this condition and instead blame it on depression, arthritis pain etc - it was only after a recent hospital admission that a doctor took it (from my comments) that I had been diagnosed with Chronic Fatigue Syndrome. The more I hear sufferers on here share their experiences, I realise everything coming together, there are others like me. No I'm not lazy, not disinterested - I JUST CAN'T......

Please search Morley Robbins Copper. I came across his videos recently and now have dramatically altered how I approach my health and what I do and do not supplement. Besides what he discusses I came across his copper regulate the GSK3b pathway. Very important to avoid inflammatory disease and brain disorders. Also I came across his micro rising Lithium footage also dampens down over expression of the same pathway to prevent disease. Please take the times seriously-only Jesus Christ can save us out of this World of sickness and deception! Biblical end times are now here. Regards Patrick.

It’s weird when you try to “will” yourself to do something and your body simply won’t,

Headaches, jaw pain, dizziness, disorientation, clumsiness like walking to things etc. spacial awareness issues like grabbing for a handkerchief and missing it, muscle twitching, and one of the big ones for me is weakness that’s almost painful like my blood sugar has dropped way low. These on top of all the symptoms already mentioned. I’m sending love to everyone who’s also dealing with this ❤️ I have found Co qutaine and ashwaganda taken with revive active have helped lessen my symptoms 🙏🏼❤️

When I explained to someone once that I had M.E they suggested maybe I wasn’t getting enough sun 😂😂😂 if you don’t laugh you’ll cry 😅😂

Olfactory hallucinations. Tinnitus. Not able to regulate body temperature. I keep a room thermometer handy so I can tell if it's the room, or just my body going nuts again. Sore throat. Often an early sign that I need to stop & rest.

I had a small stroke a couple of years ago. I thought it was just a flare up of my usual symptoms. I didn't realize it was a stroke until the next day.

Anyone have muscle weakness and drop foot and falling because muscles stiffen suddenly?

I also have POTS and my heart rate goes to 125 just walking skin the house🤪

What does M E stand for? Missing energy?

There was another guy who recovered from cfs who thinks it’s a hypersensitive nervous system issue I’m not sure if that’s accurate but there’s a guy on RUclips. He’s got a channel and yes, these people recover from cfs he thinks that just putting it all under hypersensitive nervous system issue however I don’t have CFS and I am no expert. I’m just going by what he saying. This sounds awful. I think having Vocal cord dysfunction is uncomfortable however this sounds more uncomfortable and debilitating

Did you mention food intolerance? Sugar is a killer for me. Social interaction can also cause a crash, I have about 2 hours of energy a week for it and that includes phone calls.

Bonus symptom’s! Woo hoo I won

On top of all these is that I cannot get comfortable, at all. I truly feel my life is just not worth living anymore,I fight that every day. Thankfully I have a good sense of humour.😊

The worst one for me is pure exhaustion that I can't push to have a bowel movement. That I've been hospitalized numerous times with being so compacted that it was pressure on my diaphragm. And needed hospital assistance. Or I'm exhausted after having bowel movement. I'm now am fitted with a catheter urine bag. As after nearly 30 years I just stopped urinating. I have all and even more symptoms.

When the doctors won't diagnose you then nobody will believe you anyway, not even this channel and not even approaching other people with a diagnosis who don't believe you either because of no diagnosis

Does the store light effects you.?

What helps me is resting in bed while giving myself reiki healing. I took a class about ten years ago, and it has been a one of the best investments I ever made (not really expensive either), and a life saver because it mitigates the negative effects of insomnia. I give myself reiki at least an hour a day, using reiki music to guide me through 12 hand positions on the body. It's very relaxing, I get into a slower brain wave pattern and I will often doze off when doing it, but not for more than 5-15 minutes usually.

Does LDN help with energy?? I have had MECFS for 7 years now. Using Dr. Myhill's protocol has gotten me to about 80 % well, but I still have low energy a few days a week. I have a new doctor, and asked her about the possibility of getting on LDN. She thought it would be a good idea!! there is a compounding pharmacy just 2 miles away from where I live. They said they could produce the LDN in all forms: pill, liquid and powder. I am looking forward to trying it out for my energy. Thank you so very much, John. You are a wealth of knowledge!! May God Bless you and your family!! Miss Monique😊

Still trying to adjust to this diagnosis, thank you for this.

My crash is put th tv on a boring channel and close my eyes while listening but then I am out to dreamsville

Thank you my family has a hard time understanding this love my tablet puts me in a good mood watching the herd elephants. I do not like the phone, and I go no where

Everyone saying it’s your lifestyle. Just do x y z and you’ll be fine. Refusing to respect your needs. Denying and invalidating your reality. And heaven help you if they see you on a ‘good’ day.

I'm not type A. Mine started 42 yrs ago after hemorrhaging after childbirth.

There's a fantastic article from ME Research UK: a whopping 40% of people are misdiagnosed as having ME when they actually have something else - those are the silly people shouting they've recovered - they were probably misdiagnosed in the first place. In this day and age whereby Orthostatic Intolerance is provable and a major part of ME, why oh why are they not doing this to stop everyone jumping in the ME bandwagon.

I don’t mean to invalidate anyone who may have a legitimate condition but I am probably one of those who „don’t understand” those with “conditions” such as ME and CFS. They are just names for anything that doesn’t fit conventional diagnoses. They only exist because people are so fixated on diagnoses. And people with ME and CFS are always so eager to find a diagnosis to then tell everyone about it as if they were talking about something special or unique. I spend hours every day reading medical reports of people with a multitude of symptoms that ended up with these diagnoses. They all have this trait in common that they need others to know and to understand what they are going through. Many people get tired of the whining and eventually seek distance, not because they don’t understand, but because most are going through their fair share of issues while still trying to work and they don’t go around complaining and wanting to be understood. I’m saying this but I am also one of those who complain too much. If I went to the “right” doctors, it wouldn’t take them long to also label me with ME and CFS, fibromyalgia, etc. I have lots of the same symptoms. But I don’t believe in such diagnoses. Years ago there was a term for people like us: hypochondriacs. These days that term isn’t fashionable so they created other terms. Don’t get me wrong: the symptoms can be very real. But, like many doctors, I have to agree that there is often a mental health component behind it all. It could be a mental illness or just some conditioning that didn’t serve you like is my case: as a child I only got attention from my parents when I was ill. So I was conditioned to see poor health as a sign that I am special. I hated being sick but there was something to be gained from it. Of course I didn’t consciously realize this and never would have reached this conclusion if it weren’t for a friend who one day gathered the courage to point it out to me. It hurt and I was in denial but she is a friend who I trust very much so I gave it some thought and started to see a pattern. She was right. These days I try not to talk about my health as if it was something special about me but it takes time and effort to unlearn this pattern. In my field of work I see people with all kinds of health problems. I have learned that everyone has their struggles and in most cases they aren’t easy. It is foolish to think we are the only ones who have it hard. We aren’t! Oftentimes the silent ones have it harder but you wouldn’t know because they don’t feel the need to talk about it. Back to the symptoms, yes they are there. But the more you believe they are severe and permanent, the more they will become severe. The issue is that you hold on to a diagnosis and fail to continue investigating what was the main cause of your symptoms. Often it starts with a sleep routine or a diet that are not ideal, or it’s stress at work or in relationships that eventually leads to physical symptoms. It could be anything that snowballs into something bigger. Then you feel tired and you rest, and then you rest some more. You get deconditioned so of course you start to feel worse with more symptoms adding to the mix. You start to seek answers then but nobody can see something organic that is obviously wrong. Then if you’re “lucky” to bump into the “right” doctor, you get diagnosed with things like ME, fibromyalgia and/or CFS. Then you feel seen and heard. But guess what: the problems are still there. These experts in these “conditions” want to maintain their status as experts in this so they have no interest in helping you. But they will do everything to make you believe they are the only ones who can help. They will go as far as telling you not to exercise, not to walk too much, to rest a lot and to stop working. You slowly lose your autonomy, your career and any hope for going back to the life you knew before. And you become a burden on the health care system, social security system and society in general. The answer to your problems will depend on what led to where you are but many times it starts with slowly going back to a healthy lifestyle with good sleep, balanced meals, regular exercise, meaningful hobbies and work. But now that you got this far, the climb back up is going to be hard. It’s going to get worse before it gets better. So you stop because you think you’re making things worse. Big mistake. You should continue pushing a bit more one day at a time, until weeks or months later you start to feel a bit better and then you realize this was the way out. I have no doubt patience and consistency will yield some results, and for many of you may restore your health completely. Don’t listen to health gurus who want to see you crippled so they can label themselves as experts. And be really honest with yourselves and recognize that you need to take accountability for how you show up for yourselves and in the world. Complaining has never lessened any symptoms and it burdens others. I know this from experience. Also, always assume others are struggling too and you don’t know to what degree so stop taking it personally when they choose to only deal with their problems. If you don’t take responsibility for what is in your hands, I guarantee you you will be as ill as you believe you are. The mind is a powerful thing and if you don’t challenge it, you will be convinced you have a disability for life and no one will be able to convince you otherwise. So yes, in the end it is in your mind. As Henry Ford said: “whether you think you can, or you think you can’t - you’re right”. You can choose to defend your views or you can read this with an open mind and really ask yourself if there is a chance you could be the one blocking your own progress. Your life could be better if you let it.

Woww thankyou

I've been dealing with these issues for 40+ years . What I want to know of the several drs I've seen why has not one of them mentioned ME?

A lot of these probables are linked to mechanical problems in the neck.

I feel so bad for you guys that suffer this, I cant understand, but I believe you!!!!

I'd like to add a few other symptoms. Shakiness and a sort of inner trembling; extreme pain on being touched; being unable to put a sentence together.