I follow a lot of ME/CFS channels on RUclips, out of all of them this is the best one to connect with others if you need information or even just want to chat. People on this channel are very open and talkative, which has been a great help for me. I also really appreciate the polls you do. They open up a space to ask certain questions and are very helpful. If I ever need to ask anyone their opinion on something CFS related this is the channel I come to. Congratulations on the channel growth!🎉
Congrats Johnny! For all of us who feel we are unable to help others, you prove us wrong! Keep on teaching and guiding! You are an inspiration! Love to your Mom!
Found your Channel a few weeks ago, the best one out there, around 27 to 28 years with it now, if only people knew how ill you can feel, the foggy heads are the worse for me , going through a bad flare up at the moment, take care and thank you, Alan in the U.K
Without doubt your explanations are concise and without the drama or unrealistic advice that others give. Massive thank you because I know every time you make a video you will have payback.
Thank YOU, for all your helpful videos. Thanks to you I heard about LDN, did some research into it and decided to try it. Today I feel so much better - I'm almost back to the baseline I had before I got ill. I am so thankful for everyday that I have energy and every morning that I awake pain free. Also, thank you for adapting your videos to people with ME. The calm way you speak makes it way easier to people like us to listen to you. I've seen other youtubers that talk about ME that were just too high energy for me back when I felt really bad.
@@fight4me747 Hey, It just hit me that haven't seen you upload any videos in a while and when I visited your channel this was the last one you made. If you have decided to take a break, that's just fine and I totally get it. I just hope you are okay - I know how ME can be. Wherever you're at, I hope you're kind to yourself and that you're enjoying life.
thank you. I really appreciate your style and how cool you are. I mean that... you have a laid back vibe (and I dont think its from being in slow motion from ME/CFS ) hahaha funny not funny. congratulations on 5K!
Thank you from a mom of a 21 yr. Sufferer of ME, my daughter has been unwell since age 11, she's 30. Everyday is a struggle, hope you're doing as well as possible
Yes I have a red light lamp. My CFS is less severe in the summer and a lot of that is because of the sunlight. I was hoping the red light would do the same thing as the sun for me in the winter. It didn’t really work. But I did find that it eased my abdominal muscle spasms and aches/pains in my legs, it may have even been a factor in getting rid of my stomachaches. Many people use red light therapy for Lyme disease and bacterial issues. I have bacteria issues, but it’s hard to know if the red light helped on that front.
I think any channel implying that "thinking different" will cure M.E. is absurd. I do think positive thought is extremely important, but its borderline malpractice to tell people it cures illness.
@@fight4me747 well, usually people try everything possible except work with mind, because it is hard. So you try something calming but it doesnt work. Why it should when you dont believe it. When you are scared. Where is evidence it works? Nowhere so fokoff. But honestly, only success stories with cured brainfog are usually with lowering anxiety thru work with nervous system. You create videos for years about B-50 supplement and zero results. It is hard to trust you more then them.
@@fight4me747 i am not expert but in my social bubble is positive thinking debunked for at least 15years. Why? Because our mind know it is fake and we are scared further :D Modern approach is to scan body from head to toe and if everything is cleared, then logical step is check your nervous system, your thinking patterns and overall what your mind do entire day for years. Point is to gradually explore if all your reactions, fears and symptoms are really neccessary or you have turned on tons of oversensitive protective mechanisms. honestly. When you struggle for 5years+, all you medical tests where negative, you dont have broken spine in neck, you dont inject heroin and dont eat moldy white bread, then there is not any reason why your brain should have dementia symptoms. Oh except one. Amygdala big like apple, because you are constantly under pressure by your symptoms but strongly refuse you need mental support :)
I follow a lot of ME/CFS channels on RUclips, out of all of them this is the best one to connect with others if you need information or even just want to chat. People on this channel are very open and talkative, which has been a great help for me. I also really appreciate the polls you do. They open up a space to ask certain questions and are very helpful. If I ever need to ask anyone their opinion on something CFS related this is the channel I come to. Congratulations on the channel growth!🎉
Congrats Johnny! For all of us who feel we are unable to help others, you prove us wrong! Keep on teaching and guiding! You are an inspiration! Love to your Mom!
This means a lot coming from one of my favorites! Thanks! ❤️
this support is huge for us! thank you for all you are doing . hello to everyone with ME /cfs. may they find treatments to help us. peace
Peace to you, Rosie!🌻
THANK YOU! You've been a huge help for me!
Found your Channel a few weeks ago, the best one out there, around 27 to 28 years with it now, if only people knew how ill you can feel, the foggy heads are the worse for me , going through a bad flare up at the moment, take care and thank you, Alan in the U.K
I love watching your videos, you have a lovely modulated, easy to listen to voice. I also love the way you keep it real.
Thank you. 💙
Without doubt your explanations are concise and without the drama or unrealistic advice that others give. Massive thank you because I know every time you make a video you will have payback.
Thank you for all your advices!! Youve taught me quite a bit about me/cfs
Congratulations on hitting 5k , you are doing an excellent job , we so need it , hugs from Kat
Always grateful and thankful for your videos!
Thank YOU, for all your helpful videos. Thanks to you I heard about LDN, did some research into it and decided to try it. Today I feel so much better - I'm almost back to the baseline I had before I got ill. I am so thankful for everyday that I have energy and every morning that I awake pain free.
Also, thank you for adapting your videos to people with ME. The calm way you speak makes it way easier to people like us to listen to you. I've seen other youtubers that talk about ME that were just too high energy for me back when I felt really bad.
LOVE to hear this! I hope you keep on improving!
@@fight4me747 Hey, It just hit me that haven't seen you upload any videos in a while and when I visited your channel this was the last one you made. If you have decided to take a break, that's just fine and I totally get it. I just hope you are okay - I know how ME can be. Wherever you're at, I hope you're kind to yourself and that you're enjoying life.
Congratulations! You have great eyebrows.
🤔😅
Thank you so much 🎉
thank you. I really appreciate your style and how cool you are. I mean that... you have a laid back vibe (and I dont think its from being in slow motion from ME/CFS ) hahaha funny not funny. congratulations on 5K!
Thanks for the vids!
Congratulations on 5K subs! 🎉🎊🎉 I appreciate your efforts on YT to help out our community.
👍👍👍
Hope you had a good Thanksgiving!
Thank you! I did! I hope you did as well
Thank you from a mom of a 21 yr. Sufferer of ME, my daughter has been unwell since age 11, she's 30. Everyday is a struggle, hope you're doing as well as possible
27 years here do your family suffer with hypomobility I've found out I have ADHD autism heds any trigger then sets this off
I think a lot of “long covids” are searching for answers ❤ on another note has anyone tried red light therapy?
Yes I have a red light lamp. My CFS is less severe in the summer and a lot of that is because of the sunlight. I was hoping the red light would do the same thing as the sun for me in the winter. It didn’t really work. But I did find that it eased my abdominal muscle spasms and aches/pains in my legs, it may have even been a factor in getting rid of my stomachaches. Many people use red light therapy for Lyme disease and bacterial issues. I have bacteria issues, but it’s hard to know if the red light helped on that front.
How are you feeling? I certainly hope you're doing well. Sending love and wellness vibes straight to you. ✨
Thank you! I've been dealing with some gut issue but on the mend. Thanks😀
No videos for 4 month..?? What is goomg on, are you ok and still with us..
hey do you still take ldn? Im currently awaiting approval from my gp to try to get some.
Still on it. Hopefully it works for you!
What do you think about cfs recovery (youtube channel)?
I think any channel implying that "thinking different" will cure M.E. is absurd. I do think positive thought is extremely important, but
its borderline malpractice to tell people it cures illness.
@@fight4me747 Take a look at the videos of him
hey :) today is usual people with ME/CFS fully recovere. No brainfog and so on.
You just live with symptoms without any changes?
Let me guess, they think positive thoughts and all better? There is no clinical evidence to back up your claim.
@@fight4me747 well, usually people try everything possible except work with mind, because it is hard. So you try something calming but it doesnt work. Why it should when you dont believe it. When you are scared. Where is evidence it works? Nowhere so fokoff.
But honestly, only success stories with cured brainfog are usually with lowering anxiety thru work with nervous system.
You create videos for years about B-50 supplement and zero results.
It is hard to trust you more then them.
@@fight4me747 i am not expert but in my social bubble is positive thinking debunked for at least 15years. Why? Because our mind know it is fake and we are scared further :D
Modern approach is to scan body from head to toe and if everything is cleared, then logical step is check your nervous system, your thinking patterns and overall what your mind do entire day for years.
Point is to gradually explore if all your reactions, fears and symptoms are really neccessary or you have turned on tons of oversensitive protective mechanisms.
honestly. When you struggle for 5years+, all you medical tests where negative, you dont have broken spine in neck, you dont inject heroin and dont eat moldy white bread, then there is not any reason why your brain should have dementia symptoms. Oh except one. Amygdala big like apple, because you are constantly under pressure by your symptoms but strongly refuse you need mental support :)
so does it mean you didnt fixed it?
he didn’t I guess
Does is mean I didn't fix what? Do you mean cure? No, Im not cured. And no, it has nothing to do with "believing" or "thinking" different.