Older videos will be spliced/shortened and reposted. I will still make longer videos, but I will try to add a short version as well. Usually around 2-4 minutes. Hope everyone is well. -J
Thanks so much very kind of you😊It'll all be new to me as I've missed most & been trying to see some old ones starting at beginning.Your support is invaluable Johnny❤ to see everyone's comments & know we all get it & understand,great community support.Many thanks😊
Thank you for doing this. I haven’t watched your video “ME/CFS don’t think it’s real? Watch this.” Yet because it’s so long. I mostly spend my time on my phone because I’m in bed all day, but I can’t handle watching videos that have lots of information that are long because it’s too exhausting. I will definitely be watching the shorter versions, it’s a lot less overwhelming.
Thanks that is so kind of you😊Followed you for years👌(severe)so unable to even comment until now,no improvement tho.I hear your videos but cant retain by the end so i watch relpay👍🏻Other times I watch in stages & then go back to where i left off.Its easy to go back to where you left off starting at the red RUclips line.So time stamps not really needed as its just another thing for YOU to do,great suggestion tho😊❤All the best to you & to ALL of us❤😊
Thank you❤ People seem to forget you can watch a long video in segments, I am on day 5 or 6 PEM after over doing the whole month of May, you would think after 40 years I’d learn. I have ADHD and OCD and I am OLD😉 put those together it’s rough. I am very active but and I know I have to pace myself but I “ take it to the limit “ as the song says. I’ve just found your videos shared it already and am very grateful to you🙏🏼👍🏻🥰
I'll manage any length, I'm just thankful you made/make these videos. So many videos just want us to purchase their program for a cure or recovery If you really have ME/CFS you will know there's no cure nor actual recovery from it.
Hey there. I just want to give you my feedback it's just my feedback and obviously people don't agree. I do have very severe ME CFS As you know when you have ME very bad it can affect any system of the body. so I am living with many chronic illnesses right now. I have had this dreaded disease since I was 24 and I'm 66 years old right now and as for me it has not gotten better it's gotten worse. I have such bad polyneuropathy that I want to chop my hands off. I'm getting sores everywhere all kinds of things. The main thing I want to say is I personally do not like shorts at all or short videos. Here's my reason. It was you and your longer videos as you shared your symptoms and let this illness is really about and explain other people and all kinds of things that I was for the first time I was not feeling like I was dying literally dying. You gave me a sense of community even though there was no big community at least I knew other people were going through what I was going through in some fashion. I wish you would not go into short little videos because it doesn't have the impact of knowing the variety and the depth of this illness. So that's just my feedback. Thanks for everything
Thanks for your input. 😀 All of my videos moving forward will still be medium/long form videos. Im just making a short version of those videos for people who cannot watch the long form. So there will be two versions for many videos.
Buddy u don't have to post this. It was a shout out and thanks to you.. ❤ Please "pace" hahaha! Yourself. You are getting ready to, well u know.. it's a lot.😑🙏😘
Older videos will be spliced/shortened and reposted. I will still make longer videos, but I will try to add a short version as well. Usually around 2-4 minutes. Hope everyone is well. -J
Thanks so much very kind of you😊It'll all be new to me as I've missed most & been trying to see some old ones starting at beginning.Your support is invaluable Johnny❤ to see everyone's comments & know we all get it & understand,great community support.Many thanks😊
🥀Thank you🥀
Long videos with time stamps are an idea. Short videos sometimes are just handy.
Thank you for doing this. I haven’t watched your video “ME/CFS don’t think it’s real? Watch this.” Yet because it’s so long. I mostly spend my time on my phone because I’m in bed all day, but I can’t handle watching videos that have lots of information that are long because it’s too exhausting.
I will definitely be watching the shorter versions, it’s a lot less overwhelming.
I did this for people in your exact situation! Cheers
I am very grateful too for your videos and shorter and easy to process infos🙏
You are doing so much for us, THANK YOU🙂
That will be great. I have only been subscribed a year so it will all be new to me.
Thanks that is so kind of you😊Followed you for years👌(severe)so unable to even comment until now,no improvement tho.I hear your videos but cant retain by the end so i watch relpay👍🏻Other times I watch in stages & then go back to where i left off.Its easy to go back to where you left off starting at the red RUclips line.So time stamps not really needed as its just another thing for YOU to do,great suggestion tho😊❤All the best to you & to ALL of us❤😊
Excellent idea!!
I'm only mild/moderate but struggle too. Anything under 10 mins seems much less overwhelming
Great idea! Thank you for all your hard work. We appreciate you!
You are so welcome! Thanks for watching
Thank you❤
People seem to forget you can watch a long video in segments, I am on day 5 or 6 PEM after over doing the whole month of May, you would think after 40 years I’d learn. I have ADHD and OCD and I am OLD😉 put those together it’s rough. I am very active but and I know I have to pace myself but I “ take it to the limit “ as the song says. I’ve just found your videos shared it already and am very grateful to you🙏🏼👍🏻🥰
I like segment videos myself, but many requested to just have short form videos. Hope your PEM gets better soon!
I'll manage any length, I'm just thankful you made/make these videos. So many videos just want us to purchase their program for a cure or recovery If you really have ME/CFS you will know there's no cure nor actual recovery from it.
Yeah those are frustrating. Thanks for watching.
🥀Thank you for all you do🥀
Great idea, really considerate of you ❤
It's a great idea but be sure to give yourself grace doing this project. You don't need extra stress or energy zappers either. 😊
Good advice!
Hey there. I just want to give you my feedback it's just my feedback and obviously people don't agree. I do have very severe ME CFS As you know when you have ME very bad it can affect any system of the body. so I am living with many chronic illnesses right now. I have had this dreaded disease since I was 24 and I'm 66 years old right now and as for me it has not gotten better it's gotten worse. I have such bad polyneuropathy that I want to chop my hands off. I'm getting sores everywhere all kinds of things. The main thing I want to say is I personally do not like shorts at all or short videos. Here's my reason. It was you and your longer videos as you shared your symptoms and let this illness is really about and explain other people and all kinds of things that I was for the first time I was not feeling like I was dying literally dying. You gave me a sense of community even though there was no big community at least I knew other people were going through what I was going through in some fashion. I wish you would not go into short little videos because it doesn't have the impact of knowing the variety and the depth of this illness. So that's just my feedback. Thanks for everything
Thanks for your input. 😀 All of my videos moving forward will still be medium/long form videos. Im just making a short version of those videos for people who cannot watch the long form. So there will be two versions for many videos.
@@fight4me747 thanks for your reply. That's good news!!
How have you been feeling? Do you suffer from Depression etc.?
I appreciate this. Thank you. ❤
Thank you!
Very thoughtful, good idea :)
I’m not a fan of shorts, but I do like timestamps so I can watch a section and come back to it.
Thanks for your input. I will not be doing any shorts, I will be just "shortening" long format videos that I posted in the past.
Good idea 👍
Great idea 💡 thanks
Thank you 😊
👍👍👍
Sounds good😀
Buddy u don't have to post this. It was a shout out and thanks to you.. ❤ Please "pace" hahaha! Yourself. You are getting ready to, well u know.. it's a lot.😑🙏😘
Could you point to info on the saliva test?