Sorry to hear you've been unwell with another condition. I know all to well how it goes. I've got 3 other chronic illnesses ontop of M.e. Well done for working on getting to your base line again hope it doesn't take you to much longer. Take care and wish you a steady improvement in your health. I'd say speedy recovery but we know there's no quick way of getting better. The joys of chronic illness Hay. Take care of yourself and don't beat yourself up for being unwell as we know that it can longer if we let our emotions get in the way. Best wishes. Allaina
I’m rooting and praying for you! Take your time, no pressure on making content, most of us know what it’s like dealing with gut issues and how hard it can be. Hang in there.👍😊
Good to see you again! Continued prayers for recovery! Definitely put your health first! Look forward to future videos. For now, I rewatch past videos often.
Hey bud, thanks for thevideos. I just found you while i seek out information on my lifelong symptoms in-between dr. Visits. Hope you heal up quickly. Rest and care for yourself bud. Youll get there! Many blessings!
Oh Johnny I'm so sorry to hear this😢...you won't know of me as cant normally leave msgs.Been following u 4 long time tho😊love you Channel.100% understand how diff. it is.M.E Horrendous to live with & additional probs make things so complex💔💔be in my thoughts🍀 hope u get to your "normal" ME asap which is life destroying in itself.really feeling for you,long time suffer so I DO understand.thanks for your update😢💔🍀🍀😊
Ur a sight for sore eyes😵💫 literally my friend good to see u back again even for just a short update on ur own battle with this illness rest up more as were all hoping to hear/see u again im sure...take care👍
I hope you're doing well and wish you a fast recovery! :) If you have any spare time, would you like to make a video about a few topics that are currently being discussed in the ME/CFS/Long Covid community? These are: apheresis, stem cells, BC007, oxygen therapy, etc. Thanks! :)
ANYONE WHO WANTS TO Reply TO THIS QUESTION, I'D REALLY APPRECIATE IT. I've had ME/CFS FOR 30 years. About 12 years ago I began to have every System in my body get affected. Severe Degenerative Disc Disease, Poly Neuropathy, it got in my mouth it was insane. Finally it took a 3 and a half surgery to get all the roots and damaged gums out. I have such extreme pain I could no longer take care of things. I am so Depressed for 2 weeks recently I was calling the S hotline 2 to 3 times a day. I also have Complex PTSD which is NOT from CFS. I Don't WANT TO DIE, I JUST DON'T KNOW HOW TO LIVE LIKE THIS. IVE TRIED EVERY Natural modality. No change. ❤here is my question. Has anyone heard about how CFS Affects every System of the body??❤ Please share, thanks
@@fight4me747 thanks for your reply. I've heard ME/CFS IS A Disease that can effect different systems of ones body. I appreciate your input. I have been deep diving into doctors who really understand this disease. I was wondering if what you've been dealing with was due to having ME/CFS. BE WELL FRIEND
Had M.E for around 29 years long long list of things going on does not surprise me any more what it can. Bring on l worry every day gets you very down take care l know how you feel and what you are going through
@kavitadeva I have been suffering for @ 25 years. I understand how soul destroying it becomes. I've been extremely depressed these last months. So, I don't have any words of wisdom, but I just wanted you to know that you're not alone. ❤
@@crisnemitz1606 I really appreciate you reaching out to me. Just knowing someone else is going through the same thing helps me feel I am not crazy.. Of course I wish you were not suffering at all. I am so sorry you are Very Depressed.. That just sucks..🫂.
I'm new to your channel so I have some catching up to do! I see my rheumy tomorrow. He diagnosed my psoriatic arthritis (PsA) a few years ago and I'm on Cosentyx for that. Fatigue is one of the symptoms of PsA but mine is still debilitating. I also have IBS and have had unexplained low-grade fevers over the years. Periodically I get dizzy spells. I watched the free documentary film "Unrest" on YT the other day and it really hit home. I'm definitely going to talk to my rheumy about CFS/ME tomorrow. Good luck with your gut. My IBS-D has been interesting, to say the least. 🤦♀️
@@fight4me747 Thanks! He just said "fatigue is very common with PsA" and ordered thyroid studies and Vit D level. Thyroid is always fine and I'm on Vit D supplements. 🤷♀️ I might not have CFS but I do identify with a lot of the symptoms. I count my spoons, listen to my body, and lie around a lot. So be it. I don't need another diagnosis to add to the 33 I have now at age 69 LOL 😂
I'm glad you are ok. It's so difficult to deal with other issues when your body and mind with me/cfs are in complete exhaustion. It's like caged MMA and you don't know who your opponent will be nor how many are already in the ring. I wish you all the best and great support and good health care team. Those are so very important. You never know until you don't have it. I hope you never have to understand this.
Back in the 1980's, I was 30, I suffered with extreme fatigue along with several other symptoms of ME. At that time chronic fatigue syndrome was dismissed by many docs...I continued to have symptoms but my fatigue improved when I was in my late 40's, but the other symptoms continued and I got some new ones..I was diagnosed with vestibular migraine in 2022 and eventually put on Ajovy . 4 months on Ajovy literally cured my gut b/c I was able to eat foods I had not been able to eat prior. I'd been diagnosed and suffered with IBS-C since I was 37..it's gone...literally...Vestibular migraine symptoms and progression of are similar to ME as is MdDS and Menieres..and I'm beginning to wonder if I have both VM and ME..and b/c I have a rocking symptom, like I'm on a boat I wonder too about MdDS. I mention this b/c you're having gut issues...maybe Ajovy would help??? It helped me and it blows my mind how quickly I was able to fix my gut microbiome . I still have the other symptoms but the gut issue is gone.
Poem i wrote For all the people Love yourself back to life C.f.S is a hidden war inside the body Not many see or understand Awareness needs to happen Life can be hard enough at times And having chronic illness just make sit harder The people who battle in silence are a different breed They are the worriers The ones that stand there ground And slowly but surely scrap there way back up To the top of the hill For ones who have this I am in the group Climb bit by bit You will get back to the top Also I love you And you are not alone Poem wrote by charlotte m fallows
Hey, I noticed you’re wearing a hat all the time. I’m sure it’s because you’re hair is thinning. I’m not trying to be an a-hole, but have you considered a transplant? I have CFS and Hashimoto’s. My hair was thinning and it was depressing me. I actually had two transplants and it’s the BEST thing I ever did. It is so natural-looking, that no one (those who don’t know me closely) would even think I had work done. If you find a top notch doctor you’ll find that the hair restoration will be the only medical treatment that actually improves your health (just the happiness you’ll get with hair like Stalin!). It’s not like dealing with every other idiot, dope doctor trying to help with fatigue. The hair restoration is expensive I know, but if you can save money, I highly recommend it. You’re young and handsome, go for it. I’m sure women don’t give a crap as much as us men think, but I know how internally frustrating and depressing hair loss can be. If you do it you’ll be able to stop wearing those ridiculous hats indoors. “Oh I like wearing hats, I didn’t shower, or there is a glare in this room”
Im totally fine with my hair. Having ME has caused me to just roll out of bed and throw on a hat and some sweats. My buddy got a transplant and it looks good, but I honestly don't care that much. I like the shaved head look.
![Swallowing Exercises - Keep the Muscles In Your Mouth Moving [Exercise 2 of 3]](http://i.ytimg.com/vi/oQN7fCIa5Uc/mqdefault.jpg)
Thanks for checking in... you're not Alone that's for sure...Be good to see more of you post flare🍀
Praying for your continued recovery. Blessings 🕊️
Gentle hugs 🫂 and feel stronger soon!!
Sorry to hear you've been unwell with another condition. I know all to well how it goes. I've got 3 other chronic illnesses ontop of M.e. Well done for working on getting to your base line again hope it doesn't take you to much longer. Take care and wish you a steady improvement in your health. I'd say speedy recovery but we know there's no quick way of getting better. The joys of chronic illness Hay. Take care of yourself and don't beat yourself up for being unwell as we know that it can longer if we let our emotions get in the way. Best wishes. Allaina
What others do you havebi have heds to
I’m rooting and praying for you! Take your time, no pressure on making content, most of us know what it’s like dealing with gut issues and how hard it can be. Hang in there.👍😊
Good to see you again! Continued prayers for recovery! Definitely put your health first! Look forward to future videos. For now, I rewatch past videos often.
Hey bud, thanks for thevideos. I just found you while i seek out information on my lifelong symptoms in-between dr. Visits.
Hope you heal up quickly. Rest and care for yourself bud. Youll get there!
Many blessings!
How lovely to see you again. Best wishes from Germany 💌
Thinking of you 🙏🏻 I too am suffering from gut issues which started after my last covid booster in Dec 2021.
Oh Johnny I'm so sorry to hear this😢...you won't know of me as cant normally leave msgs.Been following u 4 long time tho😊love you Channel.100% understand how diff. it is.M.E Horrendous to live with & additional probs make things so complex💔💔be in my thoughts🍀 hope u get to your "normal" ME asap which is life destroying in itself.really feeling for you,long time suffer so I DO understand.thanks for your update😢💔🍀🍀😊
Thanks for checking in. I’ve had a two week migraine on top of my ME so I completely feel you!! Thank you!
Ur a sight for sore eyes😵💫 literally my friend good to see u back again even for just a short update on ur own battle with this illness rest up more as were all hoping to hear/see u again im sure...take care👍
I hope you're doing well and wish you a fast recovery! :)
If you have any spare time, would you like to make a video about a few topics that are currently being discussed in the ME/CFS/Long Covid community?
These are: apheresis, stem cells, BC007, oxygen therapy, etc.
Thanks! :)
Remember, rest is productive.
love this for recovery of chronic fatigue syndrome 🙂
ANYONE WHO WANTS TO Reply TO THIS QUESTION, I'D REALLY APPRECIATE IT.
I've had ME/CFS FOR 30 years. About 12 years ago I began to have every System in my body get affected. Severe Degenerative Disc Disease, Poly Neuropathy, it got in my mouth it was insane. Finally it took a 3 and a half surgery to get all the roots and damaged gums out. I have such extreme pain I could no longer take care of things. I am so Depressed for 2 weeks recently I was calling the S hotline 2 to 3 times a day. I also have Complex PTSD which is NOT from CFS. I Don't WANT TO DIE, I JUST DON'T KNOW HOW TO LIVE LIKE THIS. IVE TRIED EVERY Natural modality. No change.
❤here is my question.
Has anyone heard about how CFS Affects every System of the body??❤
Please share, thanks
Sorry you are going through a tough time. I have heard of people have multi organ issues with M.E. I do think its rare though.
@@fight4me747 thanks for your reply. I've heard ME/CFS IS A Disease that can effect different systems of ones body. I appreciate your input. I have been deep diving into doctors who really understand this disease. I was wondering if what you've been dealing with was due to having ME/CFS. BE WELL FRIEND
Had M.E for around 29 years long long list of things going on does not surprise me any more what it can. Bring on l worry every day gets you very down take care l know how you feel and what you are going through
@kavitadeva I have been suffering for @ 25 years. I understand how soul destroying it becomes. I've been extremely depressed these last months. So, I don't have any words of wisdom, but I just wanted you to know that you're not alone. ❤
@@crisnemitz1606 I really appreciate you reaching out to me. Just knowing someone else is going through the same thing helps me feel I am not crazy.. Of course I wish you were not suffering at all. I am so sorry you are Very
Depressed.. That just sucks..🫂.
Glad you’re feeling better
Good to hear from you. Your videos are very good and inspiring. I hope to see your posts soon
Ugh! I feel your pain. 😭
Hope you feel much better soon! Thanks for checking in.
Nice to see your face, you have been very inspiring and helpful, wish you a good recovery.
Best regards from Spain.
Good to hear you are on the mend. I hope you keep feeling better and wish you the best of luck ❤
❤️❤️❤️
I'm new to your channel so I have some catching up to do! I see my rheumy tomorrow. He diagnosed my psoriatic arthritis (PsA) a few years ago and I'm on Cosentyx for that.
Fatigue is one of the symptoms of PsA but mine is still debilitating. I also have IBS and have had unexplained low-grade fevers over the years. Periodically I get dizzy spells.
I watched the free documentary film "Unrest" on YT the other day and it really hit home. I'm definitely going to talk to my rheumy about CFS/ME tomorrow.
Good luck with your gut. My IBS-D has been interesting, to say the least. 🤦♀️
Good luck with the Doc!
@@fight4me747 Thanks! He just said "fatigue is very common with PsA" and ordered thyroid studies and Vit D level. Thyroid is always fine and I'm on Vit D supplements. 🤷♀️ I might not have CFS but I do identify with a lot of the symptoms. I count my spoons, listen to my body, and lie around a lot. So be it. I don't need another diagnosis to add to the 33 I have now at age 69 LOL 😂
All the best. It’ll be great to have you back when you are ready. Take care 💕
I'm glad you are ok. It's so difficult to deal with other issues when your body and mind with me/cfs are in complete exhaustion. It's like caged MMA and you don't know who your opponent will be nor how many are already in the ring. I wish you all the best and great support and good health care team. Those are so very important. You never know until you don't have it. I hope you never have to understand this.
Glad I found your channel. Sorry to hear about your setback.
Thank you for checking in! I hope you can make it back to that baseline soon.
Look forward to you videos ✌
Back in the 1980's, I was 30, I suffered with extreme fatigue along with several other symptoms of ME. At that time chronic fatigue syndrome was dismissed by many docs...I continued to have symptoms but my fatigue improved when I was in my late 40's, but the other symptoms continued and I got some new ones..I was diagnosed with vestibular migraine in 2022 and eventually put on Ajovy . 4 months on Ajovy literally cured my gut b/c I was able to eat foods I had not been able to eat prior. I'd been diagnosed and suffered with IBS-C since I was 37..it's gone...literally...Vestibular migraine symptoms and progression of are similar to ME as is MdDS and Menieres..and I'm beginning to wonder if I have both VM and ME..and b/c I have a rocking symptom, like I'm on a boat I wonder too about MdDS. I mention this b/c you're having gut issues...maybe Ajovy would help??? It helped me and it blows my mind how quickly I was able to fix my gut microbiome . I still have the other symptoms but the gut issue is gone.
I didn’t know this existed and I am saddened you are living with this. My prayers go out for you.
Poem i wrote
For all the people
Love yourself back to life
C.f.S is a hidden war inside the body
Not many see or understand
Awareness needs to happen
Life can be hard enough at times
And having chronic illness just make sit harder
The people who battle in silence are a different breed
They are the worriers
The ones that stand there ground
And slowly but surely scrap there way back up
To the top of the hill
For ones who have this I am in the group
Climb bit by bit
You will get back to the top
Also I love you
And you are not alone
Poem wrote by charlotte m fallows
🙏🙏🙏🙏🙏
Hey, I noticed you’re wearing a hat all the time. I’m sure it’s because you’re hair is thinning. I’m not trying to be an a-hole, but have you considered a transplant? I have CFS and Hashimoto’s. My hair was thinning and it was depressing me. I actually had two transplants and it’s the BEST thing I ever did. It is so natural-looking, that no one (those who don’t know me closely) would even think I had work done. If you find a top notch doctor you’ll find that the hair restoration will be the only medical treatment that actually improves your health (just the happiness you’ll get with hair like Stalin!). It’s not like dealing with every other idiot, dope doctor trying to help with fatigue. The hair restoration is expensive I know, but if you can save money, I highly recommend it. You’re young and handsome, go for it. I’m sure women don’t give a crap as much as us men think, but I know how internally frustrating and depressing hair loss can be. If you do it you’ll be able to stop wearing those ridiculous hats indoors. “Oh I like wearing hats, I didn’t shower, or there is a glare in this room”
Im totally fine with my hair. Having ME has caused me to just roll out of bed and throw on a hat and some sweats. My buddy got a transplant and it looks good, but I honestly don't care that much. I like the shaved head look.
How did you handle covid?
🫂❤️