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Thank you. It’s been my experience that the most challenging symptom- chronic, widespread, intractable pain - is the one symptom doctors are NOT interested in treating (despite my success with traditional Rx pain relievers). No anti- depressant,SSRI, SNRI or bipolar meds improved my condition. Nor seizure meds. Nor muscle relaxers. Nor PT… It’s incredibly frustrating for me to hear: we don’t know, more research is needed (but as a predominately female issue- we’re not going to spend $$ researching) AND just try the very expensive, unproven things that the anti-opioid industry is currently exploiting us with. Lastly, every time I see a pharma commercial stating something like, “just OK is not ok” and “I DESERVE treatment that gives me my life back”- I want to throw my TV (or phone) out the window. As no doctor cares the treatment is not enough: just go home and find a way to live with it. OR the new one: it’s in your brain. Your neuroplasticity needs reformatting. (How do I do that? No one knows. Years of cognitive/dialectical behavioral therapy certainly didn’t do it). So I leave my tv/phone as is. Because fibromyalgia disables me to the point where I can’t work, so I need to take care of the possessions I have. The point is, why is it ok for some patients to require better treatment, while those like me are refused it- based on unscientific data that doesn’t make sense even on the face of it? After years of watching Rx pain meds be reduced (and more reductions for 2024-THANKS, DEA!!) and watching overdoses from mostly illicit fentanyl and analogues, I continue to be baffled as to how reducing my pain medication reduces overdose numbers. Ya- I heard the “if we don’t give new patients Rx pain meds, we will reduce the addiction/overdose numbers.” Well, after almost 10 years with the overwhelming addiction/OD demographic being teens, early 20’s, you can’t convince me these people got addicted from prescriptions. So, people are still dying and people like me are suffering seemingly intentionally. How is this OK?
Thank you so much for this comment! As you describe the treatment of chronic pain can be a very tricky thing and it’s by far not always successful. The thing most practitioners won’t recognize is, that there is no “one size fits all.” Of course, the guidelines give us hints, in which direction to go and that is good I think. But sometimes it’s forgotten that people are not the same as statistical numbers. By what we know today the treatment could be way more individual and successful. Although I still wouldn’t trust anyone who tells me that I can be pain-free easily. Again, thanks for chiming in and leaving your comment. Wishing you a way less frustrating future, finding the path that fits exactly you 👍🏼
@@pain.pause.live.you explain things is such an articulate manner. For me I’ve given up on ever getting rid of this pain, it’s apart of me and I accept it, most days I fight pain with pain. I destroy myself in the gym, and there are days where the fibromyalgia wins and I can’t workout. I’m doing well with my own scientific research and self experimentation. What was unexpected today was my new medication Cialis, I didn’t ask for it for pain relief but for more nitric oxide in my system and to lower BP. The unexpected happened and my back pain has relaxed a little, I’m wondering if this is because of the potential of being more relaxed, and more blood flow getting to where the nerves are. Either way I’ll take this win. Soon I’ll be doing one to two IV treatments a week for 12 weeks straight, then one to two bags a mont if it works in the ways I’m expecting. I believe due to the high stress from the illnesses and increased stress I put on myself at the gym, my body simply isn’t able to absorb all the nutrients it requires to run optimally. So far my own TRT and HRT has helped tremendously. I do know I’ve traded some years in but my life expectancy was less anyway as I have a bunch of illnesses that lower my life expectancy anyway. I’ll gladly trade in some old age years for a few more good years especially with my son. I’m only 38yrs old. I do believe though my perseverance and discipline won’t let me down along with incredible knowledge and wisdom from science. Thank you for your effort in educating people.
Firstly, search for the article :How Baking Soda Fights Inflammation and also start searching 'bi carb soda inflammation'. There is some important new research about this link. Bi carb soda reduces pain in days, and within two weeks switches the body from pro-inflammatory to anti-inflammatory. Your body is probably deficient in bicarbonate. Secondly, start learning about oxalates. I think you might find some answers in those two areas.
It seems my comment on bicarbonates has disappeared. New research shows that sodium bicarbonate can switch the body from pro-inflammatory to anti-inflammatory in two weeks.
You have such a peaceful presence. I appreciate this informative video. I used to think I suffered from rheumatic disorders until I was recently tested for autoimmune diseases. My lab work came back normal! I was so surprised. The negative result for Rheumatoid Factor and Negative result for Autoimmune Disease. This was last week and before this I had suffered pain and various symptoms since last August (2023). This is long-winded so I apologize for writing so much, but it explains some of the reason I am learning all that I can about Fibromyalgia & related disorders. ❤
Thank you so much. Yes, the way through chronic pain can be already a long journey just to find out what is actually happening inside of body and mind. The average time from the first significant symptoms to a correct diagnosis for rheumatoid disorders is between 5 and 10 years for example. Being informed is always the first step. So keeping my fingers crossed for you, hoping my channel can serve you well.
Thank you for the video but all the info you gave in this video was given in the 90s and so far nothing is conclusive. I have fibromyalgia since I was 16 and it’s been a nightmare after 20 years with it. I diet, workout and don’t do any drugs or alcohol and still some days I am bed ridden. My life went to sh.. and my dreams of being a bodybuilder and a successful business man are gone. I wish I could find something to help but nothing is a guarantee and the next day is just a wonder.
Hey Paulo, thanks so much for your response to the video. Sorry to hear how much this difficult pain condition has cost you. Personally, I think that the 90s are a little far-fetched. But research for fibromyalgia is like going down the rabbit hole. There are so many ideas to follow and for the patient it’s seldom a big leap into recovery. This is partly due to the variability between people suffering from fibromyalgia water works for one doesn’t necessarily seem to work for other people. As for the psychological part, we seem to move forward consistently, but still slowly. The last year’s brought more breakthrough moments. I will address this in future videos as I decided to make my channel more about fibromyalgia. Personally, I’d be interested in the things that helped you and what didn’t. If you don’t want to comment it here, just drop me a line via email. I’d really like to hear from you.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory very quickly.
Also, make sure you are not ingesting high amounts of oxalates. Even a high tea consumption can affect some people. Spinach smoothies are an oxalate disaster.
I'm so sorry to hear that. And it sounds like you've dealt with it over a longer time, right? And it sounds like you've tried a lot to get rid of the symptoms - nothing really worked. No wonder you're fed up. It's often so exhausting to find a way to recovery, even if a full recovery is not always possible. It sometimes is like finding a way through a labyrinth. What's often missing is something like a thread that leads you through it. Do you have someone to help you through these turbulent waters? With this I'd like to send you a whole lot of courage from the bottom of my heart - as a little beacon to light up your world. What seems to me a bit special is the fact that you ended up in the ER. While fibro can be quite debilitating and really bad, the ER is not the usual place where to end up. Since I don't know anything about you at all, I can't really comment on this from a professional point of view. But fibro-like symptoms can be caused by other diseases too. Did you get checked for these?
Thank you for responding, appreciate it greatly. Yes they checked me for heart problems ect.... all was good Thank goodness!! My Fibromyalgia is causing spasms in my back, chest, which is very painful & scary. Spasms meds. we're given, I have extreme fatigue, abdominal problems, IBS-MIXED on pre& probiotics/Metiucal . I have Fibromyalgia really bad they said, don't have much of a life anymore. I'm married 38 yrs. my husband is supportive & my family & grown children wrote me off, they think I like attention & how could anybody have so many problems back to back ? 😑 if one turns on you in my family they all do- crazy I know. Can't work due to this & no disability, have tried alot! My husband has 2 jobs, so he's not around to talk to. I'm 56 - people think I look about 30 - so that's 1 thing that's good & my weight is 140-145, 5ft. 2 inches. Stay inside for a couple of weeks at a time, sleep day & up at night. I'm very messed up wish I was making this all up. Hope I helped you on info. Please let me know if anything else. Thanks again
Hey Angela, thanks so much for opening up and giving the information. It looks as if so many things weigh on your shoulders, that's hard to bear. You know, I often say to my clients that pain is like an octopus, with its arms reaching in so many areas of the life, making it miserable. And others often have great difficulties understanding what's happening inside of us pain patients. They just have no clue what it is like - even if we tell them. If you want to know some more about my story, I made a video on RUclips. You can find it here: ruclips.net/video/jynU93s294s/видео.html I'm sure you tried out a bit to fight the symptoms til now and I'm curious what it is. If this here is too public for you, you can email me anytime (gideon@painpauselive.com) or even have a free short call: www.painpauselive.com/book-online. Keeping my fingers crossed for you.
Also, look up research headed by Dr Paul O'Connor from the Department of Physiology at Augusta University, Medical College of Georgia on sodium bicarbonate. It shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Thanks for your comment. You're right, science doesn't move with light speed. If something is really, really new, it's mostly guessing. And until some studies on it are done, years can pass. But I don't want to give you any guessing, there's enough of it on RUclips, isn't there?
Cure for me: Magnesium L Threonate, Benfotamine type of B1, B6 and D3...all OTC so no Rx needed...I got mine on Amazon. Note the Magnesium MUST be L Threonate.
I know that a lot of people try substances like these. For some, and obviously you, it works. Unfortunately, there is no good evidence, that it works for most people. So I’m happy for you, that you found something that really works for you. 😊 As I wrote in my answer to the comment above, there is no one size fits all. And especially in the case of widespread pain we know much more what doesn’t work than what actually helps in a good way.
Some people are known with reduced enzymatic activity and reduced detoxification metabolism pathway due to gene mutation, which overwhelm the system. Vitamins and minerals will help to certain point but once they stop working or reached plateau, then it means the root cause of the issue is still present…
I‘m so sorry to read this. Please feel free to use all the information you might get from my channel. See if it helps you a step further. @pain.pause.live.
I have been diagnosed since 2005 at age 47. I am now 62 and whoa has it been a struggle. I have found that if I break the symptoms down and attack them head on and systematically resolve the pain and anxiety issues one by one. Last year I had 5 surgeries for pinched nerves, dislocated discs, carpal tunnel, and Basel Cell Carcinoma. The surgeries enabled me to become more active and have improved my mental and physical health tremendously. Fibromyalgia sux ! I am still recovering and getting mental health care but my attitude has improved significantly. Its hard but it can be done. Check those issues off one by one and take your life back. 🤗😘🫶🙏🌹
Me too. Now I'm in the worst flare yet, no help and got told again that I need antidepressants and that I was "drug seeking " when I never asked for pain pills in the first place. Living on CBD and supplements. Sick of being sick 😫
I have had a build-up to realizing that the symptoms I have leads to fibromyalgia I got pain on my right side I have 6 small lumps in my front 2 on or near the breast-bone very excruciating on my right side the pain built up gradually really tiring exhausting I'm tired all the time fatigued warn out I wake up tired still everything is slow going anyway I suddenly had a thought and I happened to think of m6 heatlamp which I haven't had for very long and I was thinking heatlamp so because the pain was still there I decided to place the heatlamp above the fibromyalgia a certain distance so as not to burn but to try and alleviate the pain away and it worked thing is I woke up the next morning and it felt like bruise so I rubbed the càstor oil on the lump and settles with that within the same day the pain went had gone away amazing I thought what more could I say except praise God my miracle from above all gone Amen thankyou Heavenly Father.
Please check out dr Elizabeth Bright. A high anti-inflamatory diet and sleep therapy actually work( nutritional healing of the cells for improved signaling, thyroid, and hormone function works!. But you must be strict.) Im living proof it works. I used to wake up feeling like id been hit by a truck and the last thing i wanted to ddo was get out of bed. My feet always felt like they were always in a vice grip that was being compressed to the last notch. Every year i got worse. Sleep evaded me and i was in a constant state of stress. Now i sleep a full 7-8 hrs, run the stairs like im 18, and everyone remarks how good i look, as a wonderful side effect was i lost most of the harmful viseral fat ( ive lost weight before but never like this, it literally carved and sculpted my shape as it is all rhe internal fat) My skin has lifted and firmed up and glows. Youve nothing to lose and everything to gain. This country is hell bent on sucking away everyone's health and get all on multiple rxs to further enrich the pockets of big pharma, after big food destroys you. Btw i take ZERO prescriptions, and ONLY suppliment iodine and ive only taken aspirin once since april of 2023 for a headache. My levels are outstanding !Everyday im amazed at this miracle of healing and it keeps me on track! ( Trust me ive stumbled here and there, being conditioned and addicted to the foods that are SOOO inflammatory. I pay with how i feel and have had mild pain when not all in those brief moments of not managing my diet with VIGILANCE.)
sugar and alcohol cause me pain. if i drink a bottle of whiskey over a week, my joints begin to hurt. knuckles, knee, back. When i abstain, the body begins to repair within a week. everything becomes more mobile. It's like day and night. same with sugar. so i generally eat omad, and low carb. then i fall off the wagon, binge on chocolate or wine or both, and then it comes back. within a week. it's like a switch. the trick is to pick a diet that's inclusive. exa. ple, dates have a low gi, so i make my own candy with dates and nuts. alcohol i tend to stay clear of. problem is, wine tastes so hood. beer on a hot day, oh my. whisky at a party or just to dump a few neurons into the sink. it takes years to adapt and shake the western fallacy of wheat and sugar based diet, and two units every night.
I have been using cannibidoil and find it's the only thing that helps my fm. I still have some bad days and nights but compared to how I was this is a miracle. My night delirium ie zombiefied because of lack of sleep is 90% better than it was.
Hey Diana, happy to hear that you found something helpful for your sleep. As you might have experienced, you had to try out different things before you found something that fits you. And that’s something very important because in chronic pain and especially and fibromyalgia there is no one size fits all and it sometimes takes a lot of patience to get to this point.
I have ulnar neuropathy for past 3 years and neck pain. Doctors doubted its a mND motor neuron disease and they still following my disease to confirm what it is. Past 8 months i have several body pain and joint pain and doctor said its a fibromyalgia. And mytochondria is dysfunctioned
Yes, sometimes it’s really hard to discover where the symptoms come from. Of course it might be fibromyalgia but you should wait till other possibilities are ruled out. There’s a certain number of diseases with pretty similar symptoms and these have to be checked for first. Keeping my fingers crossed for you.
Hey Rocky, of course this might be possible. But not knowing you and your precise medical history, it can’t be up to me to tell you if it’s this or that. I’m sorry about that and hope you understand. It would be like a shot in the dark with one bullet. The chances I tell you something terribly wrong are pretty high. But if you like to, you can drop me a couple lines by email or a DM on Facebook.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
I'm so sorry, but there's no "cure" yet. But starting the journey of recovery is possible I think. If you like to you're warmly invited to check out the website of PPL: www.painpauselive.com
Thanks so much for reaching out. Unfortunately, there is no blood test for fibromyalgia. It can be solely diagnosed by a number of different symptoms that make up the whole syndrome.
I watched quite a few videos and chatted with some folks who tried to address fibro/cfs with B1 (thiamin). I stopped eating processed food, including bread, about 6 months ago, strictly followed a protocol since then too. Had terrible flare ups. Two weeks ago I started taking methylated folates, B1, B3. I haven’t had my symptoms reduced to this level in 2 years. I’m reluctant to celebrate because although I feel so much better I also know things can get worse quickly, BUT I feel great, been so busy and even managed to exercise. It’s a pretty cheap and harmless thing to try. Do some research and maybe consider it
What is your oxalate intake like? You might be inadvertently poisoning yourself with high oxalate so called superfoods like spinach and almonds. It's definitely worth looking into if you eat those types of things.
The other thing to look into is the new research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia, which shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks. Being low in bicarbonates causes the body to run in a hyper inflammatory mode.
Wow, then you have been way better informed then most others. Congrats! 👍As I wrote in an answer before, there are a lot of new fields where scientists try to discover different things, like small fibres neuropathy etc. but nothing of it has been proven yet. Good science is a slow business. 🤷
Hey, Debbie, you are so right. When even doctors don’t believe you, it’s an awful place to be. How do you deal with it? I bet there are a lot of others out there who experience these situations.
Sorry to hear what caused the pain. Yes, there are numerous causes for widespread pain, one is certainly contact to harmful chemicals. But I'm really happy you got your life back. Cheers for that!
@@pain.pause.live. ya I know everyone’s different genetic make up ,mine did this to me from those, I also had fibromyalgia and chronic insomnia it took me a year and a half to figure out what was killing me untill I gave up and quit everything in life I loved and started eating only washed steamed rice and bottled water, because every time my friends from Europe visit they go home and complain about how sick they are. in two weeks the fibro went away and the celiac , then peripheral neuropathy in side of 5 weeks ! Then 2 months ago I quit all off the shelf hygiene products and went all natural and inside the middle of the second week I did not expect, but ! my chronic insomnia just went away all like I’ve never had a problem ever being Crippled. This is just my story in short hand, oh the insomnia for me is from the aluminum power in deodorant. we as humans never need fluoride chloride, my deodorant now is better then any I’ve tried in life I don’t get funky anymore, it’s 50%50% sodium bicarbonate and castor oil and I brush my teeth with apple cider vinegar and sodium bicarbonate.
@@noraaa8479 that’s just the thing, I didn’t want to help it ! I wanted it to just go away so I kept track of all I ate , it took a year to figure out what I was allergic to at the end of the year with almost no idea what it was still , I quit everything I loved and just ate steamed rice and bottled water and certain vitamins and after a month all three diseases just went away like I never had them before…. Then started adding back one thing at a time till I narrowed it down to the Chemicals in the food supply , and stoped eating any of those….this is in the beginning of the plague, but now these Chemicals are in almost everything…. I also had Chronic Insomnia for eight years before all this and 3 1/2 months ago I decided to stop all the normal hygiene products and in the middle of the second week my Insomnia just went away, and I started back with one at a time till my sleep messed up again, it was the deodorant and come to find out my other Chronic Disease Was from the Aluminum powder mixed into it… we are an Electrical being and the aluminum impairs the brains connection to your circadian rhythm destroying our sleep till we just can’t anymore, I sleep like a baby now !!! ,Tim.
Well, the majority of patients doesn't respond with widespread pain to a cervical fusion. But sometimes central sensitization can be triggered by such a health event. This might eventually lead to symptoms like those in fibromyalgia. But this might also be far fetched. What's your doctor saying?
I had a cervical fusion over 30 yrs ago and got fibromyalgia soon after. I also have worked at a Surgery Center and have spoken to numerous patients who have also had the same outcome.
Well, basically all this is leading to neuroplasticity or is an effect of it. Neuroplasticity in chronic pain isn’t new either but now we have a category like nociplastic pain and first research on neuroinflammation (about which we don’t know enough yet) that might to different treatment schemas. On the psychological side some are already out and the program of Pain.Pause.Live. incorporates them. Within the next weeks an updated video will come. 🤓
No, I would say replenishing the body's bicarbonates is the way forward. Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Exactly! While fibromyalgia may have a lot of different causes, it’s always mind and body together. When we feel chronic pain, both sides are absolutely interwoven, so I think it might be even worthwhile asking if this strict separation between mind and body makes any sense at all. What do you think?
I’ve been on a healthy eating no processed foods, exercise, and tried so hard vitamins still having flair ups and they getting worse but my biggest challenge is getting a doctor to take it seriously and stop offering me antidepressants which don’t work and I’ve stopped going to doctors I have no life had enough of chronic pain all the time doctors won’t give pain relief so been using deep heat or ice carnt sleep the fatigue is that bad I now use a scooter, I have crohns type one diabetes angina edmedroises and seizures I see some people have a care plan but the doctors in my area don’t believe it’s real since my diagnosis I’ve had less help from my doctors so I’ve given up , really don’t know what to do it can be very lonely and it makes me mad my sister was at the hospital with my niece and she said a lady came in on crutches and collapsed she had fibromyalgia the hospital didn’t take her seriously so her partner carried her to the car to go to other hospital this is how people are being treated like it’s all in our heads , my sister asked why she wasn’t treated and the nurse said we carnt treat it’s not a serious she’s acting, which my sister replied if that was acting she dersvers a award , when she told me I wasn’t surprised then she said I didn’t think it was real until I see that lady which hurts when family thinks you’re dealing with imaginary pain and extortion, love to anyone who has this as the sigma is as bad as the fibromyalgia ❤ hope they find better research and then we can get the right treatment
I do not agree. I have a high tolerance for pain. I don’t know I’m in pain till my blood pressure goes up. So no lower pain threshold can’t be it. I think it is a neurological and nerve issue and even a disease like lupus not coming to head.
Thanks for mentioning this! As you pointed out rightfully, it might not be fibromyalgia. While there is a huge diversity within the group of fibromyalgia, patients, not everything I mentioned in the video holds true for everybody. But high tolerance levels of pain are quite unusual for fibromyalgia. this is why the symptoms should be checked very thoroughly specialists. If it’s not fibromyalgia, the symptoms should be treated differently.
Dear Marian, thanks for this comment, it's not only important for you but for others also. It sounds like you've been through quite some journey within the health system. I'm sorry to hear that there hasn't been any help for you yet. The name fibromyalgia comes from the most common symptom of widespread pain especially concerning the muscles and ligaments, so it is purely descriptive. The other symptoms are very varied between people who suffer from it. That's why we speak about a syndrom. But still I think that we can do things to get better. I'd like to invite you, if you want, to get my free pdf on the pillars of a holistic pain treatment here. Hope it might be a first step of help. From there you can discover what PPL has to offer (free or paid as you like). Here's the link to the pdf: www.painpauselive.com/6-pillars
I have suffered for decades and relate to what has been said by others all too well. I have to say that the content of this video was disappointing, in that, there is nothing new. I’ve known about cytokines etc for years but it makes no sodding difference with GPs here in the U K. I want to try natural therapies such as B1 but try❤ and get a GPs support, well you may as well plait fog! The medical profession just want to pump bodies with chemicals from drug companies. I tried them but ended up in A&E.
Dear Josephione, I'm so sorry to hear that. And sorry to hear that my video had nothing new for you. There seems to be a long way to go from findings in research to any remedies - if there are any. Unfortunately we know that most kinds of medication don't work for fibromyalgia. So most GPs are just as helpless as their patients. So I can understand perfectly well, that you want to switch to natural therapies. Did you ever try any mind-body therapy? If yes, what is your experience with it?
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
There are so many more symptoms to Fibro tells me that’s it’s more than the pain system. The body is always exhausted, sensitivity to light and sound. Constant running nose, dry eyes, and a general flu like feeling. Not to mention that humidity or severe cold makes the condition 10 times worse. My own pain doctor doesn’t have a clue about what fibromyalgia is, or what it’s like to suffer with it. Oh, and I almost forgot, twitching muscles all over the body and pins and needles especially in feet.
You are absolutely right! Phibro is a complex disease with a whole lot of systems in the body, losing their grip to normal functioning. That’s why we call it a syndrome. And because of our better understanding, a new kind of pain has been added by research: nociplastic pain. For a little more in-depth information you can watch my other video on fibromyalgia or visit my website painpauselive.com
It has to be thoroughly diagnosed, because there are some conditions with some of the same symptoms. If done correctly fibro might be the right diagnosis. What have you been doing about it?
If you don’t want to accept that diagnosis and I don’t blame you, I’d be looking into elimination of neurological conditions, and mri scans to eliminate spinal impingements
Sadly, Australians are too laid back to do anything about these issues. Australians are not even able to elect their own leader. The PM is beholden to his party, not to the people.
You raise a very important topic. I’m not sure if I understand your question the right way. So I will answer it in two directions. Diet is always delicate topic since our knowledge about its effects on the body changes from week to week. What we can say for sure is that certain kinds of diet can foster inflammation in our bodies. But up to today we don’t have any proof that this causes the central sensitization as in fibromyalgia. On the other hand, as we know that inflammation, plays a role in fibromyalgia an anti-inflammatory diet might be very helpful. We don’t have any good studies on this yet, but it seems very plausible that this might help. I’m pretty sure that a lot of those suffering from fibromyalgia already tried changes in diet, and it would be great, if you just left a comment down below. This can be valuable information to help others on their journey through chronic pain. 👇
If it's something you are reacting to in your diet, then it's a symptom of allergy/intolerance, not fibromyalgia. It could also be a lack of certain vitamins/minerals in your diet, as many types of these deficiencies have muscle/joint ache/pain, insomnia, brain fog, fatigue as part of their symptom list. But if these symptoms go away when you address nutritional deficits then it's NOT fibromyalgia. Fibromyalgia is a diagnosis of exclusion. Basically, if nothing else can explain it, then it's fibromyalgia.
I do think a poor diet does have an adverse effect. Hippocrates said “let your medicine be your food and your food be your medicine” Despite trying to eat as healthy as possible, I’m still struggling. we still have far too many chemicals being ingested that doesn’t help us at all. There are still pesticides being used on the land that are known to be carcinogens, animals are injected with a concoction of anti this and that subsequently we ingest that. The feed that is passed by the MAFF has not been fit for in the purpose in the past, so how can we trust them now. All we, the general public, can do is the best we can and try to purchase our food from reputable sources. I do also think that trauma either psychological or physical can upset the body’s balance. In my case I’ve had physical traumas to my spine; underwent multiple surgeries over my lifetime for different issues including cancer and because of that, I believe the subsequent pharmaceutical treatment had a profound detrimental effect on me to the point I could no longer walk more than a few steps. Genetics also play a part in my humble opinion. I just wish there could be a database of constructed evidence of cause and effect of B1, D3 etc that doctors could monitor patients specifically with Fibro. There is evidence on 2,500 people having profound reduction in tremors with B1 therapy so why not us? Just a thought, as both sets of patients have problems with Dopamine dying cells in the brain. (Hubby has Parkinson’s, and we both suffer with sleep disruption, cognitive decline/brain fog and other similarities.
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Thank you. It’s been my experience that the most challenging symptom- chronic, widespread, intractable pain - is the one symptom doctors are NOT interested in treating (despite my success with traditional Rx pain relievers). No anti- depressant,SSRI, SNRI or bipolar meds improved my condition. Nor seizure meds. Nor muscle relaxers. Nor PT…
It’s incredibly frustrating for me to hear: we don’t know, more research is needed (but as a predominately female issue- we’re not going to spend $$ researching) AND just try the very expensive, unproven things that the anti-opioid industry is currently exploiting us with.
Lastly, every time I see a pharma commercial stating something like, “just OK is not ok” and “I DESERVE treatment that gives me my life back”- I want to throw my TV (or phone) out the window. As no doctor cares the treatment is not enough: just go home and find a way to live with it. OR the new one: it’s in your brain. Your neuroplasticity needs reformatting. (How do I do that? No one knows. Years of cognitive/dialectical behavioral therapy certainly didn’t do it). So I leave my tv/phone as is. Because fibromyalgia disables me to the point where I can’t work, so I need to take care of the possessions I have. The point is, why is it ok for some patients to require better treatment, while those like me are refused it- based on unscientific data that doesn’t make sense even on the face of it?
After years of watching Rx pain meds be reduced (and more reductions for 2024-THANKS, DEA!!) and watching overdoses from mostly illicit fentanyl and analogues, I continue to be baffled as to how reducing my pain medication reduces overdose numbers. Ya- I heard the “if we don’t give new patients Rx pain meds, we will reduce the addiction/overdose numbers.” Well, after almost 10 years with the overwhelming addiction/OD demographic being teens, early 20’s, you can’t convince me these people got addicted from prescriptions. So, people are still dying and people like me are suffering seemingly intentionally.
How is this OK?
Thank you so much for this comment! As you describe the treatment of chronic pain can be a very tricky thing and it’s by far not always successful. The thing most practitioners won’t recognize is, that there is no “one size fits all.”
Of course, the guidelines give us hints, in which direction to go and that is good I think. But sometimes it’s forgotten that people are not the same as statistical numbers. By what we know today the treatment could be way more individual and successful. Although I still wouldn’t trust anyone who tells me that I can be pain-free easily.
Again, thanks for chiming in and leaving your comment. Wishing you a way less frustrating future, finding the path that fits exactly you 👍🏼
@@pain.pause.live.you explain things is such an articulate manner. For me I’ve given up on ever getting rid of this pain, it’s apart of me and I accept it, most days I fight pain with pain. I destroy myself in the gym, and there are days where the fibromyalgia wins and I can’t workout. I’m doing well with my own scientific research and self experimentation. What was unexpected today was my new medication Cialis, I didn’t ask for it for pain relief but for more nitric oxide in my system and to lower BP. The unexpected happened and my back pain has relaxed a little, I’m wondering if this is because of the potential of being more relaxed, and more blood flow getting to where the nerves are. Either way I’ll take this win. Soon I’ll be doing one to two IV treatments a week for 12 weeks straight, then one to two bags a mont if it works in the ways I’m expecting. I believe due to the high stress from the illnesses and increased stress I put on myself at the gym, my body simply isn’t able to absorb all the nutrients it requires to run optimally. So far my own TRT and HRT has helped tremendously. I do know I’ve traded some years in but my life expectancy was less anyway as I have a bunch of illnesses that lower my life expectancy anyway. I’ll gladly trade in some old age years for a few more good years especially with my son. I’m only 38yrs old. I do believe though my perseverance and discipline won’t let me down along with incredible knowledge and wisdom from science.
Thank you for your effort in educating people.
@@pain.pause.live.You should try methylene blue, helped wonders for me.
Firstly, search for the article :How Baking Soda Fights Inflammation and also start searching 'bi carb soda inflammation'.
There is some important new research about this link.
Bi carb soda reduces pain in days, and within two weeks switches the body from pro-inflammatory to anti-inflammatory. Your body is probably deficient in bicarbonate.
Secondly, start learning about oxalates.
I think you might find some answers in those two areas.
It seems my comment on bicarbonates has disappeared. New research shows that sodium bicarbonate can switch the body from pro-inflammatory to anti-inflammatory in two weeks.
You have such a peaceful presence. I appreciate this informative video. I used to think I suffered from rheumatic disorders until I was recently tested for autoimmune diseases. My lab work came back normal! I was so surprised. The negative result for Rheumatoid Factor and Negative result for Autoimmune Disease. This was last week and before this I had suffered pain and various symptoms since last August (2023). This is long-winded so I apologize for writing so much, but it explains some of the reason I am learning all that I can about Fibromyalgia & related disorders. ❤
Thank you so much. Yes, the way through chronic pain can be already a long journey just to find out what is actually happening inside of body and mind. The average time from the first significant symptoms to a correct diagnosis for rheumatoid disorders is between 5 and 10 years for example. Being informed is always the first step. So keeping my fingers crossed for you, hoping my channel can serve you well.
Edifying while remaining concise in a complex field.. good job shedding light while remaining scientific
The world never drs like you god bless you for sharing keep up the great job
Thanks so much!
Thank you for the video but all the info you gave in this video was given in the 90s and so far nothing is conclusive. I have fibromyalgia since I was 16 and it’s been a nightmare after 20 years with it. I diet, workout and don’t do any drugs or alcohol and still some days I am bed ridden. My life went to sh.. and my dreams of being a bodybuilder and a successful business man are gone. I wish I could find something to help but nothing is a guarantee and the next day is just a wonder.
Hey Paulo, thanks so much for your response to the video. Sorry to hear how much this difficult pain condition has cost you. Personally, I think that the 90s are a little far-fetched. But research for fibromyalgia is like going down the rabbit hole. There are so many ideas to follow and for the patient it’s seldom a big leap into recovery. This is partly due to the variability between people suffering from fibromyalgia water works for one doesn’t necessarily seem to work for other people. As for the psychological part, we seem to move forward consistently, but still slowly. The last year’s brought more breakthrough moments. I will address this in future videos as I decided to make my channel more about fibromyalgia. Personally, I’d be interested in the things that helped you and what didn’t. If you don’t want to comment it here, just drop me a line via email. I’d really like to hear from you.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory very quickly.
Also, make sure you are not ingesting high amounts of oxalates. Even a high tea consumption can affect some people. Spinach smoothies are an oxalate disaster.
I have it severe & end up in the ER at times. It's a living hell !!!😢 My life is - why live ? Nothing helps at all . Fed - up 😢
I'm so sorry to hear that. And it sounds like you've dealt with it over a longer time, right? And it sounds like you've tried a lot to get rid of the symptoms - nothing really worked. No wonder you're fed up. It's often so exhausting to find a way to recovery, even if a full recovery is not always possible. It sometimes is like finding a way through a labyrinth. What's often missing is something like a thread that leads you through it. Do you have someone to help you through these turbulent waters? With this I'd like to send you a whole lot of courage from the bottom of my heart - as a little beacon to light up your world.
What seems to me a bit special is the fact that you ended up in the ER. While fibro can be quite debilitating and really bad, the ER is not the usual place where to end up. Since I don't know anything about you at all, I can't really comment on this from a professional point of view. But fibro-like symptoms can be caused by other diseases too. Did you get checked for these?
Thank you for responding, appreciate it greatly. Yes they checked me for heart problems ect.... all was good Thank goodness!! My Fibromyalgia is causing spasms in my back, chest, which is very painful & scary. Spasms meds. we're given, I have extreme fatigue, abdominal problems, IBS-MIXED on pre& probiotics/Metiucal . I have Fibromyalgia really bad they said, don't have much of a life anymore. I'm married 38 yrs. my husband is supportive & my family & grown children wrote me off, they think I like attention & how could anybody have so many problems back to back ? 😑 if one turns on you in my family they all do- crazy I know. Can't work due to this & no disability, have tried alot! My husband has 2 jobs, so he's not around to talk to. I'm 56 - people think I look about 30 - so that's 1 thing that's good & my weight is 140-145, 5ft. 2 inches. Stay inside for a couple of weeks at a time, sleep day & up at night. I'm very messed up wish I was making this all up. Hope I helped you on info. Please let me know if anything else. Thanks again
Hey Angela, thanks so much for opening up and giving the information. It looks as if so many things weigh on your shoulders, that's hard to bear. You know, I often say to my clients that pain is like an octopus, with its arms reaching in so many areas of the life, making it miserable. And others often have great difficulties understanding what's happening inside of us pain patients. They just have no clue what it is like - even if we tell them.
If you want to know some more about my story, I made a video on RUclips. You can find it here: ruclips.net/video/jynU93s294s/видео.html
I'm sure you tried out a bit to fight the symptoms til now and I'm curious what it is. If this here is too public for you, you can email me anytime (gideon@painpauselive.com) or even have a free short call: www.painpauselive.com/book-online. Keeping my fingers crossed for you.
Are you on a high oxalate diet?
Also, look up research headed by Dr Paul O'Connor from the Department of Physiology at Augusta University, Medical College of Georgia on sodium bicarbonate. It shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
It would help if there were chapters.
The studies might be new but it is all the same old info.
Thanks for your comment. You're right, science doesn't move with light speed. If something is really, really new, it's mostly guessing. And until some studies on it are done, years can pass. But I don't want to give you any guessing, there's enough of it on RUclips, isn't there?
Thank you so much. What a simplified scientific explanation.
Thanks so much! Yes, I always try to be as understandable as possible, while scientifically correct. Very happy that this worked for you 😃
Cure for me: Magnesium L Threonate, Benfotamine type of B1, B6 and D3...all OTC so no Rx needed...I got mine on Amazon. Note the Magnesium MUST be L Threonate.
I know that a lot of people try substances like these. For some, and obviously you, it works. Unfortunately, there is no good evidence, that it works for most people. So I’m happy for you, that you found something that really works for you. 😊
As I wrote in my answer to the comment above, there is no one size fits all. And especially in the case of widespread pain we know much more what doesn’t work than what actually helps in a good way.
Some people are known with reduced enzymatic activity and reduced detoxification metabolism pathway due to gene mutation, which overwhelm the system.
Vitamins and minerals will help to certain point but once they stop working or reached plateau, then it means the root cause of the issue is still present…
What dose of D3 B1 B6 and Mg are you taking?
I’ve had Fibromyalgia and Arthritis for 30yrs and nothing I try helps 😢
I‘m so sorry to read this. Please feel free to use all the information you might get from my channel. See if it helps you a step further. @pain.pause.live.
I have been diagnosed since 2005 at age 47. I am now 62 and whoa has it been a struggle. I have found that if I break the symptoms down and attack them head on and systematically resolve the pain and anxiety issues one by one. Last year I had 5 surgeries for pinched nerves, dislocated discs, carpal tunnel, and Basel Cell Carcinoma. The surgeries enabled me to become more active and have improved my mental and physical health tremendously. Fibromyalgia sux ! I am still recovering and getting mental health care but my attitude has improved significantly. Its hard but it can be done. Check those issues off one by one and take your life back. 🤗😘🫶🙏🌹
Me too. Now I'm in the worst flare yet, no help and got told again that I need antidepressants and that I was "drug seeking " when I never asked for pain pills in the first place. Living on CBD and supplements. Sick of being sick 😫
@@CindySchumacher-h2qHave you tried Medical Medium?
Same, 28 years. They act like they know what they are talking about and they don't.
I have had a build-up to realizing that the symptoms I have leads to fibromyalgia I got pain on my right side I have 6 small lumps in my front 2 on or near the breast-bone very excruciating on my right side the pain built up gradually really tiring exhausting I'm tired all the time fatigued warn out I wake up tired still everything is slow going anyway I suddenly had a thought and I happened to think of m6 heatlamp which I haven't had for very long and I was thinking heatlamp so because the pain was still there I decided to place the heatlamp above the fibromyalgia a certain distance so as not to burn but to try and alleviate the pain away and it worked thing is I woke up the next morning and it felt like bruise so I rubbed the càstor oil on the lump and settles with that within the same day the pain went had gone away amazing I thought what more could I say except praise God my miracle from above all gone Amen thankyou Heavenly Father.
Please check out dr Elizabeth Bright. A high anti-inflamatory diet and sleep therapy actually work( nutritional healing of the cells for improved signaling, thyroid, and hormone function works!. But you must be strict.)
Im living proof it works. I used to wake up feeling like id been hit by a truck and the last thing i wanted to ddo was get out of bed. My feet always felt like they were always in a vice grip that was being compressed to the last notch.
Every year i got worse. Sleep evaded me and i was in a constant state of stress.
Now i sleep a full 7-8 hrs, run the stairs like im 18, and everyone remarks how good i look, as a wonderful side effect was i lost most of the harmful viseral fat ( ive lost weight before but never like this, it literally carved and sculpted my shape as it is all rhe internal fat) My skin has lifted and firmed up and glows. Youve nothing to lose and everything to gain. This country is hell bent on sucking away everyone's health and get all on multiple rxs to further enrich the pockets of big pharma, after big food destroys you. Btw i take ZERO prescriptions, and ONLY suppliment iodine and ive only taken aspirin once since april of 2023 for a headache. My levels are outstanding !Everyday im amazed at this miracle of healing and it keeps me on track! ( Trust me ive stumbled here and there, being conditioned and addicted to the foods that are SOOO inflammatory. I pay with how i feel and have had mild pain when not all in those brief moments of not managing my diet with VIGILANCE.)
sugar and alcohol cause me pain. if i drink a bottle of whiskey over a week, my joints begin to hurt. knuckles, knee, back. When i abstain, the body begins to repair within a week. everything becomes more mobile. It's like day and night. same with sugar. so i generally eat omad, and low carb. then i fall off the wagon, binge on chocolate or wine or both, and then it comes back. within a week. it's like a switch. the trick is to pick a diet that's inclusive. exa. ple, dates have a low gi, so i make my own candy with dates and nuts. alcohol i tend to stay clear of. problem is, wine tastes so hood. beer on a hot day, oh my. whisky at a party or just to dump a few neurons into the sink. it takes years to adapt and shake the western fallacy of wheat and sugar based diet, and two units every night.
I have been using cannibidoil and find it's the only thing that helps my fm. I still have some bad days and nights but compared to how I was this is a miracle. My night delirium ie zombiefied because of lack of sleep is 90% better than it was.
Hey Diana, happy to hear that you found something helpful for your sleep. As you might have experienced, you had to try out different things before you found something that fits you. And that’s something very important because in chronic pain and especially and fibromyalgia there is no one size fits all and it sometimes takes a lot of patience to get to this point.
I have ulnar neuropathy for past 3 years and neck pain. Doctors doubted its a mND motor neuron disease and they still following my disease to confirm what it is. Past 8 months i have several body pain and joint pain and doctor said its a fibromyalgia. And mytochondria is dysfunctioned
Yes, sometimes it’s really hard to discover where the symptoms come from. Of course it might be fibromyalgia but you should wait till other possibilities are ruled out. There’s a certain number of diseases with pretty similar symptoms and these have to be checked for first. Keeping my fingers crossed for you.
@@gideonfranck5950 is it possible having genetic disorder and fibromyalgia in same body? I'm dying in pain
Hey Rocky, of course this might be possible. But not knowing you and your precise medical history, it can’t be up to me to tell you if it’s this or that. I’m sorry about that and hope you understand. It would be like a shot in the dark with one bullet. The chances I tell you something terribly wrong are pretty high.
But if you like to, you can drop me a couple lines by email or a DM on Facebook.
What steps were needed to conclude about the mitochondria dysfunction? Was there any screening testing done for confirmation? Thanks!
Just found out that mitochondria disfunction can be confirmed by MGC8 and HTRA2 gene mutation test.
Anyone try Low Dose Naltrexone?
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Thanks for posting that info.
Thanks for sharing
I have fibromyalgia and rheumatoid arthritis
Same also have AS
P.S. I suffered for 7 years and no Rx helped me for longer than 30 days.
Cure please
I'm so sorry, but there's no "cure" yet. But starting the journey of recovery is possible I think. If you like to you're warmly invited to check out the website of PPL: www.painpauselive.com
Is there a blood test for fibromyalgia
Thanks so much for reaching out. Unfortunately, there is no blood test for fibromyalgia. It can be solely diagnosed by a number of different symptoms that make up the whole syndrome.
I am in lots of pain for about 3 years,nothing seams to help.
I watched quite a few videos and chatted with some folks who tried to address fibro/cfs with B1 (thiamin). I stopped eating processed food, including bread, about 6 months ago, strictly followed a protocol since then too. Had terrible flare ups. Two weeks ago I started taking methylated folates, B1, B3. I haven’t had my symptoms reduced to this level in 2 years. I’m reluctant to celebrate because although I feel so much better I also know things can get worse quickly, BUT I feel great, been so busy and even managed to exercise. It’s a pretty cheap and harmless thing to try. Do some research and maybe consider it
What is your oxalate intake like? You might be inadvertently poisoning yourself with high oxalate so called superfoods like spinach and almonds.
It's definitely worth looking into if you eat those types of things.
The other thing to look into is the new research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia, which shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks. Being low in bicarbonates causes the body to run in a hyper inflammatory mode.
This is nothink new we been told this for years
Wow, then you have been way better informed then most others. Congrats! 👍As I wrote in an answer before, there are a lot of new fields where scientists try to discover different things, like small fibres neuropathy etc. but nothing of it has been proven yet. Good science is a slow business. 🤷
It is extra frustrating when people don't believe you, thinking you're a drug seeker. I wouldn't wish the pain and fatigue on anyone.
Hey, Debbie, you are so right. When even doctors don’t believe you, it’s an awful place to be. How do you deal with it? I bet there are a lot of others out there who experience these situations.
I do take Gabapentin but want to go more natural products.
It’s from atrazine and glyphosate !!! I don’t have it or celiac disease or peripheral neuropathy all pain gone got my life back from crippled to happy
Sorry to hear what caused the pain. Yes, there are numerous causes for widespread pain, one is certainly contact to harmful chemicals. But I'm really happy you got your life back. Cheers for that!
@@pain.pause.live. ya I know everyone’s different genetic make up ,mine did this to me from those, I also had fibromyalgia and chronic insomnia it took me a year and a half to figure out what was killing me untill I gave up and quit everything in life I loved and started eating only washed steamed rice and bottled water, because every time my friends from Europe visit they go home and complain about how sick they are. in two weeks the fibro went away and the celiac , then peripheral neuropathy in side of 5 weeks ! Then 2 months ago I quit all off the shelf hygiene products and went all natural and inside the middle of the second week I did not expect, but ! my chronic insomnia just went away all like I’ve never had a problem ever being Crippled. This is just my story in short hand, oh the insomnia for me is from the aluminum power in deodorant. we as humans never need fluoride chloride, my deodorant now is better then any I’ve tried in life I don’t get funky anymore, it’s 50%50% sodium bicarbonate and castor oil and I brush my teeth with apple cider vinegar and sodium bicarbonate.
Has anyone tried LDN
What did you do to help
@@noraaa8479 that’s just the thing, I didn’t want to help it ! I wanted it to just go away so I kept track of all I ate , it took a year to figure out what I was allergic to at the end of the year with almost no idea what it was still , I quit everything I loved and just ate steamed rice and bottled water and certain vitamins and after a month all three diseases just went away like I never had them before…. Then started adding back one thing at a time till I narrowed it down to the Chemicals in the food supply , and stoped eating any of those….this is in the beginning of the plague, but now these Chemicals are in almost everything…. I also had Chronic Insomnia for eight years before all this and 3 1/2 months ago I decided to stop all the normal hygiene products and in the middle of the second week my Insomnia just went away, and I started back with one at a time till my sleep messed up again, it was the deodorant and come to find out my other Chronic Disease Was from the Aluminum powder mixed into it… we are an Electrical being and the aluminum impairs the brains connection to your circadian rhythm destroying our sleep till we just can’t anymore, I sleep like a baby now !!! ,Tim.
Can you develop fibromyalgia after a cervical fusion?
Well, the majority of patients doesn't respond with widespread pain to a cervical fusion. But sometimes central sensitization can be triggered by such a health event. This might eventually lead to symptoms like those in fibromyalgia. But this might also be far fetched. What's your doctor saying?
I had a cervical fusion over 30 yrs ago and got fibromyalgia soon after. I also have worked at a Surgery Center and have spoken to numerous patients who have also had the same outcome.
Absolutely. Mine started with a car accident and injuries requiring cervical fusion. Trauma to the body can bring it on.
Anyone tried GeneInsight or doctor advocating for you to get genetic testing done to narrow down your options?
Testing for what i have autism heds fybromyalgia genes for it
@@Truerealism747 I see. Hope it can identify good treatment plan for you.
Neuroplacticity brain rewiring is the way forward ! .
Well, basically all this is leading to neuroplasticity or is an effect of it. Neuroplasticity in chronic pain isn’t new either but now we have a category like nociplastic pain and first research on neuroinflammation (about which we don’t know enough yet) that might to different treatment schemas. On the psychological side some are already out and the program of Pain.Pause.Live. incorporates them. Within the next weeks an updated video will come. 🤓
No, I would say replenishing the body's bicarbonates is the way forward. Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Mind body.
Exactly! While fibromyalgia may have a lot of different causes, it’s always mind and body together. When we feel chronic pain, both sides are absolutely interwoven, so I think it might be even worthwhile asking if this strict separation between mind and body makes any sense at all. What do you think?
I’ve been on a healthy eating no processed foods, exercise, and tried so hard vitamins still having flair ups and they getting worse but my biggest challenge is getting a doctor to take it seriously and stop offering me antidepressants which don’t work and I’ve stopped going to doctors I have no life had enough of chronic pain all the time doctors won’t give pain relief so been using deep heat or ice carnt sleep the fatigue is that bad I now use a scooter, I have crohns type one diabetes angina edmedroises and seizures I see some people have a care plan but the doctors in my area don’t believe it’s real since my diagnosis I’ve had less help from my doctors so I’ve given up , really don’t know what to do it can be very lonely and it makes me mad my sister was at the hospital with my niece and she said a lady came in on crutches and collapsed she had fibromyalgia the hospital didn’t take her seriously so her partner carried her to the car to go to other hospital this is how people are being treated like it’s all in our heads , my sister asked why she wasn’t treated and the nurse said we carnt treat it’s not a serious she’s acting, which my sister replied if that was acting she dersvers a award , when she told me I wasn’t surprised then she said I didn’t think it was real until I see that lady which hurts when family thinks you’re dealing with imaginary pain and extortion, love to anyone who has this as the sigma is as bad as the fibromyalgia ❤ hope they find better research and then we can get the right treatment
I do not agree. I have a high tolerance for pain. I don’t know I’m in pain till my blood pressure goes up. So no lower pain threshold can’t be it. I think it is a neurological and nerve issue and even a disease like lupus not coming to head.
Thanks for mentioning this! As you pointed out rightfully, it might not be fibromyalgia. While there is a huge diversity within the group of fibromyalgia, patients, not everything I mentioned in the video holds true for everybody. But high tolerance levels of pain are quite unusual for fibromyalgia. this is why the symptoms should be checked very thoroughly specialists. If it’s not fibromyalgia, the symptoms should be treated differently.
Steam sauna! And Swimming at the local gym has helped my fibromyalgia for years
No new info
Great you‘re well informed!
I have always hated that name they gave it "fibromyalgia ". If nobody knows how to treat how and where did they get that name ?????
Dear Marian, thanks for this comment, it's not only important for you but for others also. It sounds like you've been through quite some journey within the health system. I'm sorry to hear that there hasn't been any help for you yet. The name fibromyalgia comes from the most common symptom of widespread pain especially concerning the muscles and ligaments, so it is purely descriptive. The other symptoms are very varied between people who suffer from it. That's why we speak about a syndrom. But still I think that we can do things to get better. I'd like to invite you, if you want, to get my free pdf on the pillars of a holistic pain treatment here. Hope it might be a first step of help. From there you can discover what PPL has to offer (free or paid as you like). Here's the link to the pdf: www.painpauselive.com/6-pillars
I have suffered for decades and relate to what has been said by others all too well. I have to say that the content of this video was disappointing, in that, there is nothing new. I’ve known about cytokines etc for years but it makes no sodding difference with GPs here in the U K. I want to try natural therapies such as B1 but try❤ and get a GPs support, well you may as well plait fog! The medical profession just want to pump bodies with chemicals from drug companies. I tried them but ended up in A&E.
Dear Josephione, I'm so sorry to hear that. And sorry to hear that my video had nothing new for you. There seems to be a long way to go from findings in research to any remedies - if there are any. Unfortunately we know that most kinds of medication don't work for fibromyalgia. So most GPs are just as helpless as their patients. So I can understand perfectly well, that you want to switch to natural therapies. Did you ever try any mind-body therapy? If yes, what is your experience with it?
The absolute best dietary source of Thiamine, B1 is pork.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Thank you.
Any body has fibromyalgia along with fibroadenosis
There are so many more symptoms to Fibro tells me that’s it’s more than the pain system. The body is always exhausted, sensitivity to light and sound. Constant running nose, dry eyes, and a general flu like feeling. Not to mention that humidity or severe cold makes the condition 10 times worse. My own pain doctor doesn’t have a clue about what fibromyalgia is, or what it’s like to suffer with it. Oh, and I almost forgot, twitching muscles all over the body and pins and needles especially in feet.
You are absolutely right! Phibro is a complex disease with a whole lot of systems in the body, losing their grip to normal functioning. That’s why we call it a syndrome. And because of our better understanding, a new kind of pain has been added by research: nociplastic pain. For a little more in-depth information you can watch my other video on fibromyalgia or visit my website painpauselive.com
Dr says I have it, be buggered I’m not accepting that diagnosis
It has to be thoroughly diagnosed, because there are some conditions with some of the same symptoms. If done correctly fibro might be the right diagnosis. What have you been doing about it?
If you don’t want to accept that diagnosis and I don’t blame you, I’d be looking into elimination of neurological conditions, and mri scans to eliminate spinal impingements
is horrible live like this
Not latest at all, this is old news.
Sadly, Australians are too laid back to do anything about these issues. Australians are not even able to elect their own leader. The PM is beholden to his party, not to the people.
It's sad to hear this. If you don't mind, let me ask: What's been possible for you to deal with your pain so far?
New?
You sir are not telling us anything new
Has anyone thought it could be part of our diet?
You raise a very important topic. I’m not sure if I understand your question the right way. So I will answer it in two directions. Diet is always delicate topic since our knowledge about its effects on the body changes from week to week. What we can say for sure is that certain kinds of diet can foster inflammation in our bodies. But up to today we don’t have any proof that this causes the central sensitization as in fibromyalgia. On the other hand, as we know that inflammation, plays a role in fibromyalgia an anti-inflammatory diet might be very helpful. We don’t have any good studies on this yet, but it seems very plausible that this might help. I’m pretty sure that a lot of those suffering from fibromyalgia already tried changes in diet, and it would be great, if you just left a comment down below. This can be valuable information to help others on their journey through chronic pain. 👇
@@pain.pause.live.I found that diet doesn't help me - it doesn't seem to matter.
If it's something you are reacting to in your diet, then it's a symptom of allergy/intolerance, not fibromyalgia. It could also be a lack of certain vitamins/minerals in your diet, as many types of these deficiencies have muscle/joint ache/pain, insomnia, brain fog, fatigue as part of their symptom list. But if these symptoms go away when you address nutritional deficits then it's NOT fibromyalgia. Fibromyalgia is a diagnosis of exclusion. Basically, if nothing else can explain it, then it's fibromyalgia.
I do think a poor diet does have an adverse effect. Hippocrates said “let your medicine be your food and your food be your medicine” Despite trying to eat as healthy as possible, I’m still struggling. we still have far too many chemicals being ingested that doesn’t help us at all. There are still pesticides being used on the land that are known to be carcinogens, animals are injected with a concoction of anti this and that subsequently we ingest that. The feed that is passed by the MAFF has not been fit for in the purpose in the past, so how can we trust them now. All we, the general public, can do is the best we can and try to purchase our food from reputable sources.
I do also think that trauma either psychological or physical can upset the body’s balance. In my case I’ve had physical traumas to my spine; underwent multiple surgeries over my lifetime for different issues including cancer and because of that, I believe the subsequent pharmaceutical treatment had a profound detrimental effect on me to the point I could no longer walk more than a few steps. Genetics also play a part in my humble opinion. I just wish there could be a database of constructed evidence of cause and effect of B1, D3 etc that doctors could monitor patients specifically with Fibro. There is evidence on 2,500 people having profound reduction in tremors with B1 therapy so why not us? Just a thought, as both sets of patients have problems with Dopamine dying cells in the brain. (Hubby has Parkinson’s, and we both suffer with sleep disruption, cognitive decline/brain fog and other similarities.
This is all old think.
Worthless info.
No info is worthless. Shedding light on an issue is always beneficial.
🎉Quit talking about yourself that way in public 🎉😅