That made me really happy to hear that you've found some relief from suffering. I know exactly what you're talking about. Wish you all the best in finding more peace. Namaste x
I had a doctor's appointment yesterday and because of you I was armed with better information to give him to help me. I will be ordering your book next pay day. He moved my diagnosis from fibromyalgia to severe fibromyalgia and I'm being referred to a rheumatologist that I researched that deals with fibro patients and I have started the process of applying for disability as I haven't been able to teach voice lessons in two years. Hand cramps, back cramps, fatigue, and the brain fog that stops me mid-sentence while instructing and completely lose what I was saying or worse... I can't read my sheet music (very embarrassing and frustrating) I can't thank you enough for posting these videos and educating me so that maybe I can get back some of my life.
Can Totally Relate. A frustrating cycle 😢. May you have more moments of calm/ release from the tightening knots and find some better ways through this crazy condition. Drink all the water you can and move as well as the day allows. This Dr. Gives me hope that someone has begun to understand and untangle the mess we feel building up in our bodies. Gotta streTch now. ( don’t feel like it, but if I don’t I know I’ll pay with interest later! Take care. 😊
Fabulous info! I’m a RMT, practicing 20 years and specializing in Structural Myofascial Therapy and chronic pain management. I’ve seen how much pain relief slow, specific myofascial therapy can provide. I was diagnosed with fibromyalgia 22 years ago about 18/months after a serious car accident. Myofascial therapy can benefit everyone, but especially those with fibromyalgia. Thankfully there is so much more research and validation of this invisible excruciating condition.
I, too am a connective tissue therapist. I am stunned that doctors cannot feel what we feel when palpating! Fibrotic tissue is a problem and Lyrica is not the answer.
If only treatment was covered. I reside in Canada and am on Disability, in part dt pain from Fibro, Osteo arthritis and trauma. This means, it's not accessible financially..the system is failing society bcwe want to live fully, contribute and be a part of the world...but many of us are home.
I have heard women with fibromyalgia have reduced their symptoms by increasing their fish/sardine consumption. Apparently a diet very high in omega-3 fatty acids helps with fibro pain. I will be testing out the theory very soon.
Thank you so much for posting these videos and writing your book The Fibro Manual. You are the only doctor I have found who has this knowledge and I am so grateful to you! I go for myofascial release massages every 3 weeks as it significantly reduces my pain. I recently went to a functional medical doctor. I brought your book hoping we could make a plan, instead his ego was bruised because he interpreted that I was meaning he was not as knowledgeable as you and got into quite a tantrum. I have had so many bad experiences with doctors. So, if not for you I would be completely lost. I am trying how to figure out how to get deep sleep but have had no luck so the fatigue and brain fog disable me so I can’t live a normal life. Thank you again for all you do for those of us suffering with Finromyalgia.
Yay thanks for posting on Fibromyalgia. If you could also make a video on Myofascial Pain Syndrome & on that tiny organ that connects the fascia to the bone. I believe it’s called the Enthesis & feels like tiny extremely white hot & painful to the touch ropes along the bones. I can’t find much info on this in any literature. I’ve been researching since my disability in 2016. Doctors really don’t know much on anything around fascia. Luckily I’m able to still get opioid pain medication so I can get out of bed & at least use both my hands & arms to feed myself or take a shower. I can do more then about 10 things a day before the fascia in my forearms & hands completely seize up 🤷♀️ Thank you so much for fighting for us here in Oregon when a group in the gov was trying to get opioids out of the schedule for back pain. This group was made of acupuncturists, NA doctors & the like. Without opioid pain medication I would be able to feed or bathe myself but most have know idea how debilitating this pain is or how the fascia will just seize up.
Yeah I think I have that aswel I get the same as u as I changed drs twice so far they are being right gits about my pain meds I can't have antiimflammatory expect steroids but don't even like giving me that. I have spondylitis spondylolisthesis etc aswel but they really don't care they just think some take it for the sake of it but that's not the case eh. U have my 😢sympathy ❤
@@lindaireland2751 omg! That’s horrific! I’ve had to bring a friend in with me at time where I felt a specialist wasn’t taking me seriously. If you’re not getting the care you need you can always speak to the admin of the hospital. Also do & bring in supporting research as to what you want as treatment & prove why it helps. I have done that often as well. I’m so sorry 😞 thanks for the comment 🙏
@@OurMultipolarWorld oh the admin at the hospital ok great thankyou so much hun I know it's horrible when they don't take people seriously. I hope u getting al the help u need thankyou so much il give it ago see what I can do. I know its so hard when you have health issues&always in pain. 💞🙏
@@OurMultipolarWorld I understand your pain my traps, scapula, shoulder biceps triceps and firearms muscles all ache, to the point I feel the attachments of ligaments to the bone, if I turn my forearm I can feel the two bones move and thus in-turn the ligaments move and create more pain. I get sensation that are worse than most people describe, they talk of pins and needles I wish I had that, instead it feels like prickly heat. The funny part is I can get sunburnt so bad that I won’t even feel it on my arms or back. Opiates we’re terrible for me, my tolerance always goes high. At one stage I was morphine 150mg up to twice a day. So far I’ve experimented on myself with HGH, Peptides, TRT all having incredible results. Unfortunately these aren’t legal treatments in my country. Peptides are, however they’re very expensive. Vitamin IV infusions worked wonders however again too expensive. Cortisone works wonders however too many and atrophy will occur. I’m going to be hopefully trying a ketamine cream soon. Hopefully that will help. Most of the data seems to be done for women as most fibromyalgia patients are women.
Great video yet again :0) My fibro support list is below (not in order of importance) after decades of suffering. 1) L-Citrulline is great for my energy levels (really good for men with ED also, as is converted to nitric oxide - viagra killer). 2) Phosphatidylserine is great for brain fog and word recall. 3) Clean food and high protein (with exercise if you can manage it). 4) Stress management - remember the 1m2 rule (1 meter squared) - when everything is going to rats around you, bring it back to your immediate environment of 1m2. That's all you can control on the entire planet Earth. Love and peace to you all xxx
Hi Dr Ginevra, thank you soooooo much, I have your books, my pain Dr took a screenshot of your book, and she says she is going to read it, also a couple of Drs at my surgery were interested, and took details, they said they’d pass this on to other fibro patients. Without you, I would have shuffled off this mortal coil a long while ago, so thank you again, with all my heart. ❤ (UK)
I have had your books for years and I have been to your clinic. I was diagnosed at age 30 with fibromyalgia and I notice that as I age(I am 67) it is getting worse. I need to pull out your book and get going again. I think I have been denying it and trying to mentally handle it. This is perfect timing as I was to a point of wanting to give up.
This makes so much sense! I am crying in relief just to have answers, because I am severely impacted by fibromyalgia, to the point where I am disabled, and went on gov't disability without being denied (and having to appeal) and no other diagnosis. That was in 2000. All this time I am so frustrated by the lack of answers and treatment! Since then I have developed other conditions, but the worst is still the fibromyalgia. Just having explanations gives me hope. There is a Dr. using ultrasound in brains to break up Alzheimer plaque in the brain, with astounding results. I wonder if it would be useful on the excess collagen in our fascia and muscles?
I am so glad to provide helpful information!! Ultrasound is often used by physical therapists and does seem helpful in certain conditions. I haven’t heard of it being helpful in fibromyalgia, but may need to be done differently to focus specifically on the fascia.
I've been diagnosed with fibromyalgia and one of the most lasting relief I get is when my physical therapist uses ultrasound to treat my trigger points. I've developed autoimmune issues too.
Bless you and all your videos. Believe me when I say that when I get better, expect an email from me. I've always loved nueropsychology and wanted to get my PhD in it. When I improve, I'd love to go back to school and use my knowledge to help others like you did 💙🙏🥰
Your explanation so clear, thank you for that. It's interesting indeed 😅 I already read your book. Unfortunately there isn't John Bara ns method therapist in Israel 😢
I wonder if there are other fascia-directed therapies available locally for you. I am doing a video really soon about mfr and other similar therapies, some of which originated in Europe so might be more likely to have therapist trained in those approaches in Israel.
@@thefibroshow Thank you! There are some therapists who claimed they're fascia release but it was too painful for me (with a metal tool that supposed to release the adhesions under the skin). Looking forward to your video. Thanks again ❤️
OMG! It was said in The Body Keeps the Score that there is a link between childhood abuse and Fibromyalgia. I've been reading all I can on CPTSD with no mention of how it plays out physically, although I have personally lived it. So here it is, the explanation. Thank you so much! I have muscles that haven't let go in over 30 years. Trigger point therapy was the best, but many years ago when it wasn't taken seriously. As soon as you said "sympathetic nervous system" and "flight or fight" , although mine was/is "freeze", as soon as you said that the light came on. So much of what you describe, I can actually feel. I have done a lot of reading and listening to lectures about CPTSD recovery this past year. Part of the problem is lack of memory of the traumas and should we really go there? Until my recent reading about Internal Family Systems, I had just given up. I have a long history with psychology, on both sides of the desk. I am 75yo. and well read on the subject, studied family systems in the seventies. I am saying all this because you might want to consider the source of the fear that causes the sympathetic system to be so hyperactive. But that being a dark and endless hole to crawl into, IFS offers a much better perspective than traditional approaches. I'm too old to crawl into dark holes, led by someone whose skills I question. But, IFS isn't about damage or blame, or reliving the past, or any of that horrible victim mentality. It's about negotiating with my various parts that believe the reasons for the fears continue. So that is what I am starting to work on now. We don't think of the unconscious as being so accessible but like talking to a person in a coma we can still comfort those fearful parts of ourselves. And those parts are like children, who can be comforted, calmed down. Richard SchwartzPhD and Susan McConnell developed these ideas. There's a web site and excellent books by both. Goes well with massage.
I agree that IFS can be super helpful! I personally have found it very useful. And yes I should definitely add the freeze part when I talk about the fight or flight nervous system, it's just too bulky to say frequently. Thank you so much for posting.
Thank you for your dedication to sharing your knowledge & experience. I follow you closely. Wondering if you are also aware that some of us seem to have a B12/folic acid deficiency connection. I’ve struggled with these deficiencies for years with no medical explanation. The deficiency symptoms overlap with fibro/CFS symptoms. Mine can be quite severe but don’t always show up as anemia on labs. Had to test directly for active B12 & FA levels to figure it out. I now do self-injections 2xweekly & my levels stay high. It gives me not complete, but significant pain relief. But if I pause for even a month the Fibro pain returns like sledgehammer - even tho my lab levels stay high. There are studies published on the connection, but would love to hear your perspective.
I definitely think that looking for nutrient deficiencies ( iron, b12, folate, magnesium) is important in fibromyalgia, along with looking for MTHFR gene mutations that impair ability to utilize folic acid. So glad you have found some relief!!
I have been a fibromyalgia sufferer for years. Your breakdown of fibromyalgia is meaningful and accurately depicted. The information in your videos bring me so much comfort 1 because your a fybro warrior yourself and 2ndly because validating the existence of the condition with scientific reasoning n findings helps sufferers like myself feel validated. I have lost my ability to work due to the chronic debilitating symptoms associated with this condition . My muscle pain is so intense even when i use aids such as lidocaine patches, bio freeze, zanaflex epsom salt baths. I have recently filed for disability as it is nearly impossible to do things for myself without exacerbating my condition . I pray that the study in search for more answers for this condition continues to grow. I have forgotten what it feels like to live a pain free life but videos such as these keep me hopeful that more findings, newer treatments and more medical awareness from medical professions are near . Thank you for your stellar explanations and advocating on behalf of all fybro sufferers your work is needed 💜
Your information is so valuable to me. Learning about the fascia and how to relieve the pain caused by it has been beyond helpful. I am almost 59 and I only wish I knew this information earlier in my life.
I'm so glad I stumbled on this video. I will definitely read your book to find out how better to treat my fibromyalgia. I broke my shoulder 9 months ago and even though the bone has healed, I still have tremendous muscle and soft tissue pain 24/7 even after 5 months of physical therapy. I wonder if it will ever go away.
I have been trying Red Light Therapy for fibromyalgia release as it is supposed to address the cell mitochondria & help decrease inflammation as well as aiding sleep. Please let me know if u have any success with using RLT.
Not red light, but I started laser hair removal 3 months ago and since then I haven’t had a pain flare where it feels like my skin was burning. Before that I had burning pain 2-3 times a week.
Thank you so much, I do have your book too. I just have two questions, I'd wish I could get an answer? #1) collagen supplements~good or bad? #2) bullet massagers~go or no? I have a Renpho, it feels great, but not sure if I'm making my Fibro worse. 😭
Collagen supplements are not a problem. I think this is because it’s really the inflammation levels driving the process, not the amount of collagen in our body.
I do appreciate your videos. It confirms many of the symptoms we have. I did get your book. Any suggestions on weight loss? I went from being highly active to gradually gaining weight. It seems I just can’t lose it the way I was once able. TY
Glad my videos are helpful! There are hormonal changes that happen in fibromyalgia that can affect weight, you can learn about these in my book The FibroManual.
When I was early on in my diagnosis of Fibromyalgia and still working as a RN, I was going in to the pain clinic and was getting 45 trigger point injections all the way from the back of my head to the crack of my butt & up in to my tailbone until they changed the amount of injections that could be given in one session. I’ve learned the hard way that if I overdo anything that works my arms at the midline (like weed whacking, weed blowing, pushing a lawnmower without self propel, etc. my entire back/shoulders are so tight and knotted up that it makes me feel insane. That stiffness and pulling sensation of that entire underling fascia is just a terrible feeling that makes you feel like you want to escape from your own body. I have to get Capsaicin muscle rub (don’t use during the summer time because you can actually get burned from the combo ) and put in all over the same area and maybe in 3 days I will be able to move a little easier. I had to stop working at age 42. It’s been really hard battling it out for the last 11 years. I don’t do any trigger point injections at all anymore but do get steroid injections in my SI joints, and I’ve had a radio frequency ablation twice to my lower thoracic spine. I also have arthritis that is really starting to finally show itself with all the ugly knobs and bumps on my finger joints, toe joints, knees, and elbows. Now, I’m seeing calcification/bone spurs in all those areas that the doctors couldn’t really appreciate at the time. I do believe that I’m at the late stage of chronic muscle damage that just never goes away so I really watch those activities that make me tighten up and avoid them at all costs. That’s why I don’t do the trigger injections anymore. If a person goes to squeeze my shoulders, they’re always shocked at how hard my back muscles are. I wouldn’t wish this on anyone. It also kind of sucks that this is an “invisible illness “ with people sort of side eyeing you or not believing that you’re in as much pain as you say you are.
The invisible part of this illness is so frustrating. Worth looking into myofascial release as it can really reduce stiffness and pain in the fibromyalgia muscle.
Upper cervical chiropractor that I went to found a C1/C2 twist causing an Indian burn on my spinal cord leading to my intense fibromyalgia symptoms. C2 was twisted 8 degrees. They were causing head to toe pain, hands and feet numbness, constant headaches and much more.
I so wish that researchers would stop doing the stress testing on animals that is described here. There are plenty of us available with severe pain to ask about how this works and that would even be willing to help in research.
So would taking collagen powder actually increase my fibro pain? I try everything in hopes of something working and I read collagen can reduce pain so I am confused.
In future videos I will be more clear about it because definitely confusing. Taking collagen supplements in fibro is not harmful, maybe even helpful. The problem in fibro fascia is really excess inflammation that overproduces collagen, and increases frequency of collagen cross links which makes sticky fascia. More collagen in the diet doesn’t make sticky fascia.
Can fibromyalgia symptoms come after a spine misalignment? My symptoms came after a fall where my undiagnosed thoracic scoliosis at the time got affected with the fall? Ever since that fall I have daily upper back pain, fatigue, limb pain, ibs, brain fog
I began having symptoms after severe COVID which attacked my spine with stabbing pain worse than natural childbirth ever was! I suspect COVID was a trigger.
Hi, I've had fibromyalgia way before the name for this complex disorder came out. I did have Ankylosing Spondylitis that went into remission in my 50s.. It started in the the sacroiliac joints in 6th grade. My mom thought it was menstrual cycle pain. Back then, they didn't have a way to find the HLA B27 gene in the blood. Now I have 4 autoimmune disorders.
The only release I experienced was from Thai massage. Myofacia was good for the moment, but in long-term deep tissue release was where I experienced the biggest and lasting impact on my lower legs.
Read your Fibromyalgia Manual and The Fibro Food Formula. They are helping. Thank you. 🙂 Is there a second edition coming out of The Fibromyalgia Manual with your mouse study & more? If so, when please? I want to get a hard book 📕 copy for my primary physician. Also, thank you for informing us with your videos. You narrating them adds points of emphasis which is quite helpful. 😊
This video caught my eye though I am not a fibromyalgia patient, I have polyneuropathy, mixed fiber, and knew that some believed there may be some similarities, however few or many, between the two. I read both studies but neither says anything about fascia muscles and of course they state: Conclusion The results show that increased muscle pressure may be a significant cause of pain in FMS, and the etiology of the pain may have a large peripheral component in addition to a centralized origin of the pain. So, it seems to say that increased muscle pressure (the first cited study used the shoulder blade muscles, 2nd study uses already diagnosed fibromyalgic connective tissue) as well as some chemical imbalances may be contributing factors in the two origin theories of fibromyalgia noted above, but that this invites further study as it makes no definite conclusion on a specific cause of fibromyalgia. At least that seems to be the scientific view from the studies you cite, except your own, which I could not figure out how to look, at the cited material. But I'm curious how of the studies I've looked at, none other than yours has come to such a specific conclusion. Even the Mayo Clinic say in so many words, Myofascial Therapies may be as effective spine manipulation and deep massages (April 23, 2023). I have run across a couple fibromyalgia patients when I see my neurologist once a year, though they tend to be severe cases, which maybe outside of the scope of your theory? Or not? I have large fiber neuropathy in my hands, arse, ankles, feet and toes, all of which are starting into advanced stages. Half my toes are numb and I cannot feel them anymore and now I must be care and pickup drinking glasses with two hands as sometimes my right hand will drop it because I've suddenly lost the feeling of it (it's weird as hell!). Luckily I still have my left for my cane. I have small fiber neuropathy from the neck through the feet and have had 3 cores taken, all showed damaged small fiber nerves. I wasted 2 years at Mayo's neurology dept. taking $27K USD worth of tests just for them to say we don't know, come back, in 6 months. Ha! I found a neurologist closer to my house, who spent 45 minutes with (with only straight medicare!) me and his hammer and pointed stick and said you have large fiber neuropathy, we will keep talking and get your gp to obtain a bunch of (they used 11 tubes) blood draws to see if we can fine a reason but he said many times a cause is not found. Nothing happened around the time, I just went get off the bed to head to the bathroom and fell to the floor because the first and second step felt like 3" pieces of broken glass shoved up through the bottom of both feet. I was fine I second, and ajorly "f"d up the next. About 6-9 months later drying off out of the shower felt Iike 40grit sandpaper and picking up a spoon felt like I was sleeping a handful of razorblades in the palms and individual blades slicing the inside of my fingers. It accelerated quickly, again fine bloodwork and organ functions. But now I am bedridden and sleep 16-18 hours a day (the heavy fatigue is very recent) and only on my sides. I have to take a very large dose of gabapentin, mexiletine for the additional harsh hand pain, as well as the next best thing to morphine, all so I can get up and eat a meal with my family, or I pop an extra dr. feelgood (my pain doc gives me x at extra each month for this kind of purpose) and my wife and I went to a small mall nearby and went to a couple shops and sat in the shade and light breeze and relaxed. Things like this people don't care much about, but for me, even the 1½ hour out with my with is a treasure to me. I have tried many non-medical therapies and such, but at least in my case, they don't and will never work. Everything my neurologist told me years ago that could happen on the more negative side has/is happening and that's okay. There is a new drug in trials now or upcoming that they believe be able to repair damage mylienated (large fiber) nerves. That would be great especially for my hands. Anyway, I'm off topic, but I'm interested if you could cite any other studies working or peer reviews of your published study. I'm apparently not too bright when it comes wor,ING around those open source sites. Medical or therapeutic, I'm always interested in any topic that may have some crossover to mine, even if minor. I have lots of free time! 😊
What I think myofascial release can be helpful for many pain conditions including neuropathy (not what you are asking but important to consider). My theories about fascia, muscle and immune system in fibromyalgia are definitely still in the theoretical realm as this is not an area that is really being studied (I am trying to change that!). Full text of my article and references is available here: www.bodyworkmovementtherapies.com/article/S1360-8592(23)00096-7/fulltext
That's a timely but very complicated question! I have had many patients really struggle with the nausea these meds can cause, and a few found it made brain fog worse. But my sample size is not large. I am curious if any folks reading these comments who have tried this type of weight loss med found it impacted them and their fibromyalgia symptoms.
Can I ask if you believe in the theories of origin of bacterial infections (or atleast contributing) combined with numerous other Co-infections. Also in your research have you seen a hereditary component? I've battled this for decades and I'm now witnessing my 28 y.o. experiencing lots of neck and back pain. I just found your channel and am a new sub. Thank you
Welcome to the channel! I talk more about this in my book The FibroManual but yes for some folks major infections (like Lyme and other tick-borne illness, viruses like COVID) can be the trigger that sets off the nervous system. And sadly there is a hereditary component, studies show relatives of people with fibromyalgia are 8x more likely to develop the condition themselves. The good news is the sooner accurate diagnosis and treatment are made the better the long-term outcome.
No collagen doesn’t seem to have negative effects in fibromyalgia. It’s really the inflammation in the body driving the process of laying down extra collagen, not the amount of collagen in our body.
I can’t find any studies on fascia and anti-fgfr3 , but would be really interesting. Small fiber neuropathy occurs in 40-50% of fibromyalgia patients. Would be good to look for that antibody in fibromyalgia.
@@thefibroshow there are now many other known antibodies associated with small fiber neuropathy - including anti-fgfr3....ts-hds....anti-plexin-d1......MX1, DBNL, and KRT8 are additional antibodies associated....so....how do we find a researcher to do this work?
Sadly that is often true. Highly suggest giving a copy of my book The FibroManual to your fiancé and her doctor. It contains guidance for both patient and provider.
Thank you so much for what you're doing. For years I have bin searching for answers but still was feeling a lot of the pieces of the puzzle where missing. While people keep on telling me my pain didn't have an underlying cause. I have believed for 20 years that if so many people have the same symptoms it must have causes. Thanks for providing answers and puzzle pieces. I have heard that genes can play a role in it to, and I have heard that people with fybromialga often not have effective results from surtain painkillers. I have, now you finally can make a genetic profile let myself tested, and I have a gene mutation with couses my liver not to break down sertan compounds of the painkillers. I was wondering if there are more fybromialgia patients who has bin tested for this, and if more people have this gen mutation. Maybe it's totally unrelated, and a coincidence, but I am wandering what if there is a small change it is a nother part of the puzzle? Again thank you so much for what you are doing , have a nice day
The pharmacogenetic testing that explores individual differences in how we metabolize medications can be really informative especially when it comes to pain medications.
Has anyone had any luck using massage chairs?One in the 2k range. I recently sat in one for a short time and have to admit it did feel good, but what an expense for something that parks in your living room like a Cadillac (jk). I had a leg break two yrs ago and a meniscus, mcl surgery 6 months ago. From walking cock-eyed with the braces etc. I can’t get my hips and many other musculature parts to move correctly anymore. These things become a domino effect. Any idea? Thank you 😊
After following my neurologist's recommended treatment plan, which involved 12 vitamin B12 injections, 50 doses of pregabalin, and adopting a processed food-free diet, I, a 21-year-old man, have experienced a significant 75% relief from Fibromyalgic pain. Considering these positive outcomes, I am now considering the potential addition of low-dose naltrexone for continued pain management. What are your recommendations regarding incorporating low-dose naltrexone into my ongoing treatment plan?
It's the autonomic component of the NS that needs tuning down, and most CNS depressants don't have much of that function. I cover some options that can help in The FibroManual.
Could it be that it is caused by a Salicylate sensitivity. It is present in vegetables, fruit, toiletry and cosmetics. It cumulates in the body and causes physical and mental problems.
It feels like I have several tiny knots or trigger points in the muscles between my ribs. Rib pain is one of my worst areas along with my back. And hips. Oh and neck! Anyway, are trigger points normal in your rib muscles? My ribs feel so tight it hurts to breathe!
Yes, collagen powder is fine to take. It’s not the amount of collagen in our bodies that is the problem, it’s the inflammatory and neurological processes that cause collagen to be laid down incorrectly in the fascia that is the problem.
Thank you so much. In light of this, are floor exercises a bad idea? I wanted to try them because walking causes horrible foot and leg pain afterward, but calisthenics won’t make anything bear full body weight, and anything increasing blood flow (heat, my arthritis exercises) seems to ease pain. I don’t know what is different about walking and other chores when I’m overdoing it, that lead to pain. But shoulder exercises feel good for a day.
I realize this doesn't address your question about floor exercise, but if you have access to a warm water pool and funds to go (or parks and recreation funding for low income people) in your area, walking in a warm water pool may be helpful. It is at very least, relaxing. You can also look up pool exercises for chronic pain and/or arthritis. Using foam pool 'weights', like those used in aquafit type classes, can help create even more resistance.
@drginevra So after we are diagnosed with fibro, is there any proper way I can propose to my doc to run the tests for our kind of inflammation? Because I find the inflammation is really bothering me a lot. Really thank u for replying me anyway
@@yvonneleng3830 A true diagnostic lab test would be a godsend, even in absence of any "cure" or widely effective treatment. Something to show your doctor there is in fact something physiologically wrong. Many of us get blown off that it's all in our head, we're just lazy, malingering, depressed, etc. I would be thrilled if even a standard lab test would be developed.
James L Oschman (Professor at Energy Medicine University) "Fascia is the semi-conductive liquid crystal matrix which stores and processes vast amounts of subliminal information, of non-neural information, and is the primordial matrix of consciousness"
Started this 2 months ago with my osteopath . Absolutely life changing. I was so close to really, really leaving planet earth.
That made me really happy to hear that you've found some relief from suffering. I know exactly what you're talking about. Wish you all the best in finding more peace. Namaste x
@@humansnotai4912 thank you !
I will start on March 4th. I can’t wait!
How are you doing now?
@@yvonnejordanabdon6356 all the best
I had a doctor's appointment yesterday and because of you I was armed with better information to give him to help me. I will be ordering your book next pay day. He moved my diagnosis from fibromyalgia to severe fibromyalgia and I'm being referred to a rheumatologist that I researched that deals with fibro patients and I have started the process of applying for disability as I haven't been able to teach voice lessons in two years. Hand cramps, back cramps, fatigue, and the brain fog that stops me mid-sentence while instructing and completely lose what I was saying or worse... I can't read my sheet music (very embarrassing and frustrating) I can't thank you enough for posting these videos and educating me so that maybe I can get back some of my life.
Can Totally Relate. A frustrating cycle 😢. May you have more moments of calm/ release from the tightening knots and find some better ways through this crazy condition. Drink all the water you can and move as well as the day allows. This Dr. Gives me hope that someone has begun to understand and untangle the mess we feel building up in our bodies. Gotta streTch now. ( don’t feel like it, but if I don’t I know I’ll pay with interest later! Take care. 😊
changed ur diet. diet is big in autoimmune diseases
Fabulous info! I’m a RMT, practicing 20 years and specializing in Structural Myofascial Therapy and chronic pain management. I’ve seen how much pain relief slow, specific myofascial therapy can provide. I was diagnosed with fibromyalgia 22 years ago about 18/months after a serious car accident. Myofascial therapy can benefit everyone, but especially those with fibromyalgia. Thankfully there is so much more research and validation of this invisible excruciating condition.
I, too am a connective tissue therapist. I am stunned that doctors cannot feel what we feel when palpating! Fibrotic tissue is a problem and Lyrica is not the answer.
If only treatment was covered. I reside in Canada and am on Disability, in part dt pain from Fibro, Osteo arthritis and trauma. This means, it's not accessible financially..the system is failing society bcwe want to live fully, contribute and be a part of the world...but many of us are home.
I have heard women with fibromyalgia have reduced their symptoms by increasing their fish/sardine consumption. Apparently a diet very high in omega-3 fatty acids helps with fibro pain. I will be testing out the theory very soon.
Thank you so much for posting these videos and writing your book The Fibro Manual. You are the only doctor I have found who has this knowledge and I am so grateful to you! I go for myofascial release massages every 3 weeks as it significantly reduces my pain. I recently went to a functional medical doctor. I brought your book hoping we could make a plan, instead his ego was bruised because he interpreted that I was meaning he was not as knowledgeable as you and got into quite a tantrum. I have had so many bad experiences with doctors. So, if not for you I would be completely lost.
I am trying how to figure out how to get deep sleep but have had no luck so the fatigue and brain fog disable me so I can’t live a normal life.
Thank you again for all you do for those of us suffering with Finromyalgia.
Yay thanks for posting on Fibromyalgia. If you could also make a video on Myofascial Pain Syndrome & on that tiny organ that connects the fascia to the bone. I believe it’s called the Enthesis & feels like tiny extremely white hot & painful to the touch ropes along the bones. I can’t find much info on this in any literature. I’ve been researching since my disability in 2016.
Doctors really don’t know much on anything around fascia. Luckily I’m able to still get opioid pain medication so I can get out of bed & at least use both my hands & arms to feed myself or take a shower. I can do more then about 10 things a day before the fascia in my forearms & hands completely seize up 🤷♀️
Thank you so much for fighting for us here in Oregon when a group in the gov was trying to get opioids out of the schedule for back pain. This group was made of acupuncturists, NA doctors & the like.
Without opioid pain medication I would be able to feed or bathe myself but most have know idea how debilitating this pain is or how the fascia will just seize up.
Yeah I think I have that aswel I get the same as u as I changed drs twice so far they are being right gits about my pain meds I can't have antiimflammatory expect steroids but don't even like giving me that. I have spondylitis spondylolisthesis etc aswel but they really don't care they just think some take it for the sake of it but that's not the case eh. U have my 😢sympathy ❤
@@lindaireland2751 omg! That’s horrific! I’ve had to bring a friend in with me at time where I felt a specialist wasn’t taking me seriously. If you’re not getting the care you need you can always speak to the admin of the hospital. Also do & bring in supporting research as to what you want as treatment & prove why it helps. I have done that often as well. I’m so sorry 😞 thanks for the comment 🙏
@@OurMultipolarWorld oh the admin at the hospital ok great thankyou so much hun I know it's horrible when they don't take people seriously. I hope u getting al the help u need thankyou so much il give it ago see what I can do. I know its so hard when you have health issues&always in pain. 💞🙏
@@OurMultipolarWorld I understand your pain my traps, scapula, shoulder biceps triceps and firearms muscles all ache, to the point I feel the attachments of ligaments to the bone, if I turn my forearm I can feel the two bones move and thus in-turn the ligaments move and create more pain. I get sensation that are worse than most people describe, they talk of pins and needles I wish I had that, instead it feels like prickly heat. The funny part is I can get sunburnt so bad that I won’t even feel it on my arms or back.
Opiates we’re terrible for me, my tolerance always goes high. At one stage I was morphine 150mg up to twice a day. So far I’ve experimented on myself with HGH, Peptides, TRT all having incredible results. Unfortunately these aren’t legal treatments in my country. Peptides are, however they’re very expensive. Vitamin IV infusions worked wonders however again too expensive. Cortisone works wonders however too many and atrophy will occur. I’m going to be hopefully trying a ketamine cream soon. Hopefully that will help. Most of the data seems to be done for women as most fibromyalgia patients are women.
Excited to see the rest of your new series!
I’m 78. Diagnosed with Fibromyalgia a few years ago. Have your manual. Appreciate what you share. ❤
This might explain why muscle relaxant worked so well with me in the past
Muscle relaxants can be very helpful for some people with fibromyalgia, although they tend to have a lot of side effects.
Glad to see you back on RUclips 🙂
Great video yet again :0) My fibro support list is below (not in order of importance) after decades of suffering.
1) L-Citrulline is great for my energy levels (really good for men with ED also, as is converted to nitric oxide - viagra killer).
2) Phosphatidylserine is great for brain fog and word recall.
3) Clean food and high protein (with exercise if you can manage it).
4) Stress management - remember the 1m2 rule (1 meter squared) - when everything is going to rats around you, bring it back to your immediate environment of 1m2. That's all you can control on the entire planet Earth.
Love and peace to you all xxx
Thank you! It means so much to find real medical information instead of alternative wellness nonsense.
Thank you for the explanation! I also do the myofascial release once a month and find it to be an important tool reducing pain.
Hi Dr Ginevra, thank you soooooo much, I have your books, my pain Dr took a screenshot of your book, and she says she is going to read it, also a couple of Drs at my surgery were interested, and took details, they said they’d pass this on to other fibro patients.
Without you, I would have shuffled off this mortal coil a long while ago, so thank you again, with all my heart. ❤ (UK)
I have had your books for years and I have been to your clinic. I was diagnosed at age 30 with fibromyalgia and I notice that as I age(I am 67) it is getting worse. I need to pull out your book and get going again. I think I have been denying it and trying to mentally handle it. This is perfect timing as I was to a point of wanting to give up.
This makes so much sense! I am crying in relief just to have answers, because I am severely impacted by fibromyalgia, to the point where I am disabled, and went on gov't disability without being denied (and having to appeal) and no other diagnosis. That was in 2000. All this time I am so frustrated by the lack of answers and treatment! Since then I have developed other conditions, but the worst is still the fibromyalgia. Just having explanations gives me hope. There is a Dr. using ultrasound in brains to break up Alzheimer plaque in the brain, with astounding results. I wonder if it would be useful on the excess collagen in our fascia and muscles?
I am so glad to provide helpful information!! Ultrasound is often used by physical therapists and does seem helpful in certain conditions. I haven’t heard of it being helpful in fibromyalgia, but may need to be done differently to focus specifically on the fascia.
I've been diagnosed with fibromyalgia and one of the most lasting relief I get is when my physical therapist uses ultrasound to treat my trigger points. I've developed autoimmune issues too.
Amazing video have missed your videos hope you do more and maybe start some live blogs again hope your keeping well
Bless you and all your videos. Believe me when I say that when I get better, expect an email from me. I've always loved nueropsychology and wanted to get my PhD in it. When I improve, I'd love to go back to school and use my knowledge to help others like you did 💙🙏🥰
I look forward to that email!! Sending you healing thoughts
Your explanation so clear, thank you for that. It's interesting indeed 😅 I already read your book. Unfortunately there isn't John Bara ns method therapist in Israel 😢
I wonder if there are other fascia-directed therapies available locally for you. I am doing a video really soon about mfr and other similar therapies, some of which originated in Europe so might be more likely to have therapist trained in those approaches in Israel.
@@thefibroshow Thank you! There are some therapists who claimed they're fascia release but it was too painful for me (with a metal tool that supposed to release the adhesions under the skin).
Looking forward to your video.
Thanks again ❤️
wow after having fibro for about 26 years this is the first thing I've come across that might actually help with my pain thank you so much
So informative & helpful…thank you so much Dr. G 💜☯️💜
OMG! It was said in The Body Keeps the Score that there is a link between childhood abuse and Fibromyalgia. I've been reading all I can on CPTSD with no mention of how it plays out physically, although I have personally lived it. So here it is, the explanation. Thank you so much! I have muscles that haven't let go in over 30 years. Trigger point therapy was the best, but many years ago when it wasn't taken seriously. As soon as you said "sympathetic nervous system" and "flight or fight" , although mine was/is "freeze", as soon as you said that the light came on. So much of what you describe, I can actually feel. I have done a lot of reading and listening to lectures about CPTSD recovery this past year. Part of the problem is lack of memory of the traumas and should we really go there? Until my recent reading about Internal Family Systems, I had just given up. I have a long history with psychology, on both sides of the desk. I am 75yo. and well read on the subject, studied family systems in the seventies. I am saying all this because you might want to consider the source of the fear that causes the sympathetic system to be so hyperactive. But that being a dark and endless hole to crawl into, IFS offers a much better perspective than traditional approaches. I'm too old to crawl into dark holes, led by someone whose skills I question. But, IFS isn't about damage or blame, or reliving the past, or any of that horrible victim mentality. It's about negotiating with my various parts that believe the reasons for the fears continue. So that is what I am starting to work on now. We don't think of the unconscious as being so accessible but like talking to a person in a coma we can still comfort those fearful parts of ourselves. And those parts are like children, who can be comforted, calmed down. Richard SchwartzPhD and Susan McConnell developed these ideas. There's a web site and excellent books by both. Goes well with massage.
excellent post susan, I endorse what you have shared
I agree that IFS can be super helpful! I personally have found it very useful. And yes I should definitely add the freeze part when I talk about the fight or flight nervous system, it's just too bulky to say frequently. Thank you so much for posting.
Thank you for your dedication to sharing your knowledge & experience. I follow you closely. Wondering if you are also aware that some of us seem to have a B12/folic acid deficiency connection. I’ve struggled with these deficiencies for years with no medical explanation. The deficiency symptoms overlap with fibro/CFS symptoms. Mine can be quite severe but don’t always show up as anemia on labs. Had to test directly for active B12 & FA levels to figure it out. I now do self-injections 2xweekly & my levels stay high. It gives me not complete, but significant pain relief. But if I pause for even a month the Fibro pain returns like sledgehammer - even tho my lab levels stay high. There are studies published on the connection, but would love to hear your perspective.
I definitely think that looking for nutrient deficiencies ( iron, b12, folate, magnesium) is important in fibromyalgia, along with looking for MTHFR gene mutations that impair ability to utilize folic acid. So glad you have found some relief!!
I have been a fibromyalgia sufferer for years. Your breakdown of fibromyalgia is meaningful and accurately depicted. The information in your videos bring me so much comfort 1 because your a fybro warrior yourself and 2ndly because validating the existence of the condition with scientific reasoning n findings helps sufferers like myself feel validated. I have lost my ability to work due to the chronic debilitating symptoms associated with this condition . My muscle pain is so intense even when i use aids such as lidocaine patches, bio freeze, zanaflex epsom salt baths. I have recently filed for disability as it is nearly impossible to do things for myself without exacerbating my condition . I pray that the study in search for more answers for this condition continues to grow. I have forgotten what it feels like to live a pain free life but videos such as these keep me hopeful that more findings, newer treatments and more medical awareness from medical professions are near . Thank you for your stellar explanations and advocating on behalf of all fybro sufferers your work is needed 💜
Could you comment for dr john sarno/tms relationship for fibromyalgia?
Stop Chasing Pain marries the fascial / postural science with the TMS diagnosis very well.
Your information is so valuable to me. Learning about the fascia and how to relieve the pain caused by it has been beyond helpful. I am almost 59 and I only wish I knew this information earlier in my life.
I am so glad my information has been helpful for you !! 💜
I'm so glad I stumbled on this video. I will definitely read your book to find out how better to treat my fibromyalgia. I broke my shoulder 9 months ago and even though the bone has healed, I still have tremendous muscle and soft tissue pain 24/7 even after 5 months of physical therapy. I wonder if it will ever go away.
Have you tried myofascial release? That might be worth a try to get pain levels down
I read we have too many IGG antibodies. What role do these play? Thank you.
Good to see you back! great information
Thank you! Nice to see you as well 😀
I have been trying Red Light Therapy for fibromyalgia release as it is supposed to address the cell mitochondria & help decrease inflammation as well as aiding sleep. Please let me know if u have any success with using RLT.
Hi, what kind of device do you use?
A forth year med student told me to use green light. He spoke doctor talk, so I can't spit it back to you why to use green, but another thought?
Not red light, but I started laser hair removal 3 months ago and since then I haven’t had a pain flare where it feels like my skin was burning. Before that I had burning pain 2-3 times a week.
I have not utilized red light therapy. I have found infrared light helpful. Let us know what your experience is with RLT!
Thank you so much, I do have your book too. I just have two questions, I'd wish I could get an answer?
#1) collagen supplements~good or bad?
#2) bullet massagers~go or no?
I have a Renpho, it feels great, but not sure if I'm making my Fibro worse. 😭
Collagen supplements are not a problem. I think this is because it’s really the inflammation levels driving the process, not the amount of collagen in our body.
If a massager tool feels good, that’s definitely not making fibro worse!
@@thefibroshow Awesome, thank you so much for the reply.....😌
I do appreciate your videos. It confirms many of the symptoms we have. I did get your book. Any suggestions on weight loss? I went from being highly active to gradually gaining weight. It seems I just can’t lose it the way I was once able. TY
Glad my videos are helpful! There are hormonal changes that happen in fibromyalgia that can affect weight, you can learn about these in my book The FibroManual.
@@thefibroshow thank you for taking the time to answer me. I have been reading it. I’ll bring it up with my Dr. Thank you again
When I was early on in my diagnosis of Fibromyalgia and still working as a RN, I was going in to the pain clinic and was getting 45 trigger point injections all the way from the back of my head to the crack of my butt & up in to my tailbone until they changed the amount of injections that could be given in one session. I’ve learned the hard way that if I overdo anything that works my arms at the midline (like weed whacking, weed blowing, pushing a lawnmower without self propel, etc. my entire back/shoulders are so tight and knotted up that it makes me feel insane. That stiffness and pulling sensation of that entire underling fascia is just a terrible feeling that makes you feel like you want to escape from your own body. I have to get Capsaicin muscle rub (don’t use during the summer time because you can actually get burned from the combo ) and put in all over the same area and maybe in 3 days I will be able to move a little easier. I had to stop working at age 42. It’s been really hard battling it out for the last 11 years. I don’t do any trigger point injections at all anymore but do get steroid injections in my SI joints, and I’ve had a radio frequency ablation twice to my lower thoracic spine. I also have arthritis that is really starting to finally show itself with all the ugly knobs and bumps on my finger joints, toe joints, knees, and elbows. Now, I’m seeing calcification/bone spurs in all those areas that the doctors couldn’t really appreciate at the time. I do believe that I’m at the late stage of chronic muscle damage that just never goes away so I really watch those activities that make me tighten up and avoid them at all costs. That’s why I don’t do the trigger injections anymore. If a person goes to squeeze my shoulders, they’re always shocked at how hard my back muscles are. I wouldn’t wish this on anyone. It also kind of sucks that this is an “invisible illness “ with people sort of side eyeing you or not believing that you’re in as much pain as you say you are.
The invisible part of this illness is so frustrating. Worth looking into myofascial release as it can really reduce stiffness and pain in the fibromyalgia muscle.
Thank-you for helping me to understand my fibromyalgia condition. You explain everything so well. 😊
I'm so glad!
Upper cervical chiropractor that I went to found a C1/C2 twist causing an Indian burn on my spinal cord leading to my intense fibromyalgia symptoms.
C2 was twisted 8 degrees.
They were causing head to toe pain, hands and feet numbness, constant headaches and much more.
Awesome Video!
I so wish that researchers would stop doing the stress testing on animals that is described here. There are plenty of us available with severe pain to ask about how this works and that would even be willing to help in research.
100%. It's disgraceful, they only do it to keep publishing so they can hang on to their useless research jobs.
Thank you for your work.
Do you have any fibromyalgia doctor recommendations for the Portland Oregon area?
I list some on my website www.drginevra.com/clinic
So would taking collagen powder actually increase my fibro pain? I try everything in hopes of something working and I read collagen can reduce pain so I am confused.
Exactly, what I'm wondering too, having just drank my collagen supplement.....🤔
In future videos I will be more clear about it because definitely confusing. Taking collagen supplements in fibro is not harmful, maybe even helpful. The problem in fibro fascia is really excess inflammation that overproduces collagen, and increases frequency of collagen cross links which makes sticky fascia. More collagen in the diet doesn’t make sticky fascia.
Can fibromyalgia symptoms come after a spine misalignment? My symptoms came after a fall where my undiagnosed thoracic scoliosis at the time got affected with the fall? Ever since that fall I have daily upper back pain, fatigue, limb pain, ibs, brain fog
Fibromyalgia can definitely be triggered by a spinal injuries of all types.
I began having symptoms after severe COVID which attacked my spine with stabbing pain worse than natural childbirth ever was! I suspect COVID was a trigger.
Very good.lots of possibilities, chronic inflammation drive due to various causes and maybe autoimmune cause
Hi, I've had fibromyalgia way before the name for this complex disorder came out. I did have Ankylosing Spondylitis that went into remission in my 50s.. It started in the the sacroiliac joints in 6th grade. My mom thought it was menstrual cycle pain. Back then, they didn't have a way to find the HLA B27 gene in the blood. Now I have 4 autoimmune disorders.
Thank you!
In light of the excess collagen, do you recommend not taking a collagen supplement?
Great question, I'd love an answer to that. I just drank my collagen powder supplement, now watching this wondering.... 🤔
Collagen supplements don’t seem to worsen pain
Thanks
The only release I experienced was from Thai massage. Myofacia was good for the moment, but in long-term deep tissue release was where I experienced the biggest and lasting impact on my lower legs.
So glad you found benefit! Lots of different approaches to improve muscle/fascia health.
Read your Fibromyalgia Manual and The Fibro Food Formula. They are helping. Thank you. 🙂
Is there a second edition coming out of The Fibromyalgia Manual with your mouse study & more? If so, when please? I want to get a hard book 📕 copy for my primary physician.
Also, thank you for informing us with your videos. You narrating them adds points of emphasis which is quite helpful. 😊
I hope to be able to do a second edition of my book! I am so glad my information has been helpful for you !!
I knew it!
This video caught my eye though I am not a fibromyalgia patient, I have polyneuropathy, mixed fiber, and knew that some believed there may be some similarities, however few or many, between the two. I read both studies but neither says anything about fascia muscles and of course they state:
Conclusion
The results show that increased muscle pressure may be a significant cause of pain in FMS, and the etiology of the pain may have a large peripheral component in addition to a centralized origin of the pain.
So, it seems to say that increased muscle pressure (the first cited study used the shoulder blade muscles, 2nd study uses already diagnosed fibromyalgic connective tissue) as well as some chemical imbalances may be contributing factors in the two origin theories of fibromyalgia noted above, but that this invites further study as it makes no definite conclusion on a specific cause of fibromyalgia. At least that seems to be the scientific view from the studies you cite, except your own, which I could not figure out how to look, at the cited material. But I'm curious how of the studies I've looked at, none other than yours has come to such a specific conclusion. Even the Mayo Clinic say in so many words, Myofascial Therapies may be as effective spine manipulation and deep massages (April 23, 2023). I have run across a couple fibromyalgia patients when I see my neurologist once a year, though they tend to be severe cases, which maybe outside of the scope of your theory? Or not? I have large fiber neuropathy in my hands, arse, ankles, feet and toes, all of which are starting into advanced stages. Half my toes are numb and I cannot feel them anymore and now I must be care and pickup drinking glasses with two hands as sometimes my right hand will drop it because I've suddenly lost the feeling of it (it's weird as hell!). Luckily I still have my left for my cane. I have small fiber neuropathy from the neck through the feet and have had 3 cores taken, all showed damaged small fiber nerves. I wasted 2 years at Mayo's neurology dept. taking $27K USD worth of tests just for them to say we don't know, come back, in 6 months. Ha! I found a neurologist closer to my house, who spent 45 minutes with (with only straight medicare!) me and his hammer and pointed stick and said you have large fiber neuropathy, we will keep talking and get your gp to obtain a bunch of (they used 11 tubes) blood draws to see if we can fine a reason but he said many times a cause is not found. Nothing happened around the time, I just went get off the bed to head to the bathroom and fell to the floor because the first and second step felt like 3" pieces of broken glass shoved up through the bottom of both feet. I was fine I second, and ajorly "f"d up the next. About 6-9 months later drying off out of the shower felt Iike 40grit sandpaper and picking up a spoon felt like I was sleeping a handful of razorblades in the palms and individual blades slicing the inside of my fingers. It accelerated quickly, again fine bloodwork and organ functions. But now I am bedridden and sleep 16-18 hours a day (the heavy fatigue is very recent) and only on my sides. I have to take a very large dose of gabapentin, mexiletine for the additional harsh hand pain, as well as the next best thing to morphine, all so I can get up and eat a meal with my family, or I pop an extra dr. feelgood (my pain doc gives me x at extra each month for this kind of purpose) and my wife and I went to a small mall nearby and went to a couple shops and sat in the shade and light breeze and relaxed. Things like this people don't care much about, but for me, even the 1½ hour out with my with is a treasure to me. I have tried many non-medical therapies and such, but at least in my case, they don't and will never work. Everything my neurologist told me years ago that could happen on the more negative side has/is happening and that's okay. There is a new drug in trials now or upcoming that they believe be able to repair damage mylienated (large fiber) nerves. That would be great especially for my hands. Anyway, I'm off topic, but I'm interested if you could cite any other studies working or peer reviews of your published study. I'm apparently not too bright when it comes wor,ING around those open source sites. Medical or therapeutic, I'm always interested in any topic that may have some crossover to mine, even if minor. I have lots of free time! 😊
What I think myofascial release can be helpful for many pain conditions including neuropathy (not what you are asking but important to consider). My theories about fascia, muscle and immune system in fibromyalgia are definitely still in the theoretical realm as this is not an area that is really being studied (I am trying to change that!). Full text of my article and references is available here: www.bodyworkmovementtherapies.com/article/S1360-8592(23)00096-7/fulltext
What are your thoughts on the trending weight loss injections for ppl with Fibromyalgia? AKA Ozempic, Wegovy ect.
That's a timely but very complicated question! I have had many patients really struggle with the nausea these meds can cause, and a few found it made brain fog worse. But my sample size is not large. I am curious if any folks reading these comments who have tried this type of weight loss med found it impacted them and their fibromyalgia symptoms.
Yay! Brakes are always good
Can I ask if you believe in the theories of origin of bacterial infections (or atleast contributing) combined with numerous other Co-infections.
Also in your research have you seen a hereditary component?
I've battled this for decades and I'm now witnessing my 28 y.o. experiencing lots of neck and back pain.
I just found your channel and am a new sub. Thank you
Welcome to the channel! I talk more about this in my book The FibroManual but yes for some folks major infections (like Lyme and other tick-borne illness, viruses like COVID) can be the trigger that sets off the nervous system. And sadly there is a hereditary component, studies show relatives of people with fibromyalgia are 8x more likely to develop the condition themselves. The good news is the sooner accurate diagnosis and treatment are made the better the long-term outcome.
Problem is so many of these things aren’t covered by insurance. This disease gets expensive
I totally agree! I keep hoping that as more and more research shows these treatments help fibromyalgia pain that insurance will start covering it.
What do you recommend? Ty amen 🙏
I recommend myofascial release!
Can stellate ganglion blocks be helpful in calming down pain?
They can be helpful temporarily in regional areas of pain, but don’t help with the widespread pain.
Can drinking collagen supplement make your fibromyalgia pain worse?
No collagen doesn’t seem to have negative effects in fibromyalgia. It’s really the inflammation in the body driving the process of laying down extra collagen, not the amount of collagen in our body.
Have there been any studies done on fascia as pertaining to anti-fgfr3 antibodies developing in some people with small fiber polyneuropathy?
I can’t find any studies on fascia and anti-fgfr3 , but would be really interesting. Small fiber neuropathy occurs in 40-50% of fibromyalgia patients. Would be good to look for that antibody in fibromyalgia.
@@thefibroshow there are now many other known antibodies associated with small fiber neuropathy - including anti-fgfr3....ts-hds....anti-plexin-d1......MX1, DBNL, and KRT8 are additional antibodies associated....so....how do we find a researcher to do this work?
Yikes! How did you ever get through med school with FM?
Myofascial release!
AIP diet can bring remission ❤
My fiancé has a bad case of fibro, really hope I can figure something out that will actually help. Doctors are so clueless much of the time.
Sadly that is often true. Highly suggest giving a copy of my book The FibroManual to your fiancé and her doctor. It contains guidance for both patient and provider.
Thank you so much for what you're doing. For years I have bin searching for answers but still was feeling a lot of the pieces of the puzzle where missing. While people keep on telling me my pain didn't have an underlying cause. I have believed for 20 years that if so many people have the same symptoms it must have causes. Thanks for providing answers and puzzle pieces. I have heard that genes can play a role in it to, and I have heard that people with fybromialga often not have effective results from surtain painkillers. I have, now you finally can make a genetic profile let myself tested, and I have a gene mutation with couses my liver not to break down sertan compounds of the painkillers. I was wondering if there are more fybromialgia patients who has bin tested for this, and if more people have this gen mutation. Maybe it's totally unrelated, and a coincidence, but I am wandering what if there is a small change it is a nother part of the puzzle? Again thank you so much for what you are doing , have a nice day
The pharmacogenetic testing that explores individual differences in how we metabolize medications can be really informative especially when it comes to pain medications.
Has anyone had any luck using massage chairs?One in the 2k range. I recently sat in one for a short time and have to admit it did feel good, but what an expense for something that parks in your living room like a Cadillac (jk). I had a leg break two yrs ago and a meniscus, mcl surgery 6 months ago. From walking cock-eyed with the braces etc. I can’t get my hips and many other musculature parts to move correctly anymore. These things become a domino effect. Any idea? Thank you 😊
What do you think about the mitochondria defect theory. From Oubre medical.
There is definitely mitochondrial dysfunction in fibromyalgia. I go into that in great detail in my book The FibroManual, almost a whole chapter!
Does the mouse study suggest the antibodies don’t need fascia to trigger their activity?
How will i cure it 100 percent . Plz suggest
After following my neurologist's recommended treatment plan, which involved 12 vitamin B12 injections, 50 doses of pregabalin, and adopting a processed food-free diet, I, a 21-year-old man, have experienced a significant 75% relief from Fibromyalgic pain. Considering these positive outcomes, I am now considering the potential addition of low-dose naltrexone for continued pain management. What are your recommendations regarding incorporating low-dose naltrexone into my ongoing treatment plan?
I am so glad you have found so much relief. I can't give you specific medical advice, but I think LDN is worth discussing with your doctor for sure!
Shouldn’t CNS Depressants help Fibromyalgia if the CNS is overactive?
It's the autonomic component of the NS that needs tuning down, and most CNS depressants don't have much of that function. I cover some options that can help in The FibroManual.
Could it be that it is caused by a Salicylate sensitivity. It is present in vegetables, fruit, toiletry and cosmetics. It cumulates in the body and causes physical and mental problems.
It feels like I have several tiny knots or trigger points in the muscles between my ribs. Rib pain is one of my worst areas along with my back. And hips. Oh and neck! Anyway, are trigger points normal in your rib muscles? My ribs feel so tight it hurts to breathe!
Trigger points can definitely happen in the rib area. Anywhere we have muscle and fascia can develop trigger points.
I’m taking a collagen powder every day. Is this okay?
Yes, collagen powder is fine to take. It’s not the amount of collagen in our bodies that is the problem, it’s the inflammatory and neurological processes that cause collagen to be laid down incorrectly in the fascia that is the problem.
👏👏👏
Thank you!
Thank you so much. In light of this, are floor exercises a bad idea? I wanted to try them because walking causes horrible foot and leg pain afterward, but calisthenics won’t make anything bear full body weight, and anything increasing blood flow (heat, my arthritis exercises) seems to ease pain. I don’t know what is different about walking and other chores when I’m overdoing it, that lead to pain. But shoulder exercises feel good for a day.
I realize this doesn't address your question about floor exercise, but if you have access to a warm water pool and funds to go (or parks and recreation funding for low income people) in your area, walking in a warm water pool may be helpful. It is at very least, relaxing.
You can also look up pool exercises for chronic pain and/or arthritis. Using foam pool 'weights', like those used in aquafit type classes, can help create even more resistance.
Why isnt the inflammation test able to pick up our chronic inflammation? Is it because their marker was set too high?
It's because the type of inflammation seen in fibromyalgia is not the type that shows up in the common lab tests used to assess for inflammation.
@drginevra So after we are diagnosed with fibro, is there any proper way I can propose to my doc to run the tests for our kind of inflammation? Because I find the inflammation is really bothering me a lot. Really thank u for replying me anyway
@@yvonneleng3830 A true diagnostic lab test would be a godsend, even in absence of any "cure" or widely effective treatment. Something to show your doctor there is in fact something physiologically wrong. Many of us get blown off that it's all in our head, we're just lazy, malingering, depressed, etc. I would be thrilled if even a standard lab test would be developed.
James L Oschman (Professor at Energy Medicine University) "Fascia is the semi-conductive liquid crystal matrix which stores and processes vast amounts of subliminal information, of non-neural information, and is the primordial matrix of consciousness"