I’m not having the best time

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  • Опубликовано: 11 сен 2024
  • Hello my darlings
    In today's video I catch you all up on what's been going on my life as of late.
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    My ASMR Channel : @treacleasmr
    Facebook Page & Group : Treacle Tatts
    Instagram: treacletatts_
    Twitter: @treacletatts
    TikTok: treacletatts
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    Don't Forget To Subscribe :D
    END CARD MUSIC :
    Created By : Anna Lesnick
    Anna's RUclips Channel : bit.ly/3MERKkX
    Anna's Instagram : bit.ly/3K6STzT
    Anna's Linktree : bit.ly/3v0TCyi
    Anna's Website : bit.ly/3pTMYK6

Комментарии • 985

  • @tarakizer3
    @tarakizer3 29 дней назад +364

    Washing your fake tan off before you have an emotional breakdown so you don't get streaks is literally the most relatable thing, and also so girl

    • @treacletatts
      @treacletatts  29 дней назад +27

      LOL!!!! 😂 I’m glad I’m not the only one that has done this

    • @ImAmericanMade01
      @ImAmericanMade01 29 дней назад +5

      I’ve made that mistake before, then everyone knew I had a bit of a cry 😂

  • @chloepekel
    @chloepekel 29 дней назад +162

    Hearing you say you are useless makes me want to cry. You are not useless, you are looking after yourself while dealing with something out of your control ❤

  • @brittanyphillipps8899
    @brittanyphillipps8899 Месяц назад +450

    Aw I'm so sorry you're suffering. Me and my 4 year old daughter love you she calls you the pretty pumpkin girl. I told her you'll do more pumpkins in the background soon and she's excited as am i 😅 xx

    • @treacletatts
      @treacletatts  Месяц назад +161

      Pretty pumpkin girl omg 😭😭😭 that’s made my day!!!! Thank you!! And yes will be decorating soon 🥳🩷

    • @brittanyphillipps8899
      @brittanyphillipps8899 Месяц назад +25

      @@treacletatts she loves watching your decorating videos 🤣😅

    • @LoverOfSesshy
      @LoverOfSesshy 29 дней назад +9

      That is adorable

    • @mookinbabysealfurmittens
      @mookinbabysealfurmittens 29 дней назад +3

      Omg adorbs! 😭💖

  • @saintblackangel
    @saintblackangel Месяц назад +742

    We're not just here for tattoo content. We're here for you first, regardless of what you want to discuss, because we love you. If there's anything we can do to be extra supportive, just say the word and we'll do it. 🫂❤

    • @treacletatts
      @treacletatts  Месяц назад +47

      Thanks Josh that means a lot 🫶🏻

    • @the13thamore
      @the13thamore Месяц назад +14

      This!!

    • @Lethalport1515
      @Lethalport1515 29 дней назад +7

      Took the words out of my mouth !

    • @sarah0
      @sarah0 29 дней назад +6

      Yes to this! I absolutely second that ❤

    • @lasagnewolf
      @lasagnewolf 29 дней назад +5

      Exactly what they said!!

  • @pollypocket2282
    @pollypocket2282 29 дней назад +172

    From one “invisible illness” girl to another, I am sending you love, prayers and positivity. I’ve been there, the dark, hopeless times… Being a bit older I can tell you to not give up hope. Keep being kind to yourself. If your doctors aren’t helping, search for another. Try reaching out to a local group of people who have the same challenges… try to find one thing that makes you smile and know that this is just a tunnel, one of many you will go through… but remember tunnels have a light at the end. ❤❤❤

    • @treacletatts
      @treacletatts  29 дней назад +18

      Thank you lovely this is all so helpful and reassuring!! There is luckily an redit page full of people with the same disorder as me and it’s so helpful!! 🩷

  • @firelordamy
    @firelordamy Месяц назад +306

    as somebody else who is also not doing well. i hope you find ways to prioritize yourself and your peace. sending all the love 🖤

    • @treacletatts
      @treacletatts  Месяц назад +14

      Right back at you my love!! 🩷

  • @MiaNWC
    @MiaNWC 29 дней назад +178

    So sorry to hear you're still having issues with R-CPD! I am also an R-CPD sufferer. I've not had the procedure after being rejected by bupa and it just sucks so badly. It only gets worse as we age and we have to put up with discomfort everyday :( I'm also emetophobic too and air vomiting is SO scary!!! I just wish people took us seriously and this condition was more understood. NHS won't treat it and bupa were so dismissive... I feel awful about it too. Thank you for bringing attention to it and I hope you're feeling better soon

    • @treacletatts
      @treacletatts  29 дней назад +41

      Oh you’re not wrong, it used to be pretty manageable for me but as I’m getting older it’s all going wrong 😫
      It’s actually crazy how expensive the treatments are and the fact the nhs doesn’t wanna acknowledge this condition after many attempts from so many people for them to listen is so so frustrating!! Hopefully with more awareness comes more demand for treatment from people who had no idea they have this condition.

    • @nicolorange
      @nicolorange 29 дней назад +9

      I wonder if someone put together a FB or insta account (if there's not already) the support from Lauren and her audience to bump up the follower numbers, later down the line y'all can say 'look, thousands of people online have or know someone who has this' especially when it's so recently been recognised.
      I hope you're able to receive compassion and a solution! X

    • @imyourdad9642
      @imyourdad9642 29 дней назад +3

      AIR VOMITING!?! New fear unlocked! 😂😢

    • @CanadianMum444
      @CanadianMum444 29 дней назад +2

      @@nicolorangeEXCELLENT IDEA❣️❣️💗

    • @derbygirl642
      @derbygirl642 29 дней назад +9

      ​@@treacletatts complain lovely! I work in the NHS, and honestly putting a complaint in can genuinely help you get to where you need to be. I have had to do it myself for a variety of things and honestly it's only furthered my care. Young women are often dismissed in the medical sphere and it's not ok. You deserve better. 💖

  • @erinw1196
    @erinw1196 29 дней назад +38

    My son can't burp and it's because of your videos I know what he's dealing with. Thank you for sharing your story with us so I can support him!!! ❤

    • @treacletatts
      @treacletatts  29 дней назад +9

      Oh bless him🩷 it’s nice to know he has a parent like you that wants to understand that can truly make so much difference. You’re amazing!!

  • @serenabreeze6634
    @serenabreeze6634 Месяц назад +188

    Take a break if needed, we love you!

  • @sylviafrida819
    @sylviafrida819 29 дней назад +40

    As someone who has a lot of gas stuck in my belly during chemo, I cannot imagine how you must feel. On chemo days, I feel nauseous ALL the time, mostly because my stomach swells with all the gas. Burping is such a relief.
    But you're going to get through this. There's always a way. Stay strong and thank you for sharing ❤
    Praying for you!

  • @QueenDramaLlama
    @QueenDramaLlama 29 дней назад +39

    Oh my gosh! I'm in my 40's and my entire life, I've been telling people that I don't ever burp. I can't make myself burp. I get weird sounds in my throat, especially after drinking carbonated drinks. I sometimes have a hard time swallowing too. When I was in grade school, my stomach would hurt daily, I would go to the nurse, and they would say there was nothing wrong with me. In my adult life, I figured out that it was all gas. I go all day without burping or passing gas sometimes. Apparently, I pass it in my sleep. It's so great to hear that I'm not just crazy and other people have the same thing going on. The gas and bloating can be excruciating. I'm calling my doctor tomorrow.
    Thank you so much for sharing your story. You never know who it might help!

  • @jessegamingtv2146
    @jessegamingtv2146 29 дней назад +94

    I love hearing about your life outside of tattoos, we care about you! If you stopped making tattoo content I woukd still watch all your videos. Hope all gets better Lauren. Love from Canada! ❤

    • @treacletatts
      @treacletatts  29 дней назад +7

      Oh Canada!!!!! 🇨🇦 my favourite place !!!
      Thank you so much lovely 🫶🏻

  • @ForbiddenSecrets
    @ForbiddenSecrets 29 дней назад +85

    I don’t even have tats or anything I’m just here because I stumbled on a random video of yours and I’ve enjoyed listening to you.
    I totally get not feeling okay. I’ve been in it for the last few years for different but also persistent medical things that have effected me mentally. Always put yourself first.

    • @treacletatts
      @treacletatts  29 дней назад +5

      I’m so sorry to hear you’ve been struggling also. Appreciate you being here 🩷

    • @OneOfTheGirlz
      @OneOfTheGirlz 29 дней назад +2

      Me too! Lol I really enjoy her channel. It’s a very nice distraction from all that’s going on in my life ❤

  • @lazylittledragon
    @lazylittledragon 29 дней назад +166

    please don't apologise for oversharing because i'm not even kidding right now, you've just helped me FINALLY find my diagnosis. i've never been able to burp either and i always thought it was just that i was trying not to (i have severe emetophobia) and i've never met ANYONE with the weird frog throat sounds (you're right, it's MORTIFYING). i can't even tell you how relieved i am to have a name for it and know that it isn't just me

    • @treacletatts
      @treacletatts  29 дней назад +30

      Emetophobic gang!!! This condition is very very prevalent amongst emetophobes!!! My rcpd come first as I become emetophobic around about 7 or 8 years old and wasn’t burping before that.
      I highly recommend going to the Redit /noburp sub you’ll find so much helpful info and other people who share the frog noises!! 🩷

    • @tammyiswicked
      @tammyiswicked 29 дней назад +10

      I love that from watching Lauren, you have just discovered something so incredibly important for you. I hope you are able to find some relief now.

    • @HeatherWho11.10
      @HeatherWho11.10 28 дней назад +3

      ​@treacletatts emetophobia is listed as a symptom of rcpd. I wonder why that is

    • @rhiannonwaller4157
      @rhiannonwaller4157 28 дней назад +3

      I second this!! I’ve had this ever since I was young and always thought I was weird and I find is so embarrassing when I gurgle and literally can’t stop it! It’s so uncomfortable! I’m sorry that you’ve had the same symptoms, but I’m glad we’re not alone and we’ve figured it out. Laying down is the ONLY way to help it.

    • @i_love_rescue_animals
      @i_love_rescue_animals 28 дней назад +2

      I'm so sorry you have this as well - but I think it's so cool that you learned what you have from this video! I hope you can get botox injections and have your issue solved! ❤‍🩹

  • @Catfurandcrossstitch
    @Catfurandcrossstitch 29 дней назад +40

    I also have RCPD and have for my whole life. I’ve found the best fit, and it’s beginning to have a long term effect, is forcing myself to gag … I will put my finger down my throat and basically throw up air. After using this as my main source of pain management for years, I am now able to do silent air releases (still no actual burps) but the air passes. I know that you don’t like to throw up but perhaps working through that fear will allow you a little bit of relief in the interim while you search for more permanent fix ❤

    • @treacletatts
      @treacletatts  29 дней назад +10

      Ah the good ole air vomit!! My brain simply will not allow me to make myself gag 😂 I’ve had a couple burps when the Botox works that has been kinda similar to what id imagine an air vomit to be, minus the gagging but the air pressure was just so much it ended up all coming out in one long stream 😅

    • @DarkSuperNinja
      @DarkSuperNinja 29 дней назад +2

      THANK YOU! People think I going mad when I do the 'air vomit' but it's a life saver for me! I've managed to train myself to occasionally get those silent passes out but it's a work in progress.

    • @granthropologist3622
      @granthropologist3622 29 дней назад +4

      I feel for you so hard, Lauren. My condition is often miserable but it would be unbearable if I couldn’t release the air with my fingers.
      I have also had RCPD my whole life, but I’m in the minority who don’t have emitophobia. For those reading this comment who want to try air releases, I have ideas, but everyone needs to listen to their own bodies. If this isn’t an option for you then it’s not an option.
      1. If you hate the idea of being sick, don’t think of it as ‘gagging’ or ‘air vomiting’ - you’ll trigger yourself and it’s also misleading. Call it air release or finger burping or something like that. It doesn’t feel like gagging if you have been fortunate enough to become practiced at it.
      2. Hold your head back slightly and your chin up (Leaning back in a comfortable chair might be useful). The posture is VERY different from vomiting. You are going to pass a nice dry bubble up into the air. It isn’t going to feel like being sick. Stand by a sink if you must but don’t stand by the toilet. You aren’t going to be sick - you’re going to easily air burp or quit trying. The sight of the toilet will give your body the wrong message.
      3. Try a gentle wiggle-fingered tapping on the back of your tongue. I don’t need to put my fingers into my throat at all. Just beat a two finger rhythm on the rear-most reachable tongue surface with your chin held up.
      4. It will either come or it won’t. So don’t struggle to force it to happen. Try, have a break, try again.
      5. It may be possible to practice after drinking a small amount of carbonated water on an empty stomach. Lower stakes.
      6. Always have clean un carbonated water to swallow to rinse out your windpipe afterwards.
      7. Advance level: I can’t do this silently. I have, however, learned to time the burp-ish noise to be covered by a toilet flush.
      Good luck y’all. Big hug, Lauren.
      Edit- yeah, I meant to say it all comes out in one long stream, but the RELIEF! This procedure is imperfect and inelegant. Better to burp like an orc battle cry than not at all. It’s like, the door is either open to all the air inside your stomach or it’s locked. Unaffected people can manage their burps like a doorman. We gonna stampede the whole lot through when that throat-door opens.

    • @granthropologist3622
      @granthropologist3622 29 дней назад +2

      I’m so not done yet, lol. I think what happens in a successful air release is that the windpipe tightens as it does the dry spasm part and then the muscle that can’t relax normally ‘relaxes’ as the spasm passes. Some people find that the big O is like that too - you have to tense your pelvic floor repeatedly before the body gets the message that you would actually like to radically relax it and takes over.

  • @_goatlady_
    @_goatlady_ 29 дней назад +49

    You might have POTS. I do. Your blood pressure drops when you change position sitting to standing , lying down to getting up etc. My pressure can drop by 30 points just standing up. Then your heart races to increase the pressure. Take your blood pressure sitting down then stand up and immediately take it again.

    • @treacletatts
      @treacletatts  29 дней назад +29

      I have suspected this but I’ve never fully fainted in my whole life but I’ll bring it up to my cardiologist when I get to see them!! 🫶🏻

    • @CatherineDupuis87
      @CatherineDupuis87 29 дней назад +2

      I think it sounds like POTS too.

    • @spike3563
      @spike3563 29 дней назад +1

      ​@treacletatts I have POTs too. Really sounds like you have POTs as well.

    • @LoreCatan
      @LoreCatan 29 дней назад +1

      Thanks for sharing! I've never heard of POTS before but all of these symptoms match my girlfriend's condition to a T. I've even witnessed her passing out from laughing too hard, complete black out for 10 seconds, it was insane. I will have to do research on this and bring it up to her, she doesn't know why this happens either.

    • @frankiebolt2302
      @frankiebolt2302 29 дней назад +9

      just a tiny correction that pots is diagnosed based on your heart rate increasing on standing not a blood pressure drop! dizziness due to a blood pressure drop is postural hypotension :)

  • @7juniormint
    @7juniormint Месяц назад +50

    lauren, thanks for sharing your experiences with us ♥️ i’m sorry you’re going through all of this. i have a couple of chronic illnesses, too, and my god, while i don’t have R-CPD, i have felt that frustration of feeling like you can’t get anything to work. sending you so much love always ♥️

  • @AshatHome
    @AshatHome 29 дней назад +7

    I've been chronically ill with a variety of things since birth (all invisible conditions) and it's exhausting and frustrating on so many levels, so I completely empathize with what you're currently dealing with. I absolutely am not just here for the tattoo content. I love hearing about what's happening with you. I think most of us feel the same way💖 sending you all the gentle hugs and healing energy

  • @mikankitsune0440
    @mikankitsune0440 29 дней назад +39

    I know how much it sucks to have your health not be where you want it. I have Ehlers Danlos Syndrome and while some days are better than others, Im always hurting to some degree and I've had health issues my entire life. Take care of yourself and let us know if you need anything, we're here for you girl - that's why you've got this badass community. ❤ I hope your health improves and you feel better.

    • @tracyjane7724
      @tracyjane7724 29 дней назад +4

      Hi, I also have EDS. I'm not doing too well at the moment and barely get out of bed. Do you also have the gastric probs that come with EDS? I'm waiting on an endoscopy.
      Treacle, I hope during all of this you are remembering self care. You are the most important person not the illness, make sure your body knows this. Even if it's just buying a lovely new handcream. I love handcream!
      Treacle has any of your docs mentioned PoTS? It's a condition that is common amongst us EDS people. Your fainting, increased heart rate and low (for you) blood pressure are all symptoms of PoTS.
      Take care both of you.

    • @TheGallicWitch
      @TheGallicWitch 29 дней назад +4

      I also have EDS and it has left me completely disabled and mostly bedridden. It is a miserable existence and I could not wish this on anyone. Sometimes I hate my life and I try not to think about my future because living another 60 years like this while actively getting worse is my worst nightmare. You have all my empathy, my fellow zebra ♥

    • @mikankitsune0440
      @mikankitsune0440 29 дней назад +1

      @@tracyjane7724 Yeah, I have had stomach problems my entire life.

    • @tracyjane7724
      @tracyjane7724 29 дней назад

      @TheGallicWitch I'm so sorry to hear this. I spend my life in bed too, it really sucks.
      There's virtually no research into EDS and very few specialists. My amazing consultant retired and I've just been abandoned.

    • @tracyjane7724
      @tracyjane7724 29 дней назад

      @mikankitsune0440 me too. I also have a hernia that apparently is very common with EDS. It affects so many parts of the body but when I tell docs I have EDS they just think I'm bendy 🤦🏻‍♀️

  • @clarasatie
    @clarasatie 29 дней назад +20

    Thanks so much for sharing, Lauren! I’ve had long covid since getting the virus back in March 2020 and I’ve really struggled with it, especially with exhaustion, fatigue and confusion. It helps to hear your story too. I usually talk to my family member who also has chronic illness because it helps to know we’re not alone despite how isolating these illnesses are. I’m also a homebody who also loves to balance it with being out and about and the guilt I get from cancelling plans has been a struggle, and I feel so guilty for my partner who has so much love and patience for me cos all I can do for some weeks is lie on the sofa, can’t even watch tv or read. Have to remind ourselves that we’re doing our best 💖

    • @treacletatts
      @treacletatts  29 дней назад +4

      Oh lovely I can’t even imagine having to deal with that, having Covid is one thing but ongoing effects must truly be exhausting not just physically but mentally. I’m so glad you have a nice little support system around you. Sending you big hugs 🤗🩷

  • @sofiarodriguez8909
    @sofiarodriguez8909 29 дней назад +9

    I also have RCPD and can confirm it sucks. The gurgling noise is so annoying and I actually have to avoid eating before a lot of normal things I do like going to the movies or meetings, classes. And my hiccups HURT.
    There’s a lot of people that make tattoo content but you are my favorite because of well… YOU! This is your platform. Use it how you like.

    • @treacletatts
      @treacletatts  29 дней назад +2

      Oh no I’m so sorry you have this too!! I relate so much!! There’s literally no way to ever shut them up either, like once they start it’s game over and I swear each one just gets louder and louder as if they’re trying to compete 😂😫
      And thank you 🩷

  • @TohruMarie
    @TohruMarie 28 дней назад +4

    Dear Lauren, you've given us so much knowledge, joy, laughs, and a safe space. The least I can give you is understanding and hope that there is a solution to this. I understand terminal pain. Because of ptsd due to horrible things I am agoraphobic. My son graduated hs in June, that was the first time in 7 years I left my house. Then came home to be comfortably in pain. It never goes away and even if theres a good day I spend the whole time waiting for it to come back. I see strong young women like you who say fk it to the world and you do your thing, and so wonderfully. When you're doing a tattoo video watching your excitement EVERY time as a tattooed person is nothing less than magical. You're a fkn unicorn! And we are here for you. You know what youre doing and its time for the waiting game, we're waiting right beside you in spirit. Love this community. I could NEVER thank you enough for what you do. Its YOU time. ✌✌💚💚

  • @alexharris98
    @alexharris98 29 дней назад +5

    You should never feel like your struggles aren’t ‘big enough’ to talk about or feel down about. Someone always has it worse but that doesn’t mean that your feelings and what you are going through aren’t valid. I relate to you so much with the invisible illness side of things and how difficult it can be to simply feel understood. Sending you so much love and support ❤

  • @GreyishBobbi
    @GreyishBobbi Месяц назад +30

    I hope things ease up for you, sending love and comfort

  • @cosmicray7021
    @cosmicray7021 29 дней назад +19

    Lauren, I'm sorry you are going through this. It sounds tough. I have a rare neurological disorder, Stiff Person Syndrome (SPS) that causes violent muscle spasms that break bones, tear connective tissue, and other disturbing things a body should never do. I was told that it would only effect my skeletal muscles. LIES!
    At a nice restaurant with my mom, it became difficult to swallow. My esophagus was contracting and I couldn't eat. I've had to have it expanded 5 times.
    Stomach spasms punctured my diaphragm in several places. When I hiccup, I sound like a wounded cow. I can empathize with what you are dealing with. It takes 26 pills a day to keep my body from destroying me. I've been dealing with this for almost 20 years. I've been placed in hospice (for people who are not expected to recover). I have also been kicked out 3 times. I've learned that you can only control one thing in your life - your attitude. That and my ability to laugh during difficult times. I also have to lay down after cleaning the kitchen or taking a shower. Just know that you are not alone and there's a lady with hot pink hair, and tattoos, who doesn't know right from left, with piercings in Texas who adores you (not in a creepy way). Take care of yourself! 💖✨🥰

    • @OneOfTheGirlz
      @OneOfTheGirlz 28 дней назад +1

      I just read your comment and just have to tell you how incredibly amazing you are. All that you are going thru (which sounds almost impossible to live with) yet you are able to encourage Lauren during her difficult journey. You are quite special and in a category all your own. Many blessings ❤

    • @cosmicray7021
      @cosmicray7021 27 дней назад +1

      @@OneOfTheGirlz 💖✨ Thank you very much! That was so kind that I teared up a bit. You are empathetic and kind. I appreciate your comment. Love and light ✨💖

    • @OneOfTheGirlz
      @OneOfTheGirlz 27 дней назад

      @@cosmicray7021 xoxo

  • @shaestewart5261
    @shaestewart5261 29 дней назад +5

    Girl, you are lovely and charming and I’m so sorry you’re suffering! Don’t ever feel like you can’t be yourself or that you must sacrifice telling us how you really feel for content!
    I have no experience with your medical situation, but I have struggled with terrible endometriosis for years. I can absolutely relate to trying to keep it together whilst out and about with a good friend I don’t want to disappoint or a new friend I haven’t known long enough to feel okay about trying to explain myself and my situation. Similarly, I have smiled and laughed through situations where I’m in so much physical pain that death starts to seem like a good option. I’ve had to miss out on many things I would have loved to do had I not been so ill at the time. I may not have your condition, but I absolutely see you, Girl! And I commend you for your strength and resilience! Never lose hope and never give up!

  • @doomthatimpends
    @doomthatimpends 28 дней назад +4

    I do not have tattoos and probably won't have any for a few more years but I ran into your channel at random and I have been subbed and watching for a while because of your personality. You give off such fun energy and make the tattoo world so interesting through your eyes. I've been going through it with mental and physical health all at one(when it rains it pours) and watching you helps take me out of my head a bit every so often and that is priceless. I am sorry that you have to deal with this condition, but I had never heard of it until you. I wish it didn't exist for your sake but I know you talking about it is helping others who suffer from the same. Thank you for existing. You are appreciated.

  • @shiningsylvie
    @shiningsylvie 29 дней назад +6

    I just in the last month got diagnosed with premature ovarian failure in my early 30s (early menopause) and it’s been both a big relief understanding why I’ve felt so miserable lately but has also been an incredibly heavy and upsetting diagnosis that upended my life. It’s nice to know I finally, finally may be on track with feeling better, but it’s also a long road ahead that I’m afraid of.
    I think about you and your condition a lot. Being unable to relieve gas is definitely more than a first world problem, it’s absolutely detrimental to your quality of life. Whenever it happens to me, I feel like all my problems in the whole world would be solved if I could just simply get rid of the trapped air in my GI tract, and then I could be comfortable enough to handle anything else to come at me. But being unable to do that, ever? Your whole life? I could not imagine. And catching up to “This simply isn’t working” is a gut check you never ever want to hear. All my hugs and love, I love listening to you talk whether it’s about tattoos or this. I really hope you are able to find a solution some time
    edit: omg the cardiac thing! I (and my mother) too have an abnormal ekg/ecg and I got an echocardiogram just yesterday, which I suspect will be the next course of action for you. I didn’t find the procedure to be bad at all (honestly the gushing sound from the Doppler was the worst part) since it’s basically just an ultrasound on your heart. Mom’s ekg is abnormal only because her heart is sideways in her chest and mine was just from palpitations, so you truly may have nothing to worry about, but as they say it’s always better to be safe than sorry ❤ we will be here for you regardless!

  • @HappilyRandom1993
    @HappilyRandom1993 29 дней назад +3

    Girl I feel you. I have 2 chronic pain conditions. Sometimes it’s really difficult just to get through a regular day, which I think is hard for a lot of people to understand. I hope you know that it’s okay to have bad days, days where you feel sad or angry or sorry for yourself. It’s okay to feel those feelings, they’re very valid. But I also hope that in the moments you’re feeling better or happier that you still take time to enjoy life, to appreciate what you have, and look on the bright side of things. :) I think my conditions have helped me to be able to appreciate and be happy for small things in life, as well as to make me a more compassionate person. I also like to look back on how I was before treatments, and think about how far I’ve come and how much better I feel now compared to before (even if I’m still in some level of pain most of the time, it’s an incredible amount better). I hope you’re able to overcome your fear and go for that Botox treatment. One of my treatments is like one of the worst pains I’ve ever felt while it’s happening (I wish they would put me to sleep), but then it helps a lot in the long run. :) you can do it! Good luck!

  • @Prestigioussalad
    @Prestigioussalad 29 дней назад +3

    As a chronically ill person I fully understand you. A ranty chat about what it feels like to be you is very important and helps me feel better too. It's been especially good that I have people to talk to about it because I think I might be in a stress caused flair. I really hope the surgery helps you and you get your days of feeling better.

  • @ghostie-8089
    @ghostie-8089 29 дней назад +4

    im so sorry you're suffering sm at the minute, youve helped me so much with helping me get into tattoo's/tattooing and your tips on how to care for your tattoo's have been beyond helpful (recently got my first tattoo and i love it so much!)
    i hope your symptoms get more managable and that youre making time for yourself as much as you can !

  • @hieithefox
    @hieithefox Месяц назад +13

    Sending love and good vibes your way. I am disabled so I completely understand dealing with health issues. I have intestinal issues myself and the gas build up and I have gone to the er multiple times because of the intense pain before I figured out it was from gas build up. There are so many times I deal with pain after eating or when I am hungry and I have had so many issues with not being able to eat or getting sick immediately after eating so I have to watch when and what I eat closely. I am sorry you are dealing with everything and trying to figure out what will work and how you can afford treatments.

    • @treacletatts
      @treacletatts  Месяц назад +2

      Oh my love!! I’m so so sorry 🩷

  • @randomapple64
    @randomapple64 29 дней назад +4

    I also suffer with chronic illness (been ill for 10 years, been trying to get on disability for about 4 years, and still trying), I totally understand the mental and emotional toll it takes on you, I feel like some days that almost can feel worse than the illness itself! Especially when you have other mental illnesses as well it makes it so much harder to deal. Just know we’re all here not just for the tattoo stuff but for YOU, and you taking care of yourself is absolutely top priority ❤ we love you!

  • @uci1111
    @uci1111 Месяц назад +15

    you are such a lovely person ❤ i hope you get better soon

    • @treacletatts
      @treacletatts  Месяц назад +3

      That’s so sweet of you 😭🩷 thank you!!

  • @TheCatsofVanRaptor
    @TheCatsofVanRaptor Месяц назад +17

    I hope you do better soon! You’re too great of a person to not be feeling 100%

  • @silh.9861
    @silh.9861 29 дней назад +6

    This couldn't have come at a more relatable time for me. Yesterday I spent 9 hours in the ER trying to overcome a migraine crisis after having one for 3 weeks. I'm on my third neurologist and third preventative treatment, but honestly, it feels like I'll never find relief. A good day for me is when I wake up feeling 3/10 on the pain scale, since I have a headache every single day and they can turn into a full blown migraine in a second. The worst thing is that there's no rescue treatment that has helped. I left the ER feeling just as crappy, thankfully the pain subsided (from a 10 to like a 4 overnight) and it's the best I've felt in weeks. I feel frustrated, terrified, and hopeless. Thanks for letting me commiserate. Love the T-Shirt! Hope you feel better soon ❤

    • @treacletatts
      @treacletatts  29 дней назад +3

      Oh my love I’m so so sorry, I can’t even imagine having to deal with that all day everyday. I hope you find some relief so very soon 🩷

    • @YiolMac
      @YiolMac 29 дней назад +1

      Im sure you've tried everything at this point and I hope its OK to add that I suffered from horrid head aches and various migraine symptoms and still do at tumes but they were much much worse when I was eating chocolate all the time. It took a long time for it to occur to me chocolate could have been a trigger. Maybe it is one of yours too.

    • @tchris4232
      @tchris4232 27 дней назад

      If you want to contact me, I can offer you some recommendations. I’m a chronic pain sufferer from a rare pain condition (& a couple of non-rare 😂) & spent 8 *years* in bed in a blacked-out room due to complex headaches as part of it. Migraines, tension, sinus, & cluster headaches. It was awesome! 😂 But I’m a ton better now! Out of bed nearly every day & I can stand the light & sounds!

    • @silh.9861
      @silh.9861 26 дней назад

      @@treacletatts Thank you! Taking it one day at a time. I hope you find relief as well.

    • @silh.9861
      @silh.9861 26 дней назад

      @@YiolMac Yeah, so far I've kept food diaries a few times and haven't found a trigger (but there are certain foods that definitely make matters worse). Glad you found your trigger!

  • @AlexJaneMakeUp
    @AlexJaneMakeUp Месяц назад +14

    Aww Lauren that sounds awful! I’m so sorry that you’re going through this. I hope you find some relief soon ❤❤

  • @dragonboykam352
    @dragonboykam352 29 дней назад +5

    I'm in a situation where I'm stuck inside all the time too so I understand the feeling ❤
    We are here for you, vent all you want. Hope you can get the help you need. You're so strong! We are very proud of you!

    • @treacletatts
      @treacletatts  29 дней назад +1

      Thank you!! And I’m proud of you too 🩷

  • @AnnaRenee
    @AnnaRenee 29 дней назад +7

    Wishing you the best on this sucky journey! Being put under anesthesia is definitely scary, I’ve had it a few times before and for me the best way to handle it is to try not to think about it beforehand. I literally info dumped about frogs as the nurses were setting me up before a surgery haha. It will go quickly once you are in it and hopefully it works 100% and then you’re done!

  • @MinervaDrums
    @MinervaDrums 28 дней назад +2

    I'm so sorry to hear about your pain :( I have chronic gastritis and sometimes the only thing that brings me relief is burping, so I can't imagine not even being able to do that. And having to lay down to get relief from the awful pain and pressure, man, I relate to that. I don't usually comment on RUclips videos, but I just really feel for you and want you to know that you're not alone and there are so many of us who empathize with you and are rooting for you. Sending love & support from Canada! 😻🍁

  • @reluctanttechnologist3766
    @reluctanttechnologist3766 Месяц назад +15

    I'm just here for the snacks and cozy and tea times. Your videos are fun whatever they are. You do you, and we're here for it.

  • @alexi.c
    @alexi.c 29 дней назад +3

    I'm sorry you're going through this... I've been disabled since 1987 and can relate to a lot of things you talked about feeling because of it. It sucks. I hate feeling like I'm holding people back from doing things like going out. Try to remember that those people love you and I'm sure they understand. Feeling bad the majority of the time is the worst and things can feel hopeless sometimes. I hope you're able to get some relief with the options still available. Sending love and hugs from me & my bulldog Luna

  • @renee3254
    @renee3254 29 дней назад +5

    Sending lots of solidarity and strength your way. I have MS &mental health issues and struggle most days, so unfortunately I can relate. You’re a wonderful person and creator, and I hope things do get easier for you soon x

    • @treacletatts
      @treacletatts  29 дней назад +1

      I’m so sorry my love!! Sending you the biggest hug 🤗🩷

  • @literallyimtrash7975
    @literallyimtrash7975 29 дней назад +3

    I grew up with undiagnosed inflammation in my GI tract for years (late elementary to end of high school) and the PAIN! All I could do was lay on the floor (if I was in school) or in bed when flare-ups happened. I still get anxious when I have similar pains because of how traumatic those years were. I still avoid foods that "triggered" the flare-ups. I just relate so much to avoiding food to avoid pain despite it not changing the outcome. I hope you are able to find treatment that helps because living in pain is beyond exhausting.

  • @trizzle3190
    @trizzle3190 29 дней назад +2

    We’re here for YOU, Lauren. Not just tattoo content. Sending you much love ♥️

  • @Polycat6
    @Polycat6 28 дней назад +1

    Thank you for making this video! It’s really nice to see content creators talk about their lives because it makes them more relatable because everyone struggles with something and when you only see good things it feels not realistic. Also thank you for sharing, I don’t have R-CPD but I suffer from chronic migraines and a couple other things, but the migraines make me feel so miserable because they’re every single day and when you said you just want one normal day where you feel good, I felt that so much because I feel exactly the same. I really hope that the operation works for you and you start to feel better!!!! ❤❤❤❤❤❤

  • @artisticalex1206
    @artisticalex1206 29 дней назад +2

    I am currently recovering from Covid and you’ve always been one of my favorite RUclipsrs to watch when I need some comfort. I’m glad you’re telling your story about this disorder. I never knew what it was until you first talked about it on your channel. Also the fart part you talked about made me laugh because I never thought someone’s farts would not smell lol 😂

    • @treacletatts
      @treacletatts  29 дней назад +2

      Ahahaha happy to inform you that it sometimes can be possible 😂

  • @iexistdotcom893
    @iexistdotcom893 26 дней назад +1

    My family has had health issues for as long as I can remember, from my younger sister getting and luckily surviving cancer, to my mom having multiple chronic illnesses, I personally am lucky to not have any issues pop up yet. My main message for anyone reading who has chronic illness or their health is in the gutter at the moment, don’t beat yourself up over not being able to do everything your friends and family invite you to do. If my experience says anything it’s that a good friend would much rather you be taking it easy than suffering through pain the whole time.

  • @maesiecakes
    @maesiecakes 28 дней назад +2

    I’m so shocked to find another person who has this condition! I’ve never been able to burp and have the same symptoms, and whenever I tell people I can’t burp they don’t believe me. My friends asked me to drink lots of fizzy drinks and try to burp so I did and I regretted it so bad the pain was awful and I ended up passing out. So I have to avoid anything fizzy or I get awful symptoms. The noises my throat makes are so embarrassing I get so self conscious, and I agree the wind tablets don’t work for me either. My doctor told me it was just IBS, but my family members have IBS and can burp fine so I knew I had something different. I hope things improve for you and I’m so sorry to hear how much you’re struggling. I hope more research is done on this condition so that we don’t have to suffer so much

    • @treacletatts
      @treacletatts  28 дней назад

      Oh my love I’m so so sorry. It’s an awful thing to have right especially as it gets taken so lightly but everyone cause it’s just hard to comprehend that someone can’t burp or because someone can’t burp that then equals other symptoms 🙁♥️

  • @hv2144
    @hv2144 25 дней назад +1

    I relate to you so much. I have had chronic pain in my back and my legs for the last 16 years. Even after all this time, no doctor can tell me why I am in pain 24/7. People have no idea what it is like to have that amount of issues at all time, symptoms caused by other symptoms that become such a long list that people roll their eyes because they cannot wrap their mind around the suffering we live with. Now I am followed by a chronic pain clinic in Montreal (canada) and they just try to manage the amount of pain I'm in daily. Keep waking up and putting one foot in front of the other. Take youe time, we will be here when you coke back. Stay strong, you have so many people rooting for you!❤️❤️❤️

  • @rianroan
    @rianroan 29 дней назад +3

    ❗❗❗I REALLY HOPE YOU SEE THIS: my niece had the exact same symptoms for years, and a very similar way of speaking + tongue posture too btw… until she got her tongue-tie released (i.e. cut) and she started tongue exercises + speech therapy! and don't worry, releasing a tongue-tie can be done without being put to sleep.
    a tongue-tie and/or weak tongue muscle can cause problems beyond the mouth, and so muscles in the throat, face, and shoulders (and even down to the hips and feet!) can become stiff / underused / overused, and for some people this means they cannot properly burp!! a tongue-tie usually causes a myriad of symptoms…… you really should look it up, it's crazy! sadly, most articles are about babies, but there is information for adults.
    i wish you all the best! ♥♥♥
    (PS: because of the comorbidity with ADHD, you also might want to look into the different Ehlers-Danlos syndromes sometime, because EDS can cause so many symptoms you describe as well.)

  • @mswifeycatlady7583
    @mswifeycatlady7583 26 дней назад +1

    I’m so sorry you’re having to live with this awful condition 😢 I have severe IBS and have lived with chronic pain for decades and I empathise with you and the reality of these conditions 🫶🏼
    I’m currently going through an elimination diet, again, to find triggers. The first two weeks were so good! But now I feel I’m going backwards and losing what little relief I had found 😔
    Thank you for being so candid and for sharing 🌸🌸

  • @colorsaremyfrends
    @colorsaremyfrends 29 дней назад +4

    I appreciate this video so much. It’s like you took the words out of my brain and put it on video (but much more articulate lol)
    I have horrible chronic nerve pain on my right side mostly INSIDE the hip joint (really weird spot for nerve pain). It showed up like a year ago and no one knows why. now with the help of medication I am much more mobile but for six months I was in so much pain I couldn’t get out of bed. Physically I look fine, I can get up and move my body just fine, I am not “physically hindered.” Except I am. The invisible nature of nerve pain is something that a lot of people fail to grasp really. so when you said “people just think I’m being dramatic” I started tearing up. It genuinely feels like that when you have no physical injury to show but your body is a sack of misery and pain.
    And medical limbo? Oh buddy I’m right there with you! I have had every scan, every xray, every blood test but still always existing in the space between appointments hoping that someone has a stroke of genius. It’s an endless game of wait and pray and see if something works.
    The entire video I was racking my brain trying to see if there was some piece of advice I could give you and the I realized I hate when people give me advice on an issue they can’t wrap their head around. So instead I give you love. I see you. I’m right there with you. Living in pain SUCKS and can be so dehumanizing! I don’t think a lot of people realize how much independence one can loose and how much that messes with your mental health on top STILL BEING IN PAIN 24/7 it’s one hell of a double whammy. You are so strong and hearing your story made me feel heard in a way I haven’t experienced in a long time. I hope I, and everyone else here who comments their own story with chronic illness and pain, makes you feel just as heard and seen. This shit fucking sucks ass, but at least it fucking sucks ass for all of us 🩷

    • @OneOfTheGirlz
      @OneOfTheGirlz 28 дней назад +1

      That was beautifully said ❤

  • @Horselover98
    @Horselover98 26 дней назад +1

    I have struggled with depression and anxiety on top of invisible physical chronic illnesses for the last several years. It's so hard to deal with but you are not useless or any less. You are so strong and a fighter. We are here for you in every way. Hang in there ❤

  • @nekusakuraba9407
    @nekusakuraba9407 Месяц назад +14

    Take care of yourself. We understand things happen and everyone needs a break. Especially if health is involved.
    Still look beautiful. Take it easy. We will wait for you patiently. Sending love

  • @TabithaClews
    @TabithaClews 29 дней назад +2

    As a fellow RCPD girlie, these videos you share about your condition have helped me discover what has been plaguing me for as long as I can remember! For the longest time I thought that me not being able to burp, the severe uncomfy feeling I have to deal with all day every day and the weird throat sounds was just “normal” for some people, and there wasn’t anything I could do about it. I’m severely emetophobic as well! I know me and many others are grateful that you’re this honest and transparent and you’ve helped a lot of us on our diagnosis journey. The more we all talk about it the more awareness we can spread on this awful debilitating condition! Sending you lots of love 🩷

  • @shealynnmichelle
    @shealynnmichelle Месяц назад +15

    sending lots of love 🤍

  • @violatte2795
    @violatte2795 29 дней назад +2

    I've got a blood test coming up later this week. I'm not looking forward to getting it, but I am very much looking forward to the results. No idea what's wrong with me, but I'm hoping that a diagnosis will finally help me live a better life. I hope this next procedure works wonders for you ❤ you're not alone in your journey!

  • @r0ofus897
    @r0ofus897 29 дней назад +2

    Not just here for tattoo content. I love your videos and I love your style (video and person wise). Man I feel this, I'm not having a great time either, just sat in my garden in the dark with headphones on, crying while watching my corgi just lie on the grass. Make sure you take time for yourself, health mental and physical comes first. Not burping sucks! Having trapped gas sucks! God knows what you go through 😢. Much love ❤ (also I just shouted CORGIS when seeing your blanket 😂 yes I'm one of those corgi owners, I had to stop myself from buying that blanket the other day)

    • @treacletatts
      @treacletatts  29 дней назад +1

      Sometimes you just need a big ole cry!! I hope you start to feel better soon!!
      And please pat your corgi baby from me 🥹🫶🏻 I love corgis so so much they’re just the cutest !!! 🩷

    • @r0ofus897
      @r0ofus897 29 дней назад

      @@treacletatts thank you 😘 hope it eases up for you too! Fuck chronic illnesses, they need to get in the bin! I'll do one better and give her a smooch too. Corgis are great 😁 xx

  • @Lombreee
    @Lombreee 2 дня назад

    This past May I developed a chronic pain disorder. I took antibiotics for a small infection in my finger. The antibiotics gave me such a bad yeast infection I got nerve damage. It hurts to walk or sit. After treatment I have no yeast infection anymore, & all tests come back completely normal but I'm in so much pain that I can't walk for my job. Three months later a specialist told me there's nothing that heals it but time. Time?!?!!!!! I will be unemployed & will have no life if I can't walk or sit.
    Chronic pain disorders are under researched & not understood. My life is completely changed. Thank you for making me feel like I'm not alone. ❤️

  • @ontherocksjojo
    @ontherocksjojo 29 дней назад +6

    I think it's amazing that you're making videos of this for awareness of your condition!
    I also have a rare condition, and I'll tell my story to people to spread awareness as well. I get asked a lot because I have a massive scar on the right side of my head, and with my Mohawk, it's VERY noticeable. I don't give a shit about TMI when it comes to my own medical issues. I'll let you know EVERY detail 😂 especially if it potentially helps someone in the future

  • @KatTheKlown
    @KatTheKlown 29 дней назад +1

    I have recently been struggling with mobility and joint pain (possibly fibromyalgia or hypermobile ehlers danlos), videos like these make me feel way less alone, I don't have a diagnosis yet thanks to the NHS failures and I feel like I'm losing it most days, thanks for being so open and honest, it makes things better and makes people like me feel not so alone x

  • @silkcatgirl3597
    @silkcatgirl3597 29 дней назад +2

    The fact this effects your life so negatively and it isn't covered on the NHS is absolutely disgraceful!! I was wondering when you'd do an update on this and was hoping it would be a good one, so sorry to hear you are not doing well my love ❤️ I hope the future procedures go better for you, and we love you!! Don't worry if you need to take a break, and always happy for any form of content from you not just tattoo related 🥰 x

  • @autumnbranscome1741
    @autumnbranscome1741 Месяц назад +4

    I'm sorry you are still going through this. I was hoping the botox stuff would have worked more / lasted longer for you.
    PS I will watch whatever you put out tattoo related or not ♡

    • @treacletatts
      @treacletatts  Месяц назад +1

      Thank you lovely 🩷🩷 appreciate you forever and always!!

  • @x.brookebennett
    @x.brookebennett Месяц назад +4

    We're always here for you pookiebear

  • @ShammiWhammi
    @ShammiWhammi Месяц назад +5

    Sending love ❤

  • @i_love_rescue_animals
    @i_love_rescue_animals 28 дней назад +1

    Lauren, I'm so sorry you are suffering so much with this and the botox shots are not working. I can only imagine how uncomfortable, painful and frustrating it must be to not be able to get trapped air out. I can *sort of understand as I just went through a hellish week of what I think was food poisoning. I'm 62 (and a tattoo enthusiast) and have 2 cats. I could *barely take care of myself and my two cats (one needs insulin injections and medication, the other needs medication) - as its not just a matter of putting dry food in a bowl. It's preparing an injection, smashing pills into wet food, separate food for each cat, etc. It was VERY hard to do in-between bouts of vomiting. Now, I'm suffering through gastro problems (though I can function) where my gut is just not right and I'm having bloating and cramping and sometimes diarrhea (sorry, TMI). Anyway, it's been over a month now and I have been to the doctor. All this just to say, I can understand to a degree what you are going through even though my issue is different. I have other health issues as well (mostly painful arthritis). My heart goes out to all with physical (or mental) health problems - or chronic pain. I hope you are feeling better soon - and hope the surgical method of the botox works! 💪🏽❤❤‍🩹

  • @paigevanderwolf6986
    @paigevanderwolf6986 19 дней назад +1

    I have never commented on a RUclips video before, but I couldn't let this one go. I have been struggling with so many of your same symptoms for my entire adult life, over 15 years. I've done countless things to try and prevent the pain and to try and treat it, but nothing has ever worked. This video is the first time I have ever heard of R-CPD. I cannot even express how I'm feeling at the moment. I really feel like this could be the diagnosis I've been missing all of these years. Thank you thank you THANK YOU for sharing your story. I haven't stopped thinking about this since seeing your video, and I'm eager to find a doctor who is open to discussing it. If this is me, you have just changed my life. Truly. Thank you.

    • @treacletatts
      @treacletatts  19 дней назад

      That’s how I felt when I found out it was a thing!! Highly recommend checking out the Reddit page called No Burp. It’s so incredibly helpful and there’s also info of specialists on there also!!

    • @paigevanderwolf6986
      @paigevanderwolf6986 19 дней назад

      ⁠@@treacletattsthank you, I will definitely check it out! Sending you so much support and healing thoughts!

  • @sofiesusi
    @sofiesusi 28 дней назад +1

    I've had chronic gastritis for years and am still struggeling a bit with it today
    When I say I feel your frustration so much I mean it
    There were days where rice and brokkoli had me in so much pain I couldn't stand. All my test always came back perfectly fine with no cause to be found
    You are doing the best you can with your chronic illness and you are so strong for it

  • @fluidchant
    @fluidchant 24 дня назад +1

    I am so sorry to hear how much you're struggling. I am Autistic and have POTS, both of which are invisible conditions. I absolutely understand feeling like your experience is silly just because it's fundamentally about burping which feels silly. But you're actively struggling every minute of your existence and it affects every single moment of experiencing life. There is SO much external and internal pressure to tone down your difficulties because they feel silly. It's great that you're sharing about this. There are so many huge disappoints along a journey like this and accepting a new reality is so hard. So much love to you >> The heart stuff you're describing sounds similar to my POTS symptoms. I developed POTS from covid. POTS can cause GI issues which could have worsened this burping situation. Total guess but it's what I am seeing.
    The solution is compression socks, salt, and water.
    I also have a history of anemia and weird dizziness from not eating right but I kept thinking my POTS symptoms were due to iron or eating but it wasn't lining up.

  • @shygondry2789
    @shygondry2789 29 дней назад +1

    i am currently healing from a breast reduction, 2 weeks post op and it has been a lot tougher than i anticipated pain wise. i can’t imagine living with chronic discomfort and pain like you and so many people do 💓 you are honestly so so strong, i hope there are better days ahead 💘

  • @KarenP1939
    @KarenP1939 26 дней назад +1

    I’m so sorry that this happening. I understand the feeling of being home all the time. I have been off work for 16 months because something happened at work I now have PTSD. I have a lot of mental health issues it is hard to keep going at times. Being stuck in limbo is hard. I understand that too. Waiting on everyone else and you can’t do anything for it to go quickly.

  • @Lorenseverevolvingjourney
    @Lorenseverevolvingjourney 29 дней назад +1

    The faintness could be hypoglycemia (low blood sugar). I was diagnosed with that at 12 and yeah.... If i skip meals(which i do often😢) i get headaches, irritability, shakes, and fainting. Its only a small part of your issue but it could help. I wish you wellness and lots of love, Lauren❤❤

  • @hannahgeiling8431
    @hannahgeiling8431 15 дней назад

    i can’t really relate but i promise u absolutely nobody in your life sees you as “useless” or “boring” as you were saying. i completely understand wanting the option to go out and do things and i have hope and confidence that day where you finally can will come for you and it should be the biggest celebration you’ve ever had!!! until then try not to be so hard on yourself, you’re doing amazing and we all luvs u

  • @saikkysecrets5381
    @saikkysecrets5381 29 дней назад +1

    Thank you for this video! It's good that you grasp the mental toll it can take to appear cheery and lovely (which you are your vibes are so so so wholesome thank you you make me smile) when you're actually in pain and anguish. I hope the best for you you deserve the world!

  • @chattynat978
    @chattynat978 28 дней назад +1

    Bless you NEVER feel bad for sharing or saying your struggling 😢
    Totally understand I have eds which has caused gastroparisis and past 10 years been fed by tube. Won't go into detail and bore you but basically I get putting on a brave face coz even those who love and support don't get or really understand the pain and uncomfortable feelings or can endlessly put up with missing out on normal activities xxx
    Sending you love and cozy hugs 🫂 ❤xxxx

  • @Fizzgig666
    @Fizzgig666 28 дней назад +1

    You're not useless, never ever! It's hard but try to think how you'd give grace to someone else who was suffering. It's so easy to be hard on ourselves though! I 100000% understand about the fear of going under. I had to have an operation to diagnose and treat endometriosis and let me tell you I was a mess. I was shaking so much walking into the room the poor nurse had to help me on the bed. It wasn't like the movies though, I thought they'd count down and then I'd be asleep but all I can remember is the nurse asking a about my tattoos and then I woke up! My husband was an absolute saint throughout, it's hard on partners but it sounds like your Tom is a good egg. Good friends and family will understand and if they don't then boot them out of your life! Big hugs ❤

  • @informitas0117
    @informitas0117 29 дней назад +1

    Well, as for me - I'm still schizophrenic, actually schizoaffective (basically schizophrenia and depression (for me, others have bipolar), and it sucks). It has already ruined my life, so I'm sitting here in the rubble of it all. It's just a long wait for my next psychosis, and maybe I won't survive that. One can hope.
    However, Treacle's issue is just as valid, and so are yours (who ever you are reading this). Everyone's pain is unique, and it's your job to pull on every string you can until you get help.

  • @kayleeshelstad9638
    @kayleeshelstad9638 26 дней назад +1

    i know how it feels to go from having a life to having your chronic illness yank it all away from you. i have gastroparesis (my stomach works at a third of the speed it should) and when it came about in 2020 ? i still can’t go to restaurants cuz ill cry cuz i can’t eat anything if i want to feel okay at all the rest of the day. eating is always a gamble which is stupid and then im also emetophobic so the constant nausea that comes with my chronic illness is such a bad time. i know its tied into my anxiety or something somehow cuz i refuse to leave the house without a hospital sick bag even when i hadn’t been sick from my illness yet. like i hadn’t v0m!ted in 11 years and i was so scared (and still am) that i legit brought an empty ice cream bucket to my great grandmas funeral. my family luckily knows that i have a lot of stuff wrong with me but anytime anyone recognizes the blue bag (hospital sick bag) in my hand in public im so embarrassed but its way better than carrying a huge ice cream bucket lmao also all my blood pools in my legs when i shower to the point my legs go so purple it scares me but apparently i don’t have a heart condition. i lose my hearing and vision when i stand up most of the time but again, i supposedly don’t have a heart condition. i had a heart monitor for a week and even when i felt like my body was falling apart there was no irregularities. cuz i thought i had POTS , i have almost every symptom except my heart is apparently normal and when my doctor reached out asking what i wanted the next steps to be i was just like “uh nothing im good i guess im just imagining this and dont wanna embarrass myself again when there’s nothing wrong” also the stomach, weed is a friekin life saver. i can comfortably eat a lot more when im high i know this is all over the place but so is my brain. i also get migraines and i haven’t even gotten to the mental illnesses and the fact im autistic. i know what its like to be inside all day every day. i only leave for appointments or if my parents want to go thrift shopping and if that’s the case then i have to lay in bed for a couple days afterwards to recover my social battery and i somehow used to go to parties? like i don’t want to go to clubs and bars but at the same time i feel like im missing out on my youth because i stay in my house and driving terrifies me. i have my license, i do not have my sanity. the idea of knowing i have to drive sends me into a panic attack now. i once drove 3 hours in such bad rain at night that everyone on the freeway was going less than 25mph driving home from visiting my grandpa and now i can’t even drive to starbucks woohoo skill regression. my entire everything has been affected by skill regression. back on topic though, the burping. i genuinely cannot imagine living without being able to burp. the saying “i feel like i have to burp but i can’t” is a weekly thing i say to my fiancé. normally my thing only lasts for a half hour at most and that half hour is miserable i CANNOT IMAGINE living like that full time. and no days off. oh my god. i’ve also had the painful hiccup thing (i’d assume in a lesser intensity) and yeah not fun. at all. my grandma be like “god loves you and is waiting for you in heaven” and all that shit and i’m just like someone who loves you won’t just watch you suffer without lifting a finger to help you. if there is a god, he’s a dick. i don’t have anyone to talk to in real life so sorry for the long comment. i really admire you.

  • @Pagandawn13
    @Pagandawn13 26 дней назад +1

    I think I can speak for us all here! We don't take YOU for granted! You take care of you! You do what you can for us. I know it's your job, but, your health is more important! We all love you and wish you blessings for a smooth recovery for whatever they are going to do to you! 💜🖤

  • @TeeKing
    @TeeKing 28 дней назад +1

    I also have had RCPD all my life, and mine has been worse lately, as well. Sleeping is a struggle because it's worse whilst lying down. I've stopped seeking medical intervention for my maladies, else I'd be in a clinic all the time. I see, feel, and hear you. 💙

  • @blueskydays00
    @blueskydays00 27 дней назад

    As someone with chronic illness, I relate to the anxiety so much! So sorry for the rough times. I bet people would understand a break, watch vids with text or voice-reader stuff, and support in other ways!

  • @darkydoom
    @darkydoom 29 дней назад +1

    I'm so sorry to hear you in pain like this. I've been having this horrible issue in the past 2 years where like gas is stuck in my digestive tract, but pass the stomach. And I've ended up in emergency twice with it because I can't MOVE! breathing hurts, just existing hurts, and it's like my intestines are twisting and my abdominals clench up and 4hrs later i start farting out all the gas. But I don't know what the trigger is and I'm trying to find specialists that believe me and can help diagnose or treat me. It's wild

  • @allymonville6491
    @allymonville6491 29 дней назад +1

    Omg I love you so much Lauren I'm so sorry you're going through this! We all love you and if you need a break ever just take that break!

  • @ARockerNamedKristin
    @ARockerNamedKristin 26 дней назад

    As someone who regularly gets gas pains I CANNOT imagine suffering that severe internal pain daily. I sincerely hope the next treatment works for you. Youre strong and brave even if its scary.

  • @mariejudene4097
    @mariejudene4097 26 дней назад

    I loved getting to know more of your story. And it breaks my heart that you said you feel useless. You’re an inspiration to many and I truly hope your health journey progresses in a positive direction. Thank you for sharing. Sending so much love ❤

  • @davegrohlthecinnamonroll4495
    @davegrohlthecinnamonroll4495 25 дней назад +1

    As someone who also suffers with a rare chronic condition that causes similar symptoms, I feel you girl. Sending so much mf love 🏴󠁧󠁢󠁳󠁣󠁴󠁿 💙💙🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @Littlelikeme92
    @Littlelikeme92 29 дней назад

    I’m also on team fake it til you make it. During my last visit to my psychiatrist I told her I stopped taking my depression meds because I didn’t feel anything positive from it but was still experiencing the side effects. She revealed to me that I have a form of depression that can’t be treated by meds as we’ve tried probably 6 different meds in the last 2-3 years. She told me I will always be a little depressed and a little anxious and a little stressed and no pharmaceutical is going to help. Needless to say, I smoke a lot of 🥦. But it’s not a cure all. All this to say, I can relate to not feeling okay. You’re not alone and you are a bright light to many. For anyone reading this, you are loved and you have value and I hope that you are able to heal and find peace.

  • @Fabutam
    @Fabutam 22 дня назад

    Hello well I’m a chronic health invisible illness person too, it’s been 12 years since the worst started but I also have had issues on and off my life but I used to be crazy healthy running around doing every sport possible and then when I have my second child my hips just started really being in pain and within a few weeks I was using a Zimmer frame and a week after that I was bedridden For 20 weeks of pregnancy. After that I thought I’d get better and within a year I did things I was able to walk around carry my baby but suddenly it all crashed down and I got told at 30 years old that I would never work again. I’m now 44 luckily I’ve been able to be there for my children mostly from my bed or from the sofa, but my mobility scooter has given me. I’ve been free to get out and about it also lays right back so maybe that’s something you could think of because you could lean back when you need to. I totally understand the embarrassment of feeling useless and the feelings of waste of our life but You give thousands if not millions of people pleasure by your videos that you do even if you have to lie down afterwards. I make a meal and lie down afterwards. I do a little bit of cleaning and have to lie down afterwards I’ve spent the last week in bed because I went out and sat and watch my friends sing for an hour. I have fibromyalgia, complex regional pain syndrome, trigeminal neuralgia, and ME all invisible all with agonising pain and with exhaustion and brain fog. I still haven’t come to terms with how I am because I’m stubborn and I don’t want to believe it so I struggle and fight and I think I always will, please try to pace yourself which is something I’m told all the time and still haven’t learnt, and keep telling us when you’re having a bad day even in the middle of a tattoo video because as a fellow female covered in tattoos I get it. The amount of people who have said if you suffer from pain, why do you have tattoos? Don’t understand what getting tattooed feels like because I choose where and where I get the pain and I know that I can stop it at any time, unlike my conditions, where I can do nothing wrong and agony. I’m also getting diagnosed with ADHD and mostly autism very soon because that’s pretty obvious.😂
    Sorry if this doesn’t make sense I’m talking to my iPad to save energy. Love to everyone, especially the invisible illness peeps I get it. x

  • @rhenaravanderhaar5414
    @rhenaravanderhaar5414 29 дней назад

    I understand how something that seems insignificant to other people can ruin your life.
    I’ve been dealing with severe itching since December last year and my life has been put on hold. It’s debilitating
    “It’s just an itch” “it’s just a burp/gas”, you try dealing with it all day everyday!

  • @MegBat713
    @MegBat713 29 дней назад

    Thank you for being open with us! Really hope the next step works! 🤞🥺 I've had trapped burps & throat gurgles frequently enough to know you are going through a personal Hell, & you're too nice & awesome to have to go through that. Keeping you in my thoughts, prayers, & best wishes 💜💚

  • @desireeadams1261
    @desireeadams1261 29 дней назад +1

    I also do the weird frog noise throat thing and have my entire life, usually have people joke about it. Mine however from what I'm told is related to having severe Acid Reflux Disease, though the meds haven't been helpful for around 7 years now. I can 't sit with my knees to my chest anymore ( been my comfy position when on computer or watvhing TV) because it causes this gross greasy like straight acid from my stomach to run out of my nose - and when that happens I'm down and out for days, completely useless unless i'm just laying down. I feel for you.🖤🖤

  • @huldahronns
    @huldahronns 10 дней назад

    I got my first dose of Botox last week. So far, no luck yet. I stumbled on your channel because of that, I couldn't find anyone that talks about this disease - just a few doctors, no one that suffers with it. I have been feeling isolated because of this disease, it is nice to feel less alone in this struggle. I honestly relate to every single symptom, the same way you do. I have been put under 2 times (not related) and about to have another operation next week. I know this probably does not help, but honestly - it's a piece of frkn cake vs the life you live with RCPD.
    This is coming from the girl who had a panic attack the first time I had to be put under.
    Anyhoo.. hopefully you will feel better asap. Thank you for creating this content for the glittery unicorns that have RCPD (we are truly special😂). The strength that you show talking about all of it, however "embarrassing" it is, is admirable, and I am so thankful ❤️

  • @vanillabean5019
    @vanillabean5019 28 дней назад

    I have been dealing with a health issue for the past 4 years, been on the waitlist for a doctor for few years and finally being able to see a doctor this month. This stomach issue has been nothing but horrible. I’m hopeful that I will have a diagnosis soon. I hope everything works out for you

  • @erinwilliams8874
    @erinwilliams8874 26 дней назад

    I know exactly how you feel! I have Fibromyalgia & RA & those cause a whole bunch of other illnesses on top of them! I only get out of the house for Dr's Appointments & to get my hair done! I know how hopeless it can feel, feeling like it's never going to get better! Just try & take 1 day at a time & just make through the day! You have a huge community behind you, rooting for you and sending you all the positive energy you need to make it through this! It will get better! 🖤🖤🖤

  • @db6765
    @db6765 26 дней назад

    I'm so sorry you are going through all this, I feel you. All my fingers and toes crossed that it all gets sorted soon. You've got this ❤

  • @emmaboylen5815
    @emmaboylen5815 28 дней назад

    I've had undiagnosed pain in my legs for nearly 10 years. I've seen a neurologist and a rheumatologist, but no joy. I also suffer from restless legs, which I take meds for. I can relate to your discomfort when flying.
    Thank you for posting this video. It's persuaded me to keep pestering my doctor. x

  • @ameliahardy9810
    @ameliahardy9810 23 дня назад

    In 2020 my jaw dislocated from TMD and stayed dislocated for the next 3 years. I did Botox, dry needling, PT, and surgery. I felt so alone being in so much pain every time I laughed needed to eat or yawn. The pain was unreal. I sympathize with your journey and I pray you find your solution soon

  • @JamieHersheys
    @JamieHersheys 27 дней назад

    Thank you for coming on here and sharing what youve been through to try to help others! Ive delt with chronic pain and it can be more taxing than people realize. It helps to destigmatize peoples differences❤ Yall not being ok IS OK. ❤

  • @michellethemotherofboys9950
    @michellethemotherofboys9950 29 дней назад +1

    Chronic pain is very exhausting physically, mentally and emotionally. I'm praying the next surgery fixes this for you, you deserve to have your life back❤ I cant remember the last time I wasn't in pain. For me the worst of it has been the last 11.5 years when my ribs started popping out. It s clearly due to stress because it happened for the first time when my Mom was dying in hospital. When it's really bad I feels like I'm going to throw up and the pain is so bad I just cant get away from it, yet I have keep going and care for my 3 little kids. I have taken so many over the counter pain meds that I ruined my stomach and those now make me nauseous too. I have asked around to chiropractors, massage therapists, my family Dr, and everyone says there's nothing I can do. My last hope is what my therapist recommended which is somatic exercises to try and release stored up trauma. I'm day 12 of 30 and so far no relief for my ribs, but I'm going to keep going because I want to not feel like this anymore...