Not wasting away; the progression of Shane’s disease was halted by the medication he is now on. And this new treatment when it is ready will be a life changer for him.
How exciting for you both! Hannah, freeze your eggs if you haven’t already, they are in peak shape right now, you can technically get pregnant at any age, as long as you have the eggs. Wishing you both all the luck and love as always ❤
I know someone who adopted a fertilized egg and had a son through IVF. I also know someone else who had a successful IVF baby (theirs) at 50. Their other children were born to them later, so little one is 4 years younger than the one next to him.@@victoriaheggadon
Our friends are both 43 and pregnant with their first child. You have a lot of time. Hannah, bank your eggs in a few years just in case! Their baby is from an egg that was banked 15 years ago!
Medical advancements never cease to amaze me. I’m looking forward to seeing that video in the future when you tell us more about this drug! Fingers crossed they can make it available to adults soon!
Wow!! How exciting to know that there may be a new drug, Shane, that could minimize some of your symptoms from SMA! That’s HUGE! And how that news could impact both of you and your journey to start your family - could be miracle material!! Let’s all pray that this all moves forward at a rapid pace. Merry Christmas!! ✝️🎄
Wow!!! That’s an amazing breakthrough. How wonderful for parents of new diagnosed infants/newborns. Such advancements since my niece was born. Even your current life is so amazing for me when she was born only a short amount of years was all we were able enjoy with her. But they were amazing years!
WOW..This sounds amazing!!! As a nurse for many years..love hearing about breakthroughs like this..hoping and praying something can be done for Parkinson's Disease and ALS soon ...Shane and Hannah..hoping and praying that Shane gets approved and that it's effective🙏❤️ Be Blessed Always 🙌
I’m praying with you for these breakthroughs.. my mom had Parkinson’s and my daughter’s mother in law is passing as I type this from ALS. Both awful diseases. Prayer for all, pray your holidays are bright.
I'm a scientist/geneticist (not working on SMA) and this is what I love about my job. I think this is so exciting and it had a long time coming. I just checked out the genetic details of the therapy and the studies on children. I wish for you that it'll be made available for adults sooner rather than later!❤
My daughter is a miracle. I got pregnant after taking Clomid but had bleeding. Docs didn’t have hope and I spent months on bed rest. My daughter is 45 now, and has two children. Miracles do happen. It turns out that the placenta was tearing away at the top, and bed rest saved her life. She saves my life every day just from the joy of having her.
I have a miracle daughter too my hubby was a quadriplegic and so we went to University of MN and we got pregnant on the first try. So I understand your joy of her!
That’s great news for you guys. Hopefully not too long of a wait. You’re both still young and have the will to make it happen. I’m wishing you the best news ever.
What great news!!🎉 Imagine yourselves having a child! Oh my gosh, that's so exciting!🧸👶🏼 Of course, the #1 concern is safety. Is the med safe for you, Shane. For you, Hannah. And for baby. That's most important. I'll be praying for your decision. I pray that God makes it crystal clear to you both, and what you're supposed to do. Merry Christmas!🎄🌟🎅🏼
A man trying to provide for his wife. His wife loving equally back. All in hopes of a family. Such a beautiful message. May the positive lightening bolts of hope come right for ya. ❤
My husband is actually the doctor working on genetic engineering of deafness. There was an article in Forbes about it recently on the Top 5 medical breakthroughs of 2024.
@@eutc7 I am also here looking for updates! Cole and Charisma haven't posted anything that I can find, neither have Hannah and Shane. I hope everyone is okay!!
OMG.... Such great news and couldn't imagine how y'all felt hearing there could be hope coming soon. This I would count as one of the best Christmas gift of news. I will definitely keep you both and all the scientist working on this in my prayers. Everyone have a bless, safe and Merry Christmas!
I watched this video with the sound off, so as not to disturb my sleeping hubster, and you both look just wonderful. Not only is the news you shared exciting, but it is so clear how much you love, and enjoy each other’s company-- Nay sayers be damned! I hope you have a blessed and wonderful Christmas, and a happy, healthy, and prosperous 2025!🎉
Amazing news! Such a great update, hope to hear more good news about this when you have it! How wonderful it would be to start a family and leave SMA behind! ❤❤
This would be so amazing. The treatment, wow, the possibility of what it could mean for you guys .Shane I can't even begin to understand what it would mean for you to be able to hopeful gain strength. I'm so hopeful this comes to fruition. Also I think yall would be great parents. Been following yall for several years now, love your content, it always puts a smile on my face
Oh wow! This is so exciting for you! I hope I’m not sounding weird but Shane you look so healthy and good! I think the sun and warmth agrees with you! ☀️
So cool! What an amazing age we live in right now. I really hope this happens as quickly as is safe! Thanks for the update, love hearing from you guys.
This is the best, best, best news I've heard in a while. I love hearing about these breakthroughs, but how awesome would it be to literally watch via your channel?
Best of luck to both of you! And you're right - research the hell out of this new medicine. Do a list of pros and cons. Talk to families that have had it done. We'd love to see a baby Shannah running around.❤
The scientists and doctors working their entire lives to make medical breakthroughs and save lives are hero’s. Real life hero’s. The past decade, ever since a certain horrid politician came onto the scene, our medical/scientific communities have been attacked and villainized all for fleeting political gain. Stories like this remind me how incredible our doctors are and how much I appreciate all the hard work they do.
That’s so exciting! I worked with a little one who could only move her tongue prior to gene therapy. She was able to sit and beginning to stand as a toddler. Prior to the treatment, she was not expected to live very long.
I am so thrilled that there is even a possible solution. You are being very sensible and balanced. Do freeze your eggs, Hannah. Miracles do happen Against all odds. We're all there for you ❤️
I love this for you both. Helps Shane get better and potentially gives you a better chance of getting pregnant!!!! This is a very Merry Christmas message. 🎄
I will be praying for you two! You are the sweetest couple and wish you love & happiness....Merry Christmas, and hope 2025 brings you much happiness and blessings.❤❤
My son and his fiancée (both 35) are expecting their first baby (2nd IVF attempt). I prayed for years for them to have a baby. My middle daughter and her husband have 3 children through IVF (and a 4th born 2.5 months ago who was conceived naturally!) Miracles DO happen. I will be praying for you 🙏❤
Guys, I am exceptionally happy for you. I haven't followed you for a while and you popped up in my mind every few times until I decided to check up on you today. What can I say? I love you guys, may Allah protect you from the evil eye and grant you prosperity and happiness. You are loved.
Adoption is so much harder than people think. I say that because my siblings are adopted & they have major mental health issues & trauma from pre adoption life. The behavior issues alone gave me secondary PTSD. Adoption is amazing but just know what you’re really getting into!
Thank you for saying this out loud. I agree with you; Everyone's adoption story is unique and many adoptions are "easy.". For those with the harder journeys, adoption isn't for the faint of heart and can be much harder than imagined. I feel for you and your family. It sounds like all of you have experienced a lot over the years. I appreciate you bringing it forward to share a piece of your story and I hope everyone has found, or will find, their place of safety and peace.
100% this - my husbands sister was adopted and we while she is doing much better now, she still suffers from PTSD and anxiety from her life pre adoption. We plan to adopt one day, but want to make sure we financially will be able to not only give a child a good life, but be able to provide them with therapy from the get go for as long as they’d like to do it.
Thank you guys. Both of you. I will be praying that this will come to pass. You have given me a gift as well, and I thank both of you for it. I am here on the day after Christmas wondering if there were that many genuine good people out there in the world anymore. You two have shown me that there are indeed some left. Thank you so much. God Bless you.
This could be a huge advancement in your medical journey and could be life changing. There could be so many advantages for you. Good luck, I really hope this helps you when it becomes available.
I suffer from PCOS and endometriosis, 7 years tryng, FIVs, inseminations and finally, with 40 years i had a beautifull baby boy. He has 4 years old right now ^^
This is so exciting on so many levels!!!! You guys will make moonshot awesome parents if that’s the journey with which you choose to proceed, however you choose to proceed…but I love that there are more medical interventions to improve quality of life and functioning as well. Just…wow!!!! Modern medicine is genuinely astounding. Wishing you both the absolute BEST for 2025 as you plan your next course and feeling so privileged that you guys are allowing us to follow along on your journey. Much love from WVa ❤❤
I hope that you both had a wonderful holiday season... Whatever the case with the new treatment, I wish you the best of luck in your decision making... I can't imagine how difficult your journey has been... I'm a firm believer that everything happens for a reason, even if it isn't evident at the time... I do hope that the medication becomes available for Shane... Is it strictly by weight, or is age also a factor in the current medication available and in trials??? Shane is looking great lately... STRONG!!! Hannah, you're always beautiful... Take care and happy new year!!!
That is huge news. I don’t know how old you are Hanna, but I was 43 and 45 years old when I adopted my children. They are now 20 and 22. I’m 65. They are my world. Good luck to the both of you on your journey.
We were too old for IVF so we adopted our beautiful daughter internationally. We could not love her more if she had been born under my heart instead of in it!!
Not only huge baby news, but HUGE news for Shane’s health and future! The minds working on medical Science are amazing ❤
Shane, you look the healthiest I’ve ever seen you. You are glowing. I think hydration looks good on you.
I agree!😊❤️
Yes Shane, you are glowing! 🤗
I thought the same
He's literally wasting away.
Not wasting away; the progression of Shane’s disease was halted by the medication he is now on. And this new treatment when it is ready will be a life changer for him.
I suffer from pcos and have been trying for 7yrs. Now im 20 wks pregnant . At 35. Your time will come. Best of luck
Congratulations ❤🎉 🙏
CONGRATS!!!!!!!
Congrats! So happy for you, mama!!!
WOW ME YOU HAVE PCOS ÌN MY 13TH WEEK AND 35
As a young person with PCOS, this brings me a lot of hope. I can’t wait for my future.
How exciting for you both! Hannah, freeze your eggs if you haven’t already, they are in peak shape right now, you can technically get pregnant at any age, as long as you have the eggs. Wishing you both all the luck and love as always ❤
They have drs and all the help they need.
They don't need your opinion
Please rethink if freezing eggs is morally right :( Seek God.
God bless you.
I know someone who adopted a fertilized egg and had a son through IVF. I also know someone else who had a successful IVF baby (theirs) at 50. Their other children were born to them later, so little one is 4 years younger than the one next to him.@@victoriaheggadon
You can’t really freeze eggs alone, they have to be embryos. Eggs by themselves don’t freeze well.
Our friends are both 43 and pregnant with their first child. You have a lot of time. Hannah, bank your eggs in a few years just in case! Their baby is from an egg that was banked 15 years ago!
wow amazing! ❤
Theyll be 63 when they child is 20
@wheatstonebridge so? I'm 27 and my dad is 67 who cares
@@wheatstonebridgeWow, you're good at math.
@@wheatstonebridgeand???? Won’t they be 63 anyway?
This is awesome! One, for Shane and two, for any future kids born with SMA. The medical advances are truly amazing.
Medical advancements never cease to amaze me. I’m looking forward to seeing that video in the future when you tell us more about this drug! Fingers crossed they can make it available to adults soon!
Wow!! How exciting to know that there may be a new drug, Shane, that could minimize some of your symptoms from SMA! That’s HUGE! And how that news could impact both of you and your journey to start your family - could be miracle material!! Let’s all pray that this all moves forward at a rapid pace. Merry Christmas!! ✝️🎄
Amen!
Wow!!! That’s an amazing breakthrough. How wonderful for parents of new diagnosed infants/newborns. Such advancements since my niece was born. Even your current life is so amazing for me when she was born only a short amount of years was all we were able enjoy with her. But they were amazing years!
WOW..This sounds amazing!!! As a nurse for many years..love hearing about breakthroughs like this..hoping and praying something can be done for Parkinson's Disease and ALS soon ...Shane and Hannah..hoping and praying that Shane gets approved and that it's effective🙏❤️ Be Blessed Always 🙌
I’m praying with you for these breakthroughs.. my mom had Parkinson’s and my daughter’s mother in law is passing as I type this from ALS. Both awful diseases. Prayer for all, pray your holidays are bright.
@@lceec7012 Prayers for you and yours 🙏 Merry CHRISTmas..Be Blessed Always 🙌
This is wonderful news. Fingers crossed for you both and all of those dealing with SMA!!
I'm a scientist/geneticist (not working on SMA) and this is what I love about my job.
I think this is so exciting and it had a long time coming. I just checked out the genetic details of the therapy and the studies on children.
I wish for you that it'll be made available for adults sooner rather than later!❤
How amazing & wonderful news! So happy for you Hanna & Shane!
My daughter is a miracle. I got pregnant after taking Clomid but had bleeding. Docs didn’t have hope and I spent months on bed rest. My daughter is 45 now, and has two children. Miracles do happen. It turns out that the placenta was tearing away at the top, and bed rest saved her life. She saves my life every day just from the joy of having her.
God bless you ✝️🤍🕊️
I have a miracle daughter too my hubby was a quadriplegic and so we went to University of MN and we got pregnant on the first try. So I understand your joy of her!
That’s great news for you guys. Hopefully not too long of a wait. You’re both still young and have the will to make it happen. I’m wishing you the best news ever.
I'm so happy for you both! ❤ This is amazing news for anyone with SMA.
That would be so WONDERFUL, lifechanging!! Praying for you Shane ❤😊
What great news!!🎉
Imagine yourselves having a child! Oh my gosh, that's so exciting!🧸👶🏼
Of course, the #1 concern is safety. Is the med safe for you, Shane. For you, Hannah. And for baby. That's most important.
I'll be praying for your decision. I pray that God makes it crystal clear to you both, and what you're supposed to do.
Merry Christmas!🎄🌟🎅🏼
A man trying to provide for his wife. His wife loving equally back. All in hopes of a family. Such a beautiful message. May the positive lightening bolts of hope come right for ya. ❤
My husband is actually the doctor working on genetic engineering of deafness. There was an article in Forbes about it recently on the Top 5 medical breakthroughs of 2024.
That’s amazing 🤩
Shane and Hannah, so hoping you're well and not experiencing the devastation of the Hurst fire. Have had You in my prayers, God be with You.
I've just come to check on them. I did the same with Cole and Charisma! I hope none of them have been affected
@@eutc7 I am also here looking for updates! Cole and Charisma haven't posted anything that I can find, neither have Hannah and Shane. I hope everyone is okay!!
OMG.... Such great news and couldn't imagine how y'all felt hearing there could be hope coming soon. This I would count as one of the best Christmas gift of news. I will definitely keep you both and all the scientist working on this in my prayers. Everyone have a bless, safe and Merry Christmas!
I’m 35, almost 36 and am pregnant for the first time! 10wks 3days today! Prayers for y’all ❤
I watched this video with the sound off, so as not to disturb my sleeping hubster, and you both look just wonderful. Not only is the news you shared exciting, but it is so clear how much you love, and enjoy each other’s company-- Nay sayers be damned!
I hope you have a blessed and wonderful Christmas, and a happy, healthy, and prosperous 2025!🎉
How exciting! Also so glad it's working with babies. Sounds like it's almost a cure! MERRY CHRISTMAS! ❤
Such great news and nice timing right before Christmas. Very happy for both of you.
Amazing news! Such a great update, hope to hear more good news about this when you have it! How wonderful it would be to start a family and leave SMA behind! ❤❤
This would be so amazing. The treatment, wow, the possibility of what it could mean for you guys .Shane I can't even begin to understand what it would mean for you to be able to hopeful gain strength. I'm so hopeful this comes to fruition. Also I think yall would be great parents. Been following yall for several years now, love your content, it always puts a smile on my face
This could be HUGE for the SMA community!
Oh wow! This is so exciting for you! I hope I’m not sounding weird but Shane you look so healthy and good! I think the sun and warmth agrees with you! ☀️
Great news for the SMA community ❤ sending high hopes for your future baby journey
So cool! What an amazing age we live in right now. I really hope this happens as quickly as is safe! Thanks for the update, love hearing from you guys.
I hope its available very soon for you guys, and it works beautifully! ❤️🤞
Man, the rollercoaster of emotions that must come with that information! I hope it's a possibility for you Shane!
That's amazing news for babies. Researchers have really done an amazing job.
That's wonderful! Biomedical research is astounding.
How perfect for Christmas, the gift of hope! Isn't that really what its about anyway. I wish you Merry Christmas, long life and love, always!🎄❤️
This is the best, best, best news I've heard in a while. I love hearing about these breakthroughs, but how awesome would it be to literally watch via your channel?
Oh praying you get the green light for the new treatment 🙏.
Best of luck to both of you! And you're right - research the hell out of this new medicine. Do a list of pros and cons. Talk to families that have had it done. We'd love to see a baby Shannah running around.❤
Whatever the future brings - I cannot wish you both more joy ❤
The scientists and doctors working their entire lives to make medical breakthroughs and save lives are hero’s. Real life hero’s. The past decade, ever since a certain horrid politician came onto the scene, our medical/scientific communities have been attacked and villainized all for fleeting political gain. Stories like this remind me how incredible our doctors are and how much I appreciate all the hard work they do.
Whaauuww wat een goed nieuws,🎉snap heel goed dat jullie hier opgewonden over zijn.Heerlijk hoop hebben is geweldig 🙏🍀💖
That’s so exciting! I worked with a little one who could only move her tongue prior to gene therapy. She was able to sit and beginning to stand as a toddler. Prior to the treatment, she was not expected to live very long.
Wishing you both, all the best. Have a fantastic Christmas ❤️
Shane you look great! Your speech is so clear and you look very strong. I hope you both feel good. Happy Christmas!
May this treatment be more succesful and be made available sooner than expected! All the blessings of the holidays to you both and to your families!
Can't wait for the book to arrive. I pre-ordered it the moment you first announced it!❤
Love seeing you guys again ! It’s been so long since I’ve seen a video of you guys ! 🎉😊
That's incredible news!!!! I so hope it becomes available ASAP!!!
Omg, am crying at the possibilities of these advances for so many people. Hope is everything.
So exciting for both fronts, exciting baby news and even more exciting for Shane’s health!
I am so thrilled that there is even a possible solution. You are being very sensible and balanced. Do freeze your eggs, Hannah. Miracles do happen
Against all odds. We're all there for you ❤️
This is HUGE!!!! Let's hope all goes well. You both look AMAZING. Shane looks like his health has improved a ton.
I love this for you both. Helps Shane get better and potentially gives you a better chance of getting pregnant!!!! This is a very Merry Christmas message. 🎄
So incredibly happy for you both!!
@@samanthamitchell269 thank u.
This is just such good news on so many levels! Thanks for sharing.
I will be praying for you two! You are the sweetest couple and wish you love & happiness....Merry Christmas, and hope 2025 brings you much happiness and blessings.❤❤
My son and his fiancée (both 35) are expecting their first baby (2nd IVF attempt). I prayed for years for them to have a baby. My middle daughter and her husband have 3 children through IVF (and a 4th born 2.5 months ago who was conceived naturally!) Miracles DO happen. I will be praying for you 🙏❤
Praying…is just hope and nothing more. They need science!
@missn.35 They need both!
🙏🏼
Wow! Super evil on 2 levels. IVF is playing God and they aren't married so it's fornication. Repent and seek Christ ✝️ before it's too late.
The research is going by leaps and bounds as the years go forward. It's absolutely great news ♥️✝️🙏
Guys, I am exceptionally happy for you. I haven't followed you for a while and you popped up in my mind every few times until I decided to check up on you today.
What can I say? I love you guys, may Allah protect you from the evil eye and grant you prosperity and happiness. You are loved.
Adoption is so much harder than people think. I say that because my siblings are adopted & they have major mental health issues & trauma from pre adoption life. The behavior issues alone gave me secondary PTSD. Adoption is amazing but just know what you’re really getting into!
Thank you for saying this out loud. I agree with you; Everyone's adoption story is unique and many adoptions are "easy.". For those with the harder journeys, adoption isn't for the faint of heart and can be much harder than imagined. I feel for you and your family. It sounds like all of you have experienced a lot over the years. I appreciate you bringing it forward to share a piece of your story and I hope everyone has found, or will find, their place of safety and peace.
100% this - my husbands sister was adopted and we while she is doing much better now, she still suffers from PTSD and anxiety from her life pre adoption. We plan to adopt one day, but want to make sure we financially will be able to not only give a child a good life, but be able to provide them with therapy from the get go for as long as they’d like to do it.
Thank you guys. Both of you. I will be praying that this will come to pass. You have given me a gift as well, and I thank both of you for it. I am here on the day after Christmas wondering if there were that many genuine good people out there in the world anymore. You two have shown me that there are indeed some left. Thank you so much. God Bless you.
A New Hope is the greatest gift!!! Bless you both and have the happiest of Holidays!!!
I Hope a happy healthy good New Year's coming up. Stay amazing! You both Rock! And you will make good parents no matter how you choose to do so.
This could be a huge advancement in your medical journey and could be life changing. There could be so many advantages for you. Good luck, I really hope this helps you when it becomes available.
I saw this title and I’m thrilled for you both. ❤
Such exciting news to have going into the New Year!! So happy for you both and can't wait to hear more 😊
God bless those scientists and ppl working on it!!! So excited for you guys!
Thank you for sharing your lives with all of us, may the New Year bring joy to you and your family, Happy Holidays
Congratulations babes 🎊 the process takes time will happen 💞
I'm so excited for you both! Praying that the clinical trials will yield a positive result for adults with SMA like Shane.
Merry Christmas 🎄 beautiful couple! ❤ What awesome news for the future. Blessings to you both. 🙏
That's excellent news, guys! I always keep you in my thoughts regarding the baby issues, but this sounds amazing for Shane as well. ❤❤❤
Sounds so exciting that this could be available to you both - I hope and pray its sooner rather than later xx
I'm so happy for you two!!! This is amazing news to hear!
Off topic but Hanna's hair is looking super cute this day!
Good luck no matter what happens ❤️
Oh guys I'm so very happy for yall!! I will add this to my prayers and leave it to the Lord!! Stay blessed yall!!! Sending lots of Love from Texas!!
I suffer from PCOS and endometriosis, 7 years tryng, FIVs, inseminations and finally, with 40 years i had a beautifull baby boy. He has 4 years old right now ^^
Send a prayer to my sister who has been trying for so long with IVF. 😢 Congrats on the kiddo, 4y is such a fun age. ❤
@@arainbowonmyplate8634 I send her a lot of strength and love.!
Wow this news is incredible! I love that there’s an option and also some time! Best of luck you guys! This is amazing
This is so exciting on so many levels!!!! You guys will make moonshot awesome parents if that’s the journey with which you choose to proceed, however you choose to proceed…but I love that there are more medical interventions to improve quality of life and functioning as well. Just…wow!!!! Modern medicine is genuinely astounding. Wishing you both the absolute BEST for 2025 as you plan your next course and feeling so privileged that you guys are allowing us to follow along on your journey. Much love from WVa ❤❤
0:20 loving that harmony 😂
iIm so excited for you!! Even the possibility is awesome! God, i pray you give shane and hannah this chance and soon would be awesome!
This is really exciting for you guys! Excited for you!
Love this news for you two. Whatever you decide will be the right one for you. Congrats - on the book too! I am going to buy it.
I hope that you both had a wonderful holiday season... Whatever the case with the new treatment, I wish you the best of luck in your decision making... I can't imagine how difficult your journey has been... I'm a firm believer that everything happens for a reason, even if it isn't evident at the time... I do hope that the medication becomes available for Shane... Is it strictly by weight, or is age also a factor in the current medication available and in trials??? Shane is looking great lately... STRONG!!! Hannah, you're always beautiful... Take care and happy new year!!!
This is wonderful news. I am so happy for you both.😊
This is wonderful news! I'm wishing you all the best!!
Congratulations on the new hope!
Rooting for you guys. Sending hopeful thoughts.
Science is real. Love is real. Hope makes you feel buoyant. Perfect alignment, right here. ☮️💙🌴
Exciting news on so many levels. Sending love to you both. What a Christmas gift......the gift of love and hope!
congratulations Hannah and Shane!! that is amazing Christmas present!
That is huge news. I don’t know how old you are Hanna, but I was 43 and 45 years old when I adopted my children. They are now 20 and 22. I’m 65. They are my world. Good luck to the both of you on your journey.
Hi I’m on the other side. I am 22 and my mom adopted me when she was 48… she’s now 70 and she is my world. It’s never too late🤍🤍
We were too old for IVF so we adopted our beautiful daughter internationally. We could not love her more if she had been born under my heart instead of in it!!
Thats awesome! I hope & pray it does happen & comes out sooner then you think. I wish u both the best!🩷💙
This is so exciting for so many reasons!!!
Exciting news! I hope it works out for the best! Sending love and prayers! ❤
happy to hear there may be some options for Shane's health and it could help with the baby journey! It is good news for the new year!
This gene CRISPR technology is so exciting. Hold the vision everyone.