Another idea I just thought of. Get a big jar. Sarah can write short notes or phrases of encouragement or love on a piece of paper. Put them in a jar. Each day, month, or year, the kids can pick one out and read words from their Momma!
If she can't write what about stickers she can pick or any graphic people can design her fun notes you can print out. She could add stickers to that that she likes or wants to use
When my dad was dying of brain cancer, I felt awful because I had nothing profound to say to him. He told me, he was just happy to hear my voice. I has able to record him saying he loved me. I replay that at least once a month. Praying for Sarah and all of you. Fuck Cancer.
What a lovely memory. I lost my father 2 years ago. Sadly, I could not be with him. However, he loved getting letters, so I wrote him often reminiscing on memories of all the wonderful family vacations from my childhood and thanking him for being our rock and foundation. My sister read them to him and said he treasured every word.
My mom died of breast cancer Mets to the brain, at the time I worked in a neurological ICU. Our medical director helped with her care, and she received total brain radiation. We were told, 1 to 2 months and she got 8 months with only symptom was difficulty walking. Toward the end she lost the ability to move and talk, but her expression spoke volumes. I was able to take family leave and only work 16 hours per week. Thankfully my mom was an RN also so we had help. She had hospice and was registered as a cancer patient at the American Cancer Society. So we had a lift , I had her out in a chair everyday, fire in the fireplace. Company often and just made memories, it was an honor to be on the journey with my mom. But have to say she passed in 1994 and I still miss her, but we had great talks about life. Sending hugs and love. Prayers
The fact that in just two days, Sarah has declined so much that she can’t make videos, is telling. Obviously the cancer is advancing quickly. No time for projects that require cognitive and communication capabilities that she cannot handle. Just get hospice in there, gather the family together, love on Sarah and each other without stopping.
Have been a hospice nurse for over 20 years. With weaning the decadron, the symptoms will continue to worsen. Its a very agressive cancer in the lining of the brain, which is why you are seeing all the symptoms. If treatment doesn't help, decadron will be the best medication to minimize her suffering. You are all in my prayers. She is an amazing lady and it is heartbreaking to see her going through this.
Thank you for all that you do. My wife was on hospice for 6 weeks before she passed from metastatic breast cancer. The team of angels were so helpful in providing so much support during that time. It’s unfortunate that people wait so long to bring in hospice until the very end.
My late husband had a giloblastoma. There seemed to be some disagreement in the medical community if one needed to wean from decadron to chemo and or radiation . Or If one can stay on the decadron and go forward with treatment. Seems like Sarah’s Dr. Wants her weaned. Do you know any medical evidence on this subject
I’m a hospice nurse too and I’ve seen people with brain cancer do really well on decadron. Really helps reduce inflammation and ease suffering. It’s good stuff.
I lost my mom when I was 8. I would give anything to remember her voice. The simple fact that you have documented this journey so well is an invaluable gift for your children. ❤
I was thinking about how nice these videos will be for the kids too. They can see her again at any time on their phones. The youngest girl can jog her memory with these videos. I lost a parent in 43 years ago... and there's only a couple silent Super8 films of her.
Man to man, husband to husband, dad to dad: my wife's living with a rare disease since 10 years ago. Ups (not many as time goes by) and downs (you know what I mean). You're a living example of a tenacious, resilient, and truly inspiring human being. Big moments are in sight for you, sometimes you'll feel unable to think because of the pain in your heart. But you'll make it through. One day you will turn back to these months and you might miss the pain because Sarah was still here with you, then you'll feeel a sort of relief because your kids became adults and their mom stopped suffering (which nobody should do). Hope you will "stay" with us and keep us informed, from time to time, on how are you feeling. Big hugs from Italy.
Beautifully said and so true. Sorry to hear about your wife. 🙏 As a mom and caregiver for my only daughter for years I have experienced these emotions. She passed away at 36 years old.
As a caregiver of a stage 4 cancer patient, my heart breaks for you Josh. We (caregivers) tend to be on autopilot and are constantly in survival mode. Please take a few minutes each day for yourself. Sending you lots of love and strength. ❤
My husband was diagnosed with bowel cancer stage 4 in 2016...he had most of his bowel taken away...he had lots of chemotherapy lost all his hair and fought tremendous fight...I gave up work to look after him and we used to call it camping out together at hospital and hospice...he was 15 years older than me but we had 20 years together ❤️ and travelled the world...he said to me I know that I'm dying please xxx don't let me die in hospital...but at home....the hospital fought me saying that I didn't realise exactly how poorly he was... I won the argument....he came home we was supported very well...he died 4 days later...surrounded by all the family....I'm so at peace now x
I’m so sorry for your loss Sharon - my children’s Dad was diagnosed with stage 4 neuroendocrine pancreatic cancer with his liver having innumerable lesions in August 2016. He was 50. He also fought and fought and worked thru his illness and went thru 6 lines of therapy- it did spread to his brain and was discovered April 24, 2020 - he went catatonic June 9, 2020 - he was hospitalized but I said he needs to come home and yep the hospital thought I was crazy too and it was HARD but I’d do it again because his children, family and friends got to comfort him and spend his final days with him. He passed just before 8am on Sunday June 14, 2020. May you have continued peace ❤
My sister is going through caring for her husband at home. I see what you went through. It is tough when they are in pain. You did what he wanted and that is the most loving thing you can do.
Having Sarah make a personalized recording were Sarah says the name of the kid, "be kind, make good choices" and I love you will be something they will listen to throughout their lives. Continuing to send prayers and positive thoughts for the entire family.
My mom just passed on June 5th. I recorded a message from my mom to my son. She told him how much she loved and adored him and she said take me with you on all of your adventures and sprinkle some of my ashes in all the places that brought you joy. I took the recording to build a bear and they put the recording inside the stuffed animal. Praying for you all xooxox
Have you asked for Comazine.? It is used for nausea. Ir can cause drowsiness but it is also used to treat migraines which might be nice for Sarah. The others options that come to mind to ask about are Promethazine can be used for nausea and helps with dizziness. It can cause drowsiness as well. The other options are Acupuncture can help with nausea and help over feeling of well being. It is nice because it does nit have any side effects.
I lost my husband to Cancer a couple years ago. As his full time care giver , my husband didn’t want Hospice coming in. I respected his wishes but it took a toll on me , l ended up in the Hospital soon after being released my husband passed. Looking back l wish l had of called Hospice. Being a care giver not only beats you down physically but emotionally as well. Sending Love and Prayers ❤🙏
Just a note on hospice; It is invaluable as a way to get help, even long-term. They do what YOU want and need. And once on hospice, they are there as long as needed. I have had nothing but incredible, wonderful experiences using them.
I’m 9 months into my cancer journey - I have late stage ovarian cancer. I was extremely nauseated and my palliative care team has me on Famotidine/pepsid, Prochoreperozin, Omeprazole, Olanazpine in addition to Zofran so definitely ask as while a lot of pills I no longer am nauseated. I like you guys am planning for the worst but hoping for the best. I’m completely at peace with my diagnosis largely due to my faith as well as the comfort and love I have received now and in my life. My husband has been my rock and you remind me of him. You are a good man! Sending you and your family love and prayers.
There's a psychological phenomenon called anticipatory grief. Sarah and your whole family is going through this (maybe not the younger ones) right now. It's very beneficial to join a support group or see a psychologist who's field of study is grief. Best wishes always to Sarah and your family ❤
@@mimibee626so negative. She said psychological not scientific and she is just trying to help. … please save your negativity we don’t need it around here 🙏💜
I'ma grief therapist and i would have chosen the word process. it's natural, however it's occasional. I'm not seeing anticipatory grief here. I'm seeing hope while being realistic. preparing isn't anticipating, though it's subtle. no one's saying goodbye; they just don't want to get surprised as things may progress. my 2 cents
My mom passed away last fall. We didn’t have hospice care until it was almost too late. You can have hospice care involved as much or as little as you want and you are still the one in control of everything. They are just there to get you what you need(generally faster) and they are there to support you. Our hospice nurse was wonderful. I wish we would have done it sooner than we did, but we didn’t know. I thought hospice meant she had no hope, but that is also not true. You can be on hospice for a while and if you get better, you can stop it. My moms nurse told me one of her patients that was on hospice for years. I highly recommend talking to some hospices in your area. They are so helpful. 💗🙏🏻
Oh we know you’re not giving up-you’re being realistic. It’s okay. I was not upset about the “timeline” because knowing helps YOU plan. It’s a gift to know and if it turns out better then that’s wonderful.
My husband died twenty-three years from cancer we were thirty-eight years old and our daughter was 12 my heart aches for you and your family I know what you are all going through and I wish I could say it gets easier I hope the treatments works and gives you more time my husband was given three months and with clinical trial he did live 22 months it's very very hard for the children my daughter was never the same after her daddy died.....cancer is a wicked wicked beast😢 trust in God he will carry you through that's my best advice❤
Thank you. Thank you for sharing. While I never want anyone e to experience this, your sharing helps me know I’m not alone, and others have pushed through. 🫂🫶🏻❤️
I think you should get a stuffy for each kid with an audio recording of Sarah simply saying, "I will always love you "such and such"..." That would have meant the world to my son but we didn't get the chance. Edited to add: They will be able to feel and hear the love in her voice and yes, the sadness that she's not there but the love. They will know she loved them desperately.
What an amazing husband you are to beautiful Sarah. You are so informed, so articulate, and just tireless in your love for her. Thank you for this update, Josh. I think of Sarah and your family many times a day, and I pray for all of you. It took a tremendous amount of bravery to look into that camera, and speak about this the way that you've done. My continued prayers are with all of you, and love and positive thoughts to Sarah. 🙏💓🙏
The most comforting thing hearing you talk about your situation is how grounded you are in the reality. How wisely you tackle the new circumstances. That is really invaluable and the most solid rock to stand on when everything normal shatters around you and your loved ones. Praying for you all!
My nephew had a very similar situation with cancer that had gone to his brain! I’m a nurse and a person who has been EXACTLY where you are. What I did with B jay is when we got his treatment dates I immediately started him on ensure! If you can get 2 cans in her a day or let her sip on what she will it builds up their protein . With my nephew he gained 30 pounds but when he got into the treatment when he got done all he lost was the ensure weight! For a fun thing they have ensure kids so the kids could drink their superhero drinks with mom so they feel involved❤️❤️❤️❤️
Josh, from one former care giver to another, we’re Not Promised Tomorrow, so Be With Sarah today. Don’t Look Too Long in the Future, You Can’t FIGURE Everything out now, Even When you want to. You ARE Sarah’s Rock Josh, That’s All That Counts Now! Lots of Love to you & the fam!!!❤️🙏
Sarah had already given all us and her family the best words ever. Be kind and make good choices. That to me says it all and I wish my mom would have said that to me everyday. Those words are so simple yet have so much meaning and really stay with you. Thank you Sarah for that because I now think of you saying that everyday and it honestly makes me a better person. Big hugs to you and your family.
Please remember Hospice can be renewed 4 x. They do so much more than imminent dying. They help with equipment, recommendations, bathing. Most people wait to long. They can save so much time and energy on all of you by knowing how to expedite needs. Bless you Josh
This is so frustrating and sad. Sarah deserves so much more time with her family and loved ones. Cancer is cruel. I am one of those who had a very good friend who was given 12 months and lived 8 years. Different type of cancer but it shows hope is there. What it comes down to is quality vs quantity. I want both for Sarah (and anyone else struggling w/ a terminal illness). Please know I am sending so much love to each of you. Sarah is such a bright light in a dark world. The world needs her light. ❤
That’s really all anyone with cancer should do, one day at a time. Because sometimes it’s not the cancer that gets a person. In my son in laws case. He went in for a procedure to help him breathe better, he had stage 4 lung cancer. But we took it one day at a time from the beginning. And we got through one issue at a time. We didn’t expect to lose him when we did, but we were emotionally prepared. Because your not giving up, but you are living in facts, truth is really any family’s friend, especially while dealing with children losing a parent. We didn’t tell my granddaughter every little thing, because the cancer told her. But we answered every question she had with complete truth. One question she never ask was is my daddy going to die? But the day he passed at the hospital, my daughter called me and told me. We were outside and she was riding her scooter. I was going to wait for mama to come home to tell her. But she walked up to me, it must have been written on my face, because she said my daddy died didn’t he. 😢 we fell on the grass and screamed and cried together. It’s very difficult, even being emotionally ready, it’s not any easier, but we keep him alive in our hearts, where he will aways be. We talk about him often, that will never change. Take care guys, enjoy every moment you can. Those moments will and aways be be priceless. Your in my prayers.
Thank you, Josh, for this update. It’s really devastating how this impact’s Sarah brain. She always was such an amazing storyteller. I just wonder, we are with so many. If we all would give one dollar/ euro, you don’t have to worry about the money. I mean, 1 dollar/ euro we probably all can spent. I hope people here are willing to do so. Love you all ❤️
OMG, you read my mind. I was thinking the exact same thing last night! It is a GREAT idea. With the number of followers it would be a big help. If you think just one $/€/£ or sfr or up to 10 each, depending on your income, what an amazing help that would be. Okay, Im going on the “go fund me” now. Take care, susan from🇨🇭
@@susanbaptista3967That’s great. I can’t use the fund because I don’t have that way of payment so I use the donation way that is under the vlog. Fantastic 😊 Anne (the Netherlands)
Record Sarah’s voice as much as you can, it doesn’t matter what she’s saying it’s the comfort hearing her voice will bring. Hearing her laugh will be beautiful for you all to hear. I know you’ve got all these videos but please make sure you keep something back that is just for you and the children. Sending you so much love ❤
My mom passed at age 54. The things I value most from her are those you might not expect. I have one of her sweatshirts and a partially used bottle of her perfume. I also have her journals and, of course, photos. Sarah, your videos are like a journal that I'm sure will mean everything to your kids. And then just some personal mementos as simple as a shirt can mean the world. You don't have to try so hard to leave meaningful cards, gifts, etc. for your family because you've already given them the most meaningful thing ever, the memories of you.
I cannot even comprehend how difficult it must be for Sarah writing cards for the kids. Her fortitude is immense, and I’m hoping that she is able to share another Christmas with her family. My blessings to you all. ❤
Oh Josh, I’m so sorry.I was a caregiver for hospice for many years, also took care of my mom in my home and I had hospice for her, hospice is the way to go for so many reasons…it doesn’t mean your giving up it means less suffering,it doesn’t mean death right away, it is there to be middleman to help you navigate living and dying and help getting all the supplies you need and just keeping her comfortable and they are only a call away.It’s an extra layer of support for Sarah and you also.Your just a great husband Josh, I’m just so sorry you all have to go thru all this.Thank you for this update, I think of sarah so often .
Sarah has such a wonderful loving support system in place. Josh, you are amazing. So grounded and intelligent. She is blessed to have you during this devastating disease. Much love and prayers for beautiful Sarah.
Thank you for taking time to update us! You have proven to be an outstanding human being over and over again! Josh you are a fine example of a husband, father, caregiver, and man! Hugs to you, Sarah, and the kids! You are all in my heart and prayers. I hope you and Sarah have a memorable day!
You guys are a strong, kind, fun, **pog** family and I really appreciate you taking the time to make videos, and to read the comments! You guys are the best! - Zwftyy
Hospice would be appropriate and will care not only for Sarah but your entire fmly. Bereavement counseling is available for a year after a passing and is part of her medicare hospice benefit. I highly reccomend.❤
Thanks Josh for being so proactive on her behalf. Some husbands don't deal as well as you are. Sadly, some just even walk away. May you have peace and continue to support her in her journey and praying those close to you continue in supporting you. Much love from Mississippi.
One thing I really miss, is hearing my mom’s voice. I have held onto every scrap with her writing on it, but her clothes that smell like her are treasures. Being able to hear someone’s voice is so powerful, especially when you can’t anymore. I know you guys have RUclips videos, but a personalized video message would be a child’s greatest treasure. Love you guys. ❤️❤️❤️
Having lost my wife 2 years ago to breast cancer with brain mets, I can only say that the quality of life is more important than the quantity. I hope Sarah will not suffer unnecessarily. Bless you all. 💜 There is also misconception about what hospice can do, which doesn’t replace the support needed by primary caregivers. We had weekly visits from a nurse and social worker, and 3 1-hour care visits per week. I hope Josh has FMLA to take the time he needs to care for Sarah and the family in the coming weeks.
Josh, First I want to say you’re an amazing Husband, Dad and care giver. You have one of the most heart wrenching and difficult jobs ever. The anxiety, stress, worries and heartache takes a toll on you emotionally and physically. It’s mentally healthy to talk about your fears etc. Cancer sucks so bad. I too was a caregiver for my 36 year old daughter whom after several years succumb to her disease and angels took her to heaven. This was 10 years ago. Seeing her body slowly deteriorating almost killed me. I was so exhausted mentally, emotionally and physically. I didn’t have a support system to help but my faith kept me going. I had many days I thought I would loose my mind. I remember having so many different thoughts and feelings like anger, why her & me etc. I’m sharing a tiny bit of my story so that you know you’re not alone. You will get through this journey. It’s important you take care of yourself. Take sometime for yourself. Sarah needs you healthy. Secondly I want to say that your Sarah is such a warrior. My heart aches for her that she has to deal with Cancer. I’m praying 🙏 for a miracle cure and comfort.
This is so heartbreaking. My heart breaks for all of you. Sarah has been so courageous through all of her struggles with this cancer. Hugs and more hugs from Pinckney Michigan. ❤🤗💔❤️🤗
Great ideas. Another idea is to have a blanket or comforter for each child made from articles of her clothing. Include some of her beautiful sayings on articles like “make good choices”, “be kind”, “love you” etc
Thank you for sharing all these details with us. I pray for you, Sarah, and the kids all the time. Your babies will have these videos to look back on and they won't forget their beautiful mother. I'm so sorry for you all. Sarah is one of a kind.
You should definitely contact Hospice. My Father in Law passed in February of this year from Lymphoma, and the Hospice team was so great. He was so weak at the end and couldn't do anything himself. My husband had to go out in the middle of the night to pick him up off the floor of his kitchen because he didn't have the strength to stand. Hospice came the next day and brought a bed, oxygen, everything he would need. Meds, syringes, Pill organizers. It didn't matter what time you called, they came. He was only on Hospice for 2 days though. He passed shortly after being on there. You guys are in my thoughts and prayers.
I just lost my Dad to stage 4 cancer. I was his care giver as well and it is so hard, but I was so blessed to be there for my Dad. The way hospice works( at least where I am from) is that they no longer go to dr visits or the hospital. If they go to hospital they have to sign a waiver that removes them off of hospice care and the process would have to start all over again. Hospice takes care of all the medications and your insurance company is not billed for any medications that hospice issues while in their care. They come out 2-3 times a week to check on them, but I still administered all of Dad’s medications and wrote down all the dosages & times down to keep track of & show them. My dad’s cancer has spread to his brain as well and he 😅started having difficulty finding his words. He could no longer write or text and I see so much of what he went through in her. He was not a candidate for treatment and I am praying hard for your sweet wife.
Great ideas! I wish y’all would’ve started earlier in her journey. This is probably taking a toll on her to write messages. I couldn’t imagine. My best friend and her 4 siblings lost their mom to cancer 20 years ago when we were in grade school and her mom had messages to them for each milestone birthday, graduation, marriage, and her youngest child’s baptism and just for sad days or days when they needed a hug and happy days! She did a scrapbook for them. It’s so sweet!
Thankfully we don’t have to push on these things. We have years worth of videos, photos, and I even have other recordings of her singing. I’m going to find ways to use all of it if needed. Much less pressure on her. ❤️
Hiya, Josh. I don't have any expert advice to give you. I don't even have a ton of experience with cancer. I do know a lot about pain...significant pain. You probably already know this but there may be times when her pain levels are high but she can't express that to you. I'm sure her pain specialists can advise you best on what to watch for: increased sweating, frowning, shallow breathing, etc. And if and when you get there, the hospice nurses will a gold mine of information and support. Keep doing things your way. One day, one hour, one moment at a time. Sending every ounce of healing and positive energy into the cosmos for Princess Sarah. ❤❤
Yes we are praying for Sarah and the family, God has the last say, so keep pushing through and Keep doing what you want to do in the mean time. Praying for your strength Josh keep hope alive.
Love the idea of Momma Love. No way to sugar coat it, cancer sucks! You have all done such an Amazing job with your family amongst the worst of conditions. Sending love and prayers for all of you.
Thank you for the updates. I will never understand why people who are so kind and do such good in this world have to suffer. As someone already said, Sarah is a bright light in a dark world.
Josh u are a great man sensible intelligent!!! Yes physicians give their professional medical advice so patients can make informed decisions. Seems like you all have a good doctor. Blessings to your family❣️❣️❣️
So the doctor is like the weatherman. Taking present conditions and measuring them against past conditions, and predicting the outcome based on years of experience. But the weather can always surprise us. I don’t know how many times we’ve prepared for hurricanes that never came. They both prepare us for the worse, so we’ll be ready…in case it occurs. ❤
My dad left me a letter and his art work . I love that . Get poster board Everyone in the family place their hand in finger paint. Make a picture with each hand 🖐️ all together and frame it . Stay strong 💪
The name of the game with Cancer, as a loved one is to end the experience with no guilt. And you Sir are an incredible human being, just know that and pat yourself on the back xxxxxxx
Josh you are an amazing person,as a cancer patient myself & former hospice nurse your ability to understand Sarah’s position at this stage of her illness is awe inspiring.I have seen too many families stumble through their situation in denial which has a devastating effect on families for years.I would encourage you to think about involving hospice as their help is there to work alongside you through the coming months including help preparing your children.Much ❤️
I think this is so important for people to understand. About doctors and timelines. Everyone gets so upset but the doctors are giving the best estimates they can based on what they’ve seen in the past. No doctor wants to tell someone that they’ve got only a short time. Now I pray and hope Sarah defies all odds. And it happens all the time! Let’s all stay positive and send good vibes! 😊
Right!? This is so true. Our doctor didn’t want to go into this conversation. But was prepared for it. But he’s like family, and this hurt him inside to share. ❤️
I can't imagine how you all are feeling. To continue showing bravery when you have to still be present for your babies. Sending sooo much love & peace for your family!!
Josh, so kind & thoughtful & generous of you to offer such a full update. Much appreciated! I'm so glad work, fam & friends are all stepping up. No surprise ~ cuz You Guys are so awesome & so deserving of everyone's loving support. ❤💛💚💜
Hi there! People don’t realize that hospice and palliative care! I encourage to take advantage of the service. Also, I have seen people work with hospice and then have a turn around and leave the program. They help support the caretaker as well, which is so important. Don’t burn yourself out because it is easy forget about our own needs in these moments. You won’t be any help to anyone if you burn out. Consider it. I am holding space for Sarah, and your family in light and love
My brother had brain cancer. I can say that when a person has primary brain cancer or metastasis to the brain it is a challenge to support them. Patience is such a gift both to have and to give. When I would be asked repeatedly what time it was, did you give me my medication, where is xyz… its both heartbreaking and beautiful that you can be the steady, reassuring rock your wife will need in the days ahead. My heart goes out to you. I don’t know what your spiritual preferences are but I offer prayers of light, love and healing for you all.
I’m so very sorry Sarah is going through this. She’s so young with so much more life to live. I’ve written here before about my Stepmother’s cancer. She is in her 70’s which these days isn’t as “old” as it used to be. There are no treatments available for her anymore. We just take one day at a time. Make the memories. Record what is possible. Savor each day. Life can be fleeting but it’s what you do with “it” is what counts. My family continues to keep Sarah in our prayers as we pray for my Mom. 🙏🏻 Much love ❤️ PS… there is a YT channel that my mom enjoys watching. The creators name is Jonna Jinton. She is in Sweden and makes lovely videos. Sarah may enjoy watching her channel when she feels up to it. ❤️
Cancer sucks……praying for Sarah and All of you, I hated when my husband got to this point, we couldn’t fight the fatigue that came fast and furious. And the dr sat us down and said my husband wasn’t strong enough for treatment, he just couldn’t continue to pump chemo into him. My husband told the dr to book him for an appt the following week and said I’ll be stronger next week, next week never came. Fighting to Live comes naturally, loosing that ability is devastating🤍🤍
How caring you are to share this journey. So many of us are praying for you all. May God’s will be that Sarah has lots of quality days left with family, with the pain controlled and her mind working well enough to keep creating good memories.❤️🙏
Use her pallative/hospice staff to support more. These nurses should be able to make home visits and give advice on different medication schedules which you may not be aware of. They are fabulous. Use them to help talk through plans especially medications and times that may be more beneficial. You see just Sarah, they have the knowledge base of hundreds of others battling similar scenarios. Hugs to you all.
Thank you Josh for taking the time to update us, it is very kind of you. When my mom had a very aggressive cancer, she resisted having hospice come in. But when they did, it was very helpful to us. We were still there around the clock, but they were very supportive. They don’t take away tasks you want to do. But having them on board, before things are changing even further, will be a huge benefit to you and the kids and of course, precious Sarah. It is especially important now that car rides are difficult for her, her brain is affected, and you have to figure out work. There’s no need to reinvent the wheel, they will offer ideas and support you may not have even thought of. And you control the level of care they provide. Anyway, this is really rough and you are strong and so capable. You are doing great. Much love to you and Sarah and the kids. ✌️💖
Josh, please take these suggestions for a few photos. Have your daughters and Sarah together with a wedding veil wrapped around them. Have them look upon each other for the photo. Down the road at the girls weddings this special photo can be displayed at the reception with a vase of flowers. Same thing with a graduation cap and each of the kids. This way they have a card but also see Sarah with them in this moment trying to be there for them years later. Also consider a vow renewal with Sarah as a special surprise. Have all the kids participate. Even if it’s just in her room, from her bed.
Thank you so much Josh...you really are incredible! Your messages are not just informative but so loving, devoted, and cautiously optimistic while still being realistic. You are truly awesome. As always you, Sarah and the family are in my prayers. ❤🙏
Boy, do I get that work/life balance concern! I’m caring for my husband, while working from home. It’s rough sometimes, but it’s just part of those promises we made to each other years ago. I wish you and Sarah the best, and many more years together.
Oh Josh ❤ you are such an amazing pog dad for us all. I sit here listening to you explain everything and going through stuff and I can feel a warm and wonderful fatherly comfort wash over me. It's so amazing. Yes it sucks; yes it's bad; and yes it hurts; but this is how we will navigate this next part of this journey. You are here with us. You will lead you forward. The amount of comfort that has brought is indescribable. Thank you for being the kind voice of care and love in this tornado. Thank you for having so much love within you that it even includes our Pog family. ❤️🇨🇦
Thanks for the update about Sarah. 😊 You explained things so well! You seem to have a very realistic grasp on things. Doctors do the best they can telling patients what they think. Most doctors hate to give bad news! Some go home and cry when things go bad for their patients! They grow close to their patients and get close to them and their families. Also, please just let Sarah tell you what she needs. As bad as she may want to do something, if doing it makes her sick and have bad reactions, please don’t push. Maybe make great videos to share with her. My mom got where she couldn’t eat. I’ll never forget her crying and begging me to tell my dad to STOP trying to force food on her. Like she said, my body is telling me I can’t eat. Stop telling me I have to eat! It wasn’t like she was just deciding not to eat. It’s part of this awful Cancer! 😢 Josh, your doing a great job keeping things together. Just like Sarah has to do, take one day at a time and try not to stress about what’s next. You’ll be lead to know what to do when each day gets here. I continue praying for you and Sarah…..❤🙏🏻
Hearing you say the length of time really scares me ,I’m heartbroken,In pieces,saddened by this ,can’t really grasp this ,it’s gut wrenching,my mother died of lung cancer ,it happened so fast ,I never had a chance to say goodbye,she wouldn’t let me .all is I want to say is I’m truly heartbroken for your entire family especially her.❤️❤️❤️❤️❤️
Dear Josh, I just want to say you are such a wonderful human being. Thank goodness Sarah and the children have a husband and father like you that loves and cares for them. If anyone deserves a miracle it is Sarah. ❤❤❤❤❤
I’m truly impressed with how grounded both of you are and it seems you really have all your bases covered. I’m sure there are moments not like that but hey we are human right ?! Continuing to keep you all in prayer and in the words of one of my favorite Saints, Pray, Hope and don’t worry.
Your video brought tears to my eyes. I have come to love your beautiful family. I've been praying for you every day and asking God to give you the grace needed to help you during this difficult time in your lives. Sending so much love and prayers. ❤ 🙏
Another idea I just thought of. Get a big jar. Sarah can write short notes or phrases of encouragement or love on a piece of paper. Put them in a jar. Each day, month, or year, the kids can pick one out and read words from their Momma!
I like this
Love ❤ this ...
❤
That’s such great idea ❤
If she can't write what about stickers she can pick or any graphic people can design her fun notes you can print out. She could add stickers to that that she likes or wants to use
When my dad was dying of brain cancer, I felt awful because I had nothing profound to say to him. He told me, he was just happy to hear my voice. I has able to record him saying he loved me. I replay that at least once a month. Praying for Sarah and all of you. Fuck Cancer.
What a lovely memory. I lost my father 2 years ago. Sadly, I could not be with him. However, he loved getting letters, so I wrote him often reminiscing on memories of all the wonderful family vacations from my childhood and thanking him for being our rock and foundation. My sister read them to him and said he treasured every word.
God bless you!!!
Record Sarahs heartbeat or record her voice (a love msg) so kids can remember her voice in a teddy bear. One for each.
My mom died of breast cancer Mets to the brain, at the time I worked in a neurological ICU. Our medical director helped with her care, and she received total brain radiation. We were told, 1 to 2 months and she got 8 months with only symptom was difficulty walking. Toward the end she lost the ability to move and talk, but her expression spoke volumes. I was able to take family leave and only work 16 hours per week. Thankfully my mom was an RN also so we had help. She had hospice and was registered as a cancer patient at the American Cancer Society. So we had a lift , I had her out in a chair everyday, fire in the fireplace. Company often and just made memories, it was an honor to be on the journey with my mom. But have to say she passed in 1994 and I still miss her, but we had great talks about life. Sending hugs and love. Prayers
The fact that in just two days, Sarah has declined so much that she can’t make videos, is telling. Obviously the cancer is advancing quickly. No time for projects that require cognitive and communication capabilities that she cannot handle. Just get hospice in there, gather the family together, love on Sarah and each other without stopping.
I'm hoping he's aware hospice isn't the end!
Have been a hospice nurse for over 20 years. With weaning the decadron, the symptoms will continue to worsen. Its a very agressive cancer in the lining of the brain, which is why you are seeing all the symptoms. If treatment doesn't help, decadron will be the best medication to minimize her suffering. You are all in my prayers. She is an amazing lady and it is heartbreaking to see her going through this.
Thank you for all that you do. My wife was on hospice for 6 weeks before she passed from metastatic breast cancer. The team of angels were so helpful in providing so much support during that time. It’s unfortunate that people wait so long to bring in hospice until the very end.
My late husband had a giloblastoma. There seemed to be some disagreement in the medical community if one needed to wean from decadron to chemo and or radiation . Or If one can stay on the decadron and go forward with treatment. Seems like Sarah’s Dr. Wants her weaned. Do you know any medical evidence on this subject
@@LP-hs6yz The hospice industry needs a massive PR campaign. So much misunderstanding to overcome.💜
I’m a hospice nurse too and I’ve seen people with brain cancer do really well on decadron. Really helps reduce inflammation and ease suffering. It’s good stuff.
@@toliveischrist950 do you know anything about medical evidence regarding if decadron impacting outcome of immunotherapy, chemo or radiation
I lost my mom when I was 8. I would give anything to remember her voice. The simple fact that you have documented this journey so well is an invaluable gift for your children. ❤
I agree, I lost my Dad when I was 8, and I sure wish I could remember what his voice sounded like 😢
I was thinking about how nice these videos will be for the kids too. They can see her again at any time on their phones. The youngest girl can jog her memory with these videos. I lost a parent in 43 years ago... and there's only a couple silent Super8 films of her.
Man to man, husband to husband, dad to dad: my wife's living with a rare disease since 10 years ago. Ups (not many as time goes by) and downs (you know what I mean). You're a living example of a tenacious, resilient, and truly inspiring human being. Big moments are in sight for you, sometimes you'll feel unable to think because of the pain in your heart. But you'll make it through. One day you will turn back to these months and you might miss the pain because Sarah was still here with you, then you'll feeel a sort of relief because your kids became adults and their mom stopped suffering (which nobody should do). Hope you will "stay" with us and keep us informed, from time to time, on how are you feeling. Big hugs from Italy.
Beautifully said and so true. Sorry to hear about your wife. 🙏 As a mom and caregiver for my only daughter for years I have experienced these emotions. She passed away at 36 years old.
Such a beautiful message. I’m praying for you and your family as well. 🙏🏻❤️
As a caregiver of a stage 4 cancer patient, my heart breaks for you Josh. We (caregivers) tend to be on autopilot and are constantly in survival mode. Please take a few minutes each day for yourself. Sending you lots of love and strength. ❤
My husband was diagnosed with bowel cancer stage 4 in 2016...he had most of his bowel taken away...he had lots of chemotherapy lost all his hair and fought tremendous fight...I gave up work to look after him and we used to call it camping out together at hospital and hospice...he was 15 years older than me but we had 20 years together ❤️ and travelled the world...he said to me I know that I'm dying please xxx don't let me die in hospital...but at home....the hospital fought me saying that I didn't realise exactly how poorly he was... I won the argument....he came home we was supported very well...he died 4 days later...surrounded by all the family....I'm so at peace now x
I’m so sorry for your loss Sharon - my children’s Dad was diagnosed with stage 4 neuroendocrine pancreatic cancer with his liver having innumerable lesions in August 2016. He was 50. He also fought and fought and worked thru his illness and went thru 6 lines of therapy- it did spread to his brain and was discovered April 24, 2020 - he went catatonic June 9, 2020 - he was hospitalized but I said he needs to come home and yep the hospital thought I was crazy too and it was HARD but I’d do it again because his children, family and friends got to comfort him and spend his final days with him. He passed just before 8am on Sunday June 14, 2020. May you have continued peace ❤
He was lucky to have you, Sharon ❤
@bioshawna302 thank you so much x
My sister is going through caring for her husband at home. I see what you went through. It is tough when they are in pain. You did what he wanted and that is the most loving thing you can do.
Having Sarah make a personalized recording were Sarah says the name of the kid, "be kind, make good choices" and I love you will be something they will listen to throughout their lives. Continuing to send prayers and positive thoughts for the entire family.
My mom just passed on June 5th. I recorded a message from my mom to my son. She told him how much she loved and adored him and she said take me with you on all of your adventures and sprinkle some of my ashes in all the places that brought you joy. I took the recording to build a bear and they put the recording inside the stuffed animal. Praying for you all xooxox
I am so sorry for your loss. The bear is a wonderful idea. Thank you.
What a beautiful idea! I wonder if they can record her heartbeat also?
Oh, I am so sorry! What a wonderful gift for your son
Amazing and such a thoughtful thing…I’m so sorry for you recent loss .x
Have you asked for Comazine.? It is used for nausea. Ir can cause drowsiness but it is also used to treat migraines which might be nice for Sarah. The others options that come to mind to ask about are Promethazine can be used for nausea and helps with dizziness. It can cause drowsiness as well. The other options are Acupuncture can help with nausea and help over feeling of well being. It is nice because it does nit have any side effects.
I lost my husband to Cancer a couple years ago. As his full time care giver , my husband didn’t want Hospice coming in. I respected his wishes but it took a toll on me , l ended up in the Hospital soon after being released my husband passed. Looking back l wish l had of called Hospice. Being a care giver not only beats you down physically but emotionally as well. Sending Love and Prayers ❤🙏
Just a note on hospice; It is invaluable as a way to get help, even long-term. They do what YOU want and need. And once on hospice, they are there as long as needed. I have had nothing but incredible, wonderful experiences using them.
Such a raw and honest talk about Princess Sarah.
We are all with you, still with hope, still with prayers. ❤
Only Sarah can decide when enough is enough. Prayers that treatment are not terrible and she can tolerate them.
God bless your wife, she was a wonderful woman.
I’m 9 months into my cancer journey - I have late stage ovarian cancer. I was extremely nauseated and my palliative care team has me on Famotidine/pepsid, Prochoreperozin, Omeprazole, Olanazpine in addition to Zofran so definitely ask as while a lot of pills I no longer am nauseated. I like you guys am planning for the worst but hoping for the best. I’m completely at peace with my diagnosis largely due to my faith as well as the comfort and love I have received now and in my life. My husband has been my rock and you remind me of him. You are a good man! Sending you and your family love and prayers.
There's a psychological phenomenon called anticipatory grief. Sarah and your whole family is going through this (maybe not the younger ones) right now. It's very beneficial to join a support group or see a psychologist who's field of study is grief. Best wishes always to Sarah and your family ❤
Why does it always have to get some scientific "phenomenom?
@@mimibee626so negative. She said psychological not scientific and she is just trying to help. … please save your negativity we don’t need it around here 🙏💜
@@mimibee626 Why not? We get knowledge through science.
I'ma grief therapist and i would have chosen the word process. it's natural, however it's occasional. I'm not seeing anticipatory grief here. I'm seeing hope while being realistic. preparing isn't anticipating, though it's subtle. no one's saying goodbye; they just don't want to get surprised as things may progress. my 2 cents
My mom passed away last fall. We didn’t have hospice care until it was almost too late. You can have hospice care involved as much or as little as you want and you are still the one in control of everything. They are just there to get you what you need(generally faster) and they are there to support you. Our hospice nurse was wonderful. I wish we would have done it sooner than we did, but we didn’t know. I thought hospice meant she had no hope, but that is also not true. You can be on hospice for a while and if you get better, you can stop it. My moms nurse told me one of her patients that was on hospice for years. I highly recommend talking to some hospices in your area. They are so helpful. 💗🙏🏻
Oh we know you’re not giving up-you’re being realistic. It’s okay. I was not upset about the “timeline” because knowing helps YOU plan. It’s a gift to know and if it turns out better then that’s wonderful.
My husband died twenty-three years from cancer we were thirty-eight years old and our daughter was 12 my heart aches for you and your family I know what you are all going through and I wish I could say it gets easier I hope the treatments works and gives you more time my husband was given three months and with clinical trial he did live 22 months it's very very hard for the children my daughter was never the same after her daddy died.....cancer is a wicked wicked beast😢 trust in God he will carry you through that's my best advice❤
Thank you. Thank you for sharing. While I never want anyone e to experience this, your sharing helps me know I’m not alone, and others have pushed through. 🫂🫶🏻❤️
I think you should get a stuffy for each kid with an audio recording of Sarah simply saying, "I will always love you "such and such"..." That would have meant the world to my son but we didn't get the chance.
Edited to add: They will be able to feel and hear the love in her voice and yes, the sadness that she's not there but the love. They will know she loved them desperately.
What an amazing husband you are to beautiful Sarah. You are so informed, so articulate, and just tireless in your love for her. Thank you for this update, Josh. I think of Sarah and your family many times a day, and I pray for all of you. It took a tremendous amount of bravery to look into that camera, and speak about this the way that you've done. My continued prayers are with all of you, and love and positive thoughts to Sarah. 🙏💓🙏
The most comforting thing hearing you talk about your situation is how grounded you are in the reality. How wisely you tackle the new circumstances. That is really invaluable and the most solid rock to stand on when everything normal shatters around you and your loved ones. Praying for you all!
My nephew had a very similar situation with cancer that had gone to his brain! I’m a nurse and a person who has been EXACTLY where you are. What I did with B jay is when we got his treatment dates I immediately started him on ensure! If you can get 2 cans in her a day or let her sip on what she will it builds up their protein . With my nephew he gained 30 pounds but when he got into the treatment when he got done all he lost was the ensure weight! For a fun thing they have ensure kids so the kids could drink their superhero drinks with mom so they feel involved❤️❤️❤️❤️
Or even homemade shakes with seeds, veggies and fruits 🙏🏼❤️🙏🏼 much healthier
My uncle drank ensure too when he was treated for his cancer and couldn't eat anything, that and Sustsgen.
Such a great idea. My dad is on Nutricreme for swallowing problems which is like a custard style ensure. Thank goodness for nutritional supplements❤❤❤
I drink Ensure myself! Chocolate is really good!
@@patsmith8035 I’ve been Ensure-shamed! Mercy!
Hospice is priceless. Please let them help you both.
There’s nothing that needs to be done. Just be. Just hug. Just hold. Be still and know you are loved. ❤
Josh, from one former care giver to another, we’re Not Promised Tomorrow, so Be With Sarah today. Don’t Look Too Long in the Future, You Can’t FIGURE Everything out now, Even When you want to. You ARE Sarah’s Rock Josh, That’s All That Counts Now! Lots of Love to you & the fam!!!❤️🙏
Sarah had already given all us and her family the best words ever. Be kind and make good choices. That to me says it all and I wish my mom would have said that to me everyday. Those words are so simple yet have so much meaning and really stay with you. Thank you Sarah for that because I now think of you saying that everyday and it honestly makes me a better person. Big hugs to you and your family.
A graphics designer is putting those words together for us to make some shirts and stuff. No branding, just those words. ❤️
@@pogfamthat is awesome. The world is going to be a better place because of her. God Bless you guys.
I love these words …I wouldn’t normally buy this type of stuff but I. Would this. Prayers for all the family from Northern Ireland x
Please remember Hospice can be renewed 4 x. They do so much more than imminent dying. They help with equipment, recommendations, bathing. Most people wait to long. They can save so much time and energy on all of you by knowing how to expedite needs. Bless you Josh
This is so frustrating and sad. Sarah deserves so much more time with her family and loved ones. Cancer is cruel. I am one of those who had a very good friend who was given 12 months and lived 8 years. Different type of cancer but it shows hope is there. What it comes down to is quality vs quantity. I want both for Sarah (and anyone else struggling w/ a terminal illness). Please know I am sending so much love to each of you. Sarah is such a bright light in a dark world. The world needs her light. ❤
That’s really all anyone with cancer should do, one day at a time. Because sometimes it’s not the cancer that gets a person. In my son in laws case. He went in for a procedure to help him breathe better, he had stage 4 lung cancer. But we took it one day at a time from the beginning. And we got through one issue at a time. We didn’t expect to lose him when we did, but we were emotionally prepared. Because your not giving up, but you are living in facts, truth is really any family’s friend, especially while dealing with children losing a parent. We didn’t tell my granddaughter every little thing, because the cancer told her. But we answered every question she had with complete truth. One question she never ask was is my daddy going to die? But the day he passed at the hospital, my daughter called me and told me. We were outside and she was riding her scooter. I was going to wait for mama to come home to tell her. But she walked up to me, it must have been written on my face, because she said my daddy died didn’t he. 😢 we fell on the grass and screamed and cried together. It’s very difficult, even being emotionally ready, it’s not any easier, but we keep him alive in our hearts, where he will aways be. We talk about him often, that will never change.
Take care guys, enjoy every moment you can. Those moments will and aways be be priceless. Your in my prayers.
It is scarry how things escalated from one mole "cought early" and clear petscan. Sending you positive energy ❤
Melanoma is so insidious. Terrible disease.
*scary
*caught
*PET scan
@@mimibee626 Croatian is my mother language, I would like to see you write croatian properly
@@mimibee626was that really necessary? 😡🤷♀️
Thank you, Josh, for this update. It’s really devastating how this impact’s Sarah brain. She always was such an amazing storyteller. I just wonder, we are with so many. If we all would give one dollar/ euro, you don’t have to worry about the money. I mean, 1 dollar/ euro we probably all can spent. I hope people here are willing to do so. Love you all ❤️
OMG, you read my mind. I was thinking the exact same thing last night! It is a GREAT idea. With the number of followers it would be a big help. If you think just one $/€/£ or sfr or up to 10 each, depending on your income, what an amazing help that would be. Okay, Im going on the “go fund me” now. Take care, susan from🇨🇭
@@susanbaptista3967That’s great. I can’t use the fund because I don’t have that way of payment so I use the donation way that is under the vlog. Fantastic 😊 Anne (the Netherlands)
Record Sarah’s voice as much as you can, it doesn’t matter what she’s saying it’s the comfort hearing her voice will bring. Hearing her laugh will be beautiful for you all to hear. I know you’ve got all these videos but please make sure you keep something back that is just for you and the children. Sending you so much love ❤
Thank you for the update. Praying for Sarah and all of you 🙏🏻
You speak so eloquently not sure I could be so brave what a great idea mamas love is and her postcard room will be fabulous
Lots of prayers to you and the family. May God bless you.♥️
My mom passed at age 54. The things I value most from her are those you might not expect. I have one of her sweatshirts and a partially used bottle of her perfume. I also have her journals and, of course, photos. Sarah, your videos are like a journal that I'm sure will mean everything to your kids. And then just some personal mementos as simple as a shirt can mean the world. You don't have to try so hard to leave meaningful cards, gifts, etc. for your family because you've already given them the most meaningful thing ever, the memories of you.
I cannot even comprehend how difficult it must be for Sarah writing cards for the kids. Her fortitude is immense, and I’m hoping that she is able to share another Christmas with her family. My blessings to you all. ❤
Oh Josh, I’m so sorry.I was a caregiver for hospice for many years, also took care of my mom in my home and I had hospice for her, hospice is the way to go for so many reasons…it doesn’t mean your giving up it means less suffering,it doesn’t mean death right away, it is there to be middleman to help you navigate living and dying and help getting all the supplies you need and just keeping her comfortable and they are only a call away.It’s an extra layer of support for Sarah and you also.Your just a great husband Josh, I’m just so sorry you all have to go thru all this.Thank you for this update, I think of sarah so often .
Sarah has such a wonderful loving support system in place. Josh, you are amazing. So grounded and intelligent. She is blessed to have you during this devastating disease.
Much love and prayers for beautiful Sarah.
Thank you for taking time to update us! You have proven to be an outstanding human being over and over again! Josh you are a fine example of a husband, father, caregiver, and man! Hugs to you, Sarah, and the kids! You are all in my heart and prayers. I hope you and Sarah have a memorable day!
You guys are a strong, kind, fun, **pog** family and I really appreciate you taking the time to make videos, and to read the comments! You guys are the best!
- Zwftyy
GOD BLESS SARAH AND FAMILY WHAT A STRONG WOMAN AND HER WARRIOR HUSBAND.🙏🙏🙏🙏Brain cancer took my mom's memory it was so sad to see.
Hospice would be appropriate and will care not only for Sarah but your entire fmly. Bereavement counseling is available for a year after a passing and is part of her medicare hospice benefit. I highly reccomend.❤
Thanks Josh for being so proactive on her behalf. Some husbands don't deal as well as you are. Sadly, some just even walk away. May you have peace and continue to support her in her journey and praying those close to you continue in supporting you. Much love from Mississippi.
Thanks, I appreciate it. It’s very sad that people are left alone in these situations. I could never. 🫶🏻
One thing I really miss, is hearing my mom’s voice. I have held onto every scrap with her writing on it, but her clothes that smell like her are treasures. Being able to hear someone’s voice is so powerful, especially when you can’t anymore. I know you guys have RUclips videos, but a personalized video message would be a child’s greatest treasure. Love you guys. ❤️❤️❤️
Brain cancer is brutal. I’m so sorry for you all.
Hugs and prayers to you all. Thank you for the update and all your time. Amazing POG FAMILY.
Thankyou Josh for the update. It must be so tough on all of you. My heart goes out to you. Sending love and prayers from the uk x
Having lost my wife 2 years ago to breast cancer with brain mets, I can only say that the quality of life is more important than the quantity. I hope Sarah will not suffer unnecessarily. Bless you all. 💜
There is also misconception about what hospice can do, which doesn’t replace the support needed by primary caregivers. We had weekly visits from a nurse and social worker, and 3 1-hour care visits per week. I hope Josh has FMLA to take the time he needs to care for Sarah and the family in the coming weeks.
Josh, First I want to say you’re an amazing Husband, Dad and care giver. You have one of the most heart wrenching and difficult jobs ever. The anxiety, stress, worries and heartache takes a toll on you emotionally and physically. It’s mentally healthy to talk about your fears etc.
Cancer sucks so bad.
I too was a caregiver for my 36 year old daughter whom after several years succumb to her disease and angels took her to heaven. This was 10 years ago. Seeing her body slowly deteriorating almost killed me. I was so exhausted mentally, emotionally and physically. I didn’t have a support system to help but my faith kept me going. I had many days I thought I would loose my mind. I remember having so many different thoughts and feelings like anger, why her & me etc.
I’m sharing a tiny bit of my story so that you know you’re not alone. You will get through this journey. It’s important you take care of yourself. Take sometime for yourself. Sarah needs you healthy.
Secondly I want to say that your Sarah is such a warrior. My heart aches for her that she has to deal with Cancer. I’m praying 🙏 for a miracle cure and comfort.
You are an incredibly strong husband and dad. Praying for you all
This is so heartbreaking. My heart breaks for all of you. Sarah has been so courageous through all of her struggles with this cancer. Hugs and more hugs from Pinckney Michigan. ❤🤗💔❤️🤗
Great ideas. Another idea is to have a blanket or comforter for each child made from articles of her clothing. Include some of her beautiful sayings on articles like “make good choices”, “be kind”, “love you” etc
Thank you for sharing all these details with us. I pray for you, Sarah, and the kids all the time. Your babies will have these videos to look back on and they won't forget their beautiful mother. I'm so sorry for you all. Sarah is one of a kind.
You should definitely contact Hospice. My Father in Law passed in February of this year from Lymphoma, and the Hospice team was so great. He was so weak at the end and couldn't do anything himself. My husband had to go out in the middle of the night to pick him up off the floor of his kitchen because he didn't have the strength to stand. Hospice came the next day and brought a bed, oxygen, everything he would need. Meds, syringes, Pill organizers. It didn't matter what time you called, they came. He was only on Hospice for 2 days though. He passed shortly after being on there. You guys are in my thoughts and prayers.
I just lost my Dad to stage 4 cancer. I was his care giver as well and it is so hard, but I was so blessed to be there for my Dad. The way hospice works( at least where I am from) is that they no longer go to dr visits or the hospital. If they go to hospital they have to sign a waiver that removes them off of hospice care and the process would have to start all over again. Hospice takes care of all the medications and your insurance company is not billed for any medications that hospice issues while in their care. They come out 2-3 times a week to check on them, but I still administered all of Dad’s medications and wrote down all the dosages & times down to keep track of & show them. My dad’s cancer has spread to his brain as well and he 😅started having difficulty finding his words. He could no longer write or text and I see so much of what he went through in her. He was not a candidate for treatment and I am praying hard for your sweet wife.
Great ideas! I wish y’all would’ve started earlier in her journey. This is probably taking a toll on her to write messages. I couldn’t imagine.
My best friend and her 4 siblings lost their mom to cancer 20 years ago when we were in grade school and her mom had messages to them for each milestone birthday, graduation, marriage, and her youngest child’s baptism and just for sad days or days when they needed a hug and happy days! She did a scrapbook for them. It’s so sweet!
Thankfully we don’t have to push on these things. We have years worth of videos, photos, and I even have other recordings of her singing. I’m going to find ways to use all of it if needed. Much less pressure on her. ❤️
She has been on a Friday Prayer group today. I pray for relief of her suffering and strength for your family. ❤
Hiya, Josh. I don't have any expert advice to give you. I don't even have a ton of experience with cancer. I do know a lot about pain...significant pain. You probably already know this but there may be times when her pain levels are high but she can't express that to you. I'm sure her pain specialists can advise you best on what to watch for: increased sweating, frowning, shallow breathing, etc. And if and when you get there, the hospice nurses will a gold mine of information and support.
Keep doing things your way. One day, one hour, one moment at a time. Sending every ounce of healing and positive energy into the cosmos for Princess Sarah. ❤❤
Hospice doesn’t have to be there that much. They pay for so many things and will help you take some of the stress away.
Yes we are praying for Sarah and the family, God has the last say, so keep pushing through and Keep doing what you want to do in the mean time. Praying for your strength Josh keep hope alive.
You're a good man. She's lucky to have you to help her through this difficult journey.
Love the idea of Momma Love. No way to sugar coat it, cancer sucks! You have all done such an
Amazing job with your family amongst the worst of conditions. Sending love and prayers for all of you.
Thank you for the updates. I will never understand why people who are so kind and do such good in this world have to suffer. As someone already said, Sarah is a bright light in a dark world.
Josh u are a great man sensible intelligent!!! Yes physicians give their professional medical advice so patients can make informed decisions. Seems like you all have a good doctor. Blessings to your family❣️❣️❣️
So the doctor is like the weatherman. Taking present conditions and measuring them against past conditions, and predicting the outcome based on years of experience.
But the weather can always surprise us. I don’t know how many times we’ve prepared for hurricanes that never came.
They both prepare us for the worse, so we’ll be ready…in case it occurs.
❤
Josh the things you are doing for sarah in her bedroom is wonderful..I want her to get well so badly...God bless you all
Really smart idea to put the mini fridge in there! It's so important that she be able to rest in her own bed in her own bedroom as long as possible!
My dad left me a letter and his art work . I love that .
Get poster board Everyone in the family place their hand in finger paint. Make a picture with each hand 🖐️ all together and frame it . Stay strong 💪
The name of the game with Cancer, as a loved one is to end the experience with no guilt. And you Sir are an incredible human being, just know that and pat yourself on the back xxxxxxx
You’re the World’s Best Husband and Dad. Thank you for making this.
Josh you are an amazing person,as a cancer patient myself & former hospice nurse your ability to understand Sarah’s position at this stage of her illness is awe inspiring.I have seen too many families stumble through their situation in denial which has a devastating effect on families for years.I would encourage you to think about involving hospice as their help is there to work alongside you through the coming months including help preparing your children.Much ❤️
I think this is so important for people to understand. About doctors and timelines. Everyone gets so upset but the doctors are giving the best estimates they can based on what they’ve seen in the past. No doctor wants to tell someone that they’ve got only a short time. Now I pray and hope Sarah defies all odds. And it happens all the time! Let’s all stay positive and send good vibes! 😊
Right!? This is so true. Our doctor didn’t want to go into this conversation. But was prepared for it. But he’s like family, and this hurt him inside to share. ❤️
I can't imagine how you all are feeling. To continue showing bravery when you have to still be present for your babies. Sending sooo much love & peace for your family!!
Josh, so kind & thoughtful & generous of you to offer such a full update. Much appreciated! I'm so glad work, fam & friends are all stepping up. No surprise ~ cuz You Guys are so awesome & so deserving of everyone's loving support.
❤💛💚💜
You are one awesome husband, father and human being!! God bless you in all you need to get through.
Hi there! People don’t realize that hospice and palliative care! I encourage to take advantage of the service. Also, I have seen people work with hospice and then have a turn around and leave the program.
They help support the caretaker as well, which is so important. Don’t burn yourself out because it is easy forget about our own needs in these moments.
You won’t be any help to anyone if you burn out.
Consider it.
I am holding space for Sarah, and your family in light and love
My brother had brain cancer. I can say that when a person has primary brain cancer or metastasis to the brain it is a challenge to support them. Patience is such a gift both to have and to give. When I would be asked repeatedly what time it was, did you give me my medication, where is xyz… its both heartbreaking and beautiful that you can be the steady, reassuring rock your wife will need in the days ahead. My heart goes out to you. I don’t know what your spiritual preferences are but I offer prayers of light, love and healing for you all.
You have every right to be nervous, and scared. The Lord will get you through. You have lots of prayers coming your way.
Thank you so much for sharing with us. You are such a blessing to your family. Big love from Florida. ❤
I’m so very sorry Sarah is going through this. She’s so young with so much more life to live.
I’ve written here before about my Stepmother’s cancer. She is in her 70’s which these days isn’t as “old” as it used to be. There are no treatments available for her anymore. We just take one day at a time. Make the memories. Record what is possible. Savor each day. Life can be fleeting but it’s what you do with “it” is what counts.
My family continues to keep Sarah in our prayers as we pray for my Mom. 🙏🏻
Much love ❤️
PS… there is a YT channel that my mom enjoys watching. The creators name is Jonna Jinton. She is in Sweden and makes lovely videos. Sarah may enjoy watching her channel when she feels up to it. ❤️
I watch her videos too. They’re so peaceful, I love them. Worth recomending.
Yes- Jonna Jinton would be lovely for Sarah. Jonna makes beautiful videos in northern Sweden.
Prayers for your stepmom. ❤️
Oh- Cecilia Blomdahl has some beautiful northern lights videos from Svalbard.
@maureensmith9923 ❤️
@@Lisa-hl2pt ❤️
Cancer sucks……praying for Sarah and All of you, I hated when my husband got to this point, we couldn’t fight the fatigue that came fast and furious. And the dr sat us down and said my husband wasn’t strong enough for treatment, he just couldn’t continue to pump chemo into him. My husband told the dr to book him for an appt the following week and said I’ll be stronger next week, next week never came. Fighting to Live comes naturally, loosing that ability is devastating🤍🤍
I think the best thing is for everyone to spend time together. Make memories that will be cherished forever.
How caring you are to share this journey. So many of us are praying for you all. May God’s will be that Sarah has lots of quality days left with family, with the pain controlled and her mind working well enough to keep creating good memories.❤️🙏
Thank you for sharing this with us. In my thoughts and prayers 🙏🏾
Sarah has left these videos for all her loved ones🙏🏼❤️
Use her pallative/hospice staff to support more. These nurses should be able to make home visits and give advice on different medication schedules which you may not be aware of. They are fabulous. Use them to help talk through plans especially medications and times that may be more beneficial. You see just Sarah, they have the knowledge base of hundreds of others battling similar scenarios. Hugs to you all.
Thank you Josh for taking the time to update us, it is very kind of you. When my mom had a very aggressive cancer, she resisted having hospice come in. But when they did, it was very helpful to us. We were still there around the clock, but they were very supportive. They don’t take away tasks you want to do. But having them on board, before things are changing even further, will be a huge benefit to you and the kids and of course, precious Sarah. It is especially important now that car rides are difficult for her, her brain is affected, and you have to figure out work. There’s no need to reinvent the wheel, they will offer ideas and support you may not have even thought of. And you control the level of care they provide. Anyway, this is really rough and you are strong and so capable. You are doing great. Much love to you and Sarah and the kids. ✌️💖
Josh, please take these suggestions for a few photos. Have your daughters and Sarah together with a wedding veil wrapped around them. Have them look upon each other for the photo. Down the road at the girls weddings this special photo can be displayed at the reception with a vase of flowers. Same thing with a graduation cap and each of the kids. This way they have a card but also see Sarah with them in this moment trying to be there for them years later. Also consider a vow renewal with Sarah as a special surprise. Have all the kids participate. Even if it’s just in her room, from her bed.
Wonderful ideas.
Thank you so much Josh...you really are incredible! Your messages are not just informative but so loving, devoted, and cautiously optimistic while still being realistic. You are truly awesome. As always you, Sarah and the family are in my prayers. ❤🙏
Boy, do I get that work/life balance concern! I’m caring for my husband, while working from home. It’s rough sometimes, but it’s just part of those promises we made to each other years ago. I wish you and Sarah the best, and many more years together.
Oh Josh ❤ you are such an amazing pog dad for us all. I sit here listening to you explain everything and going through stuff and I can feel a warm and wonderful fatherly comfort wash over me. It's so amazing. Yes it sucks; yes it's bad; and yes it hurts; but this is how we will navigate this next part of this journey. You are here with us. You will lead you forward. The amount of comfort that has brought is indescribable.
Thank you for being the kind voice of care and love in this tornado. Thank you for having so much love within you that it even includes our Pog family. ❤️🇨🇦
God bless Sarah, you, and your family. Thank you for taking your time to do the updates. My prayers, thoughts, hugs and love are with you all. ❤️ 🙏
Thanks for the update about Sarah. 😊 You explained things so well! You seem to have a very realistic grasp on things. Doctors do the best they can telling patients what they think. Most doctors hate to give bad news! Some go home and cry when things go bad for their patients! They grow close to their patients and get close to them and their families. Also, please just let Sarah tell you what she needs. As bad as she may want to do something, if doing it makes her sick and have bad reactions, please don’t push. Maybe make great videos to share with her. My mom got where she couldn’t eat. I’ll never forget her crying and begging me to tell my dad to STOP trying to force food on her. Like she said, my body is telling me I can’t eat. Stop telling me I have to eat! It wasn’t like she was just deciding not to eat. It’s part of this awful Cancer! 😢 Josh, your doing a great job keeping things together. Just like Sarah has to do, take one day at a time and try not to stress about what’s next. You’ll be lead to know what to do when each day gets here. I continue praying for you and Sarah…..❤🙏🏻
Hope all of you have a calm peaceful weekend full of snuggles and cuddles and ❤️ love🤗🫶🏻🙏 praying the most time for y’all to enjoy each other
Hearing you say the length of time really scares me ,I’m heartbroken,In pieces,saddened by this ,can’t really grasp this ,it’s gut wrenching,my mother died of lung cancer ,it happened so fast ,I never had a chance to say goodbye,she wouldn’t let me .all is I want to say is I’m truly heartbroken for your entire family especially her.❤️❤️❤️❤️❤️
Dear Josh, I just want to say you are such a wonderful human being.
Thank goodness Sarah and the children have a husband and father like you that loves and cares for them.
If anyone deserves a miracle
it is Sarah. ❤❤❤❤❤
I’m truly impressed with how grounded both of you are and it seems you really have all your bases covered. I’m sure there are moments not like that but hey we are human right ?! Continuing to keep you all in prayer and in the words of one of my favorite Saints, Pray, Hope and don’t worry.
Your video brought tears to my eyes. I have come to love your beautiful family. I've been praying for you every day and asking God to give you the grace needed to help you during this difficult time in your lives. Sending so much love and prayers. ❤ 🙏