Calcium pyrophosphate deposition (CPPD) Working Group Overview

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  • Опубликовано: 18 окт 2024

Комментарии • 5

  • @russelljohnsonpa-c814
    @russelljohnsonpa-c814 6 дней назад

    Hey there, don't let the pain control you. Hope you have more fun days than crappy days!
    This shit attacked both shoulders awaiting replacement. I just lived/ survived the most horrific movie, being alert and awake after severe spinal surgeries. A/P fusions.

  • @JennyWren333
    @JennyWren333 Год назад +1

    What no one talks about is the horrible, unrelenting pain that comes with CPPD flares. I have it in both wrists. When in this pain I often think of dying. This has been a cold, damp winter and now my shoulders feel like my wrists.
    Because it is a “rare” arthritis there is no funding for R&D and many of us are suffering terribly. I’m frustrated and oftentimes see no way ahead that looks hopeful. The pain absolutely wears me down. Depression follows.
    CPPD is a terrible, debilitating, soul-bruising, extremely painful disease.

    • @verajones
      @verajones Год назад +1

      I hear you. I have it in my hip. It took years and years to get a diagnosis. Now tests confirm that I'm in severe pain. Don't give up hope. Oh, I've also gone for shock wave therapy with mixes results but the research shows a roughly 60% success rate, so it may work for you.

    • @JennyWren333
      @JennyWren333 Год назад

      @@verajones thank you for your response! I am sorry you suffer too. Ive never heard of shock wave therapy, my rheumatologist provides cortisone injections into the joints. Chronic pain with CPPD and osteoarthritis has wreaked changes in me i dont like...my patience, tolerance and ability to hold back my emotions is severely challenged. Hope is what keeps us moving, i suppose. Thank you for sharing your story with me. Take care and good wishes!

  • @anonimuse6553
    @anonimuse6553 7 месяцев назад

    diet and rest go a long way in helping reduce the occurrences.