I absolutely agree with the theory presented at the beginning of the video. It truly does. The cost to society NOT to diagnose and treat these rare diseases is so much more costly than just doing what needs done. This is an OLD disease, but has only been able to be tested for and treated properly in the last 20 years with most advancements in the last 10. Just such a lack of research and funding for NeuroEndocrine tumors in general. Cushings Disease, pheochromacytoma, paraganglioma….the list goes on!! It radiates out to society for sure - I’m now living in poverty on SSDI and the SSA still has yet to pay me my backpay (was supposed to receive it after my approval last March) it’s all DEPLORABLE.
I absolutely agree with the theory presented at the beginning of the video. It truly does. The cost to society NOT to diagnose and treat these rare diseases is so much more costly than just doing what needs done. This is an OLD disease, but has only been able to be tested for and treated properly in the last 20 years with most advancements in the last 10. Just such a lack of research and funding for NeuroEndocrine tumors in general. Cushings Disease, pheochromacytoma, paraganglioma….the list goes on!! It radiates out to society for sure - I’m now living in poverty on SSDI and the SSA still has yet to pay me my backpay (was supposed to receive it after my approval last March) it’s all DEPLORABLE.