What's life like after Shock Treatment (ECT)?
HTML-код
- Опубликовано: 4 сен 2024
- This video answers the most common questions people have about ECT:
a. Does ECT work?
b. Does ECT cause Memory loss?
c. Does ECT cause permanent memory loss?
d. How will ECT memory loss impact my life, family and relationships?
e. Does ECT cause brain damage?
f. What barriers are common for people living life after ECT?
g. Where can I get help after ECT for my injuries?
h. Is the short-term benefit some people experience from ECT worth the risk of its long-term consequences?
Marissa, a student in San Diego State University's Rehabilitation Counseling Master's program who chose to specialize in the Cognitive Certificate, interviewed me as part of her class project about barriers to accessing help after brain injury.
In this video we discuss immediate and delayed consequences of repetitive electrical injury caused by electroconvulsive therapy, the California Department of Rehabilitation Brain Injury Advisory Board meetings, Neuropathology findings of electrical injury (gliosis, myelin sheath injury, vascular abnormalities, chronic micro bleeds, brain stem injury, acquired channelopathies, dysarthira, swallowing issues, barriers to appropriate brain injury assessment for people harmed by medical treatment, academic accommodations, personal strategies I tried to improve my quality of life after ECT, memory problems and how memory loss impacts personal identity and personal relationships.
I completely forgot I recorded this interview when my voice was still functional for larger portions of the day back in April 12, 2020. I found it while searching for something else. Such is life after ECT.
#LifeAfterECT #ECT #Depression #BrainInjury #ABI #TBI #rmTBI #BrainDamage #MemoryLoss
This was a really good, informative video. I hope as many people as possible would watch it. You are doing such an excellent job of describing the reality of ect. And I know its difficult to describe these injuries BECAUSE OF these injuries. Thank you for doing it! 🌼
Thank you for your kind feedback. I really think we can help breakdown the barriers to accessing appropriate aftercare if we can just raise awareness of what people experience.
I agree. GO SARAH we love you
Thank you my love for telling your story. I understand and have lived your exact experiences. I have been trying to get some kind diagnosis for the damage I received to my brain. My psychiatrist diagnosed me with dementia. Instead of traumatic brain injury.. psychiatrist won't admit the effects of ECT. Some can't admit it due to retaliation from Hospitals's. It is big money. I have been suicidal so many times because, yes, I truly feel that I am a burden to my family. I let them down so often because I forget things or just can't function. It is so damn lonely. And other people really don't understand. I wish you all the best. Thank you
You are special and valued. Thank you for commenting.
Where are you?
I’m in the south uk.. my husband has life changing memory problems now due I believe to ECT.
When you forget things or just can't function you are not letting your family down. You are a hero for keeping on trying to do things!
It seems that I just find out where are these odd new symptoms coming from. Last ect zap year 2015. Is there research I could read from this subject? I'm losing my ability to walk, move and use my hands. Right side of my body just stopped working complitely last april. Nobody helps me, i don't have health care. I must figure this all out by myself. Right now i can stand and walk almost everyday and right arm is working so it is possible me to write. I can write with both, but no way i draw or paint using left hand.
I am so very sorry for what you've been through. As hard as it is, I am so grateful to know that I am not alone in this journey. I understand the despair. It can be lonely. We have a group on Facebook called "Surviving ECT" which is an international facebook group.
I will be putting out additional content on how to get diagnosed properly with brain injury after ECT. It will take a bit, but Keep your eyes peeled. There is hope. you can also find information on www.LifeAfterECT.com
Hi Rosa, I am so sorry to hear about your progressive problems. I am working with a Canadian Burn Specialist, Dr. Marc Jeschke to write more on this. The problems you experience are likely associated with acquired channelopathies because pulsed high electric fields permanently alters how your body regulates electrolytes. That's what's causing your episodes of periodic paralysis, weakness, hemiparesis... You can find more about the research on how electrical injury alters electrolyte regulation here. www.researchgate.net/profile/Sarah-Hancock-4/project/Comprehensive-Rehabilitation-for-People-with-a-History-of-Electroconvulsive-Therapys-Low-Voltage-Contact/attachment/603d6ecf6e8959000110b9f6/AS:996681516601344@1614638799603/download/Acquired_Channelopathies_Secondary_to_repetitive_low_voltage_EI.pdf?context=ProjectUpdatesLog
I recommend finding someone who can help you fill out the necessary paperwork to qualify for disability so that you can get some healthcare. they have disability advocates who can help with this.
Thank you for being so courageous and transparent when sharing your experience with ECT.
Congratulations on your new transcendent mission , helping others with delayed electrical brain injury.
You convinced me not to start ECT.
Thank you for your kind words. I respectfully suggest searching out an integrated medical doctor, they have a larger set of laboratory tests and biomarkers to explore underlying causes of psychiatric symptoms which aren't responding to psych meds. I wish you success in finding the answers and successful treatment you need and deserve.
It really should be outlawed.
Considering there are no animal safety testing with histopathology studies or dosing consensus standards/dosing limits, or doctors trained to provide long-term follow-up to neurological sequela of electrical injury you have a valid point!
What do AT and ABI mean?
AT: Assistive Technology. That can be any kind of technology that assists a person to complete a task they wouldn't be able to do or would have an exponentially more difficult time completing without assistance from "technology." Technology can be "high tech" like a speech generating device or an app to help organize your thoughts into an outline, or it can be "low tech," like a hand rail mounted on the wall to help climb up stairs or an elastic strap to help a person keep their fork in their hand to eat.
TBI: Traumatic Brain Injury