You must have so many mixed feelings right now. *hugs* That’s such a devastating diagnoses even though it’s given you the evidence of harm you’ve been looking for so long. I cried when you mentioned the pons being affected-that’s such a dangerous injury. That’s really bad and also explains so many of your symptoms. Your perseverance is inspiring and I know all you hard work will benefit others and survivor’s efforts to bring this destructive practice to an end. Even with this news you look lovely btw. Hang in there, sweetie. 😘 Let me know if I can help you in any way.
It really is a devastating blow and dangerous injury. I am searching for help from people who better understand brain stem injuries. Obviously there's tremendous functional damage to other areas of the brain as well due to diffuse electrical injury. But I am finally grateful to have some explainations. Hopefully the answers I get will help others find their own answers and find necessary brain injury rehabilitation and support. Thank you for your offer to help. I'll keep that in mind!
I am so sorry. If you live in the United States, I recommend considering reaching out to your local state's vocational rehabilitation programs. They are equipped to help you get appropriate comprehensive assessments so that you can know how to use your residual strengths to get back to work/school.
Honey, it's Destiny Lemons (can't get into my RUclips, i forgot my gmail password x'D) But thank you very much for making this. It took a lot of strength girl. You are going through so much, just for us I don't even know how to begin to thank you...I am glad there are still those of us out there who will fight, even if we may lose. Just to prove that we won't back down, and we know what is right and wrong. I am praying for you. For a nice long life. Please don't cry love...they don't deserve your tears. I know...I know. Your soul aches. One day they will all know. I wanted to cry with you. Still fighting it. I used to be a good girl you know....but now I at least have something to fight for. I let my anger and frustrations towards the injustice performed by medical consent on so many people...I let it fuel me. To know I will never stop seeking an answer. But I am so tired...and things are getting worse. I know we can make it through.
Destiny, I am so grateful you posted and shared your experience too. There are so many of us impacted by the long-term effects of ECT. Yes! We will keep up the fight to find appropriate assessments and rehabilitation. We're warriors! We have much to fight for! We're in this together.
Sarah, what about neuroplasticity? Doesn’t any of that apply to ECT injury? You are such a strong articulate woman! You have to much to offer those of us living with this injury. Bless You and Your Husband.
Neoplasticity DOES apply to ECT injury, which is why getting a quick referral to comprehensive assessment for brain injury is paramount. It was because of neuroplasticity and a TON of hard work over the first five years that I was able to relearn how to read, regain my vocabulary, regain my ability to write and overcome my aphagia. That said, neuroplasticity can only help us so much. It cannot repair petechial hemorrhaging, gliosis and glial scaring, myelin sheath damage or heal damaged voltage-gated ion channels. So while my initial efforts to overcome deficits got me back into life's saddle (so to speak), aging with the effects of ECT listed above bring about the neuromuscular, neurovascular, and neurocognitive effects that you see me dealing with today. I got back in life's saddle, only to have my horses's legs lopped off with the onset of delayed electrical injury. Aging after ECT is not a graceful process. Thank you for your kind feedback.
Sarah Price Hancock Do you every have emotional problems...for example I don’t feel joy or happiness, and I cry ALOT. More then any person-daily. Never had that issue until my injury. Have you heard of anything like this?
Yes, it is quite common for people with brain injury to have difficulty processing emotions. Tears are common. They are common in brain injury and they are common in people with a history of ECT. I have those issues too. I've learned that sleep, rest, turning off sensory input, and eating clean (unprocessed, no added sugar, no vinegar, nothing aged or fermented) helps me manage my emotions much better.
You must have so many mixed feelings right now. *hugs*
That’s such a devastating diagnoses even though it’s given you the evidence of harm you’ve been looking for so long.
I cried when you mentioned the pons being affected-that’s such a dangerous injury.
That’s really bad and also explains so many of your symptoms.
Your perseverance is inspiring and I know all you hard work will benefit others and survivor’s efforts to bring this destructive practice to an end.
Even with this news you look lovely btw. Hang in there, sweetie. 😘
Let me know if I can help you in any way.
It really is a devastating blow and dangerous injury. I am searching for help from people who better understand brain stem injuries. Obviously there's tremendous functional damage to other areas of the brain as well due to diffuse electrical injury. But I am finally grateful to have some explainations. Hopefully the answers I get will help others find their own answers and find necessary brain injury rehabilitation and support. Thank you for your offer to help. I'll keep that in mind!
I'm very sorry to hear. I had unilateral and I'm having allot of difficulty with everything and noone believed me either.
I am so sorry. If you live in the United States, I recommend considering reaching out to your local state's vocational rehabilitation programs. They are equipped to help you get appropriate comprehensive assessments so that you can know how to use your residual strengths to get back to work/school.
Honey, it's Destiny Lemons (can't get into my RUclips, i forgot my gmail password x'D) But thank you very much for making this. It took a lot of strength girl. You are going through so much, just for us I don't even know how to begin to thank you...I am glad there are still those of us out there who will fight, even if we may lose. Just to prove that we won't back down, and we know what is right and wrong. I am praying for you. For a nice long life. Please don't cry love...they don't deserve your tears. I know...I know. Your soul aches. One day they will all know. I wanted to cry with you. Still fighting it. I used to be a good girl you know....but now I at least have something to fight for. I let my anger and frustrations towards the injustice performed by medical consent on so many people...I let it fuel me. To know I will never stop seeking an answer. But I am so tired...and things are getting worse. I know we can make it through.
Destiny, I am so grateful you posted and shared your experience too. There are so many of us impacted by the long-term effects of ECT. Yes! We will keep up the fight to find appropriate assessments and rehabilitation. We're warriors! We have much to fight for! We're in this together.
Sarah, what about neuroplasticity? Doesn’t any of that apply to ECT injury?
You are such a strong articulate woman! You have to much to offer those of us living with this injury.
Bless You and Your Husband.
Neoplasticity DOES apply to ECT injury, which is why getting a quick referral to comprehensive assessment for brain injury is paramount. It was because of neuroplasticity and a TON of hard work over the first five years that I was able to relearn how to read, regain my vocabulary, regain my ability to write and overcome my aphagia. That said, neuroplasticity can only help us so much. It cannot repair petechial hemorrhaging, gliosis and glial scaring, myelin sheath damage or heal damaged voltage-gated ion channels. So while my initial efforts to overcome deficits got me back into life's saddle (so to speak), aging with the effects of ECT listed above bring about the neuromuscular, neurovascular, and neurocognitive effects that you see me dealing with today. I got back in life's saddle, only to have my horses's legs lopped off with the onset of delayed electrical injury. Aging after ECT is not a graceful process.
Thank you for your kind feedback.
Sarah Price Hancock
Do you every have emotional problems...for example I don’t feel joy or happiness, and I cry ALOT. More then any person-daily. Never had that issue until my injury. Have you heard of anything like this?
Sarah Price Hancock
Do you ever experience a feeling of being spacey and disassociated with your environment? If so, how do you cope?
Sarah Price Hancock
Can’t the myhlen sheat (sp) heal? Or is it too damaged?
Yes, it is quite common for people with brain injury to have difficulty processing emotions. Tears are common. They are common in brain injury and they are common in people with a history of ECT. I have those issues too. I've learned that sleep, rest, turning off sensory input, and eating clean (unprocessed, no added sugar, no vinegar, nothing aged or fermented) helps me manage my emotions much better.