Thank you so much for sharing your experience. I have been diagnosed myself for about a month with IIH. Do you have a recommendation about what brand or type of pillow works best for you and your pain? Like you, I get a sore spot on the back of my head and nearly always have the ache in the occipital region, as well as a stiff neck. I am thinking that being propped up while sleeping might be good to help encourage draining of CSF? I don’t yet have a stent or any other surgical intervention, which may be coming depending on the results of an upcoming lumbar puncture. Thank you so much, and I wish you the greatest success in your continuing studies-you deserve it so much after all you have gone through 😊
I don’t have a particular recommendation but I tend to use multiple items to prop myself up. That being said, due to being in remission, I don’t have as many issues with lying flat as I did before.
This sounds very similar to me! This might be overkill but I actually have one of those motor beds that you can raise and lower with a remote lol, sometimes it helps. When I’m sleeping in another place and feel I need to be propped up I use extra pillows, but sometimes flat feels better (I suspect I might have leaks so it might depend on whether it’s a low or high pressure headache).
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Thank you so much for sharing your experience. I have been diagnosed myself for about a month with IIH. Do you have a recommendation about what brand or type of pillow works best for you and your pain? Like you, I get a sore spot on the back of my head and nearly always have the ache in the occipital region, as well as a stiff neck. I am thinking that being propped up while sleeping might be good to help encourage draining of CSF? I don’t yet have a stent or any other surgical intervention, which may be coming depending on the results of an upcoming lumbar puncture. Thank you so much, and I wish you the greatest success in your continuing studies-you deserve it so much after all you have gone through 😊
I don’t have a particular recommendation but I tend to use multiple items to prop myself up. That being said, due to being in remission, I don’t have as many issues with lying flat as I did before.
This sounds very similar to me! This might be overkill but I actually have one of those motor beds that you can raise and lower with a remote lol, sometimes it helps. When I’m sleeping in another place and feel I need to be propped up I use extra pillows, but sometimes flat feels better (I suspect I might have leaks so it might depend on whether it’s a low or high pressure headache).
Absolutely! Most times I’m more comfortable sleeping propped up.