I am so grateful for this talk , thank you. I am one of the millions missing. I am bedbound /homebound - have been for a few years now. I am in the severe range . I am not giving up hope, though some days are very hard.
I haven't been officially diagnosed with CFS but I do believe it is the underlying cause of the many problems I have been experiencing the last three years. My energy has diminished and some days feels as if disappeared. I can be outside in 90 degree weather and shiver while my hands are cold. I have endless upper respiratory infections (most often ears and throat. I went from moderate seasonal allergies to 37 indoor/outdoor allergies. I have been diagnosed with postural BP, and if anxious my palpitations now include ventricular tachycardia. Today, I thought since my allergies under control I will do what my therapist suggested and walk beyond my threshold. On route home, I had Vertigo and stumbled to a car. I held on and then had to sit down. It took more than twenty minutes to pass. What followed was shakiness and extreme nausea. I managed getting up and walked the five minutes to home. I took my anti nausea med, antihistamine and Xanax before crashing on sofa. I will likely spend a day in bed. I can't work anymore, socialize very rarely and have gained 25 pounds in a year. I was once a seven mile a day Power Walker and now a ten block walk more than I can manage. Safeguarding is my new way of living. I look in my cabinet and see my medications grow in size. Though receiving allergy shots weekly, I still need to take five other meds. This doesn't include the ones I take for mental health. Thank you for showing me at some point it will get more livable and there is room for hope. A day like to day, all I could feel was knocked off my horse. Your story so therapeutic. I do have IGG2 deficiency which accounts for all the infections.
Your experiences as a professional and a patient I am sorry is encouraging because you speak what you know and I Thank You for your instructions and and insight that is so very helpful. Thank you so much.
Nailed it. Nailed it. Nailed it. After a decade with CFIDS, I spent a year trying to do all the things that I once loved to do, to see if I could, and to see if there was any joy left. And I found it. Now, I am changing my entire life to be in or on water (either floating face down with snorkel & mask, or sailing & sleeping on a boat). CFIDS seems to make me motion sick on land, but not on the water. Who knew?! Plus the bed and toilet are 5' away.
Pretty good stuff, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest in Mario's Thunderous Erections, it's so much simpler and potent now!
Hahaha what a pathetic video 'coping with CFS' why do people waste their time doing talks and videos about coping with CFS? People should be recovering not coping. Theres so much information out there....
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / New Zealand]](http://i.ytimg.com/vi/UMimz3iDk0s/mqdefault.jpg)
I am so grateful for this talk , thank you. I am one of the millions missing. I am bedbound /homebound - have been for a few years now. I am in the severe range . I am not giving up hope, though some days are very hard.
I haven't been officially diagnosed with CFS but I do believe it is the underlying cause of the many problems I have been experiencing the last three years. My energy has diminished and some days feels as if disappeared. I can be outside in 90 degree weather and shiver while my hands are cold. I have endless upper respiratory infections (most often ears and throat. I went from moderate seasonal allergies to 37 indoor/outdoor allergies. I have been diagnosed with postural BP, and if anxious my palpitations now include ventricular tachycardia. Today, I thought since my allergies under control I will do what my therapist suggested and walk beyond my threshold. On route home, I had Vertigo and stumbled to a car. I held on and then had to sit down. It took more than twenty minutes to pass. What followed was shakiness and extreme nausea. I managed getting up and walked the five minutes to home. I took my anti nausea med, antihistamine and Xanax before crashing on sofa. I will likely spend a day in bed. I can't work anymore, socialize very rarely and have gained 25 pounds in a year. I was once a seven mile a day Power Walker and now a ten block walk more than I can manage. Safeguarding is my new way of living. I look in my cabinet and see my medications grow in size. Though receiving allergy shots weekly, I still need to take five other meds. This doesn't include the ones I take for mental health. Thank you for showing me at some point it will get more livable and there is room for hope. A day like to day, all I could feel was knocked off my horse. Your story so therapeutic. I do have IGG2 deficiency which accounts for all the infections.
Your experiences as a professional and a patient I am sorry is encouraging because you speak what you know and I Thank You for your instructions and and insight that is so very helpful. Thank you so much.
Nailed it. Nailed it. Nailed it.
After a decade with CFIDS, I spent a year trying to do all the things that I once loved to do, to see if I could, and to see if there was any joy left. And I found it. Now, I am changing my entire life to be in or on water (either floating face down with snorkel & mask, or sailing & sleeping on a boat). CFIDS seems to make me motion sick on land, but not on the water. Who knew?! Plus the bed and toilet are 5' away.
SPENCER
Thank you Thomas for your compassionate insights.
So grateful for his understanding insight.
Dr. Gary Gordon says, "at the root of all our chronic illnesses is lead exposure!" He is so right!
Best video ever explaining CFS
I’ve always said it’s like there is a big switch I can’t see that someone switches off randomly.
Thank you
This is a very honest interpretation of what it's like.
Pretty good stuff, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest in Mario's Thunderous Erections, it's so much simpler and potent now!
Is there a transcript available for this?
Some no doubt also have Lyme and co-infections!
Anyone out there with any help for myself in belfast would be great because are support group northern ireland me assosiation has been closed down :(
Hahaha what a pathetic video 'coping with CFS' why do people waste their time doing talks and videos about coping with CFS? People should be recovering not coping. Theres so much information out there....