@House of the Diamond 8 who are you calling fat this gentleman deserves an award because he has not just accepted the condition his partner has but has helped her come out of her shell so think before you judge people never insult the courage of a man and a woman or the family imagen if this was you think how you would feel in the lady's shoes the abuse she gets could you cope with it I think not
@House of the Diamond 8 You're just assuming that because she's disabled, fuck off I see ugly ugly fat men with really attractive girls all the damn time and they aren't even rich either. I know girls that personally will they tell you that they only date ugly fat guy's.
It's probably because they were scared of potential trolls getting there. This video is received well but sometimes similar videos get hit by harassers.
Darkness Inside yeah I agree but I think they got the title because some horrible people were saying she wasn't pretty because of her feeding tube on her instagram but she thought otherwise xxxx
I have EDS Type 3 and it's been great seeing people with EDS more in the mainstream media in the past few years to help spread awareness and understanding of the difficulties we face with a poorly understood and often (but not always e.g when using tubes and splints and mobility aids) invisible chronic illness. You go girl ❤
I have type 7b, but it's great seeing anyone with any form of EDS out there spreading awareness and understanding. We need more brave people like her sharing their stories with the public.
@@optic-commando7993 but makeup is an art so no she doesn't need it no one needs it but people like expressing themselves with it, i don't but i draw, which is kind of the same
Dino Last hey 👋. I can walk although I do use a walking stick. I am able to also eat solid foods most days although last 3 days iv been unable to eat anything. Ask anything it's no problem
Dino Last I'm currently not able to keep any food down. I have been told I will have a feeding tube it's probably coming to that now. Sadly due to Coronavirus I am not going to hospital for treatment it's to risky
Alex Kennedy Just Stop. She can do makeup, it’s literally perfect. Girls spend hours doing their makeup and to tell them they don’t know when they do is really irritating and fucked up.
EDS is such a weird condition. Every single person is going to be effected differently, even within the same subtype. Mandy from America's Got Talent was robbed of her hearing and has joint issues, but is relatively healthy otherwise. I only have subluxations (incomplete dislocations) and minor intestinal issue. My boyfriend currently has subluxations more or less HOURLY of his knees and ankles. It's a crazy genetic mess.
Hey another EDS girl here! It’s so nice to see it’s getting a lot more recognition. Lots of respect! Keep going through those tough times and take one day at a time. ❤️❤️
Faith Haillee I had my gastric emptying study 3 years ago and was diagnosed with gastroparisis and now have a ng tube. I hope it’s gets better for you.
Wow i can completely relate...i have eds type 3 as well(mine is less severe) and looking on point (hair, makeup, clothes) really helps when you constantly feel like shit physically...
Stella Annie Same... Like I feel bad for her having whatever condition or disease she has, and bless her soul but the tube doesn't effect anything and her face would still look the same with a plastic tube sticking out of her nose or not. Like you said ... I would've never questioned her beauty because of a tube 😂
Stella Annie the fact is not that she is beautiful the fact is that she FEEL beautiful, a lot of people with her condition feel ugly because of that tube
I have a feeding tube and it really does knock your self esteem. Members of the public have made rude remarks towards me, pointed and laughed. She’s really good at makeup, mines a bit bigger and makeup is so hard with a feeding tube. She’s really made me thing differently and think maybe it’s not so bad at all. Mine I have for 8 week stings and then I have meal replacements since I was 7 and now I’m 13 and it’s hard I have severe crowns disease and it’s awful. She really is an inspiration xxx to anyone else out there with a feeding tube just remember the emotions surrounding it do get better, I promise x
Ellie Marie, i'm so sorry to hear that. I had no idea that's how some people view people with feeding tubes. :/ But i hope you know that those are just few people, i'm sure most people don't pay any extra attention to it! So don't worry. Maybe you could even make the tube more unique and add a little bit of washi tape on it or something? :)
Stella Annie same but I think people they got the title because some horrible people were saying she isn't pretty because of her feeding tube but she and many others think otherwise xxxx.
My mom, sister, daughter, grandson and myself all have EDS. My daughter and grandson has vascular EDS. The rest of us have what they said is type 3. But in the US very few doctors know what EDS is and there isn’t anything that they can do so it typically gets ignored.
In India, there is a ornament known as NATH for girls. This is basically a nose jewel and gose till the same side of ear. If you want to hide your feeding tube underneath, you can use this stuff. But let me tell you, you are very beautiful girl. In fact feeding tube, dressing bandages, intravenous cannula, catheters all are called medical ornaments.
You are an inspiration to others who have to deal with the same condition and I'm sure you have inspired many to be themselves . The tube in your nose is a part of you and I love the way you incorporate it into how you do your make up. You are beautiful inside and outside. Keep smiling
I´m happy to see that people are talking more and more about EDS. Around 15 years ago I found out that I was not going crazy, the constant neck and shoulder pain I had since I was a small kid was not my head playing games on me, it was very real. Those 3 damn letters also explained my weird skin and the joints popping in and out of place whenever it felt like. But at the same time it was a relief, EDS was something I had never heard about, and besides my brother, I didn´t know anyone else who had the condition. There was no actual information about it, so I had no idea of what to expect. So thank you for making EDS better known.
I have a feeding tube myself but in my tummy and just watching Emily’s story, really gave me confidence and expressing myself more. You a true hero and an inspiring young woman who deserves more than just the horrible comments on here but your a true warrior and an amazing makeup artist as well ;)
I have a permanent feeding tube called a Minnie button. There is a mickey button and a Minnie button which is funny. But having a permanent feeding tube on my my belly is amazing! However it is uncomfortable to get it changed but that is only every 6 months. Anyway I guess what I am saying is there nothing to be afraid of:)) for anyone wondering I have cystic fibrosis!
It still shocks me when I see others with EDS. It reminds me that others with it has it worse off then myself(even having the same type like both of us) yet, they always seem to be way more confident than I'll ever be.
Omg I have the same diagnosis. My symptoms are completely different. It affects my bones more (getting stress fractures a lot) and causes pretty significant chronic pain. Just had a spinal cord stimulator implant to help with the pain, recovering now. Super inspired by her.
Jack, you are awesome (you both are actually)! If only there were more people like you. I have ME/CFS and dating feels about impossible often. Caring, support, and understanding goes a long way. Chronic illness patients are special people. Strong.
Let me tell u something it doesn't matter what anyone else says u be u and make those hate comments brush off u because u are beautiful in every way ps. If boyfriend is very lucky to have such a pretty,strong, happy and graceful girl by his side Plz never forget what I have just told you because It will help you along the way your also so good at doing your make-up when I saw your face the first thing that came to mind was , She is my inspiration thank you. You help me to overcome things i was never able to overcome I know this is long but I still have a few things to say NO MATTER WHAT ANYONE ELSE THINKS JUST REMEMBER THAT I THINK U ARE AMAZING. Enjoy reading this comment. And just remember there is someone who looks up to you 😉😀
she is an amazing person, i myself suffer from a chronic ilness that is commanly assosiated with E.D.S called postural othostatic tachycardia syndrom, so i know how hard it can be to get up and smile everyday when everything hurts, she is an inspiriation to all of us. thankyou emily
This utterly broke my heart. I have suffered with knee dislocations from the age of 12, and eventually pleaded to have my legs amputated from the knee joint as I just couldn't live with the disturbing trauma of a dislocation anymore. Eventually I was instead given two knee replacements at just 18 years old, but still suffer with sever PTSD from the dislocations. I can not imagine what this poor girl has gone through - she is so incredibly brave and beautiful
Wow this is really a reality check for me. I was diagnosed with eds type 3 about two years ago but very mild compared to this. The most severe things I have are joint surgeries for torn cartilage, and constant neck pain. She is doing amazing.
Jack, you are an amazing person! I'm talking about how genuine you are and how I can immediately feel like you are a guy that anyone can just grab a drink with! I wish you and Emily the best of luck but know you two will be alright.
Ehlers Danlos Syndrome is very real and very dangerous. I have very bad knees and I have had two surgeries in the past two years to try to fix my right knee. Unfortunately I will have many more because EDS causes everything in my knee to loosen up and be prone to dislocate. Thankfully I am not wheelchair bound but sometimes walking can cause terrible pains. I'm only 15 and my surgeon is running out of ways to help me because EDS ruins everything he does.
I've got eds type 3 as well I'm 23 found out at 19 but mine isn't this bad yet I have so much respect I know how painful it is with your joints dislocating and the pain when I sleep or sit the wrong way or walk anything it affects every part of ur life and ur so strong at ur age to be going through this xxz
Don't let terrible people ever get you down you are a beautiful person. We should all admire your spirit and courage. I hope one day life will get easier for you.May God bless you and give you strength for every day.
She is gorgeous. I do believe I also have eds. Not anywhere near the degree her is. One of my patients suggested it to me when we were randomly talking. And I've done research and all the boxes are ticked for me. I'm glad I'm able to go out and still live a normal life despite being uncomfortable,and it's gotten worse as I've gotten older . She gives people hope despite her condition being bad. You go girl.
You go girl! I had a feeding tube e when I was young. I have this massive scar on my stomach, and for a while I was ashamed of it. I was even too scared to go swimming for fear of being judged. But then I learned that it deosnt master what other people think. I faced my fears and nothing bad happened. My friends have told me that it makes me who I am, and that I shouldn't be ashamed, and you know what? They're right.
My name is also Emily and I have joint hypermobility syndrome which is very similar to EDS however after some damage I did to my ribs the cause was likely EDS type 3. I’m lucky that I do not have to suffer as my as others but I still suffer from chronic pain.
"Most people just instantly run miles away from me.." That made me really sad. Turning their back on someone or excluding them from social life due to a disability, mentally or physically is one of the worst things you can possibly do. But the title says it all: "I Feel Beautiful, Even With My Feeding Tube" .. and she has every right to feel that way!
She has a similar condition to Scleroderma, I have it ( Scleroderma is a rare, autoimmune condition in which the body produces too much collagen, causing the skin and connective tissue to thicken.) It weakens the body and causes a lot of body issues ... I am 50 yrs old and was diagnosed 7 yrs ago but it started 8 yrs ago and it took long before they could finally discover what it was, Bless her for being such a strong young lady...my Dr tells me that my treatment works so well only because my attitude is always a happy positive one, I hope she keeps doing gr8 and would love to see updates!! God bless her!
She looks like a living doll😍😍 I cant believe someone would go on her page and say she looks ridiculous with the tube😔 That really heart my heart to hear😔 This girl is beautiful and has a great spirit, Im so glad she is sharing her story😁😁
I had a feeding tube, when suffering a stroke over 3 years ago and was given a peg tube, a feeding tube in the stomach. I used to hate going swimming though as people could see it. Don't let it put you down. By promoting it, hopefully it will help people accept it and know more about it. Best of luck with modelling.
My name is Emily and my mum has EDS so this video really touched me. My brother is called Jack and he has cerebral palsy , just heading your story made me so happy x
Imagine how powerful and strong these people are. She has so much going on and she said “I was a bit low and depressed”. Now you see people who get criticised on instagram because someone said their nose is a bit big and they become severely depressed, unable to eat etc.... good on this girl.
That girl is so beautiful the way she is. No one should bully and abuse her. To the people who bully her just ignore the feeding tube and look at her eye lids or her nails. She’s not the onl gone with a feeding tube lots of other people out there have a feeding tube. She deserves support from others and not to get upset about the bully’s
I’m so glad she’s confident in how she is! Most people would hide their tubes with hair because they think it’s ugly but you just need to be more confident like this girl!
I have benign joint hyper mobility syndrome which is in the same sort of family as elhers Danlos type 3 as it’s likely causes by dodgy collagen and the dislocation thing is hella annoying and painful. I hope medical science can help someday. Edit: I actually have hEDS (Ehlers Danlos Type 3) I have more joint, skin and organ issues than even I thought!
OH MY GOODNESS hardly see anything about people with EDS!!! I go it toooo!! watching this makes me happy!! tho sucks people have to deal with all this! also YAAAASSS MAKEUP IS AMAZING!! Shes so talented!! she is stuuunnning!
She shouldn't feel like she's beautiful, because she IS beautiful. People like her think wrong about themselves, but in a way... They're just thinking about their outer self. She's a beautiful young woman, compared to me... I'm a teen. But she's a beautiful, loving, and caring young woman that has her whole life to go through. She has a mom, and a boyfriend that truly cares about her. And that's all she really needs, cause she's got all the beauty inside of her heart. I hope she grows up more strong and confident. 😊
Her boyfriend is so lovely to support her as he does. What a man.
Olivia Mai exactly!
I love him so much for accepting her for who she is
House of the Diamond 8 lol why
@House of the Diamond 8 who are you calling fat this gentleman deserves an award because he has not just accepted the condition his partner has but has helped her come out of her shell so think before you judge people never insult the courage of a man and a woman or the family imagen if this was you think how you would feel in the lady's shoes the abuse she gets could you cope with it I think not
@House of the Diamond 8
You're just assuming that because she's disabled, fuck off
I see ugly ugly fat men with really attractive girls all the damn time and they aren't even rich either.
I know girls that personally will they tell you that they only date ugly fat guy's.
Her eyes are mesmerizing
Yes they are
Makeup really makes the average eyes look fak- er mesmerizing.
I agree.
Mesmerising alright
0:57
Everyone is beautiful no matter what you have on your face or body
even peadophiles ?
HULL GRAFFITI nah they can die
Brian Leonard are you beautiful ?
Roadman Shaq thanks! ❤️
Roadman Shaq yeah man skiddy pap bob
Shame you didn't link to her social media accounts.
It's probably because they were scared of potential trolls getting there. This video is received well but sometimes similar videos get hit by harassers.
namewithay Her Insta is @beautybyemilylou_
instagram.com/beautybyemilylou_/?hl=en
I know, I wanted to check her out.
they showed her handle several times in the video
I checked her Instagram, she doesn’t need a feeding tube anymore! She’s doing great and is still doing makeup
Do you think maybe she got a jtube instead?
That's amazing
What’s her Instagram?
Yeh she needs no feeding tube because she's dead lol
@@ironickuykratoey8851 what
Beautiful even with tubes why "even", everyone is beautiful and gorgeous she beautiful no even no but ❤️❤️❤️
I was thinking the SAME thing!
We all have our own type of butifullness
Darkness Inside yeah I agree but I think they got the title because some horrible people were saying she wasn't pretty because of her feeding tube on her instagram but she thought otherwise xxxx
English
...no that's the way she sees it. She sees it as a "despite". It's an immediate insight into her perspective. Calm yaself
I have EDS Type 3 and it's been great seeing people with EDS more in the mainstream media in the past few years to help spread awareness and understanding of the difficulties we face with a poorly understood and often (but not always e.g when using tubes and splints and mobility aids) invisible chronic illness. You go girl ❤
Jay B I also have EDS type 3, good to see another EDSer
me too!! eds gang💯
I have marfans (another type of connective tissue disease)
I have type 7b, but it's great seeing anyone with any form of EDS out there spreading awareness and understanding. We need more brave people like her sharing their stories with the public.
Classic type, heya!
She doesn’t even need makeup. She’s so pretty omg
Watermeloon yeah but make up is fun to do (for some people) I enjoy putting it on and experimenting with colour. Neither do I wear it all the time
pathetic!
She ain't need makeup makeup
@@optic-commando7993 but makeup is an art so no she doesn't need it no one needs it but people like expressing themselves with it, i don't but i draw, which is kind of the same
@@donotaylor5307 what is pathetic
God bless her boyfriend. He’s a good one.
In The Beginning Was The Word
Let's not act like he's a saint, she's beautiful, I wouldn't think twice about it either.
Ayy Lmao she is not that beautiful though. Semi attractive more like.
Right 💗
@@NumbDigger22 Kinda rude to call someone " not that beautiful ". Everyone is beautiful 💖
Fellow EDS Fighter here. Brilliant to see this being spoken about it’s so unknown and ignored x
mahala Clarke so you can’t walk as well ? .. I’m only askin cause I don’t know nothing about this
Dino Last hey 👋. I can walk although I do use a walking stick. I am able to also eat solid foods most days although last 3 days iv been unable to eat anything. Ask anything it's no problem
mahala Clarke why aren’t you eating ?
Dino Last I'm currently not able to keep any food down. I have been told I will have a feeding tube it's probably coming to that now. Sadly due to Coronavirus I am not going to hospital for treatment it's to risky
How are you now?
She's gorgeous!
She can’t actually do makeup it looks horrible
I know she's a doll.
Alex Kennedy Just Stop. She can do makeup, it’s literally perfect. Girls spend hours doing their makeup and to tell them they don’t know when they do is really irritating and fucked up.
@@alexkennedy7273 stfu, her makeup is absolutely amazing
She's freaking awesome. I'm also tube fed and I have EDS type 2! You go girl!! ♡♡ It's so nice to have awareness for the EDS community.
I have type 2 which is actually extremely different to hers ahah
I have type two but it’s very different tbh it will always different to others
EDS is such a weird condition. Every single person is going to be effected differently, even within the same subtype. Mandy from America's Got Talent was robbed of her hearing and has joint issues, but is relatively healthy otherwise. I only have subluxations (incomplete dislocations) and minor intestinal issue. My boyfriend currently has subluxations more or less HOURLY of his knees and ankles. It's a crazy genetic mess.
Mahari Wynn13 I have eds but type 2 it’s pretty hard
I didn't know Mandy from AGT had EDS!
Hey another EDS girl here!
It’s so nice to see it’s getting a lot more recognition.
Lots of respect!
Keep going through those tough times and take one day at a time. ❤️❤️
I also have Ehlers Danlos type three and am currently struggling keeping down food, this makes me think more positively about the fiture
shannon steinhauer same here. I’m getting a gastric emptying study to see if I have gastroparesis. Good luck on your journey
Faith Bean I had my emptying study yesterday! They also think I have gastroparesis
i have to get mine in a couple months..... does it hurt??? i’m scared 😂
Clooka Claaka no they just make you eat then take pictures every hour
Faith Haillee I had my gastric emptying study 3 years ago and was diagnosed with gastroparisis and now have a ng tube. I hope it’s gets better for you.
Girl....... your absolutely gorgeous, and beautiful person inside and out keep on shinnin and doing what you love
I, too, have EDS type 3. granted it is not as severe as hers, but it is a pain for daily life.
Motionless_In _Black same here
same here
Wow i can completely relate...i have eds type 3 as well(mine is less severe) and looking on point (hair, makeup, clothes) really helps when you constantly feel like shit physically...
I never thought someone wouldn't be beautiful because of a feeding tube. 😑
Stella Annie Same... Like I feel bad for her having whatever condition or disease she has, and bless her soul but the tube doesn't effect anything and her face would still look the same with a plastic tube sticking out of her nose or not. Like you said ... I would've never questioned her beauty because of a tube 😂
Stella Annie the fact is not that she is beautiful the fact is that she FEEL beautiful, a lot of people with her condition feel ugly because of that tube
I have a feeding tube and it really does knock your self esteem. Members of the public have made rude remarks towards me, pointed and laughed. She’s really good at makeup, mines a bit bigger and makeup is so hard with a feeding tube. She’s really made me thing differently and think maybe it’s not so bad at all. Mine I have for 8 week stings and then I have meal replacements since I was 7 and now I’m 13 and it’s hard I have severe crowns disease and it’s awful. She really is an inspiration xxx to anyone else out there with a feeding tube just remember the emotions surrounding it do get better, I promise x
Ellie Marie, i'm so sorry to hear that. I had no idea that's how some people view people with feeding tubes. :/ But i hope you know that those are just few people, i'm sure most people don't pay any extra attention to it! So don't worry. Maybe you could even make the tube more unique and add a little bit of washi tape on it or something? :)
Stella Annie same but I think people they got the title because some horrible people were saying she isn't pretty because of her feeding tube but she and many others think otherwise xxxx.
Please, do my make-up!!! You're so good!!!
I have Ehlers Danlos Syndrome type three. You go girl. You're beautiful! And strong.
She is so pretty! And I feel bad but i think she is very strong!
I LOVE HER MAKEUP JAMES CHARLES WHO
My mom, sister, daughter, grandson and myself all have EDS. My daughter and grandson has vascular EDS. The rest of us have what they said is type 3. But in the US very few doctors know what EDS is and there isn’t anything that they can do so it typically gets ignored.
i am following Emily on instagram and I think she is amazing! Beautiful young lady!!
Anna Bujnowska what’s her @ ?
I have ehlers danlos syndrome, epilepsy, gastroparisis, POTS and a few other conditions like her and I can not explain how proud of her.
In India, there is a ornament known as NATH for girls. This is basically a nose jewel and gose till the same side of ear. If you want to hide your feeding tube underneath, you can use this stuff. But let me tell you, you are very beautiful girl.
In fact feeding tube, dressing bandages, intravenous cannula, catheters all are called medical ornaments.
At first I thought she came from india, beautiful girl
She looks beautiful. And her family and BF seem so lovely and supportive!
Her insta is so fun! She’s really quite talented!!
You are an inspiration to others who have to deal with the same condition and I'm sure you have inspired many to be themselves . The tube in your nose is a part of you and I love the way you incorporate it into how you do your make up. You are beautiful inside and outside. Keep smiling
I have heart problems and when I was little I had some feeding tubes and I can really relate. Once it was accidentally yanked and it was sooo painful
I have the same disorder just not as severe and it’s super cool to find people that are just like you !
I’m an EDS patient, and this video gives me hope. 💕
I´m happy to see that people are talking more and more about EDS.
Around 15 years ago I found out that I was not going crazy, the constant neck and shoulder pain I had since I was a small kid was not my head playing games on me, it was very real. Those 3 damn letters also explained my weird skin and the joints popping in and out of place whenever it felt like. But at the same time it was a relief, EDS was something I had never heard about, and besides my brother, I didn´t know anyone else who had the condition. There was no actual information about it, so I had no idea of what to expect. So thank you for making EDS better known.
Zebras together. You are so far from being alone. We are so much stronger and more beautiful then so many could possibly ever know.
I have a feeding tube myself but in my tummy and just watching Emily’s story, really gave me confidence and expressing myself more. You a true hero and an inspiring young woman who deserves more than just the horrible comments on here but your a true warrior and an amazing makeup artist as well ;)
I have a permanent feeding tube called a Minnie button. There is a mickey button and a Minnie button which is funny. But having a permanent feeding tube on my my belly is amazing! However it is uncomfortable to get it changed but that is only every 6 months. Anyway I guess what I am saying is there nothing to be afraid of:)) for anyone wondering I have cystic fibrosis!
Maeve Leonard i have cf too and i have a mini button x im 16 my gene is delta 508 xx
Your a positive girl stay happy
It still shocks me when I see others with EDS. It reminds me that others with it has it worse off then myself(even having the same type like both of us) yet, they always seem to be way more confident than I'll ever be.
Omg I have the same diagnosis. My symptoms are completely different. It affects my bones more (getting stress fractures a lot) and causes pretty significant chronic pain. Just had a spinal cord stimulator implant to help with the pain, recovering now. Super inspired by her.
She doesn't have to feel beautiful because she is beautiful
Jack, you are awesome (you both are actually)! If only there were more people like you. I have ME/CFS and dating feels about impossible often. Caring, support, and understanding goes a long way. Chronic illness patients are special people. Strong.
Let me tell u something it doesn't matter what anyone else says u be u and make those hate comments brush off u because u are beautiful in every way ps. If boyfriend is very lucky to have such a pretty,strong, happy and graceful girl by his side Plz never forget what I have just told you because It will help you along the way your also so good at doing your make-up when I saw your face the first thing that came to mind was , She is my inspiration thank you. You help me to overcome things i was never able to overcome I know this is long but I still have a few things to say NO MATTER WHAT ANYONE ELSE THINKS JUST REMEMBER THAT I THINK U ARE AMAZING. Enjoy reading this comment. And just remember there is someone who looks up to you 😉😀
she is an amazing person, i myself suffer from a chronic ilness that is commanly assosiated with E.D.S called postural othostatic tachycardia syndrom, so i know how hard it can be to get up and smile everyday when everything hurts, she is an inspiriation to all of us. thankyou emily
Beautiful stuff, I hope she gets the recognition she deserves, sad illness catch kind people like her
This utterly broke my heart. I have suffered with knee dislocations from the age of 12, and eventually pleaded to have my legs amputated from the knee joint as I just couldn't live with the disturbing trauma of a dislocation anymore. Eventually I was instead given two knee replacements at just 18 years old, but still suffer with sever PTSD from the dislocations. I can not imagine what this poor girl has gone through - she is so incredibly brave and beautiful
similar story for me age 15 type 3 diagnosis but I don't have a feeding tube I just use splints
Wow this is really a reality check for me. I was diagnosed with eds type 3 about two years ago but very mild compared to this. The most severe things I have are joint surgeries for torn cartilage, and constant neck pain. She is doing amazing.
I've got eds, I use a wheelchair and I wish I was as confident as her
Jack, you are an amazing person! I'm talking about how genuine you are and how I can immediately feel like you are a guy that anyone can just grab a drink with! I wish you and Emily the best of luck but know you two will be alright.
Ehlers Danlos Syndrome is very real and very dangerous. I have very bad knees and I have had two surgeries in the past two years to try to fix my right knee. Unfortunately I will have many more because EDS causes everything in my knee to loosen up and be prone to dislocate. Thankfully I am not wheelchair bound but sometimes walking can cause terrible pains. I'm only 15 and my surgeon is running out of ways to help me because EDS ruins everything he does.
Beautiful girl inside and out, lovely to see how well she's doing and the support is amazing, very heartwarming video xx
she sure is beautiful
why i wasnt saying anything bad?
I've got eds type 3 as well I'm 23 found out at 19 but mine isn't this bad yet I have so much respect I know how painful it is with your joints dislocating and the pain when I sleep or sit the wrong way or walk anything it affects every part of ur life and ur so strong at ur age to be going through this xxz
the fact she is actually genuinely pretty
She's so pretty. I love all the support she's got. She's so strong.
Her makeup is gorgeous. 💕
Don't let terrible people ever get you down you are a beautiful person. We should all admire your spirit and courage. I hope one day life will get easier for you.May God bless you and give you strength for every day.
Everyone is beautiful no matter what u look like😍😘😍😘😍😘❤
She inspires me so much I just got diagnosed and it is so hard to deal with I think its amazing she can smile with this awful illness it gives me hope
Just because she has a feeding tube it doesn't mean she's not beautiful, she's actually gorgeous
She is gorgeous. I do believe I also have eds. Not anywhere near the degree her is. One of my patients suggested it to me when we were randomly talking. And I've done research and all the boxes are ticked for me. I'm glad I'm able to go out and still live a normal life despite being uncomfortable,and it's gotten worse as I've gotten older . She gives people hope despite her condition being bad. You go girl.
Damn, she's really pretty-
She is gorgeous and so inspirational! I'm so happy that she has the support of her mom and her boyfriend!
Ehlers danlos sucks. I have type 3
The Beyblade Master SHUT THE FUCK UP!!
You go girl! I had a feeding tube e when I was young. I have this massive scar on my stomach, and for a while I was ashamed of it. I was even too scared to go swimming for fear of being judged. But then I learned that it deosnt master what other people think. I faced my fears and nothing bad happened. My friends have told me that it makes me who I am, and that I shouldn't be ashamed, and you know what? They're right.
You are still pretty just like any other teenage girl
My name is also Emily and I have joint hypermobility syndrome which is very similar to EDS however after some damage I did to my ribs the cause was likely EDS type 3. I’m lucky that I do not have to suffer as my as others but I still suffer from chronic pain.
This is one of the disorders my doctors are exploring for me.
Jordan Leigh Wheatley I have EDS having an answer is great but sometimes it’s was easier to not know.
Katie Reeves I can see why feeling that would be the case.
"Most people just instantly run miles away from me.." That made me really sad. Turning their back on someone or excluding them from social life due to a disability, mentally or physically is one of the worst things you can possibly do. But the title says it all: "I Feel Beautiful, Even With My Feeding Tube" .. and she has every right to feel that way!
EMILY FROM MUSICALLYYYY!!
She is soooooo pretty 😊😊
A bit less makeup would be more flattering
Fuck you
Dont watch then
She has a similar condition to Scleroderma, I have it ( Scleroderma is a rare, autoimmune condition in which the body produces too much collagen, causing the skin and connective tissue to thicken.) It weakens the body and causes a lot of body issues ... I am 50 yrs old and was diagnosed 7 yrs ago but it started 8 yrs ago and it took long before they could finally discover what it was, Bless her for being such a strong young lady...my Dr tells me that my treatment works so well only because my attitude is always a happy positive one, I hope she keeps doing gr8 and would love to see updates!! God bless her!
i dont think ppl will give you grief for needing a feeding tube... wear a hijab on though....
Why are you even comparing them both?
those are two totally different things my dude
Both are not important and neither should define a person
Did you watch it? She's already had grief for it from dickheads...also how are those things linked exactly?
Emily is butieful she should not care what people think she is strong and confident she always is and always will be butiefull
She looks like a living doll😍😍 I cant believe someone would go on her page and say she looks ridiculous with the tube😔 That really heart my heart to hear😔 This girl is beautiful and has a great spirit, Im so glad she is sharing her story😁😁
I had a feeding tube, when suffering a stroke over 3 years ago and was given a peg tube, a feeding tube in the stomach. I used to hate going swimming though as people could see it. Don't let it put you down. By promoting it, hopefully it will help people accept it and know more about it. Best of luck with modelling.
*God bless her and her boyfriend. Her boyfriend is so supportive, and she seems to never give up Keep going girl!*
My name is Emily and my mum has EDS so this video really touched me. My brother is called Jack and he has cerebral palsy , just heading your story made me so happy x
I followed her on musically before I saw this document, absolutely adore her
It doesn’t matter what you look like.... it’s your personality and what’s inside that matters ✨💕
I have hypermobile type EDS. Thank you for sharing your journey.
Imagine how powerful and strong these people are. She has so much going on and she said “I was a bit low and depressed”. Now you see people who get criticised on instagram because someone said their nose is a bit big and they become severely depressed, unable to eat etc.... good on this girl.
I looove her musical.ly she is so amazing and inspirational
bro I just gotta say - this girl SLAYS at makeup!!!! keep killing it!
She’s absolutely gorgeous,, such a strong girl xxx
That girl is so beautiful the way she is. No one should bully and abuse her. To the people who bully her just ignore the feeding tube and look at her eye lids or her nails. She’s not the onl gone with a feeding tube lots of other people out there have a feeding tube. She deserves support from others and not to get upset about the bully’s
I think that she is such a little kid that just wants to make people happy and I think she is 100% AMAZING
Oh hey! It's someone with EDS Type III just like me! Great to see this covered on the internet because most people aren't aware of this at all.
She is so Beautiful she don't let her feeding tube stop her that's a good thing it's great to see that she is happy and living her life happy
I’m following Emily on musically. She’s unreal at lip syncing. She’s so beautiful. Keep up the good work sweetheart 💖💖so proud of you. Love you Emily
I’m so glad she’s confident in how she is! Most people would hide their tubes with hair because they think it’s ugly but you just need to be more confident like this girl!
I have benign joint hyper mobility syndrome which is in the same sort of family as elhers Danlos type 3 as it’s likely causes by dodgy collagen and the dislocation thing is hella annoying and painful. I hope medical science can help someday.
Edit: I actually have hEDS (Ehlers Danlos Type 3) I have more joint, skin and organ issues than even I thought!
U are so inspiring to me and my daughter who has a feedtube and has felt low and u have uplifted her thank u and keep smiling u r Beautiful
OH MY GOODNESS hardly see anything about people with EDS!!! I go it toooo!! watching this makes me happy!! tho sucks people have to deal with all this! also YAAAASSS MAKEUP IS AMAZING!! Shes so talented!! she is stuuunnning!
I’m glad she found her passion she’s beautiful inside and out
Oh wow she did an amazing job with the make up! She’s so beautiful too! And Her boyfriend is amazing. I love that he’s so supportive of her
She's talented.! I really respect you ❤️❤️
She shouldn't feel like she's beautiful, because she IS beautiful. People like her think wrong about themselves, but in a way... They're just thinking about their outer self. She's a beautiful young woman, compared to me... I'm a teen. But she's a beautiful, loving, and caring young woman that has her whole life to go through. She has a mom, and a boyfriend that truly cares about her. And that's all she really needs, cause she's got all the beauty inside of her heart. I hope she grows up more strong and confident. 😊