The Un-Ending Struggle: I Can't Stop Sleeping | Living Differently
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- Опубликовано: 27 дек 2024
- Belle Hutt is 23, and suffers from severe narcolepsy. It’s a condition that causes her to fall asleep up to 15 times a day, as well as producing hallucinations. She now lives in Amsterdam with her boyfriend Maikel, and works as a personal trainer. Here, Belle talks about the origins of her narcolepsy, how other people have reacted to her condition, and how she’s adapted her life to accommodate it.
I Can’t Stop Falling Asleep
Producer: Danny Baggott, Ruby Coote
Editor: Marcus Cooper
Director: Marcus Cooper
Series Producer: Charley Sutton
Executive Producer: Alex Morris
Head of Production: Adam Mudditt
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![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
She looks so relieved and relaxed when she’s sleeping on her boyfriend’s shoulder and it was just so sweet
Q Q that is what a real relationship looks like
@@QQ-og3ui your attitude looks boring as hell. Guess we can't have everything 🤷
He can cheat her freely while she's sleeping
@@christinemanuelsson9580 ur right!!
@@gs-nq6mw people can cheat on you even if you are not sleeping
Such a sweet girl and such an amazing boyfriend. They look so happy together.
They might have made it to three years but you could hear the strain in the guy's voice.. "...we used to watch DVD's.. we used to watch TV.. don't do any of those now...", I hope he sticks around but his dedication to the cause seemed to be wavering.
Michael Scott your comment made me yawn
@Alexander A legal grey area I imagine.
so true
Her boyfriend is such a keeper. Those other guys were just jerks, he's a real man. He's attractive and caring and considerate. She deserves it ♥️
@Cumberpatch Fingerbottom you good my guy?
Then when this girl will find more attractive and richer boy she will dump him. gold diggers chicks
Noman Sajid I am not saying this happen to you but it sound like it did but, the reason why some women did that to you because you choose them, that is who you attracted to. Now, if you choose the opposite, you might find the right woman, but you don’t want to. So you going to keep being in the same situation. Widen out, and you will get results.
@@honeyofoats5619 I am not the God to know who will not do this in future. Can you judge a book by cover.? And not everyone has a heart to get it broken by every new person once a year. Yes if you be with them for lust then that way we can be even.
Fulfill your lust they take your money.
Zoha Samdani well to a certain extent my friend
Did anyone else almost start crying seeing how much her boyfriend loves her? That is so beautiful.
I did
I did too, he cares beyond measure for her ❤️
@@agentbagreviews no more then most
No
Yeah the jealousy within is like a raging forest fire
her name is belle (beauty in french) and she can't stop falling asleep. wow the REAL sleeping beauty. SHE IS A PRINCESS!!!!
Alwin Kamil when she was falling asleep on his shoulder she looked just like a princess!
in french sleeping beauty is 'la Belle au bois dormant' ( the beautiful of the sleeping woods)
shoulda named her Aurora/Briar Rose
Beau is the masculine beautiful while, belle is the feminine
no one cares
"the boy who dies if he falls asleep"
And now
"i can't stop falling asleep"
Why yt recommended me these
I got both of these recommend to!!!
Why it is that in every people there is always a muppet who have to complain about why youtube recommended these videos to them. Thats how u discover new contents smh
@@tealckree1240 Why it is that in every people there is always a bord muppet who cant realate and feels the need to let us know, i'd never know.
to remind you to be grateful for having neither of these problems
They want you to be scared, making you stay awake >:)
Those teachers, WOW! You’re supposed to a mentor, not a bully
Perhaps telling the office and the teachers that she had a rare desease would've been a good idea. In the case that she did and they still tormented her in that way then yea, I agree.
Emily Swan Definitely 100% of my school teachers.
@@dico9542 I think this was before she was diagnosed, but they didn't believe that anything could be wrong with her.
The thing is though...most teachers are not skilled in the art of psychology so they don’t know many of the mental disorders! What this girl is suffering is something I struggled with in my high school as well! Of course I just thought that it was though the teacher that was making me fall asleep! But it was the lack of iron due to having unknowingly having crohns! I say unknowingly cuz I never knew when I and if I had crohns at that time but I had lost a lot of weight! I weighed 72 pounds at that time and I needed to to be at least 115....i just never knew that I was falling asleep due that! Long story short, even the teacher loved me he told me it was rude of me to sleep in the class! After that I actually did try to stay up but my health wouldn’t corporate! Plus the freaken classroom would be freezing cold! And the bigger laugh was that I wasn’t the only one falling asleep! Many people in his class fell asleep!
@@dico9542 that could make it worse sometime. I have a lecturer that said people that got mental illness does not deserves to get education. Its just the people's attitude nowadays actually,they just dont care about others especially if you have some illness like this.
She’s so pretty-.. And I don’t mean this in a bad way whatsoever, but she’s like the real life sleeping beauty.
Omg i thought the same thing.. and her boyfriend looks like a handsome prince
@Ttv Relax aww dont feel insecure .. i think youre beautiful too
Indeed.
That's so true
Frank Lampard lmao
wow what the heck why were her teachers & classmates so MEAN? smh, but I'm so happy to see she's rising above all that negativity
I didn't have this problem but one time I Feel asleep in class because my parents argued the entire night before and my teacher threw a whiteboard eraser at me.
Malikah Allaham wtf did you tell the teacher why you fell asleep?
@@hamsternuggetz
Yeah. I just got a speech about not letting home problems come between my school life. Lol but not an apology for a bruise on my forehead
Daamn, kind of hard to not bring home problems to school also when your parents are the main existing things in your life
Now I want a anwser... What does smh mean??!
She coping with that with such an positive attitude - how am I still struggling to get my life together??
I've just asked myself the same question
We are all different. Don’t beat urself up
@@lovingbundleofhate :)
FuchsEll foxx no joke! We’ll get there tho!
Ok, but her boyfriend is probably very rich. That apartment in Amsterdam must cost at least 2000 euros a month.
Awww he is an adorable boyfriend.
Yeah
@@xenaprincess44 yeah *HEE*
@@Zhunter5000 ohhh I thought they said "He has an adorable boyfriend" XD
but you are a slag still
She*
Her boyfriend is the type of guy a parent would thank God for, he truly care for her
Your boyfriend is so lovely and you are such a beautiful couple.
She's so lucky...
So youve obviously have never been close to a vagina
Daddy Skechers lmao what
Daddy Skechers neither have you (; I can tell you’re a virgin by your pfp
Her boyfriend is so sweet!!
And handsome too😂😂😂
@@aditeerao9455 yes 😍😍
Aishwarya Biswas Snapchat @mitchballeryeet
He really is!
Yeah :)
She will probably cheat to him with Chad
I can’t believe a teacher threw a pen at her.. The disrespect...
That's pretty much sums up my relationship with my teacher in my school days.
maybe he teacher doesn't know she have narcolepsy
Hey in India, they throw books, chalks or anything, I mean *Anything*
Harish Kumar Also in Pakistan
Somewhere inthe Philippines you can't avoid the things being thrown to you because the teacher can predict your move and he is good at aiming....
I have this disorder. People thought i was over opiate medicated. She is blessed to have him. I have no social life because of my illnesses. I rarely get invited out......
Awe I’m so sorry! I have Narcolepsy as well & I can relate. We can be friends 😭
@Claude Salvatore plz do
Hey I'd like to be your friend....😚❤️
@@madilovezyooh me too!!
Welcome to the club. I used to go to raves with my girls, and I could go out and have fun, now i have no social life either. My boyfriend is an introvert but we enjoy our small circle of friends. Wish I could still have a social life tho. Freaking sucks.
*She is dying to be awake and some are dying to have a proper sleep 😴* .
Deepak Kumar her case isn’t “proper sleep”
Makes sense
While others dying to die
@@netro4680 who hurt you?
Well mate, if you stay up for almost 40hrs and are expected to function like a normal human being, you know, not falling asleep, paying attention and what not, I guess you cant help but die or kill for a proper nights rest. I remember one time i stayed awake for almost 70hrs. I drank so much coffee, so much Monster and ate like 25 cafeine pills a day just to not fall asleep. I needed to because i had a shitton of work to do that i fell behind, my finals were coming closer and I had an interview for an entry position.
The two most tortorous things are listenin to the most boring math lecture you can imagine and driving. Honestly, never been so scared to get in me car in me whole life, because sometimes you wouldnt fall asleep driving, just "waking up". You dont quite recognize your surroundings and stuff, like youve just been put into that situation where youre going 60mph down the road.
That said, I would die for a proper nights rest but I am also willing to die. its a win-win situation.
*the perfect couple doesn't exi-*
*-st*
Oh ok nvm
Sandwish carry on
YOU NEED SOME *COFFEEE*
It's only perfect if you allow it to be perfect and get on that person's page. Don't be one-sided, be open-minded. They are a perfect couple whether your opinion differs or not. It is what it is.
exit as soon as one has a disability
off topic but how gorgeous are their children going to be?!?!?
Children? ( ͡° ͜ʖ ͡°)
@@deadmemes4857 wtf 😂
i kinda wanna see a porn video of that now
Look lara larzsson 😂
Ikr! I thought I was the only one thinking about it😂
Her boyfriend seems like such a great guy, he deals with her disorder so well
cause he isnt an english man thats why :D
@@sirbonobo3907 bruh whAt
Because she is a hotty thats why
WOW THAT GUY IS A LEGEND IM SO HAPPY FOR THEM.
Him*
HAMO you idiot
HAMO baka HAMO
1000th like :D
1.1k uwu
What a lovely boyfriend, he's bloody gorgeous too!
I would love a girl that would just sleep on my shoulder, like that would be a good life
Yeah
No homo
They both are. Beautiful couple.
nobody gonna talk about how beautiful she is?
Tf man litterally the whole chat is talking about it
xXx_KeVoRk_xXx not rly but ok
@@ava-jq4uq go check
xXx_KeVoRk_xXx there’s like one other comment?? Lmao
@@ava-jq4uq bro are your eyes in your ass?? I see more than 10
They are one of the cutest couples I've ever seen. He's so protective of her. Beautiful thing to see
i hope that they stay together for a long time, maikel really is a sweetheart
Literally relationship goals
Bravo to her boyfriend. Always taking care of her. Such understanding lover
I would take care of her even when she is asleep
He doesn't have to deal with the arguments while she is asleep
@Jack Johnson hit the road 'jack'
@Jack Johnson - lol, I know you have nothing to contribute to a conversation when you say "ok boomer."
I think the hallucinations would be the worst.
You ment best
I suffer from a hallucinating illness and after two years ive gotten used to it, i dont like but in a way it has gotten comforting.
they are, they're very vivid and scary
that would be awesone
RoseJedi they are. Every time I think this is gonna be the time they touch me and I’ll know it’s real.
Her boyfriend is so caring! People dumping her because of a condition she can’t control. I’d be pissed if someone broke up with me because of my epilepsy, migraines or learning disability.
To be fair your conditions don't entitle people to sacrifice themselves be with you.
You have epilepsy and migraines too?
I do.
Do you mind me asking, what does it do to you?
You can dm me if you can.
After years of testing, I was recently diagnosed and I just want to learn more.
I would love it, thank you.
@@haley210 sure. How do you DM btw?
@@heartroll8719 I have no idea.
Do you have an email address?
Guaranteed you would break up with a man who needed this much accommodation for an illness.
It's crazy how much we take things for granted, even things as tiny and minuscule like sleeping.
True. I'm counting my blessings these days.
yes Lucifer
Sleeping is anything but tiny and miniscule.... What
eilrahc700
Tiny and minuscule at the fact that we do it literally ALL the time, usually when we want to, whereas this girl can’t control it at all.
Amen
no wonder she’s so pretty, she always gets her beauty sleep 😴
n1ghtsk1 MOoD x
she’s the real sleeping beauty
Shut yo
Lol
Actually, narcoleptics cant/have very little deep sleep. They experience Rapid Eye Movement sleep which isnt restorative, hence the hallucinations (REM intrusion) and dreams
this is the most physically attractive couple i think i’ve ever seen
Delaney Tarr u havent seen many couples i guedd
^ lol true. must have low standards then
bri h Or maybe just different beauty standards smh
SHE NEEDS MORE *COFFEE!*
I agree here they’re both absolutely stunning together
I'm so happy she found someone that cares about her enough to go through this with her
Her boyfriend is so cute :) and sweet to her.
then again...all Michael's\Maikel's are understanding! (I'm Michael BTW)
can we talk about how when she met her boyfriend, he literally googled what narcolepsy was. that’s a real man. I’m happy she found a man that treats her right and stays with her despite her health difficulties
Abbi North googling makes a real man? Damn girl your standards....
@@sharamusica I think they were referring to the fact that the guy was immediately curious as to what her condition was rather than assuming what kind of person she is and thinking she's a weird person.
She is lucky and blessed. I wish them all the best and continued love for each other.
I feel like any person would have googled it instantly but 🤷♂️
Really? That’s why he’s a real man coz he googled 😂😂😂 com’on
as someone with narcolepsy, I genuinely appreciate this documentary. It is incredibly difficult to live with this condition. Staying awake during class is impossible. Laughing too hard can feel like a punch in the back of the knee. You sleep for most of your day and your brain is still so irritated from fatigue that your body can feel like it is on fire. Every single joint in your body aches because you're never active enough to stretch them. And yet it is expected of you to function like a normal person from day to day. But there are many different ways to cope with this illness that is never talked about with us. We are not broken people, we just work differently! I hope Belle knows that she isn't alone at all with this condition.
I hate it, it took so much of my life
N can take so much from us. Stay strong. You are strong 💖
how come you didnt fall asleep while writting this long ass comment !
hug, im sorry to hear about that. I hope they find a cure for it some day. I suffer from extreme fatigue from Celiac Disease and feel like im literally about to fall over all the time and I cant do anything about it.
I would like to hear more about your condition. First time I ever heard about it
She’s hands down one of the most beautiful women I’ve ever seen.. absolutely drop dead gorgeous
She is a real life princess....sleeping beauty.....she make the beauty part better tho.
lizz cross all she needs is more *COFFEE*
Ur profile picture scares me 😂
And her name is Belle (beauty and the beast)
@@ultrasubscriber2689 oh
@@ultrasubscriber2689 no worries. Have a blessed day.
Imagine being in an argument with her and then she just falls asleep
Gr0aZyPlayz she be like
“Well remember that last time you.... said.....”
Then just passed out
(Bless her heart though I hope she fights through this I love her story and hope she stays strong)
Lol!!
It can actually be triggered by strong emotion so its possible lol
Funny
@@Chamojcs so so true your so funny
I’m sure I have this condition but I only experience the symptoms in math class...
Edit: everyone for the record I did not make fun of the condition nor am I being insensitive. It just came to my mind, commented it and didn’t think much of it so if u find it offensive my bad it was never my intention, so can we please drop it?
Tell me why same!!!
Tell me why ain’t nothing but a mistakeee (sorry I had to)
So true! XD
Jessie_ Lolz123 tell me why i never wanna hear you say...
haha true
As a person with Narcolepsy I can't make myself to watch this video. The emotions come rushing in and I can feel the pain she goes through. I really hope you are doing well.
From the deepest of my heart I wish you the best Belle. I'm cheering for you.
I hope u're doing well too :-)
I think you will live a long life because of it
Aw her boyfriend is actually a legend
She Looks super Good "Happy Beautiful blond Girl."
Jabroney you’re just an awful human being.
@Jabroney discusting creep
Plus he is so handsome!
No, he isn't. You can already see the quiet regret/resentment in his eyes. He loves her, that's clear, but being someone's carer is no easy task, and is often thankless. If they stay together, these tiny regrets he laughs off will become serious. Personal experience in that field!
So glad Belle has Maikel, her lovely momma and a great attitude. ❤️
@Space Giraffes Same, I always seen her on Buzzfeed videos, ect
TheMovieMyLife Snapchat @mitchballeryeet
The queen of RUclips comments is back bi*@%&s
TheMovieMyLife That's actually a really beautiful way of spelling "Michael". I've never seen it spelled that way before, I like it!
@@obnoxiousbluebird6634 would it be weird if when she was asleep i stick my peepee in her
people are like "oh that's me everyday!"
y'all need to understand teh gravity of her condition.
edit: i didn't mean for anyone to get confused by this but there's too many replies.
saying "oh that's me, like, everyday" or "omg i wish i had that," that is so disrespectful if you don't have the condition. it's like saying "oh im a little ocd" just causally to a person who actually has ocd. like people making insomnia an asthetic. it is extremely disrespectful. also the people telling me to shut up-
no♥️
Teh
Shy Cat ahhhhh it’s my autocorrect
the*
@ siya: why people cant say that?
Is this disease only reserved for one person?
I’m narcoleptic and I’m used to this attitude. “Oh I have insomnia, I wish I had your issue!” No...no you don’t. But whatever, if they haven’t seen it accurately portrayed on TV or they don’t know someone with it personally, it’s just a joke to them. It’s not something that affects literally every part of your life.
I love how she doesn't let this control her whole life. I was just diagnosed with narcolepsy and it's really difficult to keep going on with the day. Belle is such an inspiration.
First i saw i video about a kid that will die if he sleeps now this
Me too
If I see 1 more profile with this picture I'm shooting up a school on god
@@killdalamb3357 Hey..
Oh ye ye
@@killdalamb3357 Hey ;)
RUclips is a wonderful place at 3am
TraGiiCz I’m here at 3 am as well lol
Yea 1am - 4 am is the best time to be on youtube
metro _ ikr!!
Sarah Nostow same here
omg 😮 been here since 3am couldn’t sleep so RUclips it is
He gets to cuddle everyday 😂🤗
😂
@Hunt Tatum 😂
HAMSTER HWH Yeah what a man
Lame, I don't call that cuddling... Cuddling for me is more like constant kissing body licking mutual masturbation stuff.
Not funny
I think we've all had moments when we did not get a good night's sleep and we are literally falling asleep everywhere... it feels horrible. I can't imagine feeling like that every single day.
holy shit she is HOT, bloody nice BF as well, perfect couple... I feel a little sad for her but I'm sure she doesn't want people feeling sorry for her... hope they live an awesome life..
Drew John Look at their dope appartment. Don't feel bad. Her life is good.
Drew John she and his bf is soooo cute
Daniel Fl. Having a nice apartment doesn't mean your life is good, this exhausted, eyes-closing-on-their-own feeling is horrendous and gross. The only relief is sleep, even if you don't want to.
She's not hot imo
its ok, we cant all be straight....
Girl: _I can't stop sleeping_
Me: *I can't stop using my phone so I don't have proper sleep.*
Relatable 💀
Trueeee it’s 12:26 am right now 😂 and I’m on my phone
Petestar777 I sleep at like 1:31am XD
same
It’s 2:11 am here ain’t sleeping
couple goals right here boys.
I don't think so
@@siemniak I think that we all would think so to thinking.
Sooo many advantages taken
Chief said this is it
Ronald Mata if you do that then your a massive d*ckhead.if your joking then I’m sorry.if your not the I mean it.
I can imagine how difficult this is... wanting to not get those hallucination thoughts that keeps going throughout the day when sleeping with short naps... I respect your commitment to overcome this and make your life better everyday.. Thank you for being an inspiration to many individual who need help.. Maikel, you have been a good support for Belle and appreciate it. Good bless you both..
She's a real life Disney princess.
Hm
maybe thats why she sleeps all the time
How comes she drives / rides a bike I would have thought that was dangerous
Probably cause sometimes she has to, also since riding a bike keeps you more active she would probably fall asleep if she took a bus or a train and always make her miss her stop or be harrassed. She might also have ways of dealing with it like taking a nap before she drives home and maybe something to keep her awake while driving.
Onida Aitsubasa I totally get what your saying but this illness can make fall asleep without her knowing. I hope your right and she doesn't kill someone or herself on the roads thank you for answering
I have narcolepsy, it's not really like you think. Boring everyday activities can make you fall asleep, such as taking notes in class or just sitting idle in general... Driving is different and I can with ease and have never had a scare about falling asleep. Just thought id let you know :D
I used to not drive because of seizures. Now that I can drive, I take epilepsy medication which will make me fall asleep while driving and freak out. I’ve had to miss classes before, because I’d have to park somewhere in case I fell asleep. This is crazy having her drive.
Exercise keeps her awake, she even says she takes a nap before she drives
The last sentence she said was the most profound. " I have narcolepsy but narcolepsy doesnt have me" Think im going to start living by this when my autoimmune disorder is raging. I hope she has a long and happy life
Hope u too have a long and happy life, hope u're also doing well Kellie.. Also u have got a really beautiful name :-)
@@Mohit_Yadav168 Thankyou for the complement and the best wishes. Im doing fine at the moment. I hope you also have a long and happy life and stay safe in these difficult times
I have HFA but HFA doesn’t have me
Damn
i have a dream once, i was like doing everyday normal activity (in this case, it was me walking with my family or i was chasing something, idk why) but my eyes keep closing all the time, my eyes feels like they have a control on it's own, it made me crazy how much i want to open my eyes, the eye pain are so realistic.. it's like how you want to stay awake while doing homework in the middle of the night, can't imagine how it will feel everday for this girl
She has such an awesome boyfriend. He just accepts her the way she is and doesn’t make her feel bad for something she can’t control. My boyfriend is the same. I have a real issue with packrat behaviour and find it hard to throw things out. He looked at my place and goes, “This isn’t bad. I’ve worked at really bad places and this isn’t bad at all” He loves me for who I am, not stupid things like that.
That's so good that where she works are totally cool with her taking a nap. Like that's soooooo understanding and caring to allow a member of staff to do that and it not be an issue.
I would never find it an issue, she looks like she does her job great. People who hate on it are ignorant and ungrateful. It doesn't impact her performance in any way
Yes that’s what fills me with joy as well, it must feel so good for her that after all these horrible experiences with people reacting to her disability like her teachers or friends, she finally found people saying “it’s okay, do what you need and don’t worry about it”. Love that!
I mean she isn't taking two hour naps. 15-20 minutes should never be a problem. People play on Facebook for longer than that. I own my own business and would have zero problem with it. She looks like a responsible worker.
@Erra Titan I agree not in the US. Health is not the top priority, so replaced she will be.
Erra Titan Exactly and I’m sorry but she wouldn’t be sleeping if she worked with me bc I’m not doing all the work. 😭
so, coffee doesn't work
btw this girl is beautiful
Coffee may not but adderall or another stimulent will. They said she takes 2 kind of medications and I can promise you thats one of them.
@@Duffyyy94 I agree, phenylpiracetam for my case reduced my sleep tome by 4 hours
Ashley Allen nope what
coffee does jack for me and my narcolepsy is half as bad as hers
Equinox EDM you know that « belle » in french is beautiful
That is the sweetest thing I've seen in a while ...
She sleeps so peacefully on his shoulder..
So sweet to see that. That's love ❤️
Ami White 😂😂😂😂
My aunt had this and I grew up learning. It is nearly impossible often to avoid it - and it takes understanding to love the soul and heart - and be there in real time to protect and love.
At least long flights are a snooze for her
Khalid UFCinator
Trust me...being able to sleep is a blessing 😁😁😁
So is everything else tho
@@janematthew7109 not when it’s excessive and disrupts your life. This is not a blessing whatsoever.
They need to start there own RUclips Channel I would definitely watch!! The cutest couple that works together and there both good looking!!
They’d be too sleepy and there won’t be bothered enough to make videos
I would subscribe
That gym is so sweet I love that they let her do that
Let me guess you Believe in white privilege
Dog King ok explain white privilege to me?
Dog King I never said racism doesn’t exist but to say white people have more privileges because we’re white is a load of shit this isn’t the 60s it’s 2018 and black people have the same privileges of whites it’s just some are born in to terrible neighbourhoods like White people are too. But then there’s plenty of black people who are rich like Will Smith and Denzel Washington, we are all born with are own challenges some more then others but if you want to make the most at of life you need to stop blaming other people and except what you have and don’t have and make a effort to get want you want, your not going to get far if you play a victim.
Samuel 155 didn’t white people transport slaves from africa smh yall wouldn’t have money if those slaves weren’t working for your anscestors also some of the black people probably been living in the country longer than you , you don’t necessarily know what ethnic background you come from just from your parents grand parents ect
They were sold to white people in the 1st place dingus sold out by your own leader for a quick buck
I love that she could find a job that also helped her to fight her disease a bit. It’s still a bit heart aching to see she has such a good physique, because it feels like she has been working out for so long to try to stay awake. You can see she’s battling this.
She's so beautiful. I'm sure he doesn't mind watching her rest. 💕
Bela Homes I don’t mind watching her sleep ( ͡° ͜ʖ ͡°)
Ikr she is real life Disney princess!
and smelling her hair, sounds wierd but its a sign of closeness.
Bela Homes I wouldn’t mind watching u sleep Bela so how about that?
Carolyn * what's wrong with being lesbian?
So its the opposite of insomnia
Mr. Macedon essentially yah pretty much
Pretty much
Both do not sound fun!!
I went from insomnia and then got diagnosed with narcolepsy
Aliyah Amir I hope you can still live a happy life though.
Is nobody gonna talk bout how beutiful she is inside and out
Guts are beautiful
Billie eye lash it’s beautiful btw. But ya she is sooo beautiful
@@goblin5202 yh how could anyone miss her beauty
Is nobody going to say anything about this person's name 😂😂
"Beutiful" 💀
Honestly she’s luckily with all the support she has and the ability to cope.
Her ; can't stop falling asleep
Other guy whom i saw on internet: if he sleeps, he dies
I just saw the two videos.
Saw that too
I saw that too. This world 🤦
I literally just watched that video before this 😂
I also saw that video
It’s just nice to know that she’s not alone.
because she's hot
@@martinverbeek8862 yeah at least she won on that lottery
The Sleeping Beauty
thats what i was thinking about the whole video haha
And she’s a beauty that’s for sure
But i think her name is belle?
Luther Child PURE'Z BLUD love that
@@karissamcdonald4114 it was the first thought in my mind lol
It's great to have a support system when having an illness. Makes you feel more loved and gives you strength.
Meanwhile, I can't fall asleep.
Okay but seriously, this sounds horrific.
Snaily same
Same.
Same
Right there with ya. Plus I have jet lag so all that with insomnia is not fun
I have narcolepsy without cataplexy, very similar to hers, however, she's lucky that naps make her feel awake temporarily again. For me, if I lay down for a nap, I'll easily sleep a few hours. Unmedicated, I can sleep up to 17-20 hours of a day, waking up periodically, say 5-8 times, but can only stay awake anywhere from 10 mins to maybe an hour. Basically when I sleep, my 'battery' doesn't recharge so the quality of my sleep is always poor no matter how much I sleep. I've tried everything, change in diet, etc. Minor improvements at most. I knew something was wrong when I was younger and someone said, "I got such a good night's sleep last night, I feel so refreshed and woke up ready to go and alive!" And I remember thinking, "That's possible? I wonder what that's like. I've never felt that."
Tarin Elise I have the same as you! Any extreme work I might do one day on my Narcoleptic mess I will crash bad for 2-4 days after. I never have good sleep and when I do sleep it's 10-15 hrs or a whole 24 hr dayI with bathroom breaks , I loose days sometimes, ill get up to eat and then go back to bed. The hardest is not being able to spend time with my family. My husband and son are so good at helping me, but it is still very hard on them. I really do feel your pain!
@@chelseym.6560
1) How did you manage to even breastfeed your son and take care of him when he was a baby and later a toddler? I'm assuming other female family members distributed those tasks among themselves.
2) Did you have this when your husband married you? Or did it emerge later?
3) Also, how do you keep blood clots, skin infections, muscle atrophy and bone density loss at bay, if you are not subjecting your body to work against gravity and motion and moderate wear and tear, just like nature intended?
4) What about obesity, blood-sugar metabolism related issues and other complications arising from this?
*"The hardest is not being able to spend time with my family. My husband and son are so good at helping me, but it is still very hard on them."*
Your own life is very hard, but thank you for recognizing that their lives are hard too - patients often times are sadly unable to see that caretakers' lives involve sacrifice for them.
My advice would be to use a major portion of your awake time eating, exercising, emptying bowels, bathing, skin care etc. with some conversations and hugs with husband and son, and asking your husband to give you deep tissue massages maybe 2-3 times a week to make some use your asleep time and to tell your husband and son that in order to compensate for reduced awake interaction with you, they can cuddle you every 2-3 days during your asleep time.
Hey lady I know what you mean. I wanted to scream at people who stayed awake all nite then got up and went to work. Fully energized. Diagnosed at 17 . Been showing signs since 2nd or 3rd grade.
Ok wow now I am scared that I might get narcolepsy too because I also never had a "good sleep". Im basically tired all day, but cant sleep :/
asdf asdf Honey it’s not that you mite get it more than likely you could have it but not diagnosed. Just an example. Or just by some twist of fate something happens in a persons life and it comes on that way. As a kid growing up I lived in a very abusive house. I would make myself go to sleep as a way of staying safe and not being accused of any mayhem. Cause the consequences meant a beating. After doing that for so long now my body responds to stress by physically and mentally become drained and I have to take a nap. Just being around my bipolar sister and hearing her endlessly talking about the past puts me in that state and I have to go down. Honey that’s just my road not act like a doctor or anything
He is really something amazing. So supportive and understanding
Yeah well she is hot
Yea he is very very very VERY understand
agreed, but she must be something amazing too :) gives him a lot of reasons to be supportive, they both seem like such kind spirited and happy people !
Such a beautiful girl and a beautiful relation she has with her boyfriend. I am so proud of the fact that she didn’t give up instead found something that makes her feel better and turned it into her profession. So much love, power and respect your way ❤️
That man is the definition of love and safety
the way he looks at her 😩❤️
Her boyfriend is GORGEOUS
How???
agreed
Sarahr98998 that’s what I was thinking !
He literally looks like a model wowww
Bruh.
Narcolepsy is such a terrible disorder. Hope you have happiness in your life Belle.
1:39 Her dog is paid Actor.... He too fall asleep😂😂😂
Ok how you have 534 likes but no reply’s?????
Beau's Gaming TV
Bcoz I too fell asleep since 1 month.... So no replies....
@@vikascool411 fell*
Xenon [GD] thanks for correcting me xenon ☺
Pc Battler
Its Reply hungry 😂
Sad that she was bullied because of a disability :(
Many people are its the sad reality of life
Jake S Mario5537 I’m disabled I get bullied all the time even tho you can’t tell I’m disabled because I have a hidden disabled it doesn’t mean people can make fun of me for the way I am like if I do something what they wouldn’t they laugh at me and make a joke out of it that’s why I hate school because I’m always getting made fun of for something I can’t control or help xx
Jake S Mario5537 Snapchat @mitchballeryeet
It's KassidyCupcake
I can relate, i have autism 🙂
Jake S Mario5537 I have Asperger which is high functioning autism I also have dyscalucia,dyspraxia and anxiety
I really like the way her bf understands her and take cares of her..the rare people in today's world ❤❤
Yeah coz is beautiful. If she was ugly no one would not had bat an eye. Lol.
@@boss_niko you are so right!
The cushions are meditation cushions, you sit on them to straighten your posture. The blankets are for the final relaxation, or could be used during yoga nidra: Something you'd probably enjoy, since yoga nidra also works when you fall asleep halfway through. Nidra means sleeping with a hint of awareness, and it is designed to make the information processing in the brain during deep sleep more efficient. It is also one of the easiest, if not laziest, ways to get into samadhi (enlightenment) if you have a good teacher.
*plot twist, it's a red bull commercial*
Oh my god, that's soooo wrong 😂😂😂
even bigger plot twist, Michael is spelled Maikel
Haha
Red Bull gives you wiiiiings
I love you lol
isnt it like super risky to drive with narcolepsy?
Kronom she is just acting..
You can’t drive and she isn’t acting
Yeah oftentimes the right to drive is taken away. I couldn't drive after being diagnosed with epilepsy. Luckily I'm able to be medicated but I cant imagine theres a pill to fix narcolepsy :(
Moy Ross yes you can. I have narcolepsy and drive
I have narcolepsy and can drive! that was one of my fears when getting diagnosed but they don’t take your license!
I swear to God there are so many horrible teachers. In my last year of school I had an horrible ear inflammation that came out of nowhere and would not leave, even the slightest touch (or wind) made me cry in pain. I always sat next to a window and one teacher made me take of my hat and required me to keep the window next to me open for atleast 20 min. each lesson. I was not allowed to change seats either. Fuck people like that. Can't even imagene how Belle most have felt.
Katalin Anna I hate ear infections it’s painful and I can’t stand it. Mine went away but the pain is still there sometimes
@@sonilapapa they are the worst, once you got them a few times your ears are never the same.
Yeah my teacher use to switch on all the fans in my class during winters just because she was feeling hot😩😩One girl literally got so sick she had to leave early with her parents
How does it feel is it like when water gets in your ear and it start hurting? ??
Lol that's when you tell your mom and she rips the principal a new one. No way would my mother have tolerated that.
I know that this is a sad story but I can't help to smile when he is talking about her or when she rests on his shoulder and he just protects her. So sweet
Dammit, I have narcolepsy and people truly don’t understand:( first it’s invisible, second it doesn’t kill you so who cares right?
It’s cruel, and my dreams have been dashed, medical school was gone, certain relationships get ruined and some people even think you’re wasted or on drugs.
God this is 100% accurate, I just can’t believe it...I wish more people understood it :(
kate carew same
"Invisible" (they're not invisible, people just don't look close enough) illnesses suck. I feel you there.
I have quite a few chronic "invisible" illnesses and they're deliberating. I have chronic migraines (4-5 a week) and have had them since I was 2 - that's my "main" problem, and people still think I'm overreacting despite mothers who have given painful births stating that migraines are much worse.
And narcolepsy sucks. It's gross when your eyes start closing by themselves and you want to be awake; you want to live. You fight it, but you'll always end up laying down and giving in. It feels gross, and what's worse, is that the sleep is a temporary relief... so the thing you really don't want to do is the only thing that will make you feel better. That lack of power and the pure sensation that you're sleep deprived is nasty.
I hope you magically get better. Even if it's not possible I do wish that for you ❤️
whoopsydaizy you too, reading what you wrote just made me cry, it’s that hopelessness. Sleep, the craving for it and it doesn’t work. So frustrating and life, yes, I’d like to join in a bit more than I can...and no cure. I’m grateful it’s not a deadly illness but I don’t see many silver linings with narcolepsy:(
kate carew did you try Modiofinil ( Modiodal). It help me so much. And living in a small village with less stress. Good luck to you.
dieba dicko my insurance hadn’t covered it yet. I’m currently not taking anything because I’m going to a specialty clinic day before thanksgiving and I’ve opted to go there as a blank slate.
She is drop dead gorgeous with an amazing personality.
Yeah my teachers hated me as well because i frequently slept during classes. But that was not because of narcolepsy. I was taking all kinds of meds for a respiratory problem for several years and i wasnt even aware that it had that effect. My classmates even thought i was just plain lazy. It was awful
Charmaigne Chin same!! I have epilepsy and both the seizures and medication make me drowsy. Some days were so bad that they just sent me home, they get tired of taking care of me and waking me up. 🙄
I think this just goes to show that no one should call anyone out at school if you don’t know the whole story. No one should call anyone lazy, slack or acting like the person their talking to boring.
@@racheltison6333 youve had it worse.. must have been very difficult catching up to the subjects/classes you missed.
@@Thegamesicarry yes this changes you as a person. You extend more empathy and you become more understanding of others.
Same here I think I had sleep apnea only recently diagnosed
THESE ARE THE BEST DOCUMENTARY VIDEOS IVE EVER SEEN IN MY LIFE, SO BEAUTIFUL AS A MOVIE.
I had a friend in High School with this disease. In his senior year one year behind me he drove home from his girlfriend's house late at night....she tried to get him not to drive home that night. He fell asleep on a highway at highway speed at hit a semi truck coming in the other lane head on clipping the drivers wheel of the semi off, with such force the semi rolled on its side and his car left pieces scattered for hundreds of feet. I happen to be working as a photographer for a local paper and heard the accident on the scanner I had and went to go get pics for the paper. I was allowed thru the police line and the only recognizable part of his car was a rear panel....he had a very unique car and I knew who's it was right away. When I got there they were covering him with a white sheet that turned red almost immediately. It was just surreal and I never really processed it till years later. He should not have been allowed to drive....ever....his girlfriend was destroyed that night too because she knew he shouldn't have tried driving home. Please do not drive....its not just your life you risk but others too.
Rip
Narcolepsy is a disorder not a disease
@@alexzandramanker3280 he didn't say that..?
I'm surprised they didn't take his driver's license when he was diagnosed. I'm not allowed to take a license
@ no idea....it was 30yrs ago tho.
You can hear that her boyfriend is from the Netherlands😂👌🏼
Sydney de Kolf yeah so true😂
Haha ja echtzo
Ja kweet
English op zijn Hollands😂😂
Zeker waar
It doesn't only just change your life...it steals your life away.
When you are asleep you age a bit slower so yeah not really
Yeah definition of almost every long illness
More power to you, girl. Glad you have people around you who actually gets you and loves you.
I'm convinced now that more you sleep better your skin becomes and you look more beautiful.
Surabhi Kumari staying away from the sun is also good for skin/wrinkles
DevrajWasHere thanks!
Turtle Who loves watermelon no problem, subscribe to me as a thanks?
@@DevrajWasHere good for skin, bad for your health
K- BRASIL yeah but most people probably get more sun than they think
This momment when you are watching this at night because you cant fall asleep
True
HAHAHAHA OHJEEZ 3:30am )))):
LOOL
same bruh
i fell asleep watching lmao
This guy is so lucky. Having a sleeping angel on his shoulder.
True, and I think he’s probably worked hard to make himself into the kind of man whom an angel would trust to fall asleep on. 😊
Man, mad respect for her Boyfriend too. He is so supportive and patient with her