The Un-Ending Struggle: I Can't Stop Sleeping | Living Differently
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- Опубликовано: 27 сен 2024
- Belle Hutt is 23, and suffers from severe narcolepsy. It’s a condition that causes her to fall asleep up to 15 times a day, as well as producing hallucinations. She now lives in Amsterdam with her boyfriend Maikel, and works as a personal trainer. Here, Belle talks about the origins of her narcolepsy, how other people have reacted to her condition, and how she’s adapted her life to accommodate it.
I Can’t Stop Falling Asleep
Producer: Danny Baggott, Ruby Coote
Editor: Marcus Cooper
Director: Marcus Cooper
Series Producer: Charley Sutton
Executive Producer: Alex Morris
Head of Production: Adam Mudditt
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She looks so relieved and relaxed when she’s sleeping on her boyfriend’s shoulder and it was just so sweet
Q Q that is what a real relationship looks like
@@QQ-og3ui your attitude looks boring as hell. Guess we can't have everything 🤷
He can cheat her freely while she's sleeping
@@christinemanuelsson9580 ur right!!
@@gs-nq6mw people can cheat on you even if you are not sleeping
I can’t believe a teacher threw a pen at her.. The disrespect...
That's pretty much sums up my relationship with my teacher in my school days.
maybe he teacher doesn't know she have narcolepsy
Hey in India, they throw books, chalks or anything, I mean *Anything*
Harish Kumar Also in Pakistan
Somewhere inthe Philippines you can't avoid the things being thrown to you because the teacher can predict your move and he is good at aiming....
Her boyfriend is such a keeper. Those other guys were just jerks, he's a real man. He's attractive and caring and considerate. She deserves it ♥️
@Cumberpatch Fingerbottom you good my guy?
Then when this girl will find more attractive and richer boy she will dump him. gold diggers chicks
Noman Sajid I am not saying this happen to you but it sound like it did but, the reason why some women did that to you because you choose them, that is who you attracted to. Now, if you choose the opposite, you might find the right woman, but you don’t want to. So you going to keep being in the same situation. Widen out, and you will get results.
@@honeyofoats5619 I am not the God to know who will not do this in future. Can you judge a book by cover.? And not everyone has a heart to get it broken by every new person once a year. Yes if you be with them for lust then that way we can be even.
Fulfill your lust they take your money.
Zoha Samdani well to a certain extent my friend
Did anyone else almost start crying seeing how much her boyfriend loves her? That is so beautiful.
I did
I did too, he cares beyond measure for her ❤️
@@agentbagreviews no more then most
No
Yeah the jealousy within is like a raging forest fire
*She is dying to be awake and some are dying to have a proper sleep 😴* .
Deepak Kumar her case isn’t “proper sleep”
Makes sense
While others dying to die
@@netro4680 who hurt you?
Well mate, if you stay up for almost 40hrs and are expected to function like a normal human being, you know, not falling asleep, paying attention and what not, I guess you cant help but die or kill for a proper nights rest. I remember one time i stayed awake for almost 70hrs. I drank so much coffee, so much Monster and ate like 25 cafeine pills a day just to not fall asleep. I needed to because i had a shitton of work to do that i fell behind, my finals were coming closer and I had an interview for an entry position.
The two most tortorous things are listenin to the most boring math lecture you can imagine and driving. Honestly, never been so scared to get in me car in me whole life, because sometimes you wouldnt fall asleep driving, just "waking up". You dont quite recognize your surroundings and stuff, like youve just been put into that situation where youre going 60mph down the road.
That said, I would die for a proper nights rest but I am also willing to die. its a win-win situation.
Awww he is an adorable boyfriend.
Yeah
@@xenaprincess44 yeah *HEE*
@@Zhunter5000 ohhh I thought they said "He has an adorable boyfriend" XD
but you are a slag still
She*
Her boyfriend is so sweet!!
And handsome too😂😂😂
@@aditeerao9455 yes 😍😍
Aishwarya Biswas Snapchat @mitchballeryeet
He really is!
Yeah :)
She will probably cheat to him with Chad
She’s so pretty-.. And I don’t mean this in a bad way whatsoever, but she’s like the real life sleeping beauty.
Omg i thought the same thing.. and her boyfriend looks like a handsome prince
@Ttv Relax aww dont feel insecure .. i think youre beautiful too
Indeed.
That's so true
Frank Lampard lmao
Your boyfriend is so lovely and you are such a beautiful couple.
She's so lucky...
So youve obviously have never been close to a vagina
Daddy Skechers lmao what
Daddy Skechers neither have you (; I can tell you’re a virgin by your pfp
her name is belle (beauty in french) and she can't stop falling asleep. wow the REAL sleeping beauty. SHE IS A PRINCESS!!!!
Alwin Kamil when she was falling asleep on his shoulder she looked just like a princess!
in french sleeping beauty is 'la Belle au bois dormant' ( the beautiful of the sleeping woods)
shoulda named her Aurora/Briar Rose
Beau is the masculine beautiful while, belle is the feminine
no one cares
I think the hallucinations would be the worst.
You ment best
I suffer from a hallucinating illness and after two years ive gotten used to it, i dont like but in a way it has gotten comforting.
they are, they're very vivid and scary
that would be awesone
RoseJedi they are. Every time I think this is gonna be the time they touch me and I’ll know it’s real.
I have this disorder. People thought i was over opiate medicated. She is blessed to have him. I have no social life because of my illnesses. I rarely get invited out......
Awe I’m so sorry! I have Narcolepsy as well & I can relate. We can be friends 😭
@Claude Salvatore plz do
Hey I'd like to be your friend....😚❤️
@@madilovezyooh me too!!
Welcome to the club. I used to go to raves with my girls, and I could go out and have fun, now i have no social life either. My boyfriend is an introvert but we enjoy our small circle of friends. Wish I could still have a social life tho. Freaking sucks.
wow what the heck why were her teachers & classmates so MEAN? smh, but I'm so happy to see she's rising above all that negativity
I didn't have this problem but one time I Feel asleep in class because my parents argued the entire night before and my teacher threw a whiteboard eraser at me.
Malikah Allaham wtf did you tell the teacher why you fell asleep?
@@hamsternuggetz
Yeah. I just got a speech about not letting home problems come between my school life. Lol but not an apology for a bruise on my forehead
Daamn, kind of hard to not bring home problems to school also when your parents are the main existing things in your life
Now I want a anwser... What does smh mean??!
no wonder she’s so pretty, she always gets her beauty sleep 😴
n1ghtsk1 MOoD x
she’s the real sleeping beauty
Shut yo
Lol
Actually, narcoleptics cant/have very little deep sleep. They experience Rapid Eye Movement sleep which isnt restorative, hence the hallucinations (REM intrusion) and dreams
*the perfect couple doesn't exi-*
*-st*
Oh ok nvm
Sandwish carry on
YOU NEED SOME *COFFEEE*
It's only perfect if you allow it to be perfect and get on that person's page. Don't be one-sided, be open-minded. They are a perfect couple whether your opinion differs or not. It is what it is.
exit as soon as one has a disability
Her boyfriend is the type of guy a parent would thank God for, he truly care for her
She coping with that with such an positive attitude - how am I still struggling to get my life together??
I've just asked myself the same question
We are all different. Don’t beat urself up
@@lovingbundleofhate :)
FuchsEll foxx no joke! We’ll get there tho!
Ok, but her boyfriend is probably very rich. That apartment in Amsterdam must cost at least 2000 euros a month.
WOW THAT GUY IS A LEGEND IM SO HAPPY FOR THEM.
Him*
HAMO you idiot
HAMO baka HAMO
1000th like :D
1.1k uwu
Imagine being in an argument with her and then she just falls asleep
Gr0aZyPlayz she be like
“Well remember that last time you.... said.....”
Then just passed out
(Bless her heart though I hope she fights through this I love her story and hope she stays strong)
Lol!!
It can actually be triggered by strong emotion so its possible lol
Funny
@@Chamojcs so so true your so funny
Her boyfriend seems like such a great guy, he deals with her disorder so well
cause he isnt an english man thats why :D
@@sirbonobo3907 bruh whAt
Because she is a hotty thats why
It's crazy how much we take things for granted, even things as tiny and minuscule like sleeping.
True. I'm counting my blessings these days.
yes Lucifer
Sleeping is anything but tiny and miniscule.... What
eilrahc700
Tiny and minuscule at the fact that we do it literally ALL the time, usually when we want to, whereas this girl can’t control it at all.
Amen
What a lovely boyfriend, he's bloody gorgeous too!
I would love a girl that would just sleep on my shoulder, like that would be a good life
Yeah
No homo
They both are. Beautiful couple.
nobody gonna talk about how beautiful she is?
Tf man litterally the whole chat is talking about it
xXx_KeVoRk_xXx not rly but ok
@@ava-jq4uq go check
xXx_KeVoRk_xXx there’s like one other comment?? Lmao
@@ava-jq4uq bro are your eyes in your ass?? I see more than 10
I'm so happy she found someone that cares about her enough to go through this with her
He gets to cuddle everyday 😂🤗
😂
@Hunt Tatum 😂
HAMSTER HWH Yeah what a man
Lame, I don't call that cuddling... Cuddling for me is more like constant kissing body licking mutual masturbation stuff.
Not funny
RUclips is a wonderful place at 3am
TraGiiCz I’m here at 3 am as well lol
Yea 1am - 4 am is the best time to be on youtube
metro _ ikr!!
Sarah Nostow same here
omg 😮 been here since 3am couldn’t sleep so RUclips it is
this is the most physically attractive couple i think i’ve ever seen
Delaney Tarr u havent seen many couples i guedd
^ lol true. must have low standards then
bri h Or maybe just different beauty standards smh
SHE NEEDS MORE *COFFEE!*
I agree here they’re both absolutely stunning together
She’s hands down one of the most beautiful women I’ve ever seen.. absolutely drop dead gorgeous
Aw her boyfriend is actually a legend
She Looks super Good "Happy Beautiful blond Girl."
Jabroney you’re just an awful human being.
@Jabroney discusting creep
Plus he is so handsome!
No, he isn't. You can already see the quiet regret/resentment in his eyes. He loves her, that's clear, but being someone's carer is no easy task, and is often thankless. If they stay together, these tiny regrets he laughs off will become serious. Personal experience in that field!
couple goals right here boys.
I don't think so
@@siemniak I think that we all would think so to thinking.
Sooo many advantages taken
Chief said this is it
Ronald Mata if you do that then your a massive d*ckhead.if your joking then I’m sorry.if your not the I mean it.
i hope that they stay together for a long time, maikel really is a sweetheart
Literally relationship goals
As a person with Narcolepsy I can't make myself to watch this video. The emotions come rushing in and I can feel the pain she goes through. I really hope you are doing well.
From the deepest of my heart I wish you the best Belle. I'm cheering for you.
I hope u're doing well too :-)
I think you will live a long life because of it
She is a real life princess....sleeping beauty.....she make the beauty part better tho.
lizz cross all she needs is more *COFFEE*
Ur profile picture scares me 😂
And her name is Belle (beauty and the beast)
@@ultrasubscriber2689 oh
@@ultrasubscriber2689 no worries. Have a blessed day.
She's a real life Disney princess.
Hm
maybe thats why she sleeps all the time
I’m sure I have this condition but I only experience the symptoms in math class...
Edit: everyone for the record I did not make fun of the condition nor am I being insensitive. It just came to my mind, commented it and didn’t think much of it so if u find it offensive my bad it was never my intention, so can we please drop it?
Tell me why same!!!
Tell me why ain’t nothing but a mistakeee (sorry I had to)
So true! XD
Jessie_ Lolz123 tell me why i never wanna hear you say...
haha true
I think we've all had moments when we did not get a good night's sleep and we are literally falling asleep everywhere... it feels horrible. I can't imagine feeling like that every single day.
Meanwhile, I can't fall asleep.
Okay but seriously, this sounds horrific.
Snaily same
Same.
Same
Right there with ya. Plus I have jet lag so all that with insomnia is not fun
First i saw i video about a kid that will die if he sleeps now this
Me too
If I see 1 more profile with this picture I'm shooting up a school on god
@@killdalamb3357 Hey..
Oh ye ye
@@killdalamb3357 Hey ;)
so, coffee doesn't work
btw this girl is beautiful
Coffee may not but adderall or another stimulent will. They said she takes 2 kind of medications and I can promise you thats one of them.
@@Duffyyy94 I agree, phenylpiracetam for my case reduced my sleep tome by 4 hours
Ashley Allen nope what
coffee does jack for me and my narcolepsy is half as bad as hers
Equinox EDM you know that « belle » in french is beautiful
I love how she doesn't let this control her whole life. I was just diagnosed with narcolepsy and it's really difficult to keep going on with the day. Belle is such an inspiration.
Such a sweet girl and such an amazing boyfriend. They look so happy together.
They might have made it to three years but you could hear the strain in the guy's voice.. "...we used to watch DVD's.. we used to watch TV.. don't do any of those now...", I hope he sticks around but his dedication to the cause seemed to be wavering.
Michael Scott your comment made me yawn
@Alexander A legal grey area I imagine.
so true
*plot twist, it's a red bull commercial*
Oh my god, that's soooo wrong 😂😂😂
even bigger plot twist, Michael is spelled Maikel
Haha
Red Bull gives you wiiiiings
I love you lol
Girl: _I can't stop sleeping_
Me: *I can't stop using my phone so I don't have proper sleep.*
Relatable 💀
Trueeee it’s 12:26 am right now 😂 and I’m on my phone
Petestar777 I sleep at like 1:31am XD
same
It’s 2:11 am here ain’t sleeping
She has such an awesome boyfriend. He just accepts her the way she is and doesn’t make her feel bad for something she can’t control. My boyfriend is the same. I have a real issue with packrat behaviour and find it hard to throw things out. He looked at my place and goes, “This isn’t bad. I’ve worked at really bad places and this isn’t bad at all” He loves me for who I am, not stupid things like that.
holy shit she is HOT, bloody nice BF as well, perfect couple... I feel a little sad for her but I'm sure she doesn't want people feeling sorry for her... hope they live an awesome life..
Drew John Look at their dope appartment. Don't feel bad. Her life is good.
Drew John she and his bf is soooo cute
Daniel Fl. Having a nice apartment doesn't mean your life is good, this exhausted, eyes-closing-on-their-own feeling is horrendous and gross. The only relief is sleep, even if you don't want to.
She's not hot imo
its ok, we cant all be straight....
At least long flights are a snooze for her
Khalid UFCinator
Trust me...being able to sleep is a blessing 😁😁😁
So is everything else tho
@@janematthew7109 not when it’s excessive and disrupts your life. This is not a blessing whatsoever.
I love that she could find a job that also helped her to fight her disease a bit. It’s still a bit heart aching to see she has such a good physique, because it feels like she has been working out for so long to try to stay awake. You can see she’s battling this.
The Sleeping Beauty
thats what i was thinking about the whole video haha
And she’s a beauty that’s for sure
But i think her name is belle?
Luther Child PURE'Z BLUD love that
@@karissamcdonald4114 it was the first thought in my mind lol
Honestly she’s luckily with all the support she has and the ability to cope.
That gym is so sweet I love that they let her do that
Let me guess you Believe in white privilege
Dog King ok explain white privilege to me?
Dog King I never said racism doesn’t exist but to say white people have more privileges because we’re white is a load of shit this isn’t the 60s it’s 2018 and black people have the same privileges of whites it’s just some are born in to terrible neighbourhoods like White people are too. But then there’s plenty of black people who are rich like Will Smith and Denzel Washington, we are all born with are own challenges some more then others but if you want to make the most at of life you need to stop blaming other people and except what you have and don’t have and make a effort to get want you want, your not going to get far if you play a victim.
Samuel 155 didn’t white people transport slaves from africa smh yall wouldn’t have money if those slaves weren’t working for your anscestors also some of the black people probably been living in the country longer than you , you don’t necessarily know what ethnic background you come from just from your parents grand parents ect
They were sold to white people in the 1st place dingus sold out by your own leader for a quick buck
Her boyfriend is GORGEOUS
How???
agreed
Sarahr98998 that’s what I was thinking !
He literally looks like a model wowww
Bruh.
That's so good that where she works are totally cool with her taking a nap. Like that's soooooo understanding and caring to allow a member of staff to do that and it not be an issue.
I would never find it an issue, she looks like she does her job great. People who hate on it are ignorant and ungrateful. It doesn't impact her performance in any way
Yes that’s what fills me with joy as well, it must feel so good for her that after all these horrible experiences with people reacting to her disability like her teachers or friends, she finally found people saying “it’s okay, do what you need and don’t worry about it”. Love that!
I mean she isn't taking two hour naps. 15-20 minutes should never be a problem. People play on Facebook for longer than that. I own my own business and would have zero problem with it. She looks like a responsible worker.
@Erra Titan I agree not in the US. Health is not the top priority, so replaced she will be.
Erra Titan Exactly and I’m sorry but she wouldn’t be sleeping if she worked with me bc I’m not doing all the work. 😭
My aunt had this and I grew up learning. It is nearly impossible often to avoid it - and it takes understanding to love the soul and heart - and be there in real time to protect and love.
How comes she drives / rides a bike I would have thought that was dangerous
Probably cause sometimes she has to, also since riding a bike keeps you more active she would probably fall asleep if she took a bus or a train and always make her miss her stop or be harrassed. She might also have ways of dealing with it like taking a nap before she drives home and maybe something to keep her awake while driving.
Onida Aitsubasa I totally get what your saying but this illness can make fall asleep without her knowing. I hope your right and she doesn't kill someone or herself on the roads thank you for answering
I have narcolepsy, it's not really like you think. Boring everyday activities can make you fall asleep, such as taking notes in class or just sitting idle in general... Driving is different and I can with ease and have never had a scare about falling asleep. Just thought id let you know :D
I used to not drive because of seizures. Now that I can drive, I take epilepsy medication which will make me fall asleep while driving and freak out. I’ve had to miss classes before, because I’d have to park somewhere in case I fell asleep. This is crazy having her drive.
Exercise keeps her awake, she even says she takes a nap before she drives
She's so beautiful. I'm sure he doesn't mind watching her rest. 💕
Bela Homes I don’t mind watching her sleep ( ͡° ͜ʖ ͡°)
Ikr she is real life Disney princess!
and smelling her hair, sounds wierd but its a sign of closeness.
Bela Homes I wouldn’t mind watching u sleep Bela so how about that?
Carolyn * what's wrong with being lesbian?
It’s just nice to know that she’s not alone.
because she's hot
@@martinverbeek8862 yeah at least she won on that lottery
I can imagine how difficult this is... wanting to not get those hallucination thoughts that keeps going throughout the day when sleeping with short naps... I respect your commitment to overcome this and make your life better everyday.. Thank you for being an inspiration to many individual who need help.. Maikel, you have been a good support for Belle and appreciate it. Good bless you both..
He is really something amazing. So supportive and understanding
Yeah well she is hot
Yea he is very very very VERY understand
agreed, but she must be something amazing too :) gives him a lot of reasons to be supportive, they both seem like such kind spirited and happy people !
They need to start there own RUclips Channel I would definitely watch!! The cutest couple that works together and there both good looking!!
They’d be too sleepy and there won’t be bothered enough to make videos
I would subscribe
This guy is so lucky. Having a sleeping angel on his shoulder.
True, and I think he’s probably worked hard to make himself into the kind of man whom an angel would trust to fall asleep on. 😊
Dammit, I have narcolepsy and people truly don’t understand:( first it’s invisible, second it doesn’t kill you so who cares right?
It’s cruel, and my dreams have been dashed, medical school was gone, certain relationships get ruined and some people even think you’re wasted or on drugs.
God this is 100% accurate, I just can’t believe it...I wish more people understood it :(
kate carew same
"Invisible" (they're not invisible, people just don't look close enough) illnesses suck. I feel you there.
I have quite a few chronic "invisible" illnesses and they're deliberating. I have chronic migraines (4-5 a week) and have had them since I was 2 - that's my "main" problem, and people still think I'm overreacting despite mothers who have given painful births stating that migraines are much worse.
And narcolepsy sucks. It's gross when your eyes start closing by themselves and you want to be awake; you want to live. You fight it, but you'll always end up laying down and giving in. It feels gross, and what's worse, is that the sleep is a temporary relief... so the thing you really don't want to do is the only thing that will make you feel better. That lack of power and the pure sensation that you're sleep deprived is nasty.
I hope you magically get better. Even if it's not possible I do wish that for you ❤️
whoopsydaizy you too, reading what you wrote just made me cry, it’s that hopelessness. Sleep, the craving for it and it doesn’t work. So frustrating and life, yes, I’d like to join in a bit more than I can...and no cure. I’m grateful it’s not a deadly illness but I don’t see many silver linings with narcolepsy:(
kate carew did you try Modiofinil ( Modiodal). It help me so much. And living in a small village with less stress. Good luck to you.
dieba dicko my insurance hadn’t covered it yet. I’m currently not taking anything because I’m going to a specialty clinic day before thanksgiving and I’ve opted to go there as a blank slate.
isnt it like super risky to drive with narcolepsy?
Kronom she is just acting..
You can’t drive and she isn’t acting
Yeah oftentimes the right to drive is taken away. I couldn't drive after being diagnosed with epilepsy. Luckily I'm able to be medicated but I cant imagine theres a pill to fix narcolepsy :(
Moy Ross yes you can. I have narcolepsy and drive
I have narcolepsy and can drive! that was one of my fears when getting diagnosed but they don’t take your license!
You can hear that her boyfriend is from the Netherlands😂👌🏼
Sydney de Kolf yeah so true😂
Haha ja echtzo
Ja kweet
English op zijn Hollands😂😂
Zeker waar
she is basically real life sleeping Beauty
Yeah , she’s just drop dead gorgeous !
1:39 Her dog is paid Actor.... He too fall asleep😂😂😂
Ok how you have 534 likes but no reply’s?????
Beau's Gaming TV
Bcoz I too fell asleep since 1 month.... So no replies....
@@vikascool411 fell*
Xenon [GD] thanks for correcting me xenon ☺
Pc Battler
Its Reply hungry 😂
I have narcolepsy without cataplexy, very similar to hers, however, she's lucky that naps make her feel awake temporarily again. For me, if I lay down for a nap, I'll easily sleep a few hours. Unmedicated, I can sleep up to 17-20 hours of a day, waking up periodically, say 5-8 times, but can only stay awake anywhere from 10 mins to maybe an hour. Basically when I sleep, my 'battery' doesn't recharge so the quality of my sleep is always poor no matter how much I sleep. I've tried everything, change in diet, etc. Minor improvements at most. I knew something was wrong when I was younger and someone said, "I got such a good night's sleep last night, I feel so refreshed and woke up ready to go and alive!" And I remember thinking, "That's possible? I wonder what that's like. I've never felt that."
Tarin Elise I have the same as you! Any extreme work I might do one day on my Narcoleptic mess I will crash bad for 2-4 days after. I never have good sleep and when I do sleep it's 10-15 hrs or a whole 24 hr dayI with bathroom breaks , I loose days sometimes, ill get up to eat and then go back to bed. The hardest is not being able to spend time with my family. My husband and son are so good at helping me, but it is still very hard on them. I really do feel your pain!
@@chelseym.6560
1) How did you manage to even breastfeed your son and take care of him when he was a baby and later a toddler? I'm assuming other female family members distributed those tasks among themselves.
2) Did you have this when your husband married you? Or did it emerge later?
3) Also, how do you keep blood clots, skin infections, muscle atrophy and bone density loss at bay, if you are not subjecting your body to work against gravity and motion and moderate wear and tear, just like nature intended?
4) What about obesity, blood-sugar metabolism related issues and other complications arising from this?
*"The hardest is not being able to spend time with my family. My husband and son are so good at helping me, but it is still very hard on them."*
Your own life is very hard, but thank you for recognizing that their lives are hard too - patients often times are sadly unable to see that caretakers' lives involve sacrifice for them.
My advice would be to use a major portion of your awake time eating, exercising, emptying bowels, bathing, skin care etc. with some conversations and hugs with husband and son, and asking your husband to give you deep tissue massages maybe 2-3 times a week to make some use your asleep time and to tell your husband and son that in order to compensate for reduced awake interaction with you, they can cuddle you every 2-3 days during your asleep time.
Hey lady I know what you mean. I wanted to scream at people who stayed awake all nite then got up and went to work. Fully energized. Diagnosed at 17 . Been showing signs since 2nd or 3rd grade.
Ok wow now I am scared that I might get narcolepsy too because I also never had a "good sleep". Im basically tired all day, but cant sleep :/
asdf asdf Honey it’s not that you mite get it more than likely you could have it but not diagnosed. Just an example. Or just by some twist of fate something happens in a persons life and it comes on that way. As a kid growing up I lived in a very abusive house. I would make myself go to sleep as a way of staying safe and not being accused of any mayhem. Cause the consequences meant a beating. After doing that for so long now my body responds to stress by physically and mentally become drained and I have to take a nap. Just being around my bipolar sister and hearing her endlessly talking about the past puts me in that state and I have to go down. Honey that’s just my road not act like a doctor or anything
I swear to God there are so many horrible teachers. In my last year of school I had an horrible ear inflammation that came out of nowhere and would not leave, even the slightest touch (or wind) made me cry in pain. I always sat next to a window and one teacher made me take of my hat and required me to keep the window next to me open for atleast 20 min. each lesson. I was not allowed to change seats either. Fuck people like that. Can't even imagene how Belle most have felt.
Katalin Anna I hate ear infections it’s painful and I can’t stand it. Mine went away but the pain is still there sometimes
@@sonilapapa they are the worst, once you got them a few times your ears are never the same.
Yeah my teacher use to switch on all the fans in my class during winters just because she was feeling hot😩😩One girl literally got so sick she had to leave early with her parents
How does it feel is it like when water gets in your ear and it start hurting? ??
Lol that's when you tell your mom and she rips the principal a new one. No way would my mother have tolerated that.
Her talking about falling asleep in class and kids taking pics and making fun of her made me so grateful that I graduated before camera phones were a thing. I used to fall asleep in class all the time and kids were pretty mean about it. I now realize I had and still have sleep apnea, and that was very likely the cause, but no one wanted to look into that. They just assumed I was lazy or stayed up too late all the time.
It's such a double-edged sword, hey?
I thank you for sharing this line of thinking.
My response became a lot longer than I expected, so you're welcome to skip... but I'm glad to have written it and perhaps it will resonate with someone else. ✌️🍍
I've got a severe learning/developmental disability and chemical mood disorder that weren't diagnosed until my late teens; treatment didn't fully stabilize them for a long time after that.
Kids were merciless, toying with my social ineptitude. Teachers just thought I was dawdling or being lazy and held me to the same standard as other students. Family knew something was "off" but not what (they did consult doctors who waved away their concerns), and therefore couldn't provide support that would help me be more successful (though they loved me and did the best they could with what they had).
If the internet had been around when you and I were young, our parents would have been more likely to find the answers they were looking for and the resources we needed. It's crossed my mind many times how much less discouraging my path through life might have been, with an education properly fitted to my disability (but these are just musings, not a "what if" pity party).
At the same time, I have never thought about how our current technologies might have affected the social impact!
As adults we might now have the skills, strategies, and maturity to compensate for gaps in education methods, but I know that I'm as socially inept as I was through elementary school, and no special classes would have changed that in my childhood.
Today's technology would have been much harder for us to handle, able to spread the humiliation we already felt far beyond the contained spaces of our schools and neighborhoods.
The internet, social media, and our devices are gifts I dreamed of as a child - they allow me to learn more than I could ever focus on in a classroom, earn a living on my own terms, meet people who share my interests, ignore those who don't care about my perspective or feelings, and know that I'm not the only one whose brain works like this.
But as grateful as I am for these blessings, I'm absolutely certain that if they had emerged just a few years earlier, I'd be a much different, more wounded person today - if I was still here at all.
That's where my thoughts on this subject end, for now. It'll keep percolating at the back of my brain with other "things to ponder sometimes", and leave you with thanks, again, for providing this opportunity to see the sword's other edge.
Cheers, and all the best. 💪🍍
Sad that she was bullied because of a disability :(
Many people are its the sad reality of life
Jake S Mario5537 I’m disabled I get bullied all the time even tho you can’t tell I’m disabled because I have a hidden disabled it doesn’t mean people can make fun of me for the way I am like if I do something what they wouldn’t they laugh at me and make a joke out of it that’s why I hate school because I’m always getting made fun of for something I can’t control or help xx
Jake S Mario5537 Snapchat @mitchballeryeet
It's KassidyCupcake
I can relate, i have autism 🙂
Jake S Mario5537 I have Asperger which is high functioning autism I also have dyscalucia,dyspraxia and anxiety
I really like the way her bf understands her and take cares of her..the rare people in today's world ❤❤
Yeah coz is beautiful. If she was ugly no one would not had bat an eye. Lol.
@@boss_niko you are so right!
Such a beautiful girl and a beautiful relation she has with her boyfriend. I am so proud of the fact that she didn’t give up instead found something that makes her feel better and turned it into her profession. So much love, power and respect your way ❤️
Yeah my teachers hated me as well because i frequently slept during classes. But that was not because of narcolepsy. I was taking all kinds of meds for a respiratory problem for several years and i wasnt even aware that it had that effect. My classmates even thought i was just plain lazy. It was awful
Charmaigne Chin same!! I have epilepsy and both the seizures and medication make me drowsy. Some days were so bad that they just sent me home, they get tired of taking care of me and waking me up. 🙄
I think this just goes to show that no one should call anyone out at school if you don’t know the whole story. No one should call anyone lazy, slack or acting like the person their talking to boring.
@@racheltison6333 youve had it worse.. must have been very difficult catching up to the subjects/classes you missed.
@@Thegamesicarry yes this changes you as a person. You extend more empathy and you become more understanding of others.
Same here I think I had sleep apnea only recently diagnosed
This momment when you are watching this at night because you cant fall asleep
True
HAHAHAHA OHJEEZ 3:30am )))):
LOOL
same bruh
i fell asleep watching lmao
I had a friend in High School with this disease. In his senior year one year behind me he drove home from his girlfriend's house late at night....she tried to get him not to drive home that night. He fell asleep on a highway at highway speed at hit a semi truck coming in the other lane head on clipping the drivers wheel of the semi off, with such force the semi rolled on its side and his car left pieces scattered for hundreds of feet. I happen to be working as a photographer for a local paper and heard the accident on the scanner I had and went to go get pics for the paper. I was allowed thru the police line and the only recognizable part of his car was a rear panel....he had a very unique car and I knew who's it was right away. When I got there they were covering him with a white sheet that turned red almost immediately. It was just surreal and I never really processed it till years later. He should not have been allowed to drive....ever....his girlfriend was destroyed that night too because she knew he shouldn't have tried driving home. Please do not drive....its not just your life you risk but others too.
Rip
Narcolepsy is a disorder not a disease
@@alexzandramanker3280 he didn't say that..?
I'm surprised they didn't take his driver's license when he was diagnosed. I'm not allowed to take a license
@ no idea....it was 30yrs ago tho.
I don't have narcolepsy, but I do suffer with severe fatigue. I couldn't even imagine having narcolepsy. ._.
Galantica i can cos I do
Same here
Yeah narcolepsy’s not fun but some meds have helped...
Same with me . Most people think i'm lazy .
@@norizanmohdnoor6908 same here. Am actually going to see a doctor today because it's gettin out of hands
She is drop dead gorgeous with an amazing personality.
If every one has a caring patner like she has, things would get a bit easier.
I have bpd and chronic fatigue syndrome.
I'm awake but still can't do anything.
And i wish i have such support system.
She's a real life sleeping beauty xx
So creepy comment.
I feel your struggle but I wasn’t diagnosed with Narcolepsy until I was 32 - after decades of exhaustion, falling asleep and people telling me to “go to bed earlier,” “get up and get moving, you’ll feel better,” or “why are you so lazy?!” After a failed marriage, I’ve given up on dating because trying to find an understanding companion has been fruitless. I am so glad you’re still able to live life to it’s fullest and are figuring out how not to let this disorder defeat you. AND, I am ecstatic you have found such a compassionate partner! Congratulations to you both and I wish you all the happiness in the world!
I’m really sorry for the way people treated you. I hope more people understand what narcolepsy is. I wish you the best in the future.
"I've got it, but it does't have me" (c)
Very powerful.
Darina Rebro indeed
THESE ARE THE BEST DOCUMENTARY VIDEOS IVE EVER SEEN IN MY LIFE, SO BEAUTIFUL AS A MOVIE.
Lol she defo should be wearing a helmet on her bike
loooodoooog dude that tight ... but funny lmao bless her though, dude your tight
Lol it's illegal to ride it with out a helmet... WTF
Marius Tamosiunas was filmed in Amsterdam where her bf lives. It’s not against the law to ride without one - as I found out on holiday also ride on some pavements which was bait after smoking the🔥 high grade bud .
How can she drive?? That’s illegal with this illness, I have it too!
Luna not in Amsterdam.
its just a very strenuous and challenging processz
i suffer from insomnia... i was getting very depressed from it.. but seeing her story i guess insomnia is better in a way...
Gareth weare insomania is quite horrible too, mine was so bad that I had to get sedated once to get sleep .
yeah i am supposed to take meds but i dont, i use something else rather which helps (not that well but it helps)
I’m the same here with severe insomnia, I rely on 4 sleeping pills per night to send me to sleep, if I don’t take them then I won’t sleep at all and I get very depressed from not sleeping. Insomnia is awful & so is Belle’s condition, I hope you get better soon!
i don't think u suffer from it, u need to fix ur sleep, unless u r 100 percent sure that u suffer from it, most of the people just ruin their sleep for few days and suffer the broken sleep time n they thnk they suffer insomnia
I’ve been diagnosed with it from my psychiatrist and thats who prescribes me my sleeping tablets. Wasn’t sure if your reply was towards me
I have chronic fatigue syndrome and I tell people it's an every day struggle not to fall asleep in the middle of the day or just sitting somewhere. I have sympathy for this women
I’m surprised she didn’t fell
asleep during this whole interview
But she did on her boyfriend's shoulder
Did you see the whole video?
Is that what they call sleeping sickness?
@@rushokim it is called narcolepsy
i rather shock she can ride motorbike. i rather scared actually 😅
I can imagine how difficult it was to record this interview,
This is so different than the stereotypes where they'll be like, walking and just pass out. I love these people as a couple, they're so sweet.
I have chronic, pain sleep paralysis, hallucinations and nocturnal seizures from cancer. Having terrifying hallucinations really takes a toll on your mental health. I definitely feel for her.
I can relate i am diagnosed and so is my mom
@Pennywise no you don't
Is is hallucinations where you're asleep but you are really awake and paralyzed? I do that. I hate it.
@@David-mv3zl plz listen to the audio in my channel I think I know what you are suffering from
Hey guys I too have suffered from those sleep paralysis thanks to God i don't get them anymore, plz listen to the audio on my channel
Sleeping beauty is shaking
Free to LLP po75wfblo8
She is sleeping beauty
Man, mad respect for her Boyfriend too. He is so supportive and patient with her
These two are so sweet together. Unlike her exes, this man actually expressed concern and was worried when he saw negative videos and stuff on the internet but agreed to stay and get to know her and learn what narcolepsy is really like, and he just fell more in love with her. Plus, she has a good support system in the form of her family, not every family is that understanding and kind.
Did she just say "before driving home?" How can she drive with this? My sister had epilepsy and was not allowed to drive, ever!
You have to go through a lot to be allowed to drive. It’s not easy
Caitlynn Brown I dont have a sleep disorder but I am currently driving around Australia and even driving for 30 minutes, sometimes I feel like I need a nap. I don't understand how someone with a sleep disorder could ever drive a car. It's all warm and cushy, a car is a perfect place for a nap (just not when you're driving haha).
Its really dangerous … even in Her the night outs I Think she should always go with a Trustworthy friend
You have to pass a wakefulness test in some situations. (Not all. I've never had my license challenged, unsure why.)
You can drive as a person with narcolepsy because in most cases you can feel sleep attacks coming on- you know what triggers them- and you’ll usually take stimulants / sedatives to regulate your sleep. Narcoleptics don’t have the right amount of a neurotransmitter that controls your sleep/wake cycle so we supplement it with medicine. You can usually plan your day/lifestyle around windows of time where you know you’re at your most awake. It’s only when it progresses past a certain point that you lose your license. I’d say I’m probably a safer driver than my healthy peers because I’m so hyper vigilant & extra careful & on some kind of stimulant when I drive. (Also they make us feel normal whereas a healthy person may feel high when they take them.)
Her:I want that handbag
Boyfriend: in your dreams
Her:...
Underratted comment.
@@user-ji6lf9ym5k Underratted? 🤣🤣🤣🤣
👇🏻🐁ed
😂😂😂
😂😂
Her:So thats mean I can't or I can have it?
Bless her heart, shes so pretty and her boyfriend is so supportive, he'd make a great husband❤
Her work is also very accommodating too
I was diagnosed with sever narcolepsy when i was 11 along with severe cataplexy. I also hallucinate in my sleep and not being able to tell the diffrence between a hallucination when you are sleeping and reality is the scariest thing ever. I was lucky enough to be diagnosed at a young age and have been on medication to manage my daytime sleepiness and cataplexy but i still have hard days. I am 23 now and am working on getting my HCA. Then hopefully i will be able to do enough to get my RN. I have always wanted to be a nurse and i will not let my disorder get in the way of my dreams.
Your disorder consist of dreaming. Like Proust said : to live is to dream but to dream is also to live.
She's so beautiful. 😍 But I'm disappointed that her cutie Jack Russell didn't get a mention, not even his/her name.
®ioT his names Maikel
@@k.5717 Maikel is her boyfriend you numpty. Not her dog.
®ioT heh was about to say that
®ioT *_numpty_* I LOVE THAT OMG
®ioT he’s called Frank! I stalked her Instagram 😂
Who else got really sleepy after watching this video?
@Jabroney I got that too plus I'm supposed to be going to sleep
Jake Daniels Trying to be funny and not working
That's why I'm watching it, to hopefully get sleepy
I'm watching this a 4 am
Most of the time I was thinking: *Their house is so nice*
She has such a great boyfriend and she has such an amazing energy! She’ll master this! YOU GOT THIS BELLE!!! 👍
Poor girl my fiance has idolpathic hypersomnia/ narcolepsy a super rare sleep disorder that specialist are in the dark about it. She will sleep for20 23 hours one day next she'll have bouts if sleep throughout the day Drs have denied her to perform any type if work. It's really hard to deal with but I love her alot and will move mountains for her if needed. She also sleep walks where she looks 100% normal and awake doing normal things like cleaning or cooking eyes totally open and will have a complete conversation with you but in reality she's actually sleeping truly strange if you've never seen or dealt with someone having that. She can't remember any of it and sometimes says she dreamt she was doing this or that. One time I caught her cooking eggs at 3am and she had scrambled eggs all throughout the kitchen they were everywhere even in cupboards on plates or bowls like she was serving them to people. Scary stuff I tell you so I wake up every night 2 to 3 times making sure everyone is safe and she hasn't left in the car. I have his the keys in the past somehow shed find them very last time she got in the car and started it she was in her underwear. If I didn't hear the car start and woke up to stop her it would of been really bad I now have to put all keys in my pants picket and sleep in them. I also have tins if bells in all the doors and booby traps on Windows to wake me up if she tries leaving in her sleep. I LIVE YOU MORE THEN THE UNIVERSE AND BEYIND BABE I WILL BE HERE FOR YOU TIL THE DAY I PASS AND WILL WATCH OVER YOU WHEN I GO TO HEAVEN. I WILL PRORECT YOU. YOU MEAN THE WORLD TO ME. I LOVE LOVE LOVE YOU BABE YOU MAKE ME SMILE AND LAUGH EVERYDAY I WOULD BE LOST WITHOYT YOU
this comment is so sweet you seem like a wonderful person
@@NZ28188 aww thanks. have a couple misspellings after I re read it. But yeah she's my world along with our 7yo daughter that crys to me every night about mom.. not playing or doing for stiff with her. pretty sad to watch. But have to stay strong for us all so sometimes I'll. lay next to her waiting for my daughter to fall asleep so she knows dad will always be there in case mom doesn't wake up. The guy in this video is super strong to go through what he is with her. Takes a living person to do that. I'll be with her to the day I die. She won't marry me though because I owe thousands to old bills from a business I had to dissolve to take more care of her but I'll never ever tell her it was because of her. It would crush her
btrim1974 that sounds really difficult I’m glad she has someone like you though. I have chronic Lyme + babesia and my boyfriend has a lot of patience with me. I know most people wouldn’t be able to deal with my mood swings, anxiety, exhaustion and doing my errands for me all the time because i can barely leave my bed some days. When someone sticks with you despite an illness/disability you know that they truly love you, and I can tell you really love her. Goodluck and I hope things get better for you guys
@@NZ28188 well thanks hope things get better your way also. my dad had Lyme disease terrible. I had my issues also that turned into a bad addiction that led me into suboxone treatment then finally had enough told Drs I'm done they offered treatment for free so never went back to them and used kratom to kick all suboxone opiates and feel very part of my disintegrating spine and love it. I believe I used the drugs to cope with the stress with her also but now seeing it clearly it's not bad at all and love it
I have idiopathic hyposomnia idk where you got your information but it’s not extremely rare