Living with a chronic sleeping disorder: What is Narcolepsy?

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  • Опубликовано: 27 дек 2024

Комментарии • 35

  • @LithaMoonSong
    @LithaMoonSong Год назад +3

    What a lovely man.

  • @mazbradshaw2369
    @mazbradshaw2369 Год назад +6

    Wow poor man. 😢 I struggle to sleep for more than 1 hour at a time. He is so positive, is obviously trying to make the most of his condition and looks so much fun to be around! Go you fella. ❤❤

  • @elin_
    @elin_ Год назад +15

    My goodness.. poor man 😢
    Even if he was a drunken addict, that doesn't give anybody the right to abuse him!! The ignorance and prejudices people have towards invisible illness and addictions is truly damaging.

    • @LozzaTx
      @LozzaTx Год назад +4

      Yes, it’s a cruel world unfortunately 😢

    • @NathalieCwiekSwiercz
      @NathalieCwiekSwiercz Год назад +1

      Aw, You dont even realize how much your comment means to so many, including me, please NEVER loose your kind heart ❤ bc of people like you, kind people who belived in me when I just couldn't myself, I'm now sober and clean soon 7 years!
      It is and was MY responsibility to get help, but what I mean is that you just.. loose your feeling of being a fellow human (many of us grew up with HORRIFIC abuse so you never felt worthy to begin with haha), you just get consumed by feeling you are absolutely worthless and even worse, knowing that you acually are too soo many or your fellow humans, it just makes you loose all hope of love and/or redemption.
      I also have autism and many other diseases/disorders and such, wich really made life so much harder to navigate, especially coming from the hell of a childhood I did.. I'm not blaming it on that, it's just important to realize that people aren't born broken... people can be so cruel, just please try not to judge addicts ( or other broken people) just bc they are addicts, many addicts also have disabilities that make them much more susceptible to getting abused and just... lost
      It's not about not holding people, in my case myself, accountable for my life, the bad choices I made and getting help for my disease, it's about just being kind and try to not judge, and instead try to help people who wants help and give them the tools to grow instead...
      this world would be so much better if we tried to fix what's broken and try to make use of what's there instead of just ... trowing it away

    • @elin_
      @elin_ Год назад +1

      @@NathalieCwiekSwiercz Wow, well done.. 7 years! 🥳🎉 Keep it going.

    • @NathalieCwiekSwiercz
      @NathalieCwiekSwiercz Год назад

      @@elin_ thank you so much! It feel amazing 😄☺ excuse me if my English is bad, I'm swedish 😂

    • @elin_
      @elin_ Год назад +1

      @@NathalieCwiekSwiercz Jaha, ja då kan vi prata svenska .

  • @tinas7909
    @tinas7909 Год назад +7

    I developed Narcolepsy from a Traumatic Brain Injury! It is a totally different world. So glad my neurologist started me on meds for it. They have me on completely different medication than him though.

  • @M500VYN
    @M500VYN Год назад +13

    I’ll stick with my insomnia

    • @257rani
      @257rani Год назад

      I have insomnia, related to the LBD side effects, Hope it does not turn into Narcolepsy 😢

    • @MPPG663
      @MPPG663 11 месяцев назад

      Right?! ...i'm so good, lol.

  • @andreagorham-ray1553
    @andreagorham-ray1553 Год назад +5

    The Valedictorian of my LPN class had narcolepsy said she could hear the lectures when she fell asleep during lecture.

  • @Tis_I_SirJames
    @Tis_I_SirJames Год назад +6

    I'm surprised he's still alive.
    Kinda remind me of those goats that seize up and drop when they're startled.

  • @Sourpusscandy
    @Sourpusscandy Год назад +2

    My grampah has narcolepsy, but not like this there’s very little tubling, he has cataplexy. He keeps up with buckets of dexedrine. He nodded once or twice while driving, for a microsecond. We went to a restaurant and the din and chatter puts him right out. He’s more likely to sleep whenever he sits down.

  • @MrsGump
    @MrsGump 11 месяцев назад

    What an amazing guy! Such a happy guy enjoying what he can, bloody good for him ❤

  • @CatsandJP
    @CatsandJP Год назад +1

    Jink Monsoon (Jerick Hoffer) is an American drag queen who suffers from narcolepsy and has made it part of the act when it happens…it just shows how some people with the condition can live with and adapt to it and still lead a relatively normal life.🇦🇺🇦🇺

  • @257rani
    @257rani Год назад

    Hopefully soon research will help, I am on antidepressants. 😢

  • @Tboe905
    @Tboe905 Год назад

    Wow !

  • @blue_flame22
    @blue_flame22 10 дней назад

    I was here ❤

  • @gemmi1
    @gemmi1 3 месяца назад

    This is like that (fake) video of the guy falling asleep on the rollercoaster

  • @01jbeals
    @01jbeals 10 месяцев назад

    The doctors should prescribe him some Modifinil

  • @janetsin1994
    @janetsin1994 6 месяцев назад

    nighty night

  • @CaptainKedah
    @CaptainKedah 2 месяца назад

    i think he needs a custom mobile scooter , customized for him

  • @DivinesDoor222
    @DivinesDoor222 Год назад +1

    This doesn’t look like narcolepsy and when he’s out he needs a wheel chair or drinking something

    • @elin_
      @elin_ Год назад +3

      Are you a doctor?

    • @DivinesDoor222
      @DivinesDoor222 Год назад +1

      @@elin_ I didn’t know I had to be a doctor to know the difference or to even advocate ..there are doctors with degrees and are misdiagnosing people everyday and I don’t need to have a degree of a doctor to say that this is not narcolepsy !🤔

    • @Zhana808
      @Zhana808 Год назад +2

      That’s a pretty bold assumption considering it’s a 10.5 minute video. What studies have you done or experiences have you had with epilepsy, and exactly what is it supposed to look like?

    • @DivinesDoor222
      @DivinesDoor222 Год назад

      @@Zhana808 go and troll somewhere else ok bye now

    • @Zhana808
      @Zhana808 Год назад +3

      @@DivinesDoor222 typical response from someone who makes bold assumptions but lacks knowledge and credibility 🤣 btw trolling isn’t someone who questions your claims 😂