For years I knew something wasn’t right but when I tried to explain how tired I am it seemed nobody would take me seriously, even family. Was finally diagnosed this year with narcolepsy. I cried a cry of relief knowing that something was in fact not right.
Im 57 and I've been living with narcolepsy cataplexy most of my life. Not all sleep specialists are as knowledgeable as this one. Christine...👍nicely done,thanks for bravely sharing your story. I was very encouraged⚘God Bless you.
It never took me 6+ doctors to be diagnosed. Just as this lady in the video, once the Neurologist couldn’t figure out what was wrong, he sent me then to the Sleep Doctor. I then got a sleep study done and found out I had Narcolepsy and Sleep Apnea 😩 I hate having Narcolepsy!
I really want to get diagnose but i dont have the money to do so. Symptoms starts when Im just 9 years old, i sleep walk and talk. But i totally found out about narcolepsy last 2020. Symptoms began to show up. EDS, muscle weakness due to strong feelings, hypnogogic hallucinations, sleep paralysis, REM. Im praying for Gods healing.
As someone who has had full-on Type 1 N + C for the past 10 years, I've noticed that there should be more emphasis on the difference between sleepiness and tiredness when explaining the symptoms of Narcolepsy.
The worst is driving home from work stuck in 5 o'clock traffic. Doze off, someone honks at your and you floor the gas and realize traffic hasn't moved and about have a panic attack.
family can be the WORST abuse for those who have a challenging disability. she needs to realize this and that people who are are ONLY a very few numbers of people on this earth. When you realize this, you can come to real turns with it better. narcolepsy can be a tough room.
Currently getting diagnosed. I hear things before I sleep, I get sleep attacks in public and my body goes limp when I laugh or other emotions make my legs give up or arms or face. The only thing I don’t experience is sleep paralysis, that happens less. It’s mostly sleep attacks, and the cataplexy and hearing/ seeing things.
Honestly I got no clue if I have narcolepsy. The doctor doesn't think so cause I don't experience cataplexy, hallucinations or sleep paralysis. Currently we're debating between whether it's CFS or severe inattentive ADD that's so severe I'm literally asleep (pretty inattentive, right?). We've done a sleep study and the results weren't indicative of narcolepsy, so it seems ruled out. I hope I find the truth soon! All the best to anybody with narcolepsy or any of the symptoms, I very much hope you're receiving the correct treatment!
I struggled every day at school. Never told anyone. I was so sleepy that on recess in elementary school I was so sleepy I was playing on a monkey bar. I was fighting sleep and fell face first from a 6 foot monkey bar.
I like that doctor where is he located the doctors in tx aren't really good I went to 5 sleep studies ridiculous to put someone tru this many then the sleep studies sent me to a lung doctor he isn't neurologist I've talk to him 2x in one year I had to get my reg doctor to put me on modfinal 200 but it isn't helping much even when I take it I still fall asleep I need help please help me find this doctor
There’s good doctors in Colorado. I have severe narcolepsy and I have two different medications and they have recently raised my meds because I was still going to sleep. There was even a gene test they took as well
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For years I knew something wasn’t right but when I tried to explain how tired I am it seemed nobody would take me seriously, even family. Was finally diagnosed this year with narcolepsy. I cried a cry of relief knowing that something was in fact not right.
Im 57 and I've been living with narcolepsy cataplexy most of my life. Not all sleep specialists are as knowledgeable as this one. Christine...👍nicely done,thanks for bravely sharing your story. I was very encouraged⚘God Bless you.
Jeez this poor lady. People were not looking out for her. 😔
It never took me 6+ doctors to be diagnosed. Just as this lady in the video, once the Neurologist couldn’t figure out what was wrong, he sent me then to the Sleep Doctor.
I then got a sleep study done and found out I had Narcolepsy and Sleep Apnea 😩
I hate having Narcolepsy!
I really want to get diagnose but i dont have the money to do so. Symptoms starts when Im just 9 years old, i sleep walk and talk. But i totally found out about narcolepsy last 2020. Symptoms began to show up. EDS, muscle weakness due to strong feelings, hypnogogic hallucinations, sleep paralysis, REM. Im praying for Gods healing.
As someone who has had full-on Type 1 N + C for the past 10 years, I've noticed that there should be more emphasis on the difference between sleepiness and tiredness when explaining the symptoms of Narcolepsy.
The worst is driving home from work stuck in 5 o'clock traffic. Doze off, someone honks at your and you floor the gas and realize traffic hasn't moved and about have a panic attack.
This is the same for me I have to be very careful I hate when there is traffic
Exactly! That’s why I stopped driving. I only drive to the nearest gas station. Otherwise my husband drives and I often fall asleep during the ride.
Holy shit what if you fall asleep on the highway
I never fall asleep when I am working but always feel like I am going to. I always sleep in. Pass out on the couch unknowingly etc.
Am I narcelepsic
family can be the WORST abuse for those who have a challenging disability. she needs to realize this and that people who are are ONLY a very few numbers of people on this earth. When you realize this, you can come to real turns with it better. narcolepsy can be a tough room.
This is my story too it is terrible being a narcoleptic with cataplexy
My story the same, yes it is terrible. Jesus is healing people still today...I'm praying we get miracles, TOTAL RESTORATION, IN JESUS NAME,AMEN!
Currently getting diagnosed. I hear things before I sleep, I get sleep attacks in public and my body goes limp when I laugh or other emotions make my legs give up or arms or face. The only thing I don’t experience is sleep paralysis, that happens less. It’s mostly sleep attacks, and the cataplexy and hearing/ seeing things.
I have severe nacrolepsy and cataplexy...decade..late to know been suffering from that disorder.
@Sailey Rivera,
*Damn, you sure are a lil’ CUTIE 😍! May I PLEASE make direct payments towards your college tuition/student loans (Soon-To-Be Dr.) 😩?*
I have narcolepsy with cataplexy and hallucinations
What a great Doctor. I have the sense that just being in his presence alone would be therapeutic for his patients.
Honestly I got no clue if I have narcolepsy. The doctor doesn't think so cause I don't experience cataplexy, hallucinations or sleep paralysis. Currently we're debating between whether it's CFS or severe inattentive ADD that's so severe I'm literally asleep (pretty inattentive, right?). We've done a sleep study and the results weren't indicative of narcolepsy, so it seems ruled out. I hope I find the truth soon! All the best to anybody with narcolepsy or any of the symptoms, I very much hope you're receiving the correct treatment!
It is possible to have narcolepsy without cataplexy. I have both but I have heard of people who just have N.
Have they ruled out Idiopathic Hypersomnia?
You could have both ADHD and Narc like me.
@@sherrisolomon2843 me too
Narcolepsy type 1 is with cataplexy, type 2 is without which is what I have.
I have narcolepsy not many people talk about this
I struggled every day at school. Never told anyone. I was so sleepy that on recess in elementary school I was so sleepy I was playing on a monkey bar. I was fighting sleep and fell face first from a 6 foot monkey bar.
I am suffering from this disease whether there is any complete cure or not
My sympathies with u.ginkgo biloba,ritalin n modafinil z best medication for it.
I like that doctor where is he located the doctors in tx aren't really good I went to 5 sleep studies ridiculous to put someone tru this many then the sleep studies sent me to a lung doctor he isn't neurologist I've talk to him 2x in one year I had to get my reg doctor to put me on modfinal 200 but it isn't helping much even when I take it I still fall asleep I need help please help me find this doctor
There’s good doctors in Colorado. I have severe narcolepsy and I have two different medications and they have recently raised my meds because I was still going to sleep. There was even a gene test they took as well
The overnight Narc test is no joke!
What are your thoughts on an upcoming once nightly sodium oxybate?
I have to take two doses and Honestly the longer you use it the less affective and when you don’t have it you literally can’t sleep at all
Ich habe Narklupsy ☹☹🙁☹😭😭😭😭😭