(Invisible illnesses are shitty people often don't belief you) Chronic Pain is horrible. For everyone of us living with it I wish you strength and that other people may understand.
Noel Linné I’ve got one too it fucking sucks, I feel for sack. I hope he, I & all of us sufferers of whichever disease we have to get some sort of comfort
My mom told me something that I always think about. If your dog as sick and needed medication and a certain routine you would do it completely and make it work. But why do we not do the same with ourselves? I feel like once we start to feel to better we stop what is making us feel better. It’s something I’m struggling with but working on.
I moderated a talk with him when he was promoting their new book, he spoke for nearly two hours, only needing a one or two sentence long question to then go on a twenty minute engaging answer. Remarkable speaker.
Zach! Try to find place where you can go to water aerobics classes every week! It's seriously FUN way to help your back and body - and water helps take pressure out from the joints/inflammations more than just doing those things on a ground. So I hope there is something like that. I know water aerobics are usually meant for grannies - but seriously it's most helpful thing in any kind of chronic physical pain and have saved me - and many in my class - dying from it. And all of us have different illnesses what causes those pain.
Also water aerobic trainers know many different ways to do stuff what is difficult because of the pain or some other reason.. You just have to ask. Because they seem to be ones who have seen so many varities of different kind of neurological and physical problems.. So they do know how to work around if you have problems with certain areas. You have to just find the one that fits for you and just talk with people in your class and to the trainer.. It might be awkward at first but everyone goes with their own speed - and that's the point with the water stuff - it forgives the speed and mistakes. It doesn't hurt as much when you make a mistake when you do it why at the gym.
Thank you for being so honest about your challenges. I don't have A. S., I have fibromyalgia and CFS. It's so hard to not talk about it, and so hard to talk about it. I want people to understand and accommodate my disease, but I don't really want pity. It does help to know that someone, somewhere, gets it. Good luck on your journey!
Leah McCoy My girlfriend struggles with the same issues and it’s very tough. It takes a strong person to deal with constant pain and still put a smile on there faces.
My heart sank when I saw this in my notifications. I'm really proud of you for fighting this for 10 whole years, I can't even imagine how horrible it is to live with something like that. I'm so sorry, my smol bean. No one should go through this but I couldn't be happier about the way you're handling it.
I’ve underestimated my good health until I was diagnosed with an autoimmune disorder too. I feel like I’m deteriorating inside and outside. Chronic hives and constantly feeling ill. It sucks so much. Take care of your health guys, cherish it, and eat better quality foods.
Seeing how the other Guys interact with your pain was really sweet. Gentle and understanding, but still treating you the same. It really emphasizes the “everyday life” point you were making, that it’s just part of you guys’ routines and that’s why it’s so important to acknowledge. Really lovely video Zach, thank you for opening up about this
This has to be the most genuine, motivational, and inspiring video of The Try Guys and ultimately RUclips. He didn’t give us a “It gets better” he gave us “make the best of it” and I feel that’s a better representation of the world we live in. I absolutely love this video and think Zach needs his own Ted Talk. Love you guys and love watching you grow.
I'm 24 and was just diagnosed with thyroid cancer after years of feeling like I had the flu 24/7. All my blood tests were completely normal and the doctors ignored my symptoms. I finally ran into a doctor who listened and ordered a thyroid ultrasound and found multiple lumps on my thyroid. After a long, LONG, long time... finally I was diagnosed with cancer and I'm having my thyroid removed in a few days! Don't ever ignore your symptoms and if you feel different get a doctor who listens to you! YOU know your own body.
Ronnie Smith Your welcome! I know what it’s like to know something is wrong, but have no one believe you. Hopefully soon you will discover what’s going on with your body and they will fix it. While I’m not happy about thyroid cancer, it’s so good to have a diagnosis and to have my symptoms validated and now they can work on treating me. I can finally feel normal again.
Good luck! You will pull through. I am glad you found out after all this time. My mom had that surgery and she takes synthroid now, but she is much better.
Hope everything works out. I got sick a lot in 6th grade and my doctors said "OH YOUR FINE ITS A MINOR COLD/FLU" and a missed a lot of school. Next thing I know my parents say "try giving your birds away" (yes I had 2 parakeets) I gave my birds to my friend. AND HAVEN'T GOTTEN THE FLU SINCE... now I take everything with a grain of salt from doctor when I know I am having a bigger issue. (I mean how hard is it to find out if your allergic to birds)
Thank-you everyone. I appreciate it!! Thyroid cancer has an amazing outlook. If your going to get cancer- the thyroid is one of the best places. Normally they just take it out and replace the thyroid hormones you take by pill. It has an amazing turn over rate!
zac i'm literally binging all of these ankylosing spodylosis videos. I just got diagnosised today and the first thing i thouht of was all of your videos. Thank you for sharing so many videos on your journey
i hope your doing good :( my mom has A.S. also and i hope your having treatment bc my moms had it for years and still isn’t on any medication and is in pain :((
Oh I'm full on weeping and trying to grab onto that same fire he has. While I don't have AS, Im struggling with a very similar situation and mindset. ❤️
Thank you for bringing light to invisible illness and the struggle with staying on top of the pain management even when you reaaaally don't want to. I've had fibromyalgia and chronic fatigue for 12+ years (over a third of my life) and extremely painful chronic rib subluxations for over 6 years. I think one of the hardest parts is hearing that there's nothing else medically that can be done year after year after year. It's truly exhausting and defeating. But once we accept it's up to us to keep up on the pain management it becomes easier to see the effects - especially when we start neglecting ourselves. I was able to start a Spoonie Discord server for the sub community of watercolorists from my little corner of youtube and it's been enlightening to see how many of us struggle with chronic illness and how we've come together in the last several months to support each other on a daily basis. I wish the very best for you Zach. You've got a great outlook and I know you're surrounded by awesome people and an awesome community that will help you on the day's it feels impossible.
In Liquid Color I was recently diagnosed with fibromyalgia. It is awful, especially when I have class and I’m sitting in a lecture hall for over and hour, or when I’m trying to sleep. The pain is always there, especially in my back. Though one of the worse parts is the shaking and the headaches. I have a headache everyday and my hands are always shaking, though sometimes it is so severe that my legs shake and I get dizzy. It’s helpful knowing that someone else understands the constant pain of dealing with an invisible illness. I have had people tell me that there is nothing wrong with me and that I’m just faking the pain!
@@joannaferro3370 often times other things get wrapped up into the fibromyalgia label but are actually separate conditions. I believe the shaking may be something that some people with fibro face, but is actually something else. My rib subluxations are what cause me the most pain and I didn't know it was a separate thing until much more recently. Always be an advocate for your own health! It can be hard hearing no from doctors, but they're slowly learning more about chronic illness and how to manage them. I hope you find some relief! 💜💜
I clicked this video because I read "autoimmune update" and immediately thought of AS, because I have that disease too. But I am actually SO surprised Zach really has the same thing. I can confirm the pain is unbearable, I've dealt with lots of pain in my life, but this one is really... something else. For me personally it got so bad I could barely walk on my own, or even stand up. It took years to be diagnosed, and when it was, no medication worked on me, until they tried humira (after, I believe, one year of trying different things). I have to inject the shots every two weeks, and it's working great, although the side effects can be dangerous. With AS it's unlikely to ever be completely without pain, but it can get better at least. Zach, I really feel your struggle and I'm very moved to see someone making a video about this. Thank you for sharing your experience, I hope you get better and better! I would love if Zach made videos about his workout routine and the diets he tried. I would find it very helpful and inspiring!
I love this! I have depression and anxiety along with some chronic physical pain from my 20+ years dancing. I’ve stopped taking care of myself this year and I’ve gotten a lot worse. Thank you for inspiring me and reminding me that I can’t just give up on myself! I need to keep taking care of my body and mind every single day, even when I don’t want to. Especially when I don’t want to. My name is Elizabeth. And I’m getting worse. But I am also getting better.
I have similar disorders and I understand how the cycle works. Feeling pain continuously that keeps you from experiencing life as you once did leads to the depression, which causes anxiety over not being able to be you. My heart goes out to you and others like us.
I have endometriosis I hate it when somebody tells me i look fine because it feels so horrible it feels so dismissive when somebody tells me i look fine.
Zach, I’m over sixty & have been through all you describe. Because I have the same syndrome since for ever, was diagnosed about 15 years ago, I’ve been through opioids, forget that. I’ve been through PT, I use a TENS unit. I have days where I can’t cope still. But they’re growing less. I’ve come to realize that exercise alone can actually cause more bone growth. But recently I’ve had a huge improvement. I realized that laying down sometimes makes me stiff, just like how exercise can aggravate it. But I bought a zero gravity chair. It takes the pressure off my spine! Then as my sitting & sleeping were more comfortable, I was able to sleep through the night. I’m a lot more limber now. I still have daily pain, but it’s at the level of a small chronic ache instead of being down right unbearable. This lengthy thing is to suggest working with a physical therapist instead of a gym. They can measure a baseline for your spine & they spend more time with you than any Dr or nurse. Because knowledge can help you make decisions. Get lots of massages from a LMT who understands the diagnosis. For a while my PT & LMT communicated & that lead to the Zero G chair. Stop pushing yourself to exercise to maintain range of motion. My PT helped me recognize the serenity prayer applies to A.S. Figure out instead how to remain active & exercise without promoting bone growth. Our similar situations are kind of like bunions on your feet. Too much pressure makes our bodies react by promoting bone growth. Tai Chi, or a gentle guided Pilates session can keep folks like us limber without aggravating pain or bone growth.Because of bone spurs, I even got custom insoles for my shoes! As I’ve worked to reduce pressure on my spine & bones, my quality of life as grown quickly. Enough from me. Mindfulness is the key. If anything makes you ache, stop + evaluate if it’s tendon or bone. Tiny ache is normal when exercising. But please stop everything that makes you grimace.
I'm 57 years old and I've been dealing with Spondylolisthesis since I was 19. I was told it's a genetic disorder and hereditary. I was born with it. A vertebra with a crack. At 19 I jumped from a tree stand on a rope swing. I slipped and fell on the side bank of the river. I broke the cracked vertebrae. Now it slips and falls on my sciatic nerve. I get an epidural every three months. I can't have surgery because the next vertebrae will break. My doctor told me I'd never get over the pain of surgery. Like you I've forgotten what it's like without pain. (I also have degenerative arthritis everywhere) In a way it's a good thing I don't remember because I've learned to live with it. My life is controlled by it. I know what I can and can't do and go on about my life. I'm not gonna lie, there have been times when the pain was so excruciating I wondered if I was strong enough to deal. YES! I am! Being limited makes me angry sometimes but then I think of those out there worse than me and I stop feeling sorry for myself. I feel your agony and hope there is something out there you're able to do to not have to go through this. We're so much stronger than we think!
I know you posted this 3 months ago, but my best friend had something similar to this after being a car accident.. he went for years with the pain but it slowly got worse, which turned into depression. He ended up committing suicide.. i miss him so much. I hope you find some relief and keep on pushing
This was such a good reminder that slacking off on self-care has real consequences. I had a bad cold then my gym was closed last week so it has been 2 weeks without much exercise... and it hurts. This week I get back in the game and rebalance. While my autoimmune disease can make it harder to travel, eat out and engage in certain activities-I can't and won't stop living my best life. I just have to live it with a little more attention to detail in prepping, planning as well as knowing(and harder still listening to) the signals and signs for me to slow down.
how can you not love this guy? he’s deep, nice and funny. how can you not love zach for keeping on with his disease, for starting listening to his body, for sharing his story with us. how can you not love zach?
Zack I recommend swimming. Swimming requires every part of your body to move. It’s fun and you get to cool off. Edit: Gee! You guys are amazing. I hope Zack sees this!
People without medical issues are SO FRICKEN LUCKY. I feel like sometimes they take it for granted, I know I did before I was diagnosed. But really if you have nothing physically wrong with you, be happy about that. You don't have to go through some of the pain and fear that others go through. So don't take being healthy for granted.
'I'm getting worse but I'm also getting better' I needed to hear that. Just like I needed to hear everything else said In here. Thank you for being so incredibly open with us zach. It helps us more than you can ever know
Zach, thanks for sharing this with us. Thanks for showing what life is like. I may not know what its like to live with this as its an eye-opener to understand what you and others go through on a daily. I hate seeing my dad being in pain every day with his osteoarthritis. My dad's condition is getting worse as his bones are deteriorating in the neck and spine region as some bones are fusing and he gets pain in his thighs, back and others. Thanks for being you. Stay strong and brave. Do what is best for you, Zach. Try and enjoy life and good to see that you're focusing on you and your health.
yes for invisible illness exposure! I'm sure most of us in the chronic disease invisible illness area agree that it's sometimes weird talking/complaining about how much pain you're in or the difficulties you suffer with because your suffering isn't as obvious as others is. I know personally, being fifteen (I have JIA), it's difficult to accept your body isn't perfect in other ways than artificially. Thanks you for speaking out and helping us become more comfortable with our disorders, bodies, and experiences. It's so great to see this community unfolding in the comments.
sefire chaves I'm 17 and have been dealing with an invisible illness for a few years now and it sucks. Especially as I'm going through the same a someone with cancer but because it isn't people treat it lightly. They think I'm fine and it sucks so bad
I literally just told that to my 18 yr old son today- it made him so sad- but I told him I did remember what each of my muscles would feel like when I exercised and that i lay in bed sometimes and imagine running on trails or doing gymnastics etc. Or even just skateboarding with him. For 8 years ive had severe nerve damage and got an autoimmune disease etc. Etc.- because of one arrogant dr who inserted a giant needle into my spinal cord and pushed steroids and meds inti my spinal fluid I was paralyzed for6 months and I live with very severe nerve pain 24/7 even with heavy sedatives and opiates- but I have I guess learned to live with the pain and constant sicknesses- but I realized just a couple of months ago that I have been grieving the energetic hyper fun hilarious active mommy and mommy that I used to be. My life echoes yours- nonstop pain no sleep constant weird viruses exhaustion not being able to go places like family dinners and holidays with my family etc.- losing my life that I loved and longed for. Im trying to heal from the grief and im working hard on it so that I can accept that this is me still- just a different kind of me and I can still be a good mommy- just different than I was before etc. Etc.- I want to be happy and show my kids that you can live life with trials etc.. I'm getting tested for AS next month- it shocked me when you said that's what you have. Each year it seems that I develop more weird diseases and nerve issues- like trigeminal neuralgia- worst pain in my life. Oh and the dr- I went to a big shot lawyer who said he only accepts cases if HE will make 6 figures from it and he immediately accepted mine because there was proof in the records from both dr and nurse from that day- but I freaked out and was scared cause he said he was going to push it ti trial so we would make even more money etc. Etc. Etc.- and I was on such heavy drugs that I wasn't used too yet- I got scared and dropped the case 2 months before the statute of limitations mostly from fear but also because it had only been two years and I truly thought I would get better. Worst decision of my life!! My hubby works physically hard 60 plus hours a week and we are having to declare bankruptcy because of my medical bills and medicines. We are broke with 3 incredible teenagers- 2 of which were born with rare painful diseases that cause hospital admissions often and our house looks like a hospital itself with all the medical equipment for them etc.- thank God they qualify for state insurance- but because of me- we struggle so much and my beloved hubby is exhausted and our kids don't have as much as thet deserve and Keith has to miss work when a kid is admitted ti tvhe 3 hospital because I can't physically and mentally handle driving two hours to childrens hospital getting teenager inside getting myself inside and all of the walking just to get to the transplant unit and sleeping in hard chairs and just so many reasons- its the most horrific thing to watch them leave- not knowing what will happen to my baby knowing Keith is so physically exhausted- and just defeated because of our life- and the money from lawsuit would have blessed my husband and children and I got scared. A year ago I randomly met a woman who had same dr do exact same thing to her! But she was never paralyzed and a few years after it happened she didn't have anymore lasting effects- but she sued. She started crying when I told her that I got scared ans didn't sue- she felt so distraught for me and so guilty because she never had it as bad- she got better- and her lawyer just filed a claim with the drs malpractice insurance and few months later they sent her a check. She was in the process when I met her- of buying 200 acres of land and building their dream home plus her and her husband both quit there- jobs and bred champion great Danes instead- she said she could never tell me the amount she received because she couldn't even handle the thought of me knowing what could have been and more because of my personal journey etc. With being paralyzed and 8 yrs later just getting worse and worse because of it. She just lets just say we are very much set for life. So yeah- I feel ya man I really do.
I WASN'T READY FOR SUCH A BOOST OF INSPIRATION SO LATE IN THE EVENING, NOW I WANT TO BUY ORGANIC VEGETABLES AND BOOK A GYM CLASS AND GO TO THERAPY. Jokes aside; this is such an amazing way to view an illness that you will never be completely rid of. I have no physical illnesses myself, but has and always will struggle with depression and eating disorders; and the feeling of "If I don't stay on top of this, it'll get on top of me" is real. Lots of love and support from a Swedish viewer that has been a fan since "Guys try on ladies underwear". (And can we talk about the amount of care the Try Guys show each other? Checking in on each other, complimenting each other, begrudgingly opening seaweed snacks while whining about it YET STILL OPENING THEM? I live for it.)
That’s how it is with fibromyalgia. If I had a nickle for every time I heard “You don’t look sick”, I’d be rich. I feel for you because living with chronic pain makes you feel like a sitting duck. You never know from day to day if you’re gonna be able to do what you had planned. There’s a lot you can do to help yourself live a better life with less pain, but we can’t always control it. Chronic pain truly is a full time job. This was a great video. I don’t remember what it felt like to be pain free, but it’s better. And all we can do is keep trying new things every day and treat our bodies really well.
My Mom went through the same thing with Fibromyalgia. People always told her she didn't look sick, and sometimes straight up didn't believe her. It honestly messed with her head a lot. Just know you're not alone, there are people who understand, and those who very much believe you. One right here. Stay strong.
Hugs darlin! I have fibro as well. My mom has fibro, RA, and MS. She's honestly who keeps me strong because I know that her pain is way worse than mine is and she's still pushing through it. We've got this! You're a warrior and fighting this is a battle we can all over come. ♡
Hi! I've been having chronic pain for most of my pretty short life. Recentky things got worse... and because they got worse, it got harder to do things that fixed it... which made things worse... so on and so forth. A) how do you break said cycle? B) how do you not give up hope and be bogged down by the fact that you'll never be normal? I'm tired of having to be strong and am so worried that the people around me would get fed up of my complaining because it has happened before.
@@Karishma_Unspecified I completely understand how you're feeling love. I've had to explain in great detail what it feels like when I'm flaring. Working out helps. It really really sucks for the first couple weeks but then I swear I was more refreshed, I wasn't in as much pain day to day, and my flare ups were less frequent. It helps to have people who are willing to listen and be that support system we need at times. I recently broke to my husband and told him that I felt like a 3rd child he had to take care of. Luckily he is my back bone and knows I was just feeling upset. No one ever talks about the guilt we feel from having chronic pain and the constant fear of feeling like a burden. Trust me though even if it's just light stretches it helps so much. Hope you're well!♡♡
Hi Zach.. i was also recently diagnosed with an auto immune disease. i have symmetric psoriatic arthritis in both my wrists and i have pain every day.. especially when i wake up. we just got to keep moving forward and staying optimistic. im 30 years old... but im glad in a way im dealing with this now rather than later... stay strong 👍
Hey, that's what my doctor's thinking I have- it's been a little over two years and this is what everything's pointing at, I'm real sorry you have to go through that too
You can do it Zach! Everyone with invisible illnesses is celebrating you, you’re doing a good and brave thing by sharing your experience, you’re opening eyes and minds. Good luck with your AS going forward, you can do it!
I have several autoimmune disorders and live in chronic pain. And I look ok on the outside so people struggle to understand that I am sick. No one wants to accept being sick. It sucks. I hope things get under control for you and that you find some relief!
Have you tried the carnivore diet? It basically cured Jordan Peterson and his daughter, they have it terrible and they don't have any symptoms any more, watch clips from the Joe Rogan podcast where they go in detail about how they got rid of it
The spoon at the end brought me to tears. Sending you all my love from one spoonie to another. This means so much to me when I am still trying to figure out how to care for and accept my illnesses. Thank you ❤️
“My name is Zach I’m getting worse but I’m also getting better” It made me feel better like you feel pain but you can be so brave to live your life and say your not going to stop me to that diasease we love you Zach ❤️
Was recently diagnosed with an “invisible” disease as well and while no where near as serious as this, this hurts to see and I hope to find the same strength you found to get through it.
My Dad has A.S. Had symptoms since he was a kid. He's 52 now. Taken all of the immunosuppresents, all the narcotics for the pain, nothing worked until he found CBD oil. Like pure, 100% marijuana CBD oil (not the hemp CBD oil from health food stores, that's not real CBD). You don't get high from it if you're worried about that. After over forty years of pain, he's finally able to function. It's unfortunate he didn't find it sooner, as his neck is now almost completely fused, his spine is completely fused, and his lower diaphragm is fused which makes coughing and sneezing painful. If you've found a treatment plan that is working, stick to it! The "best" thing about A.S. is it can spontaneously burn itself out, meaning one day you could just wake up and it'll be completely gone. The damage it does is permanent, but it could just fuck off one day for no reason at all and stop causing any further damage. Also, GET GENETIC TESTING. Some people with A.S have a genetic predisposition which increases the likelihood of your future kids having it as well. I wish you the absolute best Zach, I've watched how fucking shitty A.S can be, and I'm so glad you were diagnosed young and have time to adjust your lifestyle now to prevent fusion in the future.
thanks for sharing! for anyone who doesn't know: CBD is Cannabinoid. Cannabis. also a particular [cannabinoid receptors: cb1 & cb2] sensor in the brain/body that manages feel-good perception. anyway, cannabis is one of the many plants that create a certain amount (15% atleast ) of molecules called "beta-caryophyllene". beta-caryopyllene has great therapeutic potential for pain, pain-perception, inflammation, anxiety, and certain ulcers. other plants that harbor this particular constituent is Copaiba, Black Pepper, Ylang ylang, Cananga, Yarrow. Copaiba having the most beta-caryophyllene and probably the only one that won't stimulate the wrong issues. excluding beta-caryopyllene, another route are plants like geranium, palmarosa, & patchouli, for instances of inflammation; geranium being the one that is least likely to interact with most meds. source: i'm studying organic chemistry, botany, & aromatherapy.
When you're not in as much pain you can move your body more which slows fusion. Staying stationary is the absolute last thing you should do with A.S. I never once implied that Zach or anyone should stop immunosuppresents or any other medication that your doctor prescribed for the actual progression of the disease. That would be incredibly stupid.
YES! I totally agree. My mother suffers from late stage Lyme Disease and it reeks havoc on her heart, brain, bones and muscles. She lived in constant pain and inflammation and could hardly remember my name most days. Until she started using CBD oil. She uses them throughout the day so she's still able to work and function. And at night, she uses low dose THC to help her fall asleep. It's greatly improved her quality of life and has, frankly, saved it. It's really amazing what a little oil can do.
You have given a voice to those of us who have “invisible” illness. The worst is when people are convinced you are lazy or a ditz especially during a flare. I’ve isolated myself to avoid talking about it. The “why” questions or the advice from people who don’t know anything about it. My best wishes for you, you are now one of my hero’s
I totally agree with you. I have arthritis, fibromyalgia, narcolepsy and cerebral palsy. Thank you for being a voice for us...I love your channel and my thoughts and prayers are with you.
omg dude just bc this is posted on RUclips doesn't mean he's just doing this for the views Sharing his experience may help other people who went through the same thing and it DID help people when he uploaded the first video talking about this
I love this as well! I have chronic reflux and stomach inflammations and can't eat like everyone else since I can't stomach everything well (I like spicy foods but Tobasco makes my stomach burn to the point of hurling). I have troubles digesting which leaves me with vitamin deficiencies and makes me tired and groggy and people think I am lazy and or stupid. "Invisible" Illnesses are such a pain since healthy individuals just can't relate because "you look healthy" and "it can't be that bad" or "well your legs arent broken so dont complain".
Hi. My name is Dellana. I was diagnosed with AS 3 months ago. I am just starting the same med that you are on. You are an inspiration. I just want to say thank you for showing me that my AS does not define me. Thank you! 🙏💕
The lead singer of Imagine Dragons, Dan Reynolds also has AS. It really sucks how some people are born with things that they can't control. It's an unfair disadvantage of life and I feel for you Zach. I'm sorry.
Ashley Duhon Yes I know he has Marfan's, it's a genetic syndrome that effects the connective tissue, which is why his body looks the way it does because it affects how he grows and develops. But I thought he had mentioned having AS also.
yeez man, I normally come to your channel for a bit of fun after a work day, but today you made me realize that I have been doing the exact same shit all my life, neglecting my physical health, being lazy and self harming. I don't have a disease, I'm overweight and I have been all my life. Thank you for this video, you have no idea what your words mean. Hope everything gets better.
I have a rare heart condition, it has only been written in the medical books one other time. All the way back in early 1900's, its scary to know that, But to also know that you are dieing 3 times faster than a normal person and I am 19. The only way to fix it is to have open heart surgery with a 32% survival rate. I have testing 1-3 times per year, I have to exercise and eat healthy. I hate it but I got to live with it for as long as i can. All I can say is to everyone sick or healthy, live your life to fullest through pain, suffering, depression, happiness, anxiety. It doesnt matter how long u will live, it matters if u are happy. So no matter what goes on at least put some effort into being happy.
Swimming is excellent exercise. It keeps you active and healthy. It can help expand your lungs and there are no other components to cause physical pain (like people tackling you or a ball being thrown at you.) I've been swimming since I was 4 and the most I've hurt myself was a few scrapes from the walls or lane line
I have seizures and I can relate to you so much. People hardly see me sick, unless my migraine has made me so unbelievably sick that I can’t move. I’m the opposite when it comes to moving, though. I got a Summer job, and quickly found out that I can’t be on my feet for more than four hours. It’s illegal for me to drive, I take a crazy amount of meds, I have to be driven everywhere... It freaking sucks. The next step is brain surgery. I’ve lived with seizures and the fear of having them most of my life. Surgery is the only option I have left (told to me by MANY doctors), and I know there are seizure patients that have it worse, but it’s still scary. I’ll be praying for your A.S., Zach. Wish me luck as we try and figure out my own body that also tries to kill me...
Woah, same. I have no help with family so I drive even though I'm not suppose too. I can't work more than 5 hours a day either and its hard. I'm having to live with my boyfriend because I have no one else to help me. I can barely afford my meds too, dude we have a lot in common.
I absolutely love how much the guys can share their truth with us now that they have their own channel. THIS is the kind of content i prefer: Creating personal, worthwhile videos from each Try Guys' pov. Bless, Zach. Sending you and the guys prayers and positive energy
4:15 when you say it is easy to normalize pain it is actually a psychological phenomenon called learned helplessness. It is when you stop trying to avoid bad things such as pain because you believe that you can’t avoid it. Hope you get better
JiiHopee • Fuckin stop, this has absolutely nothing to do with the video. Yes, bangtan are amazing but you don’t need to comment every time you see a BTS profile picture.
thank you for having the courage to upload this i'm 14 and i have chronic pcod. the reason my pcod is different and worse is because i was in severe pain 24/7. i have fainted multiple times and could barely walk a couple of years ago. but over a few months, i got so used to the pain, i barely noticed it anymore. i started exercising, doing yoga and taking my pills last year and have gotten better. the cyst on my ovaries has reduced but my clinical depression is worse than ever. my name is tara. and i'm getting worse but i'm also getting better. (lol, just realised no one's gonna read this)
I did and I understand what you are going through. You can try homeopathy for the pains. It should help without side effects. You can dm me on Instagram to know more about my journey at digital_scribbler
Aw when he was crying when he woke up at night because of the pain it was too much for me! :( He is literally one of these four guys who make us happy every time we see them even if it's through a screen, and to see him in pain was the worst. But I'm SOOO happy to see your persistence and determination is paying off. You'll kick as's ass ;) GO ZACH❤️
"Treatment isn't an upwards trajectory. It goes up and down." I felt free when I realized that. I wish you all the best Zack. BTW: You look more than ok ,you look cute ;) I hope you get better.
You are amazing. You are loved. You are strong. ❤ As someone with a chronic pain condition (fibromyalgia), I can completely understand. There are some days I wake up, barely able to move, and it takes everything in me to get going. And I, too, have the brain fog (aka fibro fog) and sometimes that's just as bad, or worse, than the physical symptoms. As you mention, you look fine on the outside, but often feel terrible on the inside. People often don't understand when something's not a "visible" condition, but it's no less real than ones that show externally. The thing I've learned is that some days are great, some days are bad, and that having a chronic pain disorder is one hell of a roller coaster ride. I've accepted that I'll never fully be at 100%, but that's ok. I live the best way I know how, stay active, and try and do things that make me happy. Most of all, I put myself first and know when I've reached my limit, and that there is nothing wrong with saying "I can't physically do that". The one thing you CAN do is keep living your life and keep being true to yourself.
Hi Firecracker! I thought i recognized you from Lost in the Pond! I have fibromyalgia and it sucks. I'm completely disabled trying to hold my life together and take care of my brother who has lupus and is on the autism spectrum. Thank God for RUclips! These 10-20 minute shows take my mind off the pain. Hang in there!
I do, too! And I hate that it always makes me feel like a fraud because I am worn out or can't remember what words mean because I haven't slept and have had a headache for a month or w/e since I'm young and, obviously, it's an invisible illness. Like. I know the people who love me believe me, but it still doesn't make me feel any less like I'm actually just a big whiny baby. It's so frustrating! And I can't find a suitable job! D:
It's so wonderful to know I'm not alone. Since getting diagnosed I've wanted to talk to people about fibromyalgia and how it's not just pain it's so much more. Y'all are beautiful people. Thank you!
I can relate to your symptoms. I have an adjustable bed that really helps me when I wake up at night with back pain. I can adjust the bed to a position that relives my back pain. You may want to try a bed like that.
Oh, Zach, my heart hurts for you. I've been watching Try Guys/Buzzfeed videos for so long that you all feel like friends to me. *You* feel like a friend to me, and I hate that you're suffering. Please keep fighting your hardest. You have more people supporting you than you can possibly imagine. Take care, sweetie.
My name is Melissa & I've been diagnosed with AS for 15 years, since I was 30. Multiple surgeries, baseline pain of 4+ daily, weight gain, lost 12 teeth so far (sjogrens), eyesight going, and new disc in my neck. But watching this (someone on my AS support page recommended it), I'm feeling like maybe, if I try a little more, I can keep doing this. This disease sucks. And it's easy to stop doing what is good for you when it hurts so damn bad. My son LOVES you guys! His name is also Zach. Loves, spoons and gentle hugs, new AS WARRIOR!
I think the biggest message from this video is to OWN it. Own your health. Own your choices, Own your body. AND OH MY GOD - THAT IS SO REFRESHING SO SEE. Thank YOU for sharing this, Zach. It takes a lot to own up and hold yourself responsible to your choices after finding out a diagnosis like this. Thank you for sharing and for making such refreshing videos.
Zach, I’m in tears...literal tears. You’re literally the most inspirational person I can think of! After all of the rejection from doctors, the diagnosis and all of the pain you have to deal with, you still have a smile on your face and a big ass swagger in your step! After you made your first video about your diagnosis, I loved you just that little bit more than before, but now, now my heart is bursting for you! Thank you for being you, and not letting your invisible illness define you. From an invisible illness warrior to another.
Realized while watching this video that you all leaving buzzfeed meant losing a (probably) great insurance plan.. living with both an immune and auto immune condition I understand how terrifying that must have been.. especially for you and ned with a wife and baby.. good luck on your journey, i have gone through the ups and downs and denial at times for almost 17 years after getting diagnosed at 15. I’m my conditions worst enemy and I’m fully aware but it doesn’t make it any easier..
but thet made the right choice, if you look up "why i left buzzfeed" on RUclips, you see a lot of videos, so honestly I wouldn't blame everyone at buzzfeed if they left
Not that this video is about Ariel's insurance, but I'm fairly certain she's her own boss in her work/ doesn't work for a direct company with benefits. Hopefully they all found good insurance through the marketplace prior to leaving buzzfeed. It could also be a reason that Ned was still active in Buzzfeed even after eugene laugh/while they were setting this up, or why it took Zach, Keith and Ned longer to leave buzzfeed.
I'm sure leaving Buzzfeed also meant that they don't work for anyone they work for themselves and control their time so he has more time to actually care for himself
This is so nice to come back to and relate to. I got diagnosed with AS literally yesterday, and I was immediately like “I need to go back and watch Zach’s video, because he understands how it is.” I appreciate you putting this out there. I hated being told it was just anxiety. I’m so relieved to finally have an answer.
Just when I think I couldn't love you more Zach, you put a spoon at the end of this video! This was such a kind wink to the invisible illness community.
@jeff sweet I inherited AS from my mother and she in turn inherited it from her father (my grandfather), who was born in the early 20's. I wouldn't call AS an epidemic, but like most inflammatory arthritis, which are autoimmune in nature, there is a genetic link in most cases.
'I'm living with a baseline of pain every single day, to the point where I forget what it's like to not hurt somewhere.' THIS is what people who don't suffer from chronic pain can't fathom. It's impossible to enunciate how utterly exhausting being in pain all the time IS. There's nothing else quite like it and when you're in pain for long enough to the point where you can't remember what it's like to NOT BE IN PAIN, it can bring on a sense of hopelessness that's like nothing else. I have crohns. I'm having a good year so far, it's in remission in as much as it can ever be and as such this is the best year I've had in a while. I have pain free days now, but the last 5/6 years have been hell, and I've been there, that point where you forget what not-being-in-pain-felt like. In and out of hospital, weight falling off me, unable to eat for days, some of my friends saying 'wow, you're so thin, you're lucky!, and fighting the urge to punch them in the face for that shit. They see a tiny waistline, they don't see the nights spent on the floor, too tired and sick to get back up, borderline suicidal. They don't see my collarbones sticking out below my neck when I look in the mirror. Skeletal. Disgusting. And your baseline is pain, you walk around at times in a daze, exhausted, angry, and yes, hopeless. All you can see going forward is more of the same, a life, living in this pain for the rest of your life. No light at the end of this particular tunnel. Not much to look forward to. A life that doesn't seem worth living, at times. Living with a medical condition, whatever the condition is, changes your life. You'll never be able to live like everyone else. 'Normal' people. For me, I have to be very careful with what I eat, how I live, my lifestyle, my meds. It's upkeep. It's consistent maintenance. There is no fix. No cure. You just have to keep going. You can never stop. You're working with something that's inherently 'broken' in your body, so you'll have to work harder than everyone else, and you can never stop being careful or you'll pay for it. You'll be in pain. You'll be in hospital, like me, getting part of your intestines removed. It's not worth that. For one slip up, or a few, for getting lazy, for trying to ignore it. It's tempting, to ignore it. When you're feeling better than you have in ages. I've been there too. That's why I always say that when I'm on that high, not to forget those lows and how easy it is to go back there, but when I'm in those lows, to never forget the highs, that maybe I can be there again too. That can be enough sometimes to keep going I hope you keep going. That's all anyone can do. Just keep going.
Mel Christensen Thank you for your words. I don’t have the same illness you do, but I suffer from a chronic migraine. For almost four years now I’ve had a 24/7 headache and other issues like digestive issues due to the migraine and I get sick a lot. I’m sick and out of school now, actually, I’ve been sick for a week. I was out of half of my junior year and all of my senior year in high school due to this migraine, and I’m a junior in college now with chronic pain and a tight schedule...I’m so exhausted and I’m trying to live a life I want to lead but I can’t seem to ever catch up with what I want. I’ve already made so many changes to be aware of this thing that controls how I live my life...I can’t enjoy what I used to, I can’t go in the sun and even with earplugs and sunglasses, I can’t be around people who talk loud, the fluorescent lights in classrooms, and then the air pressure changes and the weather changes one way or another and I’m balled up in pain. I’m a stubborn gal. I don’t like needing accommodations, and I live with PTSD from some of the treatments I had to endure in this quest to find what can make me feel better with this invisible sickness. It’s not like I can get a doctors note for an illness that some doctors can brush off and tell you it shouldn’t bother you this much. But I haven’t had even a second of no pain these past years. I’m supposed to be young and spry and having a fun time with friends while studying for my future. Why is it I’m so dizzy today I couldn’t go to a midterm? It’s so exhausting. What changed months into being sick for me was getting my diagnosis. Being told I had a disease. It made me believe I was broken, that I couldn’t take charge of my own health. That doctor was a loud jackass, if I’m going to be passionate for a moment here. It made some part of me give up that I’ve been fighting to reclaim since I realized I lost it. My past history and my future plans lie in the survivalist and primitive skills circles and schools that I was pulled into due to my love of plants. I don’t want to give up my love of natural places and self-sufficiency. Guys, please don’t do anything that you don’t want to pursue for your future. If it won’t benefit you then, is it really benefiting you now? You never know when you’ll suddenly be unable to walk or see straight or get a hug from someone you care about because your skin is so on fire it can’t even touch sheets... We have one life to be proud of and look back on. Don’t make it one you’ll regret. I’m trying my best too, and I know it’s hard to not get depressed. I wish everyone the best, and I hope the pain will ease for those of us with chronic conditions.
I have had spinal issues since I was 14. I can't bend over and touch my toes without shooting pain up my legs and to my lumbar spine. I've just learned to live with the baseline pain.
I have been dealing with this non stop chronic pain since 2014. Even the pain center can't control it. I have attempted suicide multiple times due to the pain, depression, and anxiety. To never get relief not even when sleeping is killer. No sleep heightens my pain censors. I'm constantly exhausted. I recieved a nerve block that helped for a few weeks. My brain couldn't comprehend not being in pain. It is the creepiest sensation. However after it wore off the pain came back 1000x worse. I can't even cry anymore because I'm so tired. Muscle spasms non stop these days too. It sucks!!!!
"I'm living with a baseline of pain every single day that I'm forgetting what it's like to not hurt somewhere." I know this life, and I am so sorry that you have to go through this. It's a terrible life to live. We're rooting for you!
Hang in there Zac! You have a great support system. I have AS and taking Humira. Humira was amazing when I first took it and thought I’d never have to deal with the horrific pain ever again. Last May I had a flare up and I didn’t know what to do, I couldn’t even get out of my car or get up to my apartment. My doctor upped my dose to weekly and everything seem back to normal now. Sending positive vibes your way and please continue to make update video on your AS.
Hey, I know you dont exactly know me Zach but I from watching these videos alot of the things you talk about happen to me. I'm going to the doctor in a week, but the wait has been painful. I'm sorry that your going through this, but thank you for sharing it so I can get help to. I appreciate your strangth, even if you dont know me. I've been ignoring the pain all my life, and I absolutely hate excersize. Recently I've gotten my first job and its put a strain on my back and my bones. Thank you, thank you so much. You have been one of the strongest people to push me in my life. Which is sad, because my family doesnt care. The invisible part is hard, but you brought me up. Thank you.
I was diagnosed with an autoimmune disease, Multiple Sclerosis, and i definitely understand everything and how the flare up sucks and no sleeping and how depressing it can be sometimes
This is literally one of the most inspirational things I’ve ever seen. Never stop being so real, your trying your best and even sometimes that’s not enough and you’re saying that’s okay. It’s so hard to realise that there are bad days and good days but it doesn’t stop anything
Please look into the Mayo Clinic PRC program. I went to Jacksonville for a month and I have been able to function with greatly reduced pain since. Hang in there! Thank you for sharing your struggles with us.
This should be a fricking documentary! Damn this is so good! I really hope that everything works out because the try guys can't loose Zach when they're trying crazy things like skiing or jumping out of a helicopter!!! We're all praying for you Zach 🙏
Martina from Simon and Martina has EDS and she made a similar promise to herself. I’d love to see you two speak more about your experiences dealing with these diseases. #buildaladder
Hello fellow Nasty! It makes me so happy to see this here. Especially in support of other spoonies around the world! We need to support each other ❤️. Chronic pain is so hard to deal with. It’s hard to explain to other people too. But more of us are being acknowledged and listened to and that is awesome.
Zach, thank you so much for this video. I have Cerebral Palsy, but I was very lucky since it's not too bad, I'm very mobile and I have what I would call a "mild case".. if you could even call it that. But it also made me ignore it in a very unhealthy way, I always thoùght "hell it doesn't matter that my legs burn with pain so bad that I can't walk a half a mile without stopping or that I can't go to work because my back seized up and I can't even sit upright" because I felt like I wasn't allowed to hurt because others have it worse than me. This video made me believe for the first time in a long time that I can prioritise my CP, my body and myself. Thank you
Helena Kristins literally in the same boat. Mild cp.. Feeling stiff every once and a while.. But yea like Zach says.. Laziness does nothing for you so I got to keep up those healthy routines to keep me ok. Much love to you Helena and especially to you Zach! Sending you positive vibes 💗🤗
I have a mild case of CP as well. Others might have it worse, but we have to listen to our bodies and understand that our limits are just as important.
This is quite different from most videos on youtube about disorders. It seems more real and acknowledges that he can help himself and He can make it better, but it might not work 24/7 and that's ok. I feel pity yes but I feel inspired by your story and it motivates me to actually take control of my life
I put it out there to show that anyone can be diagnosed. The disease doesn't discriminate. It's to show that to a sense, I know what this man is going through.
@Star you have no idea what you are talking about, if you had one day of AS experience you would never had said such a thing. As hard as AS and autoimmune diseases are, I think it is worse to live with no empathy. Charli, wishing you the best. Keep on fighting.
@Chris Paez I feel you on so many levels. I went through years of agony. I couldn't even dress myself, I needed my mum to help me bathe. It's the most awful thing to have all your independence stripped away. I would cry every day due to the amount of pain I was in. I was rejected by countless doctors, told that I should just take painkillers. But after 2 years I was rushed to hospital because my back and hips seized up,and I was literally screaming in pain. And finally when I was referred to rheumatology, I got diagnoses with A.S, Bursitis, and Sciatica
Zach is such a beautiful soul. I hate that he has to suffer.
I agree. It's always the most beautiful souls that suffer the most. Or the ones who suffer the most become the most beautiful :)
SAME
I'm your 960th like.
He is amazing soul amazing Zach our god
(Invisible illnesses are shitty people often don't belief you)
Chronic Pain is horrible. For everyone of us living with it I wish you strength and that other people may understand.
Noel Linné just like mental illness and pain. No one sees it so it’s not important. It’s awful.
Noel Linné I’ve got one too it fucking sucks, I feel for sack. I hope he, I & all of us sufferers of whichever disease we have to get some sort of comfort
My mom told me something that I always think about. If your dog as sick and needed medication and a certain routine you would do it completely and make it work. But why do we not do the same with ourselves? I feel like once we start to feel to better we stop what is making us feel better. It’s something I’m struggling with but working on.
Keep at it!!😊
Ty Wolczuk
Maybe il
I think for some people it's a, "you don't know what you've got 'till it's gone" situation.
this man could give a freaking ted talk
I would love that
I moderated a talk with him when he was promoting their new book, he spoke for nearly two hours, only needing a one or two sentence long question to then go on a twenty minute engaging answer. Remarkable speaker.
Well he does tiktok ted talks hahaha
@@joolz9426 he does tik talks
Ned talk
I am ugly crying. Zach keep fighting, we all love you so much.
Josselyn Malespin Heeey we got the same name. But yes. ZACH KEEP FIGHTING
Josselyn Malespin same man.
Zach! Try to find place where you can go to water aerobics classes every week! It's seriously FUN way to help your back and body - and water helps take pressure out from the joints/inflammations more than just doing those things on a ground.
So I hope there is something like that. I know water aerobics are usually meant for grannies - but seriously it's most helpful thing in any kind of chronic physical pain and have saved me - and many in my class - dying from it.
And all of us have different illnesses what causes those pain.
I know a 9 year old who does hydro therapy. If you need it or it could help you, I say go join them grannies.
@La Barbera Tejana I've gone with my great grandma and grandma and it was so fun XD no judgey peeps, just looking to do our thing.
Also water aerobic trainers know many different ways to do stuff what is difficult because of the pain or some other reason.. You just have to ask. Because they seem to be ones who have seen so many varities of different kind of neurological and physical problems.. So they do know how to work around if you have problems with certain areas.
You have to just find the one that fits for you and just talk with people in your class and to the trainer.. It might be awkward at first but everyone goes with their own speed - and that's the point with the water stuff - it forgives the speed and mistakes. It doesn't hurt as much when you make a mistake when you do it why at the gym.
I'm so sorry you're dealing with this. I love you, stay strong💔
The “all in my head” phase. Gosh as someone with chronic invisible illness I can relate to this SO much.
Me too
I changed the like from 69 to 70 in sorry
Does it ever stop? Three years later, I still question myself.
@@mikaylabowen5185 it hasn't for me, three years later as well and diagnoses from rheumatologists. I hope it does!
SAME
“It feels like you’re deteriorating on the inside but have nothing on the outside to prove it” I felt that
Melanie Malcomson same though.
Thank you for being so honest about your challenges. I don't have A. S., I have fibromyalgia and CFS. It's so hard to not talk about it, and so hard to talk about it. I want people to understand and accommodate my disease, but I don't really want pity. It does help to know that someone, somewhere, gets it. Good luck on your journey!
a very accurate summary of how it feels to have an autoimmune disease 🥵
Melanie Malcomson I felt when he said he doesn’t know what it’s like to not be in pain that hit hard
Leah McCoy My girlfriend struggles with the same issues and it’s very tough. It takes a strong person to deal with constant pain and still put a smile on there faces.
My heart sank when I saw this in my notifications. I'm really proud of you for fighting this for 10 whole years, I can't even imagine how horrible it is to live with something like that. I'm so sorry, my smol bean. No one should go through this but I couldn't be happier about the way you're handling it.
Prayers out too you man
I’ve underestimated my good health until I was diagnosed with an autoimmune disorder too. I feel like I’m deteriorating inside and outside. Chronic hives and constantly feeling ill. It sucks so much. Take care of your health guys, cherish it, and eat better quality foods.
Cannot agree more!! I also have an autoimmune disease and strict diet is the only thing that helps me.
Seeing how the other Guys interact with your pain was really sweet. Gentle and understanding, but still treating you the same. It really emphasizes the “everyday life” point you were making, that it’s just part of you guys’ routines and that’s why it’s so important to acknowledge. Really lovely video Zach, thank you for opening up about this
This has to be the most genuine, motivational, and inspiring video of The Try Guys and ultimately RUclips. He didn’t give us a “It gets better” he gave us “make the best of it” and I feel that’s a better representation of the world we live in. I absolutely love this video and think Zach needs his own Ted Talk. Love you guys and love watching you grow.
I'm 24 and was just diagnosed with thyroid cancer after years of feeling like I had the flu 24/7. All my blood tests were completely normal and the doctors ignored my symptoms. I finally ran into a doctor who listened and ordered a thyroid ultrasound and found multiple lumps on my thyroid. After a long, LONG, long time... finally I was diagnosed with cancer and I'm having my thyroid removed in a few days! Don't ever ignore your symptoms and if you feel different get a doctor who listens to you! YOU know your own body.
Ronnie Smith Your welcome! I know what it’s like to know something is wrong, but have no one believe you. Hopefully soon you will discover what’s going on with your body and they will fix it.
While I’m not happy about thyroid cancer, it’s so good to have a diagnosis and to have my symptoms validated and now they can work on treating me. I can finally feel normal again.
Good luck! You will pull through. I am glad you found out after all this time. My mom had that surgery and she takes synthroid now, but she is much better.
Omg... Wishing you every ounce of strength for coming period. 😘
Hope everything works out. I got sick a lot in 6th grade and my doctors said "OH YOUR FINE ITS A MINOR COLD/FLU" and a missed a lot of school. Next thing I know my parents say "try giving your birds away" (yes I had 2 parakeets) I gave my birds to my friend. AND HAVEN'T GOTTEN THE FLU SINCE... now I take everything with a grain of salt from doctor when I know I am having a bigger issue. (I mean how hard is it to find out if your allergic to birds)
Thank-you everyone. I appreciate it!! Thyroid cancer has an amazing outlook. If your going to get cancer- the thyroid is one of the best places. Normally they just take it out and replace the thyroid hormones you take by pill. It has an amazing turn over rate!
zac i'm literally binging all of these ankylosing spodylosis videos. I just got diagnosised today and the first thing i thouht of was all of your videos. Thank you for sharing so many videos on your journey
How are you right now??
I hope you're doing good!
hanging in there/ starting meds soon. It s a struggle
@@laurae6781 a struggle you'll get through 💪🙏
i hope your doing good :( my mom has A.S. also and i hope your having treatment bc my moms had it for years and still isn’t on any medication and is in pain :((
The second half of this video made me cry. We're all rooting for you. You're so strong.
You are just like the sweetest thing!
Oh I'm full on weeping and trying to grab onto that same fire he has. While I don't have AS, Im struggling with a very similar situation and mindset. ❤️
@@a.i.3609 You got this ❤️
Daisy Vazquez I can't properly express how much this simple comment affected me. Thank you ❤️
I'm not
Thank you for bringing light to invisible illness and the struggle with staying on top of the pain management even when you reaaaally don't want to. I've had fibromyalgia and chronic fatigue for 12+ years (over a third of my life) and extremely painful chronic rib subluxations for over 6 years. I think one of the hardest parts is hearing that there's nothing else medically that can be done year after year after year. It's truly exhausting and defeating.
But once we accept it's up to us to keep up on the pain management it becomes easier to see the effects - especially when we start neglecting ourselves. I was able to start a Spoonie Discord server for the sub community of watercolorists from my little corner of youtube and it's been enlightening to see how many of us struggle with chronic illness and how we've come together in the last several months to support each other on a daily basis.
I wish the very best for you Zach. You've got a great outlook and I know you're surrounded by awesome people and an awesome community that will help you on the day's it feels impossible.
In Liquid Color I was recently diagnosed with fibromyalgia. It is awful, especially when I have class and I’m sitting in a lecture hall for over and hour, or when I’m trying to sleep. The pain is always there, especially in my back. Though one of the worse parts is the shaking and the headaches. I have a headache everyday and my hands are always shaking, though sometimes it is so severe that my legs shake and I get dizzy. It’s helpful knowing that someone else understands the constant pain of dealing with an invisible illness. I have had people tell me that there is nothing wrong with me and that I’m just faking the pain!
Ah a fellow red panda with fibromyalgia. Good luck friend. You are not alone. We will get through this.
@@joannaferro3370 often times other things get wrapped up into the fibromyalgia label but are actually separate conditions. I believe the shaking may be something that some people with fibro face, but is actually something else. My rib subluxations are what cause me the most pain and I didn't know it was a separate thing until much more recently. Always be an advocate for your own health! It can be hard hearing no from doctors, but they're slowly learning more about chronic illness and how to manage them. I hope you find some relief! 💜💜
@@IamaKaliedoscope 💜🤗
In Liquid Color thank you so much, you are so strong
I clicked this video because I read "autoimmune update" and immediately thought of AS, because I have that disease too. But I am actually SO surprised Zach really has the same thing. I can confirm the pain is unbearable, I've dealt with lots of pain in my life, but this one is really... something else. For me personally it got so bad I could barely walk on my own, or even stand up. It took years to be diagnosed, and when it was, no medication worked on me, until they tried humira (after, I believe, one year of trying different things). I have to inject the shots every two weeks, and it's working great, although the side effects can be dangerous. With AS it's unlikely to ever be completely without pain, but it can get better at least. Zach, I really feel your struggle and I'm very moved to see someone making a video about this. Thank you for sharing your experience, I hope you get better and better!
I would love if Zach made videos about his workout routine and the diets he tried. I would find it very helpful and inspiring!
I also would love to see that!
Would Marijuana help the pain?
@@itiswhatitismydudes Unfortunately marijuana didn't help at all. :/
"if im gonna talk the talk im gonna walk the walk" i literally adore zach, this is such an important, honest, educating video that we all need to see
So much love, Zach. I’m so sorry. You’re a strong guy.
I've never met you, but I love you Zach. You make the world brighter by being yourself. I'm sorry you are going through this.
💕
I agree tenfold.
Yeah Zack I’m really sorry your going through this
Agreed
offbeat kiki I aggressively agree
I love this! I have depression and anxiety along with some chronic physical pain from my 20+ years dancing. I’ve stopped taking care of myself this year and I’ve gotten a lot worse. Thank you for inspiring me and reminding me that I can’t just give up on myself! I need to keep taking care of my body and mind every single day, even when I don’t want to. Especially when I don’t want to.
My name is Elizabeth. And I’m getting worse. But I am also getting better.
Get back on it!! We all hit potholes on our road. You can do this!!!
Lol
You go girl!
I have similar disorders and I understand how the cycle works. Feeling pain continuously that keeps you from experiencing life as you once did leads to the depression, which causes anxiety over not being able to be you. My heart goes out to you and others like us.
TerriD D omg you explained the cycle perfectly
Sending many good vibes from a fellow autoimmune disease person. “Invisible” diseases really suck. ☹️💕
Jade Cooper i have 2 invisible illnesses :(
It sucks every day
I have endometriosis I hate it when somebody tells me i look fine because it feels so horrible it feels so dismissive when somebody tells me i look fine.
AS isn’t invisible if you’ve had it long enough and chronic enough.
Zach, I’m over sixty & have been through all you describe. Because I have the same syndrome since for ever, was diagnosed about 15 years ago,
I’ve been through opioids, forget that. I’ve been through PT, I use a TENS unit. I have days where I can’t cope still. But they’re growing less.
I’ve come to realize that exercise alone can actually cause more bone growth. But recently I’ve had a huge improvement. I realized that laying down sometimes makes me stiff, just like how exercise can aggravate it.
But I bought a zero gravity chair. It takes the pressure off my spine! Then as my sitting & sleeping were more comfortable, I was able to sleep through the night. I’m a lot more limber now. I still have daily pain, but it’s at the level of a small chronic ache instead of being down right unbearable.
This lengthy thing is to suggest working with a physical therapist instead of a gym. They can measure a baseline for your spine & they spend more time with you than any Dr or nurse. Because knowledge can help you make decisions. Get lots of massages from a LMT who understands the diagnosis. For a while my PT & LMT communicated & that lead to the Zero G chair. Stop pushing yourself to exercise to maintain range of motion. My PT helped me recognize the serenity prayer applies to A.S. Figure out instead how to remain active & exercise without promoting bone growth.
Our similar situations are kind of like bunions on your feet. Too much pressure makes our bodies react by promoting bone growth. Tai Chi, or a gentle guided Pilates session can keep folks like us limber without aggravating pain or bone growth.Because of bone spurs, I even got custom insoles for my shoes! As I’ve worked to reduce pressure on my spine & bones, my quality of life as grown quickly.
Enough from me. Mindfulness is the key. If anything makes you ache, stop + evaluate if it’s tendon or bone. Tiny ache is normal when exercising. But please stop everything that makes you grimace.
I really hope he sees this great and amazingly helpful comment
Let’s like this so Zach can this this amazing comment!!!
I hope the this helps him a lot !!
Hopefully Zach sees this :)
I hope Zack sees this !
I'm 57 years old and I've been dealing with Spondylolisthesis since I was 19.
I was told it's a genetic disorder and hereditary. I was born with it.
A vertebra with a crack.
At 19 I jumped from a tree stand on a rope swing.
I slipped and fell on the side bank of the river.
I broke the cracked vertebrae.
Now it slips and falls on my sciatic nerve.
I get an epidural every three months.
I can't have surgery because the next vertebrae will break.
My doctor told me I'd never get over the pain of surgery.
Like you I've forgotten what it's like without pain. (I also have degenerative arthritis everywhere)
In a way it's a good thing I don't remember because I've learned to live with it.
My life is controlled by it.
I know what I can and can't do and go on about my life.
I'm not gonna lie, there have been times when the pain was so excruciating I wondered if I was strong enough to deal.
YES! I am!
Being limited makes me angry sometimes but then I think of those out there worse than me and I stop feeling sorry for myself.
I feel your agony and hope there is something out there you're able to do to not have to go through this.
We're so much stronger than we think!
@melanie milk You have a problem?
@melanie milk dont be rude
I know you posted this 3 months ago, but my best friend had something similar to this after being a car accident.. he went for years with the pain but it slowly got worse, which turned into depression. He ended up committing suicide.. i miss him so much. I hope you find some relief and keep on pushing
@melanie milk
why are you being so rude?
PJ Owl go back to playing with your barbies and gacha studios kid
This was such a good reminder that slacking off on self-care has real consequences. I had a bad cold then my gym was closed last week so it has been 2 weeks without much exercise... and it hurts. This week I get back in the game and rebalance. While my autoimmune disease can make it harder to travel, eat out and engage in certain activities-I can't and won't stop living my best life. I just have to live it with a little more attention to detail in prepping, planning as well as knowing(and harder still listening to) the signals and signs for me to slow down.
“Eugene can u open this for me”
“This does not effect your fingers”
It definitely effects my fingers and hands.
@@goddesseri1 same here.
Lol oh wait it will! My fingers are bad.
"I'm getting worse. But I'm also getting better." Dang, that's just so perfect. Sending you love and good vibes, Zach! 💖
how can you not love this guy?
he’s deep, nice and funny.
how can you not love zach for keeping on with his disease, for starting listening to his body, for sharing his story with us.
how can you not love zach?
💞💞💞
Zack I recommend swimming. Swimming requires every part of your body to move. It’s fun and you get to cool off.
Edit: Gee! You guys are amazing. I hope Zack sees this!
Good suggestion! It's also low impact so you're muscles and bones don't ache as much after.
That seems like a really good idea
My mom has chronic back problems, it's the easiest thing on her
I had to do that for P.T. it works wonders, stay strong Zach!
your
People without medical issues are SO FRICKEN LUCKY. I feel like sometimes they take it for granted, I know I did before I was diagnosed. But really if you have nothing physically wrong with you, be happy about that. You don't have to go through some of the pain and fear that others go through. So don't take being healthy for granted.
'I'm getting worse but I'm also getting better' I needed to hear that. Just like I needed to hear everything else said In here. Thank you for being so incredibly open with us zach. It helps us more than you can ever know
Aw man I’m just here left in a sloshy puddle of my own tears. You’re so strong, Zach. Thanks for all you do. We’re all rooting for you 💜💜
AnnKNEE :3 unordinary
Totem sole 15 lol That’s what I thought too
💚💚💚
I agree 😭
...UNORDINARY!
Zach, thanks for sharing this with us. Thanks for showing what life is like. I may not know what its like to live with this as its an eye-opener to understand what you and others go through on a daily. I hate seeing my dad being in pain every day with his osteoarthritis. My dad's condition is getting worse as his bones are deteriorating in the neck and spine region as some bones are fusing and he gets pain in his thighs, back and others. Thanks for being you. Stay strong and brave. Do what is best for you, Zach. Try and enjoy life and good to see that you're focusing on you and your health.
Why are people getting this in their recommended when this was a year ago
Omg I didn’t even realize it was from a year ago. It was in my subscription box
so whatever happened to this dude lol
God hates gays
When he got pounded in the ass his back blew out
youtube has been doing that with loads of videos recently i’ve no clue why though x
yes for invisible illness exposure! I'm sure most of us in the chronic disease invisible illness area agree that it's sometimes weird talking/complaining about how much pain you're in or the difficulties you suffer with because your suffering isn't as obvious as others is. I know personally, being fifteen (I have JIA), it's difficult to accept your body isn't perfect in other ways than artificially. Thanks you for speaking out and helping us become more comfortable with our disorders, bodies, and experiences. It's so great to see this community unfolding in the comments.
I feel you. 15 and a Crohnie. 💜💜💜💜💜🥄🥄🥄🥄🥄🥄🥄
sefire chaves I'm 17 and have been dealing with an invisible illness for a few years now and it sucks. Especially as I'm going through the same a someone with cancer but because it isn't people treat it lightly. They think I'm fine and it sucks so bad
"It's got to the point where I forgot how it feels to not feel pain anywhere"
Dang I felt that
I often ask myself what happened where did we get to the point where we feel nothing not even joy 🤔🤔🤔😱😱😱
No you didn’t
Yeah..same. I have hurt every day for 12 years. I don't even recall what it's like to be able to wake up and do things...
I literally just told that to my 18 yr old son today- it made him so sad- but I told him I did remember what each of my muscles would feel like when I exercised and that i lay in bed sometimes and imagine running on trails or doing gymnastics etc. Or even just skateboarding with him. For 8 years ive had severe nerve damage and got an autoimmune disease etc. Etc.- because of one arrogant dr who inserted a giant needle into my spinal cord and pushed steroids and meds inti my spinal fluid I was paralyzed for6 months and I live with very severe nerve pain 24/7 even with heavy sedatives and opiates- but I have I guess learned to live with the pain and constant sicknesses- but I realized just a couple of months ago that I have been grieving the energetic hyper fun hilarious active mommy and mommy that I used to be. My life echoes yours- nonstop pain no sleep constant weird viruses exhaustion not being able to go places like family dinners and holidays with my family etc.- losing my life that I loved and longed for. Im trying to heal from the grief and im working hard on it so that I can accept that this is me still- just a different kind of me and I can still be a good mommy- just different than I was before etc. Etc.- I want to be happy and show my kids that you can live life with trials etc.. I'm getting tested for AS next month- it shocked me when you said that's what you have. Each year it seems that I develop more weird diseases and nerve issues- like trigeminal neuralgia- worst pain in my life. Oh and the dr- I went to a big shot lawyer who said he only accepts cases if HE will make 6 figures from it and he immediately accepted mine because there was proof in the records from both dr and nurse from that day- but I freaked out and was scared cause he said he was going to push it ti trial so we would make even more money etc. Etc. Etc.- and I was on such heavy drugs that I wasn't used too yet- I got scared and dropped the case 2 months before the statute of limitations mostly from fear but also because it had only been two years and I truly thought I would get better. Worst decision of my life!! My hubby works physically hard 60 plus hours a week and we are having to declare bankruptcy because of my medical bills and medicines. We are broke with 3 incredible teenagers- 2 of which were born with rare painful diseases that cause hospital admissions often and our house looks like a hospital itself with all the medical equipment for them etc.- thank God they qualify for state insurance- but because of me- we struggle so much and my beloved hubby is exhausted and our kids don't have as much as thet deserve and Keith has to miss work when a kid is admitted ti tvhe 3 hospital because I can't physically and mentally handle driving two hours to childrens hospital getting teenager inside getting myself inside and all of the walking just to get to the transplant unit and sleeping in hard chairs and just so many reasons- its the most horrific thing to watch them leave- not knowing what will happen to my baby knowing Keith is so physically exhausted- and just defeated because of our life- and the money from lawsuit would have blessed my husband and children and I got scared. A year ago I randomly met a woman who had same dr do exact same thing to her! But she was never paralyzed and a few years after it happened she didn't have anymore lasting effects- but she sued. She started crying when I told her that I got scared ans didn't sue- she felt so distraught for me and so guilty because she never had it as bad- she got better- and her lawyer just filed a claim with the drs malpractice insurance and few months later they sent her a check. She was in the process when I met her- of buying 200 acres of land and building their dream home plus her and her husband both quit there- jobs and bred champion great Danes instead- she said she could never tell me the amount she received because she couldn't even handle the thought of me knowing what could have been and more because of my personal journey etc. With being paralyzed and 8 yrs later just getting worse and worse because of it. She just lets just say we are very much set for life. So yeah- I feel ya man I really do.
Jade Flizx i really feel empathy for those with chronic pain
I WASN'T READY FOR SUCH A BOOST OF INSPIRATION SO LATE IN THE EVENING, NOW I WANT TO BUY ORGANIC VEGETABLES AND BOOK A GYM CLASS AND GO TO THERAPY.
Jokes aside; this is such an amazing way to view an illness that you will never be completely rid of. I have no physical illnesses myself, but has and always will struggle with depression and eating disorders; and the feeling of "If I don't stay on top of this, it'll get on top of me" is real. Lots of love and support from a Swedish viewer that has been a fan since "Guys try on ladies underwear".
(And can we talk about the amount of care the Try Guys show each other? Checking in on each other, complimenting each other, begrudgingly opening seaweed snacks while whining about it YET STILL OPENING THEM? I live for it.)
That’s how it is with fibromyalgia. If I had a nickle for every time I heard “You don’t look sick”, I’d be rich. I feel for you because living with chronic pain makes you feel like a sitting duck. You never know from day to day if you’re gonna be able to do what you had planned. There’s a lot you can do to help yourself live a better life with less pain, but we can’t always control it. Chronic pain truly is a full time job. This was a great video. I don’t remember what it felt like to be pain free, but it’s better. And all we can do is keep trying new things every day and treat our bodies really well.
My Mom went through the same thing with Fibromyalgia. People always told her she didn't look sick, and sometimes straight up didn't believe her. It honestly messed with her head a lot. Just know you're not alone, there are people who understand, and those who very much believe you. One right here. Stay strong.
Kati21 Bless you Kati! I really appreciate that. Much love and blessings for your kindness. 🙏🏻
Hugs darlin! I have fibro as well. My mom has fibro, RA, and MS. She's honestly who keeps me strong because I know that her pain is way worse than mine is and she's still pushing through it. We've got this! You're a warrior and fighting this is a battle we can all over come. ♡
Hi! I've been having chronic pain for most of my pretty short life. Recentky things got worse... and because they got worse, it got harder to do things that fixed it... which made things worse... so on and so forth.
A) how do you break said cycle?
B) how do you not give up hope and be bogged down by the fact that you'll never be normal? I'm tired of having to be strong and am so worried that the people around me would get fed up of my complaining because it has happened before.
@@Karishma_Unspecified I completely understand how you're feeling love. I've had to explain in great detail what it feels like when I'm flaring. Working out helps. It really really sucks for the first couple weeks but then I swear I was more refreshed, I wasn't in as much pain day to day, and my flare ups were less frequent. It helps to have people who are willing to listen and be that support system we need at times. I recently broke to my husband and told him that I felt like a 3rd child he had to take care of. Luckily he is my back bone and knows I was just feeling upset. No one ever talks about the guilt we feel from having chronic pain and the constant fear of feeling like a burden. Trust me though even if it's just light stretches it helps so much. Hope you're well!♡♡
Hi Zach.. i was also recently diagnosed with an auto immune disease. i have symmetric psoriatic arthritis in both my wrists and i have pain every day.. especially when i wake up. we just got to keep moving forward and staying optimistic. im 30 years old... but im glad in a way im dealing with this now rather than later... stay strong 👍
Hey, that's what my doctor's thinking I have- it's been a little over two years and this is what everything's pointing at, I'm real sorry you have to go through that too
You can do it Zach! Everyone with invisible illnesses is celebrating you, you’re doing a good and brave thing by sharing your experience, you’re opening eyes and minds. Good luck with your AS going forward, you can do it!
I have several autoimmune disorders and live in chronic pain. And I look ok on the outside so people struggle to understand that I am sick. No one wants to accept being sick. It sucks. I hope things get under control for you and that you find some relief!
You are really sweet and kind please keep sharing things like that
Have you tried the carnivore diet? It basically cured Jordan Peterson and his daughter, they have it terrible and they don't have any symptoms any more, watch clips from the Joe Rogan podcast where they go in detail about how they got rid of it
The spoon at the end brought me to tears. Sending you all my love from one spoonie to another. This means so much to me when I am still trying to figure out how to care for and accept my illnesses. Thank you ❤️
Did- did I just? No I'm not crying.
I'm bawling my eyes out
I’m not crying you are😰
My eyes: nervously sweating
@@sirsteve8999 lol I know that
@Pablo Herrera oh man I'm so sorry both of your profile photos are from the dark side I got confused 😂
There’s something in my eye.
Yeah it’s sadness
Literally the best sentence my friend said to me to cheer me up.
“My name is Zach I’m getting worse but I’m also getting better”
It made me feel better like you feel pain but you can be so brave to live your life and say your not going to stop me to that diasease we love you Zach ❤️
Anyone else in tears? Like Zach we love u man❤️💗
Was recently diagnosed with an “invisible” disease as well and while no where near as serious as this, this hurts to see and I hope to find the same strength you found to get through it.
My Dad has A.S. Had symptoms since he was a kid. He's 52 now. Taken all of the immunosuppresents, all the narcotics for the pain, nothing worked until he found CBD oil. Like pure, 100% marijuana CBD oil (not the hemp CBD oil from health food stores, that's not real CBD). You don't get high from it if you're worried about that. After over forty years of pain, he's finally able to function. It's unfortunate he didn't find it sooner, as his neck is now almost completely fused, his spine is completely fused, and his lower diaphragm is fused which makes coughing and sneezing painful. If you've found a treatment plan that is working, stick to it! The "best" thing about A.S. is it can spontaneously burn itself out, meaning one day you could just wake up and it'll be completely gone. The damage it does is permanent, but it could just fuck off one day for no reason at all and stop causing any further damage. Also, GET GENETIC TESTING. Some people with A.S have a genetic predisposition which increases the likelihood of your future kids having it as well. I wish you the absolute best Zach, I've watched how fucking shitty A.S can be, and I'm so glad you were diagnosed young and have time to adjust your lifestyle now to prevent fusion in the future.
thanks for sharing! for anyone who doesn't know: CBD is Cannabinoid. Cannabis. also a particular [cannabinoid receptors: cb1 & cb2] sensor in the brain/body that manages feel-good perception. anyway, cannabis is one of the many plants that create a certain amount (15% atleast ) of molecules called "beta-caryophyllene". beta-caryopyllene has great therapeutic potential for pain, pain-perception, inflammation, anxiety, and certain ulcers. other plants that harbor this particular constituent is Copaiba, Black Pepper, Ylang ylang, Cananga, Yarrow. Copaiba having the most beta-caryophyllene and probably the only one that won't stimulate the wrong issues. excluding beta-caryopyllene, another route are plants like geranium, palmarosa, & patchouli, for instances of inflammation; geranium being the one that is least likely to interact with most meds. source: i'm studying organic chemistry, botany, & aromatherapy.
CBD is a great painkiller I would highly recommend
Aldewyne you are right, CBD is a painkiller, not a remedy.
When you're not in as much pain you can move your body more which slows fusion. Staying stationary is the absolute last thing you should do with A.S. I never once implied that Zach or anyone should stop immunosuppresents or any other medication that your doctor prescribed for the actual progression of the disease. That would be incredibly stupid.
YES! I totally agree. My mother suffers from late stage Lyme Disease and it reeks havoc on her heart, brain, bones and muscles. She lived in constant pain and inflammation and could hardly remember my name most days. Until she started using CBD oil. She uses them throughout the day so she's still able to work and function. And at night, she uses low dose THC to help her fall asleep. It's greatly improved her quality of life and has, frankly, saved it. It's really amazing what a little oil can do.
You have given a voice to those of us who have “invisible” illness. The worst is when people are convinced you are lazy or a ditz especially during a flare. I’ve isolated myself to avoid talking about it. The “why” questions or the advice from people who don’t know anything about it.
My best wishes for you, you are now one of my hero’s
I totally agree with you. I have arthritis, fibromyalgia, narcolepsy and cerebral palsy. Thank you for being a voice for us...I love your channel and my thoughts and prayers are with you.
Nah, he's just looking for attention. He knows itll get more views.
omg dude just bc this is posted on RUclips doesn't mean he's just doing this for the views Sharing his experience may help other people who went through the same thing and it DID help people when he uploaded the first video talking about this
I’m with you, we needed voices about our disease. I live with AS and everyone sees me acting normal without realizing how much pain I’m in.
I love this as well! I have chronic reflux and stomach inflammations and can't eat like everyone else since I can't stomach everything well (I like spicy foods but Tobasco makes my stomach burn to the point of hurling). I have troubles digesting which leaves me with vitamin deficiencies and makes me tired and groggy and people think I am lazy and or stupid. "Invisible" Illnesses are such a pain since healthy individuals just can't relate because "you look healthy" and "it can't be that bad" or "well your legs arent broken so dont complain".
Zach: I think I look ok
Everyone else: Zach you are frickin gorgeous
P.S. we love you Zach
Yupitsmebrody omg agreed. He actually looks like a guy that I dated. So goddamn attractive!
Hi. My name is Dellana. I was diagnosed with AS 3 months ago. I am just starting the same med that you are on. You are an inspiration. I just want to say thank you for showing me that my AS does not define me. Thank you! 🙏💕
what medication is he on? I have AS as well.
The lead singer of Imagine Dragons, Dan Reynolds also has AS. It really sucks how some people are born with things that they can't control. It's an unfair disadvantage of life and I feel for you Zach. I'm sorry.
I never knew the lead singer has AS. The more you know...
Former guitarist of Motley Crue Mick Mars has it and has it pretty bad.
Doesn't Austin Carlile from Of Mice & Men have that too?
@@stephanieann6622 Austin has Marfans Syndrome.
Ashley Duhon Yes I know he has Marfan's, it's a genetic syndrome that effects the connective tissue, which is why his body looks the way it does because it affects how he grows and develops. But I thought he had mentioned having AS also.
yeez man, I normally come to your channel for a bit of fun after a work day, but today you made me realize that I have been doing the exact same shit all my life, neglecting my physical health, being lazy and self harming. I don't have a disease, I'm overweight and I have been all my life. Thank you for this video, you have no idea what your words mean. Hope everything gets better.
Same
Kick it's fucking ass y'all. 🤘🏽
HIT THAT GYM BRO OR SIS
I have a rare heart condition, it has only been written in the medical books one other time. All the way back in early 1900's, its scary to know that, But to also know that you are dieing 3 times faster than a normal person and I am 19. The only way to fix it is to have open heart surgery with a 32% survival rate. I have testing 1-3 times per year, I have to exercise and eat healthy. I hate it but I got to live with it for as long as i can. All I can say is to everyone sick or healthy, live your life to fullest through pain, suffering, depression, happiness, anxiety. It doesnt matter how long u will live, it matters if u are happy. So no matter what goes on at least put some effort into being happy.
You lost any weight yet bro?
A good way to exercise is to go swimming! You use all of your muscles! Get better man.
Nutelli it also doesn’t take such a toll on ur body!!
Swimming is excellent exercise. It keeps you active and healthy. It can help expand your lungs and there are no other components to cause physical pain (like people tackling you or a ball being thrown at you.) I've been swimming since I was 4 and the most I've hurt myself was a few scrapes from the walls or lane line
That’s what I do for my arthritis! It’s great.
RUclips:
2018: nah
2019: almost
2020: OK NOW
why was this recommended 2 years later
everyone asks this yet noone can answer
We're all with you Korndiddy❤️
I have seizures and I can relate to you so much. People hardly see me sick, unless my migraine has made me so unbelievably sick that I can’t move. I’m the opposite when it comes to moving, though. I got a Summer job, and quickly found out that I can’t be on my feet for more than four hours. It’s illegal for me to drive, I take a crazy amount of meds, I have to be driven everywhere... It freaking sucks. The next step is brain surgery. I’ve lived with seizures and the fear of having them most of my life. Surgery is the only option I have left (told to me by MANY doctors), and I know there are seizure patients that have it worse, but it’s still scary. I’ll be praying for your A.S., Zach. Wish me luck as we try and figure out my own body that also tries to kill me...
Hope you get well soon💓💓take care
Gallifreyan_Hunter I’ll be praying for you
My father have seizures, keep on drinking those meds everyday. He just dealt with it. He's currently 56 now and his last seizure was 8 years ago
Woah, same. I have no help with family so I drive even though I'm not suppose too. I can't work more than 5 hours a day either and its hard. I'm having to live with my boyfriend because I have no one else to help me. I can barely afford my meds too, dude we have a lot in common.
I send many prayers and I hope u get better.🧡
I absolutely love how much the guys can share their truth with us now that they have their own channel. THIS is the kind of content i prefer: Creating personal, worthwhile videos from each Try Guys' pov. Bless, Zach. Sending you and the guys prayers and positive energy
Am I the only one who teared up during this? I'm so proud of zach!
4:15 when you say it is easy to normalize pain it is actually a psychological phenomenon called learned helplessness. It is when you stop trying to avoid bad things such as pain because you believe that you can’t avoid it. Hope you get better
Tom Hocquet It’s learned “helplessness” but yeah.
Well.. now I know that I’m both hopeless and helpless,,
DONT tell me otherwise.
Don’t give me sympathy
Its “learned” so no one is born with it and it can be fixed, this is like a bad habit thats hard to break, put possible
I've got 2 autoimmune diseases. I have nearly no ways to treat my symptoms. I want you to feel better somehow.
Poor baby!
n m change your diet. less processed foods. google some anti inflamitory foods and incorperate them.
It’s not about feeling better exactly right now. It’s about feeling stronger and having confidence in your body.
Everything is gonna get better bae, love you and greets from Mexico
Same here. Changing my diet some has helped. But seems like nothing is ever enough.
I'm sorry Zach you are going through that! All love towards you❤️
Edit: Armies please do not comment *Army* thank you :)
JiiHopee • not the time
Army everwhere❤️😂
JiiHopee •
Fuckin stop, this has absolutely nothing to do with the video. Yes, bangtan are amazing but you don’t need to comment every time you see a BTS profile picture.
Ok, I know you’re all armies, but this is not the point of the video and this needs to stop.
Army :)
I like how RUclips just recommended this video today even though the video was 1 year ago lol
Although he's in so much pain he still seems cheerful. We need more people like Zach in the world, hope you get better~
Anthony Garcia Facts
thank you for having the courage to upload this
i'm 14 and i have chronic pcod. the reason my pcod is different and worse is because i was in severe pain 24/7. i have fainted multiple times and could barely walk a couple of years ago. but over a few months, i got so used to the pain, i barely noticed it anymore. i started exercising, doing yoga and taking my pills last year and have gotten better. the cyst on my ovaries has reduced but my clinical depression is worse than ever.
my name is tara. and i'm getting worse but i'm also getting better.
(lol, just realised no one's gonna read this)
I did and I understand what you are going through. You can try homeopathy for the pains. It should help without side effects. You can dm me on Instagram to know more about my journey at digital_scribbler
I would consider getting a hysterectomy if I were you
the gajuar I’m sorry you have to deal with this, stay strong 💖
Have you tried metformin and flutamide?
the gajuar
I guess I am no one.
Aw when he was crying when he woke up at night because of the pain it was too much for me! :( He is literally one of these four guys who make us happy every time we see them even if it's through a screen, and to see him in pain was the worst. But I'm SOOO happy to see your persistence and determination is paying off. You'll kick as's ass ;) GO ZACH❤️
"Treatment isn't an upwards trajectory. It goes up and down." I felt free when I realized that. I wish you all the best Zack. BTW: You look more than ok ,you look cute ;) I hope you get better.
As soon as I read this Zach just said that!😅
You are amazing. You are loved. You are strong. ❤
As someone with a chronic pain condition (fibromyalgia), I can completely understand. There are some days I wake up, barely able to move, and it takes everything in me to get going. And I, too, have the brain fog (aka fibro fog) and sometimes that's just as bad, or worse, than the physical symptoms. As you mention, you look fine on the outside, but often feel terrible on the inside. People often don't understand when something's not a "visible" condition, but it's no less real than ones that show externally. The thing I've learned is that some days are great, some days are bad, and that having a chronic pain disorder is one hell of a roller coaster ride. I've accepted that I'll never fully be at 100%, but that's ok. I live the best way I know how, stay active, and try and do things that make me happy. Most of all, I put myself first and know when I've reached my limit, and that there is nothing wrong with saying "I can't physically do that". The one thing you CAN do is keep living your life and keep being true to yourself.
Fellow Fibro here. You're not alone!
Hi Firecracker! I thought i recognized you from Lost in the Pond! I have fibromyalgia and it sucks. I'm completely disabled trying to hold my life together and take care of my brother who has lupus and is on the autism spectrum. Thank God for RUclips! These 10-20 minute shows take my mind off the pain. Hang in there!
I do, too! And I hate that it always makes me feel like a fraud because I am worn out or can't remember what words mean because I haven't slept and have had a headache for a month or w/e since I'm young and, obviously, it's an invisible illness. Like. I know the people who love me believe me, but it still doesn't make me feel any less like I'm actually just a big whiny baby. It's so frustrating! And I can't find a suitable job! D:
Fibro club
It's so wonderful to know I'm not alone. Since getting diagnosed I've wanted to talk to people about fibromyalgia and how it's not just pain it's so much more. Y'all are beautiful people. Thank you!
I can relate to your symptoms. I have an adjustable bed that really helps me when I wake up at night with back pain. I can adjust the bed to a position that relives my back pain. You may want to try a bed like that.
Also, a much cheaper way is just creating a literal nest of pillows.
I do that at hotels.
ZACH WE WISH YOU THE BEST WE LOVE YOU
*Zach. I know it's annoying when people do this but I just want to make sure you know.
SONE_2007 its zach... he actually hates it...
Ok, you don't get the joke. I WROTE IT LIKE THAT ON PURPOSE, that's why it's not in capitals, calm ur shit guys
@@Alex_Sosa9907 Sorry. I don't always understand jokes in comments.
No idea why this was recommended to me today.
But holy hell i needed to hear this. Thank you
Oh, Zach, my heart hurts for you. I've been watching Try Guys/Buzzfeed videos for so long that you all feel like friends to me. *You* feel like a friend to me, and I hate that you're suffering. Please keep fighting your hardest. You have more people supporting you than you can possibly imagine. Take care, sweetie.
We need to make sure Zach feels happy...
GET THE HUGS AND LOVE ❤️
You go Zach! Kick AS in the A double S! I'm glad to hear that you're taking charge. I'm sorry about your pain and I wish you the best of luck!
Mallorie Louann is he ok
My name is Melissa & I've been diagnosed with AS for 15 years, since I was 30. Multiple surgeries, baseline pain of 4+ daily, weight gain, lost 12 teeth so far (sjogrens), eyesight going, and new disc in my neck.
But watching this (someone on my AS support page recommended it), I'm feeling like maybe, if I try a little more, I can keep doing this.
This disease sucks. And it's easy to stop doing what is good for you when it hurts so damn bad.
My son LOVES you guys! His name is also Zach.
Loves, spoons and gentle hugs, new AS WARRIOR!
I think the biggest message from this video is to OWN it. Own your health. Own your choices, Own your body. AND OH MY GOD - THAT IS SO REFRESHING SO SEE. Thank YOU for sharing this, Zach. It takes a lot to own up and hold yourself responsible to your choices after finding out a diagnosis like this. Thank you for sharing and for making such refreshing videos.
Zach, I’m in tears...literal tears. You’re literally the most inspirational person I can think of! After all of the rejection from doctors, the diagnosis and all of the pain you have to deal with, you still have a smile on your face and a big ass swagger in your step! After you made your first video about your diagnosis, I loved you just that little bit more than before, but now, now my heart is bursting for you! Thank you for being you, and not letting your invisible illness define you. From an invisible illness warrior to another.
Realized while watching this video that you all leaving buzzfeed meant losing a (probably) great insurance plan.. living with both an immune and auto immune condition I understand how terrifying that must have been.. especially for you and ned with a wife and baby.. good luck on your journey, i have gone through the ups and downs and denial at times for almost 17 years after getting diagnosed at 15. I’m my conditions worst enemy and I’m fully aware but it doesn’t make it any easier..
I think Ned's wife still has a job, so maybe him and the baby is on her insurance plan
but thet made the right choice, if you look up "why i left buzzfeed" on RUclips, you see a lot of videos, so honestly I wouldn't blame everyone at buzzfeed if they left
Not that this video is about Ariel's insurance, but I'm fairly certain she's her own boss in her work/ doesn't work for a direct company with benefits.
Hopefully they all found good insurance through the marketplace prior to leaving buzzfeed. It could also be a reason that Ned was still active in Buzzfeed even after eugene laugh/while they were setting this up, or why it took Zach, Keith and Ned longer to leave buzzfeed.
@@SarahSarahR Ariel has her own company buying and reselling antiques and interesting items.
I'm sure leaving Buzzfeed also meant that they don't work for anyone they work for themselves and control their time so he has more time to actually care for himself
This is so nice to come back to and relate to. I got diagnosed with AS literally yesterday, and I was immediately like “I need to go back and watch Zach’s video, because he understands how it is.” I appreciate you putting this out there. I hated being told it was just anxiety. I’m so relieved to finally have an answer.
My prayers are with you💜
Mine too
Prayers won't heal his illness
@Amanda Imhoff so why doesn't God heal all the people that need it ?
Just when I think I couldn't love you more Zach, you put a spoon at the end of this video! This was such a kind wink to the invisible illness community.
May your spoons be increased.
Big up spoonies xxx
@jeff sweet I inherited AS from my mother and she in turn inherited it from her father (my grandfather), who was born in the early 20's. I wouldn't call AS an epidemic, but like most inflammatory arthritis, which are autoimmune in nature, there is a genetic link in most cases.
Yes !!
'I'm living with a baseline of pain every single day, to the point where I forget what it's like to not hurt somewhere.'
THIS is what people who don't suffer from chronic pain can't fathom. It's impossible to enunciate how utterly exhausting being in pain all the time IS. There's nothing else quite like it and when you're in pain for long enough to the point where you can't remember what it's like to NOT BE IN PAIN, it can bring on a sense of hopelessness that's like nothing else.
I have crohns. I'm having a good year so far, it's in remission in as much as it can ever be and as such this is the best year I've had in a while. I have pain free days now, but the last 5/6 years have been hell, and I've been there, that point where you forget what not-being-in-pain-felt like. In and out of hospital, weight falling off me, unable to eat for days, some of my friends saying 'wow, you're so thin, you're lucky!, and fighting the urge to punch them in the face for that shit. They see a tiny waistline, they don't see the nights spent on the floor, too tired and sick to get back up, borderline suicidal. They don't see my collarbones sticking out below my neck when I look in the mirror. Skeletal. Disgusting. And your baseline is pain, you walk around at times in a daze, exhausted, angry, and yes, hopeless. All you can see going forward is more of the same, a life, living in this pain for the rest of your life. No light at the end of this particular tunnel. Not much to look forward to.
A life that doesn't seem worth living, at times.
Living with a medical condition, whatever the condition is, changes your life. You'll never be able to live like everyone else. 'Normal' people. For me, I have to be very careful with what I eat, how I live, my lifestyle, my meds. It's upkeep. It's consistent maintenance. There is no fix. No cure. You just have to keep going. You can never
stop. You're working with something that's inherently 'broken' in your body, so you'll have to work harder than everyone else, and you can never stop being careful or you'll pay for it. You'll be in pain. You'll be in hospital, like me, getting part of your intestines removed. It's not worth that. For one slip up, or a few, for getting lazy, for trying to ignore it. It's tempting, to ignore it. When you're feeling better than you have in ages. I've been there too.
That's why I always say that when I'm on that high, not to forget those lows and how easy it is to go back there, but when I'm in those lows, to never forget the highs, that maybe I can be there again too. That can be enough sometimes to keep going
I hope you keep going. That's all anyone can do. Just keep going.
Same I have crohns too and that baseline of pain comment really hit home.
Mel Christensen Thank you for your words. I don’t have the same illness you do, but I suffer from a chronic migraine. For almost four years now I’ve had a 24/7 headache and other issues like digestive issues due to the migraine and I get sick a lot. I’m sick and out of school now, actually, I’ve been sick for a week. I was out of half of my junior year and all of my senior year in high school due to this migraine, and I’m a junior in college now with chronic pain and a tight schedule...I’m so exhausted and I’m trying to live a life I want to lead but I can’t seem to ever catch up with what I want. I’ve already made so many changes to be aware of this thing that controls how I live my life...I can’t enjoy what I used to, I can’t go in the sun and even with earplugs and sunglasses, I can’t be around people who talk loud, the fluorescent lights in classrooms, and then the air pressure changes and the weather changes one way or another and I’m balled up in pain. I’m a stubborn gal. I don’t like needing accommodations, and I live with PTSD from some of the treatments I had to endure in this quest to find what can make me feel better with this invisible sickness. It’s not like I can get a doctors note for an illness that some doctors can brush off and tell you it shouldn’t bother you this much. But I haven’t had even a second of no pain these past years. I’m supposed to be young and spry and having a fun time with friends while studying for my future. Why is it I’m so dizzy today I couldn’t go to a midterm? It’s so exhausting. What changed months into being sick for me was getting my diagnosis. Being told I had a disease. It made me believe I was broken, that I couldn’t take charge of my own health. That doctor was a loud jackass, if I’m going to be passionate for a moment here. It made some part of me give up that I’ve been fighting to reclaim since I realized I lost it. My past history and my future plans lie in the survivalist and primitive skills circles and schools that I was pulled into due to my love of plants. I don’t want to give up my love of natural places and self-sufficiency.
Guys, please don’t do anything that you don’t want to pursue for your future. If it won’t benefit you then, is it really benefiting you now? You never know when you’ll suddenly be unable to walk or see straight or get a hug from someone you care about because your skin is so on fire it can’t even touch sheets... We have one life to be proud of and look back on. Don’t make it one you’ll regret. I’m trying my best too, and I know it’s hard to not get depressed. I wish everyone the best, and I hope the pain will ease for those of us with chronic conditions.
I have had spinal issues since I was 14. I can't bend over and touch my toes without shooting pain up my legs and to my lumbar spine. I've just learned to live with the baseline pain.
That was really inspiring.
I have been dealing with this non stop chronic pain since 2014. Even the pain center can't control it. I have attempted suicide multiple times due to the pain, depression, and anxiety. To never get relief not even when sleeping is killer. No sleep heightens my pain censors. I'm constantly exhausted. I recieved a nerve block that helped for a few weeks. My brain couldn't comprehend not being in pain. It is the creepiest sensation. However after it wore off the pain came back 1000x worse. I can't even cry anymore because I'm so tired. Muscle spasms non stop these days too. It sucks!!!!
"I'm living with a baseline of pain every single day that I'm forgetting what it's like to not hurt somewhere."
I know this life, and I am so sorry that you have to go through this. It's a terrible life to live. We're rooting for you!
Keep pushing through bro!
Hang in there Zac! You have a great support system. I have AS and taking Humira. Humira was amazing when I first took it and thought I’d never have to deal with the horrific pain ever again. Last May I had a flare up and I didn’t know what to do, I couldn’t even get out of my car or get up to my apartment. My doctor upped my dose to weekly and everything seem back to normal now. Sending positive vibes your way and please continue to make update video on your AS.
Hope you'll be well! Stay strong always 💖
Hey, I know you dont exactly know me Zach but I from watching these videos alot of the things you talk about happen to me. I'm going to the doctor in a week, but the wait has been painful. I'm sorry that your going through this, but thank you for sharing it so I can get help to. I appreciate your strangth, even if you dont know me. I've been ignoring the pain all my life, and I absolutely hate excersize. Recently I've gotten my first job and its put a strain on my back and my bones. Thank you, thank you so much. You have been one of the strongest people to push me in my life. Which is sad, because my family doesnt care. The invisible part is hard, but you brought me up. Thank you.
Zach*
Be well, friend! I wish you the best!
Btw I wish you the best as well(:
lol she/he said that 😂
I was diagnosed with an autoimmune disease, Multiple Sclerosis, and i definitely understand everything and how the flare up sucks and no sleeping and how depressing it can be sometimes
This is literally one of the most inspirational things I’ve ever seen. Never stop being so real, your trying your best and even sometimes that’s not enough and you’re saying that’s okay. It’s so hard to realise that there are bad days and good days but it doesn’t stop anything
Please look into the Mayo Clinic PRC program. I went to Jacksonville for a month and I have been able to function with greatly reduced pain since. Hang in there! Thank you for sharing your struggles with us.
This should be a fricking documentary! Damn this is so good! I really hope that everything works out because the try guys can't loose Zach when they're trying crazy things like skiing or jumping out of a helicopter!!! We're all praying for you Zach 🙏
I have three autoimmune diseases. They suck and I can totally relate.
Martina from Simon and Martina has EDS and she made a similar promise to herself. I’d love to see you two speak more about your experiences dealing with these diseases. #buildaladder
Martina
Yaaaaas Nasty family is here to show support! #buildaladder
Yass Nasties
Hello fellow Nasty! It makes me so happy to see this here. Especially in support of other spoonies around the world! We need to support each other ❤️. Chronic pain is so hard to deal with. It’s hard to explain to other people too. But more of us are being acknowledged and listened to and that is awesome.
Yes Nastys
This video is serious and people rather be First than wish good health. God, the nerve of these people.
first
Exactly.
That's the internet for you people can be heartless
Poor Zach ;-;
I never got the whole "first" thing, like nobody cares if you commented first.
Zach, thank you so much for this video. I have Cerebral Palsy, but I was very lucky since it's not too bad, I'm very mobile and I have what I would call a "mild case".. if you could even call it that. But it also made me ignore it in a very unhealthy way, I always thoùght "hell it doesn't matter that my legs burn with pain so bad that I can't walk a half a mile without stopping or that I can't go to work because my back seized up and I can't even sit upright" because I felt like I wasn't allowed to hurt because others have it worse than me. This video made me believe for the first time in a long time that I can prioritise my CP, my body and myself. Thank you
Helena Kristins literally in the same boat. Mild cp.. Feeling stiff every once and a while.. But yea like Zach says.. Laziness does nothing for you so I got to keep up those healthy routines to keep me ok. Much love to you Helena and especially to you Zach! Sending you positive vibes 💗🤗
I have a mild case of CP as well. Others might have it worse, but we have to listen to our bodies and understand that our limits are just as important.
I have chronic pain so I understand what it's like to forget what it feels like to feel "normal". I am so sorry you are dealing with this!
Strongest Try Guy
Is Zach hands down!
You're doing great Zach! ❤️
This is quite different from most videos on youtube about disorders. It seems more real and acknowledges that he can help himself and He can make it better, but it might not work 24/7 and that's ok. I feel pity yes but I feel inspired by your story and it motivates me to actually take control of my life
You can do iiiit!!!!!
Zach's the cute one.
Hes like a little kitten I mcfucking love him
Yeah he's like the cute baby of the group😢😢
Zach* if he saw your comment he would dislike you lol.
(He said he hates when ppl misspell his name)
I love your channel ❤
Dude. It's Zach
I was diagnosed with A.S at 16, it's a horrible condition.
I put it out there to show that anyone can be diagnosed. The disease doesn't discriminate. It's to show that to a sense, I know what this man is going through.
@eshaal emad thank you, it's a struggle everyday, but you just get on with it :) love you too, xx
Star but you took your time to write a comment 🤣🤣🤣
@Star you have no idea what you are talking about, if you had one day of AS experience you would never had said such a thing. As hard as AS and autoimmune diseases are, I think it is worse to live with no empathy. Charli, wishing you the best. Keep on fighting.
@Chris Paez I feel you on so many levels. I went through years of agony. I couldn't even dress myself, I needed my mum to help me bathe. It's the most awful thing to have all your independence stripped away. I would cry every day due to the amount of pain I was in. I was rejected by countless doctors, told that I should just take painkillers. But after 2 years I was rushed to hospital because my back and hips seized up,and I was literally screaming in pain. And finally when I was referred to rheumatology, I got diagnoses with A.S, Bursitis, and Sciatica