Korndaddy is so sweet and pure. He doesnt deserve to feel pain. He's deserves all the love and kittens in the world. We love you Zach. I hope everything gets better
You may not be the tallest try guy. You may not win all the challenges. But I know one thing... Because of the pain you handled all those years...you are the strongest try guy...or atleast I think so
Landri Elizabeth jup, I'm always iron deficient even though my diet is fine "well must be very heavy periods". No I don't have very heavy periods. Please diagnose me properly
Well you do have to remember that a huge number of people do come in with complaints that aren't the result of a serious condition. Doctors usually rely more on objective measures like lab tests.
True, but lab tests won't always give them the information they need for the right diagnosis. Especially when we are talking about rare diseases. Objective is great, but it only gets you so far as a physician. You have to listen to your patients, especially when they are still chronically having the same issues after making the changes you suggest.
They also like to blame everything on your weight if you're overweight. My abdominal pain was just gas and I needed to eat healthier. Turned out my appendix ruptured.
Rebecca i know right. my back has hurt for years. for at least 3 years. i would complain to my parents everyday, and finally j told them that MY BACK HURTS. TAKE ME TO THE DOCTOR. so we went and i have 2 curves in my back ;)
I have auto immune hepatitis. Basically my immune system kills my liver. I also have fibromyalgia and I'm in pain everyday. Be heard, the doctors study medicine to help us, keep asking , keep vocal.
This video made me cry because I can relate. I was suffering from extreme abdominal pain and bleeding for almost a year. It got so bad I couldn't even walk 5 feet to the bathroom without passing out. I couldn't take care of my son I stopped eating and I became very depressed. I went to the Drs and the ER more time that I can count and finally I got an amazing nurse in the ER who insisted that I be admitted. Turns out my blood count was almost half OD what it should be and if I didnt get admitted when I did I could have died. I got diagnosed with borderline severe ulceritive colitis and now I can raise my son. I am so grateful for that nurse.
I also have very bad abdominal pain. No bleeding. Have been dealing with doctors telling me it's all in my head or there is nothing they can do for me for almost 5 years now. I also have been to the ER more times than I can count. I've also seen pretty much every specialist that there is and they just tell me that it's either a problem in my head, as if I'm creating it out of nowhere or that it's nothing. The pain puts me to my knees I will be in the fetal position hysterically crying in pain and feeling like my upper stomach is going to rip open it's so bloated and painful feeling. It's the exact same spot every single time above my belly button. I am on a painkiller that helps when I'm allowed to take it, but if the pain is in the middle of the day, when my doses are at morning and at night, then I have to just suffer. They took me off of long-acting pain meds and put me on just the Breakthrough medication but I can only take it in the morning and at night. And like a lot of places in the world with the opiate epidemic and everything doctors are trying to get as many people as they can off of opiates and unfortunately because I don't have a known diagnosis they think I'm just looking to get high. Which is one of the most frustrating f****** parts of all of this. I haven't been able to work for almost 5 years and I feel like everyone has given up on me. I don't know what to do anymore. I'm glad that you got help and that you can look after your little one now, so I'm very happy for you!
Sounds just like me. It took years to finally get a diagnosis. The bleeding was so bad and I passed out in the shower once. So glad you got diagnosed. It took a doctor who's wife had the same disease to finally diagnose me.
I love stories like this! I’m so happy for you!!! ♥️ I had the same problem, but luckily after two years+ of suffering, a PA listened to me and now I’m on medications and finally after a year, we can get my heart back to normal without medications! Eek! I’m so excited! How all is well for all of you! ☺️
Nursing student here, in my little sliver of experience with being out in clinic and from dealing with a chronic illness myself, as a patient, I can fully support what Zach says. When you go to the doctor, dont downplay how you're feeling. If the symptoms you are experiencing is ruining your life say it! If it takes screaming at the doctor then do it! You are the patient, you are advocating for yourself and unfortunately not all medical staff take patients seriously as long as they can sit, composed and have a conversation. Fight!
I have no diagnosis for why I'm so achy and my joints hurt, pretty sure it is autoimmune but after an MRI on my wrist they said it would go away. Finally I changed my whole diet to an anti inflammatory one and it all went away. I've since cheated on the diet to an extent and the pain is back. Moral of the story, if the doctors have nothing good to say, either try more doctors or turn to the internet and try other things.
Rheumatoid Arthritis is an auto immune disease. MS is an auto immune disease. Lupus is an auto immune disease. Fibromyalgia is an ANA. There are over 100 different types of auto immune diseases out there where the body is tricked into attacking itself. Over 3 million women suffer from an auto immune disorder / disease. REALLY DUDE!!!!????!!!
TheImpiroGirl true. there are some doctors (i used to have all through childhood) who would sit with you for as long as it took and ask you questions about every part of ur life and how whatever is going on with you is affecting it. and then they would help u solve ur problem. now that i'm an adult my docotrs (different hospital) are completely different. they just want to rush you out of there and they are rarely paying full attention. i once stood up in the doorway so ths doctor would leave. because she basically continue to tell me my pain wasn't enough for her to do anything about it. so i stood in the doorway and told her to sit down and listen. i explained she didn't know my life (i had just switched doctors) she wasn't with my since I was a baby and she didn't know my extremely high pain tolerance. i told her that the pain was affecting my ability to sleep, go to work, and continue my schooling. i told her she needed to help me and that doctors are there to help you solve problems that are negatively affecting your life. she finally listened to me and helped it's hella scary because they basically hold ur life in their hands and i feel i'm kind of talking to a god because of how much they can screw you over or change ur life. but they are just people who have a lot of things on their plates and are likely incredibly stressed out. tell them like it is, they are there to better ur life.
I would love to have that kind of coworkers. At least he does those things straight and honestly. That kinda a teasing is still good - and I bet if you have a bad day you can talk about it and say that please stop for today. I have gotten sick and tired of cowerkers who talk behind your back or plan with others to bully you etc. And don't talk with you or overall communicate.
Yep. It's super sad, but it happens a lot. I remember one story about a women who lost a lung because her doctor ignored the signs of cancer due to her wight.
It's the sad political climate we're living in thanks to doctors punishing chronic pain patients thanks to drug abusers and the DEA and CDC punishing the rest of the doctors who actually want to help by burying them under mountains of paperwork and giving them restricted pain guidelines when prescribing narcotics or they threaten to take their license.
CAN YOU SHUT UP ABOUT ZACHS DOCTOR? THE THING THAT ZACH HAS ONLY AFFECTS 1 PERCENT OF PEOPLE most diseases that dont affect alot of people are very hard to diagnose beacuse there isnt enough research on them because most of the research is going on the bigger ones like cancer and lukimia
But it happens so often, to so many people. Kudos to Zach for not backing down until he got answers, and much, much love to him for sharing his story and encouraging all of us.
I don’t understand why doctors would do this, at least try to help your patient. But at the same time, that just means more $$$ in America. I’m really fortunate to be in Canada since I’ve gotten surgery on my eye and went to the hospital a bunch of times and all for the cost of $0. The only money spent on me was for certain prescriptions or medical tape for my eye patch.
Just Jia it happened to me too actually. It’s surprising how much that happens. That’s why I’m going into medicine actually! Trying to change the system.
It never gets better. My son has this and the bones continue to grow and fuse together until they form a sort of plate making it hard to move. Only then does the pain kind of subside. But then your movement is limited.
You cant really "get better". I have the same thing and the joints in your back hurt pretty much constantly. Your joints will only fuse together if you don't take medicine though, so it is manageable.
I hate it when doctors don't listen. My mom has the autoimmune disease Hashimoto's thyroiditis, and has been recently testing positive for lupus :( I'm glad you found someone who actually listened and helped you
I also have hashimotos, I was lucky to get dx at 7 I still have chronic muscle pain, some ppl have acted like it should be fixed just bc I'm on hormones for it, but idk
I was originally diagnosed with a Factor XII Blood Deficiency, but it didn't explain everything that was happening. After nearly 10 years of my mom, then me, arguing with doctors and insisting on testing we read a tip online to request that they put a note in the records that THEY turned down the testing. After that they were a whole lot more open to it. We later found out that not only did I have a blood disorder, but some "normal" blood cells were getting though and getting attacked, which started eroding my muscles. This could have been helped out 10 years prior. The chronic pain I have could have been lessened, but no. Doctors need to listen. If a patient needs a test done, it needs to be tested for.
Zach is so right - if your body is telling you something is wrong, LISTEN TO IT. Finding the right doctor can be a challenge, but don't give in or give up. About 15 years ago, I started getting these weird flus about every other month. Recovery took weeks with each episode, and I felt like warmed over death most of the time - plus I was sleeping 10-12 hours a day - which basically meant all I was doing was working, eating and sleeping. I was told by a doctor it was stress, but I felt like crap even on vacations. Finally, I changed doctors, and I was diagnosed with Chronic Lymphocytic Leukemia with a good prognosis. My life is now normal except I still sleep a lot - but now know that is both necessary and normal for me. A lifetime pneumonia shot (recommended by my wise goddess of an oncologist) stopped the flus. Zach, I totally get your joy at finding answers.
May I ask a personal question? How did you go about getting a diagnoses? Was there anything from a regular blood panel that gave it away? I ask because I have suffered from odd bouts of not quite flu with vomiting every other month or so for about 2 years now and have been unable to get any answers.
Michelle - Yes, a regular blood panel revealed that my white blood cell count was about 8 times normal. From there, they did a specific test to verify CLL and then did a number of genetic tests to determine a prognosis. My flus were entirely respiratory, though, caused by CLL-compromised immunity. Good luck to you!
i’m a 13 year old girl and in the process of being tested for Ankylosing Spondylitis. as i’m young, the doctors arent explaining to me what’s going on in my body. i just wanted to thank you zach for making this video as now i’m comfortable knowing what’s going on in my body. you’ve reassured me that, although it sucks, it’s okay. so thank you zach, really.
Hey, I hope you see this! I’m 20, got diagnosed with a.s. when I was 17. Never let someone treat you or tell you it’s not as bad as you think. Your pain is valid! Take things slow, don’t push yourself, take care of yourself!!! You’re going to find different things that help and others that make it worse, what works for others won’t always work for you. I hope you’re doing okay ❤️❤️
Oh Rachel 😓 I’m sad for you that you’re being told this and that you’re still without a diagnosis. It could well be ‘in your head’ as our brain controls our nervous system and every pain we feel, hence why our pain receptors are screaming when other ‘healthy’ people’s stay quiet 😞 what are your symptoms / what do you believe you have? I wish you the best of luck xx
Andrea B. Awe, well thank you! But I was actually just responding to cece's comment. They're the ones without a diagnosis. I have Ehlers-danlos syndrome. It's often very underdiagnosed so I like to spread the word. ♡
Learning to advocate for yourself with medical experts to dismiss what you're feeling is a lesson that also took me years to learn. It's hard. People who don't experience chronic pain have no idea. It affects your body, it messes with your mind, it makes you question yourself. So when a doctor says its in your head...glad you finally got it figured out!
As someone with a connective tissue disorder called Hypermobile Ehlers-Danlos syndrome, which causes joint dislocations/subluxations (partial dislocations), ligament and tendon ruptures or tears, intense chronic pain, and other varied and distinctly unfun issues, the takeaway of this video is advocate for yourself, *loudly*, *often*, and *don’t stop until someone listens*. I cried the day I was diagnosed, not because I was upset, but because I was thrilled to have a name after 33 years of seeking answers to why I was being injured so often, and so severely, with no one bothering to find out the root cause. The scared came later - and then the pissed came. I’m looking at being in a lifetime of severe pain and increasingly restricted mobility, and it didn’t have to be that way. I could have had years in which I had the knowledge that I need to protect my joints. If something is wrong, and you’re not getting answers, *speak up often, loudly, and don’t stop until you get answers - because you don’t deserve to live like that*.
I've also EDS. I understand everything you're saying. My mom discovered it at 35 and before nobody believes her. I've exactly the same symptoms that you're describing, I'm 17 and I feel like a 70 years old person. Because of the operations I got big scars and I feel really bad about them. I want you to take care of you and I wish you the best!
My uncle had EDS too, I’m pretty sure he was the first person in the UK to be diagnosed. It got so bad he has to be fed through a feeding tube to his stomach(I think he doesn’t talk much about it to me) and has nearly died multiple times he’s also confined to a wheelchair. If they had diagnosed him years earlier he would be so much better and able to enjoy his life more.
You have no idea how much this video changed my life. After watching it I had the courage to schedule my own MRI for my back. The MRI confirmed Anklyosing Spondylitis. Unfortunately mine comes with a the SEVERE tag, so mine is even more rare. I've been on Humira since and it's helped me release a lot of the stiffness/pain in my spine. It's taken 13 years from the start of this road to the diagnosis. I'm still waiting on my disability hearing because mine has forced my neck way out of place. Thank you much for coming public with this, it really honestly did change my life. A year ago I couldn't go around the block and yesterday I just walked over a mile. It really is an insanely painful disease that I could be put on higher painkillers than Methadone, but choose to supplement with cannabis instead. If I could afford enough cannabis I would drop my pain medication. I do not like the opioid high.
1. Your apartment is super well decorated. 2. I am glad to hear you are ok and there is medicine you can take. 3. Your advice is amazing. Thank you. 4. You guys should certainly start doing vlog updates on your life like once a week each.
It's so great being validated. Whether what you're dealing with is mental or physical, finally knowing what it is, is one of the best things in the world.
I know exactly how you felt when finally being diagnosed. When a Dr finally said, "It's not just in your head," it's a relief because you do start to question your own reality at times. For me it was 5 years undiagnosed with a spinal cord injury and terrible pain . The nights were and are always the worst.
As a nurse who has worked for over 24 years in the medical profession, even I have had problems with getting the doctors to listen to me when trying to get the necessary orders needed to help a patient. Any nurse will tell you nothing is more frustrating than knowing something is wrong with your patient, but nothing is being done about it. Thankfully , now,I work with a great team of nurses, doctors, and therapists who really listen to what their patients are saying and try to help them. To all my fellow peers out there, LISTEN to what your patients are telling you and always go with your gut. No person should have to suffer for YEARS like Zach did.
This is what I don't get - why is it so common for doctors to either not believe or to minimize what their patients are going through? Do they really think *that* many people are malingering? Or is it more of an ego thing, in that they can't diagnose it off the top of their head, so they assume it's the patient that's wrong? THANK YOU, as Diana said, for listening and advocating for your patients. I know nurses that go through the exact same thing, sometimes to the point where they can diagnose a patient before a doctor will, but the doctor won't listen. That's what makes me think it's an ego thing, instead of doctors truly wanting to help their patients. Obviously, not all doctors, which is why I think standing up for yourself and/or finding a different doctor (if you can - it's not an option for a lot of people) is the best thing a person can do for themselves. It's hard to, because doctors are supposed to be the authority. It's also so common for doctors to do this that it's a skill that has to be learned.
I completely agree Ive worked in the nursing field for 10 years if someone just came out of surgery and sent them to a rehab with only tramadol when the really need is some hydrocodone I just don't understand
As ironic as it sounds, finally being able to get an diagnosis or “label” of some sort is actually the light in the midst of hopelessness when you have been suffering for way too long. Best to all who have been going through tough physical and or mental health issues and know that hope always comes after you go hopeless for a while. (And hope you feel better soon Zach!)
I have a positive Rheumatoid factor and I'm a HLA-B27 gene carrier and I've been having terrible lower back pain at night. I have just been reffered to a rheumatologist today.
Rheumatoid Arthritis runs in my family and my uncle has had some nights where he was in so much pain he couldn’t even move to take his meds. Now I’m starting to have pain more and more often and I have to do some exams to see if I have it too. Hang in there, you’re so strong every day💪🏼😊
I have Rheumatoid Arthritis and I feel like I started to have lower back pain that doesn't go away and watching this I feel like I might have the possibility of A.S too. How can I get a proper check up to know if I have A.S ?
Hate when doctors doubt their patients .-. Small example: I had laryngitis and couldn't use my vocal cords, but I could let out a slight wheezing sound if I tried to scream. The doctor told me to speak even though I wrote down that I couldn't. The only thing my doctor told my mom was, "She's too afraid to speak." What the heck, doc.
I was diagnosed with Ankylosing Spondylitis about a year ago. When I was first diagnosed, the whole drive home for the doctor's I was crying. My best friend told me about this video, I watched it as soon as I got home and it gave me so much hope. Thank you, Zach. The past couple of years have been hell, but this video made me feel not so alone.
Thank you Zach. I have suffered with chronic pain for 26 years. Very few people understand the psychology of chronic pain suffers. You nailed all of the key points, waking up in the middle of the night, not sleeping, and the self doubting. I was kicked out of the Navy after 17 years for botched surgeries and the VA refuses to cover it. I’m glad you got the help you needed.
My mum has a very rare autoimmune disease, they can't even pinpoint it, so the closest thing to what she has, is Ulcerative Colitis. She's going in for surgery and they want to put her on Humaira!! So I really hope all goes well and I'm proud of you Zach.
I have Ulcerative Colitis, and that effects 200,000 people per year in the USA. It isn't rare. It's just an Inflammatory Bowel Diesease that has to be treated any anything else. It's not life threatening, and certainly aint rare. You can easily get UC just from having a really poor diet.
Kris Carlson She didn't say that's what she had, she said that's the closest thing to it. Basically the doctor's can't pinpoint exactly what it is because it's so rare so they just has to pick the closest thing.
I have Ulcerative Colitis, and it's not rare according to my doctors and PA. I'm on Remicade and Mercaptopurine to stop the build up of antibodies to the IV meds that I take (Remicade). It's not fun. I'm 25 and I've had 3 colonoscopies in 4 years, but I know there are people out there who have it worse than me.
Welcome to the try guys, know your roles. Ned- the father👨🏼 Keith- the funny one😂 Zach- the adorkable muffin🌸 Eugene- the hottie✨ Also a couple sad faces: :((((((((((((((
Zach! Optometrist here. If one or both eyes suddenly become red, painful, and light sensitive, go see your eye doctor right away! There is a high incidence of something called uveitis (inflammation inside the eyeball) in patients with Ankylosing Spondylitis and related auto-immune diseases. If left untreated it can lead to permanent vision loss and glaucoma. Don't see your GP - they usually misdiagnose this as conjunctivitis.
I want to thank Zach so much for this video. I also have an autoimmune disease and it went undiagnosed for years. I yelled and screamed at healthcare professionals and they all told me it was in my head. The heartbreak is real because the doctors make you feel crazy even though your pain is real. No one talks about autoimmune diseases enough or understands why those of us who have them are limited. It still makes me feel less human sometimes, but seeing more people talk about their invisible illness makes it easier! Thank you Try Guys!
Kiana Wills I'm right there with you. It's impossible to describe the feeling of a doctor looking at you and telling you your pain is all in your head.
People really don’t understand how hard it is to live with a chronic illness or disability. Thank you for sharing your story and bring issues like this to light! I’ve been chronically ill for years now and I’m only 18 now. I’ve been through so many doctors and hospitals that completely brushed me off. Someone like you, with such a large platform, sharing your experience, & what many of us have to deal with day to day is so important. It’s scary how many of us get ignored and brushed off by doctors, the people who are supposed to help us. So many people end up, like you, thinking that we are making our illnesses and pain up all because doctors won’t listen. So thank you so much!
Im 18 now, diagnosed with Ankylosing Spondylitis when I was 16 through miss diagnosed surgery on my hips. I know exactly how you feel. The pain is almost torture, constantly there, constantly being immobile, the extent of pain is different for everyone, but for me I almost could not walk at times. Its a very sad reality and it takes a huge tole on not only your physicality but also mentality. I had the pain all my life, I loved playing sport growing up but I could never reach my full potential. And having constant pain not knowing what it was, is tricky for a young boy to deal with... especially on the sports field. No one believed my pain, the struggle I went through, even my own dad thought it was all in my head and thought I was just lazy and weak. Everyone always thought I was just some woos or nerd who didn't ever want to do anything and I was made fun of at times for my limped walk. Fast forward to 2017 I have been on Humira for 6 months and have never felt better. I was very skinny because I couldn't do anything, but now I am well on the way to a pleasing physique through hard work and training. My story is incredible from where I was to now, and I say that humbly. Because at the end of the day, no one knows everyones struggles but there is always a light at the end of a dark tunnel when you're alone. Ive gone from crippled skinny boy to flexible and athletic, where I always wanted to be. Good-luck to you and your journey. Anything is possible.
GuardaaGames Fan Club This sounds a lot like what I've been dealing with for the past several years, but I always feel worried about addressing the pain because of how I've been received when I do.
So initially I was getting surgery for extra bone I had on my hip (at the time they thought taking the bone away would stop the pain) once they opened me up they saw an insane amount of inflammation around my joints and instantly stitched me back up because there was more to what they had initially thought. So I went to see a rheumatologist and basically within a week she correctly diagnosed me with A.S, and yes the specialist needed an mri to clarify it was A.S although my symptoms I explained to her pretty much made her know it was A.S.
Thank you for being so open and making this video Zach. I have many friends with endometriosis who experienced the same maddening frustration with medical professionals. Something needs to change within the medical system so people don't have to fight tooth and nail to get the answers and care they need. Especially when there is pain involved.
Ouch, endometriosis sucks :( my best friend has fibromyalgia and also went through the same maddening cycle of being pushed from doctor to skeptical doctor :( so glad you and she both got a diagnosis eventually.
I have endometriosis and I went through this same aggravating cycle. I honestly couldn't stop crying watching this video- I really appreciate people being real about health issues and the medical world in general. 👏🏻🙌🏻❤️
Thank you so much for putting your diagnoses out there. I’ve lived with Autoimmune for 41 years and it’s very miserable. Good Luck to you and I’m very happy you finally got answers.
Okay no kidding. I have high blood pressure. And I'm 20. I'm a bit overweight but I exercise a lot. My doctors kept blaming it on my weight and never took me seriously. I finally went to a new doctor and we figured out I have renal fibromuscular dysplagia! Which pretty much has the same treatment as normal high blood pressure but now I'm not being blamed for my health.
Her story means to expand on what the video referenced- having an invisible something wrong with you- doctors not believing what you’re telling them- trudging along by yourself, searching for the right someone to help/understand you- and finally receiving a diagnosis & treatment & VALIDATION. That’s what high blood pressure has to do with an autoimmune journey!
this video I think is so important to other people with autoimmune diseases. To know that even though you had to say no to some things in the try guys, you're still a try guy and doing stuff that we see on those videos. That's so important. It's inspiring.
AllyOC1 it is disgusting; if you are not "textbook" they do not want to be bothered with you. None of them think out of the box and get extremely agitated if you tell them you researched info. In this day and age of "modern" tech I can't believe how frustrating it is that the med community has NOT evolved.
Cee Cee yes don't trust doctors because they are always wrong listen to yourself and only yourself. You are an idiot if you think that none of them think outside the box. If it is as easy as reading a textbook then why don't you do it? Do you even know how hard it is to become a doctor?
Omg I know this video is pretty old-ish, but watching it made me kinda happy. I was recently diagnosed with type 1 diabetes and I hate it. But seeing one of my favorite people also suffering from an autoimmune disease makes me feel less alone :)
I resonate with this so completely in my experience of trying to receive my eventual endometriosis diagnosis. I had medical professionals tell me I had irritable bowl, friable cervix and even one who told me it was just a figment of my anxiety. When I finally got my endo diagnosis I was releived and greif stricken all at the same time. No one wants to be this young and be fighting a lifelong, painful chronic illness. Im amazed at anyone I meet in similar shoes because I know the fight and resilience it takes to keep going ❤
Endometriosis. Yeah... turns out the it isn't normal to have excruciating pain etc. during a menstrual cycle. How many young women get told "Oh... it's all in your head. It can't be that bad." etc. etc. while their insides are being ravaged by this disease.
I've been taking Humira for Ankylosing Spondylitis for over a year now, and I know how you feel. There are days where I completely forget about the intense back pains that woke me up every night. Congratulations on your treatment, fellow Humirian.
i wish i get prescribed humira too, people talk about it like a miracle. my doc put me on nsaids rn and said that she’ll prescribe me biologics only if none of nsaids help. i’m so afraid of nsaids especially considering my stomach problems and the fact that i can’t stop smoking
Thank you for making this video. I have scoliosis and ankylosing spondylitis. I have heard many back diseases and auto immune diseases called "invisible disabilities" because you look ok to everyone but inside you're feeling the chronic pain. I was diagnosed 9 years ago and it took so long to be diagnosed. Doctors didn't believe me of course. You give hope that just because I have a auto immune disease doesn't mean I can't have a job I love and a life. I had to go to a rheumatologist and they KNew exactly what was wrong and I had a MRI too. I'm 26 years old. Just wanted to say thank you for making this video.
SimplyxSabrina see if you can get a test from your Rheumatologist about the b27 and b7 markers on your cells. I had the b7 and that helped my rheumatologist diagnose me. Also, my sister has psoriatic arthritis and IBS but I do not have IBS. Honestly no trigger point injections, epidurals, nerve coatings, or humira Simponi or Cimzia helped my pain go away. Just a little bit at times. I am still holding out hope for remecaide and other options. Never give up hope and don't take no for a answer. Where there is a will there is a way is my motto. I hope any of this helps you. I'm sorry you're in pain and I hope you find relief soon. ♥️
Me and my sister have scoliosis and arthritis. She was diagnosed 5 years ago and me three years ago but it was years of chronic pain before finally getting to the xrays and having a diagnosis.
As someone who has an illness, and has had to fight the doctors to believe me, I feel this video so much. I'm happy you have the help you needed, and that you did persist :)
I'm so glad you finally received treatment. Stay strong, buddy. Humera works wonders. I have this disease as well and I've noticed that cutting down my sugar intake doesn't necessarily help with pain but it helps keep the swelling in my joints down.
Humira was definitely the most painful out of all of the medications I've tried so far! It stung a lot, for quite a while after the shot was over. The worst of the actual products was Cimzia. It had a dull, dull needle on every single syringe! It was awful (and it didn't even work on me!).
It helped me as well. I am sorry that you are suffering as well. I have Psoriasis, Psoriatic Arthritist and Ankolysing Spondylitis. Oh my favorite thing I hear from people who know nothing about autoimmune diseases is all I need to do is change my diet and exercise.
except those diseases cause a lot of inflamation which is a lot of the pain, so a low inflamation diet is beneficial. It isnt a cure it just helps with the pain, from one sufferer to another, ditch the carbs, they arent your friends.
Summer Noybn No only a very small percentage. Due to taking on average years to get diagnos d, you suffer from permanent damage. I went over 25 years trying to discover what was wrong. I have Psoriatic Arthritist and Ankolysing Spondylitis. I have irreversible damage including bone growth on my spine and hips. Inflammation is not the main cause of pain, it's the damage done. Diet won't solve a thing. I am tir d of everyone who thinks they have the "cure" saying eat tjis, drink that and etc chiming in. If everything I have been told that would either help the pain or cure me worked, I would be living again and not throwing up when I hurt so severly, or be exhausted 24/7 because it's so dang painfull to sleep longer than at max 2 hours at a time. To not even be able to walk longer than 5 minutes without being in tears. I exist, I no longer live. You do you and do your diet. Myself, I have tried it all and guess what, It doesn't work.
Anita Boddie Thank you! 💕 I do know people who have had *some* inflammation relief from diet changes. For each of them, it was trial and error as to what helped (keto diet, gluten free, paleo, vegan, and/or no nightshades). BUT it's *NOT* a cure. The damage is still happening unless you're on the right combo of immune suppressants. (Also, I suffer from painsomnia too 😔 It's awful.)
Finally finding out what is wrong with you is massive and it is wonderful. Half a year ago I got a diagnosis that basically explains everything that has been wrong with me for my entire life and getting a diagnosis like that should have been horrifying but in reality, I have never been more happy and relieved.
I never knew how much I would relate to this, first time I watched this video, I was healthy. Since then, I went through hell and back, doctors not believing me, my own parents thinking I was faking my pain, getting told that it's all in my head, then getting told that it's a mystery and I should just learn to live with being in pain 24/7 because they don't know how to help me... I questioned my own sanity, more than once. I thought about euthanasia if there really wasn't a cure because my life was no longer a life, I could barely do anything without crying in pain... After all that, almost giving up because I just didn't think I could do it, I switched doctors for the god knows how manyth time... And she figured it out. It was 8 weeks of shots and now I'm trying to piece my life back together because my body is severely weakened by a long time of being able to do nothing but lie in bed. I'm getting better and all because I didn't give up. You know your body, you know when something's wrong and don't let anyone stop you from getting better!
This video brought me to tears. Everything you stated about needing and pleading for doctors to listen to you, to beilve you. I was there for 10 years, without a diagnosis. I was actually convinced by a neurologist that it was in my head, and I even went a shrink! Who subsequently told me, sure therapy is benifical but there is something physically wrong with you. So went back yet another rhuemotolgst and was diagnosed with AS. But it progressed so far by that point, that it had affected me beyond repair. I am also on humria and various and sundry other medications, but now the AS has produced too many platelets from my bone marrow causing my body to treat it like cancer. So, now I am wheelchair bound bundle of awesome...but sadly it has attacked my organs, lungs, heart, etc. But I stay positive. Although I know it could have been treated sooner had doctors listened, I still remain positive. I know you have no idea who I am, but I have been watching the try guys videos from the beginning and admire your bravery immensely. And you ever need someone to butch to about chronic pain and illness, I'm your girl. Xoxoxoxo Jenn
Jennifer Hey, just wanted to say that you sound like an amazingly strong lady!! You’re an inspiration and should be proud of yourself 👌 Having an invisible condition sucks and raising awareness is vital. I have Fibromyalgia and chronic fatigue and was disbelieved for so long that my symptoms and permanent pain was really that bad, as medically it’s immeasurable! Finally had a breakthrough with a Rheumatologist who diagnosed me and now I’m on medication to stabilise my nervous system which help to stabilise me a bit. Good luck with everything doll & stay strong & inspiring 👏❤️👏
Andrea B Thank you so very much. Your words touched me. This video inspired me to make my own about my illness (a less professional, grainy version). I just want people to know they are not alone.
this is just inspiring. i have ankylosing spondylitis too and i am 13 years old. i have never really seen or heard of anyone with the same thing. I’ve already had many surgeries for it and i even have to go to a doctor 5 hours away because no one around me takes children. and it’s been rough since i was diagnosed with that a juvenile rheumatoid arthritis so it’s nice to see you sharing your story:)
Elia Lackey so sorry to hear that you are suffering from these two illnesses at such a young age! You seem like a very brave young person! God bless you and I'll be praying for you. Keep up the positive attitude and keep looking for things that inspire you through your journey with these conditions.
Elia I'm so sorry you're going through this too, but I'm SO HAPPY you were diagnosed before you had significant damage. I have had symptoms since I was 15 but wasn't diagnosed until 31. 60% of my spine is fused, and both hips. It sucks. take care of yourself 💜
Elia Lackey - My son is 12 (will be 13 in October) and was just diagnosed with Juvenile Arthritis with HLA-B27 (genetic marker) with Ankylosing Spondylitis and Enthesitis. His knees, ankles, neck, back, heels and elbows are currently affected. He has been on Methotrexate, oral steroids and Humira injections for the last 6 months. He goes to physical therapy twice a week and does Home exercises daily. I’ve been doing a lot of research and trying to find other people with similar diagnoses and symptoms. I hope you are responding well to treatment. The pediatric rheumatologist says my son’s spine is fusing together. We just had another appointment last Friday and the doctor added another injection medication and two more oral meds for a total of 13 medications. Just curious- are you in or around Louisville, KY? The pediatric rheumatologist my son sees is in Louisville, KY, which thankfully is 30 min away from us. Would love to hear more about your story and how you were diagnosed. It was a very very long process for us, trying to get a diagnosis. So many doctors over several years with numerous complaints (severe pain, fever, hot painful joints, ridged fingernails, severe fatigue... the list goes on) and no answers- until the end of last year- Thank God someone finally listened to us and referred him to a pediatric rheumatologist. Bloodwork confirmed what the rheumatologist already knew. It’s definitely a scary thing to go through, especially being so young. I hope you are doing well and responding well to treatment. Please feel free to write back or email me candyp7780@yahoo.com. Looking for support groups, others with similar stories, ways to cope, etc., if you have any suggestions. Thanks!
I've had Psoriatic Arthritis, JIA since I was 12 (I'm 23). I can relate, there was only one Pediatric Rheumatologist in my state growing up. Just remember not everyone your age will understand your diagnosis now but that will get easier with age. Stay strong.
I’ve just been diagnosed with this too. Got really emotional watching this because it’s like you were talking about my life word for word. Being diagnosed with scoliosis was the first triumph but then a spinal specialist told me it’s not severe enough to be causing me pain. Multiple years, X-rays and blood tests later and I finally have an answer. Thank you for sharing your story, it definitely made me feel less like an alien. Xxx
Thank you so much for sharing this, Zach. I've had chronic pain in my back since I was 11. It's gotten progressively worse, and it's made me put on weight as well, since I can't exercise enough without extreme pain. I've seen various doctors, and none have answers. All they do is prescribe painkillers, do tests that come back with nothing, and tell me I'll just have to love with it. Recently, the pain has travelled up to my neck as well. I am constantly stiff and sore, and it's exhausting. It's inspiring to see people who have been able to get answers, and have a solution. It makes me hope that one day I'll find a doctor who will actually listen to my pain and know what's going on. Thank you.
LifeIsZealous Stop blaming your freaking condition for your weight gain. Working out doesn't make you lose weight, weight gain and weight loss happens if you're either in a calorie surplus or a calorie deficit. Like literally just manage your eating habits and you'll lose weight
I can relate! For years I was completely exhausted. Every time I would go to the doctor, they would say something different. "You need to exercise", "You are exercising too much", "You're pregnant", "You're nursing", "You have toddlers". Or, "You are depressed". After a brain scan and night/nap study it turns out I have Narcolepsy, geniuses!!!!!!
Narcolepsy here too! Did you know only 25% of people with narcolepsy actually have a diagnosis, and the ones that do get a diagnosis typically don't get one until around 30 years old? This disease is so ignored and mistreated! Makes me so sad to think that 75% of us suffer in silence because doctors don't recognize this illness :(
Aravias101010 my mum is a narcoleptic and it took us over a year to find out what was wrong they said it was just because she had just had my brother as they though it was because she was a new mum she now had it for nearly 10 years but even though things are getting better we are still working with new medication to help her
Yes, I was sent to three nutritionists, put on anti-depressants, forced to take my blood sugar levels, and mocked by my doctors for years. I knew something was wrong by the time I was 10, and wasn't diagnosed until I was in my late 30's. Not only that, not even my own family understands what it's like. The state I live in doesn't recognize it as a disability and it isn't alright. Until I got on meds, which by the way cost over $250.00 per month (because most insurance companies don't cover it unless for ADD), I was only living in my dreams. Since being diagnosed and taking meds, I have doubled my life. I went from 18 hours of sleep to 8. Even still, I can take a nap just after taking my meds. My children joke about it by saying things like, " I was dreaming that I was at the lake and you were there, do you remember"? I suffer from hypnogogic hallucinations.
Ayyy, shoutout to my fellow narcoleptics! I got lucky in many ways because my mom believed me and I was diagnosed in high school, but it getting a diagnosis was still a battle. It took 2 years of constant medical testing, seeing over 20 specialists, and taking mountains of pills to get there. And then they wouldn't give me Xyrem because I was under 18. But boy, do I feel the condescending doctor schtick. I was sleeping 12-20 hours a night, but obviously I was just a depressed teenager who needed to get over it. 😒
+1, my aunt actually recognized my symptoms because she works in the hospital, my damn doctor was like, this is bull but if you really want to get tested go do that. He was convinced I was a drug addict (at 14)
I'm in med school and I've been struggling with the ankylosing spondylitis questions forever... Now I'll never forget! Sorry to hear about your condition Korndaddy, I promise to do better as a professional.
That’s so great of you, I hope your career goes well as you clearly already have a fantastic work ethic & kind heart👌👏 thank you for supporting people that suffer with invisible conditions, you’ll be an asset to your profession 💜
As a physical rehab prof, this is also one of my least favorites. You have the "typical" presentation, but once in a while you have a weird case showing up. There was one young man that came into my office few years ago with back pain to the roof, worst during the night, mostly between the shoulder blades area ("normally", more common in the lumbars), was a building painter, lived a year in Japan, saw multiple doctors over there, tons of exams, no answer. Found out that in Japan, that disease is really not common, doctors didn't really know about it. I was able to help the guy, ease the pain a bit, waking 3-4 times a night instead of 5-6...still not a walk in the park. Since we know what he has, on meds, I don't see him anymore. Which is a good thing in my field. But I felt so bad for not connecting the dots that 1) I apologized to my patient 2) went back into my books, read that, yes, more common in the lumbars, but can also be found in the dorsals/shoulder blades area... So now, you can be sure that if anyone, mostly men, when they have a weird pain story that sounds a bit like that, I refer to a doc to see a rheumatologist. NB : one gold star for me : I knew his diagnostic before he said it. Yes ! Passed the test !
If you want answers to questions about AS there's multiple groups of people on Facebook who suffer from it and are extremely open to educating anyone who wants to learn about it. Just look up "ankylosing spondylitis" groups or Google the spondylitis association and they should have links to groups. They also have support groups that are open to people who want to learn more about it, usually friends and family but I don't see why they would reject you? Hope this helps a little.
The most deadly thing a doctor can do is become overconfident and not listen to a patient. Experience means nothing if you don’t use it right- always double check what you think you know.
I'm so glad they finally got your pain figured out, Zach! I have Systemic Juvenile Rheumatoid Arthritis from age 9 through my junior year of college. I had to take so many bad, bad drugs. You have it mad with only having to take Humira. They have come a long way in treatments for this sort of them in the past 20 years. So glad you feel better!
Rheumatologists are God's gift to man. None of my family believed me when I said I was in the worst pain. They also thought my rash was nothing special when I know I never experienced anything like that before. Well, what do you know? Once they finally decided to do a blood draw they could see something was wrong and after a week of being hooked up to steroids I got diagnosed with lupus. Be persistent even when you're speaking to a "professional" who doesn't believe you. You have to believe in your own reality.
I just tested positive for the gene of this, and the blood test showed lots of inflammation, my joints crack and crunch and hurt, i find out tomorrow about my xray results and its so comforting hearing someone else who is going through what i am, thank you for making this video
Ellie Baker that makes me feel better. I have anxiety disorder, it's gotten better. But I still get so anxious sometimes that I start to cry. I'm crying right now cause I look back and see all the things it stopped me from doing. I'm still in middle school, I really hope it doesn't come back. But it's people like you that make me feel better.
Ellie Baker My mom has pulmonary fibrosis. She was diagnosed about 20 years ago and has to deal with it but there is no cure and she is currently living with it and her scarring.
4:10 story of my life, and I've been sobbing from being in so much pain, and no relief, it's been years, chronic illnesses & chronic pain drive my entire life. This video is so relatable....
LadyPeters hey instead of being suicidal, realize how many people are dying from lack of food and healthcare, just shut up and think about it, are you Zach, emotional pain is only as strong as you are, physical pain is inevitable, but suffering is optional
Loved this video! My husband was diagnosed with AS after he experienced a really bad airborne jump while in the Army. After weeks of excruciating pain where he literally had to be picked up out of bed, an army doctor finally used their brain and resources to give him the extra tests and care he needed and figured out what was going on. Unfortunately with the official AS diagnosis he needed to be medically discharged. This disease is so rough to watch someone go through. Zach, it is so inspiring to see you still enjoying life (Humira is a total game changer)! I can’t wait to show James this video to show him that even with physical limitations you can still be successful and find your niche in life.
Im so glad Zach posted this, its shows that everyone has their own personal life issues they're going through and with the right attitude and determination to successfully seek out help/treatment it will come and it will be worth it. It'll help get your life back therefore you can continue to do things you love.
My friend has something like that, it's making her bones in her back fuze together. My cousin has fibromyalgia. In todays world there are so many types of different things and you'd think Doctors would want to help but doctors offices have become revolving doors. I had one PEDIATRICIAN tell me at the doctors offices that I should NOT bring my child in if she doesn't have a 103 fever. Even though I knew something was off about her. That night her fever spiked and I took her to the ER, turns out she had an ear and throat infection. When I had to bring my daughter in the follow up, I made damn sure I asked for another doctor and made DAMN SURE that woman knew exactly the hurt and stress she had caused myself and my daughter. I'm glad you stood up for yourself and got the medicine you needed to help fix your pain.
I've been in pain since I was 10. I've been to more Dr's than I can count. I've gotten so many different and incorrect diagnosis including "you're imagining it" finally 2 years ago they figured out that it was fibromyagia. I was 33. And the dr that diagnosed it still refuses to believe that I've been in pain as long as I say I've been. So many only want the money, they don't actually care about their patients.
Oh god going through all that pain sounds awful. I really admire your strength. I think people underestimate how powerful a diagnosis can be. I'm Autistic, and was diagnosed later than I probably should've been. To have a name for this thing you're going through, its incredibly important.
i was in tears by the end of this video, i suffer from chronic pain and at the age of 18 a doctor doesnt want to believe a healthy 18 year old has chronic wide-spread pain. I was diagnosed with clinical depression when i was 12 and now all the doctors point to that, and maybe they're right but hearing - "if you are suffering, you deserve help and you deserve people to believe you-" is just a nice thing to hear. Im so glad you have your pain under control and i hope one day i do too. ♡
taakotacco i can relate so much! Nobody wants to beleive that an active 17 year old like me (I do competitive swimming and varsity soccer) can have so much pain but it's so real. The doctors didn't beleive me they all blamed it on my anxiety and not even my parents believed me, they thought I just wanted attention. But I've had Celiac disease and hypoglycemia since I was little and we thought that was it, so everyone was surprised to find out I also have lupus (and also epilepsy to top it all off)
Don't give up. I was misdiagnosed as Bipolar for 20 years. Turns out I have a rare genetic blood disease where my body make enough of the blood cells that carry oxygen through your body. And all the damn psych meds they had given me for years was actually making me worse. Hang in there, don't stop telling doctors something is wrong. And if they won't listen then keep trying to find one that will. In the mean time, social media is a great way to find others that understand. Maybe if we all keep talking about it then the doctors will start to listen and believe us.
Dealing with fibromyalgia at the age of 18 and dealing with doctors for over a year being told i have everything from a possible lyme disease to junior rheumatoid arthritis sent me into server depression. It seemed like no one believed me. I was fairly healthy but my body felt beaten and bruised to the point i had to quite my job. My pain is real.
I legit relate to the whole 'doctor not believing' thing. Ever since I was a baby I couldn't breathe through my nose, like no air what-so-ever. After years of the doctor just saying it was allergies and after years of nose sprays and pills my mom finally put her foot down and he finally referred me to the Ears Nose and Throat and in 3 minutes she looked up my nose and immediately said I needed surgery. So at 11 i had nose surgery and it's been 6 years and I can breathe through my nose now. 😂
Allergies are the worst and it seems primary care Drs don't fully understand them. I just bypass them and see an ENT. After two major sinus surgeries, I can now breath and smell through my nose. My worst fear used to be having my mouth covered and dying because I couldn't breath through my nose.
As someone who got told by a Gastroenterologist that I had IBS... 5 years later, after it kept getting worse, I was diagnosed with Ulcerative Colitis and now Crohn's. Honestly, IBS is like the go-to diagnosis with digestive issues and it's super annoying. See a GI (or a different one if they refuse to do a scope).. It was super annoying that this one GI told me to stop stressing WHEN IT WASN'T IBS. If there's blood, it's doubtful it's IBS.... BUT that's just my experience... and now I also have Arthritis that flares with my Crohn's, as well as Subclinical Hypothyroidism and more!
+lys Going through something similar as well. The doctor i have now, is a nose/ear/throat "specialist". Absolute quack. And still, after years... No reason/diagnosis for my ear problem -_- All he does is do a temporary fix, and repeat when the problem reoccurs. As well as recommend surgery for no real medical reason.
"what a terrible thing, to doubt your own reality" realest thing ever said
Korndaddy is so sweet and pure. He doesnt deserve to feel pain. He's deserves all the love and kittens in the world. We love you Zach. I hope everything gets better
@sophia frost 🙏❤
Jacklyn Ray i rate you 1/100.... your welcome
Yeah but he still supports circumcision,. and not even for religious reasons.
Hedwig what wrong with that
wow i just gave this person 1k likes
You may not be the tallest try guy.
You may not win all the challenges.
But I know one thing...
Because of the pain you handled all those years...you are the strongest try guy...or atleast I think so
Misma Misma that made me tear up a bit Zack really is strong
Zach's always been my favorite (I still love the other three)
Len Kagamine are u even a fan u know he hates his name spelt zack it’s zach
I've been crying for 6 days straight
preach
The same thing happens with many females. Doctors blame pain on periods
Landri Elizabeth jup, I'm always iron deficient even though my diet is fine "well must be very heavy periods". No I don't have very heavy periods. Please diagnose me properly
Well you do have to remember that a huge number of people do come in with complaints that aren't the result of a serious condition. Doctors usually rely more on objective measures like lab tests.
True, but lab tests won't always give them the information they need for the right diagnosis. Especially when we are talking about rare diseases. Objective is great, but it only gets you so far as a physician. You have to listen to your patients, especially when they are still chronically having the same issues after making the changes you suggest.
They also like to blame everything on your weight if you're overweight. My abdominal pain was just gas and I needed to eat healthier. Turned out my appendix ruptured.
Or they say that you're making it up, and that you're being dramatic.
"Every pain I have... CANCER. It's cancer." Literally me.
Megan sammmeeee
Megan omg it's me I have a pain somewhere and I'm like '' CANCER I have CANCER''
Megan same. When ever I get a pain in my chest. I'm like.. oh god.. I'm Haveing a heart attack
All new updates about this game. shortlink.im/pzC1Z
Latest game videos. shortlink.im/8R8T4
"I mean living hurt...."
Damn Zach...u broke my freaking heart💔
My prayers are with u ❤
there is definitely a feeling of relief to get a diagnosis. it's a confirmation that it's not just in your head and it is real.
Rebecca i know right. my back has hurt for years. for at least 3 years. i would complain to my parents everyday, and finally j told them that MY BACK HURTS. TAKE ME TO THE DOCTOR. so we went and i have 2 curves in my back ;)
true.almost 2 months without knowing anything.then when i was so close,a doctor finds out i have addison disease.
I have auto immune hepatitis. Basically my immune system kills my liver. I also have fibromyalgia and I'm in pain everyday. Be heard, the doctors study medicine to help us, keep asking , keep vocal.
Bleach thanks! I try my best lol
This video made me cry because I can relate. I was suffering from extreme abdominal pain and bleeding for almost a year. It got so bad I couldn't even walk 5 feet to the bathroom without passing out. I couldn't take care of my son I stopped eating and I became very depressed. I went to the Drs and the ER more time that I can count and finally I got an amazing nurse in the ER who insisted that I be admitted. Turns out my blood count was almost half OD what it should be and if I didnt get admitted when I did I could have died. I got diagnosed with borderline severe ulceritive colitis and now I can raise my son. I am so grateful for that nurse.
You go!!!!!
I also have very bad abdominal pain. No bleeding. Have been dealing with doctors telling me it's all in my head or there is nothing they can do for me for almost 5 years now. I also have been to the ER more times than I can count. I've also seen pretty much every specialist that there is and they just tell me that it's either a problem in my head, as if I'm creating it out of nowhere or that it's nothing. The pain puts me to my knees I will be in the fetal position hysterically crying in pain and feeling like my upper stomach is going to rip open it's so bloated and painful feeling. It's the exact same spot every single time above my belly button. I am on a painkiller that helps when I'm allowed to take it, but if the pain is in the middle of the day, when my doses are at morning and at night, then I have to just suffer. They took me off of long-acting pain meds and put me on just the Breakthrough medication but I can only take it in the morning and at night. And like a lot of places in the world with the opiate epidemic and everything doctors are trying to get as many people as they can off of opiates and unfortunately because I don't have a known diagnosis they think I'm just looking to get high. Which is one of the most frustrating f****** parts of all of this. I haven't been able to work for almost 5 years and I feel like everyone has given up on me. I don't know what to do anymore. I'm glad that you got help and that you can look after your little one now, so I'm very happy for you!
Sounds just like me. It took years to finally get a diagnosis. The bleeding was so bad and I passed out in the shower once. So glad you got diagnosed. It took a doctor who's wife had the same disease to finally diagnose me.
This was me :(
I love stories like this! I’m so happy for you!!! ♥️
I had the same problem, but luckily after two years+ of suffering, a PA listened to me and now I’m on medications and finally after a year, we can get my heart back to normal without medications! Eek! I’m so excited!
How all is well for all of you! ☺️
Why is Zach single. He is so lovely and honest and amazing. ❤️❤️❤️❤️
Bear Dickson ikr? maybe thats his choice tho. He has many health issues to deal with.
Lol , because y’all dint hit him up
TheBestPlayerDead i would if i could.😁 he seems like a really nice guy.😊
donyanaticSone yeah probably his health problems
Right?!? Like I want to date Zach!
Nursing student here, in my little sliver of experience with being out in clinic and from dealing with a chronic illness myself, as a patient, I can fully support what Zach says. When you go to the doctor, dont downplay how you're feeling. If the symptoms you are experiencing is ruining your life say it! If it takes screaming at the doctor then do it! You are the patient, you are advocating for yourself and unfortunately not all medical staff take patients seriously as long as they can sit, composed and have a conversation. Fight!
I have no diagnosis for why I'm so achy and my joints hurt, pretty sure it is autoimmune but after an MRI on my wrist they said it would go away. Finally I changed my whole diet to an anti inflammatory one and it all went away. I've since cheated on the diet to an extent and the pain is back. Moral of the story, if the doctors have nothing good to say, either try more doctors or turn to the internet and try other things.
The problem is that (especially as a female) if you freak out then you are just being emotional and get dismissed that way :/
JOHN Q STYLE
Rheumatoid Arthritis is an auto immune disease. MS is an auto immune disease. Lupus is an auto immune disease. Fibromyalgia is an ANA. There are over 100 different types of auto immune diseases out there where the body is tricked into attacking itself. Over 3 million women suffer from an auto immune disorder / disease.
REALLY DUDE!!!!????!!!
TheImpiroGirl true. there are some doctors (i used to have all through childhood) who would sit with you for as long as it took and ask you questions about every part of ur life and how whatever is going on with you is affecting it. and then they would help u solve ur problem. now that i'm an adult my docotrs (different hospital) are completely different. they just want to rush you out of there and they are rarely paying full attention. i once stood up in the doorway so ths doctor would leave. because she basically continue to tell me my pain wasn't enough for her to do anything about it. so i stood in the doorway and told her to sit down and listen. i explained she didn't know my life (i had just switched doctors) she wasn't with my since I was a baby and she didn't know my extremely high pain tolerance. i told her that the pain was affecting my ability to sleep, go to work, and continue my schooling. i told her she needed to help me and that doctors are there to help you solve problems that are negatively affecting your life. she finally listened to me and helped
it's hella scary because they basically hold ur life in their hands and i feel i'm kind of talking to a god because of how much they can screw you over or change ur life. but they are just people who have a lot of things on their plates and are likely incredibly stressed out. tell them like it is, they are there to better ur life.
Zach is so cute, we must protect him at all costs
Abbie Johnson must protecc!
Abbie Johnson whose
Abbie Johnson who
Abbie Johnson I don't want to
Abbie Johnson hes too precious for this cruel world
Chronic pain is no joke. Good job Zach and everyone else going through anything similar 💕
🙏🏻
Thank you for this. I just found out, I have an AUD too.
Having a desk near Eugene would literally be hell
*The guy doesn't have a off switch*
'I give it three weeks'
*'like all Zachs relationships'*
Straight up savage
I would love to have that kind of coworkers. At least he does those things straight and honestly. That kinda a teasing is still good - and I bet if you have a bad day you can talk about it and say that please stop for today.
I have gotten sick and tired of cowerkers who talk behind your back or plan with others to bully you etc. And don't talk with you or overall communicate.
Nagarath16 yeh that's true
"Oh he's riding a bike. Good for him" so cute. Hope he gets better
gabriella autoimmune diseases are un curable.
n Quinn I'm talking about his pain. It may not be curable but seems like the medicine he's taking is helping
Zach, our little Jewish muffin, is going to be okay
Your doctor sucks. No trained professional should ignore a pain that keeps someone awake through the night without full evaluation.
Yep. It's super sad, but it happens a lot. I remember one story about a women who lost a lung because her doctor ignored the signs of cancer due to her wight.
It's the sad political climate we're living in thanks to doctors punishing chronic pain patients thanks to drug abusers and the DEA and CDC punishing the rest of the doctors who actually want to help by burying them under mountains of paperwork and giving them restricted pain guidelines when prescribing narcotics or they threaten to take their license.
@MissKayRose And even when the pain is physically shown, doctors still won't do anything for pain.
Sage Park IKR
CAN YOU SHUT UP ABOUT ZACHS DOCTOR? THE THING THAT ZACH HAS ONLY AFFECTS 1 PERCENT OF PEOPLE most diseases that dont affect alot of people are very hard to diagnose beacuse there isnt enough research on them because most of the research is going on the bigger ones like cancer and lukimia
The way your doctor ignored your concerns are triggering, irresponsible.
But it happens so often, to so many people. Kudos to Zach for not backing down until he got answers, and much, much love to him for sharing his story and encouraging all of us.
I don’t understand why doctors would do this, at least try to help your patient. But at the same time, that just means more $$$ in America. I’m really fortunate to be in Canada since I’ve gotten surgery on my eye and went to the hospital a bunch of times and all for the cost of $0. The only money spent on me was for certain prescriptions or medical tape for my eye patch.
Tbh I've had more doctors not listen to me than listen.
Just Jia it happened to me too actually. It’s surprising how much that happens. That’s why I’m going into medicine actually! Trying to change the system.
Yeah it happens to women a lot
Zach doesn't deserve to go through such pain.. My heart shattered when he said, "Living hurts." Hopefully he gets better :)
It never gets better. My son has this and the bones continue to grow and fuse together until they form a sort of plate making it hard to move. Only then does the pain kind of subside. But then your movement is limited.
You cant really "get better". I have the same thing and the joints in your back hurt pretty much constantly. Your joints will only fuse together if you don't take medicine though, so it is manageable.
Zach is a baby in an adult body. Must be protected.
M potato013 HE IS A BABY JELLYFISH!! SO CUTE AND SQUISHY
I agree!
You sure it's not the other way around?😂
*MUST*
I hate it when doctors don't listen. My mom has the autoimmune disease Hashimoto's thyroiditis, and has been recently testing positive for lupus :( I'm glad you found someone who actually listened and helped you
I have Hashimoto's disease too =)
I also have hashimotos, I was lucky to get dx at 7
I still have chronic muscle pain, some ppl have acted like it should be fixed just bc I'm on hormones for it, but idk
i'm going into the doctor's soon to get a consult, but they think i have hashimoto's and it's a bit terrifying to think i have an autoimmune disease.
I really don’t understand how Zach is single - it hurts me I am a Kornbuddy for life
Darcey Haynes i think he's gay honestly
He’s korndiddy but he’s my korndaddy 😏 😂
It’s cause he wants to be single I think he has commitment issues
M HJ nope
Chi awh
"ITS YA BOY CORN DIDDY" NEEDS TO BE THE OPENING OF EVERY BUZZFEED VIDEO 😂😂
Anusha Madhusudanan it's korndiddy
Anusha Madhusudanan hey demons, it's me, ya boy. KORNDIDDY
Anusha Madhusudanan "cOrN dIdDy."
Anusha Madhusudanan ii
It does!!!
Nooooo
Our Jewish muffin is crying 😭
Bethany Fisher j e w i s h m u f f i n
this is my new favorite nickname for any of the try guys
I was originally diagnosed with a Factor XII Blood Deficiency, but it didn't explain everything that was happening. After nearly 10 years of my mom, then me, arguing with doctors and insisting on testing we read a tip online to request that they put a note in the records that THEY turned down the testing. After that they were a whole lot more open to it.
We later found out that not only did I have a blood disorder, but some "normal" blood cells were getting though and getting attacked, which started eroding my muscles. This could have been helped out 10 years prior. The chronic pain I have could have been lessened, but no. Doctors need to listen. If a patient needs a test done, it needs to be tested for.
OMG I died when he said " What up it's your little jewish muffin". I love the try guys!
He's Jewish??!
Amanda Thompson yes
i was your 1k like :)
Zach is so right - if your body is telling you something is wrong, LISTEN TO IT. Finding the right doctor can be a challenge, but don't give in or give up. About 15 years ago, I started getting these weird flus about every other month. Recovery took weeks with each episode, and I felt like warmed over death most of the time - plus I was sleeping 10-12 hours a day - which basically meant all I was doing was working, eating and sleeping. I was told by a doctor it was stress, but I felt like crap even on vacations. Finally, I changed doctors, and I was diagnosed with Chronic Lymphocytic Leukemia with a good prognosis. My life is now normal except I still sleep a lot - but now know that is both necessary and normal for me. A lifetime pneumonia shot (recommended by my wise goddess of an oncologist) stopped the flus. Zach, I totally get your joy at finding answers.
I had gallstones and it was years before we actually got that result and it was a relief when I found out that my gallbladder had to come out
May I ask a personal question? How did you go about getting a diagnoses? Was there anything from a regular blood panel that gave it away? I ask because I have suffered from odd bouts of not quite flu with vomiting every other month or so for about 2 years now and have been unable to get any answers.
Michelle - Yes, a regular blood panel revealed that my white blood cell count was about 8 times normal. From there, they did a specific test to verify CLL and then did a number of genetic tests to determine a prognosis. My flus were entirely respiratory, though, caused by CLL-compromised immunity. Good luck to you!
Why an essay
Lily's Life
That's not necessary to comment. Please be respectful.
I'm so happy he got what he was looking for 💖
girl wyd I love your profile pic!!😂😂😂👌👌👌❤️❤️❤️❤️
Profile pic is 👌
PIC!!
Omigawwwwwwwwwdddddd love your profile picture!!!!
girl wyd me too
i’m a 13 year old girl and in the process of being tested for Ankylosing Spondylitis. as i’m young, the doctors arent explaining to me what’s going on in my body. i just wanted to thank you zach for making this video as now i’m comfortable knowing what’s going on in my body. you’ve reassured me that, although it sucks, it’s okay. so thank you zach, really.
Praying for you and hoping you'll get better sweetheart ♥️♥️♥️
Hey, I hope you see this! I’m 20, got diagnosed with a.s. when I was 17. Never let someone treat you or tell you it’s not as bad as you think. Your pain is valid! Take things slow, don’t push yourself, take care of yourself!!! You’re going to find different things that help and others that make it worse, what works for others won’t always work for you. I hope you’re doing okay ❤️❤️
Bruh me too im only 13 years olf and i dont wheres the pain coming in my body it so depressing ever since quarantine started
"It's all in your head" you can't imagine how many times I've heard that 😖
Cece Dawson. Do you have a diagnosis yet?
Rachel Hartjes nope, still nothing
Cece Dawson. What are your symptoms?
Oh Rachel 😓 I’m sad for you that you’re being told this and that you’re still without a diagnosis. It could well be ‘in your head’ as our brain controls our nervous system and every pain we feel, hence why our pain receptors are screaming when other ‘healthy’ people’s stay quiet 😞 what are your symptoms / what do you believe you have? I wish you the best of luck xx
Andrea B. Awe, well thank you! But I was actually just responding to cece's comment. They're the ones without a diagnosis. I have Ehlers-danlos syndrome. It's often very underdiagnosed so I like to spread the word. ♡
He actually looks healthier and happier tbh good for him
Learning to advocate for yourself with medical experts to dismiss what you're feeling is a lesson that also took me years to learn. It's hard. People who don't experience chronic pain have no idea. It affects your body, it messes with your mind, it makes you question yourself. So when a doctor says its in your head...glad you finally got it figured out!
As someone with a connective tissue disorder called Hypermobile Ehlers-Danlos syndrome, which causes joint dislocations/subluxations (partial dislocations), ligament and tendon ruptures or tears, intense chronic pain, and other varied and distinctly unfun issues, the takeaway of this video is advocate for yourself, *loudly*, *often*, and *don’t stop until someone listens*. I cried the day I was diagnosed, not because I was upset, but because I was thrilled to have a name after 33 years of seeking answers to why I was being injured so often, and so severely, with no one bothering to find out the root cause. The scared came later - and then the pissed came. I’m looking at being in a lifetime of severe pain and increasingly restricted mobility, and it didn’t have to be that way. I could have had years in which I had the knowledge that I need to protect my joints. If something is wrong, and you’re not getting answers, *speak up often, loudly, and don’t stop until you get answers - because you don’t deserve to live like that*.
I've also EDS. I understand everything you're saying. My mom discovered it at 35 and before nobody believes her. I've exactly the same symptoms that you're describing, I'm 17 and I feel like a 70 years old person. Because of the operations I got big scars and I feel really bad about them. I want you to take care of you and I wish you the best!
Wow your comment is a big mood. Kept being told my joint issues were overuse, and that my pain was due to anxiety/depression.
My uncle had EDS too, I’m pretty sure he was the first person in the UK to be diagnosed. It got so bad he has to be fed through a feeding tube to his stomach(I think he doesn’t talk much about it to me) and has nearly died multiple times he’s also confined to a wheelchair. If they had diagnosed him years earlier he would be so much better and able to enjoy his life more.
Yo I have hEDS too
I'm on a feeding tube because of EDS it caused my stomach to become partially paralyzed I have type 3 which is difficult
You have no idea how much this video changed my life. After watching it I had the courage to schedule my own MRI for my back. The MRI confirmed Anklyosing Spondylitis. Unfortunately mine comes with a the SEVERE tag, so mine is even more rare. I've been on Humira since and it's helped me release a lot of the stiffness/pain in my spine. It's taken 13 years from the start of this road to the diagnosis. I'm still waiting on my disability hearing because mine has forced my neck way out of place. Thank you much for coming public with this, it really honestly did change my life. A year ago I couldn't go around the block and yesterday I just walked over a mile. It really is an insanely painful disease that I could be put on higher painkillers than Methadone, but choose to supplement with cannabis instead. If I could afford enough cannabis I would drop my pain medication. I do not like the opioid high.
DId you tied cnabis oil?
I hate the feeling opioids create as well. That feeling of not being in a right state if mind or not being in control!!
1. Your apartment is super well decorated. 2. I am glad to hear you are ok and there is medicine you can take. 3. Your advice is amazing. Thank you. 4. You guys should certainly start doing vlog updates on your life like once a week each.
This video just shows that everyone has their own personal issues off camera. I love it
i think it's quite sad, and frankly fuels my depression to a point where i'm in a spiral of intrusive thought i can't get out of, thanks.
To be honest...doctors ignoring your pain & saying it's nothing is sadly quite common. Glad you got an answer though
It's so great being validated. Whether what you're dealing with is mental or physical, finally knowing what it is, is one of the best things in the world.
Anyone else read that as violated?
I know exactly how you felt when finally being diagnosed. When a Dr finally said, "It's not just in your head," it's a relief because you do start to question your own reality at times. For me it was 5 years undiagnosed with a spinal cord injury and terrible pain . The nights were and are always the worst.
I think the lack of sleep for us people with chronic pain makes it so much worse.
As a nurse who has worked for over 24 years in the medical profession, even I have had problems with getting the doctors to listen to me when trying to get the necessary orders needed to help a patient. Any nurse will tell you nothing is more frustrating than knowing something is wrong with your patient, but nothing is being done about it. Thankfully , now,I work with a great team of nurses, doctors, and therapists who really listen to what their patients are saying and try to help them. To all my fellow peers out there, LISTEN to what your patients are telling you and always go with your gut. No person should have to suffer for YEARS like Zach did.
14Babsie i just want to THANK YOU for listening to your patients.you are a wonderful person.
This is what I don't get - why is it so common for doctors to either not believe or to minimize what their patients are going through? Do they really think *that* many people are malingering? Or is it more of an ego thing, in that they can't diagnose it off the top of their head, so they assume it's the patient that's wrong?
THANK YOU, as Diana said, for listening and advocating for your patients. I know nurses that go through the exact same thing, sometimes to the point where they can diagnose a patient before a doctor will, but the doctor won't listen.
That's what makes me think it's an ego thing, instead of doctors truly wanting to help their patients. Obviously, not all doctors, which is why I think standing up for yourself and/or finding a different doctor (if you can - it's not an option for a lot of people) is the best thing a person can do for themselves. It's hard to, because doctors are supposed to be the authority. It's also so common for doctors to do this that it's a skill that has to be learned.
14Babsie thank you for understand.
-a fellow spoonie 🥄
I hope you have a wonderful day, you wonderful person. ♥
I completely agree Ive worked in the nursing field for 10 years if someone just came out of surgery and sent them to a rehab with only tramadol when the really need is some hydrocodone I just don't understand
As ironic as it sounds, finally being able to get an diagnosis or “label” of some sort is actually the light in the midst of hopelessness when you have been suffering for way too long. Best to all who have been going through tough physical and or mental health issues and know that hope always comes after you go hopeless for a while. (And hope you feel better soon Zach!)
I have Ankylosing spondylitis and Rheumatoid arthritis. There isn't a day that I don't have pain even with the prescription drugs.
#morethanabadback
indeted075 me too.. so sorry.. hang in there ❤️
I also have a.s. Stay strong friends
I have a positive Rheumatoid factor and I'm a HLA-B27 gene carrier and I've been having terrible lower back pain at night. I have just been reffered to a rheumatologist today.
Rheumatoid Arthritis runs in my family and my uncle has had some nights where he was in so much pain he couldn’t even move to take his meds. Now I’m starting to have pain more and more often and I have to do some exams to see if I have it too. Hang in there, you’re so strong every day💪🏼😊
I have Rheumatoid Arthritis and I feel like I started to have lower back pain that doesn't go away and watching this I feel like I might have the possibility of A.S too. How can I get a proper check up to know if I have A.S ?
You look totally different! We can tell you're well rested and not in pain. You look way happier.
thanks
Hate when doctors doubt their patients .-.
Small example: I had laryngitis and couldn't use my vocal cords, but I could let out a slight wheezing sound if I tried to scream. The doctor told me to speak even though I wrote down that I couldn't. The only thing my doctor told my mom was, "She's too afraid to speak." What the heck, doc.
I'm so glad I have a good doctor. I've got a lot of health problems and she always believes me when I tell her something.
I was diagnosed with Ankylosing Spondylitis about a year ago. When I was first diagnosed, the whole drive home for the doctor's I was crying. My best friend told me about this video, I watched it as soon as I got home and it gave me so much hope. Thank you, Zach. The past couple of years have been hell, but this video made me feel not so alone.
Thank you Zach. I have suffered with chronic pain for 26 years. Very few people understand the psychology of chronic pain suffers. You nailed all of the key points, waking up in the middle of the night, not sleeping, and the self doubting. I was kicked out of the Navy after 17 years for botched surgeries and the VA refuses to cover it. I’m glad you got the help you needed.
M
My mum has a very rare autoimmune disease, they can't even pinpoint it, so the closest thing to what she has, is Ulcerative Colitis. She's going in for surgery and they want to put her on Humaira!! So I really hope all goes well and I'm proud of you Zach.
I have Ulcerative Colitis, and that effects 200,000 people per year in the USA. It isn't rare. It's just an Inflammatory Bowel Diesease that has to be treated any anything else. It's not life threatening, and certainly aint rare. You can easily get UC just from having a really poor diet.
What's Humaira?
Kris Carlson
She didn't say that's what she had, she said that's the closest thing to it. Basically the doctor's can't pinpoint exactly what it is because it's so rare so they just has to pick the closest thing.
I have Ulcerative Colitis, and it's not rare according to my doctors and PA. I'm on Remicade and Mercaptopurine to stop the build up of antibodies to the IV meds that I take (Remicade). It's not fun. I'm 25 and I've had 3 colonoscopies in 4 years, but I know there are people out there who have it worse than me.
I have ulcerative-colitis to I’m 11 and I was on humaira to i stoped taking it though because it didn’t help me
Zach's fans should be called kornflakes.
Jonah Lieb omg yes!!
boiiiii I love cornflakes
*kornflakes
Kornflakes
YES
Welcome to the try guys, know your roles.
Ned- the father👨🏼
Keith- the funny one😂
Zach- the adorkable muffin🌸
Eugene- the hottie✨
Also a couple sad faces:
:((((((((((((((
All of them are funny tho 🙄
Mr. Duck ifkr 😍 I find Keith the hottest and funniest
Eugene-the alcoholic
Starjaws AJ we know but Keith is the funny one like he hold be the class clown
zach is an adorable muffin he’s literally so cute lol
Zach! Optometrist here. If one or both eyes suddenly become red, painful, and light sensitive, go see your eye doctor right away! There is a high incidence of something called uveitis (inflammation inside the eyeball) in patients with Ankylosing Spondylitis and related auto-immune diseases. If left untreated it can lead to permanent vision loss and glaucoma. Don't see your GP - they usually misdiagnose this as conjunctivitis.
Everyone here needs to like you comment in hopes he sees it!
ken tran go see an ophthalmologist (an eye doctor), not an optometrist.
DizzyCtube I have that disease
Even though I don't think I have this thank you for informing everyone :)
DizzyCtube I
I want to thank Zach so much for this video. I also have an autoimmune disease and it went undiagnosed for years. I yelled and screamed at healthcare professionals and they all told me it was in my head. The heartbreak is real because the doctors make you feel crazy even though your pain is real. No one talks about autoimmune diseases enough or understands why those of us who have them are limited. It still makes me feel less human sometimes, but seeing more people talk about their invisible illness makes it easier!
Thank you Try Guys!
Kiana Wills it's awful when you hear the doctors say it's in your head. I got that for 5 years. it's so awful. xxx
Kiana Wills I'm right there with you. It's impossible to describe the feeling of a doctor looking at you and telling you your pain is all in your head.
I also am with you. My invisible illness despite being on very strong medication still makes me suffer on a daily basis.
zach is such a pure cupcake he doesn t deserve this
• stefi • zach*
"Heard"
Marissa Moore "witnessed"
Jon Doe yea sure
ruclips.net/video/sfapm5Y5NIA/видео.html
People really don’t understand how hard it is to live with a chronic illness or disability. Thank you for sharing your story and bring issues like this to light! I’ve been chronically ill for years now and I’m only 18 now. I’ve been through so many doctors and hospitals that completely brushed me off. Someone like you, with such a large platform, sharing your experience, & what many of us have to deal with day to day is so important. It’s scary how many of us get ignored and brushed off by doctors, the people who are supposed to help us. So many people end up, like you, thinking that we are making our illnesses and pain up all because doctors won’t listen. So thank you so much!
Im 18 now, diagnosed with Ankylosing Spondylitis when I was 16 through miss diagnosed surgery on my hips. I know exactly how you feel. The pain is almost torture, constantly there, constantly being immobile, the extent of pain is different for everyone, but for me I almost could not walk at times. Its a very sad reality and it takes a huge tole on not only your physicality but also mentality. I had the pain all my life, I loved playing sport growing up but I could never reach my full potential. And having constant pain not knowing what it was, is tricky for a young boy to deal with... especially on the sports field. No one believed my pain, the struggle I went through, even my own dad thought it was all in my head and thought I was just lazy and weak. Everyone always thought I was just some woos or nerd who didn't ever want to do anything and I was made fun of at times for my limped walk. Fast forward to 2017 I have been on Humira for 6 months and have never felt better. I was very skinny because I couldn't do anything, but now I am well on the way to a pleasing physique through hard work and training. My story is incredible from where I was to now, and I say that humbly. Because at the end of the day, no one knows everyones struggles but there is always a light at the end of a dark tunnel when you're alone. Ive gone from crippled skinny boy to flexible and athletic, where I always wanted to be. Good-luck to you and your journey. Anything is possible.
GuardaaGames Fan Club This sounds a lot like what I've been dealing with for the past several years, but I always feel worried about addressing the pain because of how I've been received when I do.
When you were diagnosed with it, did they just do an MRI? How did the doctors find out that you had that, if you don't mind me asking?
So initially I was getting surgery for extra bone I had on my hip (at the time they thought taking the bone away would stop the pain) once they opened me up they saw an insane amount of inflammation around my joints and instantly stitched me back up because there was more to what they had initially thought. So I went to see a rheumatologist and basically within a week she correctly diagnosed me with A.S, and yes the specialist needed an mri to clarify it was A.S although my symptoms I explained to her pretty much made her know it was A.S.
Thank you for being so open and making this video Zach. I have many friends with endometriosis who experienced the same maddening frustration with medical professionals. Something needs to change within the medical system so people don't have to fight tooth and nail to get the answers and care they need. Especially when there is pain involved.
Ouch, endometriosis sucks :( my best friend has fibromyalgia and also went through the same maddening cycle of being pushed from doctor to skeptical doctor :( so glad you and she both got a diagnosis eventually.
I have endometriosis and I went through this same aggravating cycle. I honestly couldn't stop crying watching this video- I really appreciate people being real about health issues and the medical world in general. 👏🏻🙌🏻❤️
My heart is broken. Poor little Zach doesn't deserve this. ;-;
Panic! Because I need a username! Poor baby
Thank you so much for putting your diagnoses out there. I’ve lived with Autoimmune for 41 years and it’s very miserable. Good Luck to you and I’m very happy you finally got answers.
Okay no kidding. I have high blood pressure. And I'm 20. I'm a bit overweight but I exercise a lot. My doctors kept blaming it on my weight and never took me seriously. I finally went to a new doctor and we figured out I have renal fibromuscular dysplagia! Which pretty much has the same treatment as normal high blood pressure but now I'm not being blamed for my health.
Lexi Hamm Are you better?
Maria Guzman I'm properly medicated now so I'm technically fine until I'm much older
Lexi Hamm I'm glad. Hope you are the happiness version of yourself.
What does blood pressure have to do with autoimmune disease apart from an attention seek
Her story means to expand on what the video referenced- having an invisible something wrong with you- doctors not believing what you’re telling them- trudging along by yourself, searching for the right someone to help/understand you- and finally receiving a diagnosis & treatment & VALIDATION. That’s what high blood pressure has to do with an autoimmune journey!
this video I think is so important to other people with autoimmune diseases. To know that even though you had to say no to some things in the try guys, you're still a try guy and doing stuff that we see on those videos. That's so important. It's inspiring.
Yes! People need to be their own advocate when dealing with medical professionals. I'm glad your feeling better and treatment is working!
AllyOC1 Amen
AllyOC1 it is disgusting; if you are not "textbook" they do not want to be bothered with you. None of them think out of the box and get extremely agitated if you tell them you researched info.
In this day and age of "modern" tech I can't believe how frustrating it is that the med community has NOT evolved.
Cee Cee Exactly
Cee Cee yes don't trust doctors because they are always wrong listen to yourself and only yourself. You are an idiot if you think that none of them think outside the box. If it is as easy as reading a textbook then why don't you do it? Do you even know how hard it is to become a doctor?
Omg I know this video is pretty old-ish, but watching it made me kinda happy. I was recently diagnosed with type 1 diabetes and I hate it. But seeing one of my favorite people also suffering from an autoimmune disease makes me feel less alone :)
He’s literally the sweetest cutest human ever! Can I marry Zach ?
Bella Boyd get in line! 😘
No I'm marrying him
Bella Boyd No cuz I am
Well he is single so... it’s not impossible
Um... You're gonna have to get him before i do! XD
I resonate with this so completely in my experience of trying to receive my eventual endometriosis diagnosis. I had medical professionals tell me I had irritable bowl, friable cervix and even one who told me it was just a figment of my anxiety. When I finally got my endo diagnosis I was releived and greif stricken all at the same time. No one wants to be this young and be fighting a lifelong, painful chronic illness. Im amazed at anyone I meet in similar shoes because I know the fight and resilience it takes to keep going ❤
I have endometriosis and scoliosis
same I have a combo
Zac I'm so sorry I cable relate like some of the other commenters, but I give you my utmost empathy. I'm glad there is less pain in your life.
Trilogy's Comic Corner u
Endometriosis. Yeah... turns out the it isn't normal to have excruciating pain etc. during a menstrual cycle. How many young women get told "Oh... it's all in your head. It can't be that bad." etc. etc. while their insides are being ravaged by this disease.
I am so happy that my little Jewish muffin is ok. I love zach ....
xharia_mendes xharia_mendes 😜
My Jewish fam is ok, thank goodness
😂
xharia_mendes xharia_mendes dont we all love Zach 😘😍😘😘😘😘
I've been taking Humira for Ankylosing Spondylitis for over a year now, and I know how you feel.
There are days where I completely forget about the intense back pains that woke me up every night.
Congratulations on your treatment, fellow Humirian.
i wish i get prescribed humira too, people talk about it like a miracle. my doc put me on nsaids rn and said that she’ll prescribe me biologics only if none of nsaids help. i’m so afraid of nsaids especially considering my stomach problems and the fact that i can’t stop smoking
Thank you for making this video. I have scoliosis and ankylosing spondylitis. I have heard many back diseases and auto immune diseases called "invisible disabilities" because you look ok to everyone but inside you're feeling the chronic pain. I was diagnosed 9 years ago and it took so long to be diagnosed. Doctors didn't believe me of course. You give hope that just because I have a auto immune disease doesn't mean I can't have a job I love and a life. I had to go to a rheumatologist and they KNew exactly what was wrong and I had a MRI too. I'm 26 years old. Just wanted to say thank you for making this video.
LAURA M when i,was 10 I had reactive arthritis no doctor believed me until I got my rhumotoligst
SimplyxSabrina see if you can get a test from your Rheumatologist about the b27 and b7 markers on your cells. I had the b7 and that helped my rheumatologist diagnose me. Also, my sister has psoriatic arthritis and IBS but I do not have IBS. Honestly no trigger point injections, epidurals, nerve coatings, or humira Simponi or Cimzia helped my pain go away. Just a little bit at times. I am still holding out hope for remecaide and other options. Never give up hope and don't take no for a answer. Where there is a will there is a way is my motto. I hope any of this helps you. I'm sorry you're in pain and I hope you find relief soon. ♥️
Gabriela Ferro I hope you are doing better now♥️
same for me! i have spondylitis, scoliosis, and psoriatic arthritis
i didnt find out until i was 24. doctors dismissed me for YEARS
Me and my sister have scoliosis and arthritis. She was diagnosed 5 years ago and me three years ago but it was years of chronic pain before finally getting to the xrays and having a diagnosis.
As someone who has an illness, and has had to fight the doctors to believe me, I feel this video so much. I'm happy you have the help you needed, and that you did persist :)
I'm so glad you finally received treatment. Stay strong, buddy. Humera works wonders.
I have this disease as well and I've noticed that cutting down my sugar intake doesn't necessarily help with pain but it helps keep the swelling in my joints down.
Kersene Gaslight I have it, too and none of the meds have worked so far. I only have one left to try at this point, Remicade.
humira feels like injecting orange juice into your stomach it hurts xd plus it didn’t work for me so that’s cool and i got psoriasis from that :d
Humira was definitely the most painful out of all of the medications I've tried so far! It stung a lot, for quite a while after the shot was over. The worst of the actual products was Cimzia. It had a dull, dull needle on every single syringe! It was awful (and it didn't even work on me!).
Fish oil helps joint problems
Same! Sugar is a huge trigger for me.
"we hold on to zach's medication" we love our dads
Ever since I was diagnosed with an autoimmune disease, I come back to watch this video, and it just helps to know you’re not alone. Much love 💕
It helped me as well. I am sorry that you are suffering as well. I have Psoriasis, Psoriatic Arthritist and Ankolysing Spondylitis. Oh my favorite thing I hear from people who know nothing about autoimmune diseases is all I need to do is change my diet and exercise.
Me too. My middle child and I both got diagnosed a few months apart. Me: RA, child: lupus 😕
except those diseases cause a lot of inflamation which is a lot of the pain, so a low inflamation diet is beneficial. It isnt a cure it just helps with the pain, from one sufferer to another, ditch the carbs, they arent your friends.
Summer Noybn No only a very small percentage. Due to taking on average years to get diagnos d, you suffer from permanent damage. I went over 25 years trying to discover what was wrong. I have Psoriatic Arthritist and Ankolysing Spondylitis. I have irreversible damage including bone growth on my spine and hips. Inflammation is not the main cause of pain, it's the damage done. Diet won't solve a thing. I am tir d of everyone who thinks they have the "cure" saying eat tjis, drink that and etc chiming in. If everything I have been told that would either help the pain or cure me worked, I would be living again and not throwing up when I hurt so severly, or be exhausted 24/7 because it's so dang painfull to sleep longer than at max 2 hours at a time. To not even be able to walk longer than 5 minutes without being in tears. I exist, I no longer live. You do you and do your diet. Myself, I have tried it all and guess what, It doesn't work.
Anita Boddie Thank you! 💕 I do know people who have had *some* inflammation relief from diet changes. For each of them, it was trial and error as to what helped (keto diet, gluten free, paleo, vegan, and/or no nightshades). BUT it's *NOT* a cure. The damage is still happening unless you're on the right combo of immune suppressants. (Also, I suffer from painsomnia too 😔 It's awful.)
Finally finding out what is wrong with you is massive and it is wonderful. Half a year ago I got a diagnosis that basically explains everything that has been wrong with me for my entire life and getting a diagnosis like that should have been horrifying but in reality, I have never been more happy and relieved.
i don't think i've ever realized how cute he was until this video...
ItsJustMeDiana I did. Every time I watch a try guys video I think "why is he so damn cute?" Lol
ItsJustMeDiana same!
Im glad to know im not alone, seriously!
Dude me too... he got better. I think?
He's so adorable!!
I never knew how much I would relate to this, first time I watched this video, I was healthy. Since then, I went through hell and back, doctors not believing me, my own parents thinking I was faking my pain, getting told that it's all in my head, then getting told that it's a mystery and I should just learn to live with being in pain 24/7 because they don't know how to help me...
I questioned my own sanity, more than once. I thought about euthanasia if there really wasn't a cure because my life was no longer a life, I could barely do anything without crying in pain...
After all that, almost giving up because I just didn't think I could do it, I switched doctors for the god knows how manyth time... And she figured it out.
It was 8 weeks of shots and now I'm trying to piece my life back together because my body is severely weakened by a long time of being able to do nothing but lie in bed.
I'm getting better and all because I didn't give up. You know your body, you know when something's wrong and don't let anyone stop you from getting better!
This video brought me to tears. Everything you stated about needing and pleading for doctors to listen to you, to beilve you. I was there for 10 years, without a diagnosis. I was actually convinced by a neurologist that it was in my head, and I even went a shrink! Who subsequently told me, sure therapy is benifical but there is something physically wrong with you. So went back yet another rhuemotolgst and was diagnosed with AS. But it progressed so far by that point, that it had affected me beyond repair. I am also on humria and various and sundry other medications, but now the AS has produced too many platelets from my bone marrow causing my body to treat it like cancer. So, now I am wheelchair bound bundle of awesome...but sadly it has attacked my organs, lungs, heart, etc. But I stay positive. Although I know it could have been treated sooner had doctors listened, I still remain positive.
I know you have no idea who I am, but I have been watching the try guys videos from the beginning and admire your bravery immensely. And you ever need someone to butch to about chronic pain and illness, I'm your girl. Xoxoxoxo Jenn
Jennifer Hey, just wanted to say that you sound like an amazingly strong lady!! You’re an inspiration and should be proud of yourself 👌
Having an invisible condition sucks and raising awareness is vital. I have Fibromyalgia and chronic fatigue and was disbelieved for so long that my symptoms and permanent pain was really that bad, as medically it’s immeasurable! Finally had a breakthrough with a Rheumatologist who diagnosed me and now I’m on medication to stabilise my nervous system which help to stabilise me a bit.
Good luck with everything doll & stay strong & inspiring 👏❤️👏
Andrea B Thank you so very much. Your words touched me.
This video inspired me to make my own about my illness (a less professional, grainy version).
I just want people to know they are not alone.
I have AS too. Go AS warriors!
Stay strong! i just got diagnosed with AS too! Lets stick together!
idk why I lost it at "we hold on to Zach's medicine"
this is just inspiring. i have ankylosing spondylitis too and i am 13 years old. i have never really seen or heard of anyone with the same thing. I’ve already had many surgeries for it and i even have to go to a doctor 5 hours away because no one around me takes children. and it’s been rough since i was diagnosed with that a juvenile rheumatoid arthritis so it’s nice to see you sharing your story:)
Elia Lackey so sorry to hear that you are suffering from these two illnesses at such a young age! You seem like a very brave young person! God bless you and I'll be praying for you. Keep up the positive attitude and keep looking for things that inspire you through your journey with these conditions.
Elia I'm so sorry you're going through this too, but I'm SO HAPPY you were diagnosed before you had significant damage. I have had symptoms since I was 15 but wasn't diagnosed until 31. 60% of my spine is fused, and both hips. It sucks. take care of yourself 💜
Elia Lackey - My son is 12 (will be 13 in October) and was just diagnosed with Juvenile Arthritis with HLA-B27 (genetic marker) with Ankylosing Spondylitis and Enthesitis. His knees, ankles, neck, back, heels and elbows are currently affected. He has been on Methotrexate, oral steroids and Humira injections for the last 6 months. He goes to physical therapy twice a week and does Home exercises daily. I’ve been doing a lot of research and trying to find other people with similar diagnoses and symptoms. I hope you are responding well to treatment. The pediatric rheumatologist says my son’s spine is fusing together. We just had another appointment last Friday and the doctor added another injection medication and two more oral meds for a total of 13 medications. Just curious- are you in or around Louisville, KY? The pediatric rheumatologist my son sees is in Louisville, KY, which thankfully is 30 min away from us. Would love to hear more about your story and how you were diagnosed. It was a very very long process for us, trying to get a diagnosis. So many doctors over several years with numerous complaints (severe pain, fever, hot painful joints, ridged fingernails, severe fatigue... the list goes on) and no answers- until the end of last year- Thank God someone finally listened to us and referred him to a pediatric rheumatologist. Bloodwork confirmed what the rheumatologist already knew. It’s definitely a scary thing to go through, especially being so young. I hope you are doing well and responding well to treatment. Please feel free to write back or email me candyp7780@yahoo.com. Looking for support groups, others with similar stories, ways to cope, etc., if you have any suggestions. Thanks!
I've had Psoriatic Arthritis, JIA since I was 12 (I'm 23). I can relate, there was only one Pediatric Rheumatologist in my state growing up. Just remember not everyone your age will understand your diagnosis now but that will get easier with age. Stay strong.
Elia Lackey stay strong girl!!
&I’m glad he is spreading awareness! ❤️✌🏼
I’ve just been diagnosed with this too. Got really emotional watching this because it’s like you were talking about my life word for word. Being diagnosed with scoliosis was the first triumph but then a spinal specialist told me it’s not severe enough to be causing me pain. Multiple years, X-rays and blood tests later and I finally have an answer. Thank you for sharing your story, it definitely made me feel less like an alien. Xxx
Thank you so much for sharing this, Zach. I've had chronic pain in my back since I was 11. It's gotten progressively worse, and it's made me put on weight as well, since I can't exercise enough without extreme pain. I've seen various doctors, and none have answers. All they do is prescribe painkillers, do tests that come back with nothing, and tell me I'll just have to love with it. Recently, the pain has travelled up to my neck as well. I am constantly stiff and sore, and it's exhausting. It's inspiring to see people who have been able to get answers, and have a solution. It makes me hope that one day I'll find a doctor who will actually listen to my pain and know what's going on. Thank you.
LifeIsZealous i wish you luck
LifeIsZealous wish you the best
LifeIsZealous You will find your answer.
You need to keep looking for specialist who can figure out what s going on. You need to taking care yourself if nobody will.
LifeIsZealous Stop blaming your freaking condition for your weight gain. Working out doesn't make you lose weight, weight gain and weight loss happens if you're either in a calorie surplus or a calorie deficit. Like literally just manage your eating habits and you'll lose weight
Zach you are such an amazing human bean, yes I said bean on purpose I hope you're okay
Honeybee Beauty l-/ ?
Honeybee Beauty gotta love that corn diddy
Honeybee Beauty human bean
Mix z human bean made me laugh 😂
+Panic at the Twenty One Pilots |-/
I'm glad I'm not the only who when I have any pain I'm like "its cancer gotta be cancer"
zach is too precious to go through this :(
I can relate! For years I was completely exhausted. Every time I would go to the doctor, they would say something different. "You need to exercise", "You are exercising too much", "You're pregnant", "You're nursing", "You have toddlers". Or, "You are depressed". After a brain scan and night/nap study it turns out I have Narcolepsy, geniuses!!!!!!
Narcolepsy here too! Did you know only 25% of people with narcolepsy actually have a diagnosis, and the ones that do get a diagnosis typically don't get one until around 30 years old? This disease is so ignored and mistreated! Makes me so sad to think that 75% of us suffer in silence because doctors don't recognize this illness :(
Aravias101010 my mum is a narcoleptic and it took us over a year to find out what was wrong they said it was just because she had just had my brother as they though it was because she was a new mum she now had it for nearly 10 years but even though things are getting better we are still working with new medication to help her
Yes, I was sent to three nutritionists, put on anti-depressants, forced to take my blood sugar levels, and mocked by my doctors for years. I knew something was wrong by the time I was 10, and wasn't diagnosed until I was in my late 30's. Not only that, not even my own family understands what it's like. The state I live in doesn't recognize it as a disability and it isn't alright. Until I got on meds, which by the way cost over $250.00 per month (because most insurance companies don't cover it unless for ADD), I was only living in my dreams. Since being diagnosed and taking meds, I have doubled my life. I went from 18 hours of sleep to 8. Even still, I can take a nap just after taking my meds. My children joke about it by saying things like, " I was dreaming that I was at the lake and you were there, do you remember"? I suffer from hypnogogic hallucinations.
Ayyy, shoutout to my fellow narcoleptics! I got lucky in many ways because my mom believed me and I was diagnosed in high school, but it getting a diagnosis was still a battle. It took 2 years of constant medical testing, seeing over 20 specialists, and taking mountains of pills to get there. And then they wouldn't give me Xyrem because I was under 18.
But boy, do I feel the condescending doctor schtick. I was sleeping 12-20 hours a night, but obviously I was just a depressed teenager who needed to get over it. 😒
+1, my aunt actually recognized my symptoms because she works in the hospital, my damn doctor was like, this is bull but if you really want to get tested go do that. He was convinced I was a drug addict (at 14)
I'm in med school and I've been struggling with the ankylosing spondylitis questions forever... Now I'll never forget! Sorry to hear about your condition Korndaddy, I promise to do better as a professional.
Thank you for sharing your story. Having multiple chronic illness, including chronic pain, the relief of having a diagnosis is indescribable!
That’s so great of you, I hope your career goes well as you clearly already have a fantastic work ethic & kind heart👌👏 thank you for supporting people that suffer with invisible conditions, you’ll be an asset to your profession 💜
As a physical rehab prof, this is also one of my least favorites. You have the "typical" presentation, but once in a while you have a weird case showing up. There was one young man that came into my office few years ago with back pain to the roof, worst during the night, mostly between the shoulder blades area ("normally", more common in the lumbars), was a building painter, lived a year in Japan, saw multiple doctors over there, tons of exams, no answer. Found out that in Japan, that disease is really not common, doctors didn't really know about it. I was able to help the guy, ease the pain a bit, waking 3-4 times a night instead of 5-6...still not a walk in the park. Since we know what he has, on meds, I don't see him anymore. Which is a good thing in my field. But I felt so bad for not connecting the dots that 1) I apologized to my patient 2) went back into my books, read that, yes, more common in the lumbars, but can also be found in the dorsals/shoulder blades area... So now, you can be sure that if anyone, mostly men, when they have a weird pain story that sounds a bit like that, I refer to a doc to see a rheumatologist. NB : one gold star for me : I knew his diagnostic before he said it. Yes ! Passed the test !
If you want answers to questions about AS there's multiple groups of people on Facebook who suffer from it and are extremely open to educating anyone who wants to learn about it. Just look up "ankylosing spondylitis" groups or Google the spondylitis association and they should have links to groups. They also have support groups that are open to people who want to learn more about it, usually friends and family but I don't see why they would reject you? Hope this helps a little.
The most deadly thing a doctor can do is become overconfident and not listen to a patient. Experience means nothing if you don’t use it right- always double check what you think you know.
We must protect Zach at all costs. He's too precious to loose!!!!*wraps Zach in blankets and plasters a 'fragile' sticker on him*
Sahar Fujiki2004 this way up ⬆️
Sahar Fujiki2004 Lmao
Dudebro13454 Bro nope, Ned does. Keith has a fiancé, but Zach is single.
Haha this is so cute
Yeah, anyone who tries anything to hurt our Corn Muffin will be locked in a room with Eugene when he's feeling particularly stab-y.
I bet he has ankylosing Spondylitis.
Edit: I knew it. That’s what I have, and the pain is horrific.
I knew exactly what you had once you started explaining it because I've been through all of that. And I have AS too!!!
Bamle Tawa lol. WTF.
As?
i have it too.. i know all of his symptoms waay too well. :(
yeah... we got a bloody club...
Mari Thomas see my comment about eating less starchy carbs
I'm so glad they finally got your pain figured out, Zach! I have Systemic Juvenile Rheumatoid Arthritis from age 9 through my junior year of college. I had to take so many bad, bad drugs. You have it mad with only having to take Humira. They have come a long way in treatments for this sort of them in the past 20 years. So glad you feel better!
Matthew Condon FYI, it’s Zach not Zack.
Angelo shut up dude it could have auto corrected, besides he’s telling us something personal and your worried about the misspelling of a name
Poptack thank you I was annoyed as well
Rheumatologists are God's gift to man. None of my family believed me when I said I was in the worst pain. They also thought my rash was nothing special when I know I never experienced anything like that before. Well, what do you know? Once they finally decided to do a blood draw they could see something was wrong and after a week of being hooked up to steroids I got diagnosed with lupus. Be persistent even when you're speaking to a "professional" who doesn't believe you. You have to believe in your own reality.
Madochée Bozier yes!👏👏👏
Madochée Bozier I 100% agree!🙌 I hope all is well with you and God bless!✨
I just tested positive for the gene of this, and the blood test showed lots of inflammation, my joints crack and crunch and hurt, i find out tomorrow about my xray results and its so comforting hearing someone else who is going through what i am, thank you for making this video
Hands up for all of us with invisible illnesses that nobody else understands or believes, I got you🙌 💞
Thanks :)
Ellie Baker yes😞
Ellie Baker that makes me feel better. I have anxiety disorder, it's gotten better. But I still get so anxious sometimes that I start to cry. I'm crying right now cause I look back and see all the things it stopped me from doing. I'm still in middle school, I really hope it doesn't come back. But it's people like you that make me feel better.
Ellie Baker My mom has pulmonary fibrosis. She was diagnosed about 20 years ago and has to deal with it but there is no cure and she is currently living with it and her scarring.
Misophonia is soooo badddd
Says "I'm not oka.."
Me : "IM NOT OKAYYYYYY
Mrs Me my chemical romance?
you honestly can't escape us, us emos are everywhere
Grace Jordan that is true
KiLLjoYS MaKe SoME NoicE
Mrs Me I promise
4:10 story of my life, and I've been sobbing from being in so much pain, and no relief, it's been years, chronic illnesses & chronic pain drive my entire life. This video is so relatable....
LadyPeters Are you okay? Do you need someone to talk to?
so ture
LadyPeters hey instead of being suicidal, realize how many people are dying from lack of food and healthcare, just shut up and think about it, are you Zach, emotional pain is only as strong as you are, physical pain is inevitable, but suffering is optional
I hope you feel better, If you guys diagnosed please if you can share with us I'd you don't mind
wtf hahah
Loved this video! My husband was diagnosed with AS after he experienced a really bad airborne jump while in the Army. After weeks of excruciating pain where he literally had to be picked up out of bed, an army doctor finally used their brain and resources to give him the extra tests and care he needed and figured out what was going on. Unfortunately with the official AS diagnosis he needed to be medically discharged. This disease is so rough to watch someone go through. Zach, it is so inspiring to see you still enjoying life (Humira is a total game changer)! I can’t wait to show James this video to show him that even with physical limitations you can still be successful and find your niche in life.
Im so glad Zach posted this, its shows that everyone has their own personal life issues they're going through and with the right attitude and determination to successfully seek out help/treatment it will come and it will be worth it. It'll help get your life back therefore you can continue to do things you love.
m.blueberries Zach**
Kelli Dean Get off of RUclips. That's disgusting.
Kasanda Morris Jake Paul
Can y'all not freaking advertise on someone comment that's all gonna give virus don't click on it.
Jake Paul your a fake Jake pual
Heidi Kelley no lol
My friend has something like that, it's making her bones in her back fuze together. My cousin has fibromyalgia. In todays world there are so many types of different things and you'd think Doctors would want to help but doctors offices have become revolving doors. I had one PEDIATRICIAN tell me at the doctors offices that I should NOT bring my child in if she doesn't have a 103 fever. Even though I knew something was off about her. That night her fever spiked and I took her to the ER, turns out she had an ear and throat infection. When I had to bring my daughter in the follow up, I made damn sure I asked for another doctor and made DAMN SURE that woman knew exactly the hurt and stress she had caused myself and my daughter. I'm glad you stood up for yourself and got the medicine you needed to help fix your pain.
My spine is fused and it sucks.
I've been in pain since I was 10. I've been to more Dr's than I can count. I've gotten so many different and incorrect diagnosis including "you're imagining it" finally 2 years ago they figured out that it was fibromyagia. I was 33. And the dr that diagnosed it still refuses to believe that I've been in pain as long as I say I've been. So many only want the money, they don't actually care about their patients.
Vaan1891 that’s horrible! I’ll be praying
How is Zach Single...?? 😍😍❤❤❤❤🙌🙌🙌😭😭😭💯💯👏
Lisa Le he likes himself a lot
Kiabeth De Paz as he should
Kiabeth De Paz Heck if I was him I'd like myself to😂❤
La
Good question😍😍😍😍😍
Oh god going through all that pain sounds awful. I really admire your strength.
I think people underestimate how powerful a diagnosis can be. I'm Autistic, and was diagnosed later than I probably should've been. To have a name for this thing you're going through, its incredibly important.
i was in tears by the end of this video, i suffer from chronic pain and at the age of 18 a doctor doesnt want to believe a healthy 18 year old has chronic wide-spread pain. I was diagnosed with clinical depression when i was 12 and now all the doctors point to that, and maybe they're right but hearing - "if you are suffering, you deserve help and you deserve people to believe you-" is just a nice thing to hear. Im so glad you have your pain under control and i hope one day i do too. ♡
taakotacco i can relate so much! Nobody wants to beleive that an active 17 year old like me (I do competitive swimming and varsity soccer) can have so much pain but it's so real. The doctors didn't beleive me they all blamed it on my anxiety and not even my parents believed me, they thought I just wanted attention. But I've had Celiac disease and hypoglycemia since I was little and we thought that was it, so everyone was surprised to find out I also have lupus (and also epilepsy to top it all off)
Don't give up. I was misdiagnosed as Bipolar for 20 years. Turns out I have a rare genetic blood disease where my body make enough of the blood cells that carry oxygen through your body. And all the damn psych meds they had given me for years was actually making me worse. Hang in there, don't stop telling doctors something is wrong. And if they won't listen then keep trying to find one that will. In the mean time, social media is a great way to find others that understand. Maybe if we all keep talking about it then the doctors will start to listen and believe us.
Dealing with fibromyalgia at the age of 18 and dealing with doctors for over a year being told i have everything from a possible lyme disease to junior rheumatoid arthritis sent me into server depression. It seemed like no one believed me. I was fairly healthy but my body felt beaten and bruised to the point i had to quite my job. My pain is real.
Keep talking to your doctors, MAKE them listen to you. If you're in severe pain, it's for a reason and that needs to be checked out.
Don't give up! Young people can experience chronic pain. If your doc refuses to listen, find a new doc. You deserve to be heard.
I legit relate to the whole 'doctor not believing' thing. Ever since I was a baby I couldn't breathe through my nose, like no air what-so-ever. After years of the doctor just saying it was allergies and after years of nose sprays and pills my mom finally put her foot down and he finally referred me to the Ears Nose and Throat and in 3 minutes she looked up my nose and immediately said I needed surgery. So at 11 i had nose surgery and it's been 6 years and I can breathe through my nose now. 😂
Your mum is awesome!! But I'm sure you know that already.
Same thing with me and IBS... there is no cure.. doctors are all confused... they say its stress..
i hope i get to feel healthy someday too! c:
Allergies are the worst and it seems primary care Drs don't fully understand them. I just bypass them and see an ENT. After two major sinus surgeries, I can now breath and smell through my nose. My worst fear used to be having my mouth covered and dying because I couldn't breath through my nose.
As someone who got told by a Gastroenterologist that I had IBS... 5 years later, after it kept getting worse, I was diagnosed with Ulcerative Colitis and now Crohn's. Honestly, IBS is like the go-to diagnosis with digestive issues and it's super annoying. See a GI (or a different one if they refuse to do a scope).. It was super annoying that this one GI told me to stop stressing WHEN IT WASN'T IBS. If there's blood, it's doubtful it's IBS.... BUT that's just my experience... and now I also have Arthritis that flares with my Crohn's, as well as Subclinical Hypothyroidism and more!
+lys Going through something similar as well. The doctor i have now, is a nose/ear/throat "specialist". Absolute quack. And still, after years... No reason/diagnosis for my ear problem -_- All he does is do a temporary fix, and repeat when the problem reoccurs. As well as recommend surgery for no real medical reason.
Now my back feels weird..
Emily Fassbaugh same
Saaaame! I am an intense hypochondriac.
Zach: don't lick it
Keith: how am I supposed to taste it then?