WE'RE BACK! 6 MONTH UPDATE, HEART SURGERY, TRACHEOSTOMY & G BUTTON | TRISOMY 18
HTML-код
- Опубликовано: 6 окт 2024
- So much has happened since my last video and we are so happy to be back! If you are new here, Sage has trisomy 18 and my channel is all about being a special needs mama and advocate!
if you are an expecting trisomy 18 mama, I'd love to hear from you!
find me on instagram: @EmmaKateSpringer
I just found out about the passing of Sage 😭😭😭 I’m so so sorry Emma. Sages story gave so much hope during my journey with my son Jireh with T18. He passed away after 3 days. I am missing Sage with you. Love you mama, thank you for being such a force for the T18 community 😭😭😭😭
Hi. First time here. Thank you for sharing. Im 32 weeks pregnant, sitting in the hospital waiting for my baby girl Ruth to be born. She is also Trisome 18 but God has declared she is a miracle baby no matter what the diagnosis is. Happy for your baby. She is beautiful. Blessings to you and your family.
I’m going through it now 😢
Me and my wife received the news today that our baby has trisomy 18. A devastating news we don’t know what to do. We lifted everything to God and trust him that he will guide us throught this journey. It is so painful to accept but we know we will be ok because we have a big God. We are having a baby girl too. God bless you
Hi Mac! Congratulations on your baby girl 💕 I completely understand the devastation. No one ever expects or wants to receive this diagnosis. But our children are the most special in the world. I know things can feel a bit overwhelming following diagnosis. I’d be happy to talk more about pregnancy delivery and early life of trisomy 18 child with you if you would like to message me on Instagram @EmmaKateSpringer. I’ve recently been working on a survey of trisomy 18 parents and I’d love to share that info with you guys!
Hang in there it’s not as bad as it looks.
It’s a learning experience. My son was supposed to be a healthy baby and went through the same thing. it’s gets better each day. I’m still going through it but I wouldn’t change my son for nothing...🙏🙏🙏🙏
She's beautiful and so lucky to have a mama like you!❤
This video has restored my faith. My mum was pregnant and our baby was diagnosed with trisomy 18 and we prayed and had a lot of faith and my beautiful baby sis was born at 37 weeks. She only lived for 1 week and I lost faith because I had believed and prayed for her to live but seeing Sage just being resilient has restored my faith. May God keep her and may she live a long
Life🥺❤️
❤️❤️❤️
Am sorry for Your loss and what You are going through-my baby girl passed away in 23 weeks-may God heal Your heart! ❤❤❤
Yay Sage! So happy to see this update. I cannot wait for more updates on this amazingly strong little girl! Go Sage go! 💪🏼
I am so happy your baby seems peaceful. We had a partial trisomy 18 baby 42 years ago. She had constant seizures and cried ALL the time. Eventually she began to choke on her own secretions and she had to be hospitalized.She cooed and smiled at me the very day we had to leave her at the care facility for terminally I’ll children. Meghann needed constant postural drainage. She only lived for 3 weeks at the facility before she passed at 7 months old and 12 pounds. She was very tiny. She had microcephaly with profound retardation and a high palate but she was ours and we loved her. Enjoy your sweet baby! ❤️🙏🏻🙏🏻 They knew so little back then: the geneticist told me there were only 40 cases worldwide. I am so very happy your sweet Sage seems to be thriving!
OMGosh...I have wondered about the three of you for several months. I’m subscribed and I checked often for updates. I’m thrilled to see Sage looking so well. I can tell it’s been a long road, but your faith has helped you to move foreword. I’d welcome any info you wish to share. Blessings to your little family.
You are an incredible mother! Sage's smile brought tears to my eyes. What a beautiful gift. Thank you so much for sharing your journey. 💞
She is beautiful! ❤️ I have a friend who is currently pregnant, and just received a news that her baby inside her has Trisomy18... just always trust the Lord for His plans... and pray to Hin everyday for a miracle of healing!! God bless you and your family! 🙏
She is absolutely beautiful. Thank you so much for sharing your journey!!
We aren't a trach family but we are a CHD and G tube family. 💕 God is using our precious girls to write such a beautiful story.
Wow you are soooo strong..an inspiration..Sage is very lucky to have you❤️❤️
Yay Sage! You are the cutest & I am so happy that you are doing well! Love seeing videos of you & your sweet mom! 💗
I'm so happy Sage is doing so well :) I always love keeping up with you guys.
I'm 24 yrs old and I just gave birth to my baby girl via c section. on February 26th she also has full trisomy 18 she's been in the NICU now for 37 days! and I'm having a really hard time accepting her diagnoses. She needs heart surgery as well to get her vsd repaired but not sure if they will be able to do it at the hospital she is staying at. At times I feel so lost :(
Congratulations on your girl! Keep advocating for her mama! You’re doing great!
@**Priceless Covent5** hi there! Sage has Full Trisomy 18 ❤️
Cherish everyday you have with her take the good days dont dwell on any of the bad days you are an exceptional mother
Such a strong && beautiful girl! Momma && baby
Look at her cute little face ❤️ she’s so beautiful momma!
She is adorable 💗
Amazing wee girl.. Great update . :-)
Oh she's so beautiful.
What a doll! 🥰
She's so beautiful and precious
Hello Emma, what happened to you? Not posting anything?
Hello, i am having my second child n he has been diagnosed with trisomy 18. I am completely heartbroken n confused on what to do. God bless ur sweet baby n may she always b in the lords light.
Hi there! I'm sorry, I know how difficult a time it is. If you have an instagram, please reach out to me there! I'd love to get in touch and chat! My daughter just turned a year old and is thriving. I'd love to point you in the direction of some wonderful support and resources!
my instagram is @Emmakatespringer just shoot me a message and we can chat!
Happy to see her face. She is so cute. ❤️❤️.
May I know the status now.
I am father of trisomy 18 baby girl.
Beautiful Sage
Is she always going to have to have a feeding tube and stuff? Or will she be able be off it at some point? Also I'm so sorry about what you had to go through I watched your birth story video. And I have 2 daughters myself I dont know what I would do if that had happened to me I prob would of been begging the drs to do something to help her to breath... I cried watching that I'm so glade she is doing good and that you guys got to take her home... I dont know anything about her condition at all ... so I'm jus curious if it's possible for her to be 100 percent one day or is it unfortunately just a taking it 1 day at a time thing? Or is it jus recovering from here? I'm praying for you guys... that is truly a miracle baby I'm jus so sad for her, she so little and already has had to go through so much... she is a little fighter tho from what I can see. Lol but again no mother should have to feel the way you did going into give birth to their baby or after giving birth having to see your child like that... I'll tell you right now you are very strong girl, cuz with my first child I cried with her when she got her first cold it was so sad to see her have trouble breathing jus with that cold and you know me being a overly worried new mom rushed her to the hospital.. FOR A COLD lol but it was jus a little infant coughing and crying and to me looked like since she couldnt breath through her nose I kept thinking she would stop breathing in her sleep or something so I stayed up for like 2 days straight watching her all the time... and even when I first gave birth I was so scared something like that would happen so the whole time in the hospital after giving birth I didnt sleep which was like 3 days... my grandma has 6 kids but gave birth to 7 she had a 2 day old son n the nurses took him to the nursery and he spit up they weren't watching n he choked on it n passed away unfortunately n jus knowing that for one I never let them take my kids to the nursery after I gave bitch if they had to go get checked or get shots or something they were to bring me my babies right back. It jus made me so scared knowing stuff like that could happen. So seeing what YOU and your poor little baby had to go through is so heartbreaking... I know it's a pretty happy ending for you guys but it's still a traumatic situation for a new mom to go through... n dont ever feel like you always need to be strong if u ever need to talk to someone call those postpartum hotlines or shit jus come on here n talk to us... but I am so happy for you and little sage and will continue to pray for you guys and so glade she is doing well.
Hi Emma its nicole remember
Are you closing your channel???
I actually just took a pole on my insta and will be posting a full in depth story here over our life for the last 2.5 years from diagnosis to current day! Sage is 28 months old and thriving! If you want current stuff on her see my insta @ EmmaKateSpringer
can i have a shoutout