Emma Springer
Emma Springer
  • Видео 26
  • Просмотров 158 204
WHAT TO EXPECT DURING A TRISOMY 18 PREGNANCY | Trisomy 18 101 / Edward's Syndrome
This week in the Trisomy 18 101 series I'm talking about 7 things you can expect during a pregnancy with a prenatal diagnosis of Trisomy 18 or Edward's Syndrome! The goal of this series is to help you understand your new diagnosis or to share information with you family or friends to help them understand the journey you are on. This video is meant to comfort and encourage you as you learn that you are NOT ALONE! Please feel free to leave a comment adding to the list if you have experienced a t18 pregnancy!!
Find me on instagram!
Emmakatespringer
Facebook groups:
Support Organization For Trisomy:
groups/TrisomySOFT/
Rare Trisomy Parents:
groups/raretris...
Просмотров: 2 905

Видео

HOW TO SUPPORT SOMEONE DURING A TRISOMY 18 PREGNANCY | Trisomy 18 101 / Edward's Syndrome
Просмотров 1,9 тыс.2 года назад
This week in the Trisomy 18 101 series I'm talking about how to support a loved one that is experiencing a pregnancy with a prenatal diagnosis of Trisomy 18 or Edward's Syndrome! The goal of this series is to help you understand your new diagnosis or to share information with you family or friends to help them understand the journey you are on. This video shares some things that may be useful p...
Signs and Symtoms of Trisomy 18 Edward's Syndrome | Trisomy 18 101
Просмотров 8 тыс.3 года назад
This week in the Trisomy 18 101 series I'm talking about signs and symptoms of Trisomy 18 or Edward's Syndrome! The goal of this series is to help you understand your new diagnosis or to share information with you family or friends to help them understand the journey you are on. This video shares some things that may be seen on ultrasound and some findings you won't see until after birth! I sin...
What is Trisomy 18? Edward's Syndrome | Trisomy 18 101
Просмотров 1,4 тыс.3 года назад
If you are in the midst of a trisomy 18 diagnosis or have a loved one who has had a trisomy 18 diagnosis you may be wondering... what is trisomy 18? I hope this video helps you understand what trisomy 18 is and how it happens. This is the first of my 'Trisomy 18 101' series, where I will be helping unpack all things related to understanding your new diagnosis or help you explain it to your frie...
WE'RE BACK! 6 MONTH UPDATE, HEART SURGERY, TRACHEOSTOMY & G BUTTON | TRISOMY 18
Просмотров 12 тыс.3 года назад
So much has happened since my last video and we are so happy to be back! If you are new here, Sage has trisomy 18 and my channel is all about being a special needs mama and advocate! if you are an expecting trisomy 18 mama, I'd love to hear from you! find me on instagram: @EmmaKateSpringer
OUR MIRACLE: SAGE'S BIRTH STORY | TRISOMY 18 LABOR AND DELIVERY
Просмотров 71 тыс.3 года назад
In this video I am sharing the story of the way we experienced God's presence during Sage's birth. This is a Trisomy 18 labor and delivery story. If you find this video because you are also experiencing a T18 pregnancy, I hope this leaves you feeling encouraged! Please feel free to reach out to me via instagram if you ever need to chat. emmakatespringer
An Emotional 36 Week Update | Trisomy 18 Pregnancy
Просмотров 1,8 тыс.4 года назад
This video is a 36 week update and I'm talking about the developments to our situation that have happened since my last video. I have been procrastinating filming and uploading because I have just been struggling lately, but I made this channel to document the details of my pregnancy and that should include both the highs and the lows. Unfortunately right now is a low. Thank you for watching an...
30 WEEK UPDATE! WEEKLY BUMP PROGRESSION, MATERNITY PICS, THIRD TRIMESTER SYMPTOMS & MORE!
Просмотров 7174 года назад
In this video I am discussing everything from my third trimester symptoms to our maternity photos! I also share my weekly bump progression. Things are changing so quickly during this pregnancy so I am so happy I am documenting every bump and curve in the road! My instagram: EmmaKateSpringer Our photographer: KBarnettPhotography Rare Trisomy Parents FB group: facebook...
OUR TRISOMY 18 DIAGNOSIS
Просмотров 11 тыс.4 года назад
In this video I am sharing our diagnosis of trisomy 18, the events leading up to the diagnosis and the first week of coping and making peace with the diagnosis. If you are experiencing this as well whether it be right now or two years from now you come stumbling across this video, please do not hesitate to reach out to me through a comment or an instagram message. The community is small and I w...
MY AMNIOCENTESIS EXPERIENCE
Просмотров 16 тыс.4 года назад
In this video I'm talking all about my experience having an amniocentesis done! I'm hoping others that will have an amnio done will find this video helpful! I'll be discussing our results in the next video so stay tuned! Instagram: EmmaKateSpringer
24 week update: two vessel cord, heart defects, positive NIPT screen for trisomy 18
Просмотров 2,6 тыс.4 года назад
In this video I discuss our anatomy scan results, nipt results and my appointments with a high risk pregnancy/maternal fetal medicine dr as well as with a pediatric cardiologist. If this video finds even one person going through these same experiences with your pregnancy: please know you are not alone. I made this channel to document my experience and relate to other people. During this time, I...
BABY NAMES I LOVE BUT WON'T BE USING PART 2 + OUR BABY'S NAME REVEAL! ( CLASSIC, TRADITIONAL NAMES!)
Просмотров 2,3 тыс.4 года назад
BABY NAMES I LOVE BUT WON'T BE USING PART 2 OUR BABY'S NAME REVEAL! ( CLASSIC, TRADITIONAL NAMES!)
OUR GENDER REVEAL! Unique Golf Shot Gender Reveal!
Просмотров 4104 года назад
OUR GENDER REVEAL! Unique Golf Shot Gender Reveal!
OLD WIVES TALES GENDER PREDICTION
Просмотров 1764 года назад
OLD WIVES TALES GENDER PREDICTION
18 WEEK PREGNANCY UPDATE & BUMPDATE/WEEK BY WEEK BUMP PROGRESSION!
Просмотров 8664 года назад
18 WEEK PREGNANCY UPDATE & BUMPDATE/WEEK BY WEEK BUMP PROGRESSION!
WHAT I EAT IN A DAY WHILE PREGNANT! SECOND TRIMESTER!
Просмотров 1454 года назад
WHAT I EAT IN A DAY WHILE PREGNANT! SECOND TRIMESTER!
TELLING OUR FRIENDS AND FAMILY WE'RE PREGNANT!
Просмотров 7504 года назад
TELLING OUR FRIENDS AND FAMILY WE'RE PREGNANT!
BABY NAMES I LOVE BUT WON'T BE USING | AKA NAMES MY HUSBAND DOESN'T LOVE!
Просмотров 1,3 тыс.4 года назад
BABY NAMES I LOVE BUT WON'T BE USING | AKA NAMES MY HUSBAND DOESN'T LOVE!
FIRST TRIMESTER UPDATE + BUMP PROGRESSION/BUMPDATE!
Просмотров 3714 года назад
FIRST TRIMESTER UPDATE BUMP PROGRESSION/BUMPDATE!
FIRST ULTRASOUND/DOCTOR'S VISIT! SEEING OUR BABY FOR THE FIRST TIME
Просмотров 2994 года назад
FIRST ULTRASOUND/DOCTOR'S VISIT! SEEING OUR BABY FOR THE FIRST TIME
FINDING OUT I AM PREGNANT AND TELLING MY HUSBAND - EMOTIONAL UNEXPECTED PREGNANCY
Просмотров 2,4 тыс.4 года назад
FINDING OUT I AM PREGNANT AND TELLING MY HUSBAND - EMOTIONAL UNEXPECTED PREGNANCY
EARLIEST PREGNANCY SYMPTOMS/HOW I KNEW I WAS PREGNANT BEFORE BFP + LINE PROGRESSION FROM 10 DPO!
Просмотров 10 тыс.4 года назад
EARLIEST PREGNANCY SYMPTOMS/HOW I KNEW I WAS PREGNANT BEFORE BFP LINE PROGRESSION FROM 10 DPO!

Комментарии

  • @goawaykaci
    @goawaykaci 2 месяца назад

    I have to get an amnio in a week. I'm extremely scared. Thank you so much for this!

  • @tilotamadeep4523
    @tilotamadeep4523 3 месяца назад

    You are so strong and a your video is very helpful and informative. Thank you god bless you .

  • @fernviking7909
    @fernviking7909 4 месяца назад

    Every baby is a gift but int his & many other situations parents must have a choice! Many people choose to birth the baby & some live a lot longer than doctors predict. Others choose not to put their very ill baby thru the trauma of nicu. Each choice is so personal!

  • @Theyyloveyas
    @Theyyloveyas 4 месяца назад

    Thank you for sharing

  • @vitnis11
    @vitnis11 5 месяцев назад

    There are people made for having these babies and people that arent, I would prefer to ask the soul to come next time into a healthy body so it could enjoy life

    • @emmaspringer201
      @emmaspringer201 5 месяцев назад

      I would encourage you to examine what personal biases you’re carrying that make you think disabled people don’t enjoy their lives. As a society we are engrained with ableism from a very young age and we have to unlearn the false dogma that typical = better.

  • @beckp5456
    @beckp5456 5 месяцев назад

    Thank you for sharing your story. I have been thru so much in my journey of becoming a mom. I’m having my NIPT soon and I am nervous. But you sharing has given me confidence in life. That no matter what. We will get thru it. I hope you are all well.

  • @annn3167
    @annn3167 6 месяцев назад

    Your story so beautiful your so strong prayers🙏

  • @samriccius1879
    @samriccius1879 7 месяцев назад

    What's the pda? It's open at birth but closes? Why or how does it keep her alive?

  • @hyenaqueen3
    @hyenaqueen3 8 месяцев назад

    Sage is absolutely gorgeous. ❤ God bless you.

  • @merylliacarranza6839
    @merylliacarranza6839 8 месяцев назад

    I just found out about the passing of Sage 😭😭😭 I’m so so sorry Emma. Sages story gave so much hope during my journey with my son Jireh with T18. He passed away after 3 days. I am missing Sage with you. Love you mama, thank you for being such a force for the T18 community 😭😭😭😭

  • @katherinechatham9032
    @katherinechatham9032 8 месяцев назад

    Emma I just lifted up prayer for you, your husband and your daughter. Thanking the Lord for allowing you to have time with her. With God nothing is impossible.

  • @noshiniqbal5132
    @noshiniqbal5132 8 месяцев назад

    How can it possibly be safe to insert a needle in to the womb! I had this done years ago and since then ive not been able to carry past 10 weeks..could.i have been damaged!

  • @kimmechling9211
    @kimmechling9211 8 месяцев назад

    Our God is a God of MIRACLES! Sage is one of them! God has a mission for her AND for you! What a beautiful blessing!

  • @antmansmom5476
    @antmansmom5476 8 месяцев назад

    I was sick as a dog my entire pregnancy!!! I lost 40 lbs.

  • @nancybladsacker5357
    @nancybladsacker5357 9 месяцев назад

    Amen God is an awesome God.

  • @shrettajames2931
    @shrettajames2931 9 месяцев назад

    Your video, I am sure give others hope and inspires them to carry to term, at least have hope to see and hope their baby and take what time gives even if it might be short. Praying that God will be with you and family, give you strength and grace, and for all the other families that are facing similar situations. God bless.

  • @SarahGuigue
    @SarahGuigue 9 месяцев назад

    You are such an inspiration thank you for sharing your process ❤

  • @SherryBaby2003
    @SherryBaby2003 9 месяцев назад

    I do not get why they did not try to resuscitate her? Nevertheless truly a miracle and she is beautiful !!

  • @jenreedcastro1583
    @jenreedcastro1583 10 месяцев назад

    She is so beautiful....

  • @Gina19876
    @Gina19876 10 месяцев назад

    Have not seen any updates. Is this little girl still alive? 💜

    • @emmaspringer201
      @emmaspringer201 10 месяцев назад

      Sage heartbreakingly passed away last month (November 13, 2023). She lived 3 years, 1 month and 12 days of full, joyful, love filled life. She brought us immeasurable joy and blessings and it is the honor of my life to call myself her mommy.

    • @TaraRosado1998
      @TaraRosado1998 9 месяцев назад

      @@emmaspringer201 💔 Awww, I’m so, so very sorry. She was such a sweet and beautiful baby girl. You were both so blessed to have each other for that very short yet precious amount of time. I’ll keep you both in my prayers and thoughts. 🙏🏻♥️

    • @perfectpikelet1444
      @perfectpikelet1444 9 месяцев назад

      ​@@emmaspringer201I am so very sorry to read of your heartbreaking loss of your precious, gorgeous Sage. May she be dancing with all the other Angels 🙏 How blessed you were to be her mummy for 3 years. Lots of love to you all ❤️🙏😇

  • @kimtillman5683
    @kimtillman5683 10 месяцев назад

    I’m shocked that they don’t give a baby with a heartbeat more than just comfort care at least oxygen I would think

  • @rosah.901
    @rosah.901 10 месяцев назад

    Beautiful Sage

  • @carmenpadilla4972
    @carmenpadilla4972 10 месяцев назад

    BEAUTIFUL ❤❤❤❤

  • @carmenpadilla4972
    @carmenpadilla4972 10 месяцев назад

    ❤GOD BLESS YOU 😊😊😊

  • @rosegarden316
    @rosegarden316 11 месяцев назад

    So precious!!❤❤

  • @kylam143
    @kylam143 Год назад

    I'm so scared 😢

  • @yellowrosee3339
    @yellowrosee3339 Год назад

    You are blessed! I love your attitude and appreciate your positivity and strength as a fellow mom with a child with special needs❤

  • @wonderlust_cidrah5456
    @wonderlust_cidrah5456 Год назад

    Bdw sage is prettiest baby girl lot of hugs and kisses. Prayers for sage

  • @wonderlust_cidrah5456
    @wonderlust_cidrah5456 Год назад

    Hi Emma, You are strongest mama to come up for advocating. Please update us how is life going on? Keep your spirits high! Bless you

    • @emmaspringer201
      @emmaspringer201 Год назад

      Check in on my Instagram to see more of our life!! I don’t really keep this channel up.

  • @teamcougars
    @teamcougars Год назад

    A dear friend of mine had a baby with Trisomy 18 , sadly he passed away within hours of being born in 💔

  • @tarawhite-rg3uy
    @tarawhite-rg3uy Год назад

    She's so beautiful and precious

  • @tarawhite-rg3uy
    @tarawhite-rg3uy Год назад

    She is so precious

  • @hanahol8066
    @hanahol8066 Год назад

    Hello Emma, what happened to you? Not posting anything?

  • @mpardo4019
    @mpardo4019 Год назад

    Such a beautiful baby 🥰

  • @mb5101
    @mb5101 Год назад

    I just did an amniocentesis this morning. The pain was 3/10 and only 5-10 seconds. Different people have different experiences. Pray for my nany 💚

  • @madisonswart8862
    @madisonswart8862 Год назад

    My due date it October 15th 2023 and I also have to get this test and I am so scared.

    • @MahadevBhakt29
      @MahadevBhakt29 Год назад

      Done with ur test..??? I m going tomorrow very much scared

    • @1bluegreen2
      @1bluegreen2 9 месяцев назад

      How was it?

  • @paulamain7922
    @paulamain7922 Год назад

    I am so happy your baby seems peaceful. We had a partial trisomy 18 baby 42 years ago. She had constant seizures and cried ALL the time. Eventually she began to choke on her own secretions and she had to be hospitalized.She cooed and smiled at me the very day we had to leave her at the care facility for terminally I’ll children. Meghann needed constant postural drainage. She only lived for 3 weeks at the facility before she passed at 7 months old and 12 pounds. She was very tiny. She had microcephaly with profound retardation and a high palate but she was ours and we loved her. Enjoy your sweet baby! ❤️🙏🏻🙏🏻 They knew so little back then: the geneticist told me there were only 40 cases worldwide. I am so very happy your sweet Sage seems to be thriving!

  • @rebeca4862
    @rebeca4862 Год назад

    Thank you for putting this video together:)

  • @julieking4304
    @julieking4304 Год назад

    update??

  • @beth6288
    @beth6288 Год назад

    Are you closing your channel???

    • @emmaspringer201
      @emmaspringer201 Год назад

      I actually just took a pole on my insta and will be posting a full in depth story here over our life for the last 2.5 years from diagnosis to current day! Sage is 28 months old and thriving! If you want current stuff on her see my insta @ EmmaKateSpringer

  • @hanahol8066
    @hanahol8066 Год назад

    You Are beautiful strong mother

  • @debraclevinger1400
    @debraclevinger1400 Год назад

    Cherish everyday you have with her take the good days dont dwell on any of the bad days you are an exceptional mother

  • @roselee6745
    @roselee6745 Год назад

    She is just precious. I am currently 17 weeks with trisomy 13. Dr said it’s the worse one out of trisomy 21&18😢 Husband and I are devastated. We decided to carry to term. Not because we are hoping for a miracle, but because he’s my son and we love Jim already. I pray I’m as strong as you. Thank for sharing

    • @micheldawnsummers1452
      @micheldawnsummers1452 10 месяцев назад

      Only just found this story and it’s December 2023 I noticed no one commented on your story, I hope you got your miracle as the owner of this Chanel did, I’m in the uk and have 3 grown up kids but I’d never heard of this heart breaking condition till one day it came up on my RUclips, you not getting any one comment on your story hit me hard so sending my love to you and your family even if a little late xx

    • @jenreedcastro1583
      @jenreedcastro1583 10 месяцев назад

      Just seeing this too, I am also praying you got your miracle.... sending love and hugs to you!!!

    • @fofoya880
      @fofoya880 10 месяцев назад

      الحين انا أنجبت بنتي مصابه بهذا المرض بعدما انتصرت ٧ سنه انتضار والمحزن انني لم اعد اتحمل معانات بنتي لهذا المرض وهي تتألم ابغا انهار والحين هي عل الأوكسجين طول الوقت لانستطيع الخروج ابدا خارج المنزل فقط للمراجعه مع دكتور وهي الحين عمرها ٥ شهر لايزيد وزنها ابدا من ساعه ولادتها

    • @fofoya880
      @fofoya880 10 месяцев назад

      حالي المادي تعبان اريد مساعده لمتابعه رحله شفاء

  • @aleasesykes1575
    @aleasesykes1575 Год назад

    It was the most painful thing for me as well. I have been in car accidents that hurt less. I don't know why people make it seem like it doesn't hurt. I was screaming. Like the entire floor could hear me and I couldn't move. It wasn't quick enough for me.

    • @annamogyorosi5020
      @annamogyorosi5020 Год назад

      This kind of answers scare the sh*it out of me. I'm about to get an amnio in 4 days. Where did you have yours?

    • @daphnenvt2686
      @daphnenvt2686 4 месяца назад

      That genuinely was so different for me. I didn’t feel a thing!! Regular blood work (that I do every month) hurts way more (in my experience).

    • @Kasey2957
      @Kasey2957 2 месяца назад

      Mine didn’t hurt at all. This was several years ago and mine was done for maternal age(38).

  • @yourREALbestie
    @yourREALbestie 2 года назад

    Thank you! This video was very informative. I appreciate you! ❤

  • @albacruz133
    @albacruz133 2 года назад

    I lost my baby twin girl with trimosy 18 and it’s been a pain I can’t let go .

  • @cococutie
    @cococutie 2 года назад

    It’s so hard to listen to you. So slow and lots of water in your speech. Would be better if you speak more brief

    • @emmaspringer201
      @emmaspringer201 2 года назад

      Water?? Lol. You can speed up the video

    • @cococutie
      @cococutie 2 года назад

      @@emmaspringer201 sorry for being mean. I am just pregnant and get irritated easily:) Sorry. Wish you happiness

  • @thomasplouffe1363
    @thomasplouffe1363 2 года назад

    how is she doing now?

    • @emmaspringer201
      @emmaspringer201 2 года назад

      She’s doing great! I struggle to keep RUclips updated but I am pretty active on Instagram. @EmmaKateSpringer

  • @Theodore_Bundy24
    @Theodore_Bundy24 2 года назад

    Currently having one this morning and I am so nervous!! Thank you for uploading this!

  • @tammythomas851
    @tammythomas851 2 года назад

    What a joy she is!