Stay tuned for more videos about keratoconus surgery and contact lenses for keratoconus! See the full playlist here: ruclips.net/video/kPanFRVV4uM/видео.html
Because my ophthalmologist says I have uveitis since 2018 in both eyes and I'm still using drops for it, also I have myopia so plz do a video and please advise. Thanks
Thank you so much for this, doc! I've been dealing with this condition for close to 20 years. I now have cataracts as well as Keratoconus and I'm practically blind in my right eye. It has recently begun to affect my left eye and I'm rapidly losing vision in it. I have an appointment with my ophthalmologist soon, so hopefully, he can stop the progression before I end up blind in both eyes.
Hi Dr. Allen, Many thanks for all your informative videos! Although I have found treatment discussions for my severe dry eyes & blepharitis, your KC video has come the closest for me to learn more about my cornea degeneration. I have been diagnosed with embedded Salzmann nodules that are inoperable due to lasik scarring…My sclera lenses were a game changer since I’ve been wearing them since 2019. I never see any discussion regarding Salzmann nodules: Are they rare? Do most treatments involve surgery? Where can I found out more info? I mention it because my symptoms were very close to what you described in your KC video. Thanks so much!
Thank you for such a clear explanation. I was diagnosed with KC 28 years ago when glasses could no longer correct my vision and it progressed very quickly. At the time, CXL was not approved for treatment where I live. Within five years from diagnosis I needed corneal transplants in both eyes. Recently, I found an optometrist that fits scleral lens and I’m happy to report that I now see 20/20 - it’s my best vision in a decade! It’s so important to find the doctor that can work with you.
💖💖💖💖 Thank you, Lisa! This makes me so happy to hear! I remember one of the first scleral fits I ever did and my keratoconus patient was able to see 20/30 for the first time in 20 years...(I was all concerned about how she wasn't seeing 20/20 with that initial fit) but she was SO SO SO incredibly happy to just see as well as she was and she began to cry. Thanks again. Cheers - Dr. Allen
@@DoctorEyeHealth we’re so grateful for doctors like you, Dr Allen. Vision impairment affects so many areas of life - clear sight is a gift. Thanks for what you do and for bringing awareness with your channel 💜
I was diagnosed about 7 years ago in both eyes, had cross linking in 2016 on my left eye and then again in 2018 on my right (left eye was worse then my right) I had really horrible doctors (corneal and contact specialist) for the first 6.5 years of my diagnosis and just recently found amazing docs to help me. My original doc told me I was legally blind and that I need to GOOGLE my eye condition and then told me I was wrong when I was not and neither one would listen to me as a patient. Thankfully now with my new docs I no longer have anxiety going to apt (which are every 6 months) and I don't have doctors forcing sclara lenses on my eyes. My eyes have actually had a reduction in the cornea (point has receded) and I am able to use soft contact to correct my vision to the point I can now get my licence! I am not at 20/20 but I can now drive and my eyes can handle soft lenses! Get yourself a great set of doctors it will CHANGE your life.
I have lived with this condition for nearly 40 years. I rubbed my eyes a lot in my youth. Had a transplant in one eye when I was 22 and the vision in that eye has been excellent (20/15) with contact lenses. Cross linking was not an option when the condition was progressing in my youth. It really stabilized in my mid 30’s and not a lot of changes since then. My vision has never been great as astigmatism continued even with contact lenses. I did recently get some custom fit Scleral lenses at the University of Iowa eye clinic(not to steal your thunder Doc, but U of I is a top 10 place in the country to go to for eye issues (I met Doctors in Germany who recommended them). and they have been simply wonderful. Improved vision, no worry about losing lenses, healthier eyes! Technology advances in this field have been wonderful and there are much worse things to live with than this condition. Love watching your videos. You are very entertaining and have a great way of informing and teaching people.
I noticed a problem with my eyes in my early 20’s and often had dry eyes and rubbed my eyes a lot. It wasn’t until my mid 30’s I sought treatment and was diagnosed with KC. My right eye is much worse than my left eye. We’re hoping I’ll avoid a cornea transplant, but will see how the next 10 years go. I had the cross linking procedure done in 2020 in both eyes and I highly recommend that for everyone diagnosed with KC. The healing takes a long time. My eyes kept changing for about a year after the procedure (for the better), but I kept updating my glasses prescription. I’d say the hardest part of this 2 year journey was just having patience through vision fluctuations, healing, and just waiting. I’ve been on scleral lenses for a few months now and they take a little to get used to. I still plan on keeping my glasses up to date and plan on using both scleral and frame lens as I see pros and cons to both. In the end you have to decide what’s more comfortable and works best for you.
Thanks for sharing David! It means a lot to hear your story and I hope things continue to improve and settle for you. I am certain your story and kind words will help many people going down the same journey. Thanks - Dr. Allen
Mine was diagnosed mid thirties. Contact lens would not stay on my eyes. My eyes also generate a lot of grit. Supposedly it stabilized in my 40s. My vision is not 20/20. Now I am almost 60 and now struggling with cataracts. Appreciate every beautiful moment. Eat well and take care of your self especially with diabetes and blood pressure.
Yeah I feel u bro my left has way more advanced kc than my right, like I can't read with my left eye cuz that's how bad my visual acuity is on my left eye, scleral lenses do work in it but I still can't seem to have a 100% though I'm able to read n everything. @doctorEyeHealth Would u indicate a cornea transplant?
@@lilianfowler7988I have KC too, late thirties. Thank you for your advice. Just quit a stressful driving job today to look after my health. Having KC and asthma sucks, so I'm currently in the process of completely changing my diet and work. Wishing you the best
I had the cornea transplant in my right eye a month ago.i was so scared but everything went great I could already see the improvements a week after my surgery. I'm so happy I went through with it
I honestly can't believe none of my Dr's have recommended testing for this disease. An ad about it just popped up on my Facebook of all places and sounded all too familiar to me, so I decided to go on a dive about it. Thank you for the clear and concise video about this!
New resolutions: 1. No rubbing 2. Lots of eye drops I have allergies and live in Central Texas which is dry and dusty. Thanks for this video. I had never heard of this condition and don't want to develop it.
I just started as an opthalmolic tech with ZERO experience. I've been scrolling Facebook looking for a crash course essentially.. this is one of the easiest to understand videos I've found. Thank you!!
I am a clinical claim review RN, and I see claims ALL the time for corneal Collagen cross-linking and Photrexa. I was really excited to see this video and learn more about keratoconus, I am even more excited for the next one!
MY GOD!! You’re the best!! My son has been diagnosed with this disease recently. I wish more information was available 36 years ago. That’s how old he is, he has worn triple bifocals for years off and on. But finally he’s found a good doctor to help him with this unfortunate eye disease. Thank you for being so informative. God Speed to you❤
After being diagnosed with kertatoconus. It was a scary finding because I was the first one in my family to have it. Not being able to see clearly for 2 years was rough until I got fitted with scleral lens was the best thing ever. Don’t be afraid of the scleral lens it’s 110% worth it !
hi sir, from india,i am saikumar i am also kc patient. i have been suffering last five years. 4 years back cross linking (C3R)done on right eye by my local doctor. but i did not get clear vision on my right eye. but i tried hard contact lens(RGB) but not suited for me. while i was wearing hard contact lens on my eyes getting blur. i don't know the reason. can you please give suggestion
@@saipalepu-y8fhello sir I have also diagnosed with Keratoconus in 2019 and had C3R on 2020 August and on 2021 September since that time I have been using RGP hard lenses which gaves me good vision but also it has some problem while I'm driving and recently I have lost my left eye lense so I want ask you that what are using for better visibility
I called my doctor literally half an hour ago to continue my treatment for keratoconus, I'm waiting for the next video because I want to learn how to feel my lenses more comfortable while wearing it
My doc gave me some non prescription soft contact lenses to put in first and then the soft ones in top. Can't feel a thing this way, eyes don't dry out and irritate either. Ask them about that
I was diagnosed in the early nineties with keratoconus in both eyes with my right eye being worse than the left. (I have scarring in both with the right eye being effected more, and now diagnosed with cataracts. My son was born with cataracts in the front lens of both eyes and he too have been diagnosed in his late twenties with the KC disease.) I have been to SO many doctors and specialists. I’ve worn RGPs for 27 yrs, and now I have glasses with the contacts. The sclera lenses was not successful due to difficulty in fitting the eyes as well as commuting several 2hr trips to the specialty hospital and to be quite honest- the emotional aspect has taken a toll on my mental health. The contact for the right eye hurt so bad that I haven’t worn a lens in that eye in over a year. The left eye began to hurt as well so at this point I’m wearing the right contact lens in the left eye! Honestly I can see better and it’s allowed me to function, to earn a living and to drive- although nighttime driving is very limited- I avoid driving at night as much as possible. Bright light is not my best friend! Ohhh the stories I can tell about my relationship with this disease can be sad yet hilarious at the same time! Hopefully there will be a cure in the near future that no longer require corneal transplants. Thank for this video and the comments are therapeutic for me….I feel less alone in this struggle to see.
Thank you so much for sharing, Dawn. It really means a lot. It is honestly tough for me sometimes to hear peoples struggles with their vision. I only wish there was more I could do. But it means a lot that people watch these videos and are able to connect with others through the comments. I hope you can continue to see qualified and caring eye care providers and hopefully even see better. Same for your son. Wishing you nothing but the best. -Dr. Allen
Hey I couldn't wear mine either until my doc gave me some soft non prescription lenses to wear under the hard lenses. 4k vision, couldn't feel a thing. I'm like you driving at night and have just quit my driving job as it's getting too dark to early now it's winter before my shift ends. But it's for the best, better safe than sorry.
Just diagnosed today and all the symptoms click. Doctor said it’s early stage and we are trying scleral lenses first. Thank you for this video. Very informative. Sharing with family and friends for them to better understand as well.
I'm a person with horrible allergies to dust and as you guessed I rubbed my eyes a lot. I noticed my right eye vision getting affected and the first doc unfortunately dismissed if as a "fold". Few years later the doctor's started calling it a "scar" and I decided to visit a better hospital. I was diagnosed with KC and have completed my collagen cross linking a month ago. I've done a trial of the scleral lenses and TBH when I was finally able to SEE, I felt like crying. No one in my family has this. My left eye is okay for now which is why I realised it late as well. I will get my lens 2 weeks later. I'm glad to know I'm not alone.
@@Kashif314 hey! I got my scleral lens in May 2022 and have been using them since. TBH it took me quite some time to get used to it and every time I put it, it's one challenge or the other. It gets really frustrating and I've read that even people who use them for years, sometimes face issues on some days. HOWEVER, my vision is greatly improved and I can independently see with the affected eye almost perfectly and that really makes me comfortable. Despite all the time it takes to learn, it's really worth it!
@@Anjali-vj8uo thanks Anjali for the detailed reply. So after a while you get use to them? You eyes adapted to your contacts? I had a trial of rose K 2 XL and it improved my vision but had great discomfort even the fitting was right but it is a semi Scleral and I need to have a trial of mini or normal Sclerals but did your contacts settled down after a while?
@@Kashif314 in my case, yes my eyes did get used to it. However inserting and removing it can be a challenge at times and that's the only time it irritates my eye mostly.
@@Anjali-vj8uo thank you for the reply. Can you please tell me usual after how many minutes after insertion your eyes start to feel fine again after the initial discomfort upon wearing?
i was diagnosed with this 3 years ago in my left eye, had an cross linking and corneal ring operation and been using glasses since then (but it didnt help much with the left eye, only the right), last week i paid for rgp lenses and tomorrow im going to get them (havent done it before because here in argentina where i live they're pretty expensive, also looked for scleral but is really off of my posibilities right now, maybe someday..) thank you so much for your videos, it has been really enlightening!
Thanks, Franco. So happy you found the channel and I appreciate you sharing your experience. Glad to hear you got Cross Linking as that is super important. Hopefully the contact help you a TON! (RGP lenses may be tough to get used to but hopefully, they should help you see much much better). Best wishes - Dr. Allen
I have been diagnosed with KC today. I had gone to do a check up for lasik surgery but it occurred that I have KC. I searched for more information and I must say this video is really helpful. Thank you!
I was diagnosed 2 days ago and I was shocked when he mentioned shadowing letters since that's what I see. It never made sense to me why In photos of astigmatism never looked similar to what I saw until today. Thank you for the video
I’m 24 and I was diagnosed with keratoconus at around age 15-16. It was so scary rapidly losing my vision. I’m so blessed to have a really good eye doctor literally 5 minutes away from me in a small town in Indiana. Scleral lenses are life changing. My eye doctor said my keratoconus has stabilized at the moment. I’m so glad I can see every day because of my doctor.
That was very interesting to know. What I would like to see is that you would talk about dry eye syndrome. What causes it and how to get rid of it if possible. I enjoy your videos.
I was recently diagnosed with this last week at the age of 30. Thank you for the break down of what it is. I’m wear glasses for the past year and change. And would be getting hard contacts soon
@@Adam_Ch739I'm just a few years older than you but I'll make this clear. Get the hard lenses. Ask them about zero strength soft lenses to put under the hard ones as a cushion. You won't even know they are there. Next step is to be thrilled with your new found superhero-like vision and get on with your life😂. You will be fine, get the lenses. I saw hairs and pores on my face I couldn't before even with glasses. It's like going from 480p to 4k in an instant
I was just diagnosed with this today at university of Virginia medical center. Eye clinic. For over a year ive seen multiple eye doctors and they never knew what it was until I saw the specialist today. She wants me to use a special contact it was an amazing feeling to be able to see the chart.
Thank you for explenation dr. Allen. At now I have diagnosed keratoconus, after check up at Eye Hospital at here. And next two weeks from now, I will obscan at my eyes to looking topography of cornea because doctor said my cornea too sharp like a cone. My view now is blury at right eye and had white scar in the middle of eye. At my left eye blur but still can focus. I hope this video can much helpfully too another person like me. Thanks doc.
I got diagnosed in March. Was very worried almost of blindness how fast symptoms developed!! I’m in the search of my best option right now but I know surgery is the best route!! Thank you this video was helpful
Wow you explained everything in detail. I am diagnosed with KC week a go. And planning to do the CXL ,but Doc you are amazing , these are valuable points. Thank you.
to extrapolate, I've had this for 10 years and treated it with hard RGP contact lenses which were a pain. After my surgery my vision is 20/25 and 20/20 uncorrected.. prior I couldn't see anything at all.
I was diagnosed with KC in 2009. I received the corneal cross-linking treatment in 2020. Which had a significant enough of a flattening effect on my cornea that my vision somewhat improved. Last week I had Phakic IOLs placed in each eye to improve my vision without glasses or contacts. The day after they were placed my right eye was at 20/25 and my left which has the more severe irregular astigmatism from KC is at 20/40.
hi sir, from india,i am saikumar i am also kc patient. i have been suffering last five years. 4 years back cross linking (C3R)done on right eye by my local doctor. but i did not get clear vision on my right eye. but i tried hard contact lens(RGB) but not suited for me. while i was wearing hard contact lens on my eyes getting blur. i don't know the reason. can you please give suggestion
Doctor! You should do a video on the possible off-label use of Vuity eyedrops in reducing night vision disturbances such as halos, starbursts, and glare due to large pupil sizes, especially post refractive surgery like LASIK. I think this can be a very interesting topic!
Thanks for suggesting the topic! Perhaps just a video on night driving in general. Long before the use of Vuity there is another drop that many doctors would prescribe off label, which funny enough...is now available OTC in a small concentration. Should be a fun video.
Can you do a review about visisharp? I don’t know if it’s a scam and you’re a doctor so maybe you could give it a look? In all honesty I’m just trying to get a trustworthy opinion from someone who takes an actual look without brushing it off as a scam immediately. It says it works but it sound a bit too good to be true. They do have sources and science included though so maybe give that a look?
@@DoctorEyeHealth That would be awesome! I have to drive every once in a while at night and in the past years it's become really difficult because all those lights blind me so much and sometimes I've nearly gotten into an accident bc of that, I'm only 28 and live on the countryside so car driving is absolutely essential to me, also at night. If you have any tips regarding this,please share them!
The Topographer and the Tomographer. Thanks I'll remember this. I have cross-linking coming up at some point in the near future and it's nice to seem literate in the technology used to diagnose this condition.
I just found out I i had this condition. I'm 23 and tried to join the Army. Went to the medical screening and they said my eyes were bad and that i should see a specialist. The specialist said I had bad myopia and never mentioned it. They did a test on my eyes. Almost like a topographic map of the eye and the military said i had this condition. Thanks for the informative video.
Sad reality is I described this exact issue to multiple eye doctors at Kaiser and not one of them ever mentioned it.. In your video I got an answer that over 30 Kaiser eye doctors never mentioned
Dang! I've learned so much just now about my eye condition. You honestly thought way more than my last eye Dr. I was just told, this is what's it's called - your eye is shaped like a football - wear glasses problem solved. I was never told about my eyes getting really dry and irritated at times. Rubbing always helped when I added a few eye drops. I know what to do and not to do now because of you. Gratitude!
Hey! Thanks for sharing this! It makes me happy to hear you found the channel and have found value in it. (That is the whole mission of the channel!) Cheers and many blessings to you.
Just been diagnosed. My optometrist wouldn’t listen to me I felt there was more going on with my eyes. Went to a specialist and found out so much more going on with my sight! Can’t wait to try the lenses as the first vision example at the start I was like that’s so me!!
Been diagnosed with early KC for a year now. Quite fortunate that I can still get around with just my normal eyes/ glasses and rgp lens give me 20:20 vision.
Was just diagnosed with this today Have been dealing with it for YEARS, admittedly, and finally got tired of seeing like shit out of one eye. I don't care if I get my vision back, as long as it doesn't get worse.
Really helpful video, I have advanced Kerataconus, and have had a cornea transplant of my right eye. I have very bad allergies and blitheritis, this video is very helpful..
I'm about to undergo my crosslinking procedure tomorrow morning and I must say, I'm very anxious. But I'm also very grateful I'm being treated. I was diagnosed a year ago and set it aside because I couldnt afford anything. But I'm sure I could've found a way. I'm a fool.
This was so helpful and amazing! Keratoconus may be something I am diagnosed with since my eye doctor told me that she noticed my astigmatism progressing rapidly and my cornea was thinning, so this helps ease the nerves of what to expect when I see my ophthalmologist
This is a wonderful video! I have so many people who asks what my eye condition is/does/how I see things without my lenses, and it is really difficult to explain it!
Very helpful explanation! I have recently been diagnosed with Keratoconus and wanted to do a little research in to the topic. I live in NZ and hopefully, will be getting a referral put through to our public health system :)
I have this condition. I had the Corneal Cross Linking Procedure in 2020 in both eyes. I’m due for a checkup soon as I feel as if my eyes haven’t improved at all.
Well a major thing is that cross linking wont improve vision, it is really just to stop the progression of the disease. Do you wear any specialty contact lenses?
You are the G.O.A.T for eye health videos. I have been to several Drs who specialize in this area and not one has broke it down like you, Its very difficult to find a good Dr. Can you make a video on how to find a good Dr.? Every year I try a different Dr. until I find One who communicates as well as you do. I dont like to do that but I have been so dissatisfied. I enjoy your videos. Thank You
Semoga kuat.. Kita mengalami nasib yang sama.. Percayalah ini adalah ujian dari Tuhan yang harus kita jalani.. Semoga Tuhan Allah SWT mengangkat derajat anak anak kita dan segera mendapatkan pengobatan yang tepat
Both eyes have been diagnosed with keratoconus. My eye doctor suggested the cross linking procedure. That's is done through my medical insurance. My right is the worse since it feels like its getting worse in vision. I'm looking forward for the video on that. Thanks for the information!
I have KC🙋🏾♀️ I had the cross-linking surgery around 10 years ago, I was practically blind for around a month after the surgery, I had those scleral contacts but it was too painful when I took them out I felt like I was ripping a part of the cornea with it, so I now use regular glasses, I don’t see 20/20 but it’s better than the pain I felt when I removing the eye contact.
No wonder I was so unsatisfied with my power prescriptions. I always used to complain abt shadowing vision to optometrists but they never suggested me to do serious tests. Thankfully I did all the test recently and found that I'm suffering from keratoconus. I will be doing this collagen treatment soon. Thanks doc for the explanation
I was diagnosed with KC over a decade ago. I wear hard lenses and they big the crap out of me. They are very expensive to replace. Thank you for the explanation of this disease.
Ask your doc for zero strength soft lenses to go under the hard ones. You won't notice either of them in your eyes. I gave up on my hard lenses completely until they gave me soft lenses to act as a cushion. They say use contact conditioners and eyes drops to lubricate the eyes but for me nothing came close to wearing soft lenses underneath
I work at an ophthalmology office. We had a lot of down time today so I offered to be the Guinea pig for topo pictures. Lucky for me our corneal specialist was in office and noticed the thinning of the back of my cornea. Something that wouldn’t have been caught until I started experiencing symptoms. I’m about to sign up for CLX and I’m so happy to have caught this early!
Had surgery for keratachonus 4 days ago, I got diagnosed super early at 14 years old so it didn’t get that bad, I did cross linking. I haven’t gotten any better but it won’t get worse at least.
I got diagnosed at 13 after not being able to see out my left eye with contacts for 2 years. I'm now 15 and after having surgery both eyes have stabilized. I'm still blind in my left eye without the scleral but my right eye is fine with a regular contact.
My eye doctor didnt catch this until i was abt 20! I have scleral lenses they were difficult to put in at first and now there easy! My left eye is way worser then my right. I go for intact surgery this friday for my left eye and im getting crosslinking in my right eye by the end of this year!! Everybody should go to a specialist every year to get there eyes checked for things like this!!
If this helps anyone: I was actually misdiagnosed at first. Thankfully, a different doctor who was aware of KC recognized it and had me see a specialist. I ended up being diagnosed in both eyes around 2006-2007. My left eye always being the worse. The keratoconus developed slowly for the first few years and then started progressing faster right before I had crosslinking done on both eyes. (Unfortunately my left eye developed a corneal ulcer during the first week of healing.) I have scarring from both the ulcer and the keratoconus now in the left eye but none/very little in my right eye. I have worn RGP lenses in the past but due to the progression, I am being fitted for scleral lenses now. (I can not see at night to drive with glasses and regular RGP do not fit in either eye. We actually tried refitting post surgery.) I can see 20/20 out of both eyes together with scleral lenses. We are currently working toward getting the lenses to fit comfortably. My right is done but the left is giving us issues. Oh yes I almost forgot, I learned more recently that I might actually be an inherited case. My mother was diagnosed with very very mild case KC too.
No problem, Jose! I have another video coming this summer on the cross-linking procedure. Not sure if it will be out before yours, but either way, I hope yours goes great and the recovery is smooth!
I work in the optical field and know a surgeon who is trailing Xenia lenticular implants for those who have keratoconus as another option before a corneal transplant, very interesting work and could be promising in future!
Thank you for this explanation :) I have been dx with KC about 20yrs ago. The eye doctor gave me a hard contact lenses but it was so uncomfortable I only used it twice before I broke it. I have been going to my eye specialist every year to get my yearly exam and glasses and she tells me that my KC is surpricingly not getting worst, its getting better. Anyways I just wanted to share my story, thanks.
I got diagnosed 4 years ago. I first noticed I had vision problems in 2016 and doctor just prescribed glasses and it was fine. Within 3 months there was a drastic increase in power, so I went to a different doctor and they gave me, guess what, glasses. 4 doctors before I was suggested a specific place by a friends to realise it was KC. It was then I realized how much I was rubbing my eyes. After I was told, I found myself about to rub eyes 10-12 days day. I stopped doing so, my eye sight has only increased once in the past 3 years. Hopefully nothing else with change and I’ll be able to live my life with the power I have now and it doesn’t progress anymore.
I’ve never seen so many people with my same condition and it’s honestly. Relieving!! I got diagnosed with kc in early high school in 2016/2017 and was fitted with sclera contact lenses a little after that. The only other person I knew with this eye disease and contact type was my sister but she has it faaaar worse than I do. Like bad in the sense that she does not qualify for Crosslinking or corneal transplants unless in an extreme emergency. Like 2 years ago I had crosslinking done on my right eye cuz it was way worse tha my left one and my vision eventually got better than my left I think. I just turned 20 a couple months ago and have had sclera contact lenses for a couple years now and I’m a stupid young person taking my vision for granted and slept a lot with them. I’m now dealing with a corneal ulcer because of it that could rlly fuck up my vision for the future in my right eye. I’m uninsured on top of that so that’s great! we’re just kinda waiting around until I see if I qualify for Medicaid. But I’m really scared bc it’s not a bacterial infection and they don’t know what it is right now. my right eye has been immensely irritated on and off this week since my appointment to actually Do something about it is this Friday and it’s heavily hindered my ability to actually go into work, which isn’t helping for the cost of doctor visits >_> So while most people in this comment section are older and have started wearing the contact lenses recently, I trust you’re not stupid like I am, please take them off when you go to sleep!!!! Im young and just don’t rlly think about future health issues(even tho I really should to be honest, I’m not the Most genetically Healthy individual) so I obviously thought it wasn’t That big of a deal BUT IT IS. Anyways lol yeah that’s my little keratoconus story. It’s nice to not be Alone in this !
Wow, I'm so glad to know that the comments here are a place for people to connect with one another. It's unfortunate that you ran into those issues, but I really appreciate you sharing it here and sharing that warning with others.
I just found out last year that i have it in both eyes. I just had crosslink surgery on the right eye and getting it on the left in November.. i have to now have hard contact lenses.. thia videos and channel has been very helpful and informative
I just stumbled in this video here in hospital laying in a bed after my first corneal transplant from keratoconus. My condition led me to strabismus too. I have hope though am truly scared for what the future holds. 😢
Awesome video! I do rub my eyes once in a while but I don't rub on the eye lids, more around the orbital from the bridge of the nose, to the eyebrows and around.
Your content is really amazing. I have a suggestion, I believe it is also great for you to talk about NEVUS OF OTA. A lot less people have this, so people really do not know what is when they see it and assume a person with this birthmark has vision problems; When in actual fact, it is just bluish pigment on the eye surface. Kind regards, thank you.
Thanks for giving greater information on KC condition. I am suffering for the last 23 years. Trying to manage with gas permeable lenses. By the grace of God, so far so good, but do have concerns if any negative changes will happen in future 🤔
I was just diagnosed with Keratoconus in my left eye. They have ordered one of those big hard Scleral contacts that you mentioned. They said it will take over a month to get. It has resulted in me seeing a lot of ghosting/double vision in just my left eye. My right eye does have blurriness but no ghosting.
I went from RGPs for 40 years to sclerals…always rubbed my eyes to the point I got corneal scarring. Went to sclerals two years ago..AMAZING and vision is better! Have patience..the fitting takes awhile! For fill…I use Nutrifill which is so much comfort than all the other products! Plus sclerals for KC is considered medically necessary..insurance should cover it! Best wishes!
@@cj9667 You have been wearing contacts for 40 years? I didn't even know contacts has been around that long. I'm 40 years old. But anyway, thanks so much for telling me all this great info! Very nice of u. My insurance already said they will cover it, which is good because it will cost thousands of dollars!
@@DoctorEyeHealth Better, thank you! I had cross linking done on my left eye and keeping up with my doctor on my right! My right eye does have kc that hasn’t progressed so I’m just on glasses for now! I try to ask what I can to my doctor but your videos definitely answer some questions I forgot to ask! Always a treat to learn something new!
Do you know what type of keratoconjunctivitis you have? Is it Atopic? Sicca? Epidemic (EKC)? Neurotrophic? Herpetic? ...as I am writing this I realize I may need to make a video going over all the possibilities.
@@DoctorEyeHealth I’m not sure. I was just told I have blepharokeratoconjunctivitis. I’m a 22 year old female. I’ve been on ikervis and dexafree eye drops for months, I wasn’t told anything by my eye doctor, he has no time for me 🥲🙁 thank you so much for your reply. I watch your videos all the time so it means a lot.
I think I made mine worse on my left eye when I would rub my eye while sleeping. Before I was diagnosed with keratoconus, the rubbing would happen once or twice a year. It was probably eye allergy. Eventually when I woke up, I'd look in the mirror and my eye was blood shot red from rubbing so hard. I would put a cold compress on my eye and go back to sleep.
This touches my diagnosis and I’d be happy to learn more of the latest treatment/control. While at it i was recently diagnosed with Central serous retinopathy (CSR), I’d be glad if you shade more light to this condition also.,It’s relation to KC and general information it’d be great. Thanks. Looking forward to the next episodes.👌🏽
Thank you so much for these videos! I have this disease myself and your videos help me understand better the problem. Unfortunately, I couldn't find good videos like this in Portuguese (my native language). Can I translate this video to Portuguese? I believe it will help a lot of Brazilians that do not speak English to get a better understanding of keratoconus.
Was Diagnosed with KC in both eyes at age 27 October of last year. went through with Crosslinking in the worse eye (L) it's been 5 months since my uncorrected and corrected VA with glasses is crap much worse than pre-crosslinking. thankfully I am using RGP for my vision correct it's giving me 20/15 vision with some residual aberrations like ghosting, starburst, halos but my vision is 1000 times better in RGP than without it. Tried Boston PROSE scleral lens too but vision is pretty much or maybe slightly better than RGP but it's too expensive will be keeping that as an option down the line.
Was diagnosed with keratoconus when i was 10 been through 3 corneal transplants and two days ago got prk done on my right eye because the left eye has too big of an astigmatism vision so far been good on my right eye after two corneal transplants on my left eye and one done on my right eye
Stay tuned for more videos about keratoconus surgery and contact lenses for keratoconus! See the full playlist here: ruclips.net/video/kPanFRVV4uM/видео.html
Hey doc can you please do a video on uveitis. Thanks
Because my ophthalmologist says I have uveitis since 2018 in both eyes and I'm still using drops for it, also I have myopia so plz do a video and please advise. Thanks
Thank you so much for this, doc! I've been dealing with this condition for close to 20 years. I now have cataracts as well as Keratoconus and I'm practically blind in my right eye. It has recently begun to affect my left eye and I'm rapidly losing vision in it. I have an appointment with my ophthalmologist soon, so hopefully, he can stop the progression before I end up blind in both eyes.
Please could you explain Epiretnal Membrane. Just found out I have it in one of my eye as well as Keratoconus. Thank you.
Hi Dr. Allen, Many thanks for all your informative videos! Although I have found treatment discussions for my severe dry eyes & blepharitis, your KC video has come the closest for me to learn more about my cornea degeneration. I have been diagnosed with embedded Salzmann nodules that are inoperable due to lasik scarring…My sclera lenses were a game changer since I’ve been wearing them since 2019. I never see any discussion regarding Salzmann nodules: Are they rare? Do most treatments involve surgery? Where can I found out more info? I mention it because my symptoms were very close to what you described in your KC video. Thanks so much!
Thank you for such a clear explanation. I was diagnosed with KC 28 years ago when glasses could no longer correct my vision and it progressed very quickly. At the time, CXL was not approved for treatment where I live. Within five years from diagnosis I needed corneal transplants in both eyes. Recently, I found an optometrist that fits scleral lens and I’m happy to report that I now see 20/20 - it’s my best vision in a decade! It’s so important to find the doctor that can work with you.
💖💖💖💖 Thank you, Lisa! This makes me so happy to hear! I remember one of the first scleral fits I ever did and my keratoconus patient was able to see 20/30 for the first time in 20 years...(I was all concerned about how she wasn't seeing 20/20 with that initial fit) but she was SO SO SO incredibly happy to just see as well as she was and she began to cry. Thanks again. Cheers - Dr. Allen
@@DoctorEyeHealth we’re so grateful for doctors like you, Dr Allen. Vision impairment affects so many areas of life - clear sight is a gift. Thanks for what you do and for bringing awareness with your channel 💜
I need this asap
When you go to sleep do you need to take out those lenses?
I am also treatment this disease 😭 now
I am an Optometrist from India and I found your videos very useful
I was diagnosed about 7 years ago in both eyes, had cross linking in 2016 on my left eye and then again in 2018 on my right (left eye was worse then my right) I had really horrible doctors (corneal and contact specialist) for the first 6.5 years of my diagnosis and just recently found amazing docs to help me. My original doc told me I was legally blind and that I need to GOOGLE my eye condition and then told me I was wrong when I was not and neither one would listen to me as a patient. Thankfully now with my new docs I no longer have anxiety going to apt (which are every 6 months) and I don't have doctors forcing sclara lenses on my eyes. My eyes have actually had a reduction in the cornea (point has receded) and I am able to use soft contact to correct my vision to the point I can now get my licence! I am not at 20/20 but I can now drive and my eyes can handle soft lenses!
Get yourself a great set of doctors it will CHANGE your life.
Hi can you please share the doctor information? I’m going through the same thing right now.
I have lived with this condition for nearly 40 years. I rubbed my eyes a lot in my youth. Had a transplant in one eye when I was 22 and the vision in that eye has been excellent (20/15) with contact lenses. Cross linking was not an option when the condition was progressing in my youth. It really stabilized in my mid 30’s and not a lot of changes since then. My vision has never been great as astigmatism continued even with contact lenses. I did recently get some custom fit Scleral lenses at the University of Iowa eye clinic(not to steal your thunder Doc, but U of I is a top 10 place in the country to go to for eye issues (I met Doctors in Germany who recommended them). and they have been simply wonderful. Improved vision, no worry about losing lenses, healthier eyes! Technology advances in this field have been wonderful and there are much worse things to live with than this condition. Love watching your videos. You are very entertaining and have a great way of informing and teaching people.
Soft toric lenses are more comfortable
I noticed a problem with my eyes in my early 20’s and often had dry eyes and rubbed my eyes a lot. It wasn’t until my mid 30’s I sought treatment and was diagnosed with KC. My right eye is much worse than my left eye. We’re hoping I’ll avoid a cornea transplant, but will see how the next 10 years go. I had the cross linking procedure done in 2020 in both eyes and I highly recommend that for everyone diagnosed with KC. The healing takes a long time. My eyes kept changing for about a year after the procedure (for the better), but I kept updating my glasses prescription. I’d say the hardest part of this 2 year journey was just having patience through vision fluctuations, healing, and just waiting. I’ve been on scleral lenses for a few months now and they take a little to get used to. I still plan on keeping my glasses up to date and plan on using both scleral and frame lens as I see pros and cons to both. In the end you have to decide what’s more comfortable and works best for you.
Thanks for sharing David! It means a lot to hear your story and I hope things continue to improve and settle for you. I am certain your story and kind words will help many people going down the same journey. Thanks - Dr. Allen
Mine was diagnosed mid thirties. Contact lens would not stay on my eyes. My eyes also generate a lot of grit. Supposedly it stabilized in my 40s. My vision is not 20/20.
Now I am almost 60 and now struggling with cataracts. Appreciate every beautiful moment. Eat well and take care of your self especially with diabetes and blood pressure.
Yeah I feel u bro my left has way more advanced kc than my right, like I can't read with my left eye cuz that's how bad my visual acuity is on my left eye, scleral lenses do work in it but I still can't seem to have a 100% though I'm able to read n everything. @doctorEyeHealth Would u indicate a cornea transplant?
Do the scrleral contacts feel like Sand in your eyes after 3 days ?
@@lilianfowler7988I have KC too, late thirties. Thank you for your advice. Just quit a stressful driving job today to look after my health. Having KC and asthma sucks, so I'm currently in the process of completely changing my diet and work. Wishing you the best
I had the cornea transplant in my right eye a month ago.i was so scared but everything went great I could already see the improvements a week after my surgery. I'm so happy I went through with it
How much does it costs?
I honestly can't believe none of my Dr's have recommended testing for this disease. An ad about it just popped up on my Facebook of all places and sounded all too familiar to me, so I decided to go on a dive about it. Thank you for the clear and concise video about this!
Same here
New resolutions:
1. No rubbing
2. Lots of eye drops
I have allergies and live in Central Texas which is dry and dusty.
Thanks for this video. I had never heard of this condition and don't want to develop it.
Doctor, your explanations are so well understandable to the layman. Thank you!
I appreciate that. Thank you!
I just started as an opthalmolic tech with ZERO experience. I've been scrolling Facebook looking for a crash course essentially.. this is one of the easiest to understand videos I've found. Thank you!!
Wooohooo!!!! Thanks so much! I hope you find the channel helpful!
I am a clinical claim review RN, and I see claims ALL the time for corneal Collagen cross-linking and Photrexa. I was really excited to see this video and learn more about keratoconus, I am even more excited for the next one!
MY GOD!! You’re the best!! My son has been diagnosed with this disease recently. I wish more information was available 36 years ago. That’s how old he is, he has worn triple bifocals for years off and on. But finally he’s found a good doctor to help him with this unfortunate eye disease. Thank you for being so informative. God Speed to you❤
After being diagnosed with kertatoconus. It was a scary finding because I was the first one in my family to have it. Not being able to see clearly for 2 years was rough until I got fitted with scleral lens was the best thing ever. Don’t be afraid of the scleral lens it’s 110% worth it !
So helpful, thanks for this. I'm going through this right now. I'm also the first in my family to have it sometimes they don't really understand 😢
hi sir, from india,i am saikumar i am also kc patient. i have been suffering last five years. 4 years back cross linking (C3R)done on right eye by my local doctor. but i did not get clear vision on my right eye. but i tried hard contact lens(RGB) but not suited for me. while i was wearing hard contact lens on my eyes getting blur. i don't know the reason. can you please give suggestion
@@saipalepu-y8fhello sir I have also diagnosed with Keratoconus in 2019 and had C3R on 2020 August and on 2021 September since that time I have been using RGP hard lenses which gaves me good vision but also it has some problem while I'm driving and recently I have lost my left eye lense so I want ask you that what are using for better visibility
I actually been diagnosed with that... I had it op on my left 👁️ but thank God I'm in remission...
I called my doctor literally half an hour ago to continue my treatment for keratoconus, I'm waiting for the next video because I want to learn how to feel my lenses more comfortable while wearing it
Awesome! Hope your eye doc can help you!
My doc gave me some non prescription soft contact lenses to put in first and then the soft ones in top. Can't feel a thing this way, eyes don't dry out and irritate either. Ask them about that
I was diagnosed in the early nineties with keratoconus in both eyes with my right eye being worse than the left. (I have scarring in both with the right eye being effected more, and now diagnosed with cataracts. My son was born with cataracts in the front lens of both eyes and he too have been diagnosed in his late twenties with the KC disease.)
I have been to SO many doctors and specialists. I’ve worn RGPs for 27 yrs, and now I have glasses with the contacts. The sclera lenses was not successful due to difficulty in fitting the eyes as well as commuting several 2hr trips to the specialty hospital and to be quite honest- the emotional aspect has taken a toll on my mental health. The contact for the right eye hurt so bad that I haven’t worn a lens in that eye in over a year. The left eye began to hurt as well so at this point I’m wearing the right contact lens in the left eye! Honestly I can see better and it’s allowed me to function, to earn a living and to drive- although nighttime driving is very limited- I avoid driving at night as much as possible. Bright light is not my best friend! Ohhh the stories I can tell about my relationship with this disease can be sad yet hilarious at the same time! Hopefully there will be a cure in the near future that no longer require corneal transplants. Thank for this video and the comments are therapeutic for me….I feel less alone in this struggle to see.
Thank you so much for sharing, Dawn. It really means a lot. It is honestly tough for me sometimes to hear peoples struggles with their vision. I only wish there was more I could do. But it means a lot that people watch these videos and are able to connect with others through the comments. I hope you can continue to see qualified and caring eye care providers and hopefully even see better. Same for your son. Wishing you nothing but the best. -Dr. Allen
I can feel your pain it's so much the same with me and I'm only 28 years old, I was diagnosed at the age of 17 years old.
Hey there.I also have a long sad story of battling the KC.Struggles are real everyday especially with a progressive situation.
Hey I couldn't wear mine either until my doc gave me some soft non prescription lenses to wear under the hard lenses. 4k vision, couldn't feel a thing. I'm like you driving at night and have just quit my driving job as it's getting too dark to early now it's winter before my shift ends. But it's for the best, better safe than sorry.
I recently diagnosed with Keratoconus and this video gave me an idea about the same.
Just diagnosed today and all the symptoms click. Doctor said it’s early stage and we are trying scleral lenses first. Thank you for this video. Very informative. Sharing with family and friends for them to better understand as well.
I'm a person with horrible allergies to dust and as you guessed I rubbed my eyes a lot. I noticed my right eye vision getting affected and the first doc unfortunately dismissed if as a "fold". Few years later the doctor's started calling it a "scar" and I decided to visit a better hospital. I was diagnosed with KC and have completed my collagen cross linking a month ago. I've done a trial of the scleral lenses and TBH when I was finally able to SEE, I felt like crying. No one in my family has this. My left eye is okay for now which is why I realised it late as well. I will get my lens 2 weeks later. I'm glad to know I'm not alone.
Hi Sis I am sorry to hear about this. Can you please share me your Scleral experience? I have advanced stage Keratoconus and looking for options.
@@Kashif314 hey! I got my scleral lens in May 2022 and have been using them since. TBH it took me quite some time to get used to it and every time I put it, it's one challenge or the other. It gets really frustrating and I've read that even people who use them for years, sometimes face issues on some days. HOWEVER, my vision is greatly improved and I can independently see with the affected eye almost perfectly and that really makes me comfortable. Despite all the time it takes to learn, it's really worth it!
@@Anjali-vj8uo thanks Anjali for the detailed reply. So after a while you get use to them? You eyes adapted to your contacts? I had a trial of rose K 2 XL and it improved my vision but had great discomfort even the fitting was right but it is a semi Scleral and I need to have a trial of mini or normal Sclerals but did your contacts settled down after a while?
@@Kashif314 in my case, yes my eyes did get used to it. However inserting and removing it can be a challenge at times and that's the only time it irritates my eye mostly.
@@Anjali-vj8uo thank you for the reply. Can you please tell me usual after how many minutes after insertion your eyes start to feel fine again after the initial discomfort upon wearing?
i was diagnosed with this 3 years ago in my left eye, had an cross linking and corneal ring operation and been using glasses since then (but it didnt help much with the left eye, only the right), last week i paid for rgp lenses and tomorrow im going to get them (havent done it before because here in argentina where i live they're pretty expensive, also looked for scleral but is really off of my posibilities right now, maybe someday..)
thank you so much for your videos, it has been really enlightening!
Thanks, Franco. So happy you found the channel and I appreciate you sharing your experience. Glad to hear you got Cross Linking as that is super important. Hopefully the contact help you a TON! (RGP lenses may be tough to get used to but hopefully, they should help you see much much better). Best wishes - Dr. Allen
@@thenavigator2648never paid attention to that, i sleep from both sides
I have been diagnosed with KC today. I had gone to do a check up for lasik surgery but it occurred that I have KC. I searched for more information and I must say this video is really helpful. Thank you!
Did they allow you to undergo lasik then? Also what instructions/ precautions were you told?
No they will not allow
I was diagnosed 2 days ago and I was shocked when he mentioned shadowing letters since that's what I see. It never made sense to me why In photos of astigmatism never looked similar to what I saw until today. Thank you for the video
I’m 24 and I was diagnosed with keratoconus at around age 15-16. It was so scary rapidly losing my vision. I’m so blessed to have a really good eye doctor literally 5 minutes away from me in a small town in Indiana. Scleral lenses are life changing. My eye doctor said my keratoconus has stabilized at the moment. I’m so glad I can see every day because of my doctor.
seems i am gonna be the next one i am 15 and i feel i have keratoconous need to tell my parents about this i hope they dont scold me
My father has Keratoconus! These videos are super helpful!
Hope school is going well! Ever consider taking the Avagen test yourself?
@@DoctorEyeHealth I would love to! Where could I get one??
That was very interesting to know. What I would like to see is that you would talk about dry eye syndrome. What causes it and how to get rid of it if possible. I enjoy your videos.
Thanks Marlene! Have you seen some of my other videos on the topic? I have a newer video reviewing updated dry eye treatments coming up!
@@DoctorEyeHealth thanks I'll check into that. And be watching for the next one video.☀️
I was recently diagnosed with this last week at the age of 30. Thank you for the break down of what it is. I’m wear glasses for the past year and change. And would be getting hard contacts soon
im 30 too and just got diagnosed im freaking out , could u give me ur ig? I would like to ask u some questions
@@Adam_Ch739I'm just a few years older than you but I'll make this clear.
Get the hard lenses.
Ask them about zero strength soft lenses to put under the hard ones as a cushion. You won't even know they are there. Next step is to be thrilled with your new found superhero-like vision and get on with your life😂. You will be fine, get the lenses. I saw hairs and pores on my face I couldn't before even with glasses. It's like going from 480p to 4k in an instant
I was just diagnosed with this today at university of Virginia medical center. Eye clinic. For over a year ive seen multiple eye doctors and they never knew what it was until I saw the specialist today. She wants me to use a special contact it was an amazing feeling to be able to see the chart.
Thank you for explenation dr. Allen. At now I have diagnosed keratoconus, after check up at Eye Hospital at here. And next two weeks from now, I will obscan at my eyes to looking topography of cornea because doctor said my cornea too sharp like a cone. My view now is blury at right eye and had white scar in the middle of eye. At my left eye blur but still can focus. I hope this video can much helpfully too another person like me. Thanks doc.
I got diagnosed in March. Was very worried almost of blindness how fast symptoms developed!! I’m in the search of my best option right now but I know surgery is the best route!! Thank you this video was helpful
the best video i found today regarding keratoconus keep it up guys
Wow you explained everything in detail. I am diagnosed with KC week a go. And planning to do the CXL ,but Doc you are amazing , these are valuable points. Thank you.
I have Keratoconus and got Topography PRK & CXL Corneal Cross linking surgery, saved my eyesight.
to extrapolate, I've had this for 10 years and treated it with hard RGP contact lenses which were a pain. After my surgery my vision is 20/25 and 20/20 uncorrected.. prior I couldn't see anything at all.
Do u need RGP lenses even if you went through PRK ?
@@Anuarbekkaz nope i’m ok now
I was diagnosed with KC in 2009.
I received the corneal cross-linking treatment in 2020. Which had a significant enough of a flattening effect on my cornea that my vision somewhat improved.
Last week I had Phakic IOLs placed in each eye to improve my vision without glasses or contacts. The day after they were placed my right eye was at 20/25 and my left which has the more severe irregular astigmatism from KC is at 20/40.
hi sir, from india,i am saikumar i am also kc patient. i have been suffering last five years. 4 years back cross linking (C3R)done on right eye by my local doctor. but i did not get clear vision on my right eye. but i tried hard contact lens(RGB) but not suited for me. while i was wearing hard contact lens on my eyes getting blur. i don't know the reason. can you please give suggestion
Doctor! You should do a video on the possible off-label use of Vuity eyedrops in reducing night vision disturbances such as halos, starbursts, and glare due to large pupil sizes, especially post refractive surgery like LASIK. I think this can be a very interesting topic!
Sounds like what I need to learn more about. I have such poor eyesight. Especially at night. Very difficult for me to get an accurate prescription.
Thanks for suggesting the topic! Perhaps just a video on night driving in general. Long before the use of Vuity there is another drop that many doctors would prescribe off label, which funny enough...is now available OTC in a small concentration. Should be a fun video.
Can you do a review about visisharp? I don’t know if it’s a scam and you’re a doctor so maybe you could give it a look? In all honesty I’m just trying to get a trustworthy opinion from someone who takes an actual look without brushing it off as a scam immediately. It says it works but it sound a bit too good to be true. They do have sources and science included though so maybe give that a look?
@@DoctorEyeHealth That would be awesome! I have to drive every once in a while at night and in the past years it's become really difficult because all those lights blind me so much and sometimes I've nearly gotten into an accident bc of that, I'm only 28 and live on the countryside so car driving is absolutely essential to me, also at night. If you have any tips regarding this,please share them!
@@spiritofthewinds9089 do you know which eye drop Dr. Allen is referring to?
The Topographer and the Tomographer. Thanks I'll remember this.
I have cross-linking coming up at some point in the near future and it's nice to seem literate in the technology used to diagnose this condition.
I just found out I i had this condition. I'm 23 and tried to join the Army. Went to the medical screening and they said my eyes were bad and that i should see a specialist.
The specialist said I had bad myopia and never mentioned it. They did a test on my eyes. Almost like a topographic map of the eye and the military said i had this condition.
Thanks for the informative video.
Sad reality is I described this exact issue to multiple eye doctors at Kaiser and not one of them ever mentioned it.. In your video I got an answer that over 30 Kaiser eye doctors never mentioned
I'm just very grateful for the rapid advances in vision technology that hopefully provide us all with good and healthy vision today and in the future!
Dang! I've learned so much just now about my eye condition. You honestly thought way more than my last eye Dr. I was just told, this is what's it's called - your eye is shaped like a football - wear glasses problem solved. I was never told about my eyes getting really dry and irritated at times. Rubbing always helped when I added a few eye drops. I know what to do and not to do now because of you. Gratitude!
Hey! Thanks for sharing this! It makes me happy to hear you found the channel and have found value in it. (That is the whole mission of the channel!) Cheers and many blessings to you.
My doctor said they have suspicioun tomorrow is my test for it. The diagnostic part of this video helped me get confidence
Just been diagnosed. My optometrist wouldn’t listen to me I felt there was more going on with my eyes.
Went to a specialist and found out so much more going on with my sight!
Can’t wait to try the lenses as the first vision example at the start I was like that’s so me!!
Been diagnosed with early KC for a year now. Quite fortunate that I can still get around with just my normal eyes/ glasses and rgp lens give me 20:20 vision.
Was just diagnosed with this today
Have been dealing with it for YEARS, admittedly, and finally got tired of seeing like shit out of one eye.
I don't care if I get my vision back, as long as it doesn't get worse.
Really helpful video, I have advanced Kerataconus, and have had a cornea transplant of my right eye. I have very bad allergies and blitheritis, this video is very helpful..
I'm about to undergo my crosslinking procedure tomorrow morning and I must say, I'm very anxious. But I'm also very grateful I'm being treated. I was diagnosed a year ago and set it aside because I couldnt afford anything. But I'm sure I could've found a way. I'm a fool.
This was so helpful and amazing! Keratoconus may be something I am diagnosed with since my eye doctor told me that she noticed my astigmatism progressing rapidly and my cornea was thinning, so this helps ease the nerves of what to expect when I see my ophthalmologist
This is a wonderful video! I have so many people who asks what my eye condition is/does/how I see things without my lenses, and it is really difficult to explain it!
That means so much! Thank you for sharing that.
Very helpful explanation! I have recently been diagnosed with Keratoconus and wanted to do a little research in to the topic. I live in NZ and hopefully, will be getting a referral put through to our public health system :)
I have this condition. I had the Corneal Cross Linking Procedure in 2020 in both eyes. I’m due for a checkup soon as I feel as if my eyes haven’t improved at all.
Well a major thing is that cross linking wont improve vision, it is really just to stop the progression of the disease. Do you wear any specialty contact lenses?
@@DoctorEyeHealth No, I’m currently wearing glasses.
You are the G.O.A.T for eye health videos. I have been to several Drs who specialize in this area and not one has broke it down like you, Its very difficult to find a good Dr. Can you make a video on how to find a good Dr.? Every year I try a different Dr. until I find One who communicates as well as you do. I dont like to do that but I have been so dissatisfied. I enjoy your videos.
Thank You
My 10 year old daughter just got diagnosed with it today. I just wanna cry and hug her nonstop 😞
Semoga kuat.. Kita mengalami nasib yang sama.. Percayalah ini adalah ujian dari Tuhan yang harus kita jalani.. Semoga Tuhan Allah SWT mengangkat derajat anak anak kita dan segera mendapatkan pengobatan yang tepat
Both eyes have been diagnosed with keratoconus. My eye doctor suggested the cross linking procedure. That's is done through my medical insurance. My right is the worse since it feels like its getting worse in vision. I'm looking forward for the video on that. Thanks for the information!
I have KC🙋🏾♀️ I had the cross-linking surgery around 10 years ago, I was practically blind for around a month after the surgery, I had those scleral contacts but it was too painful when I took them out I felt like I was ripping a part of the cornea with it, so I now use regular glasses, I don’t see 20/20 but it’s better than the pain I felt when I removing the eye contact.
I go in for an appt tomorrow morning for KC. I hope mine isn't too bad bc I'm very nervous! Thx for this video it was very helpful!!
No wonder I was so unsatisfied with my power prescriptions. I always used to complain abt shadowing vision to optometrists but they never suggested me to do serious tests. Thankfully I did all the test recently and found that I'm suffering from keratoconus. I will be doing this collagen treatment soon. Thanks doc for the explanation
My husband has this has had a cornea transplant 17yrs ago. Thank god for the NHS.
I was diagnosed with KC over a decade ago. I wear hard lenses and they big the crap out of me. They are very expensive to replace. Thank you for the explanation of this disease.
Ask your doc for zero strength soft lenses to go under the hard ones. You won't notice either of them in your eyes. I gave up on my hard lenses completely until they gave me soft lenses to act as a cushion. They say use contact conditioners and eyes drops to lubricate the eyes but for me nothing came close to wearing soft lenses underneath
I have been watching you for a while waiting for you to talk about this thank you!
Me too!
I work at an ophthalmology office.
We had a lot of down time today so I offered to be the Guinea pig for topo pictures. Lucky for me our corneal specialist was in office and noticed the thinning of the back of my cornea. Something that wouldn’t have been caught until I started experiencing symptoms.
I’m about to sign up for CLX and I’m so happy to have caught this early!
Had surgery for keratachonus 4 days ago, I got diagnosed super early at 14 years old so it didn’t get that bad, I did cross linking. I haven’t gotten any better but it won’t get worse at least.
I got diagnosed at 13 after not being able to see out my left eye with contacts for 2 years. I'm now 15 and after having surgery both eyes have stabilized. I'm still blind in my left eye without the scleral but my right eye is fine with a regular contact.
@@270Winchester I'm so sorry to hear that, i hope you will get better.
@@270Winchester hi this is saikumar. i am also kc patient. can u give any suggestion to me. can you give your email id or whats app
My eye doctor didnt catch this until i was abt 20! I have scleral lenses they were difficult to put in at first and now there easy! My left eye is way worser then my right. I go for intact surgery this friday for my left eye and im getting crosslinking in my right eye by the end of this year!! Everybody should go to a specialist every year to get there eyes checked for things like this!!
Thanks for this video! Diagnosed last year with a minor case. Looking forward to the next video Doc.
Thank you for sharing!
Omg this is what we're learning at uni this week! Great content thank you! Much love from Australia
Very cool!!
If this helps anyone: I was actually misdiagnosed at first. Thankfully, a different doctor who was aware of KC recognized it and had me see a specialist. I ended up being diagnosed in both eyes around 2006-2007. My left eye always being the worse. The keratoconus developed slowly for the first few years and then started progressing faster right before I had crosslinking done on both eyes. (Unfortunately my left eye developed a corneal ulcer during the first week of healing.) I have scarring from both the ulcer and the keratoconus now in the left eye but none/very little in my right eye. I have worn RGP lenses in the past but due to the progression, I am being fitted for scleral lenses now. (I can not see at night to drive with glasses and regular RGP do not fit in either eye. We actually tried refitting post surgery.) I can see 20/20 out of both eyes together with scleral lenses. We are currently working toward getting the lenses to fit comfortably. My right is done but the left is giving us issues. Oh yes I almost forgot, I learned more recently that I might actually be an inherited case. My mother was diagnosed with very very mild case KC too.
Thanks for the video, i have recently been diagnosed with this. My cross linking procedure is scheduled for July.
No problem, Jose! I have another video coming this summer on the cross-linking procedure. Not sure if it will be out before yours, but either way, I hope yours goes great and the recovery is smooth!
I work in the optical field and know a surgeon who is trailing Xenia lenticular implants for those who have keratoconus as another option before a corneal transplant, very interesting work and could be promising in future!
Always great to hear! Thanks for sharing!
Thank you soo much for this video, helps me explain to others what im going through for the past 15 years.
Our grandson has this so informative thankyou
Very clear description of keratoconus
Thanks a lot.... have done C3r surgery recently.
From India
Thank you for this explanation :) I have been dx with KC about 20yrs ago. The eye doctor gave me a hard contact lenses but it was so uncomfortable I only used it twice before I broke it. I have been going to my eye specialist every year to get my yearly exam and glasses and she tells me that my KC is surpricingly not getting worst, its getting better. Anyways I just wanted to share my story, thanks.
Oh and by the way my father and 2 brothers has KC as well.
I got diagnosed 4 years ago. I first noticed I had vision problems in 2016 and doctor just prescribed glasses and it was fine. Within 3 months there was a drastic increase in power, so I went to a different doctor and they gave me, guess what, glasses. 4 doctors before I was suggested a specific place by a friends to realise it was KC. It was then I realized how much I was rubbing my eyes. After I was told, I found myself about to rub eyes 10-12 days day. I stopped doing so, my eye sight has only increased once in the past 3 years. Hopefully nothing else with change and I’ll be able to live my life with the power I have now and it doesn’t progress anymore.
I was diagnosed with this yesterday, my left eye went from 20/30 to 20/60 in a year, and my right eye is in the early stages.
I’ve never seen so many people with my same condition and it’s honestly. Relieving!! I got diagnosed with kc in early high school in 2016/2017 and was fitted with sclera contact lenses a little after that. The only other person I knew with this eye disease and contact type was my sister but she has it faaaar worse than I do. Like bad in the sense that she does not qualify for Crosslinking or corneal transplants unless in an extreme emergency. Like 2 years ago I had crosslinking done on my right eye cuz it was way worse tha my left one and my vision eventually got better than my left I think. I just turned 20 a couple months ago and have had sclera contact lenses for a couple years now and I’m a stupid young person taking my vision for granted and slept a lot with them. I’m now dealing with a corneal ulcer because of it that could rlly fuck up my vision for the future in my right eye. I’m uninsured on top of that so that’s great! we’re just kinda waiting around until I see if I qualify for Medicaid. But I’m really scared bc it’s not a bacterial infection and they don’t know what it is right now. my right eye has been immensely irritated on and off this week since my appointment to actually Do something about it is this Friday and it’s heavily hindered my ability to actually go into work, which isn’t helping for the cost of doctor visits >_> So while most people in this comment section are older and have started wearing the contact lenses recently, I trust you’re not stupid like I am, please take them off when you go to sleep!!!! Im young and just don’t rlly think about future health issues(even tho I really should to be honest, I’m not the Most genetically Healthy individual) so I obviously thought it wasn’t That big of a deal BUT IT IS. Anyways lol yeah that’s my little keratoconus story. It’s nice to not be Alone in this !
Wow, I'm so glad to know that the comments here are a place for people to connect with one another. It's unfortunate that you ran into those issues, but I really appreciate you sharing it here and sharing that warning with others.
Thanks so much for sharing this! I hope your eye starts getting better ASAP!
Otherwise, as you noticed, you are NOT alone. Thanks for being here.
I just found out last year that i have it in both eyes. I just had crosslink surgery on the right eye and getting it on the left in November.. i have to now have hard contact lenses.. thia videos and channel has been very helpful and informative
Diagnosed with KC in 2018 and my vision deteriorated super quick. Had a cornea transplant 6 months ago in my right eye. 😭
How are you now??
Please what happened to you the tell us
Had a Tg-PRK+CXL two monts ago,so much better now,20/20 in one eye and 20/40 in the second one,steel have haze in one eye for the moment.
Definitely got my surgery it was worth the money had it early in my 20s I still need special glasses ( which I’m using ) and I see
I have both eye keratoconus
But it was now fine by C3R
Now I just go some regular check up once in a month
explanations is accurate and clear
!
Great video and comprehensive, concise explanation.
I just stumbled in this video here in hospital laying in a bed after my first corneal transplant from keratoconus. My condition led me to strabismus too. I have hope though am truly scared for what the future holds. 😢
Awesome video! I do rub my eyes once in a while but I don't rub on the eye lids, more around the orbital from the bridge of the nose, to the eyebrows and around.
Your content is really amazing. I have a suggestion, I believe it is also great for you to talk about NEVUS OF OTA. A lot less people have this, so people really do not know what is when they see it and assume a person with this birthmark has vision problems; When in actual fact, it is just bluish pigment on the eye surface. Kind regards,
thank you.
Thanks for giving greater information on KC condition. I am suffering for the last 23 years. Trying to manage with gas permeable lenses. By the grace of God, so far so good, but do have concerns if any negative changes will happen in future 🤔
I was just diagnosed with Keratoconus in my left eye. They have ordered one of those big hard Scleral contacts that you mentioned. They said it will take over a month to get. It has resulted in me seeing a lot of ghosting/double vision in just my left eye. My right eye does have blurriness but no ghosting.
I ve had it for 20 years almost.
Rush and book your cross linking as it can progress so quick that 6 months can make a huge difference.
@@ausmate5235 Ill be sure to ask my doc about it.
I went from RGPs for 40 years to sclerals…always rubbed my eyes to the point I got corneal scarring. Went to sclerals two years ago..AMAZING and vision is better! Have patience..the fitting takes awhile! For fill…I use Nutrifill which is so much comfort than all the other products! Plus sclerals for KC is considered medically necessary..insurance should cover it! Best wishes!
@@cj9667 You have been wearing contacts for 40 years? I didn't even know contacts has been around that long. I'm 40 years old. But anyway, thanks so much for telling me all this great info! Very nice of u. My insurance already said they will cover it, which is good because it will cost thousands of dollars!
@@escott1981 RGPs rigid gas permeable aka hard contacts. Switched to sclerals two years ago! What a life changer!
Ahh I found this channel years ago when I first diagnosed. Nice to see another Kc video (:
Thank you so much Jocelyn! I hope to keep building out the playlist to provide a nice guide for anyone who gets diagnosed. How are you?
@@DoctorEyeHealth Better, thank you! I had cross linking done on my left eye and keeping up with my doctor on my right! My right eye does have kc that hasn’t progressed so I’m just on glasses for now! I try to ask what I can to my doctor but your videos definitely answer some questions I forgot to ask! Always a treat to learn something new!
I have this condition since 2017
Nice video been diagnosed since 2010
Please please do a video on keratoconjunctivitis! I have this and I’ve never seen a good video on it 😢
Do you know what type of keratoconjunctivitis you have? Is it Atopic? Sicca? Epidemic (EKC)? Neurotrophic? Herpetic? ...as I am writing this I realize I may need to make a video going over all the possibilities.
@@DoctorEyeHealth I’m not sure. I was just told I have blepharokeratoconjunctivitis. I’m a 22 year old female. I’ve been on ikervis and dexafree eye drops for months, I wasn’t told anything by my eye doctor, he has no time for me 🥲🙁 thank you so much for your reply. I watch your videos all the time so it means a lot.
I think I made mine worse on my left eye when I would rub my eye while sleeping. Before I was diagnosed with keratoconus, the rubbing would happen once or twice a year. It was probably eye allergy. Eventually when I woke up, I'd look in the mirror and my eye was blood shot red from rubbing so hard. I would put a cold compress on my eye and go back to sleep.
This touches my diagnosis and I’d be happy to learn more of the latest treatment/control.
While at it i was recently diagnosed with Central serous retinopathy (CSR), I’d be glad if you shade more light to this condition also.,It’s relation to KC and general information it’d be great. Thanks.
Looking forward to the next episodes.👌🏽
Thank you so much for these videos! I have this disease myself and your videos help me understand better the problem. Unfortunately, I couldn't find good videos like this in Portuguese (my native language). Can I translate this video to Portuguese? I believe it will help a lot of Brazilians that do not speak English to get a better understanding of keratoconus.
Was Diagnosed with KC in both eyes at age 27 October of last year. went through with Crosslinking in the worse eye (L) it's been 5 months since my uncorrected and corrected VA with glasses is crap much worse than pre-crosslinking. thankfully I am using RGP for my vision correct it's giving me 20/15 vision with some residual aberrations like ghosting, starburst, halos but my vision is 1000 times better in RGP than without it. Tried Boston PROSE scleral lens too but vision is pretty much or maybe slightly better than RGP but it's too expensive will be keeping that as an option down the line.
I am from India and I am also keratoconus Patient and doctors have done a c3r surgery to correct the problem
Was diagnosed with keratoconus when i was 10 been through 3 corneal transplants and two days ago got prk done on my right eye because the left eye has too big of an astigmatism vision so far been good on my right eye after two corneal transplants on my left eye and one done on my right eye
I was diagnosed with keratoconus in glaucoma around 8 years ago.
I find these videos very informative .
When are you planning to release the crosslinking video? I'll be watching!
It may be a little bit because I am coordinating with my surgeon and a patient who is willing to star in it.