Gastroparesis FAQ: Learning to Cope with Gastroparesis
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- Опубликовано: 16 июл 2024
- Crystal Saltrelli, Certified Health & Nutrition Counselor and Gastroparesis-Patient-Advocate, answers your gastroparesis questions every Friday. This week: tips for coping with the mental challenges of living with gastroparesis.
www.LivingWithGastroparesis.com
After being diagnosed with GP last year, it’s been a difficult journey. Finding quality information about GP has been really hard, but my dietician led me to your book which has been probably my most valuable resource in dealing with GP and finally finding some foods I can tolerate. I’m really happy I’ve discovered your vlog. I really needed to watch this video. Hearing you talk about these everyday struggles makes me feel so much better. Hearing someone talk about the same problems really helps me put it in my head that I’m not crazy or overreacting, it’s all real and finally there’s someone else who knows what it’s like. I can really relate to the part about thanksgiving dinner, just thinking about how this last thanksgiving went. What if instead of fighting my reality I had accepted it? My holiday would have gone over much better. I really like the mindset of “just because I can’t eat thanksgiving dinner this year, doesn’t mean I can’t next year”. I find myself stuck in this cycle of “accepting” it’ll be like this for the rest of my life but I now see that this isn’t accepting, this is still fighting it.
Thank you so much for putting your information and your story out there.
I'm trying to accept it, but it's not easy.... Its only a month knowing what i have, which is better than not knowing. Being a busy mom of 3 teenagers and full time nurse coordinator running an insanely busy L&D unit, I feel like my world has been turned upside down. I've always been the strong one. I need to learn to be stronger than gp, I need to learn to live well with this. Right now, i'm exhausted.... :( Keep posting your videos, they are teaching me and helping me so much. Thank you
Truly excellent video. I agree with you. When I accepted that I have GP, it was very freeing. Accepting it, and learning to live well within the confines of my restrictions has opened me up to enjoying my life again. And I was able to figure out ways to travel with my family overseas and enjoy it, able to enjoy nights out with friends even when nothing is served that I can eat - better when there is, but I now just bring something if I'm unsure - the time spent together is most important.
Love your comment. That’s what I’ve being trying to do
I am 66 yrs old and developed gastroporesis a year and a half ago. I am listening to all your advice.
Sorry you have gastroparesis. Is it a result of diabetes or Parkinson's? I have gastroparesis from Ehlers Danlos syndrome.
I don't have diabetes or Parkinsons. Dr. Doesn't know how I got this. Idiopathic.
@@lovewinter8497 Hoping the doctors can find a good treatment plan for you. Mestinon helped me a lot. Domperidone or Betaine Hydrochloride are two other medications that have helped others. The Betaine is over the counter. Parasym P!us is over the counter, and is similar to Mestinon.
Other possible causes of gastroparesis could be damage to the vagus nerve, adhesions from abdominal surgery, pelvic prolapse, or sometimes it's idiopathic as you mentioned. I have digestive motility issues and gastroparesis from Ehlers Danlos syndrome, but that's a genetic condition whose symptoms tend to show up earlier in life.
sometimes low stomach acid which decreases as we age(67 year old here) I take hydrochloric acid with protein and digestive enzymes,..keep positive and keep researching. this girl is great
Thank you for your honesty. I have been battling this in my head. I really appreciated you pointing out that the really restrictive days aren't forever we just have to be willing to listen on the days our body demands it and then celebrate the ones where we can, eat a small amount of something tasty. As a lady who is a bit of a foodie and loves to try new things, it's been hard mentally to say no when my body doesn't want to let me eat something. Having a severe/ chronic issue getting my bowels to move has been a double whammy. I had to have an emergency bowel resection after a botched surgery that almost killed me and My body hasn't been the same since. Thank you for your encouragement.
Just what I needed today. This is all new to me. It hasn't been hard on only me, but on my boyfriend too; not because of the physical limitations, but because of my poor outlook on things. Threw myself a bit of a pity party today if I am to be honest. After watching this video I have decided to take my lemons and make lemonade!
Thank you for this. I have been feeling very overwhelmed with it all.
Thank you for this outlook, Crystal! This is not an easy thing to do but the alternative is so much harder.
thank you so much for posting this.. i think i'm going through this right now.. looking for other answers when deep down i know the truth
Hi Crystal, I just found your channel tonight, I commend you on dedicating your time and knowledge to the world of web. I too have GP due to Median Arcuate Ligament Syndrome (Mals) Have u heard of it? Im almost 50 and a Navy Veteran and I agree with you about "In the moment". It is rough at first because eating is such a big part of socialization. I feel for everyone who suffers from this or any health problems, God Bless!! TY CS!
Do you get dysautonomia or POTS with your MALS? If so, have they treated that and your gastroparesis with Mestinon?
When you started talking about how much you fought it, I started crying because that's all I've been doing for the past couple of years, and especially right now. It's ruining my life and I really don't know how to deal with it.
How are you today
I watched your video last night it gave me a entire different mind set for this illness. I am accepting that I have GP but just managing each day not weeks or months from now. I am weak angry sad and hungry all the time but I accept that now because of of your video advice. I am going to get a scooter now to help me remain mobile. I am also going to accept a feeding tube the next time my doctor says i need one and keep going and dealing and accepting. Thank you for your videos. They really help me to deal with this illness.
Brutalforceuk, I feel for you and wish you the best.
This video is making me look at my Gastroparesis in a whole new way.......I can't eat solids at all. I was just in the hospital because my stomach is now starting to act up with liquids.....even with water. They tried a GI cocktail, Zantac, Zofran, a few other meds I can't remember.....and none of them worked, but they sent me home in pain because they said they couldn't do anything to help me. But watching this helps a lot :)
Sorry that none of the medications helped. Researchers have recently repurposed the vagus nerve stimulating medication Mestinon to treat gastroparesis. Have they tried that one with you yet? I'm thankful that my doctor discovered that one.
@@Dulcimerist wow i didn’t know about that medication
@@Sofia-te4dp Mestinon has been a miracle cure for my gastroparesis, and it's also done great to treat my POTS/dysautonomia. It's a 75-year-old medication that has been repurposed by Mayo Clinic and other cutting edge medical research centers, so only gastroenterologists who stay up to date on the latest treatment innovations are prescribing it. Thankfully I have a good doctor who continues to learn and expand their knowledge in the field they practice.
thank you.i have been so bitter and overwhelmed about it and just frustrated that my body just seems to be fighting me every step of the way.
I can relate to what you wrote. Sorry you've been going through that. My gastroparesis is caused by a connective tissue disorder called hypermobile type Ehlers Danlos syndrome, which causes gastroparesis, dysautonomia, chronic pain, fatigue, and a lot of other stuff. My body seems to fight me constantly as well.
Have they tried treating your gastroparesis with Mestinon? It's an older medication that gastroenterologists have repurposed to treat gastroparesis and digestive dysmotility.
I go to God and the Bible - which always tells the truth, even if its truth we don't like. That's what I prefer - keep it real and honest. As said, if others can't take you not being happy all the time, that is 1) Delusional and unrealistic, 2) Harmful and unhelpful, and 3) if others can't take you being sad or angry or frustrated, that reflects more on them than yourself and the good thing is as long as we don't sin doing it, its okay to be angry or sad. Thank you God for His truth!
I think it is the society we live in that makes thing more difficoult, they want us believe that we can have everything under our control and we can choose our destinity. I didn't find very difficult to accept my condition but there are people around me that think I gave up fighting. I don't understand I have a genetic condition that affect my muscles, obviosly I'm am not going to find a cure because there is none for any genetic condition, still some people can't tolerate this. I think people with this mindset don't have an easy life, even if they don't have an health issue, they will struggle with other problems. I am spending lot of time try to learn how to manage my condition and my life is much better now
Sorry you're experiencing that. I have a genetic condition called Ehlers Danlos syndrome, which causes a lot of systemic health issues. Gastroparesis is one of them. Have they treated your gastroparesis with Mestinon? It also improves muscle tone. It's helped me quite a bit.
Just found out I got this among auto immune diseases,
ostio,im a mess
and being crazy don't help,
I wish I had only found you B4 now! Now I am with brutalforceuk the machine just seems as if it is making me feel sicker.
Hell is starving every single moment of the day because each time you drink, or eat, it comes straight back up. No matter if its tiny portion, lowest fat, lowest fibre you can find, youve tried all the meds, had all the tests, read the books..ect ect. Acceptance is not the hardest part imo, the hardest part is living a normal life with "severe GP" which is impossible. Notice how i said "normal". Theres no normality in severe GP at all. If you have mild or moderate GP then your on a total differ