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  • Опубликовано: 23 окт 2024
  • ❤️ May is ALS Awareness Month. Altimate Medical and EasyStand is proud to present a sneak peek of Jacob Harper’s standing story. 🎬 No White Flags: ALS Warrior Jacob’s Standing Story. Stay tuned for the premiere on May 24th to watch Jacob’s full standing story and how you can help support ALS Awareness Month and further ALS research! 📸 @teamjacobwv
    On March 16, 2022, Jacob was diagnosed with ALS at 23. Jacob, now 25 years old, is currently the youngest West Virginian living with ALS. His diagnosis is a very aggressive genetic version caused by a FUS gene mutation. The life expectancy of this ALS version is 1 to 3 years, however, In May of last year, he participated in a clinical trial at The Ohio State University, Columbus, OH. OSU is on the front lines of developing some incredible treatments which target these specific gene mutations.
    Jacob remains an enthusiastic outdoorsman who enjoys activities such as off-roading, hunting, and spending time outside. Since being diagnosed with ALS, he finds solace in standing outside in his EasyStand Evolv, basking in the sunshine and nature. Learn more about standing technology at:
    EasyStand.com
    TeamJacobWV is organizing their third annual “Wheelin’ for ALS” off-road adventure raising awareness and funds to help support the study of affective ALS treatments namely, The Ohio State University‘s neurology department, Marshall University’s ALS Clinic and Racing for ALS. Check out @teamjacobwv for more info! ❤️
    #EasyStand #StandingMadeEasy #standingframe #Easystandevolv #EndALS #wheelinforals #nowhiteflags #nottodayals #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #OSU #supportedstanding #icebucketchallenge #RacingforALS #WheelinforALS #WestVirginia

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