My 76 year old father is 80 % confirmed to have L B D , he suffered bad hallucinations and paranoia over last christmas 2023, and stopped eating and drinking altogether, lost half his body weight in 6 months. Luckily those of the Swindon based Hodson Ward have been fantastic with him and have got him back to himself to an extent. His hallucinations stopped, back up to over 63 KG, eating drinking, Rivastigmine massively boosted his alertness. His physio regime means he can walk upstairs unaided. 6 months in hospital but will release soon whether its a care home or home with care. He has incontinence, still has very poor movement otherwise, alertness is hit and miss, but you can have a conversation with him now. Signed up for drug trials, could be years and still be mostly fine. Just a waiting game really, but medically speaking he is doing good for now. Just have to bless each day really.
It's encouraging to hear that your father is making such remarkable progress with the support of the Hodson Ward team and his treatment regimen. Keep cherishing each day of improvement. ❤️
@@MedicalCentric yea, it was kind of touch and go for a while before the rivastigmine, he was declining fairly swiftly again, essentially becoming non-verbal altogether. His cognition scores were as low as 17. This could ultimately be the out come in a few months / couple of years time, so just have to bank the drug trials pay off. He was in BATH RUH before, they treated him very poorly. He had initial medical attention, then essentially left to rot, suffered terrible falls, dropped to 49KG only given slithers of food to eat , left in bed all day for month, was dreadful. When he got to hodson he couldn't even walk or stand unaided and needed 2 people side by side to take him to the toilet. So its a massive turn around for him really.
My mother has recently been diagnosed with this and Parkinsons. Her condition has improved with medication. Sometimes like this evening on the phone she was as sharp as a pin, but other days she can be very muddled. She can fluctuate a lot. Go on a low carb no sugar Keto diet. Get blood sugar level and insulin under control. Hard to do when she is in a care home being served processed crap food and sugary drinks, eating a diet full of sugar and carbs the whole time.
My wife has passed but I wish that our GP's and other medical professionals would have been more aware of LBD symptons . It would have helped both of us greatly. Finally one day I told the doctor she really seems to have dementia of some kind, he examined her and said it looks like parkinsons and sent us to a neurologist who quickly identified LBD. After learning about LBD I realized the symtoms were there for the GPs and others they didn't pick up on it.
I'm deeply sorry for your loss. It's crucial for medical professionals to be more vigilant in recognizing the symptoms of Lewy Body Dementia, as early identification can significantly improve patient and caregiver experiences. ❤️
Месяц назад
My mom was not diagnosed. She started being sick when she was 49. Started like an insane headache. Then, she just sat there and wouldn't move. Then they said it's like she was depressed. That never went away. She sat there with her head down until her neck stayed that way. She was a strong a woman who took care of her entire family. But something happened. Then, she sat there for so long, her muscles fused. She couldn't walk anymore. Then, she lost her eye sight for the most part. She always remembered us until her last day. Her long term memory also stayed. But weirdly enough, if you brush her teeth now, she swore you never did. So we'd have to do it again, sometimes 3 times. Sometimes she claimed that people hit her, even though it wasn't the case. Before she died, she could not control her bowels or bladder. She just passed. She never forgot us. She never met my husband, due to different countries, but always remembered to ask for him and always told him she loved him. Remembered her grandkids and everyone else til her last breath. I don't understand it.
My Grandmother had this. Ik this video is simply scientific. But the actual picture is sadly much more graphic. Imagine someone who is pissed drunk while also being super high on LSD. That's basically what you get. Just an incompetent walking active individual with zero awareness of their surroundings while hallucinating. I remember many times our family having to Chace her her down the street, after she sprinted down the street naked while cursing at others or nothing. Being extremely violent like pulling knives on people for reasons that were hallucinate. Like thinking the couch was plotting her death and you had a part in it. And I'm not even joking even slightly. It's sadly exactly like that.
There were good days. Sometimes her helucimations would be more positive and positively euphoric. But for the most part, it was unpredictable to outright Madd. I wouldn't wish it on the worst of people. There is no crime in my eyes that deserves the suffering of the combination of the suffering of loss of control of reality and sense of safety in the mind, and being one who has to deal with it. Like real life Salvia. Literal nightmare.
My mom had symptoms similar to your grandmother, but she was diagnosed with paranoid schizophrenia. We, as her children, went through much pain and torture. May she RIP.
Going through this right with my mother… it is the hardest thing in the world to deal with. Doctors don’t know shit and my families support doesn’t exist. Having to deal with this is extremely mentally exhausting and so tuff
@@SEAofMARINA I too am going through it at the moment with my mum. Worst thing about it she thinks it's normal and is in full denial with it all. Tried getting her to hospital but she won't go. No one is helping me.
Honestly best thing you can do for him is to just be there for him, and try not to get too frustrated with him. My grandma had it for 12 years and just passed away but care for him as much as you can, if they seem more frustrated than normal like for my grandma it was either because she needed to relax so we puf on music or she was just hungry. So you kind of have to treat them as a child but still let them feel as if they have a say. its hard but telling you now you just have to make sure they have a lot of care because putting them in a home or something like that isn’t always the best
my dad took his life October 6th 2022 , at the age of 43. I'll spend the whole life running down the loop hole as to why. Wish we were able to look more into what was wrong with his brain.
Really sucks you went through it. rip. My dad is going through the early stages, but luckily has had fantastic care and medication to slow things, and there are drug trials available. Its a shame your father did not live to see these options, I wonder if some of them could have saved or improved his quality of life.
Yup it’s in people who take dozens and dozens and dozens of pharmaceuticals .. like vaccines/ cancer shots/ chemo/ radiation/ heart meds/ Tylenol/ etc etc etc
My 76 year old father is 80 % confirmed to have L B D , he suffered bad hallucinations and paranoia over last christmas 2023, and stopped eating and drinking altogether, lost half his body weight in 6 months. Luckily those of the Swindon based Hodson Ward have been fantastic with him and have got him back to himself to an extent. His hallucinations stopped, back up to over 63 KG, eating drinking, Rivastigmine massively boosted his alertness. His physio regime means he can walk upstairs unaided. 6 months in hospital but will release soon whether its a care home or home with care.
He has incontinence, still has very poor movement otherwise, alertness is hit and miss, but you can have a conversation with him now. Signed up for drug trials, could be years and still be mostly fine. Just a waiting game really, but medically speaking he is doing good for now. Just have to bless each day really.
It's encouraging to hear that your father is making such remarkable progress with the support of the Hodson Ward team and his treatment regimen. Keep cherishing each day of improvement. ❤️
@@MedicalCentric yea, it was kind of touch and go for a while before the rivastigmine, he was declining fairly swiftly again, essentially becoming non-verbal altogether. His cognition scores were as low as 17. This could ultimately be the out come in a few months / couple of years time, so just have to bank the drug trials pay off. He was in BATH RUH before, they treated him very poorly. He had initial medical attention, then essentially left to rot, suffered terrible falls, dropped to 49KG only given slithers of food to eat , left in bed all day for month, was dreadful. When he got to hodson he couldn't even walk or stand unaided and needed 2 people side by side to take him to the toilet. So its a massive turn around for him really.
My mother has recently been diagnosed with this and Parkinsons. Her condition has improved with medication. Sometimes like this evening on the phone she was as sharp as a pin, but other days she can be very muddled. She can fluctuate a lot. Go on a low carb no sugar Keto diet. Get blood sugar level and insulin under control. Hard to do when she is in a care home being served processed crap food and sugary drinks, eating a diet full of sugar and carbs the whole time.
My wife has passed but I wish that our GP's and other medical professionals would have been more aware of LBD symptons . It would have helped both of us greatly. Finally one day I told the doctor she really seems to have dementia of some kind, he examined her and said it looks like parkinsons and sent us to a neurologist who quickly identified LBD. After learning about LBD I realized the symtoms were there for the GPs and others they didn't pick up on it.
I'm deeply sorry for your loss. It's crucial for medical professionals to be more vigilant in recognizing the symptoms of Lewy Body Dementia, as early identification can significantly improve patient and caregiver experiences. ❤️
My mom was not diagnosed. She started being sick when she was 49. Started like an insane headache. Then, she just sat there and wouldn't move. Then they said it's like she was depressed. That never went away. She sat there with her head down until her neck stayed that way. She was a strong a woman who took care of her entire family. But something happened. Then, she sat there for so long, her muscles fused. She couldn't walk anymore. Then, she lost her eye sight for the most part. She always remembered us until her last day. Her long term memory also stayed. But weirdly enough, if you brush her teeth now, she swore you never did. So we'd have to do it again, sometimes 3 times. Sometimes she claimed that people hit her, even though it wasn't the case. Before she died, she could not control her bowels or bladder. She just passed. She never forgot us. She never met my husband, due to different countries, but always remembered to ask for him and always told him she loved him. Remembered her grandkids and everyone else til her last breath. I don't understand it.
Super clear illustrations and explanations with real life examples
Glad it was helpful!
RIP Robin.
My Grandmother had this. Ik this video is simply scientific. But the actual picture is sadly much more graphic. Imagine someone who is pissed drunk while also being super high on LSD. That's basically what you get. Just an incompetent walking active individual with zero awareness of their surroundings while hallucinating. I remember many times our family having to Chace her her down the street, after she sprinted down the street naked while cursing at others or nothing. Being extremely violent like pulling knives on people for reasons that were hallucinate. Like thinking the couch was plotting her death and you had a part in it. And I'm not even joking even slightly. It's sadly exactly like that.
That is terrible and nobody deserves to deal with that or try to help someone who has it
There were good days. Sometimes her helucimations would be more positive and positively euphoric. But for the most part, it was unpredictable to outright Madd. I wouldn't wish it on the worst of people. There is no crime in my eyes that deserves the suffering of the combination of the suffering of loss of control of reality and sense of safety in the mind, and being one who has to deal with it. Like real life Salvia. Literal nightmare.
My mom had symptoms similar to your grandmother, but she was diagnosed with paranoid schizophrenia. We, as her children, went through much pain and torture. May she RIP.
Going through this right with my mother… it is the hardest thing in the world to deal with. Doctors don’t know shit and my families support doesn’t exist. Having to deal with this is extremely mentally exhausting and so tuff
@@SEAofMARINA I too am going through it at the moment with my mum. Worst thing about it she thinks it's normal and is in full denial with it all. Tried getting her to hospital but she won't go. No one is helping me.
My dad has just been diagnosed with this
Sorry to hear that, I wish him good luck with his treatment
@@MedicalCentric thank you
Honestly best thing you can do for him is to just be there for him, and try not to get too frustrated with him. My grandma had it for 12 years and just passed away but care for him as much as you can, if they seem more frustrated than normal like for my grandma it was either because she needed to relax so we puf on music or she was just hungry. So you kind of have to treat them as a child but still let them feel as if they have a say. its hard but telling you now you just have to make sure they have a lot of care because putting them in a home or something like that isn’t always the best
@AidenSfeir yea he is exactly like a child now he will say nasty stuff to my mom in public , it's hard.
❤❤❤❤ i wisch you a lot of craft. 😢
Thanks again
@brianlarson1952 Always welcome
🖐Present 🖐
I'm 100 pct sure my mother has this. It's hell
Sorry about that. Has she visited a doctor yet?
my dad took his life October 6th 2022 , at the age of 43. I'll spend the whole life running down the loop hole as to why. Wish we were able to look more into what was wrong with his brain.
Really sucks you went through it. rip. My dad is going through the early stages, but luckily has had fantastic care and medication to slow things, and there are drug trials available. Its a shame your father did not live to see these options, I wonder if some of them could have saved or improved his quality of life.
@@aaronbuffalo7769 hi Aaron, do ypu know which trials? Im 42 and getting diagnose with lewy body. Im situated in Denmark. Im desperate
Wow
I s worked in memory are facilities for year. They can say some hilarious stuff
Working in memory care is truly rewarding, and yes, the moments of unexpected humor definitely add a special brightness to our days!
Yup it’s in people who take dozens and dozens and dozens of pharmaceuticals .. like vaccines/ cancer shots/ chemo/ radiation/ heart meds/ Tylenol/ etc etc etc
It's important to consider the comprehensive medical history and medication profile for effective healthcare management. ❤️
Squizitzi that’s Italian for yummy 😋
no it's not
@@kme3894
That’s dark humor. 🤔
Squizitzi!