LIVING WITH DEMENTIA EP. 35 | MONEY TROUBLE

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  • Опубликовано: 12 янв 2025

Комментарии • 572

  • @LIVINGWITHDEMENTIAPODCAST
    @LIVINGWITHDEMENTIAPODCAST  2 месяца назад +50

    Appreciate your vote for Cooper!! A BIG thank you! You can vote once a day for free! It usually has you verify with your Facebook account because that's how they prevent people from cheating with bots! THANK YOU SO MUCH FOR HELPING US OUT!! IT MEANS THE WORLD TO US!! babyoftheyear.org/2024/cooper-vallacqua?fbsh=1&fbclid=IwY2xjawGPLqhleHRuA2FlbQIxMQABHRcjo_JE0NXocV5JIewxj8gvTmjFBo6QJ0XBzX7VH8zm2BM4PhnxZCD2iw_aem_NgDBCeLVleHFLR-feZqv1g

    • @tamiwigginton7137
      @tamiwigginton7137 2 месяца назад +3

      My thought are to have him tested for multiply lyme/ tick borne illness!! These bits cause all kinds of problems one being Parkinson and Alzheimer's!!! It does go to the brain!! I know you said he had a brain injury while in the military, but it's very possible to have both!!
      You have to go to a lyme literate doctor for this and all the blood being tested has to got to a specific lab!! Even specialist do not test for this!! Fyi.. good luck!!

    • @LIVINGWITHDEMENTIAPODCAST
      @LIVINGWITHDEMENTIAPODCAST  2 месяца назад +14

      @@tamiwigginton7137 we were fortunate to have an amazing doctor who did test for this back at the beginning! Just a reminder Jason does not have Alzheimer’s, etc His dementia is being classified as from CTE Chronic Traumatic Encephalopathy from the brain injury he suffered. Of course we will never 100% know until he passes.

    • @purplephoenixartbymicheled9298
      @purplephoenixartbymicheled9298 2 месяца назад

      😊 he's a Cute pie Voted for Cooper
      So your Beautiful Families can be closer together.
      I know the feeling being the only child me and my husband lived in Florida and it took us many years to be able to move closer to Mom / Dad Because I knew in my heart they were going to need me one day.
      Me being a caregiver/ CNA
      Working along side of at that time.
      Yes I miss Florida born and raised there but I had to do the right thing in my heart. Xo Xo

    • @AmyMiller-wl4dq
      @AmyMiller-wl4dq 2 месяца назад

      My nephew made it to the second round! Lucian is my great-nephew and is the light of our world! We were shocked he was even considered! Congrats on Cooper!!!

    • @BJ2020_
      @BJ2020_ Месяц назад

      @@tamiwigginton7137Yes, all testing always. One day fine, next day in hospital and dying. Yes, I smoked but does not come on overnight! 4 yrs later a middle eastern doctor recognized symptoms from his desert country. He found what no one a rare form of a disease. Maybe only 1000 max get it yearly in USA. If had caught sooner would of lived longer

  • @laurahart1554
    @laurahart1554 День назад +1

    My husband had a tbi 29 years ago. He was in a coma for 9 days. I believe we are in stages of dementia at this point. I have been taking care of finances and most other daily tasks, including all of the physical things. I had to cancel all our credit cards one Christmas as he was purchasing scam items he truly believed he needed. This resonates so strongly with me as he throws tantrums if I put the cabash on them. He will realize the problem one minute and make an unreasonable purchase the next. No one understands why we monitor him constantly. Family thinks he is just fine. Thank you for this video!

  • @RR-it2rt
    @RR-it2rt 2 месяца назад +161

    It doesn’t feel like Jason was showtiming in today’s video…he seemed very present. Thank you Jason, for choosing to expend your energy to help others. Your sense of humor was shining bright today!

    • @erica_0612
      @erica_0612 2 месяца назад +15

      I totally agree!

    • @ceoa
      @ceoa 2 месяца назад +2

      Totally 🙂

    • @sherrymacaroni5916
      @sherrymacaroni5916 Месяц назад +3

      I'm not trying to be contentious, but I think he is show timing. We have to listen to what he's often like behind the scenes, what they describe but don't show. And then realize they pick an optimal moment of lucidity to film. And Jason works a little extra hard to put across a good message using humor to keep things upbeat. God Bless All. It's never too late for a miracle, Lord Jesus. Either way, we trust you.

  • @mamalovesthebeach437
    @mamalovesthebeach437 2 месяца назад +54

    You two are remarkable… For Jason to be able to sit there in a lucid moment and have these discussions blows my mind. If the military lift purchase wasn’t so outrageous and frightening, it would be hilarious! Not to diminish the seriousness of this, but my husband does not have dementia, but he buys very expensive equipment and things he does not need on auctions.🤦‍♀️ I wonder if it’s just a dopamine hit? Something that makes a human being feel excitement especially when other feelings are becoming more diminished or absent. When you talk about “the bad “, unless someone has cared for someone with dementia, they would have no idea how difficult it can get. Of course everyone is different. I will never forget my stepdad calling me in the middle of the night and my mom in the background, screaming my name and “help me!!!!” She was a modest, calm, natured lovely woman… dementia takes our loved ones away as we know them piece by piece. You look rested and lovely and your hair is so beautiful. It’s very important for caregivers to take care of themselves. Bless you both for talking about this from both perspectives… You are helping so many people. ❤❤

  • @5heinens
    @5heinens 3 дня назад +1

    from a family that is new to a FTD diagnosis, it would be really helpful to know the reality of the difficult things too. I so respect you both. Leslie for protecting the dignity of her husband and Jason for being willing to share. But this disease and the things we are learning are shocking and it would really help us to know what to prepare for. Agreed, conversation about it is plenty. We don't need drama. Its not about exploiting. So that all needs to be done tastefully and for educational purposes. Thank you both so much for helping us with this. I feel like I am putting on a little more armor each time I watch a video. Praying for you both.

  • @amadahyrose
    @amadahyrose 2 месяца назад +106

    It's amazing how Jason is still so brilliant yet compromised. Warmest prayers as you both walk this road. ❤️

  • @lynnloehr1566
    @lynnloehr1566 2 месяца назад +72

    Jason, this was a fantastic video, and it's so good to hear your perspective. You are so eloquent and well spoken and I am sure you help a lot of people. Leslie, you do such a good job of protecting Jason and keeping his dignity in tact. I am sure you have a huge job.

  • @gmedack
    @gmedack 2 месяца назад +92

    You two are a wonderfully charming couple. I can imagine what you were like before the onset of this disease. I have to say that your videos are hard to watch at times, as I feel so sad for the both of you. The amount of effort that you both make to get through this together is admirable, however. I do not think I have ever witnessed two people have so much love, loyalty and respect and commitment to their marriage. I truly admire both of you. Thank you for letting us into your lives.

    • @maggiemoo0328
      @maggiemoo0328 2 месяца назад +7

      Beautifully put, thank you ❤

    • @laurajeffcoat4731
      @laurajeffcoat4731 2 месяца назад +7

      YES I totally agree and understand. My husband hasn't been diagnosed yet but I know there's something changing. It's very lonely being a caregiver. You guys are doing a wonderful job explaining the different stages of onset dementia. Thank you both 🤗💓💕💞

    • @waterwalker9087
      @waterwalker9087 2 месяца назад +5

      Just can’t thank you enough for making this huge sacrifice to help others. Today I was especially helped when Jason explained that he becomes as a 2 yr old at times. How helpful that was to hear it spoken as a fact. It’s easier now for me to accept that is truly what happens and to deal with it appropriately as a caregiving relative. God bless you both! ❤

  • @lovinlife6630
    @lovinlife6630 2 месяца назад +49

    Leslie, you have such a sweet, fun personality. Jason appears to be highly intelligent and he has a wonderful sense of humor. You guys are such a fun couple, and I imagine you have had a lot of really fun times together over the years.

  • @Golfgal4661
    @Golfgal4661 27 дней назад +8

    The love you have for each other is so evident. Leslie I can’t imagine how hard this is for you.

  • @mamat792
    @mamat792 2 месяца назад +98

    Cancel PayPal and hide your credit cards. But the aircraft loader 😂 as a retired AF vet of course you needed that. Love your laughter.

    • @thenarrowgate6883
      @thenarrowgate6883 2 месяца назад +2

      Agree on returning as many things that are piling up as possible, and hopefully get refunded. Re-Assign the PayPal account to a debit card that you can control the balance/spending limit with a monthly allowance/budget?
      Praying for you both with much much love🙏🏻🙏🏻🙏🏻❤️❤️❤️

    • @thenarrowgate6883
      @thenarrowgate6883 2 месяца назад +2

      Return as many things that are piling up as possible, and hopefully get refunded. Re-Assign the PayPal account to a debit card that you can control the balance/spending limit with a monthly allowance/budget?
      Praying for you both with much much love🙏🏻🙏🏻🙏🏻❤️❤️❤️

  • @erica_0612
    @erica_0612 2 месяца назад +31

    I love Jason’s humor, and I love the humor between you two. Laughter is the best medicine for sure! You are such an awesome couple.

  • @judyabernathy80
    @judyabernathy80 2 месяца назад +42

    Jason, you are SO adorable! You crack me up every time you are on video. I give you both so much credit for allowing us to be part of your journey. It helps a lot of people. God bless you both!! ♥️🙏🏼♥️

  • @peggydrawspictures
    @peggydrawspictures 2 месяца назад +42

    love the way he laughed when you said "a used urn". laughter is such a gift.

  • @stacieboucher1570
    @stacieboucher1570 2 месяца назад +35

    Thanks for sharing! I couldn’t do this during the hard times without seeing how you handle, and with humor. I get so frustrated! My husband is 67, and five ys in. He just did the pay pal buying the other day after I thought I had everything locked down. He bought two flame throwers to light his pipe! Jason’s perspective is valuable. Before I knew he had dementia he waisted thousands of dollars on scams, deals, wandering around the country ( flying from Hi to the mainland) till he got lost and totaled his rental car. We’re broke now! Glad you caught it and have some stuff to show for it! Love you two, appreciate you, and pray for you whenever you pop in my head. Aloha, Stacie🌺💖✝️

  • @DebraWright-r3e
    @DebraWright-r3e 5 дней назад +1

    I was watching your video and thinking of my husband. He's much older than Jason (71) His short term memory is awful ...but very smart in his long term memory. My heart goes out to you ❤️🙏

  • @gailmiller5226
    @gailmiller5226 2 месяца назад +36

    Jason did an awesome job explaining. Leslie you are amazing ❤️

  • @DJ-rx5lz
    @DJ-rx5lz 4 дня назад +1

    I love that Leslie can STILL LAUGH at Jason--the Bad is knowing it's never going to get better but you both keep your chins up

  • @deborahjobe7841
    @deborahjobe7841 2 месяца назад +18

    As one living with a dementia (FTD/CBS), You and Jason did an amazing job with this one. My husband and I changed our financial account situation. I now have a small account where I can get what I want and he owns the major account. It allows me to purchase small items important to me without compromising our major funds,

  • @marciahellen6290
    @marciahellen6290 2 месяца назад +16

    No need to show the hard days, we know they happen. Thanks Jason for making us laugh and weep for the man you were. Much love to you both.❤

    • @SharonKBM
      @SharonKBM 2 месяца назад

      Yes, I agree. There is no need to show the hard days. It is very sweet and admirable that Jason thinks you should, but we really do not need to see what is happening.

  • @nancyvold1470
    @nancyvold1470 2 месяца назад +9

    Jason is such a smart guy...this really shows what a wonderful sense of humor he has. Leslie, you are the best caregiver and loving spouse - I hope you two have many happy times ahead. On the not so good days, I pray that God gives you the strength to deal with whatever is ahead.

  • @kathleenmetcalf6767
    @kathleenmetcalf6767 2 месяца назад +33

    Wow Jason is still very quick-witted - s brilliant man!

  • @pattyrobertson3886
    @pattyrobertson3886 2 месяца назад +20

    You are so lovely! When you can laugh at yourself ( because it really was funny!) That is good medicine I chuckled myself too! Im glad the people who were selling this understood what had happened! Thank you for your vunerability and for caring about others Leslie and Jason.

  • @ggeise1467
    @ggeise1467 2 месяца назад +11

    Thank you both for sharing what you choose to. The fact that you don't share the absolute train wreck part is totally fine. You are navigating Jason and your lives and allowing and promoting Jason's dignity. ❤

  • @drinajgb2437
    @drinajgb2437 2 месяца назад +43

    My husband never went through this. He is stage 6 mixed dementia. Started at 52 acute viral encephalitis then has slowly progressed into dementia. He hates computers and phones. Has no interest in any sort of buying which after hearing this has been a blessing. Weird thing is he thinks he’s getting better. Not. A lot of apathy exists and has from the day he awoke from coma. A side effect of vascular damage.Not a lot of interest in the world in general. Thinks everything is ok. Lonely describes this for sure. Not much interaction. No intimacy. Year 15.

    • @LIVINGWITHDEMENTIAPODCAST
      @LIVINGWITHDEMENTIAPODCAST  2 месяца назад +11

      Hugs! 🤗 I completely understand 💙

    • @michele21auntiem
      @michele21auntiem 2 месяца назад +10

      i get it. very lonely.

    • @autiemuse
      @autiemuse 2 месяца назад +9

      My husband is autistic and I have lived for.many years with similar apathy and isolation. You are not alone ❤

    • @redsandrock8073
      @redsandrock8073 26 дней назад

  • @dawncore9863
    @dawncore9863 2 месяца назад +19

    You two are so cool together! Y'all have NO IDEA how much these videos help my family! Please continue these chats for as long as you're comfortable doing so!!
    PS we voted!

  • @keresabritton4727
    @keresabritton4727 2 месяца назад +16

    This is one of the most helpful videos you have done. Jason, thanks for your vulnerability in sharing. For those of us who work with dementia caregivers, these kinds of conversations are very helpful for understanding your day-to-day challenges. I would never have thought that there would be a need to hide the credit/debit cards. I love your transparency - both of you!

  • @mandiesmaison458
    @mandiesmaison458 2 месяца назад +20

    This video for your interaction alone, was lovely, Jason was on form, what a ‘unit’, what a team you both are! Thank you both.

  • @evetorresola376
    @evetorresola376 2 месяца назад +8

    Def voting for Cooper. And I don’t need to see the bad. My mom has dementia and I see the bad the good and the ugly. Thank you for your videos and appreciate them. Leslie God has you and Jason too. One day at a time. That’s all we can do.

  • @sharongraham4444
    @sharongraham4444 2 месяца назад +16

    Thank you for saying it feels lonely. I think that's one of the hardest part of being a caregiver

  • @maryf3219
    @maryf3219 2 месяца назад +45

    My brother has Lewy Body dementia. He went through that buying stage. He has a pile of "treasures" too. He's far beyond that now. He can no longer carry on a meaningful conversation. He gets sundowners frequently. Recently, he talked non-stop nonsense for 22 hours straight. He sometimes moves furniture all around or piles it up. He always wants to go see Mom and Dad who have been gone for 30 years.Fortunately, through the VA, my sister in law has a very good support group and help with caregiving. This is a horrible disease. I miss my brother.

  • @BecomingaGreenstalker
    @BecomingaGreenstalker 2 месяца назад +23

    Love it so much that you two can laugh and giggle with each other still!❤

  • @lindaSee89
    @lindaSee89 2 месяца назад +15

    My husband after several years finally admitted his cognitive decline yesterday with the doctor.
    My husbands thing was buying massive amounts of clothing for years. So many clothes with tags.
    When covid hit something slowed him down. Thank goodness.
    Thank you Jason.
    Jason I plan on being cremated. If you have the urn, I would buy it.
    Have your wife reach out to me.

  • @ginarankin295
    @ginarankin295 2 месяца назад +14

    I think your videos are extremely helpful and I appreciate that Jason is even willing to do it. You don't have to show the bad and I think most people will understand that.

  • @redeemed5554
    @redeemed5554 2 месяца назад +8

    Jason and Leslie, I love you guys, the chemistry between you is a beautiful thing to watch ❣ Thank you so much for sharing your lives with us. May God's presence fill your hearts and home. ❤❤

  • @janes8863
    @janes8863 2 месяца назад +20

    No one has the right to criticize or judge anyone's life unless they are living it. They have no idea what is happening unless they are a part of it. Wishing you and your family the best.

  • @marylawson4492
    @marylawson4492 2 месяца назад +37

    I understand the loneliness.
    When my husbands dementia got worse he lacked the compassion, he once had so much of. I so missed that side of him.

    • @Gwaycee
      @Gwaycee 2 месяца назад +3

      If it's ok, please constantly play him some good old hymns from Hymns of Faith or Golden Bells at low volume. They are played free on youtube. You'll see how his soul will calm down. My grandmother was really happy when she listened to the songs.

    • @tracyanderson3715
      @tracyanderson3715 2 месяца назад +6

      I miss my husband too. It’s like the man I married disappeared or died he’s not in there anymore and it’s Sooooooo Lonely

    • @laurahart1554
      @laurahart1554 День назад

      ​@tracyanderson3715 very true...

  • @wendygrant3873
    @wendygrant3873 2 месяца назад +13

    I love how candid you both are. I have questions about the aircraft loader.......I'm shocked that an average person can buy one with no questions asked. Again thank you for making these videos and being so open.

  • @DonnaAnders-w4d
    @DonnaAnders-w4d 2 месяца назад +20

    This was such an interesting chat today with Jason and Leslie. I know they have many struggles off camera but hearing them brainstorm together today was really helpful and inspiring. This has to be so very hard on both involved but it’s so good Jason will at times agree to discuss these issues to help other people. God Bless you both as you deal with this horrible disease.❤️

  • @missiris1234
    @missiris1234 2 месяца назад +13

    Cooper deserves my two votes. What a cutie. May you both enjoy him for many years to come

  • @in2phalanges
    @in2phalanges 2 месяца назад +18

    Jason’s sense of humor is still a kick in the pants !!!

  • @gailtester8749
    @gailtester8749 2 месяца назад +3

    Bless you both! My husband suffered Parkinson’s and Lewy body Dementia. His spending problem was political donations! It was crazy! He could not say no! I lost him last March after an 8 year struggle. Miss him so much! You two are so genuine and honest! Bless you, bless you!

  • @Jackiej24320
    @Jackiej24320 2 месяца назад +4

    I love the humour through all this and the honesty. I love also that it’s Jason that is discussing this. My mom has Lewy body with Parkinson’s and it helps so much to see people who can still laugh with what they are going through. It’s not something that you can just forget is there but the honesty and humour helps many going through these diseases . Not all our loved ones can be in the position to have fun conversations. Thank you.

  • @DrMSG59
    @DrMSG59 2 месяца назад +6

    Hi Jason and Leslie, you had requested to hear from anyone - who similar to Jason - is also fully aware that he (or she) is actively losing his/ her memory. I was diagnosed with Lewy Body Dementia last year, and like Jason, continue to be acutely aware of my short-term memory loss (my long-term memory is intact). My wife and I have watched these videos from the beginning. Interestingly, before I was diagnosed, I would answer your questions to Jason in the very same way that Jason answered each of them. I know that his diagnosis is now CTE; however, my own symptoms have tracked very closely with Jason's (I have visual and auditory hallucinations, tremors, restless legs and arms syndrome, and other autonomic issues). Yes, I am very much aware of my condition - and also I'm aware that it is progressing. So I fully understand why you would ask this question, as it is also incredulous to me that, despite the severity of my memory impairment, I am still aware that the memory loss is occurring (and I am declining). It is very strange -- but then again, what part of LBD is not? :)
    P.S. I thought of something that might help to explain the above: I have read that (at least in Lewy Body) insight is not meaningfully compromised, even though executive function, attention, and memory are impaired (that may or may not be true with CTE). If insight lives in separate brain center from memory, that may explain the phenomenon! -- and there I go above with the lengthy explanations - I used to be brief and to the point)! :)

  • @kookykreek
    @kookykreek 2 месяца назад +47

    My sister has frontotemporal dementia. I had to sell her house to pay for her placement. I didn’t know until I had to clean her house out, but she really went through this. She had 416 pairs of the very same style of jeans. 300 purses, plus others not counted because I threw them away. 77 of the very same shirt. 132 pair of Ugg boots. On and on! I am not kidding, I have PTSD from the experience. I sold her stuff because all this stuff and sooooo much more was unused. I couldn’t just throw it away. I did take all her cards away. Luckily, while she was still at home she didn’t have the wherewithal to figure a way around what I did. I do think people get a whole different idea of what happens behind the scenes because what is on video is the good times. However, I understand you keeping that to yourselves. I do Facebook lives with my sister. I do it to see the progression over time. It’s hard to notice when you see that person all the time. This year compared to last year is 😢.

    • @Jamcrackerr
      @Jamcrackerr 2 месяца назад +2

      I feel your pain as my 65 yo sister is 2 years in on vascular dementia diagnosis.
      It. Is. Heartbreaking.
      Godspeed🙏

    • @mandymorrow5473
      @mandymorrow5473 2 месяца назад +3

      I hope that giant sale brought in some funds to help with her care because I imagine it gets expensive!

    • @DiscernmentNow
      @DiscernmentNow 2 месяца назад

      WOW. 😢

    • @gonnabeok.
      @gonnabeok. 2 месяца назад

      Its not funny for you dealing with her purchases but I had to smile reading it. Horrible disease. Had 2 family members died from results of Alz. Have never been a carer tho.

  • @lesliedelp3565
    @lesliedelp3565 2 месяца назад +3

    Thank you for the wonderful wisdom! I recently started caring for my mother, who is in the throws of dementia, because my brother, her resident caregiver died. I am amazed at how exhausting it is to keep them safe when they are clueless as to how much risk they are dealing with! I could talk about this for days, suffice it to say, your videos are so helpful! Thanks!

  • @judithkoveleskie7476
    @judithkoveleskie7476 2 месяца назад +15

    Sorry some of the haters are back. You both are great and helping so many people. God Bless You ❤

  • @debpratt4692
    @debpratt4692 19 дней назад +1

    Leslie, my husband and I have become extremely attached to Jason and your story. This truly breaks my heart for both of you. I think you especially break my heart because you cover with your smiles and trying so hard to be positive. I KNOW your heart is breaking and don't know for a minute anyone with any compassion doesn't know what you are going through yet the sweet dedication you have towards your sweet precious husband. I cry everytime i watch your videos... no fault of yours.. I'm just heartbroke for what you BOTH are going through. Life just isnt fair and I am so sorry your life dreams are no more... so damn sad!! We LOVE you both and know you're in our thoughts and prayers. Sending you both love and hugs. Girl, you are a beautiful soul and know you are loved and SO cared about. ❤❤❤

  • @Shiryone
    @Shiryone 2 месяца назад +10

    TY Jason for the laughs....badly needed! I'm laughing with you guys. Gosh, spending issues can be linked to so many things...disorders, depression, loneliness, etc.

  • @Benintende1952
    @Benintende1952 2 месяца назад +18

    I understand the loneliness. My husband doesn’t isolate himself or freeze me out but it is the loss of our shared memories. Our wedding, our honeymoon, raising the kids, where we’ve lived and places we’ve traveled to - the memories of 50 years - just gone. Then there is also the loss of our shared decision making. Our “secret” jokes that only I remember now.

    • @jenniferm4928
      @jenniferm4928 2 месяца назад +3

      Yes, I worry about Leslie. Only she really knows the cost of what this has done to him.

  • @susanwisniewski6821
    @susanwisniewski6821 2 месяца назад +4

    Thank you so much for your honesty about your situation. Your offering help and comfort to so many people. Praying for you.

  • @lisakirby247
    @lisakirby247 2 месяца назад +31

    No need to show the bad, for those of us who have loved ones with dementia we see firsthand how the bad can be. Anyone watching that isn’t affected by this firsthand but has a friend or coworker going through it with a loved one, reach out to them and let them share their bad and it may help them by venting to you about it or it may help you be more understanding for the caregiver, loved one who has the dementia. This journey is a lonely one, it helps to have support groups yet it is hard to describe but the feelings of isolation at times is real. I can’t imagine what my loved one with dementia must feel.😢. Thanks for sharing Jason & Leslie🙏

  • @ElizabethDohertyThomas
    @ElizabethDohertyThomas 2 месяца назад +8

    That gap in private reality vs public persona is so, so freakin' hard. You are doing so amazing knowing that is a huge problem while also respecting your boo enough to not publicize his dark behaviors. 🙏

  • @ChristinaEFP
    @ChristinaEFP 2 месяца назад +12

    Hi guys. You have no idea how helpful you are to me. My husband has frontal temporal D. All so different now. Thank you to the both of you. As the wife I do understand you get it. Hard to explain. To someone who does not see him often
    Boy do I understand child behavior all the while trying to give him dignity

    • @christined2495
      @christined2495 2 месяца назад +2

      My sister had frontal temporal D she had been diagnosed at age 50…
      My heart breaks for you, sending prayers 🙏

    • @christined2495
      @christined2495 2 месяца назад +2

      First I want to say that Jason truly is something, he has such an intelligent mind even with his Dementia…
      My sister had Alzheimer’s frontal temporal and he was buying sheet sets, like maybe going back and forth to the store in one day and bought three sets, also candles, we found at least 100 stored away in a closet,and dishes that nested … this was when she was not diagnosed yet, so she was still driving, and also before she was tested
      Voted for your adorable grandson, I truly hope he wins, he is precious

  • @Heather89Anne
    @Heather89Anne 2 месяца назад +20

    I love you guys! My admiration for Jason has been huge but after this it has gone way up. It's a given, Leslie, that I look up to you.

  • @sandrathompson3374
    @sandrathompson3374 Месяц назад +1

    Thanks Jason for putting your life out there for us.Leslie you are stronger than you think and I have nothing but admiration for you.I have been through this before.

  • @KenIvywood
    @KenIvywood 2 месяца назад +7

    My husband is no longer able to use computer so he is not buying things. He hardly talks and I agree that is so lonely. Good to see Jason doing as well as he can. 🙏♥️

  • @petra7322
    @petra7322 2 месяца назад +20

    I love the purchase of the giant loader, not funny for you, but it makes me laugh every time he talks about it. Leslie you are a gem🌷🙏🏻

  • @lynnolds
    @lynnolds 2 месяца назад +4

    I LOVE these videos! My good friend has a husband with early onset dementia (first diagnosed as Lewy body). I know we don’t see your “bad” days, but she doesn’t get what you do on the good days. You are a fantastic care giver!

  • @missyj3728
    @missyj3728 2 месяца назад +11

    There is no need to show the bad at all! No one would want tower bad moments put on the internet. I think most people know that the journey is hard. You handle sharing your journey with grace ❤

    • @stacieboucher1570
      @stacieboucher1570 2 месяца назад +4

      Maybe she doesn’t have to show it, but it’s helpful to us going thru it with our husbands to hear some of the other things he does. There is no manual for this!😢

  • @nukejets
    @nukejets 2 месяца назад +13

    You are both awesome. Thanks for sharing your story with us. I'm also diagnosed with mild dementia type unspecified. I struggle with wanting to buy things too. Ugh.
    Like Jason, I also started with a very high baseline IQ so I often don't appear that I have dementia. And I understand the cognitive fluctuation stuff and "showtime." It's very nice of you to share.

  • @susanburnett6123
    @susanburnett6123 2 месяца назад +2

    Jason is always so good to see you and I really appreciate this video today. I am 73 and I stay home a lot by myself. I tell you what I get so tempted to buy stuff off TV and off the Internet. It is just so hard to resist something new. It is always so good to see both of you.

  • @jandoherty5299
    @jandoherty5299 Месяц назад +2

    I’m so happy that you’re having a good day. You and Jason seem to be really having fun

  • @stephaniegamble3571
    @stephaniegamble3571 2 месяца назад +10

    Prayers for you and Jason ALWAYS! God bless you, praying for Jason's healing!

  • @bltlil
    @bltlil 2 месяца назад +3

    Talking about the hard things is plenty! We caregivers need encouragement, so your videos are perfect for that! Talking about the negative and hard stuff is enough to bring awareness cuz things will be different for everybody watching’s situation. Thank you for your openness today Jason! Cherish these moments!

  • @rondaowens4752
    @rondaowens4752 2 месяца назад +10

    Thank you Jason for the reminder to vote for your grandson!

  • @kathleenwoodbury7491
    @kathleenwoodbury7491 2 месяца назад +1

    Above all that I can’t imagine the financial ramifications of these unnecessary purchases. Leslie, God bless you for your love and sense of humor getting you through this journey.

  • @cathywarriner
    @cathywarriner 2 месяца назад +2

    "That's not a fair question " I love seeing Jason laugh , his whole face lights up 😊

  • @maryjanesheppard
    @maryjanesheppard 2 месяца назад +9

    God bless you both for sharing these issues. And it's so great that Jason still has his sense of humor, he's sooo funny!! Love the pipe! ❤

  • @bobbibuttons8730
    @bobbibuttons8730 17 дней назад +1

    I understand the issue with spending. I have ghastly depression and anxiety, my husband also has the same along with other medical issues. I spend when my anxiety has peaked or triggered by something and I then go on a rampage spending, usually on craft goods. My husband is auction sites, he buys silver of a particular kind and bless him, he loves buying jewellery for me. Sadly I spent our savings which then devastated me. We now live day to day instead of living our retirement in comfort. We both have brain fog, he gets muddled since he’s developed end stage kidney failure. Of course when that happened out of the blue I went on a rampage buying when he was in ICU for a month critically ill.
    I ramble 😞

  • @GaryPack-l4u
    @GaryPack-l4u 2 месяца назад +6

    This is very helpful thank you very much for making it possible to leave comments again. Both of you are doing an exemplary job of navigating this very difficult situation. I have Lewy body dementia, which is very similar to what Jason has. It is admirable how well you two communicate and maintain a sense of humor and perspective. There is no getting around the fact that any kind of dementia is terrible. Your faith is inspiring. Thank you for these videos.

  • @SoHappy20245
    @SoHappy20245 2 месяца назад +9

    You are an amazing couple. Thank you for sharing your journey, I have no doubt that you are helping many. God bless you both.

  • @darci_nicole
    @darci_nicole 2 месяца назад +11

    You are an example to me of a godly wife. ❤

  • @julievegh3744
    @julievegh3744 2 месяца назад +6

    Nice video and absolutely love your transparency. You two are helping so many people who really benefit from your real lives. Thank-you for sharing and caring. 😊

  • @premavida
    @premavida Месяц назад +1

    Thank you for keeping me as a follower despite spoken and unspoken debates in the past.
    Great admiration. Great lives you are both living. ❤

  • @joanb8489
    @joanb8489 18 дней назад +1

    It’s great to see you and Jason. I’ve missed seeing you two. I enjoy visiting both of you.

  • @mkatal8329
    @mkatal8329 2 месяца назад +7

    I had a hard day with my mom today and your video provided much needed cheer! I voted for your adorable grandson.

  • @PatriotMomof5
    @PatriotMomof5 2 месяца назад +6

    You have to have a sense of humor in situations such as what you are in. I love that you can laugh and giggle together, even though in the moment, I’m sure it’s very frustrating and difficult. I loved the aircraft carrier story. I remember when he bought that and you had to call them and tell them no we don’t really need that! The wetsuit and the urn are awesome as well! I got a good giggle. Keep smiling through the tears and leaning on God’s grace thank you for sharing. I’m sure there are many many people that are going through the same thing that are appreciating all that you’re putting out there that they can learn from.

  • @vickisturgill4792
    @vickisturgill4792 2 месяца назад +12

    Great video. So sad that this wonderful man is slowly disappearing. Thanks for sharing

  • @marydepuydt2610
    @marydepuydt2610 2 месяца назад +1

    Oh my goodness, you are my heroes tonight! My husband is doing this on Amazon. I believe he is well into the dementia thing although he has not been diagnosed, only because when I even mention it, he goes ballistic on me. Just knowing that I’m not alone helps so much! Thank you!

  • @AngelaMinor-k6k
    @AngelaMinor-k6k 2 месяца назад +1

    Love the two of you. I know you don’t show the worst and I love that you love and respect Jason that much. Prayers and blessings for you both.

  • @cherylmclemore66
    @cherylmclemore66 2 месяца назад +11

    Jason is hilarious! I absolutely love you two & I feel like I’ve known you forever. 💖

  • @backthebusup
    @backthebusup 2 месяца назад +2

    I, from a personal standpoint completely understand the struggle of caring for a loved one w/dementia. Said loved one has passed on. I really think it would be beneficial for your viewers to see a little bit of “the bad”. It would be like a window into your world Leslie, might be therapeutic for you. Bless you Leslie and all you do for Jason & the dementia community. Hugs 🤗

  • @KimberlyManuel-ee3ov
    @KimberlyManuel-ee3ov 2 месяца назад +6

    My thoughts and prayers are with you both. I love his humor. My best friend has had early onset dementia for 10 years now and she is 59. She shops constantly so her husband put her on a budget, she also does not remember the next day what she bought. She prefers to be alone and does not like eating with her husband either most days. Her long term memory is excellent so sometimes our talks are short and sometimes they are long. She now lives in another state so we talk by phone a few times a week, yesterday was a great day for her and we talked for 3 hours. I miss the young her so much but she is my sister from another mister and I always try to take the time to talk with her. I have my days where I am very lonely for my old friend pre-dementia. Thanks for your updates.

  • @nicgeorgiapeach
    @nicgeorgiapeach 2 месяца назад +1

    I’m always so blown away by your relationship. So amazing to hear Jason’s perspective and such a testament to how incredibly intelligent he is. Leslie, you are the epitome of a devoted and committed spouse. ❤

  • @ramonasmithson439
    @ramonasmithson439 2 месяца назад +6

    We went through this with my daughter's mother-in-law. We all lived together, and by the time we realized that she was doing this. She had spent so much money. She was giving money to every organization that sent her something asking for donations. The churches were really abusing her. So sad. They knew she had dementia and they were hitting her up all the time for money. Wish we had seen this video. 4 yrs ago.

  • @BellaBlue637
    @BellaBlue637 2 месяца назад +2

    Great video! The way you guys work things out to share, but preserve Jason’s dignity is wonderful. We really don’t have to see the bad. Your descriptions paint a vivid picture.

  • @pricedesign8805
    @pricedesign8805 2 месяца назад +9

    I think Jason is remarkable!

  • @lindaeshbach6494
    @lindaeshbach6494 2 месяца назад +4

    Yes Jason seemed genuine today
    It would be really hard to film him when he's having a melt down moment, actually it probably would just make him more mad or crazed. I certainly don't want to see you in that position, for your own safety. Love that you are doing this to try to help others. I myself worked in geriatrics over 40 years and Id say in the last 10 or so people were getting younger coming in with dementia. So they were stronger when they got an episode of anger and it wast pretty. Take care

  • @DarleneBonham-q7f
    @DarleneBonham-q7f 26 дней назад

    Thank you for giving us a glimpse of what life is like with a loved one with dementia. My aunt lived for 12 years with dementia, and her daughter kept her home with her until she passed (she was not early onset). I am sure it's a challenge to help others in this way and filter out the negative responses by "trolls" of the internet. Your channel is truly altruistic in that you both help complete strangers by showing us a glimpse into your joys and struggles. God bless you both and I hope you and your family have a very Merry Christmas.

  • @pamelalee5261
    @pamelalee5261 2 месяца назад +1

    Both of you are just incredible! Jason is so unbelievably intelligent and great at helping you explain things when he is having a good day. Even though we can't see what goes on every day I can tell Jason is so blessed to have you as his wife and now caregiver. Leslie you are the Best!🌸

  • @michellemalega59
    @michellemalega59 2 месяца назад +4

    Y’all are so adorable! I love how loving you both are with each other! Thank you for sharing your experience with us.💕

  • @terismedley7467
    @terismedley7467 2 месяца назад +8

    I don't have dementia (as far as I know), but I completely think like Jason when I start a new hobby. I'm all about buying the stuff to do the hobby and not so much about actually doing the hobby. Imagine how it will be when I start having impulse control issues! Love you two!

    • @merder911
      @merder911 2 месяца назад

      Ditto 😂

    • @patsytownsend368
      @patsytownsend368 2 месяца назад

      Me too!

    • @debrobinson8134
      @debrobinson8134 Месяц назад

      I’m the same. As I get older, I’m buying lots of hobby related things. More than I will ever use. I watch a video and then feel like I Need that. I can get anything I want without leaving my home. I do need to cancel PayPal.

  • @kelliewalker7281
    @kelliewalker7281 2 месяца назад +1

    Thank you for sharing. My husband buys sports jersey, shoes, posters, half the basement, 2 closets and our sons old room are full of his impulse buys. I thought I was the only one. I didnt realize this was a part of his dementia.

  • @wrennknits6048
    @wrennknits6048 2 месяца назад +6

    You guys ar so precious and walking thru a tough situation with amazing grace. So helpful to others❤

  • @cathyvitale3670
    @cathyvitale3670 2 месяца назад +2

    I love how you both can laugh! God bless you both!

  • @helenwilliams8471
    @helenwilliams8471 2 месяца назад +1

    Yeah, Jason for doing a good job sharing! I'm sure the bad is really bad but it's wonderful that he & you are 'both willing to share this journey with others. I pray for you both!! 🙏❤️🙏

  • @marijanel9639
    @marijanel9639 2 месяца назад +4

    Oh boy - thank you for sharing!! Jason and Leslie - you are just so generous with your time and advice.

  • @jamimiller6980
    @jamimiller6980 2 месяца назад +15

    My husband has Lewy Body Dementia and it’s amazing how he can remember baseball stats, players, important games from years ago all the way to when he was a kid (he’s 63 now), yet he couldn’t tell me what he had for breakfast this morning. It’s a horrible, sad, confusing disease.

    • @sallyrunnalls9788
      @sallyrunnalls9788 2 месяца назад +2

      My husband is soon to be 86 but has these same tendencies, anything sports related, machinery related, farm related, he can remember from 50:years ago yet as you said, can’t remember what he had for breakfast, that he has an appointment that day, can’t Romberg people’s names that he’s been very close to for years, etc. He has a different kind of dementia but many of the same symptoms

    • @lauracurnan3255
      @lauracurnan3255 Месяц назад +1

      I am going thru this also. My husband has TBI, traumatic brain injury. His memory is horrible. His personality changed, he no longer can carry on a conversation with me. His mind wanders. He gets angry about everything. He is difficult to sit next to , everything is an issue. We have been married 45 years. This is getting harder every day. I pray to get thru this with grace.

    • @jamimiller6980
      @jamimiller6980 Месяц назад

      @@lauracurnan3255 I’m so sorry. It hurts so much. I will keep you in my prayers.

  • @nanacarpenter7770
    @nanacarpenter7770 2 месяца назад

    I'm so glad you did this video. I have Alzhimers dementia diagnosed about 3 yrs ago. I am on medication to help slow it down. Just last month I had to turn over check book and debit card to my daughter who takes care of my finances. My spending got way out of control on things I also don't need or will probably never use. My my last purchase of 500. On a puppy was kinda it. I can't hardly take care of myself at 70 let alone a puppy. Glad to hear I'm not the only one with these impulsives.