From Fatigue to Stage 4 Colon Cancer in Months: Trevor Maxwell’s Story | The Patient Story
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- Опубликовано: 8 июн 2024
- In early 2018, Trevor Maxwell started feeling extremely fatigued and tired. He initially attributed it to normal midlife tiredness however, the fatigue continued to worsen to the point where simply walking up stairs would leave his heart pounding. At age 40, he hadn't had a checkup in years, but finally went to see his doctor. Bloodwork then showed he was very anemic and he went on to get a colonoscopy. Doctors then found a large 4-inch mass in his colon and was diagnosed with stage 4 colon cancer.
He opens up about how diagnosis sent him into a spiral of anxiety and depression and how he felt like a burden to his family and two young daughters.
Looking for support, he found purpose in creating a community for men with cancer. Trevor launched Man Up to Cancer to address male isolation in cancer and provide a space for men to open up and bond through shared experiences.
Full story & transcript → www.thepatientstory.com/schor...
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Contents of video:
00:00 : Trevor’s Story Introduction
00:22 : Describe Your First Symptoms
03:43 : Processing the diagnosis
05:21 : Dealing with mental health during a diagnosis
10:43 : Starting Man Up to Cancer
15:47 : How cancer changed me
#coloncancer #coloncancerawareness #colorectalcancer #colorectal #colorectalsurgery #cancersurvivor #cancerstories #cancer #thepatientstory #cancerpatient #breakthestigma #mentalhealth #mentalhealthawareness #stage4coloncancer #clinicaltrials 
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My nephew died with colon cancer. I never heard of a support group like this. Thank you for starting it up and being advocates for men fighting cancer and giving them hope for time and remission.
I'm facing a terminal diagnosis and have a young daughter. That line about no longer worrying about being remembered as sick, but as sad , really hit hard. Thank you.
I'm sorry. Wishing you the Best ❤️
I am so happy you have created this support system for men. My sons in their teens discovered they have a genetic disorder which predisposes them to colon cancer, stomach cancers. Interesting you said fatigue- that was 13 yr old sons only symptom. They have had colons removed. I have tried to connect them to support groups - they are reluctant! I can tell you, as you said, mostly women on these sites. You are saving mens lives, more important than that, you are helping people truly live with whatever time they have.
@@user-jr9xd7cs6zWere your sons genetic tested for Lynch Syndrome?
How are you now - praying for you 🙏
@@Melody-285 thats kind of you to ask. A few more bits have fallen off or stopped working, but Im still here! So Im making the most of what I have
The Mrs here. Thank you so much for sharing your story. Every one needs support. You and your family are in our prayers. I have lost family and friends to cancer and now I have lung cancer ( never smoked ). You are not alone. You are an outstanding speaker. Hang in there.
😢😢😢😢
Husband stage 4 June 2021 colon to liver, now post colon resection, liver ablation and chemo is NED. He only had abdominal pain prior.. Be brave you will do well..hubbie doing well…
Hey everyone, Colon cancer is the most preventable type of cancer. If you have family history, please push to get a colonoscopy. Don’t just have them do that occult blood feces test as it is not a direct indication of lack of cancer, in case of a negative result. I got my colonoscopy done at 31 years old about a week ago. Although the doctor did not find any tumors, she found a 9 mm polyp and inflammation in my sigmoid colon. I’m waiting for pathology now. Don’t trust that 45 year requirement. If I had waited, who knows if that polyp would become cancerous and maybe, I wouldn’t even make it to 45. Get screened early
Yes. I think I read that 50% of all people will get polyps in their colon and 10% of all polyps become malignant tumors. That means about 5% of people will get colon cancer eventually. So important to find those polyps when they are still harmless and get them removed.
Absolutely! Both my dad and grandma passed away from colon cancer. I started getting colonoscopies at age 30 and get them every 3 years. They have removed at least 2 pre-cancerous polyps over the last 12 years! I also have mild Crohn’s disease that sometimes gives me trouble. Prayers and best wishes to you all!
Thank you for your response!!! When did you get diagnosed with Crohns? I am still waiting on the pathology results and with the colon inflammation, it could be either that or Ulcerative colitis. May your dad and grandma rest in peace. My dad passed away in 2019 from colon cancer as well
Question what if u can't get a colonoscopy. I've tried 4 times but all the lax did made me violently sick and real sore in my bowels fever and mad headaches.this has been 8 months I've had blood in stool and felt awful for months now. Constant dull pain in bowel 24/7 I've had ultrasound and waiting on CT scan. But basically the only thing that can be done is colonoscopy. I'm sick of it all if I'm honest. Tired constant ,sick couple dozens times this yr already. What am I supposed to do. I've asked for more tests blood and stole as they ain't been done since first presented to doc last December. Can't get anything other than a callback from my surgery. My doc is now retired the other one who took over is of sick long term. I got taken off referral list as I was waiting for there next move. So. Now I gotta start allover again. Total pisstake.
Wow, I am sorry you are going through these complications. The colonoscopy prep is awful and honestly, I had a hard time but it wasn’t as bad as you are explaining to me. Unfortunately, the prep needs to be done if they really wanna see what’s going on. It seems that CT scan of the abdomen may be a good option but I would agree that colonoscopy would tell more. Which prep did you have? There is a new one where it’s broken down in two doses. Did you have that one?
I remember how I felt 9 years ago ,no energy full of fatigue and highly anaemic. No cancer thankfully but an abscess the size of a grapefruit which was removed by a Hartmans procedure,totally wrecked inside permanent colostomy………But alive !!!!
Holy cow! Glad you're still with us!
@@5Gburn Thank you
I’m Stage 4 Colon Cancer and coming off my 2nd liver resection. I will start immunotherapy in a couple weeks and hope to stay NED for awhile. Thanks for sharing your story.
❤
Good luck 🤞
All the best. A neighbour had similar and after her immunotherapy she’s doing great. Went on an overseas holiday a couple of months after her treatment. Much love to you. xx
I just lost my dear friend on Nov 3, 2023. I wish he had a support group. I think what you doing is truly amazing and it will only continue to grow and help those in need. God Bless you, and congrats on 5 years. Cheers to many more!
Colon Cancer is quickly becoming a cancer of young adults. Good luck to all....
YT pushed this channel to me a couple of weeks ago. I’ve watched a number of stories since then, and this one by far is the most touching one. It fills with love and courage that everyone can appreciate regardless going through cancer or not. Thanks, and all the best to you and your family, Trevor!
Trevor my son in law has stage 3 colon rectal cancer, I'm going to see if he will check your channel or vlog out! Thank you for getting this going to help others in your cancer journey!! GOD BLESS!!
No one is ultimately in control of our life. When things go wrong, (as they will for us all), it is not a sign of our own weakness or a lack of strength. No one is guaranteed a perfect life. We are not the center of our own story. Leaning on others takes humility. Resting in Him will bring peace in the midst of the storm, regardless of the outcome. (I was diagnosed with cancer a few years after my husband of 29 years left me; I understand difficulties in life).
AMEN !!!!! 🙏
Thank you Trevor for turning the spotlight on yourself. I have cancer too and right now I am in remission but the survival rate to the five year mark from date of diagnosis is only about 20%. It definitely was a "life asteroid" for me and my family. I don't remember what I told them or what they said to me. Keep vlogging and keep sharing because we all need to keep the conversation open for men. We are taught to just take it like a man. Prayers and God bless! I see you are still with us FIVE YEARS LATER. AMEN!!!!!!!!!!!!
Thank you so much for this. I lost my mother to cancer when I was 14. There was no internet back then and she must have been very lonely. I'm grateful for people like you who see the need for group support and create it for others. Thank you for being a great person. I wish you health, peace, strength, and love.
You are amazing and inspirational ❤️.
I would be so proud of you 👏 if I had the privilege to have you as my father.
Hope you live until you are very old.
God bless you 🙏 ❤️ from the UK.
You are inspiring many who are going through cancer and other terminal diagnoses.
It's easy to listen to you and very encouraging too! You're attitude of gratitude is amazing.
May God bless you and grant you many days to continue doing this.
Scary you only had fatigue ugh
You, sir, are inspiring. Your whole demeanour changed to joy once you started talking about your men’s cancer group. It is wonderful that you thought of this and followed through with it. Wishing you all the best!❤️
I am so inspired by you. I loved listening to your story.
Above all my symptoms the fatigue was the symptom that I had that made me know in my heart I had cancer 😢
I’m thinking that too. I’m operating on low life force right now 😕
@@jozzz222 this fatigue/exhaustion is like no other you have experienced before. I was also catching every cold, flu, bronchitis I was around and one after the other back to back.
@@deanawells4395 Your Immune System is WEAK & Compromised. Be safe & take care to Build it Up as best you can NATURALLY!! Stay away from the Pharmacia CHEMICALS, they'll kill you Faster than any cancer!!
When you say fatigue, you mean sleepy and feeling lazy or feeling like you just ran a marathon?
Hi could you explain how was your fatigue?
Everything changes in a blink of an eye it's so mental health blows,up and get so sad and lonely and afraid I got cancer 2 so I no how, feel
I love the logo and idea behind it. You create a legacy that will change lives. B proud man
Having bouts repeating stomach cramps n pain n bloatness, see your doctor asap.
Living with the "Asteroid" changes everything - and you found the right mindset: being present when everday is bonus time. You are on the high road, moving forward and forging a new future. Kudos to you!
You are amazing Trevor. I’m praying for your and every cancer victim for a healthy future. Well done!
Trevor- you have definitely taken lemons and made lemonade! Listening to your testimony made me cry and smile because you are giving so many men the safe space that they need to go through this difficult time and beyond Lord willing. Bless you, Trevor … I love your wife and family for ‘Loving you through it’ … They knew that you had more work to do!!! Keep surviving! ❤❤❤
You are an awesome man, Trevor! Thank you so much for sharing and being so honest! Love this Man up to Cancer! Thank God you are doing so well. Much respect!
This is such a powerful video. What most people are afraid of is not being independent and asking for help.
This is a huge deal for most people and it is so hard to come to terms with not being able to physically do stuff when you were such an active/independent person before.
I think it's better to get use to the new reality and ask for help when necessary because we can't do things on our own all the time.
I hope you get better mate and I am praying for you. Such a great video.
What we have to realise is we didn't ask for this illness to overwhelming our body and we just have to deal with the cards we have been given.
Such an inspirational story. Thank you. I am stage 2 a.. my tumor was removed and so far so good but every day I wonder if ans when it comes back. Men definitely do need support as much as we do.
Thank you, Trevor, for sharing your story. ❤
I just had my first colonoscopy in June 2023 and it was not fun to do the prep but I am high risk for colon cancer so testing is all I. An do to catch this as early as possible if cancer happens. Thank you for sharing your story!
Thanks for sharing!
Well done Trevor! I love your initiative!
Hooray for you on getting this going for men. You guys really don't have much for a support system in anything that I can think of. I can see this expanding and continuing for many years to come, maybe more! ❤ thanks for doing it for yourself and the other guys out there 😊
So proud of you! Thank you for being so open!
You’re awesome! Thank you for sharing your story.
Dude, you are so amazing for telling your story...and *why* you told it is...well, valiant is the only word I can think of for it. Stay strong! 💪
Thank you for sharing. You are not alone in your journey.
What a great idea! So glad you started this.
Thank you
You’ve described this so well Trevor. A great inspiration to other men. All the very best to you.
I am exactly where you are with stage 4 terminal cancer. I feel like I'm having an out of body experience. I wish i could turn back time.
So proud of you. Keep up the good work. Hugs from Canada
Thank you for sharing your story! Sending you and your family love, light and prayers💕
Thank you for creating such a support group. I just completed my cancer treatment. It is a tough road.
Trevor, you are fricken awesome. Both you and Joe are true warriors and what you’ve organized is a heartfelt group that is dedicated to support the masses. My hat is off to your organization.. Best wishes and may the force be with you all!
This hurt my heart watching this. You are amazing to share this from a man’s perspective. It has opened my eyes and im grateful for you to share this story so openly and truthfully
Trevor, I happened on your video by chance. Thank you for sharing your story. It really touched my heart. I think you are both a hero and an angel to do all you have done. You are definitely changing the world and filling a great need. God bless you Trevor. I am praying for you and all patients with cancer.
Wow dude, I am just so in awe of you. What a wonderful idea to start this group and support others like you. If there is a way to help you out, please let me know. God bless you Trevor.
I just signed into The Patient Story forum, and your story is my first viewing. As I go through my young journey, I will need to be like you with my mental attitude....thanks and blessings.
Thanks for your honesty and candid lness in sharing not just what happened physically but emotionally as well. Gives people a better idea of what to expect with news like this.
Excellent video always stay positive. Thank you for the encouraging words. Blessings….
Sending prayers
Wow you're a rock and amazing keep doing what you're doing 💪
What a beautiful family you have Trevor! Thank you for sharing your story with the world. You'll help more people than you'll ever know. Teaching them how to make the best out of the hard knocks they're bound to deal with thru their lives. When you're gone, your daughters AND your beautiful wife, will have so many wonderful memories of you, and all the adventures you enjoyed over the years. I myself fear that I will simply be forgotten. You Sir, will never be!
❤
Thanks Trevor.. I know what to do now!!
Thanks for sharing your story, Trevor ❤️
you are great Trevor, God bless you
Thank you Trevor for telling your story.
Take care.❤❤🙏🙏
Thank you for sharing your story and your message about living in the moment. Important for all of us to hear. Best to you ⭐
i wish these stories would include a more informational ending. For example how they are doing ? they end so abruptly
You are such a cool person ❤️
You. Are. Human. Why are we so hard on ourselves when these things are beyond our control?!
"Down the chute"? My mother had colon cancer. It was really scary. Now I have a colonoscopy every couple of years. It's nothing to joke about and my heart goes out to you. I just thought that was an interesting way to phrase going into "cancer land", and how everything changes.
anemia is a sign of colon cancer …good call by the doc, best of luck in your treatment ❤
thanks for the videos etc, i was wondering what your update is, are we going to see you for many more years, are your days numbered? etc
Putting my head into the Bible and church brought me alot of comfort and I got my knee and prayed alot
Could my dad join this group? He had stage 4 bladder cancer that had spread to a few other places. He has had his ileostomy bag for 2 years and his mental health has deteriorated so much. They stuffed up the surgery so his stoma leaks and causes all kinds of problems. This would be so good for him.
Send me his contact information and I will try to connect him! → stephanie@thepatientstory.com
🩵 God bless!
I personally believe I would not be here if it wasn’t for Clinical Trials.
It s weird how nobody is talking about cancer s causes as it s a normal thing
Cancer is normal. Everyone will get cancer if they live long enough and don’t die of something else first.
Living in the moment and present is hard to do with any cancer. The fears are real and cancer sucks giving us psychology issues and knowing you carry this crap in your body. My breast cancer was 6 years ago but in the back of my mind this could return again. We need to find a new you but as well it’s gets lost sometimes out of the blue it reminds you that in realty this has a chance of recurrence. I don’t mean to be a bummer but this is it.
I'm afraid of being too dependent I was abused when I was too dependent. And my mother told me I was overwhelming her. So I felt really alone I had first stage breast Cancer. And she was really rotton to me. I feel I'm better off alone dealing with Cancer. I lost my best friend who I trusted the most. I know there will be nobody like her again. Because she understood me more then most people did.
How are you doing now? SO sorry that you were not supported 😥
You got this! Isaiah 41:10❤. Your a warrior!
I. Lost my job when I got colon cancer God is watching you you will win
My aunt just had surgery yesterday to remove a tumor and part of her colon. We don’t know what stage or if it’s spread.
❤😢🙏
How can I join!
Trevor hello sorry to here of what you have been through .well as a tipical male . I'm looking for survivors that could help other of what they have done to increase there outcome I' have rectal cancer have had 3 surgery one was a tofer one . lol .doing good with all the side effects that goes along with it . I'm doing the Natura blood test and is positive for reacerance witch can be seand before a CT or pet scan . I had a oncologist tell me it was going to kill me (nice of him ) there is more to it but I'm looking to prove him wrong. Any direction you can point me in would be appreciated
Stay away from CHEMO for as long as possible, it Totally Wipes Out your Immune System leaving you Wide Open to ALL kinds of Deadly Infections!! Chemo kills Faster than the cancers!!
How did you get rid of your fatigue?
I'm facing a very scary colonoscopy on August 31st. I've had colonoscopies before I'm in my 60s. My first colonoscopy, I had 3 pre cancerous polyps, so I had to be screened in 3 years, I had 5 polyps that weren't cancerous, so I needed to be screened in 5 years and it's coming up but this time I have problems, I have blood in my stool and black like blood. I'm getting an upper and lower screening, and it's scary
Hi Debbie, wishing you all the very best for the 31st. Such a scary time for you. Sending you positive thoughts and a big hug❤
Well done Trevor. You have definitely turned a negative into a positive. The ethos behind your group is brilliant. Your daughters definitely have a dad to be proud of. ❤🇬🇧
@stelladowsett7151 Thank you, sweetie. My children are raised, and I'm glad I'm the age I am. This young man is very brave, and I totally feel his pain.
Prayers 🩷🙏🏼
❤
I'm curious about your liver surgery. I am 64 female and have stage 4 colon cancer that spread to my Liver and I have asked a half dozen times why they cant take it off my Liver. I do have a small amount that spread to my stomach also.
We were also blindsided as I was just fatigued after working and then went in for Colonoscopy.
❤
Bless you. Prayers for you!! 🙏🏼🌟
@@stephmartin1148 Thank you :)
When you did your blood work were your red blood cells and Haemoglobin very low?
Did you have any stool changes before diagnosis?
No the tumor was in the ascending colon which is the first section. Blood was just turning dark by time a stool is passed.
Please, look to Jesus Christ, have faith in Him, accept Him as your Lord and Savior. Our Lord is always there to help and to heal. God bless you. You are doing such a good work, not only for yourself,but for others fighting this battle. Jesus is our Rock! A very present help in all our troubles. 🙏
Mid life isn't 40, you shouldn't be that tired at 40 my god.
Nobody ever talks about how you pay your bills after a diagnosis, where’s Heather come from? Living alone with growing medical issues this scares me cause there’s no info about e
Didn't know where the colon is...that's funny and sad at the same time
How often the symptoms come to be have a colon cancer? Sorry for my english, not my mother tongue.
I have the same symptoms after 3 Pfizer shot 😢😢😢
I think men see asking for help as a sign of weakness. Women don't have that fear.
As long as number one has been taken care of which is believing in Jesus Christ and what he’s done for you so that your eternal life is in heaven. Right ?
All else is less to worry about. If you know what I mean.
Thank you for sharing your story and all the amazing inspiration and support you have brought to other men who need it whether they realize it or not.🙏🏻❤️🩹