I also went undiagnosed for 5 decades, doctors routinely prescribing antibiotics time after time for constant sinus infections & one bout of pneumonia. I did get diagnosed after allergy shots did not work. My result was well below testing parameters. Praise anyone donating plasma-you are my heroes and heroines.
Thank you for sharing your story! I am one of four in my family with CVID. I wasn't diagnosed until July 2017. I too lived sixty one years before I was diagnosed. A sibling was diagnosed first and helped me on my journey to get diagnosed.
Same here, went 62 years my primary care doctor way back said, "doctors are going to tell you that there is something wrong with your immune system but don't let them, its slow but it kicks in eventually". I was 13 and he was retiring. I loved my Doc but boy do I regret listening to him. My life has been one life threatening health condition to another.
My wife has a primary immunodeficiency that wreaked havoc on her life. She was diagnosed via an undiagnosed disease network genetic test at age 36. After several more years the figured out how to stop the nonstop inflammation that was overwhelming her brain at the NIH. She came close to death several times before that from unexplained persistent inflammation.
Is this video supposed to be completely blank? Not seeing any video at all, just sound track. Very interesting but awkward to and hard to follow without video.
Hi there! We're glad you enjoy it, and sorry for the confusion. This is part of our audio-only podcast program "Undiagnosed", which is primarily released to platforms like Spotify and Apple Podcasts kind of like talk radio. We've put it here with the podcast art as the visual component so folks who don't usually listen to podcasts have access to it as well.
I LOVE this new series!!! Thank you so much!! Looking forward to more!!
You are just like me! Thank you I enjoyed this so much. I look forward to more Undiagnosed 🦓❤️
I also went undiagnosed for 5 decades, doctors routinely prescribing antibiotics time after time for constant sinus infections & one bout of pneumonia. I did get diagnosed after allergy shots did not work. My result was well below testing parameters. Praise anyone donating plasma-you are my heroes and heroines.
Thank you for sharing your story! I am one of four in my family with CVID. I wasn't diagnosed until July 2017. I too lived sixty one years before I was diagnosed. A sibling was diagnosed first and helped me on my journey to get diagnosed.
It took 61 years for me too. Too much damage to live my golden years with any energy or enthusiasm.
Same here, went 62 years my primary care doctor way back said, "doctors are going to tell you that there is something wrong with your immune system but don't let them, its slow but it kicks in eventually". I was 13 and he was retiring. I loved my Doc but boy do I regret listening to him. My life has been one life threatening health condition to another.
We're so sorry to hear that. Hopefully you've found the care you need and deserve to stay happy and healthy.
My wife has a primary immunodeficiency that wreaked havoc on her life. She was diagnosed via an undiagnosed disease network genetic test at age 36. After several more years the figured out how to stop the nonstop inflammation that was overwhelming her brain at the NIH. She came close to death several times before that from unexplained persistent inflammation.
We're sorry to hear that the journey has been so difficult. We hope she's doing well and getting the treatment she needs. ❤
Is this video supposed to be completely blank? Not seeing any video at all, just sound track. Very interesting but awkward to and hard to follow without video.
Hi there! We're glad you enjoy it, and sorry for the confusion. This is part of our audio-only podcast program "Undiagnosed", which is primarily released to platforms like Spotify and Apple Podcasts kind of like talk radio. We've put it here with the podcast art as the visual component so folks who don't usually listen to podcasts have access to it as well.