- Видео 958
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Immune Deficiency Foundation
Добавлен 19 авг 2009
The Immune Deficiency Foundation (IDF) community is a creative and committed group of individuals who are busy reaching out to help spread awareness and education about primary immunodeficiency diseases (PI). Tune in to see what is happening.
Decoding PI: Unraveling the GI connection
View a PDF of this presentation: primaryimmune.org/sites/default/files/FOR%20WEB%20-%20PI%20and%20GI%20connection.pdf
Peter J. Mannon, M.D. discusses common gastrointestinal symptoms for people with primary immunodeficiency as well, and discusses the interesting link between the two.
The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
To learn more, volunteer, or donate, visit primaryimmune.org/donate.
Presented with support from Takeda, CSL Behring, Grifols, Accredo, ADMA Biologics, Amgen, Chiesi, Kedrion Biopharma, Pharming, and Sumitomo Pharma.
Peter J. Mannon, M.D. discusses common gastrointestinal symptoms for people with primary immunodeficiency as well, and discusses the interesting link between the two.
The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
To learn more, volunteer, or donate, visit primaryimmune.org/donate.
Presented with support from Takeda, CSL Behring, Grifols, Accredo, ADMA Biologics, Amgen, Chiesi, Kedrion Biopharma, Pharming, and Sumitomo Pharma.
Просмотров: 283
Видео
Decoding PI: Antibody deficiencies
Просмотров 382Месяц назад
Dr. Luke Wall discusses antibody deficiencies in this webinar from October 24, 2024. View a PDF of this presentation: primaryimmune.org/sites/default/files/Decoding PI. Ab Def. 10.24.24 Luke Wall.pdf The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors. Presented with support from Takeda, CSL B...
ChronicXTwenties: Heartbreakingly beautiful (Part 2)
Просмотров 832 месяца назад
Transcript: primaryimmune.org/sites/default/fi…20transcript.pdf In part two of our pilot episode, Heartbreakingly Beautiful, Victoria Medl and Cassie Mummert continue their discussion about hope, support, and learning who to trust with vulnerable truths about their health. Content warning: This podcast features sensitive subject matter such as mental health, bullying, religion, suicide, and con...
ChronicXTwenties: Heartbreakingly beautiful (Part 1)
Просмотров 752 месяца назад
In this 2-part pilot episode, two members of the Immune Deficiency Foundation’s youth advisory committee Cassie Mummert and Victoria Medl - discuss mental health coping strategies, spirituality, and the complications and joys of dating other people with rare diseases. Content warning: This podcast features sensitive subject matter such as mental health, bullying, religion, suicide, and confront...
Bold Conversations: CGD and medical immigration with Susanna Raj
Просмотров 592 месяца назад
Susanna Raj joins Dr. Nicole to discuss the harrowing story of her childhood immigration from India to receive CGD treatment in the United States and Canada. Read Susanna's story: primaryimmune.org/resources/news-articles/determined-keep-moving-forward The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors,...
Decoding PI: Protecting yourself against covid, flu, and RSV
Просмотров 3152 месяца назад
Decoding PI: Protecting yourself against COVID, flu and RSV This informative session offers crucial insights for patients, caregivers, and healthcare professionals. Don't miss this opportunity to enhance your understanding of immunization in the context of PI and learn practical steps for safeguarding health during challenging seasons. View Dr. Ward's slides: primaryimmune.org/sites/default/fil...
Overview of Wiskott-Aldrich syndrome: 2024 PI Conference
Просмотров 1643 месяца назад
Overview of Wiskott-Aldrich syndrome: 2024 PI Conference
Integrative medicine and pain management - Living well with PI
Просмотров 3273 месяца назад
Dr. Maeve O'Connor discusses integrative pain management approaches for primary immunodeficiency patients, including nutrition, stress management, and more. See a PDF of this presentation: primaryimmune.org/sites/default/files/IDF MEO AUG 2024.pdf Presented with support from Takeda, CSL Behring, Grifols, Accredo, ADMA Biologics, Amgen, Chiesi, Kedrion Biopharma, Pharming, and Sumitomo Pharma.
Bold Conversations: Inclusion in practice at the 2024 PI Conference
Просмотров 1234 месяца назад
Transcript: primaryimmune.org/sites/default/fi…ranscription.pdf Immune Deficiency Foundation staff members Alissa Creamer and Megan Messick join Dr. Nicole to discuss the inclusions efforts that went into planning the blockbuster 2024 PI conference. Dr. Nicole's conference session (The Elephant in the Exam Room): ruclips.net/video/kn7gM7hsGA8/видео.html
Hyper IgM overview: 2024 PI Conference
Просмотров 2754 месяца назад
Gain an understanding of symptoms, criteria for diagnosis and available treatment options for Hyper IgM. Also learn tips and resources for managing a Hyper IgM diagnosis.
PI & aging: 2024 PI Conference
Просмотров 5345 месяцев назад
Learn about the unique challenges seniors face navigating a complicated diagnosis like primary immunodeficiency, and tips to overcome them. Increased complications of autoimmunity, G.I., cancer, chronic lung disease compounded by immunosenescence, concurrent comorbid diseases, frailty, isolation, and dealing with our complex health system, make it imperative that we understand and meet the need...
Hyper IgM syndrome: T cell markers as a guide to treatment & severity: 2024 PI Conference
Просмотров 1865 месяцев назад
Learn about Hyper IgM Syndrome and its clinical manifestations and about the ongoing study investigating the role of T cell markers in Hyper IgM syndrome. Also learn about the correlation between T cell markers and clinical severity and the potential complications of T cell markers for developing new and improved treatments for Hyper IgM syndrome.
Translating microbiology of infections into genetics of immunology: 2024 PI Conference
Просмотров 1615 месяцев назад
Translating microbiology of infections into genetics of immunology: 2024 PI Conference
Dermatology issues in the PI patient: 2024 PI Conference
Просмотров 2225 месяцев назад
Dermatology issues in the PI patient: 2024 PI Conference
Gene editing for X-linked agammaglobulinemia (XLA): 2024 PI Conference
Просмотров 3575 месяцев назад
Gene editing for X-linked agammaglobulinemia (XLA): 2024 PI Conference
The role of AI in the future of PI: 2024 PI Conference
Просмотров 885 месяцев назад
The role of AI in the future of PI: 2024 PI Conference
Meet the researchers: Clinical trials update: 2024 PI Conference
Просмотров 1005 месяцев назад
Meet the researchers: Clinical trials update: 2024 PI Conference
Meet the stars of Compromised: Life Without Immunity
Просмотров 8355 месяцев назад
Meet the stars of Compromised: Life Without Immunity
Legislative initiatives breakfast: 2024 PI Conference
Просмотров 475 месяцев назад
Legislative initiatives breakfast: 2024 PI Conference
Severe combined immunodeficiency (SCID) overview: 2024 PI Conference
Просмотров 2695 месяцев назад
Severe combined immunodeficiency (SCID) overview: 2024 PI Conference
Opening session: 2024 PI Conference
Просмотров 3235 месяцев назад
Begin the conference with everything you need to know about the next two days. This session will give you all the tips and tricks needed to make the most of your conference experience! To conclude the opening session, we will be awarding the Mary Rath Emerging Leader award and the Plasma Hero award.
Gene therapy: 2024 PI Conference
Просмотров 2185 месяцев назад
Break down the process of gene therapy, including how to access it, the overall procedure, and potential complications of undergoing this type of treatment. Also, learn which diagnoses are currently able to access gene therapy and learn about conditions that are being explored for this treatment method.
The elephant in the exam room: what your doctors wish you knew: 2024 PI Conference
Просмотров 1745 месяцев назад
The elephant in the exam room: what your doctors wish you knew: 2024 PI Conference
PI & respiratory health: 2024 PI Conference
Просмотров 1195 месяцев назад
PI & respiratory health: 2024 PI Conference
Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference
Просмотров 8045 месяцев назад
Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference
Immune to limits: Thriving in academics with PI: 2024 PI Conference
Просмотров 265 месяцев назад
Immune to limits: Thriving in academics with PI: 2024 PI Conference
Parents of children with SCID, CID, and complex PI: 2024 PI Conference
Просмотров 495 месяцев назад
Parents of children with SCID, CID, and complex PI: 2024 PI Conference
Emerging diagnostics & therapies for chronic granulomatous disease (CGD): 2024 PI Conference
Просмотров 1055 месяцев назад
Emerging diagnostics & therapies for chronic granulomatous disease (CGD): 2024 PI Conference
Managing food allergies with PI: 2024 PI Conference
Просмотров 875 месяцев назад
Managing food allergies with PI: 2024 PI Conference
The future is now: preparing for transition to adult care: 2024 PI Conference
Просмотров 345 месяцев назад
The future is now: preparing for transition to adult care: 2024 PI Conference