Mine came off from time to time when I was a kid. Once it came flying off during a soccer game, scaring the hell out of the opposing goalie. He had the ball *AND* my leg flying at him. Funny enough, they said the goal counted.
I’m recent AK, and mine fell off at physical therapy twice recently. Both times I was on the stationary bike and luckily I saw it happening just before it was about to hit the floor.
So glad you fixed it. Vacuum systems are part engineering and part witchcraft! For holes in the sleeve, I use silicone. I also get better results by duct taping the bottom of the sleeve. They last longer also. Getting parts as a traveling amputee for 46 years now can be frustrating. While I appreciate the help of my prosthetists, as experienced amputees we should be free to order the parts ourselves and be taught basic maintenance and repairs. When I compare prosthetics to mountain bikes I am quite frustrated. As a mountain biker, I can order any part online and there is a myriad of resources available online to teach me how to maintain my bike. I can price match between different platforms and find the best deal. Spare parts for my prosthetic limb are way overpriced and often poorly constructed based on my level of activity. I'm restricted from buying online and even finding out prices. For instance, while in Thailand, I needed to ask my prosthetist in Australia to buy a part for me from Germany, then post it to my sister who then posted it to me. This can take weeks, all the while my activity is restricted and walking can be painful while I await the parts to do the repairs myself. I do hope with your influence Jo we can change this.
@@israel963 I use the silicone from Ossur but you could use any similar silicone glue product which makes it much cheaper. You can always test some on an old sleeve to make sure it doesn't impact the sleeve
If you put water in the sleeve, if there's a hole you'll see the water coming out of it if there is a hole. I wear splints, when they need replacing duct tape lives in my bag. It takes months to get new ones by the NHS, so when the splints break before the new ones are made it duct tape always helps.
Abigail Ash Is your sleeve’s inner covered in silicone or something else? On electronics stuff we use a variety of different silicone (and other) sealants to weatherproof them; maybe one of those might work and be more comfortable than tape? MG Chemicals 422B comes to mind, and there’s both an aerosol and a brush-on version - definitely apply in a well ventilated area and try it on normal fabric then an old sleeve if you do, and use a 40mm USB fan to help it dry/cure... Obviously not medical grade, but I’m guessing duct tape doesn’t quite make the cut there either? Anyway, maybe it would help things last longer - especially if it worked well enough to be able to eventually coat an entire area? I’m also trying to find medical grade liquid silicones, but not having as much luck - the closest consumer-available stuff is for scar treatment and is $$$ 🤷♂️ Anyway if you decide to try it and it works/doesn’t let me know? (Geez this comment went long!)
If I were to look at something like this (I sort of collect DIY methods) I think I would use bookbinding methods. Bookbinding is a mixture of suture and gluing. The glue should be both pH-neutral and perpetually flexible. With bookbinding glue you can glue two pieces of textile together. You can also (probably) add an airtight quality to textile. So I would recommend bookbinding PVA and/or methyl cellulose glue with or without adding new textile material. Don't know if this will help, but I LOVE when knowledge from one discipline can be used in an other. The evening school system in my country (the Faroe Islands) is awesome!
Turns out my brother in law does use a suction sleeve, I didn’t realize he did! He just gave me a couple old ones to try fixing up and he’s going to try them - his are like $300 even after insurance :o
I had no idea things like these parts were so expensive. That's terrible! A couple of things came to mind regarding patching holes. The product Flex Seal receives a lot of TV commercial time but I've used it on a variety of things with amazing results. I don't know how well it would work in this situation, but it might be worth an experiment. There's also a tape called 'gaffer' tape that might have better adhesion and flexibility than duct tape. Anyway, I'm glad you figure this one out!
They’re very expensive, especially if your insurance doesn’t cover the parts( sleeve, new socket when you loose weight. Mine is no more than gaining or loosing 5 lbs. Anymore, it won’t fit properly.
Thank you! I am scheduled for a below the knee amputation in 2 months so iv been trying to learn as much as a can so all I can say is thankyou! You make me feel like I can do this and feel confident and happy. To be honest you just make my day when you upload a new video your awesome personally just radiates though the screen! So thanks ❤
I LOVE listening to you talk and think out loud. Thank you for showing us the entire problem solving process. I really enjoyed it. I enjoy all the minutes I spend with you.
Well done for fixing the issue :) my suggestions for if it happens again: hold the liner up to a window to see holes as the light coming through the fabric makes it really easy to see. Wow liners are expensive!
Is it weird that I'm not an amputee but I still enjoy watching your videos? I don't even know why RUclips suggested your content to me but perhaps it somehow knew I was curious about it or something... You're such a nice person and I love the way you talk about this topic in such an honest and open way. If I ever become a below the knee amputee I'll be prepared :)
Same here, I have a little (taller) brother who is, but I can definitely relate to a lot of the struggles with doctors on having a TBI and it’s various weird effects like “IT’S 3:30AM! MIGRAINE AND DIZZINESS TIME!” 🤦♂️
EnigmaNL not weird at all! Look at it as you like watching her for personality or good content. It’s the epitome of treating her as a RUclipsr who happens to be an amputee, instead of the other way around. I wish our society could do the same on a whole range of other things as well
Love that you share these kind of things. Whenever I see people with their prosthetic legs I never think about how much adjusting and maintenance is involved.
Well done on fixing the problem. Thank you for giving us able bodied people a insight into what you go through. You never know if will need the information but it will be in your mind if you do every have some thing similar happen.
Left you a like for that outro. I'm happy to spend a few minutes out of my day with you, the way you speak and the general flow of your videos make me feel very much at peace with the world, especially on a rainy London evening like tonight.
Finding holes in a liner is difficult. If you put alcohol in a spray bottle then spray on the liner, the hole will quickly show up when you stretch it. You are correct - the hole is usually at the top trim line of the socket. I've put a hole in my brand new Ottobock Pro-Flex sleeves more than once by kneeling down and resting weight on my knee on a hard surface. Sometimes you can position the sleeve a bit lower on the socket so that the hole rest against the socket outer surface. This will obviously only work limited times since you'll eventually get the sleeve too low to be functional. I would rather have an expulsion type valve on a passive suction system like you have. That pressure relief valve on yours works fine for elevated vacuum, but does not sufficiently allow air to escape like an expulsion valve does. As already mentioned, that type valve is subject to leakage when very little debris (such as sock fuzz, dirt, or maybe even animal hair) gets in it which renders the symptom you were having. Forcing warm water through it (from inside out), while depressing the button usually clears it.
Love spending time watching you Jo, you're like my own little sunshine some days 🙂... it always gives me a small sense of satisfaction to see my name at the end of your videos I love supporting you, you're just an amazing person
Team some assembly required 😂Sleeves rip super easy (especially BK’s when kneeling) so check for tiny holes, check the liner for tiny holes too. Blow up the sleeve/liner and put it in some water to see if there are any tiny bubbles. Watch out for cats walking on you as their claws can pierce tiny holes in your sleeve/liner Ive lost weight so I’m walking out of my liner so my residual is kind of pistoning inside my socket when I walk and because my prosthetic isn’t properly fitting I can feel the full weight of my prosthetic which is knackering swinging my prosthetic when walking(when the leg fits you don’t really notice the weight at all). Top tip use a paint brush to clean out the passive valve as sand grit can easily bung up the valve and stop it closing 🤗🤗 ps Have you had the ole ‘liner fart’ yet? Now trust me walking down Hospital corridors whilst your liner is farting is hilarious and slightly embarrassing when someone passes you 🤣😂🤣 #amputeeproblems #amputeehumour
Cynthia P 😂🤣 the strange noises that prosthetics can make when they don’t fit or when components break can be very embarrassing but you just have to giggle thru it and get in to see my prosthetist as soon as i can 🦿🦾🔩🔧🧰🤗
I've been listening to your Videos and especially the live chats your done alot while playing guitar lately and it is realy relaxing. Thank you for providing me with that while I'm in a stressful phase of exams😊
I get emotional watching every single video of yours. I have non Hodgkin lymphoma and i'm bold because chemotherapy. My father lost his leg like you in a car accident and your history makes me remind of him and make me feel not that different from other because i'm bold. Thank you for your vulnerability and open heart.
My husband cuts a gallon ziplock and puts it between the sleeve and the black part to make a seal and lengthen the life on the sleeves. He has always had issues with brand new sleeves getting pin holes. I think he uses gallon cause of the thickness of the plastic, not necessarily the size although if there are multiple small pin holes it probably helps.
Thank you for your video I've been an amputate for 27 years and I almost never feel like I can get full suction Most tempted to go back to the locking pin trick or the strap lol got a new magic ankle you're mad at Uncle that I broke the charger no the insurance had to buy me a new one $800 no $1500 Broken again a month later haven't been able to walk with my nip my new medic foot since I've had it basically 3 or 4 years lol
"Pistoning" can be caused by having not enough padding on the leg to create a tight fit within the prosthetic. As you move around it pushes fluid up out of your leg which creates space as the leg contracts. This can change multiple times per day. Too little padding and you can hear air escaping and possible get bruising. To much and it can cause too much pressure on the leg which can cause a lot of temporary pain. Also as an emergency (or safety net) solution would be to buy a velcro thigh wrap. These are designed to support the thigh in the case of an injury but I apply one over the outside and it keeps the leg from slipping especially when my weight is not directly over the foot such as during exercising (sit-ups, leg lifts, etc.). I get supplies from Amputeestore.com but then my supplies are older/simpler versions and cost a lot less. On another topic, if you bend your knee a lot (riding bike) the friction between the sleeve and the socket can wear a hole in the sleeve. The best thing that I've found is to line the socket edges with denim. It resists wear but you do have to make sure that it doesn't slide out of place before you start (it migrates slightly unless you glue it in).
I am testing out my new suction system. The sleeve....ok so I got big thighs, and getting it to stay up is not the easiest thing nor rolling it up. My hands and elbows absolutely hate me right now! He said this leg will probably only last 3 months. My pin lock only lasted a month before I needed a new one as I was in a 10ply. Now its been staying at a 15ply. And I was told I would always have 2 sleeves even if one gets a hole in it. I might go back to a pin...not sure yet. And yes I know all about having to get a script from your doctor. Luckily for me my GP absolutely rocks!!! So what happens if you need a new socket before 6 months?
I used to roll the liner down to too. I stopped doing that an and rolled the liner all the way up. Solved the suction issue I was having. Leg stayed on so much better.
It's been awhile since you put this up, but glad I watched. It's taking awhile for my stump to heal, but hoping to start getting fitted for a BK leg in January. I've been wondering what Hanger Clinic (mine is in Decatur Illinois) will suggest for me. The more I watch, the more a pin lock system seems logical. In three months I've beat my iWalk all to heck, and it's nowhere near as precision as a leg. I own a repair shop (auto upholstery) and clomp through a busy cluttered shop, climb over, around and through things including boats and cars, and just generally refuse to give in to not having a leg (except going up the rung ladder at one of my lofts. My fiancee and a friend giving me a hand have expressly forbid it, lol). It seems the pin lock might be a bit more archaeic, but more on the rugged side.
Funny you made this video because I found out all this on Tues when I went in to my prosthetic appointment because my leg wouldn’t seal... my sleeve had holes was using the same one for six months 😱
Where I am (Canada) everything is ordered or manufactured through one department at the rehab hospital luckily and I can get a problem with by prosthetics (I have 4 items through this clinic) solved day of appointment. It must be such a pain to have to get things shipped in.
Before I signed for my leg I included in my leg contract 2 liners, 1 extra outer sleeves, I complete set ottoboc sock set and 2 Shrinkers and when I get to 10 ply I get cast for new socket plus adjustments in between sockets....mine was due to a work accident and my attorneys were very knowledgeable about amputations..I’m a bka
Are your headaches and chronic pain directly related to your amputation and the use of a prosthetic. I am 2 days away from my right leg below the knee amputation surgery and you have been my sole source of info via you tube. I'm also curious about what level of post surgical pain you experienced and months later, what specific pain meds you take on a regular basis. I hope you are willing to share this info.
Whenever something on my wheelchair makes a new noise or just seems "off" I get the same reaction you described when you hear your leg hissing air. That kind of shit is expensive to fix!! I had to purchase a new $2,000 wheelchair because my current frame is bending enough to cause critical alignment issues (my chair doesn't really turn left anymore, and it's terrifying and dangerous).
Thank you for sharing this, it's very interesting! I'm curious, why have you gone with a suction system as opposed to a pin system or other system? What those replacement sleeves and liners cost are crazy, they just gouge the crap out of people; typical medical world.
The way people check for holes on rubbery materials such as tires is by applying tiny amount of soppy water on the surface and try to get air flow through the material and check for bubbles. Some of the holes are so tiny that you just can't find it with naked eye.
After my wreck my fake leg dealer started me out with alpha locking liners. Theyve tried to get me to switch to the suction kind but i dont do well with change. Im pretty sattisfied. I have issues but its ok
I'm 9 years RAKA.suction. mine is a lot different. The sleeve is inside and only goes as far as the socket. Nothing outside the shell. Also Canada, so none of those supply issues you guys have. I am active on a facebook group, so you help me see some differences to help others with issues, and I thank you for that, Jo. I see now the hole in sleeve issue so common with some below knee. All around above knee seems barely any issues in comparison, except of course learning and using a fake knee. Not competition, lol. But the shape of the thigh, only one bone, and the buttocks as a stopper and to take some weight, liner bending at knee, pinching behind knee. Anyway, I ramble Hi.
You mentioned there were other ways for a prosthetic to attach. If you haven't already, can you do a video on them, and why you went with passive suction?
a few off-topic questions maybe a little intrusive (i really don't know if it is, but I'm a curious fella). Hope you don't mind: After how many hours in a day wearing a prosthetic leg begin to become a hassle, like wearing shoes too long? And how comfortable is it to use one in a hot day?
Sergio Accioly I’m an amputee so maybe I can answer your questions. I can go 10 hours in my prosthetic. My prosthetic doesn’t hurt me , it’s my other leg that does because I have drop foot and all my toes were also amputated. It’s different, of course, for each person. I have a bleeding disorder so I can mild small bruises when wearing it that long. As for wearing it on a hot day, well, I live in Arizona so it gets very wet inside the liner. The sweat can really build up inside it so I carry a towel and occasionally take my prosthetic off to let my stump dry off and get some air and wipe down my liner’s insides. Hope that helps you understand
Jo in every video: Thanks for spending a few minutes out of your day here with me. You could be anywhere in the world, doing anything, and you chose to spend a few minutes here with me! Me: Bold of you to assume I actually have a life, and more important things to do than watch youtube videos
Hey Jo, I don't know if your able to make modifications to your leg, I had to get a whole new socket with a hole in it for a screw with grooves in it. (I can send a Picture of how it looks with the gel sock with the socket.) The current leg I have is the most advance i have had (think total i have had 20 Legs in my life)
I have this same problem! I am going to attach a bungee cord to the lower part of my prosthetic and one to a belt loop on my pants! I will let you know if it works
Are those sleeves breathable Jo? Because I’m an AK, there’s no sleeve as a part of my socket and having to wear something on top of a liner, that doesn’t breathe, sounds less than ideal to me. Currently I wear a liner (and socks) along with a silicone ring for added suction underneath the socket.
Hey Jo, just a suggestion ...check out Christoppher Linde, a Swedish triple amputee who has his own prosthetics company, he is a great, positive guy and maybe he could have a few tips for you. Love from France
My brother is a BN & when he put his liner on. There is a screw on the bottom & when he puts his leg in his leg u can hear it clicking each time his leg is getting closer to the bottom of his prosthetic. Locks it in 😁 how long have u been a amputee? Have u ever tried that kind of leg I was talking about?
Hi Jo I have the pin type prosthetic leg I can tell you wearing extra socks sucks I’m up to 24 layers my stump has shrunken down Iv only had my leg since ending of December maybe my next leg will be the suction tight like you have sorry For bad spelling and bad grammar love your channel Joe
Why the fuck are those foot liners so expensive? It is sad how some people are getting filthy rich from the suffering of others. Anyway, you are an extremely brave individual and I am sure your videos serve as an inspiration for many other amputees. I, myself am considering amputation of my foot due to constant pain I've been living with since 2012, but perhaps would wait a few more years in hopes of more advanced prosthetics becoming available. Had my second attempt of ankle fusion a month ago. Cheers!
totally off topic here.....but: you actually have not one but TWO ceiling fans in your living room/couch area????? summer must be a literal breeze with those!!
Mine fell off When I was doing the monkey bars in fourth grade. If you have problems I ended up changing to one with a pen in the bottom and it’s a lot easier and it never falls off. You don’t have to wear the outside light out you just wear the inside one with a pen at the bottom and it doesn’t touch your skin so it feels like the other one. PS you probably won’t see this but good advice
I was thinking that a small led flashlight would be helpful to find small holes. Sit in a low light room with small pieces of tape handy to mark the hole(s), slip you hand with the flashlight inside the sleeve, and look for any light that might shine through, mark the spot with tape.
I am glad that I am walking and without pain much of the time 90% but being 72 and walking since I was 68 and only an occasional phantom pain. I know that I am lucky but it still sucks. Everting is so much more difficult and I am not complaining, just saying. I see you hop and have a younger friend that does the same. This would be totally impossible for me.
Jo, I hate to be an ass, but what you pulled out of that box near the end is a suspension sleeve, not a liner. The liner is what goes on your residual limb. I too have to get my prosthetist to pull on my suspension sleeve, it’s a real bitch to pull on to the carbon fiber socket. And you’re right small pin holes can be almost invisible.
Cling film/plastic food wrap can help get the sleeve over the footshell easier and less risk of piercing or ripping the sleeve. Plus a dry paint brush to clean the valve from dirt, grit, fur, hair as this can stop the valve closing properly
Holes in the sleeve or the liner, kneeling is bad, I’m tight in the beginning of the day after noon I put a 3 ply sock on as my stump shrinks it takes about 15 minutes for my vacuum to build fully...the farting noise is bad as it usually indicates a leak.....I’m a bka since 2018
Kevin Ellis Modern modern glues are actually really similar - super glue is N-butyl-2-cyanoacrylate, and the more recent stuff is 2-octylcyanoacrylate with some plasticizing polymers to help increase flexibility (especially for internal use IIRC and not a doctor, just love them)
You do not have to take off you leg or shoe. Tell them for medical reasons your shoes dont come off. They will instead to a pat down and swab you leg. You can also get a wheelchair escort thru the airport if walking for long distance will bother you.
I'm glad you could DIY it. The dealership would have done a flush, an alignment, a code reset, and charged an ar...
Mine came off from time to time when I was a kid. Once it came flying off during a soccer game, scaring the hell out of the opposing goalie. He had the ball *AND* my leg flying at him. Funny enough, they said the goal counted.
I laughed too hard at this😂😂😂
I’m recent AK, and mine fell off at physical therapy twice recently. Both times I was on the stationary bike and luckily I saw it happening just before it was about to hit the floor.
@@kevinlynch2248 Mine came off when I was riding an unstationary bike once.
It happens.
Eric Taylor Oh wow! Did it come completely off?
@@kevinlynch2248 Yea. Freaked out a car driver who then sideswiped a parked car.
So glad you fixed it. Vacuum systems are part engineering and part witchcraft! For holes in the sleeve, I use silicone. I also get better results by duct taping the bottom of the sleeve. They last longer also. Getting parts as a traveling amputee for 46 years now can be frustrating. While I appreciate the help of my prosthetists, as experienced amputees we should be free to order the parts ourselves and be taught basic maintenance and repairs. When I compare prosthetics to mountain bikes I am quite frustrated. As a mountain biker, I can order any part online and there is a myriad of resources available online to teach me how to maintain my bike. I can price match between different platforms and find the best deal. Spare parts for my prosthetic limb are way overpriced and often poorly constructed based on my level of activity. I'm restricted from buying online and even finding out prices. For instance, while in Thailand, I needed to ask my prosthetist in Australia to buy a part for me from Germany, then post it to my sister who then posted it to me. This can take weeks, all the while my activity is restricted and walking can be painful while I await the parts to do the repairs myself. I do hope with your influence Jo we can change this.
Ro7an What kind of silicone do you use? Off the shelf liquid silicone, conformal coating, ?
@@israel963 I use the silicone from Ossur but you could use any similar silicone glue product which makes it much cheaper. You can always test some on an old sleeve to make sure it doesn't impact the sleeve
Man. There is so much to being an amputee! You are so resilient.
Aw thank you so much!
If you put water in the sleeve, if there's a hole you'll see the water coming out of it if there is a hole. I wear splints, when they need replacing duct tape lives in my bag. It takes months to get new ones by the NHS, so when the splints break before the new ones are made it duct tape always helps.
Abigail Ash Is your sleeve’s inner covered in silicone or something else? On electronics stuff we use a variety of different silicone (and other) sealants to weatherproof them; maybe one of those might work and be more comfortable than tape? MG Chemicals 422B comes to mind, and there’s both an aerosol and a brush-on version - definitely apply in a well ventilated area and try it on normal fabric then an old sleeve if you do, and use a 40mm USB fan to help it dry/cure... Obviously not medical grade, but I’m guessing duct tape doesn’t quite make the cut there either? Anyway, maybe it would help things last longer - especially if it worked well enough to be able to eventually coat an entire area? I’m also trying to find medical grade liquid silicones, but not having as much luck - the closest consumer-available stuff is for scar treatment and is $$$ 🤷♂️ Anyway if you decide to try it and it works/doesn’t let me know? (Geez this comment went long!)
If I were to look at something like this (I sort of collect DIY methods) I think I would use bookbinding methods.
Bookbinding is a mixture of suture and gluing. The glue should be both pH-neutral and perpetually flexible.
With bookbinding glue you can glue two pieces of textile together. You can also (probably) add an airtight quality to textile.
So I would recommend bookbinding PVA and/or methyl cellulose glue with or without adding new textile material.
Don't know if this will help, but I LOVE when knowledge from one discipline can be used in an other. The evening school system in my country (the Faroe Islands) is awesome!
Turns out my brother in law does use a suction sleeve, I didn’t realize he did! He just gave me a couple old ones to try fixing up and he’s going to try them - his are like $300 even after insurance :o
I had no idea things like these parts were so expensive. That's terrible! A couple of things came to mind regarding patching holes. The product Flex Seal receives a lot of TV commercial time but I've used it on a variety of things with amazing results. I don't know how well it would work in this situation, but it might be worth an experiment. There's also a tape called 'gaffer' tape that might have better adhesion and flexibility than duct tape. Anyway, I'm glad you figure this one out!
They’re very expensive, especially if your insurance doesn’t cover the parts( sleeve, new socket when you loose weight. Mine is no more than gaining or loosing 5 lbs. Anymore, it won’t fit properly.
You calling your your leg Sunshine made me smile. Thank you, for the smile during what has turned out to be a truly sucky week.
Thank you! I am scheduled for a below the knee amputation in 2 months so iv been trying to learn as much as a can so all I can say is thankyou! You make me feel like I can do this and feel confident and happy. To be honest you just make my day when you upload a new video your awesome personally just radiates though the screen! So thanks ❤
Good luck with the surgery!!!!
You will get through just make sure that you have a great surgeon because what he leaves is how you will fit into a prosthetic
I LOVE listening to you talk and think out loud. Thank you for showing us the entire problem solving process. I really enjoyed it. I enjoy all the minutes I spend with you.
Well done for fixing the issue :) my suggestions for if it happens again: hold the liner up to a window to see holes as the light coming through the fabric makes it really easy to see.
Wow liners are expensive!
Similar: put in dark room and shine a flashlight through it
Liners are expensive indeed, unless you like me live in a country that has public health care. I do not envy americans.
@@jrundnaufmads5243 same! Makes me very glad of free national healthcare
Is it weird that I'm not an amputee but I still enjoy watching your videos? I don't even know why RUclips suggested your content to me but perhaps it somehow knew I was curious about it or something...
You're such a nice person and I love the way you talk about this topic in such an honest and open way.
If I ever become a below the knee amputee I'll be prepared :)
I'm not either but I have had an uncle and friends that were so it is fascinating, although I am so glad I have my two legs tho!
me too.
Same here, I have a little (taller) brother who is, but I can definitely relate to a lot of the struggles with doctors on having a TBI and it’s various weird effects like “IT’S 3:30AM! MIGRAINE AND DIZZINESS TIME!” 🤦♂️
EnigmaNL not weird at all! Look at it as you like watching her for personality or good content. It’s the epitome of treating her as a RUclipsr who happens to be an amputee, instead of the other way around. I wish our society could do the same on a whole range of other things as well
@@422SAPD Thank you! :)
Love that you share these kind of things. Whenever I see people with their prosthetic legs I never think about how much adjusting and maintenance is involved.
Well done on fixing the problem. Thank you for giving us able bodied people a insight into what you go through. You never know if will need the information but it will be in your mind if you do every have some thing similar happen.
Left you a like for that outro. I'm happy to spend a few minutes out of my day with you, the way you speak and the general flow of your videos make me feel very much at peace with the world, especially on a rainy London evening like tonight.
Finding holes in a liner is difficult. If you put alcohol in a spray bottle then spray on the liner, the hole will quickly show up when you stretch it. You are correct - the hole is usually at the top trim line of the socket. I've put a hole in my brand new Ottobock Pro-Flex sleeves more than once by kneeling down and resting weight on my knee on a hard surface. Sometimes you can position the sleeve a bit lower on the socket so that the hole rest against the socket outer surface. This will obviously only work limited times since you'll eventually get the sleeve too low to be functional. I would rather have an expulsion type valve on a passive suction system like you have. That pressure relief valve on yours works fine for elevated vacuum, but does not sufficiently allow air to escape like an expulsion valve does. As already mentioned, that type valve is subject to leakage when very little debris (such as sock fuzz, dirt, or maybe even animal hair) gets in it which renders the symptom you were having. Forcing warm water through it (from inside out), while depressing the button usually clears it.
I chose to spend my minutes watching you while sitting outside having breakfast. Also, Sophie is the Best Girl!!
Love spending time watching you Jo, you're like my own little sunshine some days 🙂... it always gives me a small sense of satisfaction to see my name at the end of your videos I love supporting you, you're just an amazing person
Team some assembly required 😂Sleeves rip super easy (especially BK’s when kneeling) so check for tiny holes, check the liner for tiny holes too. Blow up the sleeve/liner and put it in some water to see if there are any tiny bubbles. Watch out for cats walking on you as their claws can pierce tiny holes in your sleeve/liner Ive lost weight so I’m walking out of my liner so my residual is kind of pistoning inside my socket when I walk and because my prosthetic isn’t properly fitting I can feel the full weight of my prosthetic which is knackering swinging my prosthetic when walking(when the leg fits you don’t really notice the weight at all). Top tip use a paint brush to clean out the passive valve as sand grit can easily bung up the valve and stop it closing 🤗🤗 ps Have you had the ole ‘liner fart’ yet? Now trust me walking down Hospital corridors whilst your liner is farting is hilarious and slightly embarrassing when someone passes you 🤣😂🤣 #amputeeproblems #amputeehumour
At least you don't have to blame the dog. "It's my leg, I swear!"
Cynthia P 😂🤣 the strange noises that prosthetics can make when they don’t fit or when components break can be very embarrassing but you just have to giggle thru it and get in to see my prosthetist as soon as i can 🦿🦾🔩🔧🧰🤗
I've been listening to your Videos and especially the live chats your done alot while playing guitar lately and it is realy relaxing. Thank you for providing me with that while I'm in a stressful phase of exams😊
i have learned so much from you and Annika ,i have my leg made, but haven't brought it home yet wish me good luck!
I get emotional watching every single video of yours. I have non Hodgkin lymphoma and i'm bold because chemotherapy. My father lost his leg like you in a car accident and your history makes me remind of him and make me feel not that different from other because i'm bold. Thank you for your vulnerability and open heart.
Footless Jo!
I love the fact that you are walking so well.
Keep it up!
love
Steve Holliday
As soon as you get someone else to look at it the problem goes away 😂... 👍 Love it!
Glad you have fixed it. Mine has a peg that clicks from my silicone to my socket.
My husband cuts a gallon ziplock and puts it between the sleeve and the black part to make a seal and lengthen the life on the sleeves. He has always had issues with brand new sleeves getting pin holes. I think he uses gallon cause of the thickness of the plastic, not necessarily the size although if there are multiple small pin holes it probably helps.
Oh way cool! Thank you!!
Thank you for your video I've been an amputate for 27 years and I almost never feel like I can get full suction Most tempted to go back to the locking pin trick or the strap lol got a new magic ankle you're mad at Uncle that I broke the charger no the insurance had to buy me a new one $800 no $1500 Broken again a month later haven't been able to walk with my nip my new medic foot since I've had it basically 3 or 4 years lol
Well Glad you got all that figured out......Make it a Great Day
"Pistoning" can be caused by having not enough padding on the leg to create a tight fit within the prosthetic. As you move around it pushes fluid up out of your leg which creates space as the leg contracts. This can change multiple times per day. Too little padding and you can hear air escaping and possible get bruising. To much and it can cause too much pressure on the leg which can cause a lot of temporary pain.
Also as an emergency (or safety net) solution would be to buy a velcro thigh wrap. These are designed to support the thigh in the case of an injury but I apply one over the outside and it keeps the leg from slipping especially when my weight is not directly over the foot such as during exercising (sit-ups, leg lifts, etc.).
I get supplies from Amputeestore.com but then my supplies are older/simpler versions and cost a lot less.
On another topic, if you bend your knee a lot (riding bike) the friction between the sleeve and the socket can wear a hole in the sleeve. The best thing that I've found is to line the socket edges with denim. It resists wear but you do have to make sure that it doesn't slide out of place before you start (it migrates slightly unless you glue it in).
I am testing out my new suction system. The sleeve....ok so I got big thighs, and getting it to stay up is not the easiest thing nor rolling it up. My hands and elbows absolutely hate me right now! He said this leg will probably only last 3 months. My pin lock only lasted a month before I needed a new one as I was in a 10ply. Now its been staying at a 15ply. And I was told I would always have 2 sleeves even if one gets a hole in it. I might go back to a pin...not sure yet. And yes I know all about having to get a script from your doctor. Luckily for me my GP absolutely rocks!!!
So what happens if you need a new socket before 6 months?
Hope you sort out the issues with you're prosthetic leg you look amazing love you jo awesome intelligent video
I used to roll the liner down to too. I stopped doing that an and rolled the liner all the way up. Solved the suction issue I was having. Leg stayed on so much better.
It's been awhile since you put this up, but glad I watched. It's taking awhile for my stump to heal, but hoping to start getting fitted for a BK leg in January. I've been wondering what Hanger Clinic (mine is in Decatur Illinois) will suggest for me. The more I watch, the more a pin lock system seems logical. In three months I've beat my iWalk all to heck, and it's nowhere near as precision as a leg. I own a repair shop (auto upholstery) and clomp through a busy cluttered shop, climb over, around and through things including boats and cars, and just generally refuse to give in to not having a leg (except going up the rung ladder at one of my lofts. My fiancee and a friend giving me a hand have expressly forbid it, lol). It seems the pin lock might be a bit more archaeic, but more on the rugged side.
Dude you're awesome! I'm a double bke and have have had a pin lock system for like 8 years. Have you ever tried a different system?
Funny you made this video because I found out all this on Tues when I went in to my prosthetic appointment because my leg wouldn’t seal... my sleeve had holes was using the same one for six months 😱
Could be worse, it could've made a farting noise. ;)
😆😆😆😆😆
Good video! I'm happy things worked out
Where I am (Canada) everything is ordered or manufactured through one department at the rehab hospital luckily and I can get a problem with by prosthetics (I have 4 items through this clinic) solved day of appointment. It must be such a pain to have to get things shipped in.
Before I signed for my leg I included in my leg contract 2 liners, 1 extra outer sleeves, I complete set ottoboc sock set and 2 Shrinkers and when I get to 10 ply I get cast for new socket plus adjustments in between sockets....mine was due to a work accident and my attorneys were very knowledgeable about amputations..I’m a bka
It's really bad when you are walking through someplace quiet like a library, and your leg is blowing raspberries.
How do you explain, "It's my leg."
Oof 😄
@@lewando7687 pth...pth...pth...
Good ole liner farts 🤣😂🤣
Useful information, my friend!!
Are your headaches and chronic pain directly related to your amputation and the use of a prosthetic. I am 2 days away from my right leg below the knee amputation surgery and you have been my sole source of info via you tube. I'm also curious about what level of post surgical pain you experienced and months later, what specific pain meds you take on a regular basis. I hope you are willing to share this info.
Whenever something on my wheelchair makes a new noise or just seems "off" I get the same reaction you described when you hear your leg hissing air. That kind of shit is expensive to fix!! I had to purchase a new $2,000 wheelchair because my current frame is bending enough to cause critical alignment issues (my chair doesn't really turn left anymore, and it's terrifying and dangerous).
Have you ever considdered a pin conection beteween youre liner and the prostetics? Works very good and i used the system for over 20 jears.
This woman is cute and has a good personality. Wish the best in the years to come.
Thank you for sharing this, it's very interesting! I'm curious, why have you gone with a suction system as opposed to a pin system or other system?
What those replacement sleeves and liners cost are crazy, they just gouge the crap out of people; typical medical world.
Thank you for sharing the troubleshooting :)
The way people check for holes on rubbery materials such as tires is by applying tiny amount of soppy water on the surface and try to get air flow through the material and check for bubbles. Some of the holes are so tiny that you just can't find it with naked eye.
After my wreck my fake leg dealer started me out with alpha locking liners. Theyve tried to get me to switch to the suction kind but i dont do well with change. Im pretty sattisfied. I have issues but its ok
I'm 9 years RAKA.suction. mine is a lot different. The sleeve is inside and only goes as far as the socket. Nothing outside the shell. Also Canada, so none of those supply issues you guys have. I am active on a facebook group, so you help me see some differences to help others with issues, and I thank you for that, Jo. I see now the hole in sleeve issue so common with some below knee. All around above knee seems barely any issues in comparison, except of course learning and using a fake knee. Not competition, lol. But the shape of the thigh, only one bone, and the buttocks as a stopper and to take some weight, liner bending at knee, pinching behind knee. Anyway, I ramble
Hi.
You mentioned there were other ways for a prosthetic to attach. If you haven't already, can you do a video on them, and why you went with passive suction?
a few off-topic questions maybe a little intrusive (i really don't know if it is, but I'm a curious fella). Hope you don't mind: After how many hours in a day wearing a prosthetic leg begin to become a hassle, like wearing shoes too long? And how comfortable is it to use one in a hot day?
Sergio Accioly I’m an amputee so maybe I can answer your questions. I can go 10 hours in my prosthetic. My prosthetic doesn’t hurt me , it’s my other leg that does because I have drop foot and all my toes were also amputated. It’s different, of course, for each person. I have a bleeding disorder so I can mild small bruises when wearing it that long. As for wearing it on a hot day, well, I live in Arizona so it gets very wet inside the liner. The sweat can really build up inside it so I carry a towel and occasionally take my prosthetic off to let my stump dry off and get some air and wipe down my liner’s insides. Hope that helps you understand
@@lyndahall5702 Thank you for your time, Lynda. It's been an education.
Very helpful, thank you.
Jo in every video: Thanks for spending a few minutes out of your day here with me. You could be anywhere in the world, doing anything, and you chose to spend a few minutes here with me!
Me: Bold of you to assume I actually have a life, and more important things to do than watch youtube videos
Omg! 8m so happy I stayed til the end! Surprise puppy!!
Hey Jo, I don't know if your able to make modifications to your leg, I had to get a whole new socket with a hole in it for a screw with grooves in it. (I can send a Picture of how it looks with the gel sock with the socket.) The current leg I have is the most advance i have had (think total i have had 20 Legs in my life)
I have this same problem! I am going to attach a bungee cord to the lower part of my prosthetic and one to a belt loop on my pants! I will let you know if it works
Are those sleeves breathable Jo? Because I’m an AK, there’s no sleeve as a part of my socket and having to wear something on top of a liner, that doesn’t breathe, sounds less than ideal to me. Currently I wear a liner (and socks) along with a silicone ring for added suction underneath the socket.
I had a suction leg for 12 years and I could never get it to work properly. I went with a pin suspension and that worked so much better.
Hi, do you mind to share where can we purchase the sleeve
Interesting topic!
Thank You!
Posting on Facebook!
Thank you so much, Don!!!
Hey Jo, just a suggestion ...check out Christoppher Linde, a Swedish triple amputee who has his own prosthetics company, he is a great, positive guy and maybe he could have a few tips for you. Love from France
Sorry, Christoffer Lindhe is the correct name, he is on you tube, facebook and insta
I didn't realize that things were so expensive to replace. Yikes!!
My brother is a BN & when he put his liner on. There is a screw on the bottom & when he puts his leg in his leg u can hear it clicking each time his leg is getting closer to the bottom of his prosthetic. Locks it in 😁 how long have u been a amputee? Have u ever tried that kind of leg I was talking about?
Hi Jo I have the pin type prosthetic leg I can tell you wearing extra socks sucks I’m up to 24 layers my stump has shrunken down Iv only had my leg since ending of December maybe my next leg will be the suction tight like you have sorry For bad spelling and bad grammar love your channel Joe
Why the fuck are those foot liners so expensive? It is sad how some people are getting filthy rich from the suffering of others. Anyway, you are an extremely brave individual and I am sure your videos serve as an inspiration for many other amputees. I, myself am considering amputation of my foot due to constant pain I've been living with since 2012, but perhaps would wait a few more years in hopes of more advanced prosthetics becoming available. Had my second attempt of ankle fusion a month ago.
Cheers!
Is this the Ottobock DVS system?
I haven't gpt my prosthetic yet but does the liner make you sweat since it's rubber! I hope not.
Ask your prosthetic guy for a patch kit for your sleeve. I keep getting holes in mine from working in the garage on my car.
Jay Allen waterbed or swimming pool patch kits work really well
A patch kit. Sounds like the kit for fixing a bicycle tire innertube.
@@lyndahall5702 my prosthetic guy gave them to me they came out this year. Special glue and different sizes to fix holes
totally off topic here.....but: you actually have not one but TWO ceiling fans in your living room/couch area????? summer must be a literal breeze with those!!
Mine fell off When I was doing the monkey bars in fourth grade. If you have problems I ended up changing to one with a pen in the bottom and it’s a lot easier and it never falls off. You don’t have to wear the outside light out you just wear the inside one with a pen at the bottom and it doesn’t touch your skin so it feels like the other one. PS you probably won’t see this but good advice
I was thinking that a small led flashlight would be helpful to find small holes. Sit in a low light room with small pieces of tape handy to mark the hole(s), slip you hand with the flashlight inside the sleeve, and look for any light that might shine through, mark the spot with tape.
i use pin lock some days use nore socks than others cause i feal my bone on skin
Jo, can you tell me the artist who sings the song at the end of your videos?
It is all linked up in the description of this video for you! 😊
@@FootlessJo I missed that! Thanks! It's a great song.
I am glad that I am walking and without pain much of the time 90% but being 72 and walking since I was 68 and only an occasional phantom pain. I know that I am lucky but it still sucks. Everting is so much more difficult and I am not complaining, just saying. I see you hop and have a younger friend that does the same. This would be totally impossible for me.
Bad valve. I had that happen on one of my prostetics. Yay
Jo, I hate to be an ass, but what you pulled out of that box near the end is a suspension sleeve, not a liner. The liner is what goes on your residual limb. I too have to get my prosthetist to pull on my suspension sleeve, it’s a real bitch to pull on to the carbon fiber socket. And you’re right small pin holes can be almost invisible.
Haha you’re absolutely right!! I’m still getting the terminology confused some. Thanks for the correction and you’re definitely not an ass 😉
Cling film/plastic food wrap can help get the sleeve over the footshell easier and less risk of piercing or ripping the sleeve. Plus a dry paint brush to clean the valve from dirt, grit, fur, hair as this can stop the valve closing properly
Holes in the sleeve or the liner, kneeling is bad, I’m tight in the beginning of the day after noon I put a 3 ply sock on as my stump shrinks it takes about 15 minutes for my vacuum to build fully...the farting noise is bad as it usually indicates a leak.....I’m a bka since 2018
I was going to suggest checking the valve itself to see if it was the problem
👣👀👍great detective work.
Had the same problem, turns out the valve on the socket(? Im not english, but the valve on the carbon) leaked.
Use a flashlight at night to check for holes from the inside out.
a THOUSAND DOLLARS for that sleeve??? for a sleeve that looks like it could be made with a silicone mold kit thing????? holy hell
Leg falling off? Use superglue!! lol
(side note - I don't condone using superglue on your skin)
fiddlegirl79 I don’t advise using superglue on stumps but you do know superglue was developed as a surgical wound closure in the first place.
@@jolo-bolo Oh yea...forgot about that. Still don't recommend it using it on stumps.
Kevin Ellis Modern modern glues are actually really similar - super glue is N-butyl-2-cyanoacrylate, and the more recent stuff is 2-octylcyanoacrylate with some plasticizing polymers to help increase flexibility (especially for internal use IIRC and not a doctor, just love them)
Did you ever have problems with your kitties or doggos munchin on your sleeve or other rubbery parts of the prothesis? ^^
Yes she had a dog monch on the foot itself! She made a video
Amy Dyson (immediately scurries to find it 😂)
Hey could u tell us how u deal with airport security ? I've seen dealing with wheelchair on a airplane.
You do not have to take off you leg or shoe. Tell them for medical reasons your shoes dont come off. They will instead to a pat down and swab you leg. You can also get a wheelchair escort thru the airport if walking for long distance will bother you.
Ok i didn't mean that anyone with a non real limb should been removed, ok I'm rambling. Sorry.
❤❤❤❤ 9:46
Hello Sunshine?
Have you tried taking it off and putting it back on again?
More puppy content!
I have the best fit and functionality with a pin-lock system
👍🏻👍🏻
Flashlight might help, but I could be wrong.
fin love u
Why do you need more socks as the day goes on? I would have expected the opposite.
I HATED changing that sleeve,,,,,,like a wrestling match.
question what the hell do they do with the amputated leg 😂
Second!!❤️😍
𝓦𝓪𝓲𝓽, 𝓭𝓸𝓮𝓼 𝓽𝓱𝓪𝓽 𝓶𝓮𝓪𝓷 𝔂𝓸𝓾𝓻 𝓵𝓮𝓰 𝓵𝓸𝓼𝓽 𝔀𝓮𝓲𝓰𝓱𝓽
You should have called this video foot-loose
comment for algorithm
Haha thank you!
Troubleshooting socket problems. What a pain in the butt or residual limb.