Sjogren's: how I was diagnosed, my labs, tests, & lip biopsy
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- Опубликовано: 22 май 2024
- Sjogren's: how I was diagnosed, my labs, tests, & lip biopsy
#Sjogren'ssyndrome #sjogren'sdiagnosis #sjogren'slabs #sjogren'slipbiopsy #livingwithsjogren's #sjogren'strouper #sjogren'swarrier #sjogren'sstrong #autoimmunedisease #hashimotos #livingwithlupus #fibrowarrior #lipbiopsy #chronicfatigue #rhumatoidarthritis
Blood Tests
SS-A (or Ro) and SS-B (or La): Marker antibodies for Sjögren’s. 70% of Sjögren’s patients are positive for SS-A and 40% are positive for SS-B. Also found in lupus patients.
CBC with differential: complete blood count: RBC, WBC, platelets (all blood components)
LFT - liver function test:
Lipid panel: cholesterol etc
renal panel: kidney function
Complete metabolic panel: measures electrolites & protiens in your blood
ESR: shows how much inflammation
CRP: Shows systemic inflammation
The following labs & descriptions are from the John's Hopkins Sjogren's Center web page
www.hopkinssjogrens.org/disea...
"The following tests are routinely performed in the evaluation of a patient with suspected Sjogren’s syndrome"
"SS-A (Ro) and SS-B (La) antibodies: Antibodies are a large family of proteins in the blood that are capable of binding to molecular targets."
"Antinuclear Antibody (ANA): The ANA test is positive in the majority of Sjögren’s syndrome patients. However, a positive ANA test is also common in healthy individuals."
"Rheumatoid Factor: The rheumatoid factor test detects immunoglobulins in your blood that bind to other immunoglobulins, resulting in large protein complexes. Rheumatoid factor is a characteristic feature of rheumatoid arthritis, ... However, it is also common in Sjögren’s syndrome patients..."
imunoglobulins:
"The immunoglobulin quantitation test measures the levels of the most common types of immunoglobulins in the blood, known as IgG, IgM, and IgA."
Complement Proteins: "The complement proteins, C3 and C4, are part of a group of proteins that mediate tissue inflammation and damage in certain immunologic diseases, including Sjögren’s".
other testing for Sjogren's
sjogrens.org/understanding-sj...
Lip biopsy - to look for damaged salivary glands
Schirmer's test - places a special paper under bottom eye lid for specified period of time to see how much tears you make
Sialometry - checks to see how much saliva you produce
Rose Bengal- uses lissamine green, drops in eye used to see surface of eye to check for damage
Tnank you for you advise, regarding to diagnostic assessment and specially '''' what to say to primary health provider if they refuse referral '' .Hag a struggle for two years to get referral to rheumatologist.
Your welcome. I've learned from others. I hope all is going well for you. Gaslighting hurts. Hope you're feeling well. 💜💙🩵🩷
Thank you for your videos. There's hardly any and the ones except two which one no longer does video are not detailed enough. Have you heard of sound therapy.
I haven't. What is sound therapy? Is it something we can do at home? Thank you so much for sharing this. Also if you've not seen channel, My Djogren's Journey, her name is Raha, has Sjogren's, very sweet personality. She has a video of interview with an naturopathic doctor, Jeremy, who specializes in Sjogren's, dietary & functional health. He does video appts. I plan to seek him out. Hope your day is awesome 💜💙🩵🩷
Ì had hphylori that gave me inflammation ..then I had sogrens..once treated for hphylori my dry mouth went away but now I have gut issues I think SIBIO
Thank you for sharing. Hphylori can be so severe. I'm glad was found & treated. Awesome that post treatment the dry mouth went away. Reminds me about important role our gut health plays in our immune system & overall health. Hope your day is awesome! 💜💙🩵🩷
Just wish this insomnia will go away
Yes, & wish I knew what causes it, am on trazodone 50mg at bedtime & take 6 to 9mg Melatonin each night, does help. But I also find that if I eat anything at all past 5:30 or 6pm I'm awake till 2 or 3am. Oh wait, I recall reading in a study that found a fair amt Sjogren's patients have a melatonin production & or release issue. I need to look up that. Hope your able to sleep well tonight. 💜💙🩵🩷
hi what about constipation i have a problem with it which medicine do you take now thank you very much for your help and support
Yes I too struggle with constipation & diarrhea. There never seems to be a consistent balance. I have a sensitive gut so I'm avoiding gluten, dairy, lowered my sugar intake a lot, no soda or carbonated beverages, trying to reduce caffien. Trying to eat more protien, limiting corn. I also have a potato grain issue
I lost my reply, 🤦♀️. I struggle with back & forth constipation & lose stool to diarrhea. A naturopath doctor advised me to cut out dairy ( my worst offender), glutten, sugar, corn & to not eat grains and potatos within 8 hours of eachother per a blood test showed sensitivity to the combination. I cut out carbonation & reduced my caffien to 1.5 cups coffee per day. He said take prebiotics to boost my gut healing as well as a probiotic. Lots of water all day. I notice that when I cheat on my self imposed diet restrictions my constipation & gassiness increases. I've also added more protine to my diet too & reduced animal fats as those irritated inside walls of my intestinal tract which causes diarrhea very quickly leaving no time for the nutrients to absorb. Moving a lot helps too but that's a problem for many people with fatigue & body pains, Winter makes that worse. I hope i didnt so too much over share. I've heard real licorice tea helps too especially for digestion. Hope your feeling good. Thank you again. 💜💙🩵🩷
@@livingwithsjogrensdisease1550 thank you very much for quick replay so what medication do toy take now?
Mam oregano oil capsule gd for health..pls tell me
Hi. Thank you for your question. I don't know but will find out. I'm going to see a naturopath doctor who specializes in Sjogren's autoimmune disease & diet & suppliments for autoimmune disease. I would be very careful about high potency suppliments too. This will be good to cover in a video once I'm educated more. Thank you again. I hope you are feeling well. 💜💙🩵🩷