Sjogren's Syndrome: Top 5 Vitamins to Help Your Symptoms

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  • Опубликовано: 27 сен 2024

Комментарии • 313

  • @bigdebs1886
    @bigdebs1886 Год назад +65

    What a wonderfully aware intelligent ,(PROPER) doctor , if only the world had more of you 😊

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +5

      Thank you so much for the kind words!!!

    • @NansGlobalKitchen
      @NansGlobalKitchen 11 месяцев назад +3

      I agree! Doctor what can I take for indigestion I have this feeling of like I am choking and burping constantly and trying to get the air out. It's a weird uncomfortable feeling and it makes my BP read so high. I was reading that it can be my Thyroids. I have no gallbladder and had a hysterectomy with no advise on after care for both surgeries. I take a digestive enzyme but it does not help much. Any advise on this is much appreciated. Thankyou in advance!

    • @suemoo22
      @suemoo22 4 месяца назад

      @@NansGlobalKitchen. I have the same symptoms, can’t burp and wake up choking. Look up Retrograde Cricopharyngeus Dysfunction. I think that’s what we have.

  • @GrandmaMaeCorporation
    @GrandmaMaeCorporation Год назад +60

    I can not praise cod liver oil enough. My hands were unable to open completely for 2 years until I added this to my diet. I only take a teaspoon daily. Cod liver oil has vitamins A& D in a natural form. I always drink orange juice or some acidic drink to rid it from my mouth after taking it.

    • @JosieStev
      @JosieStev Год назад +5

      I also take a raspberry ketone capsule to help with the fishy burps

    • @NansGlobalKitchen
      @NansGlobalKitchen 11 месяцев назад +1

      ​@user-gi5xo8rp4nWhere do you buy this flavor vitamin from? I don't like the fish taste. Thankyou in advance!

    • @bunnygaffney2765
      @bunnygaffney2765 6 месяцев назад

      What if your allergic to fish

    • @jackiblair7932
      @jackiblair7932 4 месяца назад +4

      I also began to take cod liver oil liquid which comes from the fish from the arctic sea and is processed in Norway. It’s made a huge difference.

    • @Sanaiya14
      @Sanaiya14 3 месяца назад

      Hi! It's new for me so I am still trying to figure out everything.. do you take Omega 3 fatty acids separately than cod liver oil? Some say cod liver oil has omega 3 fatty acids so we dont need to take both..? Also, do you fast? Fasting helps with inflammation

  • @TheKarahLife
    @TheKarahLife Год назад +46

    It’s refreshing to see a doctor - a specialist too - talk about vitamins. It’s been a long time coming. My dad was teaching me vitamin, minerals, and supplements 30+ years ago but it’s just recently seemingly becoming more relevant outside of the health food store enthusiasts. Thank you.

  • @mbd6054
    @mbd6054 5 месяцев назад +1

    Thank you very much, Doctor. It is a great pity that there is such an overwhelming shortage of doctors with your expertise, globally. Not alone are patients often undiagnosed or misdiagnosed, but they're also frequently beaten down and undermined by incompetent doctors. It leads to tremendous, and unnecessary suffering. Your channel is invaluable.

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад +1

      Your kind words mean a lot to me. I appreciate your support and am glad to know my content is valuable to you.

  • @annjohnson7107
    @annjohnson7107 Месяц назад +1

    Added Omega supplements and I have seen improvements. I have added D, B complex, and seen a difference. Ran out of vitamin A and looks like I need to add E. Very helpful. Foods listed in this video are my favorite go to, now I know why.

  • @Ioki-sb2qv
    @Ioki-sb2qv 25 дней назад +1

    Thank you so much for the info. I use Standard Process and I love it.

  • @trish2687
    @trish2687 Год назад +10

    Thankyou for these videos on Sjogrens. 🤗 xxx

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +1

      Share with others the video to spread the knowledge!Thank you for watching my videos!

  • @terribunner1034
    @terribunner1034 Год назад +4

    I also have scleroderma, fibromyalgia, arthritis I have been taking, D 1000, C 1000, B12 1000 and Selenium 200mcg. I also take Citrical and a baby aspirin.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +5

      Share with others the video to spread the knowledge!Thank you for watching my videos!

  • @cuchufleta4555
    @cuchufleta4555 5 месяцев назад +1

    Deci dupa ce am urmărit clipul , înțeleg ca am un doctor specialist ,minunat ❤, mi a prescris toate vitaminele pe care le enumerați dumneavoastră, pe lângă ele mi a dat si Magneziu Citrate, si Magneziu threonate ❤. Va mulțumesc pt informatia atat de completa pe care o difuzați.
    Explicați atât de bine, face să pară totul mult mai simplu pt pacienți.

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      Va multumesc mult, da ti un SHARE la altii!
      Vederi si traducerea in Lb romana?

  • @debbiemarshall4657
    @debbiemarshall4657 Год назад +10

    ❤️🙏❤️THANK YOU DR.FOR THE INFO ON SJOGRENS .

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +1

      My pleasure,Thank you for watching my videos!share it with others to help them!

  • @smc130
    @smc130 Год назад +7

    Vitamin C has been extremely helpful to me in healing and preventing bruising. Since I use the chewable 500 mg it can burn my mouth sometimes but it’s worth it.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +2

      Thank you for watching my videos!

    • @Jerry-zx7rf
      @Jerry-zx7rf Год назад +1

      do you find food makes fatigue or joint pain other symptoms worse? vitamin c is one that does it for me ascorbic acid

    • @lilaccilla
      @lilaccilla 11 месяцев назад

      I have DM (Dermatomyositis ) but I have dry eyes also . Have you tried along with vitamin C , citrus Bioflavonoids ? they have helped tremendously with my bruising and vasculitis .

    • @Jerry-zx7rf
      @Jerry-zx7rf 11 месяцев назад

      asorbic acid vitamin c and citrus makes me worse makes my ear ringing louder too so does sugar and salt and other things vitamin d in high doses is a life saver @@lilaccilla

  • @sarikagupta1752
    @sarikagupta1752 Год назад +7

    Thank u so much for sharing such good and informative videos on this sjogren syndrome.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      Thank you for taking the time to watch my RUclips channel! I appreciate your support and interest in my content. It is always motivating to know that my videos are reaching and resonating with people like you.
      Thanks again for being a part of my community and supporting my work.

  • @annieligan3081
    @annieligan3081 6 месяцев назад +3

    Thank you so much Dr. Im really so Happy that i found you this in your vlogg . It helps a lot cause i newly diagnose wt this Sjogrens syndrom . Very interesting to those who have this kind of desease . ♥️🥰🤗🇳🇴🌹🌺🌷

  • @vandanachouksey8568
    @vandanachouksey8568 4 месяца назад +3

    Thankyou Doctor for great information 😊

  • @mariahs245
    @mariahs245 Год назад +6

    Thank you! Would love to see more of your videos!!

  • @jerrimuhammad2308
    @jerrimuhammad2308 Год назад +3

    I take most of the vitamins mentioned. I also take Coenzyme Q-10 and Turmeric. I don’t take vitamin E. But I will. I also take vitamin A, elderberry, and bilberry.

  • @SnarkasticSunny
    @SnarkasticSunny Год назад +9

    Thank you so much for sharing your knowledge in a way we can understand. Thank you also for caring enough to do so!
    I wish you were local to the East Bay of N. CA ~ I have long needed a Dr. like you! What a difference a really good doctor can make in someone's life! Unfortunately, I had Kaiser Permanente for 13yrs & when I had a good doctor, Kaiser HMO would not let them do what they felt was needed. It has cost me dearly ~ Ins. Co. should not decide medical care -- That's what doctors are for!

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +3

      Thank you for watching my videos!

    • @smc130
      @smc130 Год назад +3

      When I was an RN in labor and delivery I remember one obstetrician complained an insurance representative called to ask him about preauthorizion for a planned cesarean delivery. The rep wanted to know how the doctor knew he would have to deliver vía cesarían. The patient had a placenta previa! He asked her if she knew what it was! Obviously she did not and he immediately enlightened her. Insurance companies did not go to medical school and have no right to dictate provision of patient care to doctors!

  • @ranginijeyatharan6665
    @ranginijeyatharan6665 11 месяцев назад +5

    Thank you for your advice

  • @anamariajuch-calero6116
    @anamariajuch-calero6116 8 месяцев назад +2

    Thank you for the advice and information you give in this video
    I take every day all those vitamins ( only one a day omega 3) , vit C 1500 slow release, vit D3( European graduation) is 75ug,
    B I take complex B forte. Additionally I take curcuma capsules (2 capsules) ( should be spread 1 three times a day… but I will forget so I take 2 in one go together with the other vit’s
    I have been able to reduce the pain and symptoms of sjogren
    I couldn’t use my hands properly due to pain and stiffness and now they are normal ( after a year of vitamins and no medicine)
    I am truthful user of vitamins . Not 6 months… undetermined.
    Is an expensive option but it works for me.
    Hope it helps someone

    • @rheumatologistoncall
      @rheumatologistoncall  7 месяцев назад

      That's incredible to hear! It's amazing how the right combination of vitamins can make such a difference in managing symptoms. Keep up the great work!

  • @phyllistremblay9806
    @phyllistremblay9806 Год назад +4

    Thank you for your support

  • @MyFavoriteColorIsBLUE
    @MyFavoriteColorIsBLUE Год назад +7

    Thanks Dr.

  • @ayanglatzudir2040
    @ayanglatzudir2040 8 месяцев назад +2

    Thank you so much Doctor for details information 🙏 God bless you 🙏

  • @paulasmith7803
    @paulasmith7803 Год назад +2

    I already take most of these vitamins and fish oil. I had not thought of vitamin e but will add it. My husband has diabetes and I am getting him on a similar plan that I am on.

  • @catherinehall7217
    @catherinehall7217 Год назад +1

    I really wish you were my doctor. Everyday is like pushing a boulder uphill

  • @tu2193
    @tu2193 Год назад +7

    I have Sjogren’s Syndrome I’m from Colombia and I’m trying to understand your videos to know what to do with the symptoms I have. There are no more tears in my eyes, they suffer a lot and more in the climatic changes that occur in California, USA. The breeze and the dryness of the environment cause me dryness and discomfort. I don’t have saliva and my tongue cracks or breaks when something has pepper or spicy, ketchup, salt or acids. My body hurts at times and I get very tired, I have fatigue and sometimes anxiety, stress and constant mood swings, I did not have children because according to that it would not be good for me and for the embryo. My wrists and knees hurt, the Kaiser doctor prescribed Pilocarpine and nothing else in Colombia they took that medicine from me because it was not at all good. I have problems with my liver, next Monday I will have an echo to see his condition. I don’t know what to do anymore, I’m 39 years old and I already want to die for all this and more. They keep me in my parents, they depend on me and my nephew to whom I pay for his studies. I wish you could give me a recommendation, please Dr.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      Your support means the world to me! To help more people and get this information spread faster please:
      👍 Like and Subscribe
      🔔 Turn on Notifications
      👥 Invite friends to join
      Together, let's keep our community growing strong! 🌱🚀

    • @viribaby
      @viribaby Год назад +8

      Have you tried to sign up to a phase three clinical trial for Sjogrens? Maybe you can find something there.

    • @misstellamb1717
      @misstellamb1717 10 месяцев назад +2

      Algo que me ha ayudado mucho en la angustia ha sido creer en Dios. Creo firmemente en la Biblia y lo que dice cuando afirma que este cuerpo enfermo (y el de todos los humanos, pues todos somos débiles en muchos sentidos) es temporal, y hay una vida eterna sin más pecado, dolor, muerte, violencia ni enfermedad; la vida eterna para todos los que creen en Jesús y son justificados por Él. Por mientras creo que es muy útil reducir el estrés, apoyarse en gotas lubricantes, hacer ejercicio aeróbico (puede ser andar en bici, estiramientos en casa) que también ayuda a reducir el estrés y a relajar el cuerpo, y tener apoyo, desahogarse con seres queridos...es muy importante relacionarnos. Es difícil vivir así, pero somos afortunadas por muchas ayudas naturales como agua, té verde, frutas y verduras que hidratan, y otras de la medicina como gotas lubricantes, pasta de dientes y sprays para boca seca, etc. Un saludo

    • @josinacastelo-branco9599
      @josinacastelo-branco9599 10 месяцев назад

      Hi darling, try hydroxychoroquine, hormones, oestrogel it’s very good, it’s helping a lot and believe in God you will be cured and if there is something that is making you feel upset try not to think to much in problems

  • @sarahjensen2473
    @sarahjensen2473 Год назад +7

    Folic acid isn't a good choice for many people. B vitamins with methylfolate are more expensive, but worth it if you have the MTHFR mutation.

    • @TheKarahLife
      @TheKarahLife Год назад

      That’s me…homozygous for the MTHFR C677T variant (two copies).
      Been trying to get more info. My B12 always shows in the 4 digits (last was 1344) but am always tired, cold legs/feet, low temp at night (96.1-97.3), have no colon (so lacking ileum absorption) & take a PPI. My current cbc is fine, no anemia. Some physicians think I don’t have low but my primary thankfully thinks it could be paradoxical B12 deficiency. Trying to find specialists that can go deeper on the blood work and check “active” B12 is very difficult for me tho.
      We are also checking my thyroid this week.
      Thanks for mentioning that.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +2

      Thank you for watching and supporting my channel

  • @kareemahmed7028
    @kareemahmed7028 Год назад +4

    Hello, can you make a video about the causes of essential tremor and gain treatment

  • @jnash5137
    @jnash5137 Год назад +1

    I missed the dosage of Vitamin E per day. I enjoyed the informational video. Thanks,

  • @margaretsmith1902
    @margaretsmith1902 5 месяцев назад +1

    I take all the supplements you recommend plus vitamin K2 with Vitamin d plus evening primrose oil and blackcurrant seed oil. I have suffered from sjogrens syndrome for over 20 years before I was diagnosed and longer before that. I also manage it with diet and relaxation techniques such as meditation and qi gong

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      It's amazing to hear how you're managing your health so effectively with supplements, diet, and relaxation techniques!

    • @sandrabradley3703
      @sandrabradley3703 5 месяцев назад

      How do you use the black seed oil?

  • @joaquinamellylim7794
    @joaquinamellylim7794 5 месяцев назад +1

    Thanks Doc....helped me a lot.

  • @garyg6000
    @garyg6000 Год назад +2

    Along with the supplements mentioned, I have found that taking CoQ10 and PQQ increases my energy level.

  • @BarbsCraftStudio
    @BarbsCraftStudio Год назад +16

    Would it be a good idea for a Sjogrens patient to have a vitamin profile test done? Thinking about asking my doctor to run this. I hate taking pills so would prefer to take only those I need

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +5

      Yes! Thank you for watching my videos!

    • @vivavita3769
      @vivavita3769 9 месяцев назад

      I had a vit B12 test done due to the fatigue of Sjogrens. It was low The supplement helps somewhat.

    • @jeanniepurcella8363
      @jeanniepurcella8363 7 месяцев назад

      @@vivavita3769 m ml o lo

  • @mariahendrickson2873
    @mariahendrickson2873 5 месяцев назад

    Thank you so much. I currently taking vitamin C,D, B12.

  • @tinkfan63
    @tinkfan63 8 месяцев назад +1

    Omega 3’s have changed my dry eye symptoms from severe to mild. I am using Rx Lovaza (sp) huge benefit

    • @rheumatologistoncall
      @rheumatologistoncall  8 месяцев назад

      That's amazing to hear! It's great that Omega 3's have made such a positive impact on your dry eye symptoms. Keep up the good work!

  • @marjanadidi1261
    @marjanadidi1261 Год назад +1

    Thank you, I need it this video because I just started to take vit E , thank you ❤🙏

  • @Huckfintress
    @Huckfintress Год назад +3

    I’m sorry I am in a serious brain fog right now watching this I’m having a Sjogren’s flare I do not have the energy honest to God to rewatch it although I’m grateful for it, could someone please restate the milligrams or correct dosage for each of the vitamins that she mentioned recently I was prescribed 50,000 units of vitamin D because I had pneumonia and I was very sick and my vitamin D levels had plummeted I wasn’t taking anything for the longest time and I was living in northern California did not get much natural sunlight, but I cannot take that much now because it would be entirely too much. If anybody could please just list the correct dosages of all vitamins that she mentioned, I would greatly appreciate it if I had the energy to scroll back through I promise you I would I’m getting ready to take a much-needed nap, I’m in the midst of a major flare right now, but I’m so glad I found this doctor in this channel. I hope everyone takes very good care of themselves. Be well rested well and be good to yourself always

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      thank you for watching!

    • @missysj7970
      @missysj7970 Год назад +2

      Have you tried wet cupping (hijama). Look for a registered hijama therapist in your area. It will give your lymphatic system a much needed cleansing and boost.

  • @melodyheredia5184
    @melodyheredia5184 5 месяцев назад +9

    Just found your page. I live in a small town in Az with only on rheumatologist that will pick and choose who he will see. My PCP send my blood work to this office and the Dr said my numbers for autoimmune disease are PROBABLY false positive even though I have been on thyroid meds for close to 60 years. I have many symptoms of sjogrens so I will continue to follow you for information and help

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад +2

      WE do see patients in AZ! check my website Rheumatologistoncall.com

    • @apollonia6656
      @apollonia6656 Месяц назад

      I wish the docs I've see so far had 10% of the knowledge you have.
      Ironically a few years ago when I broke my leg I decided to take But D and But B12 +off my own back) because I was thinking of brittle bones and I felt so much better with my ither symptoms, but being a psychologist yes: I said it was wishful thinking and sympathetically influenced.....I may well have been wrong !
      Thank you so much for the info and I shall go back on both bits at sensible doses.
      Kind regards.

    • @apollonia6656
      @apollonia6656 Месяц назад

      PS: So sorry but UTube spelled Vit as But ....typos, typos !

    • @XOXO-vd3bg
      @XOXO-vd3bg 12 дней назад

      Same BS here

  • @rosimonterrey9202
    @rosimonterrey9202 5 месяцев назад

    WONDERFUL INFORMATION DOCTOR THmk you

  • @dianesilla3432
    @dianesilla3432 5 месяцев назад

    I’m taking all of these except vitamin E, which I may add to my regiment now. I also take turmeric & magnesium glycinate at my rheumatologist’s direction. (I have not noticed any effect from the magnesium glycinate since starting it 3 months ago, so I will discontinue it when Ive finished the bottle.) I started taking collagen peptides last year, & found it VERY helpful at reducing cramps & muscle/joint pain. Plus my skin is improved (no rash!) Lastly, I take cranberry to help with UTIs, which I seem to get a lot of since my Sjögren’s diagnosis. I’ve never gotten a UTI when taking cranberry. One more thing-I also have osteoarthritis. When I’m having a flare up & stiffness/soreness becomes a bigger problem, I have used CBD/THC 1:30 with great results. Because my kidneys are at risk, I have to avoid NSAIDs, so this has been a very good replacement for meloxicam!

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      It's great to hear that you've found a combination that works for you!

    • @annemurphy9339
      @annemurphy9339 4 месяца назад

      The magnesium glycinate is so important for your heart and bones, it would be a good idea to listen to a couple videos here on YT about their health benefits before abandoning it. Two channels that I know have informative shirt videos on magnesium glycinate are Motivational Doc and Dr. Berg - lots of others too.

  • @MichelleCapers-fr2ig
    @MichelleCapers-fr2ig 5 месяцев назад

    Blessings to you Doctor for your passion and sharing this knowledge with us. This has been long battle, but with God and information like this, I will continue my fight! #autoimmunediseasewarrior

  • @miceymiller1645
    @miceymiller1645 Год назад +1

    Thank you Dr.😊

  • @ImaCountryGirl2
    @ImaCountryGirl2 Год назад +3

    There was no dosage amount of Vitamin E, though I may have missed it. Thank you for your efforts to help.

    • @kimberlyrineer6822
      @kimberlyrineer6822 Год назад

      She said 1000 to 2000 IU daily

    • @ImaCountryGirl2
      @ImaCountryGirl2 Год назад +2

      @@kimberlyrineer6822 Thank you for responding Kimberly! I wrote down 1,000 to 2,000 IU daily for Vitamin D, not Vitamin E. Mayo Clinic, along with others, recommends 15 mg as safe for Vitamin E. I reckon I will follow those guidelines, I just wish she would have been specific on the level for Vitamin E, in case there is a different dosage.
      Maybe the doctor will see this discussion, and specify the correct amount for Vitamin E.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +4

      15 mg for Vitamin E

    • @judymorgan319
      @judymorgan319 Год назад +4

      Kimberly, that's way too much vitamin E. That could cause heart problems taking 1,000 to 2000 units a day. I've been taking 400 units a day, a safe dose, for about 40 years now because it prevents muscle spasms in my lower legs. I started doing this after being in the hospital and not being able to walk. A nurse and another person told me to take vitamin E 400 units and it has worked all these years to prevent muscle spasms. Just wanted to share this info with you.

    • @smc130
      @smc130 Год назад

      My rheumatologist has me take 5000 units of D3 and 800 units of vitamin E. Maybe being 74 makes a difference

  • @nurqamruddin9989
    @nurqamruddin9989 4 месяца назад

    ❤ thanks 🙏🏽 for sharing this information ❤❤❤

  • @deboraharmon9459
    @deboraharmon9459 Месяц назад

    Having a double t cell mutation.I would highly recommend you tell your patients to take vitamin K with the vitamin D or them We'll end up getting calcification in their arteries How do I?
    Know that because it happened to me

  • @carolevas9301
    @carolevas9301 Год назад +1

    Thank u so much dr.

  • @kandfedwards8525
    @kandfedwards8525 Год назад +1

    Thank You.😍

  • @shirlburris-fg8eq
    @shirlburris-fg8eq Год назад +4

    I thought my sjrogens syndrome was causing all my issues. I found out I now have clear cell endometrial uterine cancer. And a tumor in between my thyroid in my pelvic. Do I ever get a break in life

  • @deborahboucha9375
    @deborahboucha9375 Год назад +1

    Great video!😊

  • @momingermany1084
    @momingermany1084 11 месяцев назад +2

    Anything that will help with difficulty swallowing?

  • @marie-anne8780
    @marie-anne8780 7 месяцев назад +1

    Can you put the comments in french ? Thanks for your videos ! 👍

  • @TheKarahLife
    @TheKarahLife Год назад +3

    With regards to the sugar free items, I totally can not have many types of “no sugar added” beverages or foods that contain sucralose aka Splenda or aspartame bc of how it turns stool into water…even Or especially in me (ileostomate) and can consequently cause dehydration but I haven’t had that reaction from monk fruit or erythritol so I try to stick to those as my alternatives to sugar.

    • @TheKarahLife
      @TheKarahLife Год назад

      Oh goodness - I think I meant to post this comment under another Sjogren’s video of yours! 🤦🏻‍♀️ Sorry Doctor! 😊

    • @pennyc11
      @pennyc11 Год назад +2

      Adding beets too to smoothies adds a sweetness to them.

    • @TheKarahLife
      @TheKarahLife Год назад +1

      @@pennyc11 I LOVE beets!!! I eat them almost daily LOL!!

    • @judyrobertson5564
      @judyrobertson5564 Год назад +1

      Monk fruit is wonderful. I recently heard erythritol was associated with heart problems, so I would research before taking anymore.

    • @TheKarahLife
      @TheKarahLife Год назад +1

      @@judyrobertson5564 Right - same here - I have seen a lot of videos on that lately, but some in the more holistic or functional med community are saying that there wasn’t an actual causation, but more correlation so they really do need to do more studies.

  • @bettyjean6066
    @bettyjean6066 24 дня назад +1

    I Wish U Were My Doctor. I Went To Doctor after Doctor. No One Will Listen To Me. I dont know What to do anymore. Can you Help Me Please 🙏🙏

    • @rheumatologistoncall
      @rheumatologistoncall  23 дня назад

      I really appreciate your kind words! It’s frustrating when it feels like no one is listening. Remember, seeking a second opinion or finding a specialist might be the way to go. Don’t lose hope!

  • @vickythomopoulos2463
    @vickythomopoulos2463 4 месяца назад

    Thank you

  • @pennyc11
    @pennyc11 Год назад +2

    HI Doctor. a dietician said consuming oranges, tomatoes are bad for us? Is that true? I have been putting an orange in my salad and a tomato. I do take Vit C but I can change diet more if it will make a positive difference. Only Vit D has been an issue lately but I had not being taking as much as usual. I just got out of the habit of taking it daily.

  • @jeanarena3222
    @jeanarena3222 Месяц назад

    Vitamin A helped a lot. What do you suggest for a patient who has RA, Lupus Sjogren's? And immune deficiency in the sub levels, I took gamma global in for yrs. And I felt it helped, now they took it away, also B 12 shots.

  • @claudiamattos7405
    @claudiamattos7405 4 месяца назад

    Loved all the information. Just one question. What's the recommended dosage for vitamin E? I didn't see a recommendation. Thanks.

    • @rheumatologistoncall
      @rheumatologistoncall  4 месяца назад

      The recommended daily amount of vitamin E for adults is 15 milligrams a day.

  • @lkleeberg
    @lkleeberg 9 месяцев назад

    In addition to the vitamins I take turmeric supplements, and Mega 3 flaxseed eye drops help as much or more than expensive PRP eye drops.

    • @rheumatologistoncall
      @rheumatologistoncall  9 месяцев назад

      Thank you for watching my channel! Share the information with others in need!

  • @Sanaiya14
    @Sanaiya14 3 месяца назад +1

    1. What's the difference between Omega 3 fatty acids and Cod liver oil supplement? Some people say to take both but I am scared it might be too much.. Cod liver oil has vitamin A, D and Omega 3 so is it better to take this instead of omega 3 fatty acids?
    2. Can fasting help with lowering inflammation?
    3. I was prescribed to take 50,000 IU of vitamin D when I had terrible headaches and my vit D was too low.. after 6 months, it was upto 70 so my doc changed it to 2,000 IU daily.. it's been around 6 months and now i feel like my Sjogren symptoms are acting up... should I continue taking 2,000 IU of vitamin D or increase it? I am also taking 1,000 mg of B12, and 200 mg of Magnesium Glycinate and starting to think about taking Cod liver oil supplement as well.. I have lost my job/insurance so have no idea what my levels/numbers are

    • @rheumatologistoncall
      @rheumatologistoncall  2 месяца назад

      cod oil supplements contain omega 3, you take one or the other, not both
      Thank you for watching my channel!

  • @pennyc11
    @pennyc11 Год назад +4

    I always have problems trying to keep my Vit D level up. I have been taking Vit C + D but I must take more D to reach a good level. Vitamin b12 however gives me hives! Since we get it naturally from meat products, consuming some meat has helped. I become iron deficient when I go total vegan so I went back to some meat. Iron tablets make me constipated.
    I know it doesn't make sense but I do have dry eyes and must use drops but I don't have a dry mouth? Every since pregnancies not a problem for me but I must drink water/liquids a lot.
    Good news though, not sure why? Phlegm is less of a problem lately? Hum..not sure why? Maybe using an inhaler more is helping? I am going to ask about Vit b12 levels.

    • @shenelleboston6900
      @shenelleboston6900 Год назад +2

      Probiotics will help constipation also

    • @lvnn6198
      @lvnn6198 Год назад

      Healthy vegan diet helps me a lot. I make beet, spinach and Barry smoothies daily. I alternate with spinach. Apple and lemon smoothies. Starts my day off with lots of natural vitamins and fiber. Working out when you're constipated will help that almost immediately. Going for a walk and getting sunlight daily will help your vitamin D naturally.

  • @alicekarst1291
    @alicekarst1291 Год назад +2

    My mouth feels like snot or sheets of thick saliva. I chew and some of this releases but of course it is clear but seems like pustuals. So gross. At night I often choke on this stuff. I wear a guard at night because I can’t sleep. Always trying to chew this stuff. This has been going on for 6 years. Very depressing. Please help. I’ve seen 12 dentists and docs

    • @missysj7970
      @missysj7970 Год назад

      Try wet cupping to clean your lymphatic system. It’s also called hijama. Look for someone qualified.

  • @anthony-t2y
    @anthony-t2y 4 месяца назад +1

    I take 1 tablet by mouth daily Hydroxychloroquine 200 mg . Is ok if I get vitamine d, c, e, b12, omega 3? In the same day?

  • @CatherineAguirre-pf4co
    @CatherineAguirre-pf4co 10 месяцев назад +1

    Thank you very much for your informative videos. Would 5,000 IU daily of vitamin D3 be ok or should it be 1,000 to 2,000 IU per day of vitamin D, not D3? What is the difference between vitamin D and D3?

    • @rheumatologistoncall
      @rheumatologistoncall  10 месяцев назад

      Depends on your vitamin D level! Thank you for watching my videos!!!!

    • @IndaMy-t8n
      @IndaMy-t8n 10 месяцев назад

      Get lab for Vit D every year. If leve 100 or more will need to cut back so don't become toxic. Good idea to get tested every year. Can work with chiropractor that does AK (applied kinesiology) to help with amount to take & review lab results.

    • @kristineanderson4983
      @kristineanderson4983 10 месяцев назад +1

      That's way too much. I've been taking too much also, and I've been studying up. The University of Minnesota says: "Excess vitamin D can cause calcium to build up in the blood, leading to fatigue, nausea, constipation, headaches, and other symptoms. The proportion of Americans who are taking vitamin D supplements at amounts that exceed the recommended limit has risen dramatically in recent years - jumping 590 percent between 1999 and 2014, according to a University of Minnesota study published this week in the Journal of the American Medical Association (JAMA)."

  • @Thehappyme02
    @Thehappyme02 Год назад +2

    I read you need to take magnesium to help with Vit D absorption. I'm hoping that includes Magnesium Glycinate which I've started taking fir heart palpitations. It's helped.

  • @kathyw5811
    @kathyw5811 Год назад +1

    What are your feeling of Tumeric?

  • @MarisaPaola-um5yb
    @MarisaPaola-um5yb 3 месяца назад +1

    beware of taking fish oil with antidepressants, effected my brain balance, and blood pressure meds as well.

    • @rheumatologistoncall
      @rheumatologistoncall  3 месяца назад +1

      Thanks for sharing your experience and warning others about potential interactions between fish oil, antidepressants, and blood pressure medications.

  • @marie-anne8780
    @marie-anne8780 Год назад +1

    Bonjour, pas de L-glutamine ???

  • @iwonazdunczyk1119
    @iwonazdunczyk1119 3 месяца назад

    👍 thanks

  • @mugenahellen1601
    @mugenahellen1601 4 месяца назад

    Dear Dr. My eye sight is getting affected by sjogren syndrome. Pls help

  • @anucageagim941
    @anucageagim941 Год назад +1

    high doses of vitamin d -so called coimbra protocol - is under medical supervision and is restricting calcium intake.there are people with very good results.the doses are individual.blood tests are done often. what is the risk?

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +1

      Thank you for watching and supporting my channel. I cant support protocols that do not have enough scientific data!

    • @patcartbar
      @patcartbar Год назад

      I have Sjogren's and Dr's Eric Berg and Barry both give compelling info in their videos supporting taking higher doses of vitamin D. I've been taking around 15-20,000 IU a day for nearly a year with positive results.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +3

      @@patcartbar please provide us with scientific evidence! I am glad you are feeling better but be careful from whom advice you use.

    • @anucageagim941
      @anucageagim941 Год назад

      @@rheumatologistoncall here is a publication on pubmed

  • @sakinavanak4512
    @sakinavanak4512 5 месяцев назад

    Your video is very helpful Dr. I m suffering from sjorgen but all my medical reports(blood test are negative).
    Doctor has advice Lip biopsy to firther start immunolateral therapy.
    My age is 40. I have severe eye n mouth dryness. I keep drinking water n visiting washroom often. I will start with vitamins as you said.
    Also plz advice lip biopsy or medicine is necessary?

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      if the diagnosis is still in doubt, yes!

    • @RoseSharma-nk4ui
      @RoseSharma-nk4ui 5 месяцев назад

      I'm dr. Sunita it is advisable that please consult immunology or rheumatology clinic and get biopsy done to get diagnosis made.
      I hv Primary Sjogrens syndrome with cns and multiple system involvement. But doctors were adherant on confirming the diagnosis by serology or biopsy to start correct treatment.
      So first arrive on diagnosis

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      @@RoseSharma-nk4ui very true!!!

  • @arpinehnaz2440
    @arpinehnaz2440 Год назад +1

    What is suggestions for the patients about Botox?

    • @vivavita3769
      @vivavita3769 9 месяцев назад

      I researched this and learned Botox is contraindicated with any muscle condition or weakness,

  • @majofarra1
    @majofarra1 Месяц назад

    With all these pills needed. Can I just take a multivitamin to get all these vitamins?

    • @rheumatologistoncall
      @rheumatologistoncall  Месяц назад

      Thank you so much for your support!
      Please subscribe to my channel!

  • @Mikegigiz
    @Mikegigiz 7 месяцев назад

    Very helpful 🥰👍🏼. I don’t have symptoms of anything dry but my test says that I have jsogren syndrome. The only symptoms I have is permanent vibration in my whole body inside you can’t tell and weak toes and elbows. Also breathing issues when something gets stuck in my throat. What I should do Dr?

    • @rheumatologistoncall
      @rheumatologistoncall  7 месяцев назад

      It's great to hear that you found the video helpful!

    • @preachergirl611
      @preachergirl611 6 месяцев назад

      @Mikegigiz Did you ever get any info concerning the internal vibrations? I developed this in 2018 after cold turkey clonazepam and it is still happening. I was just diagnosed with Sjogren's a few days ago. I think the cold turkey off clonazepam started it because that is when the vibrations started along with many other symptoms. It is horrible when waking up in the morning.

  • @dorisdixon7929
    @dorisdixon7929 Год назад +2

    I’m probably deficient in some of these because one doctor didn’t want me to build up my system with supplements because the Medicine for Rheumatoid Arthritis lower your immune system so I try to get from foods

  • @RoseSharma-nk4ui
    @RoseSharma-nk4ui 5 месяцев назад

    Thank you
    Hi
    I'm having Primary
    Sjogren's syndrome with intracranial hypertension, peripheral nervous system and multisystem involvement lungs,joints, muscles eyes , oral ,parotitis with vasculitis. Further not responding to treatment
    If you can extend help in treating this disease

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      I'm sorry to hear about your condition. It sounds really tough.

    • @SuperMichaeljackson1
      @SuperMichaeljackson1 3 месяца назад

      Check out LDN research trust RUclips . Low dose naltrexone is effective for Sjogrens. Been on it for 6 years and symptoms went from severe to mild .

  • @vidaweinstein7595
    @vidaweinstein7595 Год назад +2

    What if you think you have this disease but blood work come up negative?

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      There are other ways to diagnose, follow my videos and contact a rheumatologist!
      Thanks !

    • @vidaweinstein7595
      @vidaweinstein7595 Год назад

      @@rheumatologistoncall I was asking you to share your general knowledge about that because it might also help your audience. Puzzled by your response.

    • @pennyc11
      @pennyc11 Год назад +1

      @@vidaweinstein7595 Why? Click under her name and you will find a video explaining how Sjogren's can be diagnosed. Not everyone with Sjogren's tests positive. Yet there are symptoms that are common enough to create this category. A doctor can diagnosis it through observation of your ongoing symptoms. One visit will probably not be enough if you do not test serum positive. The Dr. does mention other testing forms.

    • @vidaweinstein7595
      @vidaweinstein7595 Год назад

      @@pennyc11 which video do you feel address the particular question? Thx 🙏

    • @Lightuntomypath279
      @Lightuntomypath279 Год назад +1

      ​@@vidaweinstein7595 I just watched a video about that from her. You will find the info if you scan her videos. There's a tear test, lip biopsy and another one.

  • @karlarentz7694
    @karlarentz7694 9 месяцев назад +1

    Is there a single multi vital I can take daily for sjoghrens and lupus ? I'm 65 diagnose 3 years ago after I got covid vaccines.

    • @rheumatologistoncall
      @rheumatologistoncall  8 месяцев назад +1

      Thank you so much for taking the time to watch and comment. Your support means the world to me.

    • @lahhal252
      @lahhal252 Месяц назад

      I'm by 8😮

  • @karenmontoya1099
    @karenmontoya1099 9 месяцев назад

    Hi Dr..Where can i find all this vitamins in one?instead of taking every single one daily

  • @selvinH
    @selvinH Год назад +1

    They detected me t Early Sjogren's síndrome , The saliva dries out and that causes Bad breath is a nightmare.

  • @gloriabenson4482
    @gloriabenson4482 5 месяцев назад

    Doctor, I started taking plaquenil (200 mg x2 a day) in Sept. 2017 and unfortunately my ophthalmologist took me off of it in Oct. 2023 because my vision was becoming toxic- I went to a Retina Specialist who also advised I get off the plaquenil. Have you ever heard of eye toxicity from being on plaquenil? The fatigue is starting again and my eyes are dry even though I use eye drops x3 a day. I can handle the dry eyes but I can’t handle the fatigue. All I want to do is sleep all day which was the only symptom I had before being diagnosed with Sjogrens. Any advice is appreciated.

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      check my plaquenil video ruclips.net/video/VXXBrXmHwQs/видео.html

  • @lilaccilla
    @lilaccilla 11 месяцев назад

    Has anyone tried spirulina as a natural form of vitamin A also ?

    • @rheumatologistoncall
      @rheumatologistoncall  11 месяцев назад

      Thank you for watching my channel! I highly appreciate your support!

  • @lilaccilla
    @lilaccilla 11 месяцев назад

    I have heard about the herb slippery elm bark helping . Anyone try it?

    • @rheumatologistoncall
      @rheumatologistoncall  11 месяцев назад

      Thank you for watching my channel! I highly appreciate your support!

  • @debwhite9432
    @debwhite9432 5 месяцев назад

    thanks for your video's. As regards pernicious anemia it's important to note that a by mouth B12 supplement will not help. It has to be in shots so to avoid the digestive tract.

    • @rheumatologistoncall
      @rheumatologistoncall  5 месяцев назад

      Thanks for the info!

    • @pookiroo
      @pookiroo 4 месяца назад

      Is that true? Never heard that before. I didn't want to take the cyan B12 by shot.

  • @ayushkasdanceworld167
    @ayushkasdanceworld167 8 месяцев назад

    Hello ma'am.. My daughter she is 8 year old.. She is also suffering with Snogren's syndrome.. I m to much worried my daughter ma'am pls help what should i do

    • @rheumatologistoncall
      @rheumatologistoncall  8 месяцев назад

      Thank you for watching my channel, share the videos to spread my educational content!

  • @jilljones4566
    @jilljones4566 Год назад

    Can you take all these vitamins if you have atrial fibrillation and are taking beta blockers?

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      Please discuss them with your physician that understands your situation better!

  • @Mikegigiz
    @Mikegigiz 7 месяцев назад

    What amount of vitamin E?

  • @SB-nb9oo
    @SB-nb9oo Год назад +5

    Thank you for sharing, Dr. Girnita! I have some questions about the vitamin d3. I have RA, Sjogrens, and severe endometriosis and am VERY low in vitamin D. Any time I have taken vitamin d, I have issues with my bowels. I have taken it anywhere from 5,000 units a day to very low doses 600 units a day and about a week to two weeks later, or so I have bowel issues. I call them bowel attacks, but that is probably not the proper term for it. What ends up happening during these bowel issues is I will defecate 4 times within an hour and a half. The pain is incapacitating on my lower left side and then when I defecate my stool will be go from hard, then 2nd stool is a little less hard and by the time I get to my 4th stool within the hour and a half it is very loose (sorry if this is to much information). This does not happen every day. I have asked many doctors about this and they never know what us causing it. Do you know what the issue might be? Do you think I might have issues absorbing Vitamin D?
    I am asking because I know I desperately need to take vitamin D since my levels are at a 9 and should at least be in the 30+ range.

    • @lindapasaribu7066
      @lindapasaribu7066 Год назад +4

      Thanks 4 sharing about syogren syndrome

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +3

      Thank you for watching and supporting my channel

    • @guestguest2030
      @guestguest2030 Год назад +4

      There are Vitamin D patches you can buy, and Vitamin D lotions, that you can use in place of oral supplements. Some people find taking it with magnesium helps, or taking it on a full stomach. Taking it Intramuscularly is an option as well.

    • @pennyc11
      @pennyc11 Год назад +4

      Adding Magnesium to my diet has helped with irritable bowel syndrome. It might be worth a try?

    • @carolecoffman4276
      @carolecoffman4276 Год назад +7

      Have you been to a GI..Left sided pain makes me think about diverticulitis.. Have you had a CT of your abdomen… I have had a lot of GI issues.. A functional physician has been a huge help to me.. She did a GI mapping-I had C did, H Pylori, Candida and my probiotics were off-too much bad and not enough good.. Also not enough digestive enzymes..

  • @kaylacoombs4050
    @kaylacoombs4050 4 месяца назад

    Symptoms?

  • @mdoug7702
    @mdoug7702 Год назад

    Hello Dr .. I've just been told I have some sort of undifferentiated connective tissue disease, but no name for it. Prescribed hydrochloroquin, not taking it yet as I'm on metformin for pre-diabetes that may interact with it. Scared to take it. Also told I have MTHFR. And maybe early signs if sjorgens....can you see this and tell me what you think. Also I was given Vitamin D2-50,000 once weekly for 12 weeks and Vitamin D3 - 5,000 once daily at the sane time. Scared now if thats too dangerous. Please tell me your thoughts. In methylated vitamins & multiphyto iron.... On 1 billion probiotic once daliy also... Nervous. Please help.

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      Thank you for watching my videos!

    • @mdoug7702
      @mdoug7702 Год назад

      @@rheumatologistoncall no response to my questions?

    • @kristineanderson4983
      @kristineanderson4983 10 месяцев назад

      That's a lot of vit D. I would research. Start with the University of Minnesota.

  • @inkstainedgirl
    @inkstainedgirl 6 месяцев назад

    I felt hopeful for a second untill i saw your pricing system. Only hope for the wealthy.

    • @rheumatologistoncall
      @rheumatologistoncall  6 месяцев назад

      I understand your concern. We strive to offer value for every budget.

    • @mari7775
      @mari7775 5 месяцев назад

      Pure cold pressed flaxseed oil has the most omega 3s. I buy them cold from Sprouts store or Wholefoods

  • @barbarac2347
    @barbarac2347 Год назад

    Are there any medications that would help Sjogrens?

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +1

      Watch my other videos and discover the treatments!

    • @patcartbar
      @patcartbar Год назад +1

      My Rheumatologist prescribed Hydroxychloroquine 200 mg twice a day and it has definitely helped. It took about a month before I noticed a difference.

    • @barbarac2347
      @barbarac2347 Год назад

      @@patcartbar Thankyou. I was on it for about 12 weeks and it was great, but I started feeling faint and it was attributed to the medicine and stopped.

    • @barbarac2347
      @barbarac2347 Год назад

      @@rheumatologistoncall Thank you so much! Love your videos!

    • @mayags5321
      @mayags5321 Год назад +1

      @@patcartbar but it affects our vision?

  • @allhewantsisvoo
    @allhewantsisvoo 3 месяца назад

    Is there a way to dm you?

  • @ajaybanshkar6680
    @ajaybanshkar6680 7 месяцев назад

    Emergency: Dry ears leading to sound sensitivity, Dry eys leading to shrinkage eyes & reading difficulty, dry foreskin, dry sinus cavity & many more symptoms So these problem leading to pressure inside head, sensing problem, sleep difficulty since 2009. pilocarpine hydrochloride 5mg is not helping. Please help.

  • @Jerry-zx7rf
    @Jerry-zx7rf Год назад +1

    high dose vitamin d :)

  • @YusufKhan-bv8vb
    @YusufKhan-bv8vb 3 месяца назад

    Meri aankh mein Dane bande Hain aur Pani bhi nikalta hai

  • @mdoug7702
    @mdoug7702 Год назад +2

    Lupus Evaluation: Not Detected
    Then below showed:
    PTT-LA screen 44H
    Carbonic anhydrase VI (CA VI) IGM
    Antibodies: 35.8
    Unsure what this means 🤔 Dr Diana, are you able to understand, explain? Appreciate you!

  • @melissaumbenhour2493
    @melissaumbenhour2493 Год назад +2

    Hello. Can you recommend a brand of fish oil to take please?

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад +1

      I cant, unfortunately. Thank you for watching and supporting my channel

    • @melissaumbenhour2493
      @melissaumbenhour2493 Год назад +1

      @@living2day617 thank you very much! 😊

    • @eveerazm7989
      @eveerazm7989 Год назад +2

      Have you tried cod liver oil from Nordics brand. It’s a good brand and helps me. I’ve been taking it for years now.

    • @eveerazm7989
      @eveerazm7989 Год назад

      @@living2day617 can you tell us what brand pls

    • @melissaumbenhour2493
      @melissaumbenhour2493 Год назад

      @@eveerazm7989 I have not. Ty for your recommendation

  • @M.J-R
    @M.J-R Год назад

    Czy można prosić o napisy w języku polskim?

  • @sarcoidosiswarrior4327
    @sarcoidosiswarrior4327 Год назад +1

    Thank you!

  • @China-Clay
    @China-Clay Год назад +4

    My mouth doesn’t hurt nearly as much since I started taking folic acid

    • @rheumatologistoncall
      @rheumatologistoncall  Год назад

      Thank you for watching my videos and supporting my channel!

    • @eveerazm7989
      @eveerazm7989 Год назад

      What type of folic acid you use. And what is it for.