On a positive note, how amazing is it to have a whole second family who loves you? It's hard to see you like that, but I bet it makes your parents and family feel better seeing how loved and cared for you are by your second family.
@@amclaudet me too I was tearing up watching this. Reminds me of what I have gone through so many times- my husband cried every one he witnessed; side note all of mine happened at night?
When Carlin was on the floor and cried out "what's wrong with me?" broke my heart. 💔 Also, Evan, it'd be a great idea to take CPR lessons just to be safe (and infant/child CPR) if you haven't already. I'm sure it would give you some added piece of mind when she has an episode.
It broke my heart as well and I cried with her. Carlin and Evan are such sweet people and I hate that this is happening. I know God is in control and I will be praying for the answers yall need about Carlins illness. Ya'll have 2 beautiful babies. Love yall!!!
Absolutely. Great idea. My brother has a severe seizure disorder and he typically quits breathing every seizure. He has been intubated, put on a ventilator and life flighted. He didn't have his first seizure until he was in his 30's. One time he fell face first through a glass table and had a huge cut on his forehead. My cousin was holding a towel on his forehead to control the bleeding and I was doing CPR (all while he was violently convulsing). Witnessing a seizure is terrifying (and I'm a registered nurse).
This is a great idea except when it's a family member most tend to forget exactly what to do. My mom has been a paramedic for years and this happened to her when I had an episode and became unresponsive and stopped breathing.
Evan…your Nashville family is AMAZING ♥️♥️♥️ watching them remain so calm…watching them sit with Carlin, hold her, comfort her, talk to her - brought tears to my eyes!
I just bawled watching her have an episode! Evan you have been so strong through all of this! What a blessing that your family was all around during this big episode and that someone was able to film it for the drs to see! Praying over you Carlin!!! God will lead you to the right drs with the answers!!
This just broke my heart seeing the episode at Evan’s parents home. Had me in tears. Thank you for updates, and I will keep her in prayer, and you, too, Evan! You all are precious!
Carlin, everything you’re feeling emotionally is completely normal. Your positive attitude is amazing and is so helpful. I was a nurse practitioner in neurology for 35 years and I just want to reassure you that often times the process of obtaining a diagnosis is long and frustrating.. But you will get this figured out!!! You’ve had all the appropriate tests so far and praise God that nothing obvious has shown up. I admire your family support so much and Evan is so mature and wise (and calm which helps so much!).. I have seen what a difference it is for someone with no support. You are blessed! It sounds as if the doctors have instructed you as to when you would need to take a trip to the ED.. I just want to add that if any episode seems particularly long compared to previous ones you need to call for an ambulance. Know that you and your family are in my prayers and again, although this seems long and frustrating, something will come to light!!! Take good care.
I have been praying and checking for updates several times a day. Love you guys so much.Hang in there. This too will change. They will figure this out.❤️
@@wendy4ronpaul That's a good question. It might just be from the vaccine. I know people who have not passed out but had fevers. I do know that they did have covid.
Epilepsy Mom here. Just in case it is a seizure (and it looks like one): When this happens, turn her on her left side, that way she doesn't have a chance of choking in case she throws up.Just keep her comfortable until it passes. Film it!! The are three phases of a seizure: Beginning (I feel weird, auras maybe), Middle ( called Ictal, seizing), post Ictal (up to 30 minutes, in and out of consciousness, it's like the brain is rebooting). Hope you can get into a Neurologist ASAP. The best type of EEG for detecting seizures is where they deprive her of sleep, blow on a pinwheel, use strobe lights, etc. They are trying to trigger epileptic brain activity. Praying for y'all. 🙏.
Thank you. Your information is spot on. You being an "epilepsy mom", I know you are 100% giving them the correct info. I worked peds for years, and I'm glad you left your comment. I hope your kid(s) are well! Have a great holiday weekend!
Also rolling her to the left can help prevent her tongue from rolling up in the back of the throat and blocking her airway. As well as something for her to bite on, (popsicle stick) think they have something called a bite guard.that will protect her teeth when she is going through this (holds the teeth slightly apart). Those two things are equally important.
You guys are showing such strength and grace through this all. Have you ever talked about POTS before? Vanderbilt has a great team that treats it. Sending Prayers!
As part of my husband's epilepsy testing, they hooked him up with a portable EEG machine that he wore for 3 days. They were able to see EEG data during a seizure that helped in his diagnosis and plan for care.
But sometimes the EEG doesn’t show anything, but you still have epilepsy. Don’t think that it isn’t seizures if the EEG is negative. HOWEVER, since this happened post partum, I would make sure she saw a cardiologist AND a neurologist. Probably a hematologist too, if her family has a history of blood clotting disorders. (I’m a very experienced patient, with Lupus and Epilepsy).
That's how they were able to definitely diagnose my daughter with epileptic seizures. It is unclear originally caused them but at least we had answers and were able to get her treatment for them. She still had breakthrough seizures but less often
“Help me Jesus” is the quickest prayer that brings His healing. I just had an event that was very intense ~ got through it. I pray you all are healed, in Jesus’ Name.
Carlin and Evan, my heart dropped seeing the videos you shared with us. How incredibly scary this was for everyone involved. Being in the medical field myself, I just want to say how incredibly proud of the calmness Evan & his family showed while all of this was happening. I know inside they were an emotional wreck but on the outside you couldn’t tell. Evan, you have been SO strong and supportive through all of this and just so incredibly calm when her events happen. Again I just want to say THANK YOU for sharing your personal life and keeping us updated on how things are going. I did see the IG post of Evan wheeling you out of the doctors office the other day, I’m glad the follow up doctor got to see an episode happen while you were with her. Now hopefully answers will be coming sooner than later.
Carlin manages to smile and still look adorable even in the ER during a traumatic experience. Watching Carlin grow up on her family’s tv series makes us all feel like she’s a member of our own family. Thinking of Carlin and her entire family…..praying for an answer. Hugs
Oh Carlin. I am so sorry this is happening. I cried when I saw the footage of your seizure. How scary it must be for you to go through all of that. Praise God you have a super supportive family and darling husband to take care for you! Praying for answers and good health!
Whatever you do - don’t give up. No matter how many doctors tell you that everything is normal - fight for answers. It took me 13 years to figure out what was wrong with me; a rare progressive neurodegenerative disease. All the doctors over the years that I saw, who told me it was in my head. I’m so thankful that I never gave up. You’re doing great you two 💜
My son has epilepsy- these episodes are so similar to some of his seizures I have witnessed. As a nurse I am so glad to hear of all of the tests that have already been done. The not knowing is the frustrating part. Lean on your faith and your family. May Peace be with you both 💜
I have seizures and didn’t start having them until I was in my 30’s. They couldn’t figure out what was going on until I was told to see a Neurologist. After a lot of testing they found my Depakote levels were low. After adjusting my levels to what they should be, I’ve been seizure free for almost 15 years!!!
If nobody has told you this; buy a 3" binder notebook and start putting every medical notes, results, etc... With the newest info on the top. With medical diagnosis you are your best advocate! I am so sorry your family is going through this! Prays!
This definitely looks like seizures. I was diagnosed with epilepsy last August (at age 53) out of the blue. The neurologist had to do a 72 hour ambulatory EEG to detect the abnormal brain waves that were causing my seizures because nothing showed up during the short one in the hospital. I am thankful to the Lord and my doctors that they have been able to get me on a medication that has prevented any more seizures since December. Maybe a longer EEG is in order for you too.
I am 45. I have epilepsy since I was 5. Carlin please find a neurologist. It looks like a gand mal seizure. I have had so many. I am so sleepy after. I am not a doctor but please see a specialist.
I agree. The hospital kept my niece overnight hooked up to EEG to monitor for seizures. She has never had a seizure in the hospital but they still put her on anti-seizure meds. She went to the hospital after she had a seizure in her sleep and bit her tongue severely. She is still not allowed to drive but cares for herself and the kids on her own now. Someone needs to figure out what's going on and get her some treatment.
Love You Carlin,Evan,Zade,and Layla!!!! God Bless you always,and keep hanging in there!!!! We love you Bates's,God Bless,and hang in there!!!! Thoughts,and continued prayers for all!!!! We love you,hang in there!!!! God Bless always!!!!
I had similar symptoms lately and had an episode where my arms and legs were going numb. I was taken to the ER in an ambulance and the doctors tested me for Guillian Barre and it was negative but then tested my B12 levels and they were low. My doctor has me taking b12 now and I haven’t had an episode since. I am praying for you all!
Thank you for the huge update. I sat here and cried and prayed and cried and prayed, and said, “Poor baby!” So many times. I just wanted to make the pain go away. I am so so glad you all have such a huge and amazing support system and God on your side. My thoughts and prayers are with you. ❤️
This came across my feed so I thought I would share in case it helps. I had Pots symptoms, heat issues, tingling, limb exhaustion, blackouts, convulsions and the list goes on. Magnesium deficiency. magnesium supplements gave me my life back. 20 years of doctors couldn't figure out what one amazing nurse could. good luck to you!
I'm epileptic & I have similar symptoms that you are when I have seizures. The confusion & exhaustion afterwards is normal. It took some time to finally pinpoint what was happening. After multiple tests & medications, I finally was diagnosed. Prayers for you, your family, & the doctors.
10:04 I felt that. I am 13yrs old and for the last year I have been going through severe health issues that no doctor can figure out. When I’m laying on the bathroom floor I cry out the same thing and also, can’t help but cry. You just need to know gods doin this for a reason and it’s making y’all stronger inside. God bless❤️😘🥰😔
Nursing student here! In the case that these episodes are epilepsy related seizures or POTS, turn her on her left side so that in the event that she throws up she won’t choke. I would also inquire with her doctors about her blood pressure because she might have orthostatic hypotension which means she has a steep drop in blood pressure with position changes which would result in the fainting episodes. Hopefully the doctors have also been checking her blood sugar and potassium levels. 🙏 Praying for y’all!
Watching this video and seeing what Carlin went through had me crying. My heart is hurting for y'all. I'm praying that you get answers to what is causing the episodes & I'm praying for healing. Love you guys!
I love Vanderbilt hospital. I had a gallbladder attack 3 months ago. Spent several nights in the ER then was moved to a room upstairs because of my medical history. They take really great care of you. I would recommend them to anybody.
Really admire you guys for sharing such a vulnerable moment so openly. I'm going through some scary medical stuff at the moment and seeing Carlin so calm and positive is a great example!
The heart monitor is the most important thing right now. I really think a Tilt table test is needed so they can monitor everything as she is being tilted. This test will show whether it's POTS and/or vasovagal syncope. It's not all that uncommon for people with vasovagal syncope to have myoclonic jerks during episodes. It's common for this to be confused as seizures.
I’ve had all of these! I have POTS and was having these symptoms. I’ve had all the tests she had and more. There are beta blockers that cross the blood brain barriers and others that don’t. When I switched my beta blocker all of my symptoms went away. Looking at your blood pressure when it drops and your heart rate is SO important! Good job for Evans family for checking your vitals while you were having those symptoms!
@@juliereinhart2973 With all due respect, drinking water and staying away from caffeine doesn't stop someone from getting POTS or vasovagal syncope. It's so much more complicated than that. sigh
I too have POTS- it all started after a very complicated twin pregnancy. I would ask for a tilt table study and a treadmill test-stress test. My blood pressure plummets when I change positions. I noticed your heart rate was very high at one point. I take a morning small dose of a beta blocker. My friend who also has been in and out of hospitals take a vaso constrictor. It helps keep her blood pressure up. I'm praying your doctors will find answers for you and that you will be on the road to recovery or at least the road to managing what is happening to you. I will say this...I am doing so well. It took a lot of time to get the diagnosis but I manage well. God has this!
@@ChaiLatte13 Never said would stop POTS. Caffeine consumption and poor water intake are agitators . Until she sees her cardiologist and receive a holter monitor result, it is something simple she could do.
Praying they find answers soon. Evan you are so caring and it truly shows how much you love Carlin and your family melted my heart the way they kept talking calmly to Carlin and were letting her know they loved her and to not worry about Layla and Zade that they would be fine while she went to the hospital. I know this is scary for both families. Sending love and prayers for everyone.
I had episodes similar to this for years and years. Ended up being diagnosed with POTS. And later diagnosed with chronic Lyme disease- which was causing the POTS. It took many Lyme tests (because they’re unreliable tests) so I wouldn’t take one test result as definitive. Praying for relief and answers soon ❤️
Love Love sort of but I only had one tick bite that I can remember. Never got the rash so we didn’t think much of it. Through the years my symptoms kept piling on and being diagnosed as autoimmune diseases. 80% of people with Lyme don’t get the rash and I’m in that 80%. You can get it from ticks, but also from mosquitos. We aren’t really sure the exact way Lyme entered my body.
I was thinking the same thing, I have two good friends with POTS (thats a lot becasue it's rather rare) but they look just like this when they have episodes
@@antiarugula EVERY WHERE! I have Lyme and the heartland virus. I live in nny but they are everywhere. I just went to see my dad last weekend in PA and left with two more on me 😭
😭 that was so hard to watch, I may or may not have balled me eyes out. I can't even imagine, I hope y'all get answers to exactly what is causing this to happen. Your husband is amazing and so is his family! I am definitely praying for you and your family! Thankful that Evan will be able to stay home too with you, as a mom myself my anxiety brain goes to all the what ifs and I can't even. Love to you Carlin! Answers are coming. 🙏
My heart goes out to you both! It puts me in tears seeing what you go through, Carlin and I can't even imagine how scary it is for you, Evan! You are in my prayers for answers or healing! Praise God!
So my daughter started having seizures at 11, and it was like Carlin. Nobody could pinpoint anything. Until they did a sleep deprived EEG, and when we went in to the appt she was in status. Hookrd her up to the EEG and within 5 minutes we were sent to Seattle Childrens, where they finally diagnosed her and started her on meds. No issues since meds. Shes 25 now and living life fully! Maybe ask about a sleep deprived EEG. Sorry for the long post!
My bff daughter started having seizures last year at 11yrs old too. After her annual check up. Lots of women have had lifelong reactions to guardasil and I wonder if your daughter and my friends had them.
I pray God’s healing over sweet Carlin. This episode tore me up. I am praying God will move you in the right direction for answers and what to do next and that you’ll be safe in all you do. ❤️
I’m noticing a maturity in Evan already through this experience. Before he seemed to have some uncertainty about what he should do. Now, it’s like he knows all he needs to do right now is be there for Carlin. This is who you were all along Evan :).
I hope you guys find answers soon ! 🙏🏼If a service dog is possible, that would be good to consider later down the road ! Some service dogs are trained to catch you before you even fall when they sense an episode coming, it’s amazing
After watching your video, the calmness and care you're getting from your husband, friends and family is truly amazing. I know what you're going through is scary as I have the same episodes as you. The collapsing aka drop attacks, fatigue, dissociative seizures, balance & tingling in my limbs & memory issues (forgetting what I want to say while having a conversation), dizziness and typically happens when I am at rest or just standing still, getting out of bed is another thing that will bring on my seizures. Finally, I got the diagnoses as FND aka Functional Neurological disorder. MRIs are normal as are my EEGs. Took 4 years to get a final diagnosis and been living with it for about 7 years now...not sure if this is what you have, but it is very similar to my symptoms! Prays & Huggs
Thank you for keeping us updated, I had been thinking and praying for you, and am believing you'll have complete healing. God is so good in all our lives. You, Evan and his family are precious. To have they're support is awesome!!
EVAN, you may have to fight for what you want. Don’t let the doctors blow you off when you ask for a certain test. You have to be proactive and be Carlin’s advocate. Doctors don’t like it when patients suggest things to them, even when they are obviously completely in the dark about what’s going on, so you keep fighting for every last test you want done.
The question should always be: If she is not significantly better by when, we should what? That requires an answer moving forward. And don't let the dr leave without answering that question. Also, the videotaping is helpful so that they can see what you're seeing. Still thinking positive thoughts and praying.
Yes, keep asking questions and I would recommend a notebook to write everything down for each visit because it can become so overwhelming. We carried that notebook every time we went to the fr or hospital. Jot notes and questions as you think of them so when you see your dr you have it right there.
I so completely agree I can remember while my husband was in the hospital and being there 18 19 hours a day going home and doing research typing in One symptom and then another and the connections that it would make when I found the answer I printed it off the computer first thing in the morning I took it to the hospital headed to the doctor and I said do the test
@@jenniferb.7250 I also found that very very helpful I still have all the notebooks of the hospital visits in a blood pressures what time what medicines were administered so on and so forth
Keeping you all in my prayers. I suffered from seizure like episodes for over ten years. Then I had a sleep deprived EEG. I was diagnosed with a seizure disorder but it is non epileptic. Mine are more related to stress and PTSD. I just had one at church on Sunday, that was embarrassing but everyone at my church was so loving and helpful. So blessed. I’m a new subscriber and I’m definitely sticking around and hope you get answers. Xoxo
This just randomly popped up and I was watching and I'm literally crying. When you asked what's wrong with me while aging in the hall I have felt that so many times myself for my own health issues. And as a mother I was so scared because my 3 month old had a febrile seizure and it wouldn't stop and he was 106° and the ambulance came and I never felt so defeated because they just said he will be ok and keep giving him Tylenol which I had been doing for 2 weeks at that point and he wouldn't break the fever no matter what I did. The ER wouldn't do anything, the pediatrician, nothing. So I know what he means about watching you shake and jerk and it being scary outside looking in. Because they love and care for you and don't want to see you that way and just want to help. I'm praying hard for you! And I'm praying for answers, healing, and peace and comfort.
I’ve had epilepsy since childhood and watching this video is almost like a mirror image of my initial testing/diagnosis period. To this day I’ve never had a seizure during a test so I can understand how disheartening the lack of answers can be. I understand your frustrations and how life altering these seizures can be but I promise you it will get better. Maybe not today, next week or even next month but I know, in time it will get easier for you. Finally, The feeling you get before a seizure is known as an aura and when it occurs you’ll slowly learn how to read it and use it as a way to get yourself into a safe place, or in my case simply sit down on the floor, before anything happens.
This may sound dumb, but a dog who is trained to detect a seizure before it actually happens may be a way to help to confirm or deny that it's actual seizures. Just a thought!
Just now seeing this. I'm so sorry you're going through this! 🥺 I pray there's a diagnosis and treatment plan soon. Prayers of healing for you Carlin! Evan, your family ROCKS!!!!
My grandmother had seizures, and she would sleep for hours afterwards. Hers would just come on all of a sudden also. They finally got her on the right medication and she is doing great now. The doctors have never found what causes them. My prayers are with you.
Praying for Carlin and hoping your family get answers soon. It's great that you have such a loving, caring n attentive husband and family. Thank you for sharing your lives health and everything with us.
My name is Kc. I’m a friend of a friend of yours. I sent a message to your sister Erin Bates regarding P.o.t.s. I have these exact same episodes. I pass out randomly then shake and feel off for hours… sometimes days. I have other health issues including myalgic encephalomyeltis. You are having them exactly like I did. Postpartum is what made things bad and for months I got worse because I continued to push myself. I was told by a specialist if I had just taken it slow and tried to rest I would have never gotten as bad as I did. I won’t scare you but I will tell you it was REALLY bad for 5 years for me. I want you to know this because I wish I had known. I hope you see this….
I was hoping someone would mention this! One of my best friends has POTS and she had similar episodes to this for the longest time. All her tests also came back frustratingly normal as well. It’s been a long road of learning how to listen to her body and lifestyle changes to get it under some control. It really sounds like she may have POTS.
Carlin, you are a doll face even when you have medical equipment wrapped around your head 😂❤ Stay strong girly, you have a lot of people praying for you. ❤ Evan, you are doing a great job!
I just got diagnosed with PNES physcogenic non-epileptic seizures I had the same symptoms as you it’s taken a whole year for my diagnosis in and out of ER and ICU Rooms I would recommend you get a good neurologist and ask them to get a EMU done it’s where they admitted into the hospital for a couple day and monitor your episodes try to find your triggers like you said the worst part is not knowing that was the hardest for me and my family! Prayers to you 🙏🏽
This has me really scared for all of you. I’m so glad someone was there and she wasn’t alone with the babies. I’m praying that they find out what’s wrong very soon and hopefully it can be controlled or stopped all together. Hugs to everyone.
I am so glad Evan's family was there and knew what to do! Carlin I understand your frustration. I have been described as super independent since I was a toddler. I hate people having to do for me too. I pray that God sends the perfect doctors your way and that you have your health back soon.
Aww, you both are SO precious. My heart breaks for what you’re going through, but I know our Lord is in control and loves you both so much!! Rest, stay strong, keep looking up! Continuing to pray for you! Thank you so much for the updates as you can. ✝️🙏🏻❤️💞
This looks so similar to me! I have POTS and recently after tons of drs and er visits one neuro doc said I have PNES. It’s psychogenic non epileptic seizures. It’s a real thing but doesn’t show up on EEGs or in your blood. It took me over a year.
My heart is going out to the two of you. It does look like seizures. Did they do a tilt test? Check for POTS? Evan you are such an amazing husband. You are very wise and it helps that you are able to be calm in a chaotic situation. Carlin I'm praying for you and to get some answers. You were prayed for in my church last Sunday as well. I've watched you grow up on TV and feel like y'all are part of my family. Blessings to you all 🙏
I had a stroke back in 2020 and it affected my emotions so I’m literally trying not to cry watching Carlin go through this in the hallway. I am praying so hard for y’all!
It’s so hard to just see Carlin going through that and Evan and his family not being able to do something. All my boyfriend could do was rush me to the hospital, but he couldn’t do nothing else. So you just feel helpless.
@@hottisphinx the drs couldn’t tell me why I had mine. The neurologist said the left side of the main artery that splits in the back of the head is asymmetrical and told me to take 2 aspirins a day. I still have moments though. It affected the right side of my body and I’m right handed and I have to write slow or whatever I’m writing will be a squiggly line. I still flustered when I talk, I’ll try and say something and say something completely different. It’s frustrating not knowing what actually caused it, but all I can hope is that I don’t have another one. Hope you’re doing well also!
@@babycakes1315 they think mine is migraine induced and I have to take a baby aspirin everyday! But really they have no idea. Also have POTS so that’s annoying! Ain’t life grand!
Carlin's episode was hard to watch, but Evan's family was so loving and comforting to her. Praying for answers for you all. Glad you will be seeing a neurologist. Evan, you're doing a great job covering your wife and family.
I shed so many tears watching this. You guys are so beautiful, so supportive of each other…and Evan, it’s so clear to see how much your family loves you both. I only wish I can one day find a love like that. I’m a healthcare professional and I can’t even imagine how scary this is. It’s scary for me to watch! I am thinking of you all. Stay strong 💗
Please, please, please pay attention!!! I am an RN Masters in Nursing w 50 years experience, 20 yrs in Cardiac Intensive Care at a massive teaching, investigational cardiac facility Wm Beaumont in Royal Oak MI. PLEASE ASK MDS, CARDIOLOGISTS WHY THEY DO NOT THINK CARLIN HAS POTS (postural orthostatic tachcardia syndrome) its newly discovered, she is typical of so many symptoms, including in 20s, post partum, standing up causes passing out and she has tachycardia, her hands, fingers get pale, dark, indicating lack of circulation. This is cardiac, NOT NEURO FOCUSED USUALLY. PIN THEM DOWN ABOUT POTS, PLEASE!!!!!!!!!!
I have been thinking the same! I’m a nurse too and also have POTS and Gastroparesis and some other stuff. I was borderline with her symptoms and puzzled why they haven’t done further tests except that they’d prefer her see a specialist, BUT, THIS VIDEO was great because I noticed her pale hands too when he was holding her hand and the camera zoomed in on that! It was very noticeable!!
I would request an EEG that is longer than just a couple hours… it needs to be at least on her for 3 days or more! I know it’s not the easiest thing but she needs it done! Praying for y’all!! 💜
Carlin & Evan, You've been amazingly strong & courageous through all this. Sending you love, prayers & strength to stay positive & trusting in the Lord. 'May GOD be with you & bless the Dr's hands.'
Look into POTS- she has the same symptoms of my children that have POTS. It can start after pregnancy. The random rashes are also common with POTS. You can also get tremors during a POTS passing out episode. She needs to get a tilt table test
Sure looks like POTS symptoms, especially the legs discoloration and the circulatory reactions to changing position from sitting / laying down to standing (heart rate spiking, blacking out). Sending blessings of vibrant health and well being, for the Highest Good
I am so sorry this is continuing for you . You definitely have lots of prayers coming your way. Hopefully you will find out soon was is wrong and get on meds to help you out. Love you guys and appreciate the update. ❤️
Evan, you’re an amazing husband! Prayers for you! I’ve been in your situation, I felt like I was watching about myself. I ended up having POTS and a neurologist came in my hospital room and I was having an episode and he said that it’s possible to have seizures and them not show up on EEG. I was accused of faking mine for attention, only if they knew how helpless I felt and this was by medical professionals. After that neurologist saw me he put me on seizure meds and I’m doing so much better
None of my seizures showed up on the standard tests. Mine are believed to be caused by 2 concussions, scar tissue in my brain from when I was having chronic migraines. I have a terrible time sleeping so my body just reached it’s breaking point. I hate taking medication but I can for the most part live a normal life.
I was thinking POTS too, my niece has is and would pass out all the time at the drop of a hat! The shaking though is more like seizures almost. When my niece passes out she is still and totally out, but it drains her after each episode. Good luck on figuring out what is wrong! Best wishes!
I think a big clue is at 8:10 of their high risk pregnancy video. She was diagnosed with a genetic blood clotting illness Factor V Leiden and 2 other issues. Praying - much love and hope for rapid elimination of these horrific symptoms! ruclips.net/video/kb7-Ui-dwtQ/видео.html
I feel you when you said “I feel like God is saying just trust me, I’ve got this!” I said the same thing after a year and a half. I felt God had me go through this painful journey to stop me. I got sick the month before we went on Covid lockdown. I missed the whole summer of work because my body was in no shape and my losing feeling was unpredictable. Long story short, because I could no longer pursue being a flight medic I was led to lead high school girls at my church. Almost a year later I felt like physically God touch me on the last night of church camp. I heard “this is what it was all for Destini, this is where I want you.” It broke me down to my knees the overwhelming feeling of hearing that for the first time. I don’t think I’ve ever cried that hard, but it was relief of finally getting a diagnosis and confirmation I wasn’t crazy. Relief from finally having 6 months of prayers answered. Finally feeling like I knew what was happening with my life again…just really stopped me in my tracks and put me where He wanted me!
I have cried so hard watching this. I cannot imagine how scary that has to be. To be Carlin going through that and them not knowing what’s wrong. And to be Evan, having to watch your spouse go through that. Praying so hard that you find answers quick!
Evan & Carlin, my heart broke for Carlin watching this video. Seeing all that Carlin and yourself are going thru. I wept for you Carlin. God Bless you precious girl. I love watching your family and your beautiful journey. Gods Banner of Love is over you. I'll be praying for you all. Love you Much.
I cried a little my heart goes out to you both especially Carlin! May the Lord show you both how to Trust Him in all of this. May He open doors for answers and clarity. Hugs! If I was closer I'd make meals for you guys and help with the babies.
Love you sweet Carlin and we are praying for you❤ God is faithful sweet girl and remember to be strong and of a good courage Gods got your back, 🙏🙏🙏❤️🌹
I’m not a neurologist but I am a neuro critical nurse & have taken care of a lot of seizure patients in the past 5 years. I agree it definitely looks like seizure activity. Especially the postictal state (sleeping) afterward. I would ask the neurologist if it’s possible to do a continuous EEG test until Carlin has another episode. This might require another hospitalization, but it would be worth the answers that the test would provide. Hopefully once she gets the official diagnosis they can prescribe an anti-seizure medication regimen to get rid of them all together & hopefully can pin point the cause!
I had these same episodes, request a 72hr EEG also a Tilt Table Test. It took from the time I was 15yrs old or so to the time I was 28yrs old to get all the right test. Mine were never this many together normally months and months between. The Tilt Table test finally gave us the answers. I have a Heart valve that sticks open which causes me to pass out! My episode would be so different from the next. One time I Lost all continents. That is when I pushed for answers.
@@jillkelso4402 *continence* («continent» is one of earth’s 7 land masses) 🤗 So glad to hear you figured out what went on with your seizure disorder! Good for you!!!💓💞💓
Agreed. My sister is a nurse practitioner and she's working in neurology, specifically epilepsy, and she works at an "EMU" (Epilepsy Monitoring Unit) where patients stay for a week, hooked up to an EEG, hoping for a seizure so the docs can see an active seizure on the EEG and pinpointing seizure or not and what type.
I pray they find answers. I had to skip some parts because I didn't want to see Carlin like that, I had to cry. I know I speak for everyone here. Evan and Carlin thank you guys for not only sharing the good moments in your life, you guys will get thru this and GOD always have a reason. I pray you guys find answers and we will continue praying for your family. Sending love from the USVI.
I went thru similar episodes and was finally diagnosed with dysautonomia. Keep pushing and searching for answers someone out there will be your blessed Dr. who will find answers and treatment. I'm sorry its so scary
On a positive note, how amazing is it to have a whole second family who loves you? It's hard to see you like that, but I bet it makes your parents and family feel better seeing how loved and cared for you are by your second family.
Yes! Not everyone has that! Was so sweet!! ♡♡
It made me tear up! The love!
For real! I would be absolutely mortified if anything remotely close to this happened with my in laws.
@@amclaudet me too I was tearing up watching this. Reminds me of what I have gone through so many times- my husband cried every one he witnessed; side note all of mine happened at night?
The way Evan’s family stepped up and cared for Carlin was beautiful! They seem like incredible in-laws!
When Carlin was on the floor and cried out "what's wrong with me?" broke my heart. 💔
Also, Evan, it'd be a great idea to take CPR lessons just to be safe (and infant/child CPR) if you haven't already. I'm sure it would give you some added piece of mind when she has an episode.
It broke my heart as well and I cried with her. Carlin and Evan are such sweet people and I hate that this is happening. I know God is in control and I will be praying for the answers yall need about Carlins illness. Ya'll have 2 beautiful babies. Love yall!!!
Absolutely. Great idea. My brother has a severe seizure disorder and he typically quits breathing every seizure. He has been intubated, put on a ventilator and life flighted. He didn't have his first seizure until he was in his 30's. One time he fell face first through a glass table and had a huge cut on his forehead. My cousin was holding a towel on his forehead to control the bleeding and I was doing CPR (all while he was violently convulsing). Witnessing a seizure is terrifying (and I'm a registered nurse).
This is a great idea except when it's a family member most tend to forget exactly what to do. My mom has been a paramedic for years and this happened to her when I had an episode and became unresponsive and stopped breathing.
* peace of mind.
During your episode at your family’s house I was just so impressed with how calm and caring your family was
Me too! They were so loving and kind. What treasures!
They were amazing!!
They are so sweet
They were wonderful
I know. They made me tear up- they are so loving!
What a lovely supportive family, in laws and ambulance staff .
I agree!!! I love this! My in laws would step over me just to give my husband a popsicle.
Evan…your Nashville family is AMAZING ♥️♥️♥️ watching them remain so calm…watching them sit with Carlin, hold her, comfort her, talk to her - brought tears to my eyes!
Me too 🥺
Oh my gosh me too
I’m a epilepsy mom and your episode did look a lot like my daughters seizures. The postictal phase of falling asleep is spot on. Hugs and good luck.
I just bawled watching her have an episode! Evan you have been so strong through all of this! What a blessing that your family was all around during this big episode and that someone was able to film it for the drs to see!
Praying over you Carlin!!! God will lead you to the right drs with the answers!!
This just broke my heart seeing the episode at Evan’s parents home. Had me in tears. Thank you for updates, and I will keep her in prayer, and you, too, Evan! You all are precious!
Same here 😭 My heart goes out to them both and praying for answers.
Yes I was crying also! Such a sweet family! Hope they find answers soon! 🫂🫂
Had me in tears too. Love this sweet family and hope they get answers soon. ❤
Carlin, everything you’re feeling emotionally is completely normal. Your positive attitude is amazing and is so helpful. I was a nurse practitioner in neurology for 35 years and I just want to reassure you that often times the process of obtaining a diagnosis is long and frustrating.. But you will get this figured out!!! You’ve had all the appropriate tests so far and praise God that nothing obvious has shown up. I admire your family support so much and Evan is so mature and wise (and calm which helps so much!).. I have seen what a difference it is for someone with no support. You are blessed! It sounds as if the doctors have instructed you as to when you would need to take a trip to the ED.. I just want to add that if any episode seems particularly long compared to previous ones you need to call for an ambulance. Know that you and your family are in my prayers and again, although this seems long and frustrating, something will come to light!!! Take good care.
WAS SHE VACCINATED
@@wendy4ronpaul I wonder the same.
I have been praying and checking for updates several times a day. Love you guys so much.Hang in there. This too will change. They will figure this out.❤️
@@wendy4ronpaul That's a good question. It might just be from the vaccine. I know people who have not passed out but had fevers. I do know that they did have covid.
Amein 💕🙏🏽
Epilepsy Mom here. Just in case it is a seizure (and it looks like one): When this happens, turn her on her left side, that way she doesn't have a chance of choking in case she throws up.Just keep her comfortable until it passes. Film it!! The are three phases of a seizure: Beginning (I feel weird, auras maybe), Middle ( called Ictal, seizing), post Ictal (up to 30 minutes, in and out of consciousness, it's like the brain is rebooting). Hope you can get into a Neurologist ASAP. The best type of EEG for detecting seizures is where they deprive her of sleep, blow on a pinwheel, use strobe lights, etc. They are trying to trigger epileptic brain activity. Praying for y'all. 🙏.
Thank you. Your information is spot on. You being an "epilepsy mom", I know you are 100% giving them the correct info. I worked peds for years, and I'm glad you left your comment. I hope your kid(s) are well! Have a great holiday weekend!
Yes or bite your tongue.
100%.
Also rolling her to the left can help prevent her tongue from rolling up in the back of the throat and blocking her airway. As well as something for her to bite on, (popsicle stick) think they have something called a bite guard.that will protect her teeth when she is going through this (holds the teeth slightly apart). Those two things are equally important.
yes!! get her to the floor and turn her to her left side!! I grew up with my dad and several of my friends having seizures.
You guys are showing such strength and grace through this all. Have you ever talked about POTS before? Vanderbilt has a great team that treats it. Sending Prayers!
That’s what I was just thinking.. I have POTS and can heavily relate to this
Watching her have that episode just made me cry for Carlin and everyone around her! Evan your family was so, so sweet with her!
I cried too😢😢 praying for answers
Seen this before on someone else. Get both stress tests
My heart just broke when she says "What's wrong with me?" and breaks into tears.
Sending prayers to the fam.
As part of my husband's epilepsy testing, they hooked him up with a portable EEG machine that he wore for 3 days. They were able to see EEG data during a seizure that helped in his diagnosis and plan for care.
They didn’t mention this to them and why not?????????
Oh wow!! My son has done a 24 hour EEG, but never one for 3 days!
But sometimes the EEG doesn’t show anything, but you still have epilepsy. Don’t think that it isn’t seizures if the EEG is negative. HOWEVER, since this happened post partum, I would make sure she saw a cardiologist AND a neurologist. Probably a hematologist too, if her family has a history of blood clotting disorders. (I’m a very experienced patient, with Lupus and Epilepsy).
Was she Vaccinated
That's how they were able to definitely diagnose my daughter with epileptic seizures. It is unclear originally caused them but at least we had answers and were able to get her treatment for them. She still had breakthrough seizures but less often
“Help me Jesus” is the quickest prayer that brings His healing.
I just had an event that was very intense ~ got through it.
I pray you all are healed, in Jesus’
Name.
Carlin and Evan, my heart dropped seeing the videos you shared with us. How incredibly scary this was for everyone involved. Being in the medical field myself, I just want to say how incredibly proud of the calmness Evan & his family showed while all of this was happening. I know inside they were an emotional wreck but on the outside you couldn’t tell. Evan, you have been SO strong and supportive through all of this and just so incredibly calm when her events happen. Again I just want to say THANK YOU for sharing your personal life and keeping us updated on how things are going. I did see the IG post of Evan wheeling you out of the doctors office the other day, I’m glad the follow up doctor got to see an episode happen while you were with her. Now hopefully answers will be coming sooner than later.
Carlin manages to smile and still look adorable even in the ER during a traumatic experience. Watching Carlin grow up on her family’s tv series makes us all feel like she’s a member of our own family. Thinking of Carlin and her entire family…..praying for an answer. Hugs
Yes she's a beautiful young lady.
I totally agree with you!
Oh Carlin. I am so sorry this is happening. I cried when I saw the footage of your seizure. How scary it must be for you to go through all of that. Praise God you have a super supportive family and darling husband to take care for you! Praying for answers and good health!
I cried too! So awful what she is going through.
I also cried watching her going thru this. Definitely having a seizure, but why. Praying for answers!🙏
I am just weeping through this video. Evan is precious and all of the Stewarts are wonderful. Praying hard for all of you!
Whatever you do - don’t give up. No matter how many doctors tell you that everything is normal - fight for answers. It took me 13 years to figure out what was wrong with me; a rare progressive neurodegenerative disease. All the doctors over the years that I saw, who told me it was in my head. I’m so thankful that I never gave up. You’re doing great you two 💜
Geef niet op jezus heeft haar in z’n arme 😂❤🙏
My son has epilepsy- these episodes are so similar to some of his seizures I have witnessed. As a nurse I am so glad to hear of all of the tests that have already been done. The not knowing is the frustrating part. Lean on your faith and your family. May Peace be with you both 💜
I have seizures and didn’t start having them until I was in my 30’s. They couldn’t figure out what was going on until I was told to see a Neurologist. After a lot of testing they found my Depakote levels were low. After adjusting my levels to what they should be, I’ve been seizure free for almost 15 years!!!
@@priscillarobinson7740 Praise Our Wonderful Jesus Your healing is so encouraging to Carlin I’m sure :)
Was she VACCINATED
If nobody has told you this; buy a 3" binder notebook and start putting every medical notes, results, etc... With the newest info on the top. With medical diagnosis you are your best advocate! I am so sorry your family is going through this! Prays!
This definitely looks like seizures. I was diagnosed with epilepsy last August (at age 53) out of the blue. The neurologist had to do a 72 hour ambulatory EEG to detect the abnormal brain waves that were causing my seizures because nothing showed up during the short one in the hospital. I am thankful to the Lord and my doctors that they have been able to get me on a medication that has prevented any more seizures since December. Maybe a longer EEG is in order for you too.
Totally agree with you
I agree with you too!
I am 45. I have epilepsy since I was 5. Carlin please find a neurologist. It looks like a gand mal seizure. I have had so many. I am so sleepy after. I am not a doctor but please see a specialist.
May I ask what meds you are taking?
I am taking Briviact and Lamotrigine.
This poor girl, my heart breaks for you Carlin.
I agree. The hospital kept my niece overnight hooked up to EEG to monitor for seizures. She has never had a seizure in the hospital but they still put her on anti-seizure meds. She went to the hospital after she had a seizure in her sleep and bit her tongue severely. She is still not allowed to drive but cares for herself and the kids on her own now.
Someone needs to figure out what's going on and get her some treatment.
Love You Carlin,Evan,Zade,and Layla!!!! God Bless you always,and keep hanging in there!!!! We love you Bates's,God Bless,and hang in there!!!! Thoughts,and continued prayers for all!!!! We love you,hang in there!!!! God Bless always!!!!
Their last name is Stewart, not Bates.
Oh Carlin. Definitely keeping you ... and your family ... in my prayers. I was in tears watching you on the floor. Broke my heart. Hugs.
I had similar symptoms lately and had an episode where my arms and legs were going numb. I was taken to the ER in an ambulance and the doctors tested me for Guillian Barre and it was negative but then tested my B12 levels and they were low. My doctor has me taking b12 now and I haven’t had an episode since. I am praying for you all!
Thank you for the huge update. I sat here and cried and prayed and cried and prayed, and said, “Poor baby!” So many times. I just wanted to make the pain go away. I am so so glad you all have such a huge and amazing support system and God on your side. My thoughts and prayers are with you. ❤️
This came across my feed so I thought I would share in case it helps. I had Pots symptoms, heat issues, tingling, limb exhaustion, blackouts, convulsions and the list goes on. Magnesium deficiency. magnesium supplements gave me my life back. 20 years of doctors couldn't figure out what one amazing nurse could. good luck to you!
People don’t realize how much magnesium helps us!
@@mayramontero4316 magnesium , iron and salt
OMG ME TOO! Magnesium has SAVED ME. I had POTS, heart palpitations and fatigue after a virus and Magnesium citrate has helped me soooo much.
POTS is the first thing I thought of when she said they couldn't figure out what it was
That's what I was thinking this is.
Currently going through POTS testing for similar reasons, not this severe. Highly recommend the tilt table test. Praying for you
Mark 5:26-34. 🤍
I second this. I recommend a tilt table test also!! I have dysautonomia as well, but it's not this severe.
I'm epileptic & I have similar symptoms that you are when I have seizures. The confusion & exhaustion afterwards is normal. It took some time to finally pinpoint what was happening. After multiple tests & medications, I finally was diagnosed. Prayers for you, your family, & the doctors.
Y’all, I cried so much watching this! My heart goes out to Carlin and your family. I’m praying for her daily ❤️
I'm so sorry you are going through this. Praying for your complete healing. Praying for Evan too.
10:04 I felt that. I am 13yrs old and for the last year I have been going through severe health issues that no doctor can figure out. When I’m laying on the bathroom floor I cry out the same thing and also, can’t help but cry. You just need to know gods doin this for a reason and it’s making y’all stronger inside. God bless❤️😘🥰😔
Nursing student here! In the case that these episodes are epilepsy related seizures or POTS, turn her on her left side so that in the event that she throws up she won’t choke. I would also inquire with her doctors about her blood pressure because she might have orthostatic hypotension which means she has a steep drop in blood pressure with position changes which would result in the fainting episodes. Hopefully the doctors have also been checking her blood sugar and potassium levels. 🙏 Praying for y’all!
Yes - definitely put her in the recovery position during or after episodes
Oh gosh, I bawled like a baby watching you go through this. Prayers they figure it out
Watching this video and seeing what Carlin went through had me crying. My heart is hurting for y'all. I'm praying that you get answers to what is causing the episodes & I'm praying for healing. Love you guys!
I love Vanderbilt hospital. I had a gallbladder attack 3 months ago. Spent several nights in the ER then was moved to a room upstairs because of my medical history. They take really great care of you. I would recommend them to anybody.
Really admire you guys for sharing such a vulnerable moment so openly. I'm going through some scary medical stuff at the moment and seeing Carlin so calm and positive is a great example!
She really is amazing
I pray that your medical problem is resolved and with good results. Keep the faith.
God's blessings 🙏.
The heart monitor is the most important thing right now. I really think a Tilt table test is needed so they can monitor everything as she is being tilted. This test will show whether it's POTS and/or vasovagal syncope. It's not all that uncommon for people with vasovagal syncope to have myoclonic jerks during episodes. It's common for this to be confused as seizures.
I’ve had all of these! I have POTS and was having these symptoms. I’ve had all the tests she had and more. There are beta blockers that cross the blood brain barriers and others that don’t. When I switched my beta blocker all of my symptoms went away. Looking at your blood pressure when it drops and your heart rate is SO important! Good job for Evans family for checking your vitals while you were having those symptoms!
@@juliereinhart2973 With all due respect, drinking water and staying away from caffeine doesn't stop someone from getting POTS or vasovagal syncope. It's so much more complicated than that. sigh
I too have POTS- it all started after a very complicated twin pregnancy. I would ask for a tilt table study and a treadmill test-stress test. My blood pressure plummets when I change positions. I noticed your heart rate was very high at one point. I take a morning small dose of a beta blocker. My friend who also has been in and out of hospitals take a vaso constrictor. It helps keep her blood pressure up. I'm praying your doctors will find answers for you and that you will be on the road to recovery or at least the road to managing what is happening to you. I will say this...I am doing so well. It took a lot of time to get the diagnosis but I manage well. God has this!
@@ChaiLatte13 Never said would stop POTS. Caffeine consumption and poor water intake are agitators . Until she sees her cardiologist and receive a holter monitor result, it is something simple she could do.
@@juliereinhart2973 Well I've had POTS for 20 years and every doctor seems to think that drinking more water is some magical cure. It's just not.
Praying they find answers soon. Evan you are so caring and it truly shows how much you love Carlin and your family melted my heart the way they kept talking calmly to Carlin and were letting her know they loved her and to not worry about Layla and Zade that they would be fine while she went to the hospital. I know this is scary for both families. Sending love and prayers for everyone.
They wont find answers, its from the jab. I have seen this hundreds of times.
I had episodes similar to this for years and years. Ended up being diagnosed with POTS. And later diagnosed with chronic Lyme disease- which was causing the POTS. It took many Lyme tests (because they’re unreliable tests) so I wouldn’t take one test result as definitive. Praying for relief and answers soon ❤️
Did u grow up where ticks are common?
Love Love sort of but I only had one tick bite that I can remember. Never got the rash so we didn’t think much of it. Through the years my symptoms kept piling on and being diagnosed as autoimmune diseases. 80% of people with Lyme don’t get the rash and I’m in that 80%. You can get it from ticks, but also from mosquitos. We aren’t really sure the exact way Lyme entered my body.
I was thinking the same thing, I have two good friends with POTS (thats a lot becasue it's rather rare) but they look just like this when they have episodes
@@antiarugula EVERY WHERE! I have Lyme and the heartland virus. I live in nny but they are everywhere. I just went to see my dad last weekend in PA and left with two more on me 😭
this is my exact situation too😢❤
I cried when she cried and said "what's wrong with me?". Praying the medical team can find the right med for this.
😭 that was so hard to watch, I may or may not have balled me eyes out. I can't even imagine, I hope y'all get answers to exactly what is causing this to happen. Your husband is amazing and so is his family! I am definitely praying for you and your family! Thankful that Evan will be able to stay home too with you, as a mom myself my anxiety brain goes to all the what ifs and I can't even. Love to you Carlin! Answers are coming. 🙏
My heart goes out to you both! It puts me in tears seeing what you go through, Carlin and I can't even imagine how scary it is for you, Evan! You are in my prayers for answers or healing! Praise God!
So my daughter started having seizures at 11, and it was like Carlin. Nobody could pinpoint anything. Until they did a sleep deprived EEG, and when we went in to the appt she was in status. Hookrd her up to the EEG and within 5 minutes we were sent to Seattle Childrens, where they finally diagnosed her and started her on meds. No issues since meds. Shes 25 now and living life fully! Maybe ask about a sleep deprived EEG. Sorry for the long post!
agreed, i think it’s seizures
Seizures makes you want to sleep
Great call!
My bff daughter started having seizures last year at 11yrs old too. After her annual check up. Lots of women have had lifelong reactions to guardasil and I wonder if your daughter and my friends had them.
My granddaughter had seizures very scarey.She outgrew them at about 8 thank god.
I pray God’s healing over sweet Carlin. This episode tore me up. I am praying God will move you in the right direction for answers and what to do next and that you’ll be safe in all you do. ❤️
Amen
Amen
I’m noticing a maturity in Evan already through this experience. Before he seemed to have some uncertainty about what he should do. Now, it’s like he knows all he needs to do right now is be there for Carlin. This is who you were all along Evan :).
Love you Evan!
Much love to Evan! He is an excellent husband and source of support
♡
I hope you guys find answers soon ! 🙏🏼If a service dog is possible, that would be good to consider later down the road ! Some service dogs are trained to catch you before you even fall when they sense an episode coming, it’s amazing
Izzy could be trained as service dog- poodles are great for that
@@caroldearing8002 yes true 👍🏼
I would definitely check on getting Izzy trained for seizure detection . Dogs are so smart and helpful in the medical field.
@@sherriplath8346 yes exactly !
After watching your video, the calmness and care you're getting from your husband, friends and family is truly amazing. I know what you're going through is scary as I have the same episodes as you. The collapsing aka drop attacks, fatigue, dissociative seizures, balance & tingling in my limbs & memory issues (forgetting what I want to say while having a conversation), dizziness and typically happens when I am at rest or just standing still, getting out of bed is another thing that will bring on my seizures. Finally, I got the diagnoses as FND aka Functional Neurological disorder. MRIs are normal as are my EEGs. Took 4 years to get a final diagnosis and been living with it for about 7 years now...not sure if this is what you have, but it is very similar to my symptoms! Prays & Huggs
Thank you for keeping us updated, I had been thinking and praying for you, and am believing you'll have complete healing. God is so good in all our lives. You, Evan and his family are precious. To have they're support is awesome!!
EVAN, you may have to fight for what you want. Don’t let the doctors blow you off when you ask for a certain test. You have to be proactive and be Carlin’s advocate. Doctors don’t like it when patients suggest things to them, even when they are obviously completely in the dark about what’s going on, so you keep fighting for every last test you want done.
The question should always be: If she is not significantly better by when, we should what?
That requires an answer moving forward. And don't let the dr leave without answering that question.
Also, the videotaping is helpful so that they can see what you're seeing.
Still thinking positive thoughts and praying.
Yes, keep asking questions and I would recommend a notebook to write everything down for each visit because it can become so overwhelming. We carried that notebook every time we went to the fr or hospital. Jot notes and questions as you think of them so when you see your dr you have it right there.
Totally AGREE!!!
I so completely agree I can remember while my husband was in the hospital and being there 18 19 hours a day going home and doing research typing in One symptom and then another and the connections that it would make when I found the answer I printed it off the computer first thing in the morning I took it to the hospital headed to the doctor and I said do the test
@@jenniferb.7250 I also found that very very helpful I still have all the notebooks of the hospital visits in a blood pressures what time what medicines were administered so on and so forth
Oh Carlin and Evan my heart goes out to you. I’ve wrapped you in my arms and added you to our prayer list.
Keeping you all in my prayers. I suffered from seizure like episodes for over ten years. Then I had a sleep deprived EEG. I was diagnosed with a seizure disorder but it is non epileptic. Mine are more related to stress and PTSD. I just had one at church on Sunday, that was embarrassing but everyone at my church was so loving and helpful. So blessed. I’m a new subscriber and I’m definitely sticking around and hope you get answers. Xoxo
I love your guys videos so much, they always brighten my day! Seeing Carlin like that is so sad! Praying for healing and a speedy recovery!!
I was brought to tears watching her episode, I prayed for Carlin and she is on my list of prayers 🤍 I pray the Lord gives you all an answer !
This had me in tears. I'm so sorry you are going through this. I am so glad Evan is there to make sure you are ok!! Great support system!
This just randomly popped up and I was watching and I'm literally crying. When you asked what's wrong with me while aging in the hall I have felt that so many times myself for my own health issues. And as a mother I was so scared because my 3 month old had a febrile seizure and it wouldn't stop and he was 106° and the ambulance came and I never felt so defeated because they just said he will be ok and keep giving him Tylenol which I had been doing for 2 weeks at that point and he wouldn't break the fever no matter what I did. The ER wouldn't do anything, the pediatrician, nothing. So I know what he means about watching you shake and jerk and it being scary outside looking in. Because they love and care for you and don't want to see you that way and just want to help. I'm praying hard for you! And I'm praying for answers, healing, and peace and comfort.
Aw Carlin 🥺 I’m so sorry that this is happening to you, praying heavily for you! Glad you’re doing better and I hope we get answered soon
Hard to watch Carlin suffering. Praying for healing and answers to what is wrong. ❤
I’ve had epilepsy since childhood and watching this video is almost like a mirror image of my initial testing/diagnosis period. To this day I’ve never had a seizure during a test so I can understand how disheartening the lack of answers can be. I understand your frustrations and how life altering these seizures can be but I promise you it will get better. Maybe not today, next week or even next month but I know, in time it will get easier for you. Finally, The feeling you get before a seizure is known as an aura and when it occurs you’ll slowly learn how to read it and use it as a way to get yourself into a safe place, or in my case simply sit down on the floor, before anything happens.
This may sound dumb, but a dog who is trained to detect a seizure before it actually happens may be a way to help to confirm or deny that it's actual seizures. Just a thought!
Just now seeing this. I'm so sorry you're going through this! 🥺 I pray there's a diagnosis and treatment plan soon. Prayers of healing for you Carlin! Evan, your family ROCKS!!!!
i really think they hit a nerve in her spine with that epidural... praying for yall!! love from texas!! 😭
My grandmother had seizures, and she would sleep for hours afterwards. Hers would just come on all of a sudden also. They finally got her on the right medication and she is doing great now. The doctors have never found what causes them. My prayers are with you.
Praying for healing Carlin. Love watching y'all Vlogs.
Praying for Carlin and hoping your family get answers soon. It's great that you have such a loving, caring n attentive husband and family. Thank you for sharing your lives health and everything with us.
My name is Kc. I’m a friend of a friend of yours. I sent a message to your sister Erin Bates regarding P.o.t.s. I have these exact same episodes. I pass out randomly then shake and feel off for hours… sometimes days. I have other health issues including myalgic encephalomyeltis. You are having them exactly like I did. Postpartum is what made things bad and for months I got worse because I continued to push myself. I was told by a specialist if I had just taken it slow and tried to rest I would have never gotten as bad as I did. I won’t scare you but I will tell you it was REALLY bad for 5 years for me. I want you to know this because I wish I had known. I hope you see this….
I hope she see your message!!
I was hoping someone would mention this! One of my best friends has POTS and she had similar episodes to this for the longest time. All her tests also came back frustratingly normal as well. It’s been a long road of learning how to listen to her body and lifestyle changes to get it under some control. It really sounds like she may have POTS.
I commented on one of her previous videos about POTS I was wondering the same thing
I am just thinking she just had a baby still working alot. She needs to get some rest and slow down.
I was just going to suggest this! I got diagnosed with pots after my last pregnancy and had these same symptoms.
Carlin, you are a doll face even when you have medical equipment wrapped around your head 😂❤ Stay strong girly, you have a lot of people praying for you. ❤ Evan, you are doing a great job!
Oh my gosh....broke my heart seeing Carlin on the floor having an episode!😢😢 Praying for you and that you get answers!🙏🙏 Love you guys!💜
I just got diagnosed with PNES physcogenic non-epileptic seizures I had the same symptoms as you it’s taken a whole year for my diagnosis in and out of ER and ICU Rooms I would recommend you get a good neurologist and ask them to get a EMU done it’s where they admitted into the hospital for a couple day and monitor your episodes try to find your triggers like you said the worst part is not knowing that was the hardest for me and my family! Prayers to you 🙏🏽
This has me really scared for all of you. I’m so glad someone was there and she wasn’t alone with the babies. I’m praying that they find out what’s wrong very soon and hopefully it can be controlled or stopped all together. Hugs to everyone.
I am so glad Evan's family was there and knew what to do! Carlin I understand your frustration. I have been described as super independent since I was a toddler. I hate people having to do for me too. I pray that God sends the perfect doctors your way and that you have your health back soon.
Aww, you both are SO precious. My heart breaks for what you’re going through, but I know our Lord is in control and loves you both so much!! Rest, stay strong, keep looking up! Continuing to pray for you! Thank you so much for the updates as you can. ✝️🙏🏻❤️💞
This looks so similar to me! I have POTS and recently after tons of drs and er visits one neuro doc said I have PNES. It’s psychogenic non epileptic seizures. It’s a real thing but doesn’t show up on EEGs or in your blood. It took me over a year.
My heart is going out to the two of you. It does look like seizures. Did they do a tilt test? Check for POTS? Evan you are such an amazing husband. You are very wise and it helps that you are able to be calm in a chaotic situation. Carlin I'm praying for you and to get some answers. You were prayed for in my church last Sunday as well. I've watched you grow up on TV and feel like y'all are part of my family. Blessings to you all 🙏
Evans family is amazing. They truly care about Carlin. It’s beautiful
Seeing her go through this on RUclips was so emotional. I can’t imagine how scary for you and your family. 🙏❤️🤗
What she had does not look like a real seizure. She was semi-alert and able to follow commands. One differential diagnosis is psuedo-seizures.
I had a stroke back in 2020 and it affected my emotions so I’m literally trying not to cry watching Carlin go through this in the hallway. I am praying so hard for y’all!
I also had a stroke last year and I was feeling the raw footage! Flashbacks!
It’s so hard to just see Carlin going through that and Evan and his family not being able to do something. All my boyfriend could do was rush me to the hospital, but he couldn’t do nothing else. So you just feel helpless.
@@babycakes1315 yap! And almost a year later I still have no answers. But you learn to live with something chronic like this!
@@hottisphinx the drs couldn’t tell me why I had mine. The neurologist said the left side of the main artery that splits in the back of the head is asymmetrical and told me to take 2 aspirins a day. I still have moments though. It affected the right side of my body and I’m right handed and I have to write slow or whatever I’m writing will be a squiggly line. I still flustered when I talk, I’ll try and say something and say something completely different. It’s frustrating not knowing what actually caused it, but all I can hope is that I don’t have another one. Hope you’re doing well also!
@@babycakes1315 they think mine is migraine induced and I have to take a baby aspirin everyday! But really they have no idea. Also have POTS so that’s annoying! Ain’t life grand!
Watching Carlin cry and say “what’s wrong with me?” broke my heart!!! Praying for you sweet girl!!🤍
Carlin's episode was hard to watch, but Evan's family was so loving and comforting to her. Praying for answers for you all. Glad you will be seeing a neurologist. Evan, you're doing a great job covering your wife and family.
I grew up with a mom having epilepsy and I often saw seizures. Very scary!! Evan, you are an amazing man to be so calm, patient and loving!
I shed so many tears watching this. You guys are so beautiful, so supportive of each other…and Evan, it’s so clear to see how much your family loves you both. I only wish I can one day find a love like that.
I’m a healthcare professional and I can’t even imagine how scary this is. It’s scary for me to watch! I am thinking of you all. Stay strong 💗
every Saturday when y’all post, it makes my day🫶🏼 praying for solid answers and for yalls family!🤍 love you
Please, please, please pay attention!!! I am an RN Masters in Nursing w 50 years experience, 20 yrs in Cardiac Intensive Care at a massive teaching, investigational cardiac facility Wm Beaumont in Royal Oak MI.
PLEASE ASK MDS, CARDIOLOGISTS WHY THEY DO NOT THINK CARLIN HAS POTS (postural orthostatic tachcardia syndrome) its newly discovered, she is typical of so many symptoms, including in 20s, post partum, standing up causes passing out and she has tachycardia, her hands, fingers get pale, dark, indicating lack of circulation. This is cardiac, NOT NEURO FOCUSED USUALLY. PIN THEM DOWN ABOUT POTS, PLEASE!!!!!!!!!!
I have been thinking the same! I’m a nurse too and also have POTS and Gastroparesis and some other stuff. I was borderline with her symptoms and puzzled why they haven’t done further tests except that they’d prefer her see a specialist, BUT, THIS VIDEO was great because I noticed her pale hands too when he was holding her hand and the camera zoomed in on that! It was very noticeable!!
Beautiful you are able to understand some of the spiritual lessons/growth this condition is teaching you💚 Thank you for sharing w us.
I would request an EEG that is longer than just a couple hours… it needs to be at least on her for 3 days or more! I know it’s not the easiest thing but she needs it done! Praying for y’all!! 💜
Yes!
Yes I Definitely agree
Agreed
Carlin & Evan, You've been amazingly strong & courageous through all this. Sending you love, prayers & strength to stay positive & trusting in the Lord. 'May GOD be with you & bless the Dr's hands.'
Look into POTS- she has the same symptoms of my children that have POTS. It can start after pregnancy. The random rashes are also common with POTS. You can also get tremors during a POTS passing out episode.
She needs to get a tilt table test
Yes, yes, yes! I keep posting about this. I really hope they mention it to one of their doctors!
Yes! Tilt table test! Vanderbilt has an excellent Dysautonomia POTS cardiac unit!
Vanderbilt University Medical Center has one of the only specialized Autonomic Dysfunction programs in the U.S.
Sure looks like POTS symptoms, especially the legs discoloration and the circulatory reactions to changing position from sitting / laying down to standing (heart rate spiking, blacking out). Sending blessings of vibrant health and well being, for the Highest Good
I am so sorry this is continuing for you . You definitely have lots of prayers coming your way. Hopefully you will find out soon was is wrong and get on meds to help you out. Love you guys and appreciate the update. ❤️
Evan, you’re an amazing husband! Prayers for you! I’ve been in your situation, I felt like I was watching about myself. I ended up having POTS and a neurologist came in my hospital room and I was having an episode and he said that it’s possible to have seizures and them not show up on EEG. I was accused of faking mine for attention, only if they knew how helpless I felt and this was by medical professionals. After that neurologist saw me he put me on seizure meds and I’m doing so much better
None of my seizures showed up on the standard tests. Mine are believed to be caused by 2 concussions, scar tissue in my brain from when I was having chronic migraines. I have a terrible time sleeping so my body just reached it’s breaking point.
I hate taking medication but I can for the most part live a normal life.
I have P.O.T.S. , too. That is my thoughts. Sometimes doctor's don't ca5ch it right away. See a neurologist.
I was thinking POTS too, my niece has is and would pass out all the time at the drop of a hat! The shaking though is more like seizures almost. When my niece passes out she is still and totally out, but it drains her after each episode. Good luck on figuring out what is wrong! Best wishes!
Trying to find what's wrong is like trying to hit a moving target. Praying for soon answers, and praying for BOTH of you!
Perfect comparison!
I think a big clue is at 8:10 of their high risk pregnancy video. She was diagnosed with a genetic blood clotting illness Factor V Leiden and 2 other issues. Praying - much love and hope for rapid elimination of these horrific symptoms! ruclips.net/video/kb7-Ui-dwtQ/видео.html
Oh Evan, idk how you are able to remain calm! I literally started crying when Carlin started shaking! I pray y'all get some answers to this soon! 💜
I feel you when you said “I feel like God is saying just trust me, I’ve got this!”
I said the same thing after a year and a half.
I felt God had me go through this painful journey to stop me.
I got sick the month before we went on Covid lockdown. I missed the whole summer of work because my body was in no shape and my losing feeling was unpredictable.
Long story short, because I could no longer pursue being a flight medic I was led to lead high school girls at my church.
Almost a year later I felt like physically God touch me on the last night of church camp.
I heard “this is what it was all for Destini, this is where I want you.”
It broke me down to my knees the overwhelming feeling of hearing that for the first time.
I don’t think I’ve ever cried that hard, but it was relief of finally getting a diagnosis and confirmation I wasn’t crazy. Relief from finally having 6 months of prayers answered. Finally feeling like I knew what was happening with my life again…just really stopped me in my tracks and put me where He wanted me!
I have cried so hard watching this. I cannot imagine how scary that has to be. To be Carlin going through that and them not knowing what’s wrong. And to be Evan, having to watch your spouse go through that. Praying so hard that you find answers quick!
I know so did I 😭
Evan & Carlin, my heart broke for Carlin watching this video. Seeing all that Carlin and yourself are going thru. I wept for you Carlin. God Bless you precious girl. I love watching your family and your beautiful journey. Gods Banner of Love is over you. I'll be praying for you all. Love you Much.
I cried a little my heart goes out to you both especially Carlin! May the Lord show you both how to Trust Him in all of this. May He open doors for answers and clarity. Hugs!
If I was closer I'd make meals for you guys and help with the babies.
Love you sweet Carlin and we are praying for you❤
God is faithful sweet girl and remember to be strong and of a good courage Gods got your back, 🙏🙏🙏❤️🌹
I’m not a neurologist but I am a neuro critical nurse & have taken care of a lot of seizure patients in the past 5 years. I agree it definitely looks like seizure activity. Especially the postictal state (sleeping) afterward. I would ask the neurologist if it’s possible to do a continuous EEG test until Carlin has another episode. This might require another hospitalization, but it would be worth the answers that the test would provide. Hopefully once she gets the official diagnosis they can prescribe an anti-seizure medication regimen to get rid of them all together & hopefully can pin point the cause!
Agreed
I had these same episodes, request a 72hr EEG also a Tilt Table Test. It took from the time I was 15yrs old or so to the time I was 28yrs old to get all the right test. Mine were never this many together normally months and months between. The Tilt Table test finally gave us the answers. I have a Heart valve that sticks open which causes me to pass out! My episode would be so different from the next. One time I Lost all continents. That is when I pushed for answers.
And also have her move around … bc it seems her triggers are heat, movement, etc.
@@jillkelso4402 *continence* («continent» is one of earth’s 7 land masses) 🤗 So glad to hear you figured out what went on with your seizure disorder! Good for you!!!💓💞💓
Agreed. My sister is a nurse practitioner and she's working in neurology, specifically epilepsy, and she works at an "EMU" (Epilepsy Monitoring Unit) where patients stay for a week, hooked up to an EEG, hoping for a seizure so the docs can see an active seizure on the EEG and pinpointing seizure or not and what type.
Praying for answers and healing. That was hard, watching you go through that. I can’t imagine what Evan is going through. Blessings.
I pray they find answers. I had to skip some parts because I didn't want to see Carlin like that, I had to cry. I know I speak for everyone here. Evan and Carlin thank you guys for not only sharing the good moments in your life, you guys will get thru this and GOD always have a reason. I pray you guys find answers and we will continue praying for your family. Sending love from the USVI.
I went thru similar episodes and was finally diagnosed with dysautonomia. Keep pushing and searching for answers someone out there will be your blessed Dr. who will find answers and treatment. I'm sorry its so scary
Same. I think she needs to look into tests for dysautonomia because I had the same symptoms and was diagnosed with that along with myocarditis.