CARLIN'S BIG FALL CAUGHT ON SECURITY CAMERA! RESULTS IN CONCUSSION!
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- Опубликовано: 29 июл 2022
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Evan, Carlin, Layla, & Izzy
Take her to Mayo Clinic for a complete work up. You cannot let this go without a proper diagnosis. Praying for her divine healing and wisdom for finding the right doctors. 🙏🏻🙏🏻🙏🏻God bless Carlin!
They (mayo)will take her quickly because of what is going on. We have been there before and they are one of the best.
Yes, go to Mayo, please!!
Carlin said she started have these symptoms while in labor..Epidural ??
@@annjames1837 I have been wondering if it has anything to do with the epidural. I hope they ask
I agree. They get a team of specialists to look at your case together. I've had family members who have had very successful results there.
Y’all should look into a service dog 🐶 to detect & warn you when an episode is about to happen. So can get into a safe position. Praying for you all💗
Good idea!!
That’s a great idea. They may could train Izzy
I 100% agree! My dog is not a service dog, but she was able to bring one of my friends out of her seizure. It’s so amazing that they can sense things like that!
ffs the mentality here is off the charts, its a jabbadoobied disease.
Great idea!
The warning signs that you were about to have a seizure were 1. Aphasia- inability to find words. 2. Tinnitus- "noise in your head". You did a great job describing your body's warning signs. If you feel these again, lay down to prevent another head injury.
That’s what I was gonna say. She described her aura. She is having a warning. She just didn’t realize it. She will now. And yes, get laid down. My daughter has epilepsy. She may need multiple meds. Poor thing. Hopefully they will figure it out. Hate to say it but, my daughter was born in 1994 and it took Doctors until 2011 to figure it out. Took the smartest Doctor. Dr. Deepak MADHAVAN out of Omaha Nebraska. He is now working pediatrics but he may be convinced to take a look at her case. He has people see him from as far away as Canada. Be saved my daughter’s life.
Someone needs to tell her it’s impossible to faint during childbirth.
@@angelapence6370 I have petit mal seizures/focal seizures with impaired awareness. My only warnings are smelling gunpowder and an intense feeling of deja vu. but surprisingly the smell precedes the seizure by quite a bit of time. Though when the deja vu hits I know to sit down or get near a bed. The problem is that I still have a serious sleep problem. I sleep 9-13 hours a day, or I cannot function and it really sucks.
@@sox1085 why are you spamming this incorrect comment everywhere? One can most certainly faint during childbirth.
@@hunterh2013 no you’re the one spewing wrong information because she needs to know that fainting during childbirth is extremely rare. “the female body is made in such a way that it mobilizes all its forces when giving birth to a baby. Passing out is not a typical reaction of a woman's body to childbirth.”
12:42
Carlin: did I get my shoes?
Layla: no ( looking at her mama’s feet and then back up at Carlin’s face) so adorable!
My heart melted. Sweet baby girl!
I know right; that was so cute- looking out for mama 🫠
I fell 2x! Broke my arms and bruised my ribs and hip! It’s a good idea to get a wheelchair. Not only for Carlins safety but your kids also. Go to a specialty hospital as was suggested before. I go to Cleveland Clinic- they are great! Christian thank the good Lord you are there! Such a blessing! Evan you’re a great husband and father!🧡
I disagree. If she has a seizure sitting in a wheelchair, there is a huge risk her airway will become blocked, as she likely would slump forward. A person having a seizure has incredible strength and to get her sitting correctly so her airway is open, could be next to impossible. Plus people having seizures while sitting in wheelchairs, and shake and tremble so bad they slide out of them and hit their head on the floor. I have seen this more than once occur.
@@starsrgood and possibly break bones. A lot of times doctors don’t find any cause- so many different factors could be the cause.
The girl has epilepsy- 2 or more unprovoked seizures usually indicates epilepsy. Speaking from experience here 👋🏻
Evan, something I learned through my husband's illness, you have to be her proponent. It is ok to question everyone and everything, and you should. Medical staff will not think of telling you everything you need to know. I was worried about my husband in the ICU; I needed to know that he was safe being next to a patient who had a flesh-eating bacteria. With all the worries, I did not need to carry that one. The nurse blew me off, so I asked the doctor. The nurse got very angry with me, but I don't care. I got the answer I needed to know that my husband was safe. If you don't understand something, ask. If you are unsure of something, ask. You are Carlin's front line. Be proactive. If you upset someone, that's just too bad. Carlin is what matters.
I am a full time care giver to my young adult son who was born with a rare disease and I couldn’t agree more with what you just said!
And truly good doctors and medical staff will only appreciate that you are doing the very best you can for your loved one!
I’m never rude, I just make sure they know that I want to know EVERYTHING and that I will question EVERYTHING new!
I agree with this! The only dumb question is the one not asked!!!
Also, mainstream medicine does not have all the answers! Functional medicine may be able to help!!
I am a retired nurse. Advocating for, as well as asking questions until you are understanding and satisfied with the answer is very important. We always advised patients and their families to keep a notebook with questions and then the answers written down. Even writing down medication changes or strange or different symptoms really help you out when you are asked a question you may not have an immediate answer for but you know whatever did happen and having the notebook might help. It really helped our patients, their families, the nurses, Drs and everyone else involved in the care. This is a suggestion only, if you are doing it awesome, if it is not something you are interested in, that is okay too. Just give it consideration please.
Agreed..advocate for her....while you said wait for the doctors what if the next fall or espiode leaves her in a coma ect. Make suggestions to the doctor saying hey I have done some research and because Carlin had an epidural could it be this...the doctors aren't going to move if you just sit back.
Evan, praying for your family. As a retired nurse, very concerned about Carlin. She is so slow to speak at times and just not herself at all. Until you get answers, she must stay at home. No shopping, church or activities. It’s too dangerous for her unless you find a wheelchair. Please ask the Dr. If she could have a spinal leak from the epidural. God bless you guys!
And they just keep taking her on vacations it's not helping. I think he should take her to the Mayo clinic.
Yes I think it is the epidural it's damaging something. 🙏🙏🙏
I believe they already followed up possible connections to the epidural. Evan mentioned that very early on.
Blood patch is good for that right?
they said she had just restarted the meds and they expected the slow speech to clear up...and no she doesn't have to hold her self prisoner. she just needs to be careful about activities she chooses. stress of home confinement may make it worse especially if she can't even take her kid to the park and sit on a blanket for a picnic...
Also Evan, when she just passes out, ALWAYS check her eyes to see if they’re moving/shaking side to side etc because she could still be seizing without her body moving! This could be EXTREMELY important for her neurologist!
Exactly right you are. Even just the slightest, blank out I guess is what I called them, is considered a seizure. Ignorant people think that the only seizures are the big ones where you pass out and shake uncontrollably stuff like that. I think some people watch too many movies. 😑
@@Cindee-Schnitman Yeah, most people don’t know that there are many different types of seizures…
When I started getting them in my sleep it scared the hell out of me.
Waking up nauseous, with a headache only to find I peed the bed. 😔😔 biting my lip was the immediate clue that I had sleep seizures. It only happened 3 times but still, I was a little freaked out
@@Cindee-Schnitman my daughter has sleep myoclonic seizures… They’re different then grandmal/tonic clonic seizures… They only affect one side of her body and her face, she doesn’t lose control of her bowels or anything like that… They’re really strange for sure!
@@mrs_maverick1121 yes. I was in the process of coming off one medicine to another one. It only happened that three times, but nonetheless very scary. The sleep seizures stopped, but I kept having the partial vocals, then the complex partial, now I am on two medication‘s and they work quite well. However I am still getting The I lose my train of thought and kind of stop doing whatever I was doing for about 10 seconds. Usually always happens if I am stressed, all of this year for me personally, and if I haven’t gotten enough sleep I just have a really tough time at work, fortunately my coworkers look out for me.
I just prayed for wisdom for your medical team to get to the ROOT of this. Also, prayed for angelic protection during falls/episodes. Thank you for the update, as we all appreciate your vulnerability over such a private situation. God bless y'all! 💕
Until the doctors get this under control I feel it would be best for Carlin to be in a wheelchair. These episodes pose a huge risk of severe injury. Is there any way you guys could get to Boston Hospital, Mass General Hospital, or Cleveland clinic, or John Hopkins, or Mayo Clinic for further opinion and work up.
Absolutely - enough is enough! If your local specialists can't give you any specific answers, it is definitely time to go to those who can...this is beyond acceptable...Even if you have to be admitted until they can stabilize your condition. Get the best specialist/hospital/clinic that you can.. This is such a danagerous
situation. Over two months without a diagnosis/treatment is totally unacceptable. Take care. A concerned Canadian! Definitely a wheelchair in the interim.
Yes I agree with you for her safety. Especially with her not having any warning that she’s about to have one. ❤️🙏
That's smart actually.
I'd have to agree with you. To prevent her from hitting her head again and getting another concussion...a wheelchair may be the best option. My daughter was in Mass General for a bit...something different from Carlin (getting over pneumonia)...but they are great there. I'm sure they can get to the bottom of what's going on with her.
A wheelchair would be safer to use until it’s under control. That’s so scary and I was with a friend when she had a seizure and I totally sympathize. Praying for you all.
Continual prayer coming y’all’s way! Y’all have been on my mind constantly thank you for the updates ❤️
Thanks for the update. It’s scary hearing you talk about your health issues, but thankful you’re willing to share so we can continue to pray for you and Evan and your littles!!! Also thankful you have a friend who can somewhat relate and you can lean on each other for support and encouragement. It’s hard to understand why we go through certain things, but as Christians, we know at the end of the day it’s God’s plan and it’s for his purpose and I also believe it’s His way of helping to grow stronger in our faith.
Prayers continued that God continues to keep you safe and continues to provide the help, encouragement, peace, comfort, and support you need through this time of uncertainty. 🙏🏻👍🏻❤️
The “glazed” over look of Carlin’s eyes is a bit frightening for me as a nurse. I kept looking to see if she was having silent seizures as well.
Could this be related to her epidural? Like something in her spine?
@@morgannathanvitt4621 I believe she passed out at the hospital before the epidural was administered. If that passing out is related to this then it’s not the epidural.
As a speech pathologist the rate of her speech h and the glazed eyes is very concerning. The local doctors seem terrible - no helmet or recommendation to be in a wheelchair? Crazy!
I’ve been diagnosed and experienced epileptic seizures since a child and that glazed look is exactly the same as how my ‘silent’ seizures present themselves. Evan should take this video in to show Carlin’s specialist as I really feel it’s important he see how she is behaving during this discussion as it seems unusual x
@@laurenj8888 I would expect some sense of urgency on their end. I agree, helmet, wheelchair, anything to prevent her from hitting her head over and over.
Sending prayers and positive thoughts y’all’s way! Thank you guys for keeping us updated.
Appreciate the updates. You are in my thoughts and prayers. I cried when I saw you passed out at the boutique. I cannot imagine how frustrating it is to not know what is wrong with you. I hate it for you and I pray the dr’s are able to figure it out soon and you can be on the path to recovery.
Carlin, you are such a precious soul! I have watched you and your sweet, kind, and giving nature while growing up on "Bringing Up Bates" and my heart breaks for you that you are going through this! I will keep you in my prayers always!
Blessings! Thank you for the updates. You’re being kept in prayers and the family.
Sending you lots of good thoughts and well wishes! I know how frustrating it is to not get all the answers right away so you can go ahead and feel better already! Luckily you are surrounded by so many people who obviously love and care for you. You got this, Carlin!
Evan and Carlin, watching this vlog just breaks my heart. I have been praying for you all since this this all started. You are getting A LOT of great advice in all of the comments. Thanks for keeping us all updated! We all love you and your precious family and want for you to get the answers you need to be yourself again and enjoy life to the fullest! Evan, as the caregiver for Carlin and L & Z please take care of your self as well. If you need a break you have a HUGE support system to reach out too. Continued prayers!! ❤
Thank you Carlin and Evan for sharing this very difficult time in your lives , praying for you both and praying for Carlin to find answers and get the right help with medications , love to you all and your family xoxo
Thank you for sharing your experiences. I've recently had a few episodes of passing out. I work in healthcare and thankfully I've been at work when it's happened. I totally understand how you feel when you can't even do the simple things like the dishes, cooking and laundry. I'm also a Latin dancer when I'm not working, and it's cut down my ability to that as well. Ya'll are not alone going through this. It's always helpful to have family and community around to help out. My prayers for you and your family!!!
Oh my goodness! That fall! So thankful it wasn't worse than it was. Please take it easy until this is under control.
Lots of thoughts, prayers and good vibes for you and your health.
Thanks for the update. Continuing to pray for Carlin, Evan and your beautiful family.
Continuing to pray for you, Carlin!! May the Lord protect you and reveal the answers to your health issues!! It’s a big blessing to have Christian there to help along with other friends and your family. Sending much love to you all!
🙏☦️🙏
Carlin, I know where you're at, because I've been there. I have had multiple falls that have led to concussions, after a traumatic brain injury. Also I have had tremors and a seizure while having young children.
I've had to do the EEGs that you've gone through. I want you to know that you will get through this and it will get stabilized. I have no doubt that the answers you need will be provided. It just might not come as fast as you want them. We are praying for you and your family. ❤️❤️
I hope they figure it out soon. Sending love, light, and prayers.
Praying for you all and some answers. So glad you are keeping us updated I have followed your family from day one! 🙏🙏🙏🙏
♦️I strongly believe her seizures are from the MTHFR blood disorder and lactation. In certain instances, tests show prolactin (lactation hormone) highest after a seizure. Perhaps the variation in this is causing the seizures. Also her MTHFR may drop vitamin B levels which is a known cause of seizures too. I originally thought the seizures were from epidural but they started before. But the prolactin can be active around labor time.
I am so sorry for you and your family your both being so brave. I hope you get some answers soon Evan your being such an amazing husband and father.praying for you Carlin and prayers for your whole family.
Keeping y’all in my prayers! And we understand if it’s been awhile since we heard from you ! Family comes first!🙏❤️
Thank you Ms. Christian & Mr. Stewart!!!
I Appreciate y’all so much!
Thank you so much for updating us. We all feel like we know you due to the show. Your surrounded by so much love. I pray you’ll receive the answers. What a blessing that you have Christian. My heart goes out to the both of you. I’m praying for answers. God bless you both 🙏
My prayers are with you! Praise God for the wonderful people and family around Carlin now!
I found your channel right after you started having the seizures and passing out. You and your family have been in my prayers that you will find out what’s going on. My husband had seizures 3 years ago and had a meningioma tumor behind his left eye, had it removed and just got off his last seizure medication. I love your channel with you , your sweet hubby and your two adorable babies. Prayers🙏🙏🙏
I have been praying for you Carlin since the beginning of this! I also pray that you find a doctor that can pinpoint the problem sooner than later! You have so many people out here that you do not know that have been praying for you! Thanks for sharing!
I also started having seizures right after my second child. I got diagnosed with epilepsy. I'm praying for you guys. I'm so proud of you both. Your both so strong and you will get through it. You have each other and the Lord.
Wow
Continuing to keep Carlin, Evan and the family in prayer! You are all in His hands.. Praying for the doctors who provide Carlin care, that the Lord will give them the knowledge to be able to diagnose her so she can get the treatment needed to control or cure these episodes.. Big hugs and much love from Nashville! ♥️♥️♥️
You and your family are always in my thoughts and prayers. I am literally going through the same things you're going through it's been a couple of years it is definitely a marathon and not a Sprint but watching you and your family and hearing your story has helped me feel not alone don't get me wrong I wish you didn't go through this at all but having someone that's going through pretty much step by step what I'm going through makes me feel like I'm not alone in this world. I will continue to pray for you if you ever want someone to talk to about this journey I'm always here. God bless you and your family and I pray for fast understanding.
Just sent up a prayer for you! 💜
This absolutely breaks my heart… I thank the Lord for Evan being such an amazing husband and father and for Christian for being such an awesome friend and helping in caring for Carlin. Praying for you all!! 🙏🙏🙏🙏
God bless you and your precious family! Thank you for sharing your journey with all of us.
Praying for you guys!!🙏🏻🙏🏻🥰Gods blessings!!
Praying over Carlin and your sweet family. His is still in the business of healing. ❤️
God bless you Carlin! I’m so sorry that you are going through this. We will continue to pray for you and ask God for answers and most of all a complete and total healing for you! Thank you so much for keeping us informed. Sending you much love 💕
I'm praying for y'all!! You guys are so sweet and pure!
I Love your family so much. Praying for a miracle! Love all the Bates🥰😍🫶🏼🙏🏼
How precious is layla snuggled to you carlin! I love seeing her grow and her beautiful personality. I am sending you all my prayers and love from Ireland and I know God will help you get well soon. 💚🤍🧡
I loved it when she laid back and propped her little foot on the other knee. Such a doll
Laylas little interruptions are so cute! Praying for y’all!
Sending prayers for you Carlin and your precious family! So thankful you have a close friend that can be with you and also her knowing what you're going thru. Love you guys, take care!
Carlin, you've been in my prayers and will continue to be in my thoughts and prayers! Love you, Evan, Layla and Zade! You're all in my thoughts and prayers for I hope and pray soon that they'll find out what's causing your episodes. Y'all have been a blessing to me and I love your videos. God Bless You and Your sweet and precious little family! Love you all!❤️🙏🙏🙏❤️🙏❤️🙏🙏🙏❤️
Big hugs and prayers all around you and your family ❤️ I agree that protecting your head now until this is stabilized is SO important hun💕 Please try a wheelchair and at least sit down when you have ANY indication that you feel “weird”! I totally get where you are at as I have been through this with several friends/relatives etc. They are all different as the brain is soooo complex! Wish you all nothing but the best and just love on your sweet babies ❤️
We are keeping you in our daily prayers Carlin. God Bless you hun.
praying for u carlin... just remember even through hard times like this Gods plan and timing is so much better than any of ours💕
I will continue to pray for you and pray for wisdom for the doctors and answers! Hanging in there with you!
My heart breaks for you and the difficulty you are dealing with. I'm so sorry. I really hope you can get some definitive answers. Praying for you! I love you all!
Hugs and prayers for y’all! From Kentucky!🙏🏻🙏🏻
It's good to see yall so positive during this time. Praying they figure out whats wrong. Yes definitely be careful of hitting your head and causing more damage. Using a wheel chair would be a good alternative to keep from getting hurt if you did have a episode. Rest up Carlin...all this will definitely wear you out. And Evan stay rested up as well..it will wear you down physically as well. Yall have a great day!
Praying for you Carlin ❤️ We love you!
Sending lots of love & hugs praying for you both. I hope you both get answers for which caused all these seizures and I hope the dr get to the bottom of it. And get your medicine regulated sending lots of love and hugs. ❤️❤️❤️
Praying for answers and no more bad falls in the meantime! ❤️
I was diagnosed with idiopathic epilepsy at 24 years old. It’s been 10 years of consistent medication use and I am completely seizure free. The side effects are the hardest part. Some days I am so tired, foggy and experience major mood swings. Other days I am completely fine. Prayers for wisdom for you and your doctors. The right medication makes a world of difference!
Praying for her and the family. Ya are such a sweet family. God Bless you all.
Oh Carlin!!! Bless your sweet heart! You’re on my mind SO much, and I am continuing to pray for you! So glad you have so many people around you to help in whatever way they can. Hang in there girl! Praying you get some definitive answers soon! 💗 Sending hugs to you from Wilmington, NC! 🤗 -Kelly J.
I am so sorry that you are still going through this. I pray that the Dr’s figure this out soon.❤️Thank you for the update. Love you guys
Carlin, I admire your strength and perseverance in all of this. Not so sure I could be as upbeat as you are. I’m sure you have your moments, but from what I see and from where I sit, you, my dear are a pillar of strength and such a faith builder for many.
I hope they (Docs) get to the bottom of this, and SOON. As I’m sure you hope for the same. Hang in there, keep smiling that beautiful smile. SOo many prayers are being said for you!
God Bless…🎚🙏🏻🎚
Man! What a whirlwind! I’m currently on keppra and they just increased my meds because I’ve had 5 long seizure episodes in a month. Gone in an ambulance twice too. When adjusting to keppra it can make you really tired and dizzy, so I feel you there! I slept 13 hours last night after increasing the meds lol I appreciate you being open with your faith…I am a Christian as well and it’s so nice to see vloggers who don’t shy away from that. Praying for you!!!
Keppra is horrible my daughter gained so much weight on it now she is on lamictal and does well on it.
@@amandacarey3846 I would be on Lamictal but I’m allergic to it. It gives me hives 😭
I can tell in her eyes that she needs immediate medical attention and a solid diagnosis asap! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Yeah, you can tell she looks distant in her eyes.
Yes. My daughter is the same way and she's been to every kind of doctor imaginable with no answers.
@@rlvmommy4106 I've been like this every single day for years no answers. Good luck. Complex conditions can takes a long time sadly
Yes, I agree. I was thinking the same thing looking at her eyes.
@@breeannwalker8309 That's terrible...I hope you and everyone else suffering can get answers.
God bless you both for your strength and attitude! You are helping so many people with your life🌺🙏🏼❤️
You are in my continued prayers. 🙏💗🙏. Thank God you have such a support system.
Praying for y’all. I completely understand what you’re going through. The sleeping though is normal. So sorry y’all are going through this. ❤️🙏
Prayers and love for you Carlin and Evan. You need a helmet girl! Hopefully you get answers soon. Happy you have helpers with you ❤🙏
Praying for you 🙏🏻 My husband and 2yo both experience seizures. 1 in 26 people in the US develop epilepsy over their lifetime. Additionally 1 in 10 people will have a seizure in their lifetime. You are definitely not alone. 💜It’s really wonderful that you are sharing this, as I’m sure you are encouraging someone else who feels alone in this. Also, if you haven’t already, please make sure those around you are familiar with seizure first aid (Epilepsy Foundation of America has 30 min free training online, or even just printing off their seizure first aid graphic). Lastly, there is the Epilepsy Foundation of East Tennessee in Knoxville. They have a support group open to all individuals with epilepsy or seizure disorders and caregivers. It may be worth checking out!
I so feel for you and I understand what you are going through. My story is different. I had my thyroid removed in 2018. Within a few weeks of having mine removed I started having seizures. Went through all of the tests you have had so far. After 6 months and multiple EEG’s later I had one while having an EEG. I had a “misfire” as they explained it to me in an area of my brain where thyroid controls. My neurologist finally came up with an answer. He believed my body went in shock after having my thyroid removed. I’m in the less than 1 percent that has had that happen. So mine are trauma induced. I rarely have them now. Usually when I get over anxious or stressed when I have them. I am not on seizure meds but the doctor decided to put me on antidepressants and anti anxiety medicine to see if it helped. He also told me they would slowly get better and he was right. I hope this helps you somehow Carlin! Everything you described in how you felt before and after is how I was! Praying for you and your precious family! By the way I live in north Alabama so not too far from you guys.
I am continuing with my prayers for you all. Praying that you find answers.
Love you all so much ...Appreciate the updates. Just praying for answers to stop this. So scary. I am so glad you have Evan. He is such a great guy. Great Dad ...great husband lol 😆 Hope things come together with upstairs AC & all at the house. Blessings to all. ❤
Christian is a once in a lifetime friend! So genuine & sincere.. ❤️✝️
Keep fighting Carlin!
Carlin stay strong!! You have a great support system!! Definitely keep asking questions and at some point you may need a pair of fresh eyes to look at test results. I've been taking seizure meds since 1995 and my last seizure was in 2003 because I was taken off the meds for 6 mos. I immediately started taking a different med ( from a different doctor) which I still take today and will need to take for life.
Sending prayers for your family get better Carlin your a strong girl keeping you in my prayers💕
Prayers for answers, cure and a speedy recovery from Ottawa, ON, Canada!
Sending the Stewart family lots of prayers!💜💜💜💜💜💜
I’m praying for you Carlin! ❤️ it’s so sad to see that your are having these health complications!
Carlin, sending you love and prayers that you find out answers and the doctors figure this out.
Happy to hear you have a friend like Christian who has been of help because of similar experiences but also been a help to your family by being an extra hand.
I hope there will be no more falls because yes too many concussions so close are dangerous.
Happy to know your doctor has given out their parents personal number so you all can be reassured.
I hope the doctos can find out how to help you very soon.
Dont stop researching to get answers.
Hope yo aCentral air is repaired soon.
Praying you heal and find answers . You have such a precious family ❤️🙏
Still praying for you Carlin!! Much love to you and your family ❤️
Girl I’ve been praying hard for you.. I just had one of my seizure episodes the other day and have been laid up and exhausted for the last few days.. I feel everything you’re going through. Sending love and prayers ❤️
I'm praying for your health Carlin. God bless you and your family. You have a great friend! Love yall!
You have a wonderful friend! And Layla is too cute throughout this entire video! Prayers
Praying for you guys, I hope that the doctors can figure out what's going on. Thanks for keeping us all updated.
Praying for Carlin and the whole family. 🙏🏻🙏🏻🙏🏻
Praying for you. You talking about it can help others. That makes you a blessing for others.
Stewart family: I've been going through Carlin's similar symptoms for over 20 years. It started out with "passing out", having seizures (my very first one was when I was driving...and I hit & totaled a college policeman's truck... even worse is I knew him and worked with him as a co-worker at a college), trouble with speech, brain fog, etc. Then suddenly, I went into a kind of "remission" for about 8 years, but then started having increasing amounts of severe constant chronic pain. The constant pain started when I was pregnant with my only child (he's 15 now) and just continued to get worse from there.
I dealt with the pain for as long as I could, but eventually after 2-3 years, I was in so much unbearable pain that I left my job and I wasn't really able to take care of my young son, needed TONS of help from family.
After I saw a neurosurgeon, we discovered I had a very rare form of a benign, but very aggressive & very large spinal tumor which ended up being 9 inches long: it went from my T4 vertebrae to my left shoulder blade and the surgeon removed what he could, but he said this aggressive hemangioma tumor are away part of the protective coating around my spine, and that would cause severe constant pain for the rest of my life. Although my back pain after surgery was significantly better, I was still in very severe intractable pain 24/7/365.
Then suddenly, about 8 years after the last seizure and about 4 months after my spinal surgery/tumor resection, I had a seizure...while driving... this time with my 3 year old son in the backseat. We were miraculously ok after I somehow went through a MAJOR intersection in Dallas, TX and through a small opening to a gated community and "only" dinged a parked car! Very scary to "wake up" to a police officer banging on my car window with my son screaming in the backseat, and not being able to speak at all! The officer thought I was on drugs, but thank God Almighty my husband came there in his jailer uniform (he's a detention officer for Dallas County Sheriff's Department) to convince the officer that I don't take drugs and I never have.
Of course, I gave up driving after that!
My pain (back, and widespread both) became so severe that I had to start seeing a pain management doctor just to manage my pain enough to take care of my son at home, and he was later confirmed to be an autistic savant (animals, dinosaurs, any real or fictional living creature).
Then in 2016, the "opioid epidemic" hit HARD, and here's what I mean by this:
I never abused/misused my very medically necessary medications, but unfortunately the new CDC Guidelines about opioid prescriptions scared my doctor so much that he was afraid of being arrested, so he panicked and abruptly stopped ALL of my meds (I still had my seizure meds back then, but not for long) suddenly.
About 4 days later after the abrupt discontinuations, I had a stroke, and I was only 33 years old then.
It was then that my life really spiralled downhill very FAST: I became unable to care for myself, let alone my autistic son.
Then to add insult to injury, I was told by my neurologist who was prescribing my seizure meds, that I would have to CHOOSE to either treat my seizures OR treat my unbearable pain.
At the time, I figured that I can "live" with occasional seizures, but I just could not survive in that kind of intractable pain.
So I was taken off all of my seizure meds because I chose to treat my unbearable pain, which couldn't be treated any other way at that point in time.
Keep in mind, I had been taking both seizure and pain meds for YEARS without any problems whatsoever. I was able to care for my family and for myself back then.
I became homebound, bedridden, chair-bound, and I was a shell who was barely just surviving at best.
Also note: I never had any side-effects like "feeling good or high" from ANY of my medications...I only felt some pain relief which allowed me to live a functional life.
Sorry about the long story, and I'm trying to make it shorter:
I basically was treated like a drug junkie, like garbage, and me & my family members have witnessed MANY stories of them medically abandoning me and misdiagnosed and my health continued to decline.
My faith in God and my son are the ONLY 2 reasons why I stayed alive through that point.
I finally found an online community on Facebook, which led me to my current pain management doctor.
His treatments slowly started helping me become more functional, but by then, I had developed muscle atrophy because of the stroke and because of untreated intractable pain for years! Plus I continued to have an increasing number of seizures.
Last year in July 2021, I suddenly lost control/sensation of my left thigh and I had to be taken to a hospital an hour away to be taken seriously. It turns out I was diagnosed with Multiple Sclerosis! Those doctors were appalled and shocked by the way I'd been "treated" by these other "medical professionals".
I have a medication pump in me now, which helps.
I'm also using something called Lifewave patches, which have recently started giving me my life back!
Sorry this was so long, but I would LOVE to help Carlin and Evan learn to handle both the medical personnel, such as learning how to advocate for yourself while still being respectful to them, etc.
If anyone in the Stewart/Bates family would like my free volunteer help as a coach/consultant, then I would be more than happy to do so!
Maybe it would spare Carlin and Evan the Hell on earth I had to walk through and back again!
NOTE: Opioids have been demonized in recent years, but there are a significant number of people out there with a very clear physical need for them and they have never abused, misused, or craved them.
Ever since I found Lifewave patches, I haven't needed any opioids at all. I was able to stop taking my opioids, which I was on for over 14 years total, with no problem whatsoever. No cravings, no withdrawal, etc.
I get all of my pain relief from my Lifewave patches and I've also been seizure-free since October 1, 2021, which is HUGE for me!
I hope and pray Carlin and Evan sees this post, takes the time to read the whole thing, and leave me a comment with maybe a way to communicate so Carlin doesn't have to suffer the way I did.
Sincerely with God's Love,
Christina Nunn
christinanunn40@gmail.com
Thank you for your post. I wish it wasn’t so hard to find out what’s wrong with us, with all the doctors that just blow us off like it’s nothing.
We use lifepatches also. They helped a lot with the COVID.
So sorry this has happened to you. May God our Father take care of you
@@francesb5004 that’s quite a story wow 😯 so sorry you had to go through hell and backX
Bless your heart
Sending Prayers!!
🙏🏻🌻 Carlin, continued prayers being sent from Cape Cod 🦞. Praying for your medical team to get the answers and praying that these seizures STOP as quickly as they began. 🌻🙏🏻
Prayers for your healing and a quick recovery!!
Your story mirrors mine. I was diagnosed with partial complex seizure disorder. Meds helped but what really stopped my seizures was having a hysterectomy. My meds didn't work so I started smoking menthol cigarettes....that helped tremendously. I keep praying for you and the family. God bless
I so adore this family!!! God bless your hearts, for trying to be so patient. I am glad the moving part is over, and some of the OCD is calm. I have PTSD, and have unbelievable panic attacks just out of the blue. They are scary, and feed into my uneasiness, which triggers the panic attacks. It’s a vicious cycle. I have learned to just sit down wherever I am, and stay down until I either have a lot of help around me, or it subsides. I just hand it over to God and let him deal with it. And yes Carlin, I understand the “what happened “? I can’t remember anything either. I am just thankful I do not have children at home anymore, that would drive me crazy for sure. Even all my grands are in school, so I am not babysitting anymore. Just know, you’re in our prayers and though it feels like it, you are not alone in this situation. Hugs 🥰🥰
I’m
Carin and Evan are a testament to your love for each other and the Lord's love. Thank you for the update. I had a hit to the head over and concussion in 2006 when I ran into a sport beam in the rain and still have word recall issues. You are both in my prayers.
Stay strong Carlin! Evan you are doing a wonderful job taking care of Layla and baby Zade. We are continuing our prayers for Carlin, you, & the kids. We love you guys! 💗🙏
You guys will be in my prayers this is so heart breaking watching this. I hope the meds gets working and they find out what is the underlying problem.
Hi! Just to add my experience on passing out, I had a very similar experience to what you were going through in the beginning of all of this. I’ve never had a child so that wasn’t what caused it, I was on a few different medications that would cause my blood pressure to plummet. I was also really low on sodium. I’m sure those have all been checked by your drs but, maybe something to look into as well? Best of luck!