Courageous Conversations: Life with Frontotemporal (FTD) and Primary Progressive Aphasia (PPA)
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- Опубликовано: 13 июн 2024
- Join Teepa and Sheryl Whitman to learn more about Sheryl's lived experience. #courageousconversations #teepasnow
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Wow Teepa. You are such a special person. Your explanation of not only showing people your bright, shiny side was so eloquent. And insightful. Thanks for uploading this video.
What a delightful, insightful conversation! Sheryl is so sharp and honest. The discussion of the dysexecutive stuff was especially informative. Thank you both.
@Ben Anderstone this is Paula. I am glad that you found this informative. Please check out our website teepasnow.com for more information.
Her speech is great. My mother speaks in an endless stream but only a few words make sense and they are simple linking words. It's a long time since she spoke in a normal way for her. For years she called a handbag or cupboard or purse a box. Anything which could contain something was a box. Her nouns disappeared first together with her full name, address and date of birth. She remembered appointments and changes to my father's teaching schedule, if a pupil changed day or time she was the one who remembered, but at the same time she was picking up cat poo in her hands and going in to the music room to show it to my dad .... while he was teaching. It's been a long, painful journey.
Hi, @Katheryne Mason, thanks for sharing your story and for appreciating Sheryl's talk. If you ever want to connect, please contact us info@teepasnow.com or 1-877-877-1671.
What a WONDERFUL lady like Sheryl and I learn a lot from seeing how she manages her life so JOLLY and POSITIVELY!!!!!
Thanks, @Paula Hodgson! I appreciate your comment and really love that you see value in this story. If you liked this video, you may also like to check out our monthly online journal
teepasnow.com/online-dementia-journal/
Her speaking is great
Such brave conversations
Amazing about your riding the roller coaster and not being afraid. My husband went from being able to climb 150 feet in the air to not being able to climb a ladder.
Oh wow, @Cathy Hadad! Thanks for sharing.
The stuff we learn first physically is stuff that stays with us!
Ah...so it sounds like you're a kinesthetic learner. I wonder what someone who is auditory picks up on at a young age? or perhaps visual?
I’m pretty sure I’m a visual learner. I could picture my notes during tests. I could actually page through my notes in my head to find the needed information. My memory works like a series of pictures. The stronger the memory, the more color and vibrancy. And feelings.
My best friend since I was 11 was diagnosed with Primary Progressive Aphasia today. This video cheered me up quite a bit for some reason. Thank you.
I have ADHD and showers take up too many of my “spoons” for the day! Daddy has never showered much. Now we do a lot of disposable washcloth “baths”. He gets excited “WOW I didn’t know these were so versatile!” I wipe my armpits after helping him wipe his 😂. I try to make it fun. I turn around and say “ok now scrub your balls” (sorry if too much information but I think it’s helpful) and he does it I think 😂 when I convince him to shower I place my hands on his hands on his head and guide his fingers as to remind him how to wash his hair. He will get so happy! “We’re going now!” And stamp his feet like a kid. I’m sure to give him privacy so I just kinda poke my head in for reminders. I remove all items from the shower and put his shampoo and soap and conditioner in little bowls and help him pour it in his hands or on the wash pouf. It’s been some getting used to but it’s working out so far.
Again, @Saritabanana it sounds like you are doing what works for him, so nice work. If you would like to learn more about helping with bathing, you might want to check out these videos (www.youtube.com/@teepasnowvideos/search?query=bathing) or maybe consider taking our champion course to help you learn more about approach and techniques (teepasnow.com/resources/for-professionals/#knowledge)
Very helpful!!!
Very interesting info, thankyou.
@Mrs Fitz, this is Paula, we are glad you found this interesting. Please check out our website teepasnow.com we have a lot of resources and youtube videos.
Well she speaks really well, compared to my girlfriend who can’t speak at all who is diagnosed in 2018. And now she’s in Assissted Living and can’t speak except to say one or two words at a time. So this lady here is far better than my girlfriend is right now. I don’t know how much worse this gets, but it’s so much worse than it was a year ago. A year ago she was just missing words. No she can hardly walk but she still knows who I am. I just have to ask her name and have her look at me. She’s into to sweets. And she still only weighs 100 pounds. My question is, what does the future hold. Or get worse.?
Hi, @Bernard Winn, it sounds like you are dealing with a lot right now. You ask a good question, but it's hard to answer as every person is different in how they progress through this journey. We can't say how much longer or how much worse, but if you would like to talk to someone about things in more detail, please reach out to us for a free 30-minute consult 1-877-877-1671 or consult@teepasnow.com.
Hi Sheryl, you look and sound amazing and God bless you.. I’m blessing you have gone over last 10 yrs? How have you managed this? My relative diagnosed 2 years ago PPA and speech has gone 😢
Hi, @fionnualas. Yes, it's great to know that Sheryl has been living well for quite a while. Glad that you enjoyed the video. Sorry to hear about your relative, but we have to say every person's journey is different and how they progress is often dependent upon other health issues, the type of care provided, and the people around them. If you would like to learn a bit more, check out this search (teepasnow.com/search/?search=ftd) on our website or contact us at 1-877-877-1671.
This was happening with my husband - he lost so many jobs it was terrible. We are having trouble getting a diagnosis but it does sound like this unfortunately.
@Art Girl, I'm so sorry this has been so hard for you and your husband. Please reach out to our consulting team to see if we might help you with some strategies for talking with doctors or others. Consult@teepasnow.com or 1-877-877-1671.
Interesting how she recognizes the deficiencies. How many people can do that?
Hello @Rick Anglada. It's Cheryl from Teepa's team. Thanks for watching Courageous Conversation with Sheryl Whitman. Rick, great notice that Sheryl was able to share with Teepa during this Conversation. It sure was an honor that Sheryl was having a good day to be able to be Teepa's guest. Here is another free resource you may like: (teepasnow.com/about-dementia/) Rick did you know Teepa is on TikTok as well, offering plenty of helpful videos? www.tiktok.com/@teepasnow If you'd like to visit her website teepasnow.com there are a LOT more resources as well as learning/training opportunities!
what are the subtle symptoms ? I may have this ! It is possible I could have had PPA for 15 years. I've had speech difficulties close to 18 years, But I see more issues cropping up with my speech now.
Hi, @Kim Gloria, thanks for asking for more information. I'm wondering if you might want to learn a bit more through this video (shop.teepasnow.com/product/primary-progressive-aphasia/) or if you'd like to talk with us, please contact us at info@teepasnow.com
Is there any more interviews with her sharing her story
Please see our earlier response, @Cynthia
How can I contact this lady talking about her experience
Hi, @Cynthia, We are happy to connect you with Sheryl, please email us Info@teepasnow.com or call us 1-877-877-1671. Please be sure to cite this video and Sheryl's name so that the person who answers know exactly what you are wanting/needing.
How old were her kids when she was diagnosed?
Hi, @Cynthia, I'm sorry I don't know the answer to that question.
My husband is now afraid of dogs and can’t speak a word. Just a complicated disease.
Thanks for sharing out with us. We offer a free 30 minute consult at teepasnow.com/services/consulting/phone-consultations/. Take Care
My husband might have dementia, but refuses to be tested. His personality is changing, though. He’s becoming a dirty old man. He’s already made advances to another woman. He can’t perform with me, but thinks he can with someone else. He’s very “Christian,” and says polygamy is in the Bible, so…
I’m watching your videos in order to find ways to help. Otherwise, divorce is on the horizon.
Wow, @Deborah Cliver, it sounds like you are dealing with a lot right now. I'm sorry it's taken me so long to reply, but we would love to discuss things with you. Please consider reaching out to us for a free 30-minute consult (consult@teepasnow.com or 1-877-877-1671) or you may also want to check out this video (shop.teepasnow.com/product/sexuality-and-intimacy-family-friends/) and a few other on our website.
This can be a very difficult situation and you shouldn't have to deal with it alone.
Oh yes, this is my mother and she is dangerous
Thanks for watching, @laurah.160. If you would like to talk to somone about your situation, please reach out to consult@teepasnow.com or call us at 1-877-877-1671.