Thanks for posting this video and also the links to the U Laval site. My father-in-law has PPA non-fluent/agrammatical type and there is really very little information out there, specifically as to what we should expect as this disease progresses.
Deborah, Hi, do you remember what was your father in law's first symptom was ? Also, how long from his first symptom until his he was diagnosed ? I think I may have this. I'm so scared. I have an appointment for a neurologist who specializes in PPA But the first appointment isn't until next year.
@@kimgloria6094 my father-in-law is now almost 92; he was diagnosed about 4 years ago and the symptom was slow, effortful speech. He's always been a quiet man, so I don't think it was noticed right away, but at some point it became very obvious to the family. Good luck to you, and if I may say, don't rush to self-diagnose, and wait for your neurologist appointment. Best of luck!
@@deborahrose9568 Thank you so much Deborah for your reply. I appreciate you taking time out to respond to my question. You are also correct in saying I should not self diagnose. My symptoms are mostly when I'm exhausted... ( my words coming out of my mouth all wrong ) It all started under a lot of stress talking care of a dying mother and siblings yelling at me for not doing more. My mother has passed just last week. My brain is depressed, exhausted and I have brain fog from the constant pressure. But you are right... I should just wait until my appointment. I pray I'm OK Thanks again
@@kimgloria6094 Oh Kim, I’m sorry to hear all of that! I too lost my Mom recently (last December). So remember to be gentle with yourself at this time and realize that stress can cause all sorts of things to happen to your body/brain. Take care!
@@kimgloria6094hi, you posted a year ago so I’m just wondering how you’re doing now and if you found out what you had going on? I’m also worried I have it and am awaiting a neurologist appt.
This video is greatly appreciated, however the questions and answers that were in French would have been useful for English only speaker if a translation was provided. Secondly, I find the Ottawa Dementia Society sooo far ahead of other provinces! So thank you for sharing this information with everyone! And lastly, does the Society have connections to or lists of specialists that deal specifically with assessing new patients with dementia (s)? We have a BC Alzheimer’s Society, but they do not have these connections. Their focus is on offering support to patients and caregivers after a diagnosis, but unfortunately most GP’s do Not have adequate training to spot early signs, nor do they know what specialists to send them too (not all neurologists are versed in latest dementia signs). This seems like a huge failing in our healthcare system here in Western Canada!
Maybe a stupid question but can someone with PPA still sing fluently? I known people who stutter but sing fluently.
Thanks for posting this video and also the links to the U Laval site. My father-in-law has PPA non-fluent/agrammatical type and there is really very little information out there, specifically as to what we should expect as this disease progresses.
Deborah, Hi, do you remember what was your father in law's first symptom was ? Also, how long from his first symptom until his he was diagnosed ? I think I may have this. I'm so scared. I have an appointment for a neurologist who specializes in PPA But the first appointment isn't until next year.
@@kimgloria6094 my father-in-law is now almost 92; he was diagnosed about 4 years ago and the symptom was slow, effortful speech. He's always been a quiet man, so I don't think it was noticed right away, but at some point it became very obvious to the family. Good luck to you, and if I may say, don't rush to self-diagnose, and wait for your neurologist appointment. Best of luck!
@@deborahrose9568 Thank you so much Deborah for your reply. I appreciate you taking time out to respond to my question. You are also correct in saying I should not self diagnose. My symptoms are mostly when I'm exhausted... ( my words coming out of my mouth all wrong ) It all started under a lot of stress talking care of a dying mother and siblings yelling at me for not doing more. My mother has passed just last week. My brain is depressed, exhausted and I have brain fog from the constant pressure. But you are right... I should just wait until my appointment. I pray I'm OK Thanks again
@@kimgloria6094 Oh Kim, I’m sorry to hear all of that! I too lost my Mom recently (last December). So remember to be gentle with yourself at this time and realize that stress can cause all sorts of things to happen to your body/brain. Take care!
@@kimgloria6094hi, you posted a year ago so I’m just wondering how you’re doing now and if you found out what you had going on? I’m also worried I have it and am awaiting a neurologist appt.
Im kellie, I was diagnosed with Logopenic PPA. Im 58 years old. Im wondering how many years do people live?
This video is greatly appreciated, however the questions and answers that were in French would have been useful for English only speaker if a translation was provided.
Secondly, I find the Ottawa Dementia Society sooo far ahead of other provinces! So thank you for sharing this information with everyone!
And lastly, does the Society have connections to or lists of specialists that deal specifically with assessing new patients with dementia (s)? We have a BC Alzheimer’s Society, but they do not have these connections. Their focus is on offering support to patients and caregivers after a diagnosis, but unfortunately most GP’s do Not have adequate training to spot early signs, nor do they know what specialists to send them too (not all neurologists are versed in latest dementia signs). This seems like a huge failing in our healthcare system here in Western Canada!
What caretakers NEED is a Break. Nobody knows how to act around such a patient. 4 hrs a week break would be divine
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