I noticed my brother having communication issues asap before others. I work as a speech and language assistant. I wish I found this when my brother was going through it. He since passed.
My girlfriend has PPA. She first started stuttering words. No she can only say one word at a time. Maybe two. The questions are, does PPA affect anyone’s ability to walk ? What’s the long-term effects. Will get worse? Well she lose her memory of me? As of now she’s in assistant living. And she still knows who I am because she smiles when she sees me. Will this disease get much worse? Because I’ve seen a big difference in one year
Good morning, Bernard. We're sorry to hear about your girlfriend's PPA diagnosis, but also encouraged to see that you are seeking support for the journey. We are including a link here to a page on our website where you can get more specific information about PPA: www.theaftd.org/what-is-ftd/primary-progressive-aphasia/ We would also encourage you to reach out to AFTD's HelpLine by telephone (1-866-507-7222) or email (info@theaftd.org) with any additional questions aren't specifically addressed there. The HelpLine is answered by trained members of AFTD's staff who are equipped with additional information and resources to assist you.
I wanted to mention that I have a twin sister and she has stared with speech issues. She can't finish a conversation, so she will start a conversation and then say blah , blah, blah. Also , saying the wrong word. I mentioned to her about PPA and she got very angry with me and said stay off the computer. Is this possible my twin sister could have this as well. If anyone knows I would appreciate it.
Hi Kim -- I am sorry to hear that you have PPA in your life, and I hope this webinar has provided information you can use in your journey. As for your question, studies have consistently shown that as many as 40 percent of FTD cases are familial, meaning that they can reflect a family history of FTD or other neurodegenerative disease. However, it would be impossible to determine whether your sister is living with PPA herself without a diagnosis from a trained medical professional. For more information you can contact AFTD's HelpLine and connect directly with a member of AFTD's staff -- send an email to info@theaftd.org or call 866-507-7222.
I'm 19 and I think I have PPA but I don't have enough money to see a doctor I didn't have a stroke or anything but I've noticed that it's getting worse after getting vaccinated for covid 😭😭😭😭😭😭😭😭
Be assured that there iis absolutely nothing in the Covid vaccination that would result in any neurological disorders. They are about 90% sterilised water, a tiny part an instigator of the immune system to prepare for any exposure to active Covid, and some preservatives which are only a problem for people with extremely rare allergies, or pre-existing blood clotting, or specific heart conditions. Even if you are in that tiny minority who could be effected by those preservatives, they don't have any impact on any aspect of speech. So you can rule that cause out immediately! I hope you are keeping up with your vaccinations so you don't lose immunity. Unlike the vaccination, which is non-active exposure to a tiny piece of the virus that can't replicate, exposure to an active Covid infection is a genuine health risk to yourself, and the population you could potentially infect. There are many causes of difficulty with speech and memory, which can be caused by, or effected by stress. Being able to have your concerns addressed, and be professionally assessed, would obviously help with stress! Could you contact this specialist for help, or referral to a service that might be more financially manageable? Maybe if you have found a doctor you want to diagnose you, and know the costs, maybe you could ask people who care about you, and have some money to spare, to help. Moet people would appreciate the opportunity to help you, if they can.. Helping others makes a person feel their life is more worthwhile and meaningful. Maybe you could set up a Go Fund Me page. I hope you keep trying to find a way to be assessed if it is an ongoing concern. 💜
I feel I have PPA too. Very upsetting for me and depressing. Like you have have not gone to a doctor. I am too scared . If I get a diagnosis - I will have to come to terms with it. Can you please tell me what was you first symptom you noticed ? Thank you,
@@kimgloria6094 i start losing my ability of speaking fluently in my mother language, i get mind blanking a lot also i was great at mental calculations but now I've lost most of that 😥😥
I noticed my brother having communication issues asap before others. I work as a speech and language assistant. I wish I found this when my brother was going through it. He since passed.
God bless stay safe 🙏✝️
My girlfriend has PPA. She first started stuttering words. No she can only say one word at a time. Maybe two. The questions are, does PPA affect anyone’s ability to walk ? What’s the long-term effects. Will get worse? Well she lose her memory of me? As of now she’s in assistant living. And she still knows who I am because she smiles when she sees me. Will this disease get much worse? Because I’ve seen a big difference in one year
Good morning, Bernard. We're sorry to hear about your girlfriend's PPA diagnosis, but also encouraged to see that you are seeking support for the journey. We are including a link here to a page on our website where you can get more specific information about PPA: www.theaftd.org/what-is-ftd/primary-progressive-aphasia/ We would also encourage you to reach out to AFTD's HelpLine by telephone (1-866-507-7222) or email (info@theaftd.org) with any additional questions aren't specifically addressed there. The HelpLine is answered by trained members of AFTD's staff who are equipped with additional information and resources to assist you.
I wanted to mention that I have a twin sister and she has stared with speech issues. She can't finish a conversation, so she will start a conversation and then say blah , blah, blah.
Also , saying the wrong word. I mentioned to her about PPA and she got very angry with me and said stay off the computer. Is this possible my twin sister could have this as well.
If anyone knows I would appreciate it.
Hi Kim -- I am sorry to hear that you have PPA in your life, and I hope this webinar has provided information you can use in your journey. As for your question, studies have consistently shown that as many as 40 percent of FTD cases are familial, meaning that they can reflect a family history of FTD or other neurodegenerative disease. However, it would be impossible to determine whether your sister is living with PPA herself without a diagnosis from a trained medical professional. For more information you can contact AFTD's HelpLine and connect directly with a member of AFTD's staff -- send an email to info@theaftd.org or call 866-507-7222.
I'm 19 and I think I have PPA but I don't have enough money to see a doctor I didn't have a stroke or anything but I've noticed that it's getting worse after getting vaccinated for covid 😭😭😭😭😭😭😭😭
Be assured that there iis absolutely nothing in the Covid vaccination that would result in any neurological disorders. They are about 90% sterilised water, a tiny part an instigator of the immune system to prepare for any exposure to active Covid, and some preservatives which are only a problem for people with extremely rare allergies, or pre-existing blood clotting, or specific heart conditions. Even if you are in that tiny minority who could be effected by those preservatives, they don't have any impact on any aspect of speech. So you can rule that cause out immediately!
I hope you are keeping up with your vaccinations so you don't lose immunity. Unlike the vaccination, which is non-active exposure to a tiny piece of the virus that can't replicate, exposure to an active Covid infection is a genuine health risk to yourself, and the population you could potentially infect.
There are many causes of difficulty with speech and memory, which can be caused by, or effected by stress. Being able to have your concerns addressed, and be professionally assessed, would obviously help with stress! Could you contact this specialist for help, or referral to a service that might be more financially manageable? Maybe if you have found a doctor you want to diagnose you, and know the costs, maybe you could ask people who care about you, and have some money to spare, to help. Moet people would appreciate the opportunity to help you, if they can.. Helping others makes a person feel their life is more worthwhile and meaningful. Maybe you could set up a Go Fund Me page. I hope you keep trying to find a way to be assessed if it is an ongoing concern. 💜
How are you now?
I feel I have PPA too. Very upsetting for me and depressing. Like you have have not gone to a doctor. I am too scared . If I get a diagnosis - I will have to come to terms with it.
Can you please tell me what was you first symptom you noticed ? Thank you,
@@stevewilliams4842thanks for asking
It's actually getting worse but in a very slow way . 😢😥
@@kimgloria6094 i start losing my ability of speaking fluently in my mother language, i get mind blanking a lot also i was great at mental calculations but now I've lost most of that 😥😥