Hello Brian, how are you today? I have become aware of this syndrom lately. I have Sclerodermia and it is an auto-immune degenerative disease from a very young age, which I fight by not letting the disease define me and my life. I define what I live. I would like to tell you that all the anomalies come from vaccines at a young age, because we don't have enough immunity to fight what they vaccinate us with. The most important thing is to live happy, to relax, to be optimistic, to help others, to love. The second important thing is to have a good diet of fresh fruits and vegetables, natural products, no conservatives, no additives, no sugars, no flour, instead whole grain cereals, and fish and meat. And what helps as well is to find a good osteopath who will work on releaving the stressed muscles, joints and bones, make circulation better and bring equilibrium to the whole body system. Take care Brian. I am wishing you the best, and for everyone of us who have degenerative diseases. Love to all, Lina
Bud, I have followed you since 3 years.I am not a medical professional, but by general observation I think that your progression of the disease has stopped. It's good that you took proactive steps. But do manage stress and anxiety. Also avoid drinking alcohol. Best wishes ✨
You have been spending money affords on something that normal people gets for free...That's the part I can totally relate with. This update was long awaited. I wish only the best for you. Keep fighting. Fatema from Bangladesh.
Im having the same problem. Doctors do not know this diagnosis. I noticed double vision and lowering of my eye. And after doing several photos noticed face assimetery,half of it is really bonny. Another is normal. Living in Ukraine,no one can even help me.
@@BrianDahmsCreative just have found a doctor,able to prescribe me special eyeglasses (with prismatic correction)- wearing such eyeglasses helps to feel normal, normalising my binocular vision)
I just ran into your videos again and I'm so glad I did (thank you YT for the algorithm) you're looking great. keep the good spirit. My name is Eddie from San Diego, keep posting.
Hey Michael! It's tricky for sure...There seems to be so few doctors who have even heard about PRS. In my case, I stumbled upon a plastic surgeon in my area who was knowledgeable enough to help me.
Hi there! Thanks for the comment! Hmm, it’s really hard to put a number to the percentage of fat that remains 🧐 But I would say that my retention rate has been really good with every operation. This is just a compleeete guess, but I would say it’s probably around 70% for me? It varies for every single person though. So while I may have good fat retention, someone else may not, or someone may have even more than me.
Hey Brian, i've been watching a couple of your videos and thanks for sharing your journey with us. I myself believe i have Parry Romberg but i've not been diagnosed, infact i'm still trying to get seen about this. What i have noticed with myself is that with one side (left side) has decreased in mass and bone density, giving it a sucken look. With your situation have your teeth and gums also been affected? The left side of my teeth and gums have caved inwards
Hey Dan! You’re welcome! I’m sorry to hear you’re most likely dealing with PRS too :/ I personally have not experienced oral issues because of this disease, but I know that it does effect some people in that way
Hi Nick Thanks Firstly for posting this update video and Wish you a merry christmas. Can you make another update video of what was the percentage of fat that stays on your face from this last video please?
Hi, thanks so much for sharing your experience:) I have been going through something similar to parry-romberg syndrome, but we are not sure if my deformity is hypoplastic or atrophic. My chest wall also started showing signs of deformity around the same time as my face (10 years ago). They think my chest deformity is Poland Syndrome, but I have yet to find anyone who has a combination of Poland Syndrome and facial atrophy. So I’m wondering if I have romberg syndrome that affects my face and chest. My deformity affects my bones, cartilage, muscle and adipose tissue and has seemed to become more asymmetrical over time, but idk if that’s because my unaffected side is just growing normally making my deformed side appear smaller......? I’m 23 now so I definitely should be done growing so I guess I’ll just have to wait to see if my deformed side keeps shrinking or not😅 but your videos really help thank you so much!
Hey Serena! Thanks for reaching out! Gosh, I'm so sorry that you're suffering so much from atrophying. I do know that PRS affects some peoples' entire side of their body, so it could stand to reason that it may solely be Romberg's you're experiencing (though what you're describing does sound a bit more intense. I'm not informed on Poland Syndrome unfortunately). Although it's crappy circumstances, I'm glad that we can connect and relate in some way!
Hey Brian! You look really good! I was wondering if you ever considered free flap fat tissue transfer? Instead of just injecting fat, they actually connect the blood vessels of the new fat tissue so it’s more likely to stay alive? Wondering if you’ve heard about this?
Hey Nick, love your videos. I had a question for you. The spot where you first detected that you had Parry Romberg on your chin, was it soft there before you started noticing changes? Because I"m a 40 y/o male. I've had a soft spot in my cheek since I was a child and it only started getting significantly darker and showing more atrophy the last two years. (It has gotten dark on and off for at least the last 15 years but miminal atrophy) Really concerned it might be late-developing PRS. Going to see a dermatologist in a few weeks.
Hi there! Sorry for the late reply. Have you had a chance to go to the dermatologist yet? As for a soft spot on my chin, I can’t remember for sure…but I don’t think so. By soft spot, do you mean there’s lack of bone in that area?
@@BrianDahmsCreative No worries! I just meant if you noticed if the flesh was more tender on that side than the other side. But since it is right on the bone I understand if you didn't notice anything. Because in my soft spot there is no fat or muscle but it's been that way since I was a child. It just started showing more atrophy and became darker recently. Yes I just went to the dermatologist last week and she has no idea what I have. She recommended a biopsy though I'm hesitant. I asked her if she thinks I should get tested for Parry Romberg but she said she wants to talk about it with colleagues first.
Hey Nick! Thanks for your courage and determination to post these videos. I think I may have it and was wondering if I could have your email to ask you a few questions regarding it. Thanks.
Hello, very good afternoon, my name is Cristian Guzmán from Mexico and I have just seen your videos about Parry Romberg, I am 14 years old and I suffer from that disease, I am entering a great depression, I suffer domestic violence, and researching my disease and I found myself He says that depression is a symptom of it, but the truth is, my face is more deformed every day, the spasms in my jaw are more often every day, the truth is, I no longer know what to do with my life, I need help :(
Hi Cristian! I’m so sorry you are experiencing all of that. It sounds like quite a handful for anyone :/ What are some things that we could do to help you out?
i know this is off topic but i saw the letter video and if you truly wanna become an animator start animating on youtube you seem very talented at video production why not take you tube seriously do some research on the law of attraction and watch how succesful you become
Omg you look amazing! Just found yiur channel and following form the beginning. ❤❤❤
Thank you so much! 🫶🏼
Hello Brian,
how are you today?
I have become aware of this syndrom lately.
I have Sclerodermia and it is an auto-immune degenerative disease from a very young age, which I fight by not letting the disease define me and my life. I define what I live.
I would like to tell you that all the anomalies come from vaccines at a young age, because we don't have enough immunity to fight what they vaccinate us with.
The most important thing is to live happy, to relax, to be optimistic, to help others, to love.
The second important thing is to have a good diet of fresh fruits and vegetables, natural products, no conservatives, no additives, no sugars, no flour, instead whole grain cereals, and fish and meat.
And what helps as well is to find a good osteopath who will work on releaving the stressed muscles, joints and bones, make circulation better and bring equilibrium to the whole body system.
Take care Brian. I am wishing you the best, and for everyone of us who have degenerative diseases.
Love to all,
Lina
My Son who is 5 was recently diagnosed with Parry Romberg Syndrome. Thank you
How are you doing now? Can you make another video on PRS update?
Bud, I have followed you since 3 years.I am not a medical professional, but by general observation I think that your progression of the disease has stopped. It's good that you took proactive steps. But do manage stress and anxiety. Also avoid drinking alcohol. Best wishes ✨
Thank you, Purujit! I sure hope so too!
If you gain weight does more fat go to the affected side preventing it to hit bone
You have been spending money affords on something that normal people gets for free...That's the part I can totally relate with.
This update was long awaited. I wish only the best for you. Keep fighting.
Fatema from Bangladesh.
You're so precious, Fatema! Thank you so much for your kind words. They mean a lot to me.
Im having the same problem. Doctors do not know this diagnosis. I noticed double vision and lowering of my eye. And after doing several photos noticed face assimetery,half of it is really bonny. Another is normal. Living in Ukraine,no one can even help me.
Hi! Ugh, I'm so sorry to hear this. I know how difficult it is to not have a doctor that can help. Have you made any progress with finding one?
@@BrianDahmsCreative just have found a doctor,able to prescribe me special eyeglasses (with prismatic correction)- wearing such eyeglasses helps to feel normal, normalising my binocular vision)
That's great news!@@kseniia7949
I just ran into your videos again and I'm so glad I did (thank you YT for the algorithm) you're looking great. keep the good spirit. My name is Eddie from San Diego, keep posting.
Hey Eddie! 👋🏼 Thanks so much! I’m glad that you enjoy them
Where can I get this type of surgery. I have the same thing but worst.
Hey Michael! It's tricky for sure...There seems to be so few doctors who have even heard about PRS. In my case, I stumbled upon a plastic surgeon in my area who was knowledgeable enough to help me.
Thanks for sharing. How much does the procedure cost? Was anything covered by insurance
U look healthy now. Lets see how n when i can get it done.
brother am suffering from pardy Romberg syndrome how can I contact with you
Hi. Nick, you will know approximately from which month the results are permanent?
Approximately What is the percentage of fat that is reabsorbed?
Hi there! Thanks for the comment! Hmm, it’s really hard to put a number to the percentage of fat that remains 🧐 But I would say that my retention rate has been really good with every operation. This is just a compleeete guess, but I would say it’s probably around 70% for me? It varies for every single person though. So while I may have good fat retention, someone else may not, or someone may have even more than me.
Hey Brian, i've been watching a couple of your videos and thanks for sharing your journey with us. I myself believe i have Parry Romberg but i've not been diagnosed, infact i'm still trying to get seen about this. What i have noticed with myself is that with one side (left side) has decreased in mass and bone density, giving it a sucken look. With your situation have your teeth and gums also been affected? The left side of my teeth and gums have caved inwards
Hey Dan! You’re welcome! I’m sorry to hear you’re most likely dealing with PRS too :/ I personally have not experienced oral issues because of this disease, but I know that it does effect some people in that way
Do know who can diagnose this? What kind of specialist?
Hi Sara - I was diagnosed by my plastic surgeon. I know of another doctor in Wisconsin that does many PRS operations and he’s also a plastic surgeon.
Hi Nick Thanks Firstly for posting this update video and Wish you a merry christmas.
Can you make another update video of what was the percentage of fat that stays on your face from this last video please?
You look great, i dont think you need surgery, u look great
Hi, thanks so much for sharing your experience:) I have been going through something similar to parry-romberg syndrome, but we are not sure if my deformity is hypoplastic or atrophic. My chest wall also started showing signs of deformity around the same time as my face (10 years ago). They think my chest deformity is Poland Syndrome, but I have yet to find anyone who has a combination of Poland Syndrome and facial atrophy. So I’m wondering if I have romberg syndrome that affects my face and chest. My deformity affects my bones, cartilage, muscle and adipose tissue and has seemed to become more asymmetrical over time, but idk if that’s because my unaffected side is just growing normally making my deformed side appear smaller......? I’m 23 now so I definitely should be done growing so I guess I’ll just have to wait to see if my deformed side keeps shrinking or not😅 but your videos really help thank you so much!
Hey Serena! Thanks for reaching out! Gosh, I'm so sorry that you're suffering so much from atrophying. I do know that PRS affects some peoples' entire side of their body, so it could stand to reason that it may solely be Romberg's you're experiencing (though what you're describing does sound a bit more intense. I'm not informed on Poland Syndrome unfortunately).
Although it's crappy circumstances, I'm glad that we can connect and relate in some way!
Are you taking any medication like cellcept or steroid?
You look great! Thanks for sharing!
Hey Brian! You look really good! I was wondering if you ever considered free flap fat tissue transfer? Instead of just injecting fat, they actually connect the blood vessels of the new fat tissue so it’s more likely to stay alive? Wondering if you’ve heard about this?
Hey Nick, love your videos. I had a question for you. The spot where you first detected that you had Parry Romberg on your chin, was it soft there before you started noticing changes? Because I"m a 40 y/o male. I've had a soft spot in my cheek since I was a child and it only started getting significantly darker and showing more atrophy the last two years. (It has gotten dark on and off for at least the last 15 years but miminal atrophy) Really concerned it might be late-developing PRS. Going to see a dermatologist in a few weeks.
Hi there! Sorry for the late reply. Have you had a chance to go to the dermatologist yet? As for a soft spot on my chin, I can’t remember for sure…but I don’t think so. By soft spot, do you mean there’s lack of bone in that area?
@@BrianDahmsCreative No worries! I just meant if you noticed if the flesh was more tender on that side than the other side. But since it is right on the bone I understand if you didn't notice anything. Because in my soft spot there is no fat or muscle but it's been that way since I was a child. It just started showing more atrophy and became darker recently. Yes I just went to the dermatologist last week and she has no idea what I have. She recommended a biopsy though I'm hesitant. I asked her if she thinks I should get tested for Parry Romberg but she said she wants to talk about it with colleagues first.
looking good. i hav prs aswell
Hey Nick! Thanks for your courage and determination to post these videos. I think I may have it and was wondering if I could have your email to ask you a few questions regarding it. Thanks.
Hi there! Yes! I have a contact submission box that you can fill out on my website here: www.briandahms.com/contact
@@BrianDahmsCreative did you receive my message? “Olga C”.
Who is your doctor?
Hello, very good afternoon, my name is Cristian Guzmán from Mexico and I have just seen your videos about Parry Romberg, I am 14 years old and I suffer from that disease, I am entering a great depression, I suffer domestic violence, and researching my disease and I found myself He says that depression is a symptom of it, but the truth is, my face is more deformed every day, the spasms in my jaw are more often every day, the truth is, I no longer know what to do with my life, I need help :(
Sorry if there are spelling mistakes or little congruence between the texts, I don't know much English
Hi Cristian! I’m so sorry you are experiencing all of that. It sounds like quite a handful for anyone :/ What are some things that we could do to help you out?
i know this is off topic but i saw the letter video and if you truly wanna become an animator start animating on youtube you seem very talented at video production why not take you tube seriously
do some research on the law of attraction and watch how succesful you become
Thank you so much! I appreciate that :)