Gastric Pacemaker for Gastroparesis: Morgan's Story
HTML-код
- Опубликовано: 5 сен 2013
- Connect with one of our pediatric GI specialists: bit.ly/15MlnLC.
To learn more about gastric pacemakers from our experts, visit bit.ly/15Ml0k1.
More information about gastroparesis and our GI program at bit.ly/15MlCX3.
Morgan Hood was an active Texas teenager when suddenly, during her junior year of high school, she became unable to keep food down due to severe nausea and vomiting. Morgan's case puzzled her pediatrician, who sent it to the Mayo Clinic for help. Morgan was ultimately referred to the pediatric gastrointestinal experts at Nationwide Children's in Columbus, Ohio. There, the family learned that Morgan suffered from functional dyspepsia and could be helped by a unique treatment - a gastric pacemaker. 
Наука
Thank you for sharing. I’ve been living with this for about 10 years, and I’m finally getting a stimulator!
After having more mild symptoms for seven years, I was diagnosed with gastroparesis earlier this year. (I’m 22) I had a bezoar as well and was put on Reglan and Creon for 5 days to break it up. The pandemic had my surgery center shut down, thankfully I go back tomorrow. It’s been a month since I’ve seen doc/taken those meds and my symptoms have gotten so much worse than they’ve ever been. She explained it perfectly, you’re hungry and you know the food will taste so good but it’s just gonna stab u in the back, a ripping and stretching sensation on the inside where ur stomach is, and I’m constantly nauseous or thankful that I’m finally not nauseous 😭 it’s so much worse in the mornings, I throw up whatever I ate the night before
And it looks exactly how it did on the plate, just chewed up 😅
Bless her, hope the pacemaker was the answer to her lifelong relief. ❤️
Bless your heart hun! You sound similar to me in the sense of having symptoms (mine have gradually gotten worse over time) and it took my doctors (several different ones) over 10 years with my symptoms to finally find out what was wrong with me. I was mad because I have had severe symptoms and malnourished for over half of the 10 years. I basically skin & bones. I just turned 30 and I have a very rambunctious toddler(almost 5yrs). I don't have any energy to do anything and it breaks my heart for him because I should be up enjoying this time with him. Not stuck either sitting on the couch or sitting watching him play at the park. Just typing this up is taking a lot out of me. Seems silly but true.
I have read other people are taking tons of different vitamins. I haven't tried that mainly because I have trouble swallowing as it is and I barely get my regular daily meds down.
If/when you do start anything new over the counter check in with your doctors office to make sure there isn't any interactions! 😊 It's weird how supplements like vitamins can affect other meds!
If you have any questions I'm here girl! I was just referred this morning to see if I can get the gastric pacemaker. I'm expecting to end up having to need a alternative form of nutrition like a main port or feeding tube of some sort in the future. I don't want to "just be alive". I want to Live!!! Enjoy Life!
The doc gave me a diet which is designed to alleviate this.
I am so scared this is what I actually have.
I feel nauseous a lot of the time. And if I do puke it is just stomach acid.
Odds are it is gerd but I am so scared because my doctor left me in the dark about this.
Best of luck to you though!
I was put on domperidone an do great with that medicine. Reglan made me worse.
@@trishameloling2367 I got a Gastric Pacemaker 7 months ago & it was malfunctioning so I had to have surgery (1 week ago) & changing the battery fixed the issue.
I was first going to be on Domperidone, but it was going to be iffy if was going to work or I would be able to get a constant supply of the medication because it would have to come from Canada. It's not FDA approved in the US anymore. Idk why though. I was offered Reglan before anything but refused it because of possible severe side effects!
My Gastric Pacemaker seems to help me be less nauseated after eating. I'm hoping once I'm healed from this surgery I can actually gain a little bit of weight and feel better!
Wow that young lady is a true warrior. That's truly inspiring. Great video 😁
i really want a gastric pacemaker for gastroparesis, which is one of a whole horde of digestive problems i have, but am currently unable to get one as I have 2 other implanted electronic devices. I also have pyloric stenosis, which was not picked up when I was a little boy, and need surgical dilation every 2-4 months. Compounding this is that I live in the middle of nowhere, my neurogastroenterologist retired (a 100 mile trip to see him), and I will not see a new one until December. I am grateful to have found a local surgeon that has helped me in the meanwhile and wish people luck in getting their digestive problems fixed.
I'm glad this world for her. I had one placed in January and it's helped a little but symptoms are staying to come back pretty bad.
I’m glad for her, but this makes me so sad. I was diagnosed at 16 and saw doctors until I was 23 without them able to really help me, and then I gave up. I’m still extremely sick and can’t afford care even now with new insurance. I’m a full time nurse, a full time mom, and I’m sick constantly for 16+ years. It’s just not fair.
Beatrice Elizabeth me too 😔😔😔 I am a mom of three and I don’t know how I am ever going to be able to go back to work. I’ve had this for about 10 years now
Does you GASTROPARESIS come and go?
@@gerdyproffitt4916 yes it does come and go. it can be silent for days, months or even years. And it can come back worse every time
Its a disgusting disease. Especially with t1 diabetes. Ruins every part of life. I cant stop thinking about just ending it all.
Have you tried the drug domperidone ask your gi doctor about it, it helps me alot.
Strong girl, I have Gastroparesis since July of 2018, I getting worse than better, Ty for the vedio
happy to see her back to life well again
The gastric stimulator is actually not been proven super helpful in a large majority of patients. I suffer from gastroparesis and intestinal failure, been on feeding tubes and now on IV nutrition, in and out of hospitals since I was a teenager. Most I know who have had the surgery had to have it removed because of malfunctioning or it caused so much pain it just wasn't an option to leave it in. I'm glad they showed a person it helped, but they should also be realistic because there is no cure for GP and motility disorders like it and it is frustrating because so many videos and such out there make it seem like it is a cure when it isn't. It is hard to get covered by insurance because it is technically experimental in most cases. I think that it is a good idea and i'm glad it helps some, but it isn't a cure...we have to keep fighting.
Andrea Schneider
Thank you so much for this information. Im so sorry you’ve suffered from this for long. I’m up in the middle of the night. I’ve had this for several years. I can hardly eat anything but fruit, which is horrible for my blood glucose as I have insulin resistance. I was thinking maybe I should get the device, but probably not as I’m older and weak already. I was reading about the Scottsdale Stem Cell Center. I know they don’t treat Gastroparesis, but I did think it could possibly be a cure to inject stem cells ( taken from ones own body through a certain process). I read a book about a man who was part of a study for people needing heart transplants. They injected their hearts with their own stem cells and all of them recovered. This was at least 10 years ago. So possibly n some country they might be willing to do this on the stomach. Yes, we have to keep fighting. I am just trying to keep myself alive. May you find healing.
Thank you for saying that I am in the hospital right at this moment and I have been dealing with this pain for a very long time and I was gonna try this but I wasn't sure if I should
@@flexnetuser2268 research stem cell therapy for gastroparesis..an article just came out this year about studies done on rats ..in the university of wake forest..and it has shown great results in treating and even curing gastroparesis
@@oscarmarquez9262 I have had gastroparesis for 3 years now and am at the point they wanted to do a feeding tube. I refused it and went against my doctors opinion and found someone 4 hours from me that can do it. Maybe it does not cure it but often it reduce the symptoms enough a person can have some what of a life. It over all is a low risk procedure so why not try it before going to more risky things like stem cell. Most the time they have to wipe out your immune system with chemo before they can do stem cell or your body will reject it. I think anyone who has the disease realizes it might not be a cure and it might not be effective at all but after spending six weeks in the hospital this year alone and drugs having no positive effect on helping me I will try just about anything. The last thing I want is to eat through a tube by passing my stomach. Having to flush the tube every 4 hours or it plugging up. No thank you unless I know that it is my only option. stem cell would be something I would consider after all other options failed not before.
Hi. please tell me how are you doing now?
So sorry to hear :( there's now a new treatment that helps, Gimoti, not sure if anyone else have used it, but it's pretty helpful to cope with this
I’d rather keep my gastroparesis than risk adding on tardive dyskinesia to the ever-growing list of complications.
@@Laffinatu Exactly. Seems like every possible treatment available can only further complications .. so frustrating.
Although this was 10 years ago and I'm a healthy middle-aged woman, this video gave me hope. Like Morgan, I also run and have gastroparesis. Sometime soon, I'm going to have a gastric pacemaker.
I'm in tears watching this because I am going through this right now at 36 it's so depressing and hard, not being able to eat is so hard
Do not give up. There is hope. I went thru hell for almost 4 years. Mine was idiopathic and very sever. They wanted to give me a J tube to feed myself into my intestine for life. I found a Amazing surgeon hours from home and had this done a year ago Dec 14th this year. I still have the disease as there is no cure but the stimulator took 90% of my symptoms. I now consider my symptoms to be mild compared to before. I mean I can not go clean out a all you can eat buffet and not get sick, but as long as I do not over do it I do pretty good. I have a huge meal every now and again and as long as I do not do it a few days in a row it works pretty damn good. I had mine done in Fortworth Tx
@@jvmiller1995 I really appreciate your kind words and all the information you have given me. I still waiting on appointments and I feel like the waiting game plays with my mental. I have lost a tone of weight and my clothes just fall off now from 214 to 177 and I may be smaller just haven't weighed myself. One thing for sure is that I will keep fight until I get answers as I have had issues with my stomach since birth. Also do you know of any support groups.
@@jvmiller1995I’m so pleased you did so well, is your stimulator still working? I have gastroparesis and I’m trying to find out my options.
I hope my daughter can get this...my daughter is a dancer 🕺 and her life is now on hold...this is breaking my heart...
Diagnosed in the mid 80's with a stomach ulcer, for several years the symptoms were easily controlled with diet. As the symptoms became worse and more frequent, I went through a series of tests and was prescribed Panteprazole and had been taking it for years. All was good until earlier this year. Eating anything was extremely painful. Nausea and sometimes vomiting. I dropped 30 pounds within 2 months because I couldn't eat. After another series of tests I was diagnosed with gastroparesis. Unfortunately I can't take the medications because I have Parkinson's. So for now, my diet consists of brothy soups and even then I can only handle a small amount but still have some discomfort and mild nausea but the reflux is the worst.
Let me just say im a 22 year old girl who was NEVER sick ever since I caught the first covid in 2020 I caught it again 2 other times after and im pretty sure it triggered me to get an autoimmune disease because now my intestines are completely paralyzed because of that. It all started in the beginning of July just one morning I woke up extremely bloated (like never before) and ive had 2 abdominal CT scans (which I hate getting) ever since and the Dr still hasn't figured out whats exactly wrong but she said she has a suspicion its this but she saids its not caused by diabetes but something else. Im unemployed because ive been sick for months because of covid aftermath and now this accompanied with other debilitating symptoms and I feel so weak and have lost like 30lbs now because of my digestive issues. I didn't eat for 3 weeks straight just liquids and was very dehydrated. The Dr prescribed me a small dose of Reglan which has helped me be more normal with bowel movements but its made me a nervous anxious wreck and gaven me the worst headaches and I dont want to continue to take it I just dont know what to do :( I dont even have insurance but I need an MRI scan of my brain ugh
Do kapalbhati and anulom vilom for two hours daily. Check RUclips to understand how to do it. In India we do these yogas to cure ourselves without gng to hospitals. If you di it regularly, u will see the results in 3 months and be completely fine in a year.
@@sugandhadogra1781 Thank you for the advice and recommendation ! It doesnt hurt to try and i will look into it ! :)
@@Jessknowsbestt trust me it will work, I had so manu ailments, I still struggle with depression anxiety, gerd wat not but trust me due to yoga n gym I have saved myself to at so many meds ! Not only that yoga helped me to fight against so many odds. Also when you go to sleep at night, pour two drops of almond oil each in your nose and apply same oil and massage your feets. Do the yogas for two hours daily n see the results in 3 months or before. Best
Of luck!
Hi how r u now? My intestine seems to be paralyzed too after covid. I have abdominal pain, insomnia and nausea. No BM whatsoever. Been to 3 gi specialists. May I know what r or symptoms and how r u dealing with it now?
@@chichinglook5091 my axid reflux is gone now. But slow digestion is there. I have to be careful with what I eat. Jus home food no spices, proper sleep, exercise etc but kapalbhati is must. Can't leave it
I don’t wish this on anyone. I’ve been going through this for over 3 years only this past may I was told stomach damage gastroparesis after 5 months I’ve had a flare up this is no way to live. 💔
CAC Trikatu Tablet as the name suggests three ingredients are used for its preparation like Shunthi, Pippali, & Maricha. These herbs in combination deal with the loss of appetite, gas, flatulence, bloating, abdominal distension, weak digestion, constipation, abdominal pain, etc.
I have gasteroparesis and a pacemaker!
Can u tell me a little about this they are setting me up to see a doctor about gastric pacemaker how long was u down and how long u got to have the tube in ur nose
Jeri Johnson so you get a blue tube that has a pacemaker connected. That goes in a fanny pack that stays for a week. It may fall out but DONT worry it happened to me. Then you get a surgery to get a small device called a pacemaker. You will get check ups to see how you feel. I hope this helped! If not I will definitely give you more information
@@sophiedane8681 thank u so much just really scared
Jeri Johnson it’s ok to be scared! When they did a scan of my stomach I threw up on towels 😂
@@sophiedane8681 oh lol
I have gasteroparesis and I can't drink regular milk I have to drink coconut or almond milk and I have to eat more healthy and can't eat what I want that much
I have Gastroparesis, and I just love. the fact that she can lick her plate, after she eats now. I wish that I could do the same. Does a pacemaker really work?
In a few cases it does work but for many others it doesn't work and/or causes new problems. I have gastroparesis as well and I'd never do the gastric stimulator implant
@@girrl88 I'm just so scared to end up with a port in my body.. I m trying to avoid a feeding tube.
@@girlyblue24 I have gastropaeresis and an NJ feeding tube. I was terrified to get a feeding tube, but honestly, if you need one, you're so much better off with it. You feel better and have less symptoms and once it's in, it doesn't really bother you (after you adjust to it. It took me about a week to fully adjust). So don't be afraid of it if you need it. It has honestly made my life so much better. I hope this helps. 🤗
@@danielle5487 what scares me is the possibility of infection.
@@girlyblue24 I totally get it. I think I could handle an NJ but I'm not sure about having a surgical tube put in. Things would have to be really bad for me to seriously consider it. That being said, earlier this week I was super nauseated for 3 days straight and was on Zofran (Ondansetron) and Phenergan (Promethazine) 24 hours a day. On the morning of the third day, I cried because I wanted a tube to vent/drain through so I could dump my stomach contents and feel better. I'm starting to lose more weight and I get full after so little food that it's scary.
There's a girl I follow on RUclips. She has several chronic issues including gastroparesis and has had an NJ, a surgical GJ (feed to intestines and vent/drain stomach), and then was put on TPN (straight channel to her bloodstream). Her channel is Amy's Life. Another RUclipsr that has gastroparesis, along with other chronic illnesses is Chronically Jaquie. Both of them talk about having feeding tubes and it makes it a little less scary.
How long does recovery take from having the device put in? Daughter found out today she has gastroparesis, she is getting married in 3 months time.
Well, first off they will want her to have made drastic changes to what and when she eats. Then they will play around with something like reglan to try and speed up digestion. Then they may want her to do the 21 day run of erythromycin. There are also tests to be run. Unsure what she's had but there is the basic CT with contrast, the 4 hour nuclear test, and an endoscopy. She will need to have been very very sick for a very very long time to be considered for a surgical procedure. Plus there isn't really a ton of evidence that it works. I'm sick of being sick but there's not enough science to back it up for me to consider it an option for myself IMHO.
❤❤❤
Blue Cross Blue Shield will not pay for this surgery. They turned me down saying it was to experimental. I've suffered with it for 21 years. I take Reglan, protomic, promethazine, zofran, ect. They help but still end up in hospital about every 3 monthes. It has been so bad I spent a week in CCU in critical condition. I've had all the stomach emptying test ( 30 minute, 1 hour, 2 hour). You name the test. I've had it at Baylor Dallas. I want the surgery but can't afford to pay for it myself. So I am just stuck in hell. Good luck getting insurance to pay for it.
Omg
Did you try imipramne? I tried that and it worked for me. Been on it for 10 years...
BCBS denied mine too. But we appealed and got denied 3 times. But on the 4th appeal they finally agreed to pay for it. You can’t back down. I’ve had my pacemaker for 6 years now and I’m getting a new one in a few days. Don’t give up!
Ill pray for u brotha!
@@demmigarcia1453 how was the surgery? And has ur quality of life improved??
Nowadays people usually use allopathy medicine for instant relief, but these do not provide the permanenbt relief, I also suffered a lot from allopathic medicines, as I have Gastroparesis, but on suggestion of my one of the friend I improve my lifestyle and diet and follow Ayurveda. And I took medicines from Planet Ayurveda and get rid of Gastroparesis.
What medicines??
شني الادويه التي اخذتها اخي