They Thought He Died 12 Years Ago. Then, His Eyes Moved.

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  • Опубликовано: 4 июн 2024
  • A young boy was trapped in his own body during a 12 year coma, with a chilling twist- he was lucid for a portion of that time, unbeknownst to everyone around him. Martin's family became his caretakers, struggling with their own emotional turmoil and financial burden. In a harrowing moment, Martin's mother, wishes for her son's death- a plea he hears clearly, despite being thought of as unreachable by doctors.
    The 'ghost boy' fought to communicate with the world through the only means he had-his eyes. And one children’s show was why he had to escape his prison. Let’s get into it.
    For more videos with medical head scratchers, weird historical incidents, unsolved mysteries, myths debunked, and science explained, please subscribe to our channel! ruclips.net/user/BrewSolves?...
    Sources:
    [Martin Pistorius]
    Read his full story here:
    Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body, Martin Pistorius
    www.ghostboybook.com/
    Book available on Amazon: www.amazon.com/Ghost-Boy-Mira...
    www.theguardian.com/world/200...
    www.ted.com/talks/martin_pist...
    [Locked-in Syndrome]
    my.clevelandclinic.org/health...
    [Communication Tools and Devices]
    www.aactechconnect.com/product...
    www.specialneedscomputers.ca/...
    • Pediatric Assistive Te...
    Other Sources:
    www.up.ac.za/centre-for-augme...
    www.npr.org/sections/health-s...
    www.ghostboybook.com/#media
    www.huffpost.com/entry/martin...
    folks.pillpack.com/the-comput...
    [Brew’s intro song]
    Manhattan Twist by Avocado Junkie
    [Music Licensing]
    Code: 6QNUQIKNQ19WS5MI, YXTYGRVB0H8MPI99, 3JMXDPLWJOEA1L9T, RUHQEIR9DFYKG0SB, 38LDSR97DNHLRTEQ, ICO2HNXOC2SBRYAK, AEOZIEPITIXB55DB, 4L4SZUFRS1BL7Q7O, I33NOAYFMJPXWC4G, S5NYM2PZJCXNOK9U, KOGKPJXYZY9BOY2U, IXTTQNOIB0UWQPSM, VVAOAYGTKCBCYCPA
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Комментарии • 1 тыс.

  • @Brew
    @Brew  Год назад +644

    For more about Martin Pistorius' inspiring story, find his New York Times bestseller, "Ghost Boy" here: www.ghostboybook.com/

    • @GnuSnu
      @GnuSnu Год назад +7

      This story. Wow

    • @EdwinCaldwellBills
      @EdwinCaldwellBills Год назад +4

      He must of had some of the worst bed sores in existence

    • @haist1536
      @haist1536 Год назад +4

      I wanna say that u got amazing videos and Barney scares me

    • @Gr8GooseYouTube
      @Gr8GooseYouTube 11 месяцев назад +2

      @@haist1536 agreed

    • @bensoncheung2801
      @bensoncheung2801 10 месяцев назад +2

      333 👍

  • @jessicaolson490
    @jessicaolson490 Год назад +10787

    This is why as a nurse i always talk to my unconscious patients like they are aware. You never know when they are infact trapped. And besides people deserve that dignity even if they are no longer aware.

    • @arshadhakim849
      @arshadhakim849 Год назад +336

      1000% agree. Good on ya

    • @jodivandyk3649
      @jodivandyk3649 Год назад +144

      Thank you.

    • @jason_kenner
      @jason_kenner Год назад +60

      ❤️

    • @opeeate
      @opeeate Год назад +130

      you're a lovely person to do that.

    • @thatfuzzypotato1877
      @thatfuzzypotato1877 Год назад +309

      As a nurse too this is also why I will make sure their TV is on, and at least a dim light is on. To make sure they have stimulation at all times so they aren't just trapped in a dark silent room

  • @bincenn
    @bincenn Год назад +7056

    I can't imagine how terrible it must've been to be trapped in your own body, unable to scream, listening as even your own family loses hope

    • @lefterismplanas4977
      @lefterismplanas4977 Год назад +142

      My dreams are commonly like that, and they feel horrible.
      I see things happen but can't react, or my reactions are just too sluggish. Must've felt awful

    • @violaqueennnn
      @violaqueennnn Год назад +46

      Sometimes I have dreams like where I'm in my own bed,but I can't move art all.idk if it's sleep paralysis cause there's no demons,but I'm paralyzed in those dreams and it's awful. So many times occur where I feel myself moving, but when I see my arm it's still in front of my face. Yeah, it sucks.

    • @violaqueennnn
      @violaqueennnn Год назад +2

      *at

    • @lefterismplanas4977
      @lefterismplanas4977 Год назад +17

      @@violaqueennnn just yesterday I saw a dream in a ship, with someone coming to attack. Imagine finding yourself in an awsome action movie, only to realise that you can't move yourself more than an inch every second.
      I don't remember the last one which I couldn't at all move. But I'm certain that I had one. I Remember the feeling

    • @togachan5081
      @togachan5081 Год назад +13

      I haven't had dreams like that, but I have had at least 2 moments in my life when I woke up I couldn't move my body at all, i could move my eyes but nothing else. After some time had passed I could slowly start moving my body again. It was almost like my mind was awake, but my body was still asleep. It was pretty scary.

  • @stevenarvizu3602
    @stevenarvizu3602 Год назад +4224

    The fact that some stranger giving him a polite smile was enough to give this guy the will to keep going shows how far deep he really was

    • @igormac88
      @igormac88 11 месяцев назад +137

      It cost nothing to be kind to other people. We don't need to be kind thinking that we're saving somebody's life, just be nice, say thank you if someone hangs the door, beep the honk to thank a space on the other lane..those things makes life so much nicer

    • @antstakkin
      @antstakkin 5 месяцев назад +3

      Yes Daddy

    • @jobinjohn8990
      @jobinjohn8990 5 месяцев назад

      ayoooo@@antstakkin

    • @WolfyRed
      @WolfyRed 3 месяца назад

      @@antstakkin.

    • @vortexsux
      @vortexsux 2 месяца назад +4

      @@antstakkin ☹️

  • @johndohm578
    @johndohm578 Год назад +2435

    When my dad was in a coma for a month after his aortic dissection, my family took turns visiting each day. This was during covid, so he could only have 1 visitor each day. We each brought a book and would read to him every day, just in case he was still in there. When he finally woke up and could talk to us again, he said that he remembered all of us reading to him and looked forward to when each of us would visit, though he couldn't express it at the time. He has recovered and is back to his usual self.

    • @eriven_tq
      @eriven_tq 11 месяцев назад +64

      Wholesome :D

    • @FarayukiDiro
      @FarayukiDiro 11 месяцев назад +52

      Did he remember what you read for him? I'm glad your dad has returned to his normal self.
      Btw you and your family are so strong and supportive by working together to visit him. I'm sure it would be too tiring and heart-breaking for only 1 person to do that. He's strong cuz you and your family stand by him strongly 😊

    • @johndohm578
      @johndohm578 11 месяцев назад +101

      ​@@FarayukiDiro Thanks! He remembers most of what we read to him during that time, although the details are fuzzy for him. The way he put it, it was like he was looking at a wall of panels at all times. He would hear us talking and reading to him, and a panel would occasionally open up so he could see for brief periods, then would close as soon as he tried to reach through the open panel. Strange stuff.

    • @gokuxsephiroth4505
      @gokuxsephiroth4505 11 месяцев назад +5

      That's wonderful

    • @ClericDoggo56
      @ClericDoggo56 10 месяцев назад +6

      Incredible story, glad he recovered

  • @basementdwellercosplay
    @basementdwellercosplay Год назад +2005

    Man 13 years stuck where everyone ignores you and doesn't know you're in there. Martin must have been very emotional strong to get through all of this

    • @AnjuDieQualle
      @AnjuDieQualle Год назад +109

      It's not like he had a choice either

    • @godnyx117
      @godnyx117 Год назад

      No. He just didn't had no choice. The parents are really satanic and selfish to hold him there.
      I won't stay in silence any more! It's time we start saying things EXACTLY as they are!!!!

    • @YTDPROMISE
      @YTDPROMISE 11 месяцев назад +53

      ​@@AnjuDieQualleYou'd be surprised how easy it is to lose your mind in situations like these. Had he let go, he'd be officially dead, aha.

    • @wolfy6631
      @wolfy6631 9 месяцев назад +16

      ​@@YTDPROMISE That's not how it works

    • @antstakkin
      @antstakkin 5 месяцев назад

      ​@danieltheraging5390 your ed

  • @HeisenbergFam
    @HeisenbergFam Год назад +1541

    4:23 kid speaking last words to mother "when home" and waking up is wild to witness, cant imagine how terrifying that experience was

  • @frndsrmpwr1472
    @frndsrmpwr1472 Год назад +2132

    I cried listening to the end of this. As I'm struggling with disability that's getting worse but still having all of my cognitive ability, I couldn't even begin to imagine how hard this must have been for him to go through and to hear his mom say that. I cried not because of the suffering he went through, but because he was finally being able to be treated like a human being. I know that people who DO have limited cognitive function are abused by their caretakers all too often, and it's just so heartbreaking bc no matter what cognitive function you have, you still deserve to be treated like a human being with basic dignity and respect. I'm just so glad he was able to be seen, and how amazing that must have felt to finally be heard and to have a big part of his life back. I'm so glad to see him thriving!

    • @ediblecrayons2382
      @ediblecrayons2382 Год назад +37

      I am extremely sorry to hear about your disability, I am praying for you 💗 Be safe!

    • @dfjulesful
      @dfjulesful Год назад +20

      Definitely hits different when you are also disabled

    • @Mo_Mauve
      @Mo_Mauve Год назад +7

      I don't have a physical disability & I don't cry very often, but I also cried during part of it.

    • @Mo_Mauve
      @Mo_Mauve Год назад

      Only a little bit though.

    • @jamesguiberteau6607
      @jamesguiberteau6607 Год назад +2

      Bless you

  • @PUNCHEDPUNCHEDPUNCHED
    @PUNCHEDPUNCHEDPUNCHED Год назад +492

    Bless that nurse for everything she did, what a saint.

    • @nightmarerex2035
      @nightmarerex2035 Год назад +6

      those nurses are fired with extree punity must follow the cyst-tem 100% or ELs

    • @cary9479
      @cary9479 11 месяцев назад +49

      ​@@nightmarerex2035I think they meant the one nurse that helped him.

    • @aprioriontoast704
      @aprioriontoast704 Месяц назад +3

      @@cary9479 but she was an aromatherapist ironically the nurses employed to care for him where the ones he said abused him.

  • @yourdadsotherfamily3530
    @yourdadsotherfamily3530 Год назад +425

    ‘He emerged from pain and suffering with his passion and empathy intact…’ is such a profoundly strong statement

  • @NekoWinters
    @NekoWinters Год назад +801

    10+ years of his family pushing to keep him alive is honestly impressive, most people will never realize how expensive and insanely stressful it was for them to hold onto hope and follow through with it..... in alot of places he woildve been for lack of a better description "abandoned" for the end to come quickly without care

    • @victorkao1472
      @victorkao1472 5 месяцев назад +16

      Fr. Props to both him and his family for enduring this trial

  • @mizu_the_floatzel
    @mizu_the_floatzel Год назад +702

    It's thanks to Martin that kids in my school I went to had equipment that can help them communicate. I heard about the story about Martin and I was at my special ed school. Somebody you even worked with Martin came to the school to educate the higher functional kids about his disability in which he's now helping others with the same thing. So to Martin. Thank you. You gave voices to the voiceless

  • @_vla
    @_vla Год назад +553

    Amazing how a upsetting article about this guy actually has a solid backstory to it.

  • @ZDoubleDogg
    @ZDoubleDogg Год назад +371

    I’m overwhelming happy for Martin.

  • @salty4463
    @salty4463 Год назад +576

    I have PTSD and sometimes dissociation makes me lose the ability to move, speak or even open my eyes. Then I'm kinda caught up between flashbacks, an entirely different world that is basically just a gigantic tunnel of light, but also reality. My awareness of my surroundings always comes back first. It can take me hours to get out of that state and it just feels terrible. However, it feels even worse, when there are people around me, who could help me out of it (mainly by holding ammonia sticks to my nose or using other strong stimuli) but don't get what is going on, even though they know of my disorder. If it happens while I'm laying in bed, everyone would just assume, I was sleeping, while on the inside I'd be screaming for help. Still, I cannot imagine what this man has gone through. The woman who noticed that he was concious is a heroine. Try to pay attention to the "little things" and maybe you'll become one too someday.

    • @marciavoe7150
      @marciavoe7150 Год назад +11

      Is it catatonia?

    • @lovelysakurapetalsyt
      @lovelysakurapetalsyt Год назад +6

      ​@@marciavoe7150 That's what it's classified as

    • @enigmalfidelity
      @enigmalfidelity Год назад +16

      That's INSANE! I'm sorry you deal with that intensity. I have PTSD from nearly 2 decades of severe trauma, but in no way do I experience that.
      I really hope things get easier to manage for you. I would never want to go through hours of that. What I got is intense enough, thank you.
      Good luck with the endeavor.

    • @PANTHERA369
      @PANTHERA369 Год назад +10

      Look into MDMA assisted therapy, it could stop these attacks from happening in the future.
      Wish you the best 🙏

    • @morganpetersen
      @morganpetersen Год назад +2

      I'm so sorry that you have to go through this. I know for certain i'd find the first opening to end my own life if i was in your shoes. You're strong.

  • @kyrab7914
    @kyrab7914 Год назад +749

    I honestly don't blame his mom. I do wish someone had been more aware of the condition of the care home but... They didn't know if their son was alive for lack of a better word. Like brew said, to them, he probably died years ago. The fact that they kept hope through 12 years, cared for him, and put everything (including time, and money, etc) they had into it is frankly impressive.

    • @daksmos924
      @daksmos924 Год назад +43

      I agree it's sad but if I put myself in their shoes I feel like I would've acted in a similar manner

    • @mrosskne
      @mrosskne Год назад

      I wouldn't blame my family in the slightest if they euthanized me after a month

    • @danielvickrey6694
      @danielvickrey6694 Год назад +8

      Then you're weak.

    • @aireyroblox
      @aireyroblox Год назад +58

      @@danielvickrey6694 Then you're sick.

    • @danielvickrey6694
      @danielvickrey6694 Год назад +7

      @@aireyroblox No I'm the difference between never giving up and a miserable self pity fest.

  • @ZombieSazza
    @ZombieSazza Год назад +203

    God Bless Verna and Yasmin, I’m so glad they saw him as a person and were able to help him

  • @12DAMDO
    @12DAMDO Год назад +277

    being awake during a coma seems so horrifying

    • @stevelansfordsaveukraine8751
      @stevelansfordsaveukraine8751 Год назад +27

      That's why locked in syndrome is scary.

    • @12DAMDO
      @12DAMDO Год назад +3

      @@stevelansfordsaveukraine8751 indeed

    • @editname6868
      @editname6868 Год назад +20

      Its not really a coma, you are unconscious and you have almost no arousal in a coma. Vegetative state is when you are partially aroused but not very concious. Locked in syndrome is when you are paralyzed, but fully concious and fully aroused like you are wide awake

    • @12DAMDO
      @12DAMDO Год назад +3

      @@editname6868 wait hold up, you can be aroused during a vegetative state?

    • @TheOriginalDuckley
      @TheOriginalDuckley Год назад +17

      I don’t think they meant aroused in that context. Lol

  • @josefine7095
    @josefine7095 Год назад +179

    It's insane how much one attentive person could help this man improve so drastically! His recovery is amazing!

  • @christianotaku4073
    @christianotaku4073 Год назад +227

    I work with people who use eye gaze and a program called Unidad. The Eyegaze tracks eye movement allowing these people to communicate and form entire sentences just through their eye movement. Its exciting to see a channel like Brew putting this kind of information out, we need to normalize the usage of alternative augementative devices.

  • @BadNameJackson
    @BadNameJackson Год назад +160

    Did the person who forced him to drink the throw up get in trouble yet? People should take legal action for how they treated him.

    • @flameofthephoenix8395
      @flameofthephoenix8395 2 месяца назад

      Why?

    • @BadNameJackson
      @BadNameJackson 2 месяца назад +5

      @@flameofthephoenix8395 Someone forced them to drink throw up.

    • @flameofthephoenix8395
      @flameofthephoenix8395 2 месяца назад

      @@BadNameJackson There is nothing inherently illegal about that. They were trying to feed him.

    • @BadNameJackson
      @BadNameJackson 2 месяца назад +14

      @@flameofthephoenix8395 Yeah, it's still bad.

    • @flameofthephoenix8395
      @flameofthephoenix8395 2 месяца назад

      @@BadNameJackson I mean, I'd still do it in her position, at least I'd like to believe I would.

  • @Juice83
    @Juice83 Год назад +170

    Your conclusion at the end of this was incredibly beautifully worded, that's exactly what we should be looking for in the story! I truly appreciate you finding the story that way, left me with a big smile on my face!

  • @genuinedickies99
    @genuinedickies99 Год назад +49

    i experienced being locked in and nobody was aware of it. Truly horrifying. Mine was only several hours before I snapped out of it. I can't imagine 12 years.

  • @lcbyri
    @lcbyri Год назад +72

    brew the way that you talk about things makes me feel so happy. im disabled and my husband is as well and to hear you say "martin is more than his illness, and he isn't a tool that able-bodied people get to use to feel inspiration or pity," was more than i expected. i hope other content creators who cover stories like this learn from how you do it. it's respectful, informative, and most of all, kind. thank you.

  • @fayprivate7975
    @fayprivate7975 Год назад +130

    Martian’s story reminds me of Metallica’s song “One” about a soldier who was blown up by a land mine, lost both his arms and legs, his eyesight, his hearing and his ability to talk. He begs God to take him. It’s a similar tragedy that Martin lived through. Fortunately, someone saw that he was consciously aware. It seems that, eventually, he was able to live happily ever after. I wonder if he had PTSD or any kind of traumatic after effects.

    • @junichiroyamashita
      @junichiroyamashita Год назад +15

      Similar in concept to a japanese story, Imomushi,about a soldier that gets mutilated by a mine,and whose wife is forced to care for. It is more of a thriller though.

    • @jasonrowen8938
      @jasonrowen8938 Год назад +6

      The movie featured in that Metallica video is called 'Johnny Got His Guns'

    • @alfrednewman4496
      @alfrednewman4496 Год назад

      Body my holding cell!

    • @Brinta3
      @Brinta3 10 месяцев назад +3

      ⁠@@jasonrowen8938
      And that 1971 movie is based on the 1938 book Johnny Got His Gun by Donald Trumbo, about a soldier wounded in World War I.

  • @electrajane
    @electrajane Год назад +149

    This honestly had streams of tears down my face. Im so glad his life improved.

  • @SMASHINGblargharghar
    @SMASHINGblargharghar Год назад +150

    I used to have night terrors with sleep paralysis where i was partially awake and could hear what was going on around me but couldn't move, speak, or open my eyes in addition to auditory hallucinations which was a very disturbing and frightening experience. I can't imagine going through something similar to that for 12 years, my mind would simply break and I don't think I'd come back from it.

    • @givemesubsplz5698
      @givemesubsplz5698 11 месяцев назад +5

      I was able to move my legs in sleep paralysis but I couldn't move my arms at all. It was very strange. I tried to go back to sleep and I fell asleep so fast.

    • @D3liana
      @D3liana 8 месяцев назад +4

      Omg. I thought I was the only one who had that! It's the most annoying thing in the world lol. To try to avoid sleep paralysis, I listen to an audio book. It really helps!

    • @guineapigmom8968
      @guineapigmom8968 5 месяцев назад +3

      When I have sleep paralysis I can only open my eyes for a few minutes, but im fully aware of my surroundings. It's terrifying to me. I can't imagine 12 years.

  • @m3g_h4n
    @m3g_h4n Год назад +31

    I work with residents in a group home who are very similar to Martin, some of our residents use a Tobii device that tracks their eyes so we can have full conversations!!
    But even without the Tobii I have full conversations with my residents, even our residents who cannot communicate I still talk with them! Love all my residents, thank goodness Martin was found out to be lucid! I cannot imagine the torture of people thinking you’re mentally gone and not talking to you

    • @m3g_h4n
      @m3g_h4n Год назад +1

      Also thank you for the last few minutes!! I am so happy for him, and his beautiful family he created ♡

  • @potatoeoverlord9430
    @potatoeoverlord9430 Год назад +97

    I would have liked to have heard more about him recovering his mobility. Looks like he is still in a wheelchair but is able to physically interact a lot more.

    • @pinheadlarry2921
      @pinheadlarry2921 11 месяцев назад +1

      Same i tried looking it up but google doesn’t understand what i’m asking lol

    • @aprioriontoast704
      @aprioriontoast704 Месяц назад +1

      @@pinheadlarry2921 HE does have a Ted talk but he doesn't go into detail about his recovery. He can now move his face to make expressions and head movements and he can use a text to speech program very well, he's in a wheelchair but he is able to communicate and function much more independently.
      I don't know if he was already recovering physically , if he got physiotherapy or if working on the text and symbol to speech en-vigored his whole body (mind to matter, new hope to new strength )

  • @DustinRodriguez1_0
    @DustinRodriguez1_0 Год назад +90

    Martin's story is amazing, and I think it teaches us a tremendous amount about the nature and form of consciousness. I'm going to have to read his book. I am very curious about the emotions he felt while being locked in... people who experience total facial paralysis are known to follow a very specific pattern of losing the ability to feel anger, then losing the ability to remember what it felt like to get angry, then losing the ability to recognize anger in other peoples faces. It seems to me that he would have lost almost all emotional tone (which would probably be a mercy in his condition) but he clearly retained some, or maybe substituted some with more intentional and thought-driven (rather than physically trained responses which is what emotions are) patterns.

  • @tokugeeky2931
    @tokugeeky2931 Год назад +42

    I’m glad he woke up but man the experience he has to go through is beyond tragic. But massive respect for his good will

  • @Nicoladen1
    @Nicoladen1 Год назад +177

    You're telling me they never thought of telling him to look in a right-left-right kind of sequence as to signal that he could hear them? Isn't that the first thing anyone would do, to try and reestablish communication?

    • @shadowofsecracy
      @shadowofsecracy Год назад +22

      I was thinking the same thing.

    • @wparkerunc
      @wparkerunc Год назад +44

      or even just blinking lmao. "blink twice if you understand me" would be the only thing they needed to say to know he was awake

    • @BubblegumLightsaber
      @BubblegumLightsaber Год назад +86

      They said in the video he couldn't move his eyes side to side.

    • @firestick4991
      @firestick4991 Год назад +13

      Fine. Get right in front of him and see if he could have eye contact.

    • @jessicaolson490
      @jessicaolson490 Год назад +60

      Even he says he was unaware for a big period of time, I think during that time they stopped looking. At some point he regained the ability along with his awareness to move his eyes. It seems like he slowly began to interact with the world a little bit more at a time!

  • @mspears_bobobuddytheseniorcat
    @mspears_bobobuddytheseniorcat Год назад +35

    When I finally saw his picture at the end I burst out with joy seeing the glimmer in his eyes and the most beautiful smile! I’m so glad they didn’t give up on him! ❤

  • @ComedyPlastic
    @ComedyPlastic Год назад +49

    This is the most terrifying Brew video so far.

    • @ricktherickrolled
      @ricktherickrolled Год назад +4

      You didn't see the guy who lived in a dead body because of his family, didn't you

    • @bigstarcrazii
      @bigstarcrazii Год назад +3

      @@ricktherickrolled or the office chairs exploding

    • @stevelansfordsaveukraine8751
      @stevelansfordsaveukraine8751 Год назад

      ​@@ricktherickrolled nope I didn't ik it wasn't directed towards me but whatever

    • @ricktherickrolled
      @ricktherickrolled Год назад

      @@stevelansfordsaveukraine8751 Well you can watch it but please do not google the pictures of that incident, it's traumatizing and i shaked all night not being able to sleep or I am just overreacting, but please dont

  • @Grepes2
    @Grepes2 Год назад +43

    As someone who gets sleep paralysis episodes, i cannot even imagine how Martin went through this hellish experience. I have had the same experience as him while having a sleep paralysis episode,as a kid it was like everlasting even if it was for less than a minute it felt like im trapped and wished as if i should scream but it wasn't of any use, my whole body couldn't move excluding my eyes. Over the years these episodes have gotten short and sometimes they appear only when im Dreaming but if it ever happens when im in an awakening state i usually can control it now thankfully.....
    I wish martin best in life and godbless

    • @SMCwasTaken
      @SMCwasTaken Год назад +1

      Did you see the demon entity from smile?

    • @Grepes2
      @Grepes2 Год назад +4

      @@SMCwasTaken i don't see hallucinations like some people suffering from sleep paralysis, well if im in a dream while having SP, I'd be awake in the dream and whatever i fear ,takes shape innit

    • @thespectator5259
      @thespectator5259 11 месяцев назад +3

      @@SMCwasTaken I'd rather see a silly demon hallucination then feel like I'm about to choke on my own spit. For whatever reason, I only get SP when on my back. Sucks too, since I find it a comfortable position, so I usually only sleep on my sides.

    • @Venemofthe888
      @Venemofthe888 2 месяца назад

      I've had sleep paralysis while I was very ill once and all I wanted to do is shut my bedroom door cause the hallway light was on and I couldn't move at all and it was horrible. It lasted for roughly 6 hours from when I went to sleep till I woke up. It was terrifying so I can't imagine others having this for so many years

  • @SWISS-1337
    @SWISS-1337 Год назад +96

    When people speak about Hell, this is it. From the end, it seems as though he continued regaining use of some of his motorskills, but this poor guy. 12 years... Between 13 and 25. And that's not suddenly waking up either, that's a decade more work, but did anyone find out what neuro-degenerative condition/disease that caused this? That is a fate worse than anything, and as a dad myself that terrifies me. I always try to treat every living thing, no matter the understood perception of intelligence, with respect and care, such as dogs etc, because you should never assume that any life is beneath you, or incapable of thought. How did the parents not notice the eye contact? I would have spent the first few months after his last words, looking into their eyes to see if they seemed there or not. You can't blame them, but I'd never give up. I'd try everything and anything.

    • @condor2279
      @condor2279 Год назад +7

      A tuberculosis-related brain infection

  • @BatLB
    @BatLB Год назад +31

    The aroma therapy woman deserves all the glory in the world. What a story. I hope his life will be long and beautiful.

  • @Traveling_Traveler
    @Traveling_Traveler Год назад +103

    I heard something about this several days ago and I literally said to myself “I wonder if Brew will make a video about this” I guess that was a bit of foreshadowing

  • @BrooklyKnight
    @BrooklyKnight Год назад +61

    Thank you for mentioning that part at the end about people seeing him as a source of inspiration for the able bodied. People often act as though those with disabilities are some prop to oooh and ahhh at and feel pity for - we don't want your pity. We just wanna feel like we're on the same level as you.

  • @solidsnakedred
    @solidsnakedred Год назад +15

    The story is a good example of why you should be kind people you'll never know who you could save

  • @Russeljrjs
    @Russeljrjs Год назад +30

    I am truly impressed and inspired at how he is able to still hold on to his humanity even after being locked in for so long.

  • @N1ckelD1me
    @N1ckelD1me Год назад +23

    Really glad to see his story covered so well!!! I saw Martin’s Ted Talk years ago and read his autobiography. So glad u talked about not using his struggles as inspiration, but the love for humanity he kept through it all. That was really driven home to me by his book, and was a really good and needed message for me in my angsty teen years.

  • @jcdock
    @jcdock Год назад +21

    I can't imagine how mentally hard that could of been. I'm so glad he is able to live a happy life now

  • @Valentino016
    @Valentino016 Год назад +15

    Martin's story is so encouraging. I suffer from a disorder and im from south africa. Disablities dont make you less human. Ableism is a huge problem in our society.

  • @Karter_0
    @Karter_0 Год назад +19

    People imagine "scary" as appearences and such. This is that _real_ definition, in your body, unable to do anything.

  • @mecharaptor8.535
    @mecharaptor8.535 Год назад +31

    I can’t even begin to imagine being like this…

  • @falsedemocracy83
    @falsedemocracy83 Год назад +11

    I think I have something in my eye. That makes me realize I'm doing the right thing when I talk to disabled people like I would anyone else. I know some people have a working mind but their bodies don't allow them to express themselves properly. Like I tell myself everyday, like a mantra: "We are all human." Life is hard for all of us, so be kind to one another.

    • @TophBeifong-sx4dm
      @TophBeifong-sx4dm 10 месяцев назад

      Ummm I think thats just having a conscious

  • @spiralpython1989
    @spiralpython1989 Год назад +19

    Thank you for telling Martin’s story with such compassion and humility. And especially thank you for reminding your audience that people with disabilities are not ‘inspiring’. We are living our lives as well as we can in communities that often don’t see us. With few exceptions, we don’t want *your* admiration, we want *your* acceptance and *your* capacity to include/advocate for/ support those disabled people you know, you see, you hear about in your communities.
    Our impairments, our medical issues, our pathologies are not the disabilities. The disability comes from being unseen, unrecognised, unable to participate in community life… This story, and the sensitive retelling of it highlights this. Thanks Brew.

  • @SleepingDragon1
    @SleepingDragon1 Год назад +26

    This is my worst nightmare

  • @MiaMizuno
    @MiaMizuno Год назад +11

    The happy end is really beyond crazy. Good that Martin survived and is prospering in life! ❤

  • @thegreatapeescape430
    @thegreatapeescape430 Год назад +5

    15:34
    Imagine waking from a coma and the first word you "say" using this device is pog.

  • @vynilla6398
    @vynilla6398 Год назад +48

    5:40 I experience this quite often, a lot of times already, and still do... obviously I'm not in a coma or anything, but my eyes would open while sleeping, and "see" the real world while my body is completely asleep. Whenever I sleep on the family couch, I'd often see family members walking by, while I dream that I call out to them, even shout, yet no one will notice.

    • @therealslimshady6763
      @therealslimshady6763 Год назад +13

      Sleep Paralysis I guess

    • @Delimon007
      @Delimon007 Год назад +3

      @@therealslimshady6763
      ^
      At least you can see, my eyes are jammed shut and I can't move or breathe. Imagine being awake, suffocating and being unable to move your body or perform basic breathing functions.

    • @speedytempo3819
      @speedytempo3819 5 месяцев назад

      @@Delimon007 sleep paralysis is different for everyone. Some people even see and hear things. Some are not just paralyzed, but feel some form of pressure.

  • @jlyn8228
    @jlyn8228 Год назад +11

    Any photo after Martin's incident, he seems to always have a smile!

  • @TheLonelyMoon
    @TheLonelyMoon Год назад +22

    if i was the parents or the caretaker i'd be fkn horrified to know the boy has potentially been locked inside for more than a decade. that sounds like a trauma that i'd never ever wanna experience even if i can have the wealth of bezos
    martin has my utmost respect

  • @MrMikados
    @MrMikados Год назад +26

    "I have no mouth and I must scream"

    • @thelarryman482
      @thelarryman482 Год назад +2

      Strangely accurate quote. Who said it?

    • @glass6582
      @glass6582 2 месяца назад

      @@thelarryman482its a book
      you should look it up, its good even if its not very relevant to this.

    • @bagelinpond2433
      @bagelinpond2433 2 месяца назад

      its the name of a book@@thelarryman482

    • @bassoutofwater6157
      @bassoutofwater6157 2 месяца назад +1

      @@thelarryman482 its a book

  • @anaditullio
    @anaditullio Год назад +13

    This one got me really teary. It's amazing that he never gave up, even in the face of dispair. 😢😢😢😢

  • @I_am_ENSanity
    @I_am_ENSanity Год назад +9

    Being stuck in a waking coma is my greatest nightmare. I already have a will in the case that if I fall into one, I am to be terminated.

  • @AngelCakez
    @AngelCakez Год назад +6

    I am genuinely impressed about hearing Martin's story, and that one nurse is definitely a saint for getting him through such a harrowing experience. And good for him for living about his life moving forward, you love to see a good ending!

  • @CheqLights
    @CheqLights Год назад +8

    "When home?" broke my heart.

  • @sweetluvgurl
    @sweetluvgurl Год назад +10

    This sounds like a living nightmare. I feel awful he had to go through that.

  • @Liriq
    @Liriq Год назад +5

    Had tears through several sections of this story

  • @forchyforchy5456
    @forchyforchy5456 Год назад +17

    i have Stiff Person Syndrome, it shares parallels with this. When they couldnt figure out what was wrong, LIS was one of the things they thought was happening.

    • @emmahealy4863
      @emmahealy4863 Год назад +2

      I'm sorry you're having to go through anything like this, hope you're doing alright ❤

  • @SupportPalestine985
    @SupportPalestine985 Месяц назад +2

    Martin is proof that you need to take care of more people than you think. Strong, alive, and not giving up. We need to BE as strong as he is.

  • @MaryAnderson.MarBear
    @MaryAnderson.MarBear 2 месяца назад

    Wow, this story is so incredibly heartbreaking. I can't even imagine how depressing it must have been for Martin to be literally trapped inside his body for 12 years. I am so, so happy that he encountered an angel, who was instrumental in saving his life and getting him the help that he so desperately needed. Martin, God bless you and your beautiful family. Lots of love

  • @Nikki0417
    @Nikki0417 Год назад +22

    I'm happy and on the verge of tears at the same time.

  • @MementoMori-kn4dh
    @MementoMori-kn4dh Год назад +19

    I remember hearing about Martin it was truly thanks to a miracle, and his resolve that he was able to be saved from that hell

  • @sallyperzanowski6625
    @sallyperzanowski6625 9 месяцев назад +2

    What an amazing story of love and pushing forward at all costs. ❤ Thank you for sharing.

  • @etrisplayer6169
    @etrisplayer6169 Год назад +21

    My man logged out of his body and forgot the password!

  • @mageyplss
    @mageyplss Год назад +7

    This is one of the only Brew videos that actually ended well

  • @joerobinson69
    @joerobinson69 Год назад +93

    Ableism is something that most people don't even know exists. THANK YOU for pointing out that Martin is not here to be pitied or used to make able bodied people feel good about themselves. He is inspirational because of what he has overcome and accomplished.

    • @drippyog3935
      @drippyog3935 10 месяцев назад +1

      True I never felt bad for them

  • @mrlox9576
    @mrlox9576 29 дней назад +2

    Vierna or whatever her name was, was a light of humanity in a dark world for him. People like her are very unique, special, and rare.

  • @Herowebcomics
    @Herowebcomics Год назад +12

    Wow!
    This was crazy,but then it got awesome!
    I am so glad he is ok!

  • @Dream7773
    @Dream7773 Год назад +3

    Thia story really touched my soul ...Thank you for sharing. I will try to see instead of just look. I deliver food and I see a lot of homeless folks. I see them! And i would encourage everyone to help the less fortunate when possible!

  • @TheHorreK2
    @TheHorreK2 Год назад +6

    Along of suffering all stahes of dementia, being trapped inside of you body while everyone thinks your gone is my biggest fear

  • @ericcarabetta1161
    @ericcarabetta1161 Год назад +10

    $2,400 for that MACAW thing?! That's outrageous for what's essentially an adult Speak & Spell.

    • @Rollacoastertycoon
      @Rollacoastertycoon Год назад +2

      Imagine cost to make
      Should be gov funded

    • @ericcarabetta1161
      @ericcarabetta1161 Год назад +1

      @@Rollacoastertycoon, yes. Another reason we need universal healthcare.

  • @Nikki_with_the_blikki
    @Nikki_with_the_blikki Год назад +37

    It's a good day when Brew uploads. It's like a strong cup of coffee when you need a pick me up🥰

  • @SadisticLoli
    @SadisticLoli Год назад +8

    I remember hearing this story long ago. And finally getting a good ending to it is nice

  • @Paislighhelms-es3pj
    @Paislighhelms-es3pj Год назад +9

    I feel Awful for his Mom I am going to cry!

  • @lecongtuankiet1712
    @lecongtuankiet1712 Год назад +8

    to anyone hates the mother
    think again...
    if you were her those words aren't even enough to describe her pain

  • @chaliceflame1314
    @chaliceflame1314 Год назад +2

    Imagine how many more of these cases are out there that didn't get this level of care to recover.

  • @heads_together_crypto2422
    @heads_together_crypto2422 Год назад +65

    Since he was 12? Or a 12 year coma? Was he 24 at this moment? I didn't know you could survive a coma that long?

    • @SuzieNerds
      @SuzieNerds Год назад +45

      He wrote an autobiography called “Ghost Boy” if you’re interested.

    • @hehe...8175
      @hehe...8175 Год назад +82

      It's a 12 year coma that happened when he was 12 so it's both.And, yes you can- in fact -be in a coma for 12 years.

    • @Gaminguide1000
      @Gaminguide1000 Год назад +8

      Also it was a waken coma

    • @Buttwr
      @Buttwr Год назад +1

      🌯

    • @heads_together_crypto2422
      @heads_together_crypto2422 Год назад +6

      @@SuzieNerds needs a movie!

  • @randomcommentog
    @randomcommentog Год назад +24

    That’s is scary af

  • @ulawan5
    @ulawan5 18 дней назад +1

    Former coma patient here: yes, please talk to us! Odds are that we are there! My reality was very distorted when I was aware of it, but I was still able to hear what people were saying. I dreamed the entirety of The Lion, The Witch, and The Wardrobe as my dad read it to me. I couldn't communicate past the ventilator, and the "I have no mouth and I must scream" aspect hits home pretty hard. I still had a sleep/wake cycle and dreamed really strange things, but I was there, and I try every chance I get to tell people that showing up when someone is in the hospital is the absolute highlight of their time there, hope is a powerful medicine to aid recovery.

  • @gaynorberry5759
    @gaynorberry5759 10 месяцев назад +2

    I remember seeing something on Martin last year. So happy for him that someone saw he was still there!! ❤

  • @danielhouser8845
    @danielhouser8845 4 месяца назад +3

    I heard this story already but thank God for that lady doing what she did 👐 thank goodness for caring people 🙏

  • @anthonyortiz350
    @anthonyortiz350 Год назад +13

    16:48 THAT really is amazing!!!

  • @LivyLoucifer
    @LivyLoucifer 6 месяцев назад +1

    Years ago this story inspired me. I typically smile at everyone who makes eye contact but this encouraged me to smile at everyone who can't as well.

  • @choupo-motingterrordaatala1124
    @choupo-motingterrordaatala1124 3 месяца назад +11

    bro is locked in fr

  • @fireredgaming1
    @fireredgaming1 Год назад +5

    If this happened in my country, then why do I rarely hear about it? This is gold

  • @ZombieLogic101
    @ZombieLogic101 Месяц назад +2

    I'm glad he climbed back from that pit. Good for him, glad he could get past such a horrifying experience and can still smile what a trooper!

  • @ash-lynnsarah8626
    @ash-lynnsarah8626 3 месяца назад +1

    I'm so happy that Martin was able to recover enough that he not only found the love of his life, but had a child! Good for him

  • @TheVOIDKingHimself
    @TheVOIDKingHimself 7 месяцев назад +3

    This is one of my biggest fears, being awake, but not able to communicate or move.

  • @raheem2845
    @raheem2845 Год назад +27

    Why we should never give up hope in anyone

  • @CrimsonHybrid
    @CrimsonHybrid Год назад +2

    Eyyy I was just thinking about new Brew content 30 minutes ago!

  • @lukesfx
    @lukesfx Год назад +15

    So the story here just ends when the really interesting stuff happens. How did he recover more and more and was the initial cause ever found ?

  • @kenirainseeker539
    @kenirainseeker539 Год назад +5

    Poor kid was forced to watch barney and unable to escape it. He probably sees that face as the face of a demon now...

  • @YourPalKindred
    @YourPalKindred Год назад +11

    I'm so glad Martin got a happy ending

  • @Jd-ace
    @Jd-ace Год назад +2

    beautiful story.

  • @3lttlbrds
    @3lttlbrds 3 месяца назад +1

    God bless that therapist for noticing that he was still in there, she was Godsent. I saw a recent video of him and he's doing so well now, wheelchair bound and using a computer to talk but he can laugh and smile and move his head and arms now

  • @sweetlittlewee
    @sweetlittlewee Год назад +10

    There’s an amazing man in Aus named Nick that has LIS, he’s such an inspiration. He just never gives up. He has a wife and 3 adorable kids now too.