Journey to Diagnosis - Episode 7: Kevin's Journey to a Diagnosis of Hashimoto's Encephalopathy

Susan Foley, HESA co-founder/Executive Director and HE patient, and Kevin Evans, HE patient, sit down to talk about the challenges that surround the diagnosis of Hashimoto's Encephalopathy, a form of Autoimmune Encephalitis.
This is Episode 7 in the Journey to Diagnosis Series: Diagnostic Stories and Struggles From Autoimmune Encephalitis Patients.
To learn more about Hashimoto's Encephalopathy, Autoimmune Encephalitis, and HESA visit www.hesaonline.info

[@athenageorgiou9482]

Proud of you Kevin 🙏🤗🤩

[@dsmith1228]

It would be helpful to start with symptoms and go through the progression of symptoms instead of straight to the how/when of diagnosis and treatment.

[@notsogreen]

Are the hashimoto antibodies found in the blood or just in the spinal fluid or both?
Guess one has to google to find out. Be nice if more information is given and more detailed description of symptoms.
IVIG is very expensive, so to get it on a weekly basis one probably needs a really good insurance plan or obtain some outside help to offset costs.