Benzodiazepine-Induced Neurological Dysfunction (BIND)
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- Опубликовано: 30 ноя 2024
- The third in a four part series presented by the Colorado Consortium’s Benzodiazepine Action Work Group on May 17, 2022. The Consortium will be recording a new version of the talks in the near future that will be eligible for CME credit.
Presenters:
Christy Huff, MD
D E Foster
Experiences with benzodiazepine use, tapering, and discontinuation: an Internet survey: journals.sagep...
More about the Benzodiazepine Action Work Group: corxconsortium...
Presentation Slides: www.benzoinfo....
This video has been made available for informational and educational purposes only. This video does not substitute professional medical advice, and no doctor-patient relationship is formed through the video. This video is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. This video has been made available for informational and educational purposes only. This video does not substitute professional medical advice and no doctor-patient relationship is formed through the video. This video is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
DONATING is HELPING! We depend on the support of those who care about prescribed benzodiazepine harm to continue our work. If you are someone who has benefited from our awareness efforts and you’re able to help support this channel, please donate today. Thank you for making a difference and helping us to keep our work going. www.benzoinfo.com/donate/
@@garysimone4977
It's about closure & answers. It then becomes about helping others. We don't want this cycle to continue.
Now that we have answers, we can work on healing.
??
Donate To Exactly Who??
Who's Pocket Is This "Donation" Going In??
Big Pharma?
Dr. Who?/Dr.Dre?
Please Would Love To Know More!
25 years on benzos. Overnight “taper” in hospital from 1mg a day. Lucky to be alive.
Would you call that
( Cold Turkey )??
Iam Amazed @ The Complete Incopentence Of Medical Professionals In This Field Of Medicine.. I Know That Benzo's Are Just Now Getting Light Shed On Them, But If The FDA Has Already Changed Its View On Benzo's Then It Should Be Shared With Doctors & Clinicians!!
Somewhat Like COVID-19 Restrictions/Precautions Spead To All Hospitals Very Quickly.
I Understand That More Ppl Supposedly Had/Got COVID-19 Than Are On Benzo's & Are In Benzo Withdrawal & Seek Help Through E.R. Visits Or Primary Care Dr. Visits...
The Word Will Not Spread As Quickly Or At All. Because They/We Are Looked @ Like Drug Addicts Or Drug Seekers!!
Which Really Makes Me Mad & Sad @ The Sametime!!
PLEASE SPREAD THE DATA, RESEARCH...
HOWEVER YOU WANT TO LABLE IT, JUST GET THIS INFO TO THE MEDICAL PROFESSIONALS WHICH ARE THE ONLY ONES THAT CAN ACTUALLY HELP WITH THIS HORRIBLE SITUATION!!
The U.S.A. Is Definitely Behind When It Comes To Medical Professionals Being Educated On The Multi Medications That Are Very Addicting/Becoming Dependence.
Glad I Found This Channel Because Know One Understand Why I Just Cannot Stop Taking This Medication Overnight....
I Really Thought I Was Just Going Crazy & Hallucinating & Feeling Like I Was Living In A Fake World.
No Words To Describe This Feeling/Withdrawal.
STAY SAFE EVERYONE!!
was this a good thing? like on purpose?
Wow 25 years. I'm on 12 years of 1 gram Xanax . How are you doing?
I’ve been on 30+ yrs. Tried going off 5 years ago and spent 10 mos in hell. Ended up going back on 1/2 of previous dose. I want to get off but I’m so afraid of going through that again. Klonopin
Happy that you are still with us. Best wishes in your recovery.
I’ve been in severe bind for 26 months. No sleep, massive head pressure, dizziness so bad it makes me dry heave, twitching tight muscles, loud tinnitus, brain feels like it is on fire, blurry vision. I can’t stand it anymore. Kudo’s to those tough enough to fight thru. I’m done fighting.
Everyone who has survived it will tell you the same thing.
I’m at same exact spot I’d rather stay alive, muscimol might be best thing for it, kava extract works well too atleast when tapering. I’m trying these now but I already relapsed 3 days ago. Probably should see if these make living tolerable
Any better?
@@ShaneWaller-w5zHave you considered going through a compounding pharmacy in order to slowly taper? They will weigh it on scales and slowly reduce the dose properly for you. I think it’s the best method.
I'm so sorry! Are u feeling any better? My air hunger is so SEVERE n now my breathing is telling not to breathe because of damage to my CNS...No joke not getting any air sensation n sensation of not breathing...breathe into nostrils that are full of airy concrete feeling ..So breathing into that crap n have no air way😩so sorry cause feels like I'm suffocating even more...ik I'm technically breathing cause my O2 good but physically or mentally my CNS says not too .😩😩Don't give up!! Ik it's hard n I feel like i want to cause I can't handle suffocating feelings anymore. Hugs💗
Was Cold Turkey off Xanax by my prescriber " You seem better. Let's see how you do off of it". I experienced everything from cardiac arrhythmia to suicidal ideation. Literally emotional hell as well as suffering ❤Automatic Nervous System Damage as POTS Dysautonomia, for which there is no cure. Doctor reinstated Clonazepam. Lost my career, beloved pets, home, friends and joy. Now weaning from the Clonazepam in a very slow taper. Seven years on disability. Please keep working to bring this tragedy into public and medical light. ❤
Doctor took me off in 5 days after 12 years. I’ve been off 13 months now and haven’t seen any signs of improvement. Haven’t seen my son in 11 months now because I can’t care for myself anymore. I can’t drive, had to turn over my license, haven’t seen my parents or any friends since June 18 of last year. This is no way to live.
I hear you…lost everything..career, house, relationship..pure hell for yrs. Still on disability 7 yrs later. The damage it’s done physically, emotionally, psychologically, is unimaginable. Prayers… 🙏🙏🙏
Lost everything too. Now i have permanent neuropathy in my legs, fatigue, etc ... God is not good.
@@mitch5222 it’s not fair these doctors aren’t held at all.
@@Carolina_girl86 yes exactly. There is no justice in this life. And they tricked us into believing them. We just wanted help to get a better life.
I'm 23 months off of Ativan cold turkey. Mt first 11 months were filled with relentless terror and anxiety. A roller-coaster of waves and windows for the next 8 to 10 months. I had a pretty awesome window that lasted about a month in which I thought I was in the clear. It's all come bask so strong for the past few weeks. We need so much more research and data to get a clearer picture of the aftereffects of getting off the meds.
I’m 3 years post off Ativan. I still get symptoms, but they are tolerable. My cognitive functioning is almost back to normal!
Am a short term. Ativan user and it I was cold Turkey it has been so horrible this isn't a medicine it's a poison a brain poison they need to ban them its horrific irrational fear
Look . This is not hard . Taper. Taper. Taper. Neuro plasticity is a real phenomena . You’re brain will compensate OVER TIME give it enough time!!!!! Its not that hard. Hundreds of thousands of people have successfully titrated off. You just don’t hear from them on the web. Relax. You took the drug. You can’t change that. But you are responsible for titrating correctly . DO NOT GO TO A REHAB THAT TRIES DISCONTINUE USE IN A Week!!!!!!
@Kelly Jo Frey great to hear...sadly we needs yonn9fbmore research does it really matter what we sallwewe
Does it matter what we Call it ?? BIND or PAWS ?? HELL CALL IT AMYTH8NG YA WANT THERE IS NOTHING ANY DOCTOR CAN DO PLEASE FOCUS ON stopping Rx these meds
I am so thrilled that professionals are finally dealing with this unexpected reality of irresponsible prescribing..
They're really not though , go to your local Doctor today and they still won't know what the hell they're talking about when you bring this up , they'll try and act like they do while having no emotion towards the withdrawal horror you mention because they've neevr been through It , they don't truly understand how bad It Is , nor do they care they just deny and waste your time , try to gaslight your truth and intelligence , look at you like you're crazy , and move on to easier cases. They face zero consequences either It's seemingly Impossible to get a Doctor In trouble for Benzo Injury.
@@fawkkyutuu8851 The ignorant/arrogant prescriber I contacted to assist in my taper told me I couldn't do a liquid taper off of Temazapam without overdosing because according to her dumb ass, "benzos are time released".
Not in my country...not even the sleep neurologists
Their not lol. They never will
Iresponsible prescribing?
As drs we were trained by pharmacologists
Only benefits were emphasized.
The SE and withdrawal were not part of the training until very late
I know your presenting the facts but in and of itself is incredibly depressing and creates a true feeling of hopelessness and despair...
Boy do true !!!!
yeah...it definitely does..
We're not alone in this 🤍
yeah it does huh ..I am in two minds - do I want to know this - yes I think it impt to understand what is going on with me as I am very sick half way through tapering slowly ( supposedly safely) off. Dr 's have no clue as to what sh*t you go through getting off these things, no clue even how to do a taper, let alone anything abt BIND !! I need to know this stuff, but I too can only listen to so much - I MUST have hope that I will get better otherwise it is so depressing and worrying and makes things even worse. Rock and hard place :( I cannot even find a drug counsellor in my country who knows anything abt Benzo's , I am not in the US. It is disgraceful. We just suffer alone, in silence.
You just need to KNOW. And the public needs to know to prevent themselves from being victimized by these people. Because, make no mistake, it was greedy, Negligent malpracticing Doctors who caused this tragedy.
Taken off clonazepam cold turkey in 2018, then reinstated and tapered for two months (because my psych wouldn't help me, so I had to use what I had left). Severe symptoms for two years. Luckily for me the symptoms started to go away after that, and today I am left with just a few. Benzo rage is real. The autonomic dysfunction is what I hope to see more study on and perhaps then we can find better ways to treat that dimension of effects.
I'm just getting started doing what you had to do. Valium 10-20 mg.
God will carry me. I remember the foot prints in the sand poem.
@@deep6301 There are some good meditation videos on here that helped me a lot. I recommend that, make sure you are well hydrated, and of course make time for yourself to rest as much as possible. If God brings you to it, He will bring you through it. Best wishes.
Excellent presentation.
As for myself, I remain skeptical of all prescription medications now, because doctors will get paid and retire one day, regardless if their patients get well, or more disabled from their treatment recommendations and prescriptions.
This video should be shown in medical schools and residency.
Dr 'knows' best! Mmmhmm. Well, they believe they do. People believe all kinds of crap. Even when proven wrong. Like sky daddy.
Well said. Thank you for your time to put this out there 💜
Exactly!! My Dr just retired after prescribing me Klonopins from 2002-2023.
@@brianwilliams6555 don’t know how these doctors sleep at night. They should be held accountable for not giving informed consent.
They can sleep because they are detached from us and don't see the suffering they put upon us. They can only see their bank statements.
Thank you for your work. 18 months on (reluctantly); 6 month taper, nearly 3 years off a low dose of diazepam; I have suffered terribly from the adverse effects of meds taken as prescribed. One thing that I am so grateful for, which I don't believe would/could have happened without your work and those you've mentioned, is that I was finally granted medical insurance Cover for the condition 'Benzodiazepine Induced Neurological Dysfunction' (adverse effect of therapeutic medication). Although this accepted diagnosis sits in the absence of any real help, support or understanding from the medical model; i am so relieved that it is one less battle for recognition that I need to fight. As you say D, validation is so important to managing with this condition. Thank you both and all those working alongside you to mitigate this problem. Sarah Preece, NZ
Did you feel your brain doesn't function normally and can't understand that people can do normal things and can't understand that people live their lives normally and became overwhelmed of any normal things?
I call it brain lock. I was prescriped a big amount of oxazepam and doctor didn't warn me after my dog had to put to sleep at the age of 16. I was shocked when I realised that I was hooked up with this drug. Two tapers went badly wrong, too quick. Now year tapering ahead, Ashton manual, and have no power left but I want this drug off of me and have my good life back. I'm normally confident active social person. Now I'm isolated a lot because I tell my hell all the time to my loved ones and feel like I am in a different reality from other people. I wake up every morning to hell and feel like I have no brain. And can't take one day anymore. I suffer headache and neck pain constantly. I have been through many traumas and survived from that and have been grateful to God from many things. Please if you did feel your brain doesn't function normally it would be helpful to know. I have said to my doctor that I fear I have permanent mental brain damage. She thinks this drug is making me sick and more anxious and I agree. And when I'm enough long time off of benzo my anxiety will get easier and brain lock will go away.
I am hopeless and exhausted, fear mornings and feel depersonalization and derealisation at the store (normally love to go to store) and if I try to walk and run (wich i love) brainlock is ruing it and I feel like my brain just shuts down.
Please if you can answer. Thank you, all the best.
Sarah , I am in Aotearoa also. I am SO sorry about what happened to you. Do you know, thought your experience with Benzo's if there is anyone ie Dr or therapist/counsellor anywhere in NZ who knows anything about tapering and can give proper knowledgeable support ? I have asked through my DHB for drug counselling and they were awful ! I ended up not following through with this avenue. They seemed to know nothing abt Benzo taper at all.
@@JacquiQ Hi Jacqui, thanks for your comment and my sincere sympathy likewise for your experience with Benzo's and the harmful ignorance you have (also) encountered from our medical model (prescribers). I likewise sought help through the DHB and aside from their pharmacy enabling me to adapt to a liquid taper, the person supposedly overseeing my taper knew worse than nothing, while pretending to know it all. The best thing I ever did was step well aside from that paradigm, and I applaud you from veering out of their direction. I know of no therapist or counsellor's who are Benzo wise in NZ i'm so sorry. All of my insights were gained from online community, such as the one you have seen here. For practical tapering advice, though it wasn't available to me at the time, I think Mark Horowitz has just put out a book on same. The thing that I learnt the hard way is the importance of hyperbolic tapering, ie reducing slowly by a % e.g. reducing by 10% of the current dose every 2-4 weeks approx and especially towards the end of the taper (hence liquid diazepam being helpful for me, to avoid crushing/splitting pills), making reductions small and slow.
@@JacquiQ Hi again Jacqui, I have seen via notification that you have made a couple of comments that I'd like to reply to but I can't see them in the comments section (only in the notification). Is there some way I can personal message you? I appreciate your awareness of what happened to me BEFORE the benzo harm. the benzo harm was indeed after that, as part of a litany of iatrogenic harm. Unfortunately, they didn't listen to me more because of that - it is complicated but I did various things that all compounded to them not being able to deny the evidence any longer. I have cover for BIND from ACC, and I do reckon it is very rare and unusual for it to be acknowledged. I have a medical background and a comprehensive understanding of ACC and I think this helped me, but in all honesty it was a terrible and arduous task and I wouldn't wish the process on anyone. What I really want to say to you is that what you know (it is the benzos) is the truth of the matter. I am SO so sorry that there is noone benzo wise enough to acknowledge that and help you in person. It is a huge betrayal and the gaslighting is obscene. I am not sure if I am entirely well enough to be a great support to you, but I am happy to talk to you if there is anything I can say or do to be of any help, or to answer any questions. You can reach me at this email address and I can send you my phone number? tamarillotree@xtra.co.nz
2 weeks homemade taper because I was on a “as-needed” Ativan prescription. Protracted WD symptoms continues after 16 months.
I’m elderly and tapered klonopin 25 months taper 13 months off. The reason I started taper I hit tolerance. Staying on this poisin was not the answer
good video..benzo withdrawl is the worst feeling someone can go through...the pillls make you feel good when your on them you feel like nothing can go wrong....but when u come off them and you go through it(withdrawl) you realize its not worth it at all..i was on 2mg of klonopin for like 6 or 7 months..i absolutely regret it
I have BIND and it’s from short-term use. Still live with neuropathy, and even rekindled recently after being overworked.
Thankyou so much for this. My husband is experiencing BIND and his addiction doctor had never heard of this!!! We explained his symptoms and I suggested it was from Benzo withdrawal and he said “oh no no benzo’s have a short half life, that withdrawal would be done after 7-ten days. I was shocked!!! So I had to continue trying convince my husband he wasn’t dying of cancer or something life limiting! He thought he was stuck forever. Now one month later he is finally starting too feel better and venturing out of the house for short periods.
Hi , it’s truly horrific, l m trying to stop Ativan , nightmare. What drug was your husband on and for how long? I’m looking for some kind of encouragement, tips , hope. Oh,did he loose weigh or have difficulties eating, l don’t know how many people experience that .
THEY ARE LIARS. IF YOU THINK THEY DIDN'T KNOW, YOU HAVE BEEN LIVING UNDER A ROCK.
Thank you so much for all you do. I appreciate you so much. I've been on high doses, 6mg's of Xanax, Ambien 10mgs and Prozac 80 mgs, since 1994 till present. 30 Years and even though I'm still on them, I go through interdose withdrawal every and I have so many of these symptoms you just listed.
Me too best of luck
That's crazy.
I did taper and later final withdrawal in a clinic in the last 14 months. In the same time i did a taper step during this process i had an infection (Corona, flu, it may also have been Benzo Flu...hard to tell). A lot of symptoms of BIND also matching with experiences from Long Covid sufferers...you cant tell the difference
It's a breathtaking loneliness being in this nightmare.
Sometimes I’m wondering if they are trying to merge the two like using benzodiazepines damage and covid damage too cover up vaccines injury as well as benzodiazepines injury don’t trust big pharma
That's interesting about the long Covid symptoms being indistinguishable from WD. Best wishes in your recovery.
@@luthientinuviel9942 it’s interesting because I believe they’re both one in the same. It’s basically a process of Nuro inflammation and lack of energy production on the cellular level.
I've joined complete discontinuation from lorazepam after 25 years. 4 mg a day. Now I've cognitive foctions completely impaired. Nobody ever told me anything. I hope to take back my memory and intelligence
Me too
I'm feeling bitter listening to this but I hope it helps someone. My doctor wouldn't listen to anything or read anything. Why would he? Denial is so much easier.
you mean profit.
Dr's suck at compassion for others
My Dr was addicted to Xanax himself...so go figure.
The primary reason they deny it is they are trying to avoid lawsuits.
Thank you Cristy and D for all this great information you presented in this forum today.
Really enjoyed this. 24 years on. 6-month taper. And 4 years post. Still deal with a few very irritating SXS. But I am happy I left these behind. I think that a low carb diet can help so much. Also forgive your prescriber or dealer.
Joshua how r u now my frd
@@sangeetalambh6389 Still deal with a few very irritating SXS.
@@Josh_James76 my frd did u feel dp dr please ans I mm 441 days sober now
Mainly dealt with that the first year or so.
Hi. How many mgs a day
Thankyou for your work guys, Im at the "acceptance" phase myself. I will reach out to you and others and try to contribute my efforts to help you where I can.
I got off of the Diazepam , Off the Benzo's , I still Use Hydrocodone . I am still suffering with Bind , But it's getting better . Walking Helps .
I feel this BIND is me, just not diagnosed with it. As an Epileptic they didn't know if my seizures were from withdrawals or Epilepsy 16 months, 2 Brain surgeries, 1 VNS - My brain, body, muscles were fried, I couldn't even walk.
I am going to be tapering. Doctors must be learning because she will have me on a 2 year taper. I am not worried. And I look to hope to the future. It is will be alright.
I’ve just started my tapering off Klonopin by 1mg. I’ve been on 6 milligrams a day for years. Started taking it in 2006. I’m so ready to be done but I know it takes time. Good luck to everyone else dealing with this issue. 🌞✌️
It will b alright.. clarity is a beautiful thing
I truly appreciate 🙏 this video!! I've been on klonopin for THIRTY YEARS now. What I REALLY WANT TO DO NOW is spread even more awareness. I have to! I'm so beyond angry at what this drug has taken from me. Taken from my life. I'm in complete shock that the majority of physicians and therapists I've seen over the years HAVE ABSOLUTELY NO IDEA HOW TO TAPER SOMEONE OFF. They don't even know much about benzos! I volunteered at a trauma hospital some years ago and met with the new CEO. I plan on writing him to discuss how I could go about spreading awareness to doctor's and nurses. I have no clue how to start but I just know that I have to and I will.
Don't give up on yourself. Believe.
@@afol4016most folks don't even recognize support and reply back these days. They write something for I dunno who and never respond. Lol
You could at least thank someone who wished good for you.
Be careful of folks who scare you into admitting yourself into a rehab. Don't do that. The Ashton Manual (Dr Heather Ashton) is enough. She passed away in 2019, if I ain't wrong with the year. You are strong and can do it. Cut down on smoking, alcohol and coffee. You'll be ok. Consider chamomile tea, valerian root.
Rehab can be risky, and the Ashton Manual is somewhat outdated. While it offers valuable information, its tapering approach is often too rapid and involves reductions that are too large. The substances you mentioned have not been proven effective in addressing benzodiazepine issues and are included in our list of medications and supplements that may cause setbacks. You can view the list here: www.benzoinfo.com/medications-and-supplements/
There's nothing worse than being so tense that you can't sleep properly..to be walking g around I an exhausted state, on top of having medical issues, I knew in my heart, there had to be a different way..the edibles helped me out GREATLY, but being a lifelong functioning addict, I was never one to exercise until I joined a gym 9 years ago..you push yourself and you sleep better. It's as simple as that. One word. EXCERCISE.
My goal now is to taper off the very necessary prescriptions that I do allow into my system, and focus primarily on Meditation. For a person like me, the brain damage from the alcohol showed up years later, but you CAN healmyour brain! I'm convinced of it! I'm actually doing it, and every single day, I'm mindful of several factors, so that I don't ruin my own day by over thinking..
I’m deeply thankful to my older friends who kindly warned me to stay the F*** away from Benzo’s back in the early 1990’s They knew, on a cellular level, how dangerous and deadly these drugs are.
I was having these symptoms before being prescribed benzo use.
GAD. Taking .25mg up to 3 times a day as needed, sometimes none at all. Relief is short lived and now on psychiatrist prescribed Valium. Anxiety sucks. It's now the game of which came first, the chicken or the egg. Definitely could use help, but I don't know where to even begin.
Nobody seems to get it. Getting tired of the "Suck it up, buttercup" responses.
Get off the Valium. Now
This is so informative. Inspite of having so much documented proofs why are Doctors still prescribing it? They ruined lives and families forever
Money. Big pharma loves money.
Doctors either don’t know or don’t care. They treat everything with a prescription and move on to the next patient. You get 15 minutes and you’re gone.
It's called GREED...kick backs etc Healthcare is not like it was when I was a kid, raised by a nurse in the 70s-80's. She truly cared, and wasn't pushed to prescribe crap by the drug reps.
Big pharma rules everything now and why would they take these big money makers away? It's just so dispicable!
I think these drugs should be illegalized. They are just as dangerous as street drugs.
It's SICKENING. LITERALLY. THEY DESTROY YOU WITH THE STROKE OF A PEN.
Ty for all you do ❤ your saving so many lives ....
DE Foster has a very warm voice. I'm so young at 25.
Ppl say we heal. What heals? How do we heal if you lose vision? What do you wake up one day and automatically be able to see? Do you wake up after years of brain pressure and damage and pulsating and automatically not have it anymore? Do you wake up and not have balance issues anymore?
I haven't healed. I been clean for 3 years. Still damaged.
@@CBT5777 so where you prescribed by a doctor taking it under a doctor’s care or where you abusing? How are you damaged?
@@Carolina_girl86 Yes, yes and all of the above. I have most of the symptoms everyone else has. It's hard not to abuse the drug once it gets its hooks in you. Doctor cut me off 9 years in and I had to go to the street for an additional 5 yrs.
@@CBT5777 well, none of my symptoms seem to match other ppl’s and I was prescribed this by a doctor for 12 years and it suddenly stopped working and I had adverse reactions to the klonopin every single day and it was driving me out of my mind and I begged to be off not knowing being off could damage my brain and my vision.
I respect you all a ton a TON....BUT there are 1.2 million Drs in USA, GOD BLESS you trying to educate
I v. Been on 2mg 3aday for 28yrs xanax in 2012 I ran out of mine I had seizures I went into acoma 2months paralyzed blind for 2months.in the hospital my legs were zapping like electrical zaps. I have people praying I will get off them .I cant be having withdrawls for many yrs .I need a miracle or I will die .I'm so scared
I too had been on xanax for over twenty years. One mg every 4 to 6 hours. In the spring of 2021 I was taken off cold turkey. I had Grand Mal seizures. I still suffer from the electrical zaps in my legs and arms, my breathing is labored, my oxygen level is lower, my resting heart rate has doubled. I have constant diarrhea, frequent nausea and body aches. Vertigo. My electrolytes, especially potassium and mg are frequently out of balance. My entire body feels as though it is humming or thrumming like a guitar string or a tuning fork. I have constant anxiety with the physical symptoms of profuse sweating and shaking. My parathyroid hormone, PTH now runs high. I'm told by my Dr's that my symptoms are nonsense. I'm often shuffled off to various specialists.
@@Ann-ll9ox oh dear lord ! I'm so sorry to hear you are still having all those withdrawal symptoms. It just blows my mind how these pharmaceutical companies dont come our with something to help with withdrawls. I am so terrified it's like my life depends on my doctor .hea 70 and I'm so scared if he retires ......dear God help us !!!!
Consult a brain specialist for magnetic brain stimulation. Detox with ginger tumeric tea. So sorry.
@@Annapurna818 oh ok I never heard about that .I will look into that thanks
Try implementing a ketogenic diet and instantiating it for 6 months before beginning a taper. When you are keto adapted and in ketosis your cns naturally creates more GABA and removes glutamate from the synaptic cleft more quickly.
RIP Dr Christy Huff😢😢
How did she die
R.i.p. dr. Christy
Ive been treating protracted withdrawal over 3 years now with the last 6 months showing the best improvement . My most disabling symptom was -extreme- cognitive impairment, i couldnt form sentences or focus for even 2 seconds. Its a multi faceted and complex approach, healing the gut, eating well/restrictive, and taking neuroprotective nootropics that also promote neurogenesis. Lithium orotate is one. Im now healing my nervous system, my brain still isnt back to optimal wellnedd but that has only improved noticeably/the most on the last 2 months since new supplements. I feel hopeful ill get there. I was suicidal and so empty and devoid of serotonin , dopamine, and gaba i survived from sheer willpower. Finally getting somewhere and am working 25-30 hours now (i lost my job, relationships, sense of self sanity etc i thought i developed an autoimmune condition my fatigue and brainfog were so severe), being more social etc. I wasnt going to accept that my life was over.l and im finally getting it back.
Great information. Love the fact based survey. My concern is that the professionals conducting, evaluation and presenting the survey are patients themselves. This might cause bias. ( This perceived bias might discredit the surveys by non- patients medical proffesionals.) Thank you for your help!
Thank you so much for posting this
Absolutely gorgeous 💗
I had no one but my self during my withdrawal my family didn’t understand nor anyone I talked to it’s crazy
Unfortunately, this makes it harder.
I will spend next week looking for a doctor who is willing to help me taper.
Some people developed histamine problems coming off these kind of drugs. I wish it was mentioned
interesting - is there somewhere I can get more info on this?
@@scoobydadog246 I am one of those people. Histamine intolerance issues/multiple sensitivities since developing tolerance and then tapering Klonopin. Facebook groups are a HUGE help for managing Histamine Intolerance. Carnivore WOE (way of eating) has helped me the absolute most, by eliminating so many of the dietary triggers.
One of the doctors mentioned going through POTS during withdrawal. Histamine intolerance is often comorbid with POTS.
Explain exactly what that means, please.
Thanks. I suffer from BIND and perimenopause. 4 years hell now. Will it ever end?? I cant walk ....
I can get horrible bouts of akathesia at night when I try to relax
Great podcast. Very informative. Thank you!
I have a non-verbal autistic son (24 yrs old) who was on and off of multiple benzodiazepines for a decade. Psych and Neurological doctors prescribed. Recently off for first time. Because he is non-verbal have no idea how injured he is. Benzo belly seems to be one injury. Maybe seizures that were diagnosed as Epilepsy.
Looking for help to figure it out.
Please Please look into the Ketogenic diet. It helps the cns create more GABA, this is how the diet stops seizures and also how it will treat or even reverse BIND symptoms.
6 years off. In a setback now from antibiotics. Destroyed my life. Such a long time
How long were you on the meds and did you taper? Is the setback as bad as early withdrawals?
@@fittyleben7571 hi, i took them on and off from aged 16 to 24.
Then at 25 I got a presceiption for xanax. Took it for 2 years. Then i tapered for another 2 years from moving to xanax to valium.
I finished my taper on the 22nd nov 2017.
It was hell. I have had windows dont get me wrong. Around year 3 had some good months.
Infact i was doing not too bad. But i was never 100% ever since stopping them. I seemed to become allergic to eveeything. Especialy foods and scents. Really odd.
But when I took PEPCID and antibiotic ear drops i was thrown back into ACUTE. And yes it was much worse from I came off my taper. It was actual hell. Akthesia chemical fear. Adrenaline rushes. pots so bad I couldnt stand up. That was 4 months ago. Now i am just in a terrible baseline. Havent left the house since my setback. Im nearly 6 years off.. It owes me years of my life. Horrid. Never been the same since.
Take this as a warning. Be very wary of antibiotics even if you think you are healed. Take them if you seriously need them. . And also stay away from PEPCID. (Works on gaba).
I had covid and it didnt throw me into a setback whatsoever. The antibiotics (zpack only) did.
I only too benzodiazepines for 9 days and I have a few side effects from taking it. Definitely severe anxiety and chemical terror. That was last sep. i just took antibiotics and the anxiety, intrusive thoughts and panic attacks have returned. Like the next day after taking the antibiotics I felt like I was losing my mind.
@@djdanzycan you explain to me if it is no trouble why antibiotics effects this? I was on antibiotics and got so sick had a major reaction and was never allergic before and nobody would listen to me. Now I am reading what you wrote and it’s really validated how bad I was. I just don’t understand all this stuff as I’m trying to learn. My brain is zapping everyday and feels like it’s shutting down and it’s taking my life and joys away. I can fix anything but this is like I’m losing my brain. Thank you
@@GigiQ597 how long have you been off benzos?
There is a term called "setbacks".
Its a return of withdrawal after a period of healing induced by drugs like antibiotics and antihistamines, street drugs and stress overload. They are unsure why this can happen but its definatley real. I could tolerate any drug but now cannot. Im 7years off benzos.
Setbacks generally last from 6 months to 24months again.
Its best to let your nervous system heal. Take no drugs. Take antibiotics unless its life or death. And especially stay away from fluroquinolone family of antibiotics. Only take the ZPACK family if you have to. (Like pencillin) but be warned. Benzo withdrawal can come back.
Same with any type of alcohol. Very dangerous. I know people 11 years off benzos who are in extreme setbacks from drinking alcohol.
I need legal help on this topic. Any suggestions?
Get ready for disappointment. This is big pharma you're talking about. $
Stop The Smiles, please, on the descriptions of your videos! Who would smile when describing a drug(s) that Destroyed your life? Just stop it. I, for one, find it disturbing...we are lucky to be alive after this. Truly.
Agree
I Need Help! Has anyone had any relief using SSRI's? Celexa, Lexapro, Prozac, etc...? This Is A Non Ending Nightmare! Doctors don't understand!!!
Have you tried Gabupetin's & or Baclofen? Try them
Please DO NOT START ANY OTHER DRUGS. The ONLY thing that is going to help is TIME.
What hve you done, to help yourself? Please try Baclofen & or Gabupetin
Have taking paxil for 20 years and the symptoms i have are the same as the benzo withdrawel. My father took benzodiazepines before my conception and i worry this also had an effect on me.
@Esoteric Fitness try them ??? That's the problem you keep throwing shit against the wall and hope it sticks MEDS DO NOT WORK FOR 80% OF PEOPLE
I don't understand... People shouldn't be taking these longer than a week or two.
If you're on these years then expect things to go sideways.
Fixed it: People shouldn't be prescribed these longer than a week or two.
My twin sister is a victim of long term Benzo use, never should have been prescribed to her, never should have been refilled thousands of times. She has permanent brain injury and severe insomnia now. All she can do is sit in her recliner. It’s heartbreaking.
So all these channels just discuss what xyz drugs do to people but no one is doing anything about it. Dr's and prescribers need to be in PRISON
Don’t forget they are asking for donations
Would that I could give a million thumbs up. They need to be in prison.I stay the fukk away from drs. Not just psychiatrists.
@@mardishores4016 same here, will never visit a physician again. And yes, they need to be in prison, so many lives destroyed because or their prescriptions
@@yes55504 Thank you. Smug fukks. That's what they are.
@@mardishores4016 yes, full of ego!
Thank you for this great information. My question is do benzo side effects change over time? I’ve been on Xanax for over a year. Initially it would help calm me down but now it feels like the opposite. I get very anxious, I get air hunger, tachycardic, and just this increase sense of unease. These are all symptoms as soon as I take Xanax. What’s going on??
Sounds like you’re in tolerance withdrawal. Meaning the dose you’re on is no longer working.
You hit a tolerance and your body is going thru withdrawal!
Need to add one to the physical symptoms. Blood sugar issues! I know a TON of people, myself included, who have had horrible times with stabilizing their blood sugar. Mine spikes with the smallest amt of food some days, and it drops quickly and gives me extreme weakness and shakiness. So many of us have to eat every 1-2 hours or so in order to avoid these awful symptoms. Mine comes in waves--sometimes it's fine and then suddenly I have to eat keto for days. Idk when or even if it will ever improve. Wish there was more awareness about this.
Sounds like you have insulin or pancreatic issues not benzo issues.
Also, some off, are way worse than on the drugs. How do you know when to stay on vs. get off? Some get worse and worse the longer off... why would that be?
It's addictive poison that breaks down every part of your body eventually... People that are in withdrawal because the poison is getting out of their system and the body/mind are trying to repair themselves hence withdrawal symptoms in which you would call.. way worse. Get off this shi*. It's a slow killer... Also, there are variables such as what kind of benzo and how much your taking as well as the length of time. Although everyone is different, most suffer or symptoms return due to the injury that occurs during use. After, it causes injury where there are things people can't eat or drink or do they previously could and therefore can trigger withdrawal symptoms all over again. The question is, what are the triggers? Like, a certain protein in a breakfast bar, an antibiotic, certain additives etc... Bottom line, get off .. the sooner,the better. Hope this made sense to you... I'm no expert, but I've done my homework and am currently inside the hurricane of withdrawal...
That is an incredibility important question. Did you ever get answers to this from any organisation. I’m off one benzo, much lower dose of a longer acting one. I feel reasonably okay, but cognition is impaired a bit. Esp. S T memory. Do I go the last bit or stay on. I think many aspects of ReCode for cognitive decline should start early on to help healing match rate of tapering.
Don't forget drooling. Horrific. THEY ALL KNEW. FOR 65YEARS THEY KNEW. SUE THEM ALL..
Thanks
God work 🙏🏽
Looking for a place that will do the detox responsibly.
Unfortunately this doesn't exist.
@@BzInfoCoalition I got off in 23 days at Brookside rehab facility, Portland OR. I was on Ativan for 14 years. 3 years later I'm still damaged but I'm alive to tell the tale. They do exist. They gave me Blood pressure meds, Gabapentin and supplements to cold turkey me off. I was knocked out the first 4 days. Pure hell!
@@BzInfoCoalition Brookside Portland OR. They got me off after 14 years dependance in 23 days.
I would like to know who is doing research on this now? (D alluded to research) Do most people who experience serious problems have autoimmune disease? Some have NO support.. is there someway to get a help line going at the least? Is gabapentin/lyrica considered better than benzos if it helps functionality.
Gabapentin and Lyrica are both horrible too. Avoid them if you can.
Do not take either of those! They can cause dependency too, and rekindling of withdrawal symptoms.
Of all the psychiatric medicines i took, the benzodiazepines where my favorite. Withdrawal from antidepressants or anti-psychotics is really the issue for me. Benzodiazepines where the easiest med to discontinue by comparison. I am skeptical that benzodiazepines is the issue. Looks to me like it's a convenient way for psychiatry to bad mourh a medication they want to abolish while distracting everyone from focusing on more serious drugs.
Phyciatrists aren't trying to abolish it. It's one of the most prescribed pshyc meds there are .
Just because it was easy for you to come off of benzos doesn't mean that it's easy for everyone else. I've been off of Klonopin for 8 years now and I'm still suffering with debilitating neurological symptoms.
Are there advocates, who would come to with you to your Dr's appointment, to support you, as you approach your Dr regarding reducing slowly from high dosssage of Lorazapam...4 mg x twice/day. I am now 65 years old, and was prescribed Lorazapam when I was 23 or 24 years old. I'm very scared, I don't want to die, I would like to reduce to 2mg 2 times/day. I hope I will hear back from you, most grateful. Thank you for being there, and all the great work you are doing. For me, I think I need to use the reducing with water and weighing, as the person who was on the Lisa Ling program regarding Bezodiazapines. Cheers!
I had no idea why i was so confused to the point where i was heloless. I was cut off by a dr. 2 and a half years ago. The confusion and inability to think straight is finally improving but my nervous system is still on edge. How awful. I had no problem staying on them i definitely. But was cut off without a taper
What happens if I continue to take 1mg of lorazepam per day? Will I have to keep updating the mg's to stay stable. I feel fine right now.
You probably already built up a tolerance and not aware of it. Over time symptoms will start to get worse and worse, cognitive function will decline, more and more symptoms will manifest. You won’t be able to think clearly but will go from Dr. To Dr. trying to figure out what is wrong with you! A good psychiatrist will take you off benzos, a bad one will increase your dosage!
They never tell you they are only meant for short term use. 2-4 weeks-you can reach tolerance and become physically dependent in less than 4 weeks. All depends on your genetic makeup etc.
You won’t get any positive results from tests and your quality of life will be altered, possibly permanently!
They will destroy your life as the Dr. said, without a doubt!
I’m speaking from experience!
Btw you will not see any of this soul crushing destruction coming. You will wake up one day possibly a decade or two later and ask yourself HTH did I get here?
This is your chance to get off this poison while you are still on a low dosage before you become disabled like myself!
So glad I got my benzo scare early on. Started taking them as a teenager to drown out my problems till I woke up with a hospital band on my wrist. Had takin 3 bars drank 4 12% abv beers and smoked a shitload of bud. Benzos are straight up evil from what they’ll make seem okay to do to the crazy withdrawal. I remember being ten and my cousin couldn’t get her prescription filled for Xanax and had a crazy seizure the day she stopped having it. She had downed a handful of tramadol trying to calm the withdrawal probably beforehand but it was the benzos that caused the seizure. Now I just have zero desire for them they cause you to become a different person they’re on the level of heroine and meth. I’d say coke but honestly those three are even worse
The doctors are doing what they know to do. They were not taught this.
where can i get a copy of this?
RIP Chrissy.
D im protracted 35 months is it my fault eve4yone in my house is mad at me im always scared. I smoke 5 cigarettes a day and feel tge resction you think thats why its still bad. I feel hopeless
I blamed a lot of things along the way. I stopped things and brought them back in thinking it was the reason. I blamed THC/cannabis at one point. Then I realized it was one of the only things keeping me on this planet. I stopped nicotine for months and also brought that back. These things might aggravate and add to the magnitudes of your symptoms but are unlikely the cause. Your sleep will improve if you can do without. I’d also suggest a switch to vaping to rule out the 200 other chemicals in those cancer sticks. You’ll likely have an additive withdrawal. Getting to straight nicotine is a significant step.
Hello! I have been reading the coalition's materials. Does anyone know if Dr. Christy Huff's POTS ever went away? I got POTS during my benzo withdrawal/long covid and would like to know if there is any hope for my POTS going away. Thank you!
I had POTS during my withdrawal too, and it did get better over time. I hope it does for you too. Best wishes
pots? Can you clarify? Thanks
Should Benzo’s follow the path of Quaaludes in the USA?
Christy how long did you take the Xanax? Just 3 weeks at 0.25?
3 weeks of xanex at .25 ? I took the same for a couple months stopped cold Turkey with zero symptoms as it was such a low dose once a day sometimes I didn’t even take it every day.
Until you all get before congress, we are peeing in the wind...
How soon on benzodiazepines can you develop BIND?
This will vary greatly from person to person. Can be very fast, a few days, to years.
@@BzInfoCoalition Thank you for answering my questionI I am almost Benzo free after 25 years of Benzo doctor prescribed clonazepam! I have failing health for a very long time. Is there a difference between protracted withdrawal and bind?
@@michellevokey9327BIND can occur when still in the med and/or once off. Protracted is symptoms once off for over 18months. BIND is a catch all
My breathing literally gave out on me completely today!! Not exaggerating!! Im just not breathing properly n extreme air hunger so my body is telling me I'm not breathing At hospital!! I kindled so many times n drank after so my wd symptoms so much worse. I feel like a fish out of water all day today . N my nose is full of pressure n like airy concrete so breathing into my nose is uncomfortable n breathing into back of throat into a brick. Then the pressure n brick closing off my air way in nostrils!! Worst symptom for me!!
is it that people have "healed" or that there is acceptance of permanent damage?
Yeah im wondering same thing? I feel like it’s permanent but people just say you heal so they won’t off themselves.
I'm not a doctor but I have studied this for years. And from what I have seen, people do recover. How much and for how long have you been taking a benzo for?
I think both cases are true. I was a 10 year heroin and benzo addict for about the last 4. I went through 2 years of windows and despair before trying the Ketogenic diet to help heal the brain trauma. Let me tell you it absolutely worked. I did heal and I also think I know why. Ketosis causes the CNS to create and express more GABA this is how the diet itself treats seizures. Keto also causes the brain to remove glutamate from the synaptic cleft and convert it to glycine and GABA my insomnia is gone suicidal ideation gone tremors gone. Everything aside from some very mild muscle twitching at night just before sleep is gone. And when I say gone I mean gone for years. I would highly recommend this approach and I'm blown away that it's not discussed more.
My bro withdrawaled for 6 months straight . An is completely fine now. Recovery Is more then possible its enebitable for most people. The brain an nervous system is designed to repair itself. It just takes time.
So, if u take benzos everyday for less than 2 wks, u won't get protracted withdrawals?
Anybody have urination problems coming off this drug?
Name the dam doctor who Rx you all.Why we don't say who Rx is nuts ... thank you for all you do...ya got more patience then me
D I would love to he on your podcast
It sounds like someone is chocking you while you are speaking
Been on xanax for40 yrs need help to tapering
So what is BIND?
What about slow taper with gabapentin and betablockers to mitigate withdrawal?
How can I contact Jennifer Chouinard? I went through benzo withdrawal in 1995 and have had hot flashes and night sweats every day and every night since then. 🥵🤬🥶🤯
💔💔💔💔💔💔🙏🙏🙏🙏💔💔💔💔💔💔
But that’s how I felt before benzodiazepines... every day that’s how I felt.
Wonder how much you all made off Christy huff death still sickens me just knowing this benzos coalition took her death and is trying to make money off it there have been many before her
How did she die??
Hello... I want to know if there is a support group for quitting benzodiazepines.@@karliann1
a three year taper from .25mg!? I find that hard to believe. That sounds nuts. She must be really really sensitive to this medication
Not nuts, we are all unique as are our systems. Do what works for every individual. ❤️
You fail to appreciate the potency of Xanax. The .25mg of X is equal to 5 (five) mg of Valium. The safe discontinuation dose of V is .5mg or lower. No matter who you are, it takes lots of time to safely and tolerably taper that amount.
@@drafted1965 I am also surprised that taking 0.25 mg xanax at night means only once in a day could take this much time to taper. If it is equivalent to 5 mg of valium, then also according to the Ashton manual, it will take 1 mg cut every one or two weeks. But every individual reacts differently and can be more sensitive
I was on a "low dose" too. Still had two years of severe symptoms, and still have residual effects.
@@luthientinuviel9942 hi... you were on xanax or some long acting benzo like valium? I was on xanax 0.5 mg only once at night, as I started tapering it, I got horrible withdrawal symptoms which are more severe than my original problem. Now down to 0.25 mg , but afraid to taper more and stop. Anxiety with a feeling of fear is worst and intolerable. Any irrational thought makes me so scared and I start shaking with terror. I don't know whether this unbearable feeling will go away with time. As you finished your taper and no more med. In your system, do you feel better? Please help, I have lost my confidence that I will ever be normal and heal.
Zarar sorry 8 years
Nazli how r u now my frd
@@sangeetalambh6389 💜
I wonder if she was pretending the whole time about feeling better
If you listen, Christy said herself that she was still getting hit w/significant symptoms 8 months before she died. I’ve had friends bring akathisia back with antibiotics or even over exertion. Hard to say. I suspect she had some anhedonia.
Those sound like symptoms prior to taking a Presland benzodiazepines. I am going on a benzo’s since over 25 years yes under Dr. Care supervision… Making excuses for your behaviour and blaming the drug. Of course they were draw symptoms were her ranges. I’m still experiencing it because I’m still weaning off the medication. I was on extremely high dose of 210 to 12 mg per day for 10 years not cool but yes my doctors did not know Tish they withdraw symptoms and connected it. I don’t know if they are aware of the situation because of the withdrawal. Of course, they wanted me off, but it was my decision.
Wish ya spent less time on what ya called it to focusing on the message / warning on NOT to get involved in these drugs
Sorry i cant listen to a woman that has died from these drugs
I've know folk who struggled with benos. After the 1st two young Cornell freshman jumped to their deaths from a suspension bridge into a deep gorge I felt anger. I talked with them both 2 days before their jumps. They were crying and felt hopeless...for God's sake I would have given them my Xanax. Why is it your type demonize Rx drugs which do help, yet shovel Rx Geodon & Latuda?
I've been on Xanax for30 years, no adverse effects...so?
You know people who struggled with benzos buy would have gave the two struggling students one of your Xanax. Man if I was a cop or of authority I would find you and have you arrested immediately..
It doesn't affect everyone the same... I suffered for almost 3 years of nonstop HELL ON EARTH after about 2 weeks of Ativan use.
Shes dead on only .25 mg of Xanax…..no hope
Everyone is different. I think your brain heals itself. Some people become hypochondriacs from reading this stuff .Not everyone has long term symptoms. I have gotten off way harder drugs than benzos.I don't feel brain damaged ???
They're not hypochondriacs; there’s no need to insult other patients just because you didn’t experience it and don’t understand it. Patients who haven’t experienced harm shouldn’t take credit for it-it’s pure luck.
…also realize it can change. Your first times on & off a medication (or other substance) can be very different from your experience later on. I came on & off pain medication and each time the symptoms lasted longer and the damage was more significant. The same thing happened with benzodiazepines. Call it kindling, positive feedback loops, call it what you will, but it can affect the amount of damage you receive while/after stopping. “Yes” neurological damage. There are also tardive injuries that erupt months, even 2 years after stopping many medications (or substances). That stuff doesn’t always happen the first time. Cumulative use can however increase your chances of developing tardive issues like tardive akathisia or tardive dystonia. The more you know. 🌈
I think the doctor’s psychosis pre-dates her benzodiazepine use. Doctor: your agenda is showing.