Aaah pregnancies ! A minefield of emotions. We tried but never went the IVF route. Decided to leave it to the universe. Never did manage. There are so many children in the world needing love and a home we felt that was a good thing to do. Adopted 2. They turned out lovely people and one has given me two grandchildren. My dear friend had two children both of whom married and both decided with their spouses they were not going to have children at all. So friend will never be a grandmother and she is fine with that. What will be .......etc. Don't stress. ❤❤
I remember when Hannah Witton was considering rectum removal surgery, her doctors told her to "complete her family" as the surgery can cause infertility and "they don't know why". I've always found that really interesting. Why don't they know?!
@@wanya_telbornThe rectum, although near the vagina, still isn't part of the uterus. The uterus is where pregnancy happens. Scar tissue can happen but it would not 100% eliminate fertility.
It's because the removal of the rectum can cause scar tissue that can sometimes cause adhesive bands around the fallopian tubes, decreasing fertility. Usually it doesn't eliminate it though, and if one fallopian tube gets obstructed both ovaries can actually ovulate into one tube.
Definitely keep pushing to find answers. My cousin tried for THREE YEARS to get pregnant and you know what was stopping it? An ovarian cyst. That’s it. As soon as she recovered from the cyst removal she got pregnant. Sending you well wishes that a good east solution is gonna happen for you!
My former husband came with two kids and one in the oven that did not save a failing marriage. I had been told I could not have children so I assumed that with my history, and after the doctor told me to forget about, it I just fell for the kids as much as the man. They were precious! I loved them! Then I stopped taking the pills that helped my insides mature and surprise! I got pregnant instantly. All this is to say I felt no difference between the three little ones I got to love every other weekend and every other holiday and the ones I carried to term. Once you change a diaper and a kid throws up on you, they are yours. Once the kid rus to you with a boo boo, they are yours. Once they lie and say the other kid did, it they are yours. Once you have had a kid come home from school with lice they are UGH yours for real. And when they marry they are still yours. All of them. The part time ones and the ones you can't get away from when they get obnoxious and adolescent. They are yours. Now they are in theirv50s and 60s and they are still all mine and so I am telling you that the nausea of pregnancy. The heartburn, losing control of my bladder and labor and delivery were not significant when it comes to mothering. You love your dogs. They get sick once in a while. You take them to the vet. They are yours and you love them. Multiply that by 100 and that is how you will feel about any baby or child that you live with and are responsible for. You just give away your heart and life is never the same again. It's exhausting. It's fun, painful. unceasing and so damned worth it! However you come to mothering you will dither, worry, laugh, cry and wonder on occasion why you let yourself in for the mess and noise. Silence will be a luxury. But you can't give them away. You don't want to let them go. You are a mother and you will do well. You are just made for it, Maggie. But you are going to need some help. You get tired a bit more easily than some people. So plan on some help. You will need it. I had IBS and boy did I need help plenty of times!
"My former husband came with two kids and one in the oven that did not save a failing marriage." - So he left his pregnant wife and now he has left you? All those fartherless children...
I had a tipped uterus. Didn’t have other medical issues except suspected endometriosis. Doctor warned me not to wait to get pregnant. I was widowed so didn’t want to do it alone. Got remarried years later and got pregnant immediately. You just never know. Good luck to Maggie.❤️
Don’t apologize so much! Share what you want to share and how you want to share it! We are here for the ride. Thinking of y’all as you embark on this next step of the journey with all the tests. Hugs!
Maggie, you are so brave to share your fears and concerns! I struggled with infertility, and I know that can be stressful. You and Zach are wonderful people, and you WILL find a way to have a family! Also, this is off topic, but I just want to mention that your hair looks so good! That is a beautiful haircut. 💖🌸🌼🌺
I’m so excited for you! I hope everything works out and you can get pregnant and have a successful pregnancy. I’m excited for this content. I’m sure we’re all looking forward to follow this journey.
My heart goes out to you, I had none of these issues, I realize how lucky I am. I just want you to know I find these talks you have very interesting, please talk, get it out, I'm hoping for the best because you guys would make GREAT parents!!!
Hi Maggie, so many thanks for sharing your thought sand doubts with us here. I hope you realize that your openness and willingness to share what is going on with you with us is so valuable. I ended up with an iliastomy after my surgeon found caner in my colon after removing my reproductive organs. I'm 70 and I had never hear of this. I was in shock. Then I found your channel and started to watch your talks and I was so inspired by you. My iliostomy was a temporary one, and now I am healing and waiting for my large intestine to start doing its job, but I have to tell you that the transformaion that I went through was enlightening. This was because I really came to undertand appreciate and love what was happening to me, and you played a huge role with that my dear, so thank you. You are an angel and continue with the fine work that you are doing. I wish you the best with all my heart and know that my thoughts are always with you. Lukie
I have PCOS and have 2 boys. It really is a roll of the dice. Raw Beauty Kristi has PCOS, went through all the infertility treatments, got comfortable with not having children, and then found herself pregnant. Mary Frey and her husband decided to adopt, and now they're also fostering an infant. I know you're having some really challenging feelings about all this, but I also know that you two are going to make fabulous parents however the child/ren come into your lives. You have a skill set that not all of us has, and that's how to advocate and deal with whatever conned your way. You may have a disease, but the disease doesn't have you. ❤
It was so random in how long it took us to conceive each baby. Our 4th it took a whole 3 years actively trying to get pregnant, No reason; nothing wrong. All just wasn't connecting each month even though we were actively trying, testing ovulation, and I have always had regular cycles. Then just two months after having him, we conceived twins naturally. Conception is so random. My good friend went through 15 years actively trying, including two surgeries and 3 IVF attempts to no avail. Then ended up adopting and the week after they brought home their adopted newborn baby, they found out they were naturally pregnant. They now have 2 girls 7 months apart in age.
My great aunt had the same after having my uncle). She tried getting pregnant then nothing was happening then after my aunt was adopted she ended up pregnant with my blood aunt.
No rambling at all, everything made perfect sense. All the testing including genetics is valid and very astute of your doctors to get it all done before embarking on the future. None of us have a 100% perfect genetics. People have spoke about that in the past and those quests never ended well. While fertility testing and treatments are not in my personal path as of this date, I would be very interested to hear whatever Maggie and Zak feel comfortable sharing. I have learned so much from this channel. Also I am getting all my delayed medical tests brought up to date thanks to Maggie's example.
I just want to send love and hugs to both you and Zack. I had gone though the infertility journey as well. After many more years of trying we gave up. Several years later I got pregnant and had a healthy baby girl. No doctor could explain that!LOL Thank you for bring us all on your journey.
My periods are the same so I think that might just be normal but I've had kids so that shouldn't be a concern. I'm glad that your taking the plunge because getting this done now will be good for your future family decisions.
I didn't get pregnant until my ileostomy allowed me to get well enough, I've had Crohn's since around 13yo. I was told in school 1 in 3 couples have difficulty conceiving, regardless of other health conditions. Wishing you all the best. Happy to talk over PM ❤
Hi Maggie, I'd like to send you lots of encouragement! Both myself and my husband have had Crohn's and got our surgeries before starting a family. My doctor said it would be better to do it before proctocolectomy but it just felt impossible with the symptom impact I experienced. I've never regret that decision. I have had adhesions and went through two miscarriages on our journey but our children are healthy and happy, contrary to what other people said hearing about our family decisions. Many people with other health problems decide to have kids and it doesn't bother anyone. IBD is nowadays an in most cases manageable disease. Pregnancy with IBD can be harsh though, I had to go through some hurdles due to IBD and prior surgeries, but it's all manageable when you have great midwife, doctors and dietician on board with you! Keeping my fingers crossed for you guys and please reach out if you have any questions, I would love to support you!❤❤❤
I’m praying that you get answers. I’ve been down the infertility route many years ago and remember how frustrating it was. No matter how you achieve the family you want, the most important thing is that your baby will be loved. You and Zak will be amazing and loving parents. ❤
This is going to be an excellent resource for others who will be going through the same situation. You said there isn't much information out there - so here you are making it. Someone has to take the first step. I have enormous admiration for you and wish you the best.
Thank you so much for being so open and honest about all of this❤ My Fiancé and I are 30 & 28 and will being TTC soon so this is fun to watch! I am loving following along! 💓 Wishing you and Zak all the best in your TTC journey! Praying it’s nothing more than a blocked tube that can easily be fixed laparoscopically!!🙏😇
I’ve always been interested in my diagnosis of this. People always ask why we don’t have kids. I don’t want to risk my own life or the let down that I cannot get pregnant. Keep on posting about this and your journey please!! ❤️❤️
Wish you all the luck in the world🤞🤞🤞 I had adnoymyosis and had 4 pregnancies, the pain got way worse with age until I had to get a full hysterectomy. I had little to know pain until I was in my forties however my bladder was extremely painful, like a constant uti and I’ve heard that might have been one of the reasons 🤔😵💫 Xoxo
Hi Maggie, As someone who also has adenomyosis, I recall you saying in previous videos that your periods are super heavy the first 3 days along with cramps and clots is a major symptom of adenomyosis. So it sounds like you do have some symptoms. It seems that coupled with all the scar tissue IVF is the way to go. Glad you're pursuing it. Wishing you success on this fertility journey 🎉
It took me 7 years to get pregnant until I gained weight I weighed 88 lbs when I got married and my husband had a low sperm count it when up and weigh up to 100 now and got pregnant and couldn’t believe I finally got pregnant me and my husband was so happy I hope you have good luck
Girl you go ahead and talk about it. I’ve been there thru infertility with lupus and endometriosis then went thru early menopause. We adopted and wouldn’t change it for the world. Now our daughter is 37 and I now have a urostomy and you just have to flow with it. Is it a lot of ups and downs yes but I believe you can handle it with Zach by your side. Keeping you in my thoughts and prayers. 😊
Maggie, if you can have someone take you for the test, consider. If you can take something for discomfort before, consider. It should offer some details about your tubes and even ovaries. You might need a few days after...
I understand, you have so many things going on with your body. You don't know what to cross off the list of things to be concerned about. I hope for you, it's something pretty simple or a couple of things that aren't that bad, so then it can work out for you. 🎉❤🎉I appreciate your channel. You've taught me a lot about your illness. It has been very interesting.
You have every reason to have testing and get fertility help because it's right for you. I have had Crohn's since age seven. My first child I went and saw an ob to help prepare for trying and was put on low doses of meds to keep the Crohn's in check. Got pregnant in ten minutes. Second one....no luck for a year. At that point I saw ob and wasn't willing to do fertility meds...fear of multiples!...and after a year and kind of giving up I got pregnant. I believe from my story and many others that there are times in life we are more fertile than others. Having said that my second pregnancy sent the Crohn's crazy And i weighed 85 lbs at 5 mos along. He was only four and a half lbs but healthy and fine! I believe you too will get there and adoption is just as perfect as the other way!❤
Hi Maggie, What you are doing is so worth the effort. The more you learn the better patient you become. Knowledge is power to advocate for yourself. Gluten Sensitivity was only talked about a mere decade ago. My daughter was very sick from gluten when she was 9 and lost a lot of weight and ended up in the hospital. No diagnosis but strongly suggested Anorexia. That was a stab in the dark and wrong. When she was in college she started a gluten free diet and became well. She thought all people had stomach aches after eating!!! She is healthy now and she and her husband have 4 adorable children . My point is that medicine is advancing and it is so sad that you had to go through your early years without a diagnosis. I feel that you and Zack will be successful. A child of yours has no greater chance of inheriting your condition than an adopted child would , I think .... Love to hear how you are doing, Liz
First - best of luck on your journey!! Second - just a thought re: genetic component of Crohn’s and having kids… My mom has Crohn’s (and Graves, HT, and numerous allergies) as did one of her sisters - also one brother with UC and another brother who was very ill but never diagnosed. None of them were diagnosed until well into adulthood (due to lack of medical knowledge about the conditions). Both of my sisters have Crohn’s, and I don’t - but I have other serious auto-immune issues and my son appears to be on the same track. No one knew about these conditions at the times of conception (across 3+ generations - with what we know now, this likely went back at least to my great-grandmother). Add to that the ‘genetic lottery’… basically unless a severe condition is *guaranteed* to be passed on, it seems like a moot point. If experiencing pregnancy as a part of your journey to expanding your family is something you want to do and are physically able to, then go for it!! 😊 Also with that said - if you do conceive, in addition to Crohn’s, just keep an eye out for other AI-related issues, as AI can manifest in so many and varied ways, not just in the form of disease that a parent has. Thank you for sharing your journey so openly. 😊
I wish you both the best of luck with these tests!! ♥️ Whatever will be, will be..but honestly, you two would make some cute kiddos!! I’m rooting for you!
Maggie sending you alot of love! Youve been through souch and you would be an amazing mom! I also am going through infertility and its so stressful nd exhausting ive hadbtwo surgeries so far.
Maggie, I’ve written on your wall before. I am also an RN, worked critical care many years. I had complex fertility issues. God blessed me with one child and she is “perfect”.😂 But my comment is about the HSG. Surely your physician told you this. Many women have some sort of a little pop when they do the test and then the fallopian tubes are more patent... After that test, Clomid is one of the old standbys. I don’t know if it’s used anymore because my experience was years back. The test is painful. They do insert a catheter through your cervix, and clamp your cervix while they instill radio-opaque fluid… you are under fluoroscopy as the visualizing take images of the flow within your uterus and fallopian tubes. I can assure you the discomfort is brief. And you may have cramps for a while, but nothing you haven’t demonstrated the capacity to cope with! Down the line, they may wish to do several other tests, including hysteroscopy, uterine lining biopsy. Such a blessing, and praying for you, as you seek the Lord’s will on this! If you have any questions, don’t hesitate to reach out. I have been through the gamut. I have EDS and an ileostomy and and and and and you know how rare diseases go. You have one; you have much more than one in all likelihood.
I fully understand you on the well-meaning remarks by people saying things like "just give it time" & "stop stressing about it". If I had not proactively pursued medical intervention to get pregnant I never would have gotten pregnant EVER. We found out that my husband was shooting blanks so to speak and nobody is getting pregnant with zero sperm right?!!!! So we used a sperm donor and I have beautiful boy/girl twins. Perfection 💯
Good luck Maggie, hope you have your dream come true, I had the opposite problem fell pregnant very easily but miscarried 6 times but I did have 2 babies in the end, natural no ivf infact I was due to have a first meeting with the ivf unit after waiting over 2 years but had to cancel as I was pregnant and due to deliver the same week, never give up, ever. ❤
I had adenomyosis. I had painful monthly cycles ever since they began. I married at 18 & had children at ages 19 & 21. Then had to have a hysterectomy due to the severity of pain & how long I had the pain in a month. It was great to finally not be in pain. So…it is possible for you to get pregnant … so dot give up!
I did four and a half years of fertility treatment had everything up to getting IVF. But I was getting ready for more but out of the blue I got pregnant. So you never know don’t give up.
You and Zak are very wise to pursue this now, as you will have more time for any needed treatments. Also, if you can afford it (and your insurance may cover some of it), consider Chinese medicine (e.g., acupuncture and herbs) if you can find a practitioner who trained in China. Not as a cure, but as supplemental treatment.
Hello, and I fill as you do as one step at a time and see what the future holds for you both as it's important to maintain your health and stat of mind .as for me I was never diagnosed with chron's when you was young I was told it was all in my head so you hear you .but yes I have children and had them earlier than I should as I couldn't carry well but their just fine and all grown up now so please don't let it get to you!!! One day and one step at a time 😊😊😊Take care
sometimes, autoimmune diseases can cause endometrial hyperplasia. i have ms, and i had NEVER seen a positive pregnancy test until after having my uterine lining scraped twice. two pregnancies immediately after those procedures. i was found to have an overgrowth of the lining of my uterus. i think doctors should consider doing this if women can't conceive.
If you Foster to Adopt, it's financially much more feasible! 🌻 It averages approximately $2500 to Foster to Adopt than the ridiculous cost and wait times for standard adoption! 🤗
I didn't know what endometriosis was until 3,5 years ago after emergency surgery to remove a massive cyst and the ovaries it destroyed.. But had a hysterectomy almost 2y ago and the lab results of my uterus said Adenomyosis maybe a month later 😵💫 And had so much scar tissue from the first surgery that it had pulled my bladder up and my small intestine down.. Never had any symptoms of anything before and I'm almost 35. Not even the rearranging of organs 😅 Never wanna do it again when every surgery gets worse or complicated 0/10, would never recommend 😂❤
Hi Maggie, just thought I would share my experience having Crohn's disease and pregnancy. I have two kids and I had a lot of trouble carrying them because of Crohn's, as growing babies they take a lot of nutrients from you, my body was very depleted from vitamins and I had both kids premature. Also the doctors didn't tell me that I could have passed Crohn's disease to my kids, and yes they both have it, my youngest has it severe than my oldest, wishing you all the very best with your future plans.
I was having extremely painful periods. I had a hysterectomy and found out that the pathology showed I had adenomyosis throughout my uterus. It’s very unpleasant.
I don't know how likely it is but it is possible that the saline sonogram can unblock a blockage, from what I've been told. My disability is one that can be passed on genetically when one or both parents has it. It's also possible to randomly happen, neither of my parents did, but there was a cousin of mine that did. All that to say, I'm beyond having a child at this point but always wanted to. The main reasons for not really pursuing it were the way society looks at disability and I down right would NEVER put a child through what I went through medically or face in interactions with people.
I had pcos with over weight that I cannot handle myself. i am taking medications and try to push myself until I let everything go whatsoever to me. And I stop being sad, I left the medication to clear my head. i found out I am pregnant with 4 monghs skipping the menstruation.
I'm concerned about your scar with pregnancy. How much can your abdomen stretch? That really concerned me about you and Zac may have already discussed this already. I just hope your dreams come true and you can be happy Maggie again.
I actually had this examined while I went through pelvic floor therapy - we tested my abdominal wall strength and my PFT was surprised at how the muscles seemed to stay together and had strength. She also had me do scar massage to soften it a bit. Obviously it is something I will have to keep an eye on, but it didn't seem too concerning to her!
I had an ectopic pregnancy, the Dr. Said I had so much scar tissue on the remaining tube that he removed. He said I wouldn't be able to get pregnant. 4 years later I had my son. The Dr. Had me taking folic acid. I'm not sure it helped, but I had Jed.
Are to having a hysterosalpingogram? Everyone is different. I found it so painful i insisted on abandoning the procedure. Actually, my husband quietly made the doctor absndon it because he was ignoring me. I live with chronic pain and i could not take this. Had it done later under GA. Just some extra info, i know you believe in informed consent
It blows my mind the medical things doctors don't know about that I literally learned from just listening to people talk about themselves on the Internet...
In Australia and I few other countries they are trailing a new form of IVF where the person with the uterus only needs a few injections far less than regular IVF. This could be an option for you to research?
I hope you're gonna have kids whether you get pregrant or adopt. Just now that embryo adoption is also a thing in the USA. It could be something that you might consider down the road. There are a lot of legal stuff that goes into it, but I think it is worth looking into that. Good luck. ;)
Until Zach's tests come back, you can't rule that out for sure. Maybe his tests did come back though. I might have missed that! Yep healthy parents have children with illnesses all the time, so just because you have an illness or something wrong doesn't mean they will get it too! That definitely isn't a reason to not have children if you are able to care for them. I'm too sick to care for a child, so I don't think I'll be having a family. Good luck to you both.
A lot of women tend to get pregnant after the HSG test so that may happen to you. I've had an HSG and for me, it just felt like bad period cramps that lasted for a few seconds at a time. I hope it's not so bad for you as well!
Having a tipped uterous could be the problem too. I dont want to burst your bubble but being on humera is serious. Humera can cause allot of problems. What could it do to a fetus.
I wonder if they can put a saline implant in behind your uterus to keep it up right? It could be you aren't becoming pregnant because of your uterus tilting backwards and it maybe causing the fallopian tube to close off and not allow the egg to move forward.
God has the last word to everything I will be praying that the Lord Jesus will strengthen your body and whatever is not of God that he will heal your body in the name of Jesus Christ Amen.. I have paid that he will bless you with a bundle of joy without any complication God is good all the time 🙏🏼
Do you wish you had not been born? I don't it :0) if you had a child with IBD do you think they would wish not to have been born? I doubt it :0) Remember what Forrest said . Life is a box of chocolates
🙏🏼 having faith with the Lord he will provide your body and bless you with the child... You should have waited before you had your rectum and your colon removed.. so you could have had your family of 5
Having inflammation in the body would not have helped, and I felt horrible. I couldn't imagine healing from that surgery with children - it would have been so difficult.
Aaah pregnancies ! A minefield of emotions. We tried but never went the IVF route. Decided to leave it to the universe. Never did manage. There are so many children in the world needing love and a home we felt that was a good thing to do. Adopted 2. They turned out lovely people and one has given me two grandchildren. My dear friend had two children both of whom married and both decided with their spouses they were not going to have children at all. So friend will never be a grandmother and she is fine with that. What will be .......etc. Don't stress. ❤❤
I remember when Hannah Witton was considering rectum removal surgery, her doctors told her to "complete her family" as the surgery can cause infertility and "they don't know why". I've always found that really interesting. Why don't they know?!
@@wanya_telbornThe rectum, although near the vagina, still isn't part of the uterus. The uterus is where pregnancy happens. Scar tissue can happen but it would not 100% eliminate fertility.
It's because the removal of the rectum can cause scar tissue that can sometimes cause adhesive bands around the fallopian tubes, decreasing fertility. Usually it doesn't eliminate it though, and if one fallopian tube gets obstructed both ovaries can actually ovulate into one tube.
I remember that too! And look at baby Rowan thriving now! I really wonder what could be the reason. 🤔🤔🤔
@@valtoton2982 she didn't get the rectum removal surgery though
@@AccidentallyOnPurposethats not true😅 they are ob opposite sides of the uterus;) thats anatomically not possible.
Definitely keep pushing to find answers. My cousin tried for THREE YEARS to get pregnant and you know what was stopping it? An ovarian cyst. That’s it. As soon as she recovered from the cyst removal she got pregnant. Sending you well wishes that a good east solution is gonna happen for you!
My former husband came with two kids and one in the oven that did not save a failing marriage. I had been told I could not have children so I assumed that with my history, and after the doctor told me to forget about, it I just fell for the kids as much as the man. They were precious! I loved them! Then I stopped taking the pills that helped my insides mature and surprise! I got pregnant instantly. All this is to say I felt no difference between the three little ones I got to love every other weekend and every other holiday and the ones I carried to term. Once you change a diaper and a kid throws up on you, they are yours. Once the kid rus to you with a boo boo, they are yours. Once they lie and say the other kid did, it they are yours. Once you have had a kid come home from school with lice they are UGH yours for real. And when they marry they are still yours. All of them. The part time ones and the ones you can't get away from when they get obnoxious and adolescent. They are yours. Now they are in theirv50s and 60s and they are still all mine and so I am telling you that the nausea of pregnancy. The heartburn, losing control of my bladder and labor and delivery were not significant when it comes to mothering.
You love your dogs. They get sick once in a while. You take them to the vet. They are yours and you love them. Multiply that by 100 and that is how you will feel about any baby or child that you live with and are responsible for. You just give away your heart and life is never the same again.
It's exhausting. It's fun, painful. unceasing and so damned worth it!
However you come to mothering you will dither, worry, laugh, cry and wonder on occasion why you let yourself in for the mess and noise. Silence will be a luxury. But you can't give them away. You don't want to let them go. You are a mother and you will do well. You are just made for it, Maggie. But you are going to need some help. You get tired a bit more easily than some people. So plan on some help. You will need it. I had IBS and boy did I need help plenty of times!
Beautiful post thankyou❤
"My former husband came with two kids and one in the oven that did not save a failing marriage." - So he left his pregnant wife and now he has left you? All those fartherless children...
I had a tipped uterus. Didn’t have other medical issues except suspected endometriosis. Doctor warned me not to wait to get pregnant. I was widowed so didn’t want to do it alone. Got remarried years later and got pregnant immediately. You just never know. Good luck to Maggie.❤️
I appreciate you speaking so openly about this aspect of your life, and allowing us to learn along with you.
Don’t apologize so much! Share what you want to share and how you want to share it! We are here for the ride. Thinking of y’all as you embark on this next step of the journey with all the tests. Hugs!
Maggie, you are so brave to share your fears and concerns! I struggled with infertility, and I know that can be stressful. You and Zach are wonderful people, and you WILL find a way to have a family! Also, this is off topic, but I just want to mention that your hair looks so good! That is a beautiful haircut. 💖🌸🌼🌺
I’m so excited for you! I hope everything works out and you can get pregnant and have a successful pregnancy. I’m excited for this content. I’m sure we’re all looking forward to follow this journey.
My heart goes out to you, I had none of these issues, I realize how lucky I am. I just want you to know I find these talks you have very interesting, please talk, get it out, I'm hoping for the best because you guys would make GREAT parents!!!
You have our full support and prayers for a good outcome for you and your hubby.
Hi Maggie, so many thanks for sharing your thought sand doubts with us here. I hope you realize that your openness and willingness to share what is going on with you with us is so valuable. I ended up with an iliastomy after my surgeon found caner in my colon after removing my reproductive organs. I'm 70 and I had never hear of this. I was in shock. Then I found your channel and started to watch your talks and I was so inspired by you. My iliostomy was a temporary one, and now I am healing and waiting for my large intestine to start doing its job, but I have to tell you that the transformaion that I went through was enlightening. This was because I really came to undertand appreciate and love what was happening to me, and you played a huge role with that my dear, so thank you. You are an angel and continue with the fine work that you are doing. I wish you the best with all my heart and know that my thoughts are always with you. Lukie
I have PCOS and have 2 boys. It really is a roll of the dice. Raw Beauty Kristi has PCOS, went through all the infertility treatments, got comfortable with not having children, and then found herself pregnant. Mary Frey and her husband decided to adopt, and now they're also fostering an infant. I know you're having some really challenging feelings about all this, but I also know that you two are going to make fabulous parents however the child/ren come into your lives. You have a skill set that not all of us has, and that's how to advocate and deal with whatever conned your way. You may have a disease, but the disease doesn't have you. ❤
It was so random in how long it took us to conceive each baby. Our 4th it took a whole 3 years actively trying to get pregnant, No reason; nothing wrong. All just wasn't connecting each month even though we were actively trying, testing ovulation, and I have always had regular cycles. Then just two months after having him, we conceived twins naturally. Conception is so random. My good friend went through 15 years actively trying, including two surgeries and 3 IVF attempts to no avail. Then ended up adopting and the week after they brought home their adopted newborn baby, they found out they were naturally pregnant. They now have 2 girls 7 months apart in age.
My great aunt had the same after having my uncle). She tried getting pregnant then nothing was happening then after my aunt was adopted she ended up pregnant with my blood aunt.
No rambling at all, everything made perfect sense. All the testing including genetics is valid and very astute of your doctors to get it all done before embarking on the future. None of us have a 100% perfect genetics. People have spoke about that in the past and those quests never ended well. While fertility testing and treatments are not in my personal path as of this date, I would be very interested to hear whatever Maggie and Zak feel comfortable sharing. I have learned so much from this channel. Also I am getting all my delayed medical tests brought up to date thanks to Maggie's example.
I just want to send love and hugs to both you and Zack. I had gone though the infertility journey as well. After many more years of trying we gave up. Several years later I got pregnant and had a healthy baby girl. No doctor could explain that!LOL Thank you for bring us all on your journey.
My periods are the same so I think that might just be normal but I've had kids so that shouldn't be a concern. I'm glad that your taking the plunge because getting this done now will be good for your future family decisions.
I didn't get pregnant until my ileostomy allowed me to get well enough, I've had Crohn's since around 13yo. I was told in school 1 in 3 couples have difficulty conceiving, regardless of other health conditions. Wishing you all the best. Happy to talk over PM ❤
Hi Maggie, I'd like to send you lots of encouragement! Both myself and my husband have had Crohn's and got our surgeries before starting a family. My doctor said it would be better to do it before proctocolectomy but it just felt impossible with the symptom impact I experienced. I've never regret that decision. I have had adhesions and went through two miscarriages on our journey but our children are healthy and happy, contrary to what other people said hearing about our family decisions. Many people with other health problems decide to have kids and it doesn't bother anyone. IBD is nowadays an in most cases manageable disease. Pregnancy with IBD can be harsh though, I had to go through some hurdles due to IBD and prior surgeries, but it's all manageable when you have great midwife, doctors and dietician on board with you! Keeping my fingers crossed for you guys and please reach out if you have any questions, I would love to support you!❤❤❤
I’m praying that you get answers. I’ve been down the infertility route many years ago and remember how frustrating it was. No matter how you achieve the family you want, the most important thing is that your baby will be loved. You and Zak will be amazing and loving parents. ❤
You have such a good and pragmatic attitude towards the whole fertility/children theme that I am convinced you'll be happy no matter what.
This is going to be an excellent resource for others who will be going through the same situation. You said there isn't much information out there - so here you are making it. Someone has to take the first step. I have enormous admiration for you and wish you the best.
Please NEVER apologize for ANYTHING you share!
Thank you so much for being so open and honest about all of this❤ My Fiancé and I are 30 & 28 and will being TTC soon so this is fun to watch! I am loving following along! 💓 Wishing you and Zak all the best in your TTC journey! Praying it’s nothing more than a blocked tube that can easily
be fixed laparoscopically!!🙏😇
I’ve always been interested in my diagnosis of this. People always ask why we don’t have kids. I don’t want to risk my own life or the let down that I cannot get pregnant. Keep on posting about this and your journey please!! ❤️❤️
You're doing the most important thing..... talking to Zack. Best Regards ❤
Thanks for sharing and good luck with everything! ☺
Wish you all the luck in the world🤞🤞🤞 I had adnoymyosis and had 4 pregnancies, the pain got way worse with age until I had to get a full hysterectomy. I had little to know pain until I was in my forties however my bladder was extremely painful, like a constant uti and I’ve heard that might have been one of the reasons 🤔😵💫 Xoxo
Hi Maggie,
As someone who also has adenomyosis, I recall you saying in previous videos that your periods are super heavy the first 3 days along with cramps and clots is a major symptom of adenomyosis. So it sounds like you do have some symptoms.
It seems that coupled with all the scar tissue IVF is the way to go. Glad you're pursuing it. Wishing you success on this fertility journey 🎉
Watching all the way from LIVERPOOL🎉
Your a god send🎉
You so honest about everthing
I know in us medical bills are just ridiculously high😮
I had my first at 25 and second at 28. I also have adno. I will pray for you!
It took me 7 years to get pregnant until I gained weight I weighed 88 lbs when I got married and my husband had a low sperm count it when up and weigh up to 100 now and got pregnant and couldn’t believe I finally got pregnant me and my husband was so happy I hope you have good luck
Girl you go ahead and talk about it. I’ve been there thru infertility with lupus and endometriosis then went thru early menopause. We adopted and wouldn’t change it for the world. Now our daughter is 37 and I now have a urostomy and you just have to flow with it. Is it a lot of ups and downs yes but I believe you can handle it with Zach by your side. Keeping you in my thoughts and prayers. 😊
Maggie, if you can have someone take you for the test, consider. If you can take something for discomfort before, consider.
It should offer some details about your tubes and even ovaries.
You might need a few days after...
I understand, you have so many things going on with your body. You don't know what to cross off the list of things to be concerned about. I hope for you, it's something pretty simple or a couple of things that aren't that bad, so then it can work out for you. 🎉❤🎉I appreciate your channel. You've taught me a lot about your illness. It has been very interesting.
Good Luck! I wish you the best and you talk about it all you want. We are hear to listen! :)
You have every reason to have testing and get fertility help because it's right for you. I have had Crohn's since age seven. My first child I went and saw an ob to help prepare for trying and was put on low doses of meds to keep the Crohn's in check. Got pregnant in ten minutes. Second one....no luck for a year. At that point I saw ob and wasn't willing to do fertility meds...fear of multiples!...and after a year and kind of giving up I got pregnant. I believe from my story and many others that there are times in life we are more fertile than others. Having said that my second pregnancy sent the Crohn's crazy And i weighed 85 lbs at 5 mos along. He was only four and a half lbs but healthy and fine! I believe you too will get there and adoption is just as perfect as the other way!❤
Best of luck to you and Zac. i am praying for you.
Hi Maggie, What you are doing is so worth the effort. The more you learn the better patient you become. Knowledge is power to advocate for yourself. Gluten Sensitivity was only talked about a mere decade ago. My daughter was very sick from gluten when she was 9 and lost a lot of weight and ended up in the hospital. No diagnosis but strongly suggested Anorexia. That was a stab in the dark and wrong. When she was in college she started a gluten free diet and became well. She thought all people had stomach aches after eating!!! She is healthy now and she and her husband have 4 adorable children . My point is that medicine is advancing and it is so sad that you had to go through your early years without a diagnosis. I feel that you and Zack will be successful. A child of yours has no greater chance of inheriting your condition than an adopted child would , I think ....
Love to hear how you are doing, Liz
First - best of luck on your journey!!
Second - just a thought re: genetic component of Crohn’s and having kids… My mom has Crohn’s (and Graves, HT, and numerous allergies) as did one of her sisters - also one brother with UC and another brother who was very ill but never diagnosed. None of them were diagnosed until well into adulthood (due to lack of medical knowledge about the conditions). Both of my sisters have Crohn’s, and I don’t - but I have other serious auto-immune issues and my son appears to be on the same track. No one knew about these conditions at the times of conception (across 3+ generations - with what we know now, this likely went back at least to my great-grandmother). Add to that the ‘genetic lottery’… basically unless a severe condition is *guaranteed* to be passed on, it seems like a moot point. If experiencing pregnancy as a part of your journey to expanding your family is something you want to do and are physically able to, then go for it!! 😊
Also with that said - if you do conceive, in addition to Crohn’s, just keep an eye out for other AI-related issues, as AI can manifest in so many and varied ways, not just in the form of disease that a parent has.
Thank you for sharing your journey so openly. 😊
Best of fortune. I hope your infertility journey is short and you can achieve your family building goals.
Wishing you all the luck in the world. Love to you both. ❤
We support you even if you just want to vent and update us ❤.
I wish you both the best of luck with these tests!! ♥️ Whatever will be, will be..but honestly, you two would make some cute kiddos!! I’m rooting for you!
I'm I pulling for you guys.
Thank you for sharing!! You are so sweet for putting your story out to help others ❤❤
Maggie sending you alot of love! Youve been through souch and you would be an amazing mom! I also am going through infertility and its so stressful nd exhausting ive hadbtwo surgeries so far.
Maggie, I’ve written on your wall before. I am also an RN, worked critical care many years. I had complex fertility issues. God blessed me with one child and she is “perfect”.😂
But my comment is about the HSG. Surely your physician told you this.
Many women have some sort of a little pop when they do the test and then the fallopian tubes are more patent... After that test, Clomid is one of the old standbys. I don’t know if it’s used anymore because my experience was years back. The test is painful. They do insert a catheter through your cervix, and clamp your cervix while they instill radio-opaque fluid… you are under fluoroscopy as the visualizing take images of the flow within your uterus and fallopian tubes. I can assure you the discomfort is brief. And you may have cramps for a while, but nothing you haven’t demonstrated the capacity to cope with!
Down the line, they may wish to do several other tests, including hysteroscopy, uterine lining biopsy.
Such a blessing, and praying for you, as you seek the Lord’s will on this!
If you have any questions, don’t hesitate to reach out. I have been through the gamut. I have EDS and an ileostomy and and and and and you know how rare diseases go. You have one; you have much more than one in all likelihood.
I fully understand you on the well-meaning remarks by people saying things like "just give it time" & "stop stressing about it". If I had not proactively pursued medical intervention to get pregnant I never would have gotten pregnant EVER. We found out that my husband was shooting blanks so to speak and nobody is getting pregnant with zero sperm right?!!!! So we used a sperm donor and I have beautiful boy/girl twins. Perfection 💯
Good luck Maggie, hope you have your dream come true, I had the opposite problem fell pregnant very easily but miscarried 6 times but I did have 2 babies in the end, natural no ivf infact I was due to have a first meeting with the ivf unit after waiting over 2 years but had to cancel as I was pregnant and due to deliver the same week, never give up, ever. ❤
I had adenomyosis. I had painful monthly cycles ever since they began. I married at 18 & had children at ages 19 & 21. Then had to have a hysterectomy due to the severity of pain & how long I had the pain in a month. It was great to finally not be in pain. So…it is possible for you to get pregnant … so dot give up!
I did four and a half years of fertility treatment had everything up to getting IVF. But I was getting ready for more but out of the blue I got pregnant. So you never know don’t give up.
You and Zak are very wise to pursue this now, as you will have more time for any needed treatments. Also, if you can afford it (and your insurance may cover some of it), consider Chinese medicine (e.g., acupuncture and herbs) if you can find a practitioner who trained in China. Not as a cure, but as supplemental treatment.
The HSG didn’t hurt at all for me! Thinking of you!
Hello, and I fill as you do as one step at a time and see what the future holds for you both as it's important to maintain your health and stat of mind .as for me I was never diagnosed with chron's when you was young I was told it was all in my head so you hear you .but yes I have children and had them earlier than I should as I couldn't carry well but their just fine and all grown up now so please don't let it get to you!!! One day and one step at a time 😊😊😊Take care
sometimes, autoimmune diseases can cause endometrial hyperplasia. i have ms, and i had NEVER seen a positive pregnancy test until after having my uterine lining scraped twice. two pregnancies immediately after those procedures. i was found to have an overgrowth of the lining of my uterus. i think doctors should consider doing this if women can't conceive.
If you Foster to Adopt, it's financially much more feasible! 🌻
It averages approximately $2500 to Foster to Adopt than the ridiculous cost and wait times for standard adoption! 🤗
I didn't know what endometriosis was until 3,5 years ago after emergency surgery to remove a massive cyst and the ovaries it destroyed.. But had a hysterectomy almost 2y ago and the lab results of my uterus said Adenomyosis maybe a month later 😵💫
And had so much scar tissue from the first surgery that it had pulled my bladder up and my small intestine down..
Never had any symptoms of anything before and I'm almost 35.
Not even the rearranging of organs 😅
Never wanna do it again when every surgery gets worse or complicated 0/10, would never recommend 😂❤
Hi Maggie, just thought I would share my experience having Crohn's disease and pregnancy. I have two kids and I had a lot of trouble carrying them because of Crohn's, as growing babies they take a lot of nutrients from you, my body was very depleted from vitamins and I had both kids premature. Also the doctors didn't tell me that I could have passed Crohn's disease to my kids, and yes they both have it, my youngest has it severe than my oldest, wishing you all the very best with your future plans.
I was having extremely painful periods. I had a hysterectomy and found out that the pathology showed I had adenomyosis throughout my uterus. It’s very unpleasant.
I don't know how likely it is but it is possible that the saline sonogram can unblock a blockage, from what I've been told. My disability is one that can be passed on genetically when one or both parents has it. It's also possible to randomly happen, neither of my parents did, but there was a cousin of mine that did. All that to say, I'm beyond having a child at this point but always wanted to. The main reasons for not really pursuing it were the way society looks at disability and I down right would NEVER put a child through what I went through medically or face in interactions with people.
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I had pcos with over weight that I cannot handle myself. i am taking medications and try to push myself until I let everything go whatsoever to me. And I stop being sad, I left the medication to clear my head. i found out I am pregnant with 4 monghs skipping the menstruation.
I wish you well getting pregnant. Keep practicing!
Oh Ma'am Maggie,i really salute you!
You have been through enough.....I sure hope you and your husband are able to conceive a child. 😊
My friends and I call a chunky period a slushy and use is as a verb.
Have you talked about your "clotty periods" with your gynaecologist? What does he/she say about it?
I'm concerned about your scar with pregnancy. How much can your abdomen stretch? That really concerned me about you and Zac may have already discussed this already. I just hope your dreams come true and you can be happy Maggie again.
I actually had this examined while I went through pelvic floor therapy - we tested my abdominal wall strength and my PFT was surprised at how the muscles seemed to stay together and had strength. She also had me do scar massage to soften it a bit. Obviously it is something I will have to keep an eye on, but it didn't seem too concerning to her!
I had an ectopic pregnancy, the Dr. Said I had so much scar tissue on the remaining tube that he removed. He said I wouldn't be able to get pregnant. 4 years later I had my son. The Dr. Had me taking folic acid. I'm not sure it helped, but I had Jed.
We did IUI. Sadly didn't work for us. We drew the line at IVF.
I had Adenomyosis with non-stop periods and needed a hysterectomy. It doesn't sound like yours is so bad though. I hope it works out for you.
I'm so sorry! I hope you are doing alright now and have gotten some relief 🩷
I heard that HSGs are only painful if you have blocked fallopian tubes. I would hope for the best, but prepare for the worst.
Are to having a hysterosalpingogram? Everyone is different. I found it so painful i insisted on abandoning the procedure. Actually, my husband quietly made the doctor absndon it because he was ignoring me. I live with chronic pain and i could not take this. Had it done later under GA. Just some extra info, i know you believe in informed consent
It blows my mind the medical things doctors don't know about that I literally learned from just listening to people talk about themselves on the Internet...
The way this world is going I would not wish any child to be born right now.War,weather,human conflicts,it is to dangerous right now.
What time do you think would have been a safe time for a child to be born into this world?
@@Smithpolly Not now that's for sure.
@@grace-ellenzacker1826 What time do you think would have been for sure a safe time for a child to be born into this world?
Sucks trying for 3 years. Hope it happens soon
I never found being told to relax to get pregnant
In Australia and I few other countries they are trailing a new form of IVF where the person with the uterus only needs a few injections far less than regular IVF. This could be an option for you to research?
Can your belly skin stretch safely with the huge scar from surgery?
I hope you're gonna have kids whether you get pregrant or adopt. Just now that embryo adoption is also a thing in the USA. It could be something that you might consider down the road. There are a lot of legal stuff that goes into it, but I think it is worth looking into that. Good luck. ;)
Until Zach's tests come back, you can't rule that out for sure. Maybe his tests did come back though. I might have missed that! Yep healthy parents have children with illnesses all the time, so just because you have an illness or something wrong doesn't mean they will get it too! That definitely isn't a reason to not have children if you are able to care for them. I'm too sick to care for a child, so I don't think I'll be having a family. Good luck to you both.
A lot of women tend to get pregnant after the HSG test so that may happen to you. I've had an HSG and for me, it just felt like bad period cramps that lasted for a few seconds at a time. I hope it's not so bad for you as well!
Yes, the "clear out those cobwebs" with the HSG. So many women get pregnant within the 1-4 months the cycle after!
That can be true indeed.
Should get the STD required tests before the HSG.
As someone with Adenomyosis
Be thankfully you are not showing symptoms. However because of your ostomy that may be why. 🤷🏻♀️
Having a tipped uterous could be the problem too. I dont want to burst your bubble but being on humera is serious. Humera can cause allot of problems. What could it do to a fetus.
I wonder if they can put a saline implant in behind your uterus to keep it up right? It could be you aren't becoming pregnant because of your uterus tilting backwards and it maybe causing the fallopian tube to close off and not allow the egg to move forward.
I'll share this soon, but I guess my uterus is normal! My cervix leans back a little, but the actual uterus was completely normal (I was shocked)!
You never ever ramble❤
God has the last word to everything I will be praying that the Lord Jesus will strengthen your body and whatever is not of God that he will heal your body in the name of Jesus Christ Amen.. I have paid that he will bless you with a bundle of joy without any complication
God is good all the time 🙏🏼
Do you wish you had not been born? I don't it :0) if you had a child with IBD do you think they would wish not to have been born? I doubt it :0) Remember what Forrest said . Life is a box of chocolates
🙏🏼 having faith with the Lord he will provide your body and bless you with the child... You should have waited before you had your rectum and your colon removed.. so you could have had your family of 5
Having inflammation in the body would not have helped, and I felt horrible. I couldn't imagine healing from that surgery with children - it would have been so difficult.
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I have a question and I dont want you to take this as me being rude. Would you consider do a surrogate?
This is extremely expensive and it is not something I want to do
@@LetsTalkIBD ok was just curious
Would you and Zach consider a surrogate?
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